I Can't Stop Falling Asleep | BORN DIFFERENT

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  • Опубликовано: 24 июл 2024
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    28-YEAR-OLD Justice lives with narcolepsy type 1, a rare neurological condition that causes her to fall asleep "without warning" several times per day. The condition means Justice is unable to regulate her sleep-wake cycles, so she experiences fragmented sleep during the night and "sleep episodes" can happen at any time during her waking day. Whilst Justice does her best to schedule naps in an attempt to prevent episodes, she regularly falls asleep in public - something that she admits comes with "some level of embarrassment." She has been mistaken for being "passed out drunk" after falling asleep in nightclubs and even experienced an episode during her grandmother's funeral. Justice is not oblivious to how that might look to people who don't know she has narcolepsy - something that does make her feel "extremely vulnerable." Fortunately, Justice is surrounded by supportive friends and family, including her sister Ava. Having grown up with Justice, Ava is used to protecting her sister when she does have an episode in public: "I just make sure to keep her safe, making sure people respect her and that her episode is not a spectacle." With this support to fall back on Justice is adamant that whilst her condition can be frustrating "life is all about perspective" - and now, by advocating online, she is determined to show other young people living with narcolepsy that "you aren't chained in by your disorder. You still can live a functional life, you still can achieve the things that you want to achieve."
    Follow Justice:
    / justicecollins11
    / pray_4_justicee
    / pray_4_justicee
    Videographer: Nathan Johnson
    Producers: Kim Nguyen, Tom Buckman, Georgia Embling, Courtney Buabeng
    Editor: Vanessa Nascimento
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    00:00 Intro
    0:31 Meet Justice & Learn About Narcolepsy
    4:50 Justice Has An 'Pass out Episode'
    7:28 Outro
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Комментарии • 362

  • @truly-channel
    @truly-channel  4 месяца назад +19

    If you enjoyed this story, we have more great Born Different episodes here: ruclips.net/p/PLUkdT9ljJ1cbFTk10utsTb-RGsujT5bG4

  • @meganjoelyn2207
    @meganjoelyn2207 4 месяца назад +450

    Narcolepsy is not something to be scared of. I love that she is sharing because it does need more attention. Also, on a side note...her hair is awesome!

  • @lymarie1974
    @lymarie1974 4 месяца назад +324

    Yikes, that scared me seeing her asleep at a club.. terrible things could happen.
    So glad she has support.

    • @khonkhosilelihle7414
      @khonkhosilelihle7414 4 месяца назад +5

      Me too ey.

    • @boredfive3001
      @boredfive3001 4 месяца назад

      Exactly, some MAN could try to get her a pillow WITHOUT HER CONSENT!

    • @ashleyaut
      @ashleyaut 4 месяца назад

      What could possibly happen? I’m interested to hear

    • @minutesnippet
      @minutesnippet 4 месяца назад +10

      Spiking her drink

  • @blessed3674
    @blessed3674 4 месяца назад +167

    My brother has Narcolepsy. He use to fall asleep in class and still heard everything the teachers said. The school called my mom and said he was on drugs, and he is cheating on test 😢. I use to feel so bad for him . She had to bring medical records and they still didn’t get it

    • @Ang417
      @Ang417 4 месяца назад +5

      😢

    • @naketizainabu7803
      @naketizainabu7803 4 месяца назад +12

      That's sad 😢

    • @IAmJahae
      @IAmJahae 4 месяца назад +9

      Show them this video

    • @moneemel
      @moneemel 4 месяца назад +18

      My mom has had it all my life and she is 80 and one of the most creative, and brilliant person 8know..she also was a teacher for 30 years and has masters in biological science.. it’s hard to describe growing up..that would take a book..lol. But she is thriving and active when she’s not sleeping 😊..she is an artist and loves jigsaw puzzles , she made over 100 afghans over the pandemic..she manages her narcolepsy with ridlin

    • @rickiericktv3320
      @rickiericktv3320 4 месяца назад +4

      I don’t have narcolepsy but I will fall asleep and also hear everything someone is saying to me. Lol, I repeat word for word.

  • @themindhelp9584
    @themindhelp9584 4 месяца назад +143

    Oohh At Granny s funeral😂😂😂😂 oh my heartttt when they both laughed❤

  • @jadaharris7655
    @jadaharris7655 4 месяца назад +276

    Honestly this sounds like it sucks to have to deal with

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад +36

      I deff have my challenging days not going to lie but in the big scheme of things I'm pretty lucky. The way i see it somr people have like cancer or invasive disorders. If the worse thing is i have to take a few extra naps in the day... ill take it lol. It could be so much worse.

    • @jadaharris7655
      @jadaharris7655 4 месяца назад +3

      @@justicesverdictsandviews I suppose it could be but that doesn't make it any less sucky for you or people who have this condition

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад +11

      @@jadaharris7655 oh for sure not invalidating the seriousness or anybody else's truth. Just always trying to have perspective with a challenging situation.

    • @jadaharris7655
      @jadaharris7655 4 месяца назад +4

      @@justicesverdictsandviews oh no sorry I didn't mean it like that I just meant that you shouldn't let anyone tell you that your illness isn't hard just because it's not something like cancer or something invasive

    • @fabbi9548
      @fabbi9548 4 месяца назад +1

      ​@@justicesverdictsandviewsthank you for educating us. Q: Are you able to hit REM sleep day to day?

  • @throughtheeyesofachurchgir6456
    @throughtheeyesofachurchgir6456 4 месяца назад +107

    My grandmother is Narcoleptic as well. She used to have to pull over if she was driving (she stopped driving years ago) but it definitely is somewhat of an inconvenience for her. However, I did laugh when she said she can hear what's going on around her. My grandmother heard my mom talking to me about a disagreement they had. She woke up looked at me and asked, "WHAT DO YOU HAVE TO SAY?"😂😂😂

  • @Jojo-gg6jc
    @Jojo-gg6jc 4 месяца назад +87

    When I was a child I had a sleeping disorder, I was around 10 years old. It went on and off for over a year. And then it stopped. I'm now 64, and I have insomnia now and then. I fell asleep at a baseball game and woke up and everyone was gone. We loved right across the street from baseball fields so it wasn't unusual for me to go watch the games. My parents took me to many specialists, ran many tests and they came back fine. Then one day it just stopped. I'm glad they were able to diagnose your sleep disorder.

    • @Jesussavedme
      @Jesussavedme 4 месяца назад +5

      Yeah medical advancement definitely helps these days it's crazy how they test for sleep apnea 😂 I had a hundred wires all over me and I told the guy I'll stop breathing around 1 am and he was blown away I stopped at 103 am lol its cause that's when I'd wake up every night out of it and I stopped breathing every few secs 😢 but now I have a cpap machine so I'm ok

  • @mollyram2997
    @mollyram2997 4 месяца назад +71

    Love her & her sister. They seem so cool

  • @kimmytay3828
    @kimmytay3828 4 месяца назад +57

    I love her support system. She’s beautiful and seems happy. ❤

  • @juicyluxury
    @juicyluxury 4 месяца назад +432

    she should get a service dog, they can smell when you’re about to fall asleep and they make indications to tell you

    • @Mrs.TJ516
      @Mrs.TJ516 4 месяца назад +16

      It’s clear she does have one.

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад +71

      @@Mrs.TJ516 haha zuko isn't a service dog. But he is my right hand tho! 🫶🏾 just a regular pup who enjoys a good nap too

    • @Mrs.TJ516
      @Mrs.TJ516 4 месяца назад +9

      @@justicesverdictsandviews bless you 😌

    • @grandthanks
      @grandthanks 4 месяца назад +13

      Those of some good looking genes in that family 💅

    • @gracie4200
      @gracie4200 4 месяца назад +3

      Or a male boyfriend--dog 🤪

  • @leahlinky798
    @leahlinky798 4 месяца назад +57

    Such an understanding and supportive sister.

  • @Fantasma257
    @Fantasma257 4 месяца назад +98

    Beautiful sisters. Thanks for taking care and protecting her

  • @mh3708
    @mh3708 4 месяца назад +28

    Thank you for educating folks on narcolepsy. My sister has this condition as well. She also has cataplexy, which causes her to have seizures when she has strong surges of emotion, like when she finds something really funny. It really profoundly impacts her life, but she really does her best with the situation. She is the sweetest, most loving and upbeat person I’ve ever met. I will support her and make sure she is safe and taken care of til the end of my days. ❤

  • @Milaperadotti
    @Milaperadotti 4 месяца назад +53

    I battle with narcolepsy. It’s hard can be annoying. She is doing all the right things

    • @vanesal3435
      @vanesal3435 4 месяца назад +2

      Does taking stimulants help?

    • @horizonblack
      @horizonblack 2 месяца назад +1

      @@vanesal3435 Yes, but not as much as you would hope

  • @DWLanez
    @DWLanez 4 месяца назад +52

    I wish I had Ava as a sister her spirit is so calming!!!

  • @yvonnebannon7623
    @yvonnebannon7623 3 месяца назад +3

    I work in a sleep clinic and this is the first time I have seen anyone talk about Narcolepsy ever! This is great that you are sharing your experience so that others can see! The patients at my clinic take medications for this condition and they are very FDA controlled medications-no joke.
    She’s a beautiful young lady and I wish her the best! Thank you for sharing!! ❤

  • @hopelessly.hopeful
    @hopelessly.hopeful 4 месяца назад +18

    She has an incredible outlook on life

  • @vcello6450
    @vcello6450 4 месяца назад +27

    Yay! I have narcolepsy and nobody understands it! I'm glad you did this episode!

    • @user-qy4jy6me5w
      @user-qy4jy6me5w 4 месяца назад

      Me too, but now I get enough sleep, they used to abuse me because I grown-up with stepmother , I thought she bewitched me, i struggled so much with that disease 😢😢 but God is good God is great, am fine now 🙏🙏🙏

  • @piginpink
    @piginpink 3 месяца назад +1

    Love how respectful and comprehensive her sister is! Two smart and beautiful ladies putting out there that is ok to be different 💚

  • @yeahumad6085
    @yeahumad6085 2 месяца назад +1

    I love her personality. Such a beautiful person

  • @charlie_says3841
    @charlie_says3841 4 месяца назад +8

    Justice,thank you so much for helping people understand more about this condition. I can only imagine how hard it is to manage a disorder like this, but it seems you're staying positive and doing all you can to get the most out of life. Animals are great for de-stressing as they actually lower bloodp pressure, and your doggo is unbelievably cute! Also, you're gorgeous ! Love your hair ❤ Ignore the ignorant/rude/stupid comments, there are always trolls who have nothing better to do with their lives than bully strangers. Take care xx

  • @ladykeraseraphim2949
    @ladykeraseraphim2949 4 месяца назад +1

    Bless this sistas soul, she still seems to enjoy her life ❤

  • @cas8007
    @cas8007 4 месяца назад +4

    Thank you for sharing this. ❤

  • @ficrispin
    @ficrispin 4 месяца назад +20

    Such a strong and beautiful woman.. an inspiration! This would be hard to live with. Instead of being depressed and down , shes living her life and helping educate others ❤

    • @kimf442
      @kimf442 4 месяца назад +2

      Yes 🙌 ❤

  • @MrMcjay88
    @MrMcjay88 4 месяца назад +123

    Don't Drive🚗

    • @rubymargaritais5657
      @rubymargaritais5657 4 месяца назад +6

      I had a lady tell me she fell off a highway ramp before she found out she had narcolepsy.

    • @divineokoye9939
      @divineokoye9939 4 месяца назад +4

      I was just thinking that

    • @Chanelly93
      @Chanelly93 4 месяца назад +4

      Or cook either. 🍳

    • @erehistruth2356
      @erehistruth2356 4 месяца назад +3

      I agree.

    • @Lordkezn
      @Lordkezn 3 месяца назад

      I doint drive

  • @willcookmakeup
    @willcookmakeup 4 месяца назад +10

    I can't imagine the stigma people with Narcolepsy experience. Others must just always assume you're drunk. Also if you're alone or somewhere new - it could protentially be really dangerous if you fall asleep and wake up somewhere you don't know around people you don't know

    • @Zee-ob1pe
      @Zee-ob1pe 4 месяца назад

      I would assume sleep deprived not necessarily drunk as her behavior and movements don’t indicate such

    • @willcookmakeup
      @willcookmakeup 4 месяца назад +1

      @@Zee-ob1pe she literally said in the video that people often assume she's drunk

  • @aliciahackshaw2776
    @aliciahackshaw2776 4 месяца назад +8

    My dad has Narcolepsy, I remember as a kid he would always fall asleep out of nowhere. I remember one day I asked him when he was going to get a car and said to me " I'll Never be able to drive, I have Narcolepsy". After that moment I just let him sleep until he would get up because it is not a big deal its something normal to me. I always try to understand because it was also passed down to my little brother and from my perspective and theirs it's normal but others may laugh. Others should be more open to learning about these things because it's not normalized that we talk about these things.

  • @Stalemarshmallow
    @Stalemarshmallow 4 месяца назад +20

    I have a sleeping disorder too because of my bipolar disorder. Meaning, when I’m more depressed I fall asleep all the time in inappropriate places. The fatigue is completely overwhelming and overpowering and there is absolutely nothing I can do

    • @KD1ME
      @KD1ME 4 месяца назад +3

      OH. EM. GEE! I do this and am so self-conscious about it. I might have the same thing!

    • @courtneyd.6234
      @courtneyd.6234 4 месяца назад +1

      My fiancé is like this too

    • @palestar828
      @palestar828 4 месяца назад

      ​@@KD1MEbipolar had to do with much more than just sleep lmao

    • @KD1ME
      @KD1ME 4 месяца назад +1

      @palestar828 just because I didn't mention it, doesn't mean I don't have bipolar disorder. I was commenting on the sleep portion of the op's comment. This is the importance of minding your business when you don't have all the information. There is no need to speak on something you don't know. Have a blessed day.

    • @user-ng2wc5ip8l
      @user-ng2wc5ip8l 4 месяца назад

      @@KD1MEim sorry stinka butt ☹️i hope your ok 🙏

  • @donnataylor980
    @donnataylor980 4 месяца назад +19

    I'm sorry you have narcolepsy😢 I hope it gets better one day❤ have a good one❤😊❤

  • @songbird4137
    @songbird4137 4 месяца назад +3

    Such a beautiful soul. So happy to see she keeps being positive and has amazing people who support her

  • @winternightsky6945
    @winternightsky6945 4 месяца назад +10

    My uncle probably had this and we just didn't know it back then. I don't have a sleeping disorder but I fell asleep one time while driving and would have crashed into the wall had someone not blown their horn. I didn't even realize I went to sleep.
    After that I don't play when it comes to sleep and driving and keep a car music playlist to help me sing to stay awake. If I'm going out and will be far from home, I won't eat because I know my body will get sleepy after an hour of eating. Once I yawn it's almost time to go. I will not jeopardize my life as well as others driving while sleepy. I've taken a 20 minute nap when i got off work because I was so sleepy and feared falling asleep at the wheel again.

    • @lkjhb1
      @lkjhb1 4 месяца назад

      Have you ever thought about possibly having sleep apnea? Falling asleep while driving is one of the symptoms of it

    • @winternightsky6945
      @winternightsky6945 4 месяца назад

      @@lkjhb1 No it's not sleep apnea, I was just tired. I was young when it happened and it was my first time driving far to check colleges.
      I didn't believe people could fall asleep at the wheel until it happened to me. I can sit down at my job all day and be perfectly fine, but I can't sit down for long driving.
      You're tired and fighting sleep and thinking I got this or that I'll close my eyes for 2 seconds, the car in front of me is way up there so I'm not going to hit them. You don't want to pull over to take a quick nap for fear of being robbed/or kidnapped, so you keep going. Next minute you know you're sleeping.
      When you get off work and think I'm good to drive but the sound of the road/vibration of the car makes you sleepy. I equate that to a fan in the bedroom. A lot of us go to sleep with a fan and in a way the sound puts us to sleep. So when I'm working or studying I don't turn on the fan. When we eat we want to lay down and got to sleep after an hour.
      So through trial/error I learned how my body works. I have about a 2-3 hour driving limit before I get sleepy, if I drive far to leave early in the morning right when I wake, but don't eat anything. I can snack but not that much. And if I know it may be late driving back home to either stay the night at their home/or get a hotel. Just know I hate staying at either place and prefer to sleep in my own bed. Not everyone's house is clean and roach free and I have a fear of camera/dirty carpet at hotels.
      Before being a mom I wasn't always perfect when it came to following my rules when driving, a few times I drove and had to fight falling asleep. But once I had my kid I started following them 100%. I couldn't imagine being careless behind the wheel and something happens to my kid or me/they have grow up without me or I take another person's life.
      I got hit a fear years ago 5 minutes after dropping off my kid at school. A diesel on the side and the car behind me, both hit me at the same time. The diesel caused the accident, because they turned in my lane/their trailer went over my car, I thought I was about to be decapitated. So I have anxiety driving because I swear every time I drove after that some careless person almost hit me by not paying attention. I've since moved from the city to more country area and my anxiety driving has tremendously improved. There's less cars on the road, people in a hurry and wider streets.

  • @ToniaLenza-bs5cv
    @ToniaLenza-bs5cv 4 месяца назад +30

    She is smart about the driving and she's beautiful

  • @AbyaaJones
    @AbyaaJones 4 месяца назад +2

    Bless Her Heart ❤️

  • @indiabrowne7549
    @indiabrowne7549 4 месяца назад

    What a beautiful girl, with great support. Thanks for bringing awareness to narcolepsy ! ❤

  • @leegraham1179
    @leegraham1179 2 месяца назад +1

    Thanks for sharing your condition people need educating 👍👍👍👍

  • @bethanyjohnson8222
    @bethanyjohnson8222 4 месяца назад +10

    A well rested queen 🎉

  • @antwondunn7063
    @antwondunn7063 4 месяца назад +3

    You are amazing person do not do not let narcolepsy hold you back 😊❤

  • @guesswhat-chickenbutt
    @guesswhat-chickenbutt 4 месяца назад +91

    Bless her heart

  • @Ireallyreallywishiwerenthere
    @Ireallyreallywishiwerenthere 4 месяца назад +6

    I feel for this girl, I have narcolepsy, but not like this, so my brain tries to dream while I’m still awake. It’ll try to go into REM and I see things breathing and moving. I’m so glad I don’t have it to the point where I fall asleep while I’m standing or something. ❤

  • @dianebryant4684
    @dianebryant4684 3 месяца назад +2

    I love your energy, blessings from California. Girl you’re DOING GREAT ❤❤❤

  • @lamorena1488
    @lamorena1488 4 месяца назад +10

    Very inspiring woman✨. It’s great to see that she’s open about her disorder without shame because no one is born perfectly healthy. I believe we all got a little something unique to us.

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад +2

      Exactly! It's all about embracing what makes you different. I just take it as an opportunity to educate

  • @AiressNoir
    @AiressNoir 4 месяца назад +9

    FINALLY! A story that I can relate to! 😂😴

  • @marym6110
    @marym6110 4 месяца назад +4

    As someone with Type 2 Narcolepsy, it is/can be a debilitating disease even with treatment. Thank you for this video❤

  • @_Giorgiaf_
    @_Giorgiaf_ 4 месяца назад +10

    Great to see someone spreading awareness but not fear of Narcolepsy. I have Narcolepsy and thankfully I can take medication that allows me to stay awake most of the day. Before medication, my days were very much like Justice’s. Glad to see she is persevering and thriving.

    • @shastac1396
      @shastac1396 4 месяца назад +3

      Me too. Vyvance was very effective for me for many years but most insurance won’t cover it because narcolepsy is an off label use. Modafinil has been pretty effective as well. Glad you are doing well 😀

    • @care-a-lot1051
      @care-a-lot1051 2 месяца назад

      So glad that there’s medication for this medical condition!

  • @selflovezbaby
    @selflovezbaby 3 месяца назад +2

    God bless her amen 🙏🏾❤️

  • @LadyTT31
    @LadyTT31 4 месяца назад

    Beautiful soul and learned from this thank for education on this God Bless you

  • @thatgirlchrissytv6934
    @thatgirlchrissytv6934 4 месяца назад

    God bless her. I hope one day they can find a cure for this disorder 🙏🏽♥️

  • @teeraerob8813
    @teeraerob8813 3 месяца назад

    Right on girl! I also have Narcolepsy.. was diagnosed in my early 20's. I used to catch the bus to work - I once slept standing up at the bus stop..
    It was definitely a convo starter for all the other bus riders lol.
    Not enough is said about this one.. thanks for sharing your story ❤❤

  • @outrayjust
    @outrayjust 4 месяца назад +6

    I saw this and immediately my daughter said mom u have the same. I fall asleep at parties, movies 🎬 in the park on the bus in my car 🚗 if am park for long period of time and at work. But u are diagnosed. Thanks for sharing

    • @pigeon1923
      @pigeon1923 3 месяца назад +1

      You definitely need to get diagnosed and please try not to drive. For your safety and others

    • @outrayjust
      @outrayjust 3 месяца назад +1

      @pigeon1923 yes, I have an appt to speak to my Dr. In this regards thanks. And no I do not drive whenever I may feel this was I pull over if I have to bc I can feel it coming on.

    • @pigeon1923
      @pigeon1923 3 месяца назад +1

      @@outrayjust I wish you the best of luck speaking to your doctor and I hope you're keeping well ❤️

  • @murphyville
    @murphyville 3 месяца назад

    I learned a lot about this!

  • @gailajones6798
    @gailajones6798 4 месяца назад +9

    Sisters are the best🙏💜🩷

  • @laurenschenck5355
    @laurenschenck5355 4 месяца назад +1

    So strong and amazing women and inspiring and inspiring unique and amazing and remarkable person thanks for sharing ur story 🫶🏻🌺🫶🏻🙌🏻💙🩵🫶🏻🌺🌺

  • @ellic4685
    @ellic4685 4 месяца назад +17

    My older brother has narcolepsy too and I have epilepsy lmao

  • @jambam4642
    @jambam4642 4 месяца назад

    Literally a curse that can be broken 🙏🏾

  • @pandoricaa
    @pandoricaa 4 месяца назад +314

    me when I watch tiktok ASMR lives

  • @kristinacobb2662
    @kristinacobb2662 4 месяца назад +3

    I love the band KISS. I fell asleep during one of there concerts.

  • @ktwei
    @ktwei 4 месяца назад +15

    Me too.

  • @elyssalowman5424
    @elyssalowman5424 4 месяца назад +2

    i have type 2! just diagnosed after 27 years of horrible sleep. ive fallen asleep leaning over barricades at concerts, on the floor at halloween parties, and worst at a meeting while i was shadowing a nurse manager for school 😅

  • @nancymosby7369
    @nancymosby7369 4 месяца назад

    Beautiful soul ❤

  • @GreatBunny
    @GreatBunny 3 месяца назад

    These two are seriously so cool looking

  • @summerkoontz1519
    @summerkoontz1519 4 месяца назад +4

    I have narcolepsy type 2. I sleep A LOT!! I can totally relate

  • @prisciliaclassique
    @prisciliaclassique 4 месяца назад

    She is so beautiful

  • @DaveKing-ny9rk
    @DaveKing-ny9rk 4 месяца назад +2

    Grannys funeral 😂😂😂😂

  • @mokaLARE
    @mokaLARE 4 месяца назад +29

    That is crazy! Can she have a job in such conditions?

    • @Isobel201
      @Isobel201 4 месяца назад +11

      I worked in the same place as somebody with that condition, I think the managers just accepted it really.

    • @blackamericanlesbianprofes4357
      @blackamericanlesbianprofes4357 4 месяца назад

      Just thinking, this young woman could be a Detective.

    • @mokaLARE
      @mokaLARE 4 месяца назад

      @@Isobel201 cool!

    • @mokaLARE
      @mokaLARE 4 месяца назад +1

      @@blackamericanlesbianprofes4357 she can pass out during an investigation, which is not what you want to happen as a detective. Lol

    • @sunshinerose9747
      @sunshinerose9747 7 дней назад

      My job knows about my condition but they aren't technically overly understanding

  • @terrilhill1024
    @terrilhill1024 4 месяца назад

    I can relate to this. I had a sleeping disorder throughout my young adult life, but for me I thought I was doing it to escape my everyday circumstances. No one ever knew or inquired why I slept so much. I just thought it was because of deep depression.

  • @moniquejohnson2465
    @moniquejohnson2465 4 месяца назад +8

    Gorgeous young woman. God bless her...I'm concerned about her driving tho. Love her hair!

  • @tom_something
    @tom_something 4 месяца назад

    In our society, there isn't a lot of accommodation for narcolepsy in things like education and employment. Justice found a way to make it work, but I'm sure it hasn't been easy, especially pre-diagnosis. I love that she has friends and family members who not only "accept" her condition and its symptoms but also normalize it. The whole rest of the world expects her to be awake consistently. In the presence of her close friends and family, she's got a safer space.

  • @user-se8pl6ey1k
    @user-se8pl6ey1k 4 месяца назад +3

    Yeah... That's my life. To bad NOBODY CARES! There is no real compassion for me. People have always been like this family..."you just need to get some sleep at night!". Everything she said is accurate

  • @waltdiesel
    @waltdiesel 4 месяца назад +1

    She's gorgeous😍😍😍! My brother used to fall asleep anywhere. I'm glad he didn't become a trucker driver with me...

  • @reginalemmon1042
    @reginalemmon1042 4 месяца назад +2

    I know exactly how she feels cause i can't stay up either n my husband always say you sleep too much but i can't help it, i need to go get checked out n see why i get so sleepy all day.

  • @ES92-
    @ES92- 4 месяца назад

    Me too girl, Me too.

  • @moneemel
    @moneemel 4 месяца назад

    As a child I remember that she had to get her lesson plans together for the week but she always had hers done for the year by the end of summer break..no matter how often she may have fallen asleep during the day..She was always up at 5 am..she's 80 and still gets up..the other thing is she can hear what your saying because she has catoplexy also..I could write a book..

  • @SugaBee
    @SugaBee 4 месяца назад

    I think my nephew has this. He'll be in the backseat talking and talking and then just silence. Sleep. I love it😅

  • @ambarrose
    @ambarrose 4 месяца назад +5

    I guess narcolepsy is more of a bother than anything else. You have to plan out and try to keep things under control at all times. You have to make sure that you are safe constantly or else you could end up hurt by accident while sleeping

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад

      Yes exactly!!!! I use the word inconvenient. Not being able to do certain things or just having to calculate your days so you are productive and can do the things you want.

  • @Miapetdragon69
    @Miapetdragon69 4 месяца назад +2

    Have they tried Ampyra? Because I know that it was made for people with narcolepsy... But it also helps people like me that has multiple sclerosis, gives you the most unbelievable energy.

  • @urmostsamejjklvr
    @urmostsamejjklvr 4 месяца назад

    Finally a somewhat relatable addiction id say this is very much real and appreciated from the channel respecting people that suffer from this it’s hard out here

  • @malloryknox1637
    @malloryknox1637 4 месяца назад +1

    My friend has this and is prescribed stimulants and they help but can be addactive so they are very tightly monitored.

  • @peterrrjeremiah
    @peterrrjeremiah 4 месяца назад +1

    Bro I have Narcolepsy as well but I have been trying to get diagnosed for years 🙄 so I absolutely get it as well! I can fall asleep standing up.

  • @ThePhoenixUnderwater
    @ThePhoenixUnderwater 4 месяца назад +3

    I have it too, and I was diagnosed at 24, I'm 28 now. I have to take naps, or I cannot function!!!!

  • @ghazard3344
    @ghazard3344 4 месяца назад +2

    I have Narcolepsy and I take medication. Although I cannot work a corporate position anymore, I can still live a somewhat “normal” life with medication.

    • @LoveLove-qm6ye
      @LoveLove-qm6ye 4 месяца назад

      Hello, would you mind sharing which medication is currently working for you? Thanks 😊

  • @diannespalding6542
    @diannespalding6542 2 месяца назад

    My sister has narcolepsy. Took forever to get diagnosed. Once she got on the proper meds, her life changed!

  • @Texas_ice
    @Texas_ice 3 месяца назад

    I was diagnosed in 2021, and let me tell you it can be a nightmare! Can’t stay awake during the day, and can’t stay asleep during the night. So you take meds to keep you up and take them to sleep. It can be quite depressing at times.

  • @Thorinox
    @Thorinox 4 месяца назад

    The only thing I will have to disagree on is the driving. Because you have narcolepsy, you are putting yourself and others at a higher risk of danger. As long as someone is in the car with you while you are driving to take over if you do have an episode. Then by all means.
    But over all, I'm so glad to see so much positivity from you over this, never let it get you down. And thanks for the funny moment while at the funeral. Nice share!

  • @fightsbjbeats4122
    @fightsbjbeats4122 4 месяца назад +2

    Crazy part Ik somebody with this disorder

  • @Graced411
    @Graced411 Месяц назад

    OMG this is my life! ❤ ain’t nothing u can do about falling asleep. I fall asleep in traffic, seminars, standing. It is nothing u can do. I have to take uppers and downers to survive. Yes scheduled nap times matter but again nobody understands. I can’t help it

  • @sylviarobinson5952
    @sylviarobinson5952 4 месяца назад +1

    I HAD THIS CONDITION WHEN I WAS AROUND 38 OR 39 YEARS OF AGE AND I KNEW I COULD NOT LIVE LIKE THIS FOR THE REST OF MY LIFE. I DIDN'T KNOW WHAT TO DO. I WAS GOING TO GO TO THE DOCTOR BUT I PRAYED AND IT HEALED. AND COME TO FIND OUT, I WAS CONSUMING LARGE AMOUNT OF ARTIFICIAL SWEETENERS WHICH CAUSED THE PROBLEM OF SLEEPING A LOT😮😮

  • @donnetcordice7608
    @donnetcordice7608 3 месяца назад

    Never knew about this condition 😮 serious situation..is there any meds to assist your moment's thanks for sharing.

  • @MommaBearOTT
    @MommaBearOTT 2 месяца назад

    More music.Invest in headphones and a playlist of music that keeps your attention .And its important to get to know your melanin.Its just how her body relaxes.Just so happens its at random moments.sleep is so important especially if you dont get enough of it

  • @user-yd1du5ny2i
    @user-yd1du5ny2i 3 месяца назад

    I don't have narcolepsy, but I do have mild sleep apnea. So I understand a little bit about what it feels like to not be able to stay awake.. especially if I had a bad night with pain as was the case last night.

  • @Neon-crayon
    @Neon-crayon 4 месяца назад +4

    Damn this is low key dangerous. When u brake it Down simply cooking could lead to devastation. Can u be woke up after u drift off.

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад

      It really can be. I'm lucky enough my episodes typically are in controlled environments usually meaning I can feel them coming on. Then if I plan my day with structure naps etc. I have prevent episodes from occurring. But for somebody with a more severe case I can only imagine the difficulty managing the unexpected side of the disorder.

  • @lalaplayboi
    @lalaplayboi 3 месяца назад

    Strong woman

  • @the76libra1
    @the76libra1 4 месяца назад +3

    I dealt with this for a few years. I would just fall asleep without any warning. It just randomly started one day n then stopped. It was so embarrassing. Now I deal with insomnia. I only can fall asleep if I take medication.

  • @dollsNcats
    @dollsNcats 4 месяца назад +3

    I had a roommate with this . We were literally at a ride at Disney and she passed out lol .

  • @dianeboudrias7954
    @dianeboudrias7954 4 месяца назад +9

    That's the issue that I have the doctor thinks it might be narcolepsy? He wants to admit me into a sleep clinic.

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад +7

      100% recommend getting a sleep study if you can! Helps just knowing and having some answers to help you live your best life.

    • @ruthie_sos6600
      @ruthie_sos6600 4 месяца назад +2

      Have it done. I was diagnosed in my early 20s, after the sleep study. The medication has changed my life, the symptoms never go but it gave me back my life. I can even drive now🙂

  • @Thequeenjuices
    @Thequeenjuices 4 месяца назад +1

    Low iron maybe😂 cause that be me too Sis😅

  • @alphaomega1351
    @alphaomega1351 3 месяца назад +1

    I keep falling asleep 😴 on this video. 😳

  • @amandac8836
    @amandac8836 4 месяца назад +2

    lol I love that the dog’s name is Zuko though haha. But damn narcolepsy sounds tough to deal with I’m already tired enough in general I couldn’t imagine having this 😢

    • @justicesverdictsandviews
      @justicesverdictsandviews 4 месяца назад +1

      Hahaha i was on an avatar the last airbender kick when I got him. 😂 I was hoping he had a patch over his eye

    • @amandac8836
      @amandac8836 4 месяца назад

      @@justicesverdictsandviews I love that though I feel like so many of us have named our pets after tv characters lol 😂

  • @user-lh8uz3sl3o
    @user-lh8uz3sl3o 4 месяца назад

    This is my first time seeing someone with narcolepsy we can relate similar because i have epilepsy were i cant do flashing lights or things that can trigger me in general

  • @user-dg6gq8gs9n
    @user-dg6gq8gs9n 4 месяца назад

    There are medications for this! They can be life-changing