Again, you are my only reliable hope for dealing with MCAS. I have been through many expensive tests, treated as a psychosomatic patient, and pretty much dismissed as too much of a self advocating pain in the ass. I try very hard to be agreeable and have just given up on getting someone that wants to deal with this in my area. I am endlessly grateful that you post videos, so I have a clue of what I can do on my own to make life tolerable. I know this body, and I detest being treated like I am seeking attention instead of validation and help. I only go to a physician now if I absolutely have no other choice. Bless you, again, for being my MCAS Angel! Please continue to help us...
Same. Doctors have caused MCAS and a host of other issues for me, but no doctor ever took the caused issues serious. Thankfully, since giving up on them, I have figured out how to heal myself. MCAS is gone, took me less than six months. Other things still there, but slowly improving.
So happy I found your channel! I’ve been trying to figure out what’s been going on with my body for over 2 years now. I’ve developed all these sneaky symptoms ever since covid/jab (lucky Canadian that was given mixed doses) that have been driving me crazy! My body hasn’t been the same and I wonder if “it” was the cause. In all the research that I’ve done on my symptoms, MCAS keeps popping up. I’ve never had these symptoms in the past and I silently struggle every day (along with many others) just to push through. I am a mother of 2 (1 with special needs) that I fight to hide my symptoms from. I wish more doctors would be open to fact that reactions do happen. I am extremely grateful for your work, research, information and opinion that you put out there for people! Thank you🙏🏻
The best thing about this information is that for the first time in years someone recognizes that we are not all crazy, hypochondriacs. I'm glad to have the green light to consult a holistic or other type doctor because the "regular" ones are doing more harm than good, IMO.
@@gangoffour1 i agree, i just used homeopathy and Chinese medicine to control the problem ... I ONLY had Allegra or blistine for sos porposes, pretty much avoided taking them... I got hives since May, did plenty of research, plenty of praying... I even did a 3 day fasting ... Among other things.... And só far Im on my 4 day without taking medication for hives control, i hope it lasts, feels good having my old body back.
Just passed 65 hours of my fast and while I get itchy at night and my fingers are puffy, my stomach has gone down and my ankles look good. I’ve got a lot to heal.
Try taking an epsom salt bath at night. It adds sulfate to your body which your body uses to help empty the histamine bucket. I take one every night and it has all but eliminated my itching. Not every one can handle it but it’s something easy to try. Start small, I use 2 cups of Epsom salt a night. And check with your dr if needed.
Good for you. Fasting has always been huge in helping me with allergies. I start after dinner on Sunday and break my fast mid-day Tuesday. I feel so much worse when I get out of the fasting habit.
@@AnneGoggansQHHT after a long fasting you can ONLY drink food liquidified or a very liquid soup during the first days before eating solid food! or you could end up in the hospital...
I had to have low dose immunotherapy for this, I was 'allergic' to my own Adrenaline and Histamine along with countless foods and environmental chemicals. Fasting, high fat diet and restricting carbs are the most effective tools I have found to relieve the symptoms. Never eat reheated foods or those which are not fresh, Amines build up in those as they deteriorate. If you do consume a carb based diet you will need to eat more frequently so switch to a Keto type diet to be able to longer between meals, it only takes a week or two to adjust.Remember to add fruits and veg but as Dr.Anderson says keep to low Histamine and Oxylates until things straighten out. The chemical intolerances can be very deeply entrenched, creating a minefield. Systemic Proteolitic Enzymes are also very helpful, they help the body clear up the rubbish.
Hi there! Curious if you have seen anyone who has symptoms like hypermobility tendon tears, joint inflammation, pain, etc as a response to histamine or due to MCAS?
What are SPE’s? My son-in-law has been suffering with masto for over 10 years. He’s to the point where he can’t work. The itching and burning is so bad 24/7. He uses a hairbrush to scratch himself. He said he just can’t go on like this. We’re in Seattle and there doesn’t seem to be any doctors out here that we can find that know anything about this.
Not sure anyone reads comments. I started Pepcid daily...lowers histamine and lowers cytokines ( inflammation). In addition I started Sulfloraphane mixed with Urolithin A...1/2 cap of each. Wow these three supplements reduced inflammation in my legs and body. My nose drip stopped with Pepcid. All three supplements are antiinflammatory!!
I apologize, but I don't know how anyone can go to these integrative doctors. They don't take insurance, and the costs are more than most people make, when they were well enough to work. It just seems hopeless
You can learn a lot online for free but reading and listening. Tests can be extremely helpful, but if you don't have the money you just have to experiment with what seems to work for others. I'm not wasting any more money with M.D.s aside from specific IV treatments. I'm a big fan of functional medicine doctors, but as you said, it costs quite a lot. That said, being sick the rest of your life, going the regular medical route that solves nothing is pretty costly too.
Start with cutting out all grains, dairy, high oxalate containing foods, and processed vegetable oils (like canola oil) and begin water fasting with electrolytes. That alone can do wonders. Also get your mineral intake way up (excluding calcium), especially certain ones, and your vitamins (d3, a, c, b vitamins, etc). Eat citrus if you can. Eat liver if you can. Get off all prescription drugs you can. Use as few chemicals as you can. Clean your air and water.. Get rid of mold. Avoid toxic jabs.
Agreed. It should be covered but no treatments for difficult illnesses ever is. Thank goodness for doctors like Dr A who gives information for free - it's a lifeline to many of us who suffered for decades with no answers or help at all! Good luck to you & keep searching - many helpful videos are out there!
Functional medicine doctors and drs with D.O. at the end of their name (these drs have a different philosophy...), these are usually part of insurance system. They usually say their interests in the bios but unfortunately most health insurance networks won't give you functional medicine as a "type of doctor" search. Look into associations...functional medicine association and variations thereof, some gastroenterologists are now getting involved with mast cells (see Leonard Weinstock YT interviews), if your trigger is scented products of any sort, preservatives, dyes, etc...search for Environmental Medicine drs...what I mean is search for their association affiliation website...almost all drs and like professionals are a part of a professional org. They sometimes have a listing of their members by state/country on their website. If not contact them directly and ask if have such a listing or if they can refer you to someone in your area. 2018, I had to quit my job due to chemical sensitivity. I looked for these associations. A website listed a dr over 2 hrs away...but admin office of this org was actually, oddly, in my city. (Some states have 'local' chapters of the national org...and I think this is what I stumbled into. Back then MCAS had not even been a recognized diagnosis in many places...and in many places...still isnt.) At any rate, I emailed asking for a recommendation, they mentioned a few in my city, they were not part of insurance network...of course. I asked specifically about my network...and I was given a name. At the time the dr was new, easy to get in, etc...all these years later...soooo hard to get an appt...but I made that person my primary care provider. Another suggestion is to join fb groups on the topic...they share info, drs, supplements they've tried, etc. Most important thing is to identify your triggers and avoid. For scents, new product off-gassing, there are face masks with a carbon or charcoal filter built in that will block the 'fumes'. Tiltresearch.org (toxicant induced loss of tolerance), multiple chemical sensitivities, sick building syndrome, gulf war veteran chemical burn pit disorder..all names under which you will find loads of information on the web, fb groups, books, documentaries, and an entire town of ppl in Snowflake, AZ...of ppl with chemical sensitivity and/or EMF sensitivity. Loads of medical research papers using these names too...less so about treatment...but it will give you some idea of triggers to look for if you havent figured it out. If you have migraines, do a journal of when they happen (note if you were around anyone with scented products...note you might be the one using the scented laundry detergent and/or dryer sheet...and you are triggering yourself...this happened to me once I realized that any scented product was a trigger. Some ppl get sick from cooking smells...usually it is the nonstick coating that is releasing a chemical when heated...we normally cant smell it...but it is in air and body reacts. Sometimes it's different kinds of metals being heated....or it is the chemicals that the created when food cooks and interacts with these molecules from the heated pan. I have to use my crock pot in the garage or outside...lest I become ill. Others cook outside on a hotplate. Having a vented exhaust system above your stove that can take cooking odors out of house...is the answer, most ppl just have a fan. So letting fresh air into the house while you cook will dilute air. Most ppl say to see if fragranced or scented products are a trigger...smell and wait. Some ppl get migraines or sinus issues, or burning eyes or nausea or joint pain or running nose or stomach issues or any combination thereof. If you react as most ppl with mcas do, you need to donate all scented products to someone else. Look for scent-free, fragrance free products. Clean with vinegar and baking soda...most ppl tolerate this. As someone else said there are enough websites with info on how to treat...start with one supplement...make sure you dont react to it. If you try too many things at once, if you get upset stomach afterwards, you dont know what did it. Ive read do one supplement for 3 weeks, if no reaction, then start a second. Be aware sometimes it is a binder or filler in the supplement that you react to...complicating matters. Sometimes the supplement dose is too high or too low (sites will say you need x amt to be affective...if you react to that dose, break capsule and try to a portion...if the taste isnt horrid, drop into a beverage to dissolve. LDN (low dose naltrexone) is an rx compounded medication (which means the pharmacy needs to take a very small portion of the main drug and create the dosage prescribed.) Most insurances will cover something of the rx. For a 3 month supply of my dose is $45. But a previous insurance covered everything but $7 for same thing. Some pharmacies will help you find a doctor in your area who can prescribe it for you. The miracle drug is used in so many different medical conditions. Search on web for info, search pharmacies and LDN in your area. Sometimes the pharmacies are called apothecary, compounding pharmacy or the like. Usually independent pharmacies...not like walgreens, cvs, etc. If you find such pharmacy but not in your area or state, contact one you found and ask if there is a directory of compounding pharmacies? Dont know...might be. Then if you one close enough...ask if they can help you find a dr who prescribes with LDN. (This is seen as a somewhat alternative to the mainstream rx...so hopefully the dr could assist. Suppose to reduce inflammation in the body. For me personally, I didnt know if it was working or not, stopped taking it. One summer, I was reacting to something all summer long (allergist said I had no allergies to pollens or anything like seasonal allergies.) It took me 3 months of reactions for me to suddenly remember that I had stopped taking the LDN. Within a few weeks of starting again, I was not reacting at all. I actually think I was searching online to get idea of whatever possible trigger or remedy (since antihistamines were not working)...probably read about LDN which reignited my memory. Definitely look up Leonard Weinstock, he gives concrete treatment examples...also gives triggers that all other drs thought were crazy...so they didnt believe patient. Might help others figure out their triggers as I have seen many not know what were the triggers. Keep food journal if your symptoms are mostly stomach or intestinal related.
Sadly I totally agree. I'm fortunate enough to be able to afford these so-called functional medicine doctors and I've found them to be worse in some cases because they were as useless as conventional doctors but cost me thousands to find out. At this point I've watched/ listen to thousands of RUclips videos and have actually gotten better health information from them than the all the doctors I've seen over the years conventional or other wise 😞
Now if only I could find a doctor that actually looks into anything. I have this from long Covid. I visited at least 6 different doctors and they all said it’s due to anxiety. So let’s see….I get hives, flushing,dizziness, heart palpitations and lose motor function for no reason whatsoever? This is from “anxiety”? lol okay
I have the same symptoms ever since catching covid the 2nd time around. It’s frustrating and scary. Still trying to find a doctor. I see an Allergy and Immune doctor this week. Apparently a lot of folks see an immunologist for this.
I believe it’s a hormonal imbalance if some kind. For me, I had my testosterone levels checked and it was super low. I got that addressed and all my MCAS symptoms practically disappeared
@@stellaancimer8505 for now i controlled mine with homeopathy medicine ...some say after a long fasting One hás a chance to reset the immune system... Worth the shot if you know what you are dóing.
I have a very irritable bladder due to mcas. It flares when I try to take a new supplement to help with mcas or help with the bladder keeping me up all night hurting so much. I have no one to turn to who understands this bladder problem. How can I calm it down and keep it in good shape???
Do you eat chicken on a regular basis? Odd question, I know... My Mother had an eighteen month bladder infection. Much pain, several rounds of antibiotics, dmso treatments, and minimal relief. I was so beside myself for her and started researching. The industrial processing of chicken for human consumption causes Ecoli to become overgrown in women's bladders. To break the cycle, one must remove it from the diet for approximately four weeks. After doing this, my Mom found relief, and the Doctor did not believe me that it was the fix Mom needed. We never had to go back to that urologist, and we considered it an act of God. Mom was able to eat chicken again , in moderation, after the break, and never suffered from a painful UTI, again... hope this is of some assistance 😊
The Interstitial Cystisis network recommend Aloe, which I find is key for flares - I've found that along with a low histamine diet, lower oxalate foods (reduce them) , Antihistamines, plus zero alcohol helps. Years ago during severe flaring I also took Endep prescribed by urologist (not for long term).
had this, it was horrible. I tried everything my doctor recommended as well as what I found independently researching. Eventually I stumbled across a site discussing IC & other painful bladder symptoms. One person on there said two rounds of praziquantel cleared their issues and their spouses. My doctor prescribed it for my spouse and me. It completely cleared. It’s been two years without any symptom recurrence.
If one is perimenopause or menopausal being on estradiol 1mg transdermal only and 200mg progesterone caps or cream really helps all autoimmune conditions and all this mast cell activity. Don’t eat high fat diets and drink home delivery spring water - that was such a game changer for my health. ❤thanks Dr A ❤
I’m new to this but I have this, seeing a dr they told me to take Albizia, goldenseal, zeolite spray, Trisha mushroom, turmeric and chickory root. Can I do yours with this bc I have a lot of yeast.
I am One of those with salicylate intolerance, oxalate intolerance, sulfur and fat intolerance. I live on very limited foods and always sick, but I live in Australia where the dark ages of medicine is still practiced. They only know one thing ( antidepressants ) they don’t work and neither do antihistamines for me. Is there a way I could get online consultation? It’s been three years of hell.
How do u know all your intolerances? Esp since you said medicine is still limited....did you take a test or something and from where...can you give website? Cost?
Hey there, read your comment and was curious about the same thing. Did you come to know about your specific intolerances through trial and error, or did you perform any kind of testing?
SIBO channel is out of Australia. They discuss mcas on that channel....so maybe check with the channel host who seems to know about mcas and treating drs...maybe they have a name to refer you to...in Australia. I found several channels out of Australia talking about mcas....I even suggested to them that they put Australia into their title so that folks who are looking for mcas drs in Australia can contact them for suggestions. Dont know if they ever did but thought it might be helpful for you. It is also very difficult in US
@@maryr7593 I cut out absolutely everything then tried one food at a time I noted what I react to and the list then became obvious of what they had in common. You then cut out let’s say salicylate altogether and you feel better for a while try to test again , you get symptoms. And so on. It’s a looooong process but it’s to do with mast cells.
What about mostly low-HISTIDINE diet because that is what our gut bacteria turn into HISTAMINE and what cultures the bacterial profile leaning towards producing histamine and ruining the intestinal enzymes working with breaking down histamine and other amines.
@@JustinMoss-bj9yu i was like that, i turned to homeopathy and Chinese medicine and alternated between the meds of both ... And i eated everything. One week homeopathy, home week, the following chinese medicine and so forward...
I just had an extreme histamine reaction after taking Ivermectin for one day that was suggested for long covid symptoms. Many supplements also trigger a hist. reaction...eg B12. And I have found that ANY chemical/supplement that has the word 'methyl' in it causes a reaction. I am experiencing bronchial inflammation and sinus pain with swollen face, baggy eyes. My Dr has given up on me and just said 'take tylenol 3'. Forgetting, I guess, that I am allergic to codiene. I take black seed oil, curcumin, grapeseed extract in nasal wash, D3 with K2. And, of course, I follow low hist. diet since Ihad covid a year a go. Ordianry anti histamines cause problems for me but I do find a little relief taking a homeopathic anti hist. containing formic acid. I live in a small town in Canada and MCAS is not a well known syndrome in this medical community. I am losing ground. Even fasting triggers excess histamine!!!
Fasting triggers excess histamine? I did not know this! Or is this just the specific response in your body? If so curious about how you ended up finding this out, like if you ended up finding out just through trial and error or if you ended up doing any kind of testing to figure this out?
Try daofoods and xiao feng san, camomile tea... More sports, more anti stress life ... Oh and avegetsrian diet, no meat, just veggies , if youncan grow your own organic the better and eggs... And screen your organs if its all ok, and take some probiótics and vitamins
I did , plus l-theanine, resveratrol, vitamin c, magnesium , tourine , apigenine, you name it I tried it , no luck. Mine has only one trigger , rubbing the skin , no other symptoms or food allergies
@@slobodandokuzovski373 the thing with hives is thís... You have a problem in the engine... But the engine is malfunctioning because the battery needs fixing ... Só in thís condition there is no standard treatment for everyone... Because the problems might BE One or Multiple ... Some people have a leaky gut só if they fix the leaky gut it goes away, others its the tyroid or the bladder... Só you see its not the same for everyone ... Others stress plus all the above and other causes, same problem but diferent causes Só its Tricky unless people screen whats wrong to figure things out or stumble in the right treatment for themselves because its always personal...
Hi, good information about MCAS. Do you have any thoughts on using Anti-Histamine meds like Zyrtec (Citrizinehydrochloride) and what seems to bring long term side effects of itchy skin after a few years of daily use. MCAS may just started with just that symptom with an itchy skin and the treatment is with Cetirizindihydrocloride and now you dont want to stop using Zyrtec because of the same side effects like the symptoms like MCAS.
Zyrtec eventually only gave me side effects, while doing nothing to help. Seriously messed with my ability to make stomach acid as well. Not ever touching antihistamine meds ever again. There are plenty of plant foods that are natural antihistamines. I have very good results with them. MCAS gone in under six months, histamine intolerance not yet. I eat a a lot of raw plant foods daily.
I substituted a quercetin and bromelain combo for zyrtec, and have been doing pretty well. I keep zyrtec in case of a massive flair, or if I happen to eat something that sets off a horrid dizzy spell. Otherwise, I stay away from it and try to be careful with my triggers. Hope you find a working solution, as each patient is different...
I’m living in S France and am trying to sort together some semblance of full spectrum care. I think an Epstein Barr virus triggered my Mast Cell (whatever it is) into high gear, and that I’ve had it for years. Chicken, eggs, coffee, living in Dubai or other places where heat and humidity come together, seem to be my biggest triggers.
Again, you are my only reliable hope for dealing with MCAS. I have been through many expensive tests, treated as a psychosomatic patient, and pretty much dismissed as too much of a self advocating pain in the ass. I try very hard to be agreeable and have just given up on getting someone that wants to deal with this in my area. I am endlessly grateful that you post videos, so I have a clue of what I can do on my own to make life tolerable. I know this body, and I detest being treated like I am seeking attention instead of validation and help. I only go to a physician now if I absolutely have no other choice. Bless you, again, for being my MCAS Angel! Please continue to help us...
Ditto 🩵
Agreed. Thank you.
Same. Doctors have caused MCAS and a host of other issues for me, but no doctor ever took the caused issues serious. Thankfully, since giving up on them, I have figured out how to heal myself. MCAS is gone, took me less than six months. Other things still there, but slowly improving.
So happy I found your channel! I’ve been trying to figure out what’s been going on with my body for over 2 years now. I’ve developed all these sneaky symptoms ever since covid/jab (lucky Canadian that was given mixed doses) that have been driving me crazy! My body hasn’t been the same and I wonder if “it” was the cause. In all the research that I’ve done on my symptoms, MCAS keeps popping up. I’ve never had these symptoms in the past and I silently struggle every day (along with many others) just to push through. I am a mother of 2 (1 with special needs) that I fight to hide my symptoms from. I wish more doctors would be open to fact that reactions do happen. I am extremely grateful for your work, research, information and opinion that you put out there for people! Thank you🙏🏻
@@sonicbloomtutshow did you do it?
The best thing about this information is that for the first time in years someone recognizes that we are not all crazy, hypochondriacs. I'm glad to have the green light to consult a holistic or other type doctor because the "regular" ones are doing more harm than good, IMO.
@@gangoffour1 i agree, i just used homeopathy and Chinese medicine to control the problem ... I ONLY had Allegra or blistine for sos porposes, pretty much avoided taking them... I got hives since May, did plenty of research, plenty of praying... I even did a 3 day fasting ... Among other things.... And só far Im on my 4 day without taking medication for hives control, i hope it lasts, feels good having my old body back.
Just passed 65 hours of my fast and while I get itchy at night and my fingers are puffy, my stomach has gone down and my ankles look good. I’ve got a lot to heal.
Try taking an epsom salt bath at night. It adds sulfate to your body which your body uses to help empty the histamine bucket. I take one every night and it has all but eliminated my itching. Not every one can handle it but it’s something easy to try. Start small, I use 2 cups of Epsom salt a night. And check with your dr if needed.
How are you now?
Dead. @@DarkIltis
Good for you. Fasting has always been huge in helping me with allergies. I start after dinner on Sunday and break my fast mid-day Tuesday. I feel so much worse when I get out of the fasting habit.
@@AnneGoggansQHHT after a long fasting you can ONLY drink food liquidified or a very liquid soup during the first days before eating solid food! or you could end up in the hospital...
I had to have low dose immunotherapy for this, I was 'allergic' to my own Adrenaline and Histamine along with countless foods and environmental chemicals. Fasting, high fat diet and restricting carbs are the most effective tools I have found to relieve the symptoms. Never eat reheated foods or those which are not fresh, Amines build up in those as they deteriorate. If you do consume a carb based diet you will need to eat more frequently so switch to a Keto type diet to be able to longer between meals, it only takes a week or two to adjust.Remember to add fruits and veg but as Dr.Anderson says keep to low Histamine and Oxylates until things straighten out. The chemical intolerances can be very deeply entrenched, creating a minefield. Systemic Proteolitic Enzymes are also very helpful, they help the body clear up the rubbish.
Thank you for this!
Hi there! Curious if you have seen anyone who has symptoms like hypermobility tendon tears, joint inflammation, pain, etc as a response to histamine or due to MCAS?
@@afeb2010that’s Ehlers-Danlos syndrome I believe they also suffer from mcas.
What are SPE’s? My son-in-law has been suffering with masto for over 10 years. He’s to the point where he can’t work. The itching and burning is so bad 24/7. He uses a hairbrush to scratch himself. He said he just can’t go on like this. We’re in Seattle and there doesn’t
seem to be any doctors out here that we can find that know anything about this.
Not sure anyone reads comments. I started Pepcid daily...lowers histamine and lowers cytokines ( inflammation). In addition I started Sulfloraphane mixed with Urolithin A...1/2 cap of each. Wow these three supplements reduced inflammation in my legs and body. My nose drip stopped with Pepcid. All three supplements are antiinflammatory!!
Isn't it pepcid that blocks b12 absorption?
@@angelinepepper8815 I take B12 daily...have been for years
Pepcid allowed me to function while I got better.
Only Dr, I have ever seen in monologue of empowered empathise talk. Thank.🎉
Oh my! Very important information.... missing clean up. Grateful for you. Many thanks.
This is the most helpful information I’ve come across on MCAS! Thank you so much! 😊
I apologize, but I don't know how anyone can go to these integrative doctors. They don't take insurance, and the costs are more than most people make, when they were well enough to work. It just seems hopeless
You can learn a lot online for free but reading and listening. Tests can be extremely helpful, but if you don't have the money you just have to experiment with what seems to work for others. I'm not wasting any more money with M.D.s aside from specific IV treatments. I'm a big fan of functional medicine doctors, but as you said, it costs quite a lot. That said, being sick the rest of your life, going the regular medical route that solves nothing is pretty costly too.
Start with cutting out all grains, dairy, high oxalate containing foods, and processed vegetable oils (like canola oil) and begin water fasting with electrolytes. That alone can do wonders. Also get your mineral intake way up (excluding calcium), especially certain ones, and your vitamins (d3, a, c, b vitamins, etc). Eat citrus if you can. Eat liver if you can. Get off all prescription drugs you can. Use as few chemicals as you can. Clean your air and water.. Get rid of mold. Avoid toxic jabs.
Agreed. It should be covered but no treatments for difficult illnesses ever is. Thank goodness for doctors like Dr A who gives information for free - it's a lifeline to many of us who suffered for decades with no answers or help at all! Good luck to you & keep searching - many helpful videos are out there!
Functional medicine doctors and drs with D.O. at the end of their name (these drs have a different philosophy...), these are usually part of insurance system. They usually say their interests in the bios but unfortunately most health insurance networks won't give you functional medicine as a "type of doctor" search. Look into associations...functional medicine association and variations thereof, some gastroenterologists are now getting involved with mast cells (see Leonard Weinstock YT interviews), if your trigger is scented products of any sort, preservatives, dyes, etc...search for Environmental Medicine drs...what I mean is search for their association affiliation website...almost all drs and like professionals are a part of a professional org. They sometimes have a listing of their members by state/country on their website. If not contact them directly and ask if have such a listing or if they can refer you to someone in your area. 2018, I had to quit my job due to chemical sensitivity. I looked for these associations. A website listed a dr over 2 hrs away...but admin office of this org was actually, oddly, in my city. (Some states have 'local' chapters of the national org...and I think this is what I stumbled into. Back then MCAS had not even been a recognized diagnosis in many places...and in many places...still isnt.) At any rate, I emailed asking for a recommendation, they mentioned a few in my city, they were not part of insurance network...of course. I asked specifically about my network...and I was given a name. At the time the dr was new, easy to get in, etc...all these years later...soooo hard to get an appt...but I made that person my primary care provider. Another suggestion is to join fb groups on the topic...they share info, drs, supplements they've tried, etc. Most important thing is to identify your triggers and avoid. For scents, new product off-gassing, there are face masks with a carbon or charcoal filter built in that will block the 'fumes'. Tiltresearch.org (toxicant induced loss of tolerance), multiple chemical sensitivities, sick building syndrome, gulf war veteran chemical burn pit disorder..all names under which you will find loads of information on the web, fb groups, books, documentaries, and an entire town of ppl in Snowflake, AZ...of ppl with chemical sensitivity and/or EMF sensitivity. Loads of medical research papers using these names too...less so about treatment...but it will give you some idea of triggers to look for if you havent figured it out. If you have migraines, do a journal of when they happen (note if you were around anyone with scented products...note you might be the one using the scented laundry detergent and/or dryer sheet...and you are triggering yourself...this happened to me once I realized that any scented product was a trigger. Some ppl get sick from cooking smells...usually it is the nonstick coating that is releasing a chemical when heated...we normally cant smell it...but it is in air and body reacts. Sometimes it's different kinds of metals being heated....or it is the chemicals that the created when food cooks and interacts with these molecules from the heated pan. I have to use my crock pot in the garage or outside...lest I become ill. Others cook outside on a hotplate. Having a vented exhaust system above your stove that can take cooking odors out of house...is the answer, most ppl just have a fan. So letting fresh air into the house while you cook will dilute air.
Most ppl say to see if fragranced or scented products are a trigger...smell and wait. Some ppl get migraines or sinus issues, or burning eyes or nausea or joint pain or running nose or stomach issues or any combination thereof. If you react as most ppl with mcas do, you need to donate all scented products to someone else. Look for scent-free, fragrance free products. Clean with vinegar and baking soda...most ppl tolerate this.
As someone else said there are enough websites with info on how to treat...start with one supplement...make sure you dont react to it. If you try too many things at once, if you get upset stomach afterwards, you dont know what did it. Ive read do one supplement for 3 weeks, if no reaction, then start a second. Be aware sometimes it is a binder or filler in the supplement that you react to...complicating matters. Sometimes the supplement dose is too high or too low (sites will say you need x amt to be affective...if you react to that dose, break capsule and try to a portion...if the taste isnt horrid, drop into a beverage to dissolve. LDN (low dose naltrexone) is an rx compounded medication (which means the pharmacy needs to take a very small portion of the main drug and create the dosage prescribed.) Most insurances will cover something of the rx. For a 3 month supply of my dose is $45. But a previous insurance covered everything but $7 for same thing. Some pharmacies will help you find a doctor in your area who can prescribe it for you. The miracle drug is used in so many different medical conditions. Search on web for info, search pharmacies and LDN in your area. Sometimes the pharmacies are called apothecary, compounding pharmacy or the like. Usually independent pharmacies...not like walgreens, cvs, etc. If you find such pharmacy but not in your area or state, contact one you found and ask if there is a directory of compounding pharmacies? Dont know...might be. Then if you one close enough...ask if they can help you find a dr who prescribes with LDN. (This is seen as a somewhat alternative to the mainstream rx...so hopefully the dr could assist. Suppose to reduce inflammation in the body. For me personally, I didnt know if it was working or not, stopped taking it. One summer, I was reacting to something all summer long (allergist said I had no allergies to pollens or anything like seasonal allergies.) It took me 3 months of reactions for me to suddenly remember that I had stopped taking the LDN. Within a few weeks of starting again, I was not reacting at all. I actually think I was searching online to get idea of whatever possible trigger or remedy (since antihistamines were not working)...probably read about LDN which reignited my memory. Definitely look up Leonard Weinstock, he gives concrete treatment examples...also gives triggers that all other drs thought were crazy...so they didnt believe patient. Might help others figure out their triggers as I have seen many not know what were the triggers. Keep food journal if your symptoms are mostly stomach or intestinal related.
Sadly I totally agree. I'm fortunate enough to be able to afford these so-called functional medicine doctors and I've found them to be worse in some cases because they were as useless as conventional doctors but cost me thousands to find out. At this point I've watched/ listen to thousands of RUclips videos and have actually gotten better health information from them than the all the doctors I've seen over the years conventional or other wise 😞
I love it that your thorough and you go all the way out to get your point across. That’s the way Dr should be. Thank you so much.
Now if only I could find a doctor that actually looks into anything. I have this from long Covid. I visited at least 6 different doctors and they all said it’s due to anxiety. So let’s see….I get hives, flushing,dizziness, heart palpitations and lose motor function for no reason whatsoever? This is from “anxiety”? lol okay
Sorry to hear it, try to find a good local integrative doctor with the links in show notes.
-Team Dr. A
Did you get the vaccine?
@@Liminal_Ascetic the initial one because work forced me to. No boosters. Had rona 3 times. First time wasn’t bad at all. The second time destroyed me
Check out all video interviews from dr leonard weinstock....very enlightening and he gives some treatment suggestions.
I have the same symptoms ever since catching covid the 2nd time around. It’s frustrating and scary. Still trying to find a doctor. I see an Allergy and Immune doctor this week. Apparently a lot of folks see an immunologist for this.
This explains so much!!! And form what you say, it's good to know I've got a good Dr., in network too.
I believe it’s a hormonal imbalance if some kind. For me, I had my testosterone levels checked and it was super low. I got that addressed and all my MCAS symptoms practically disappeared
How did you fix your low testosterone? I have low T too
@@xploit811I went to a men’s clinic and they prescribed me a weekly dose
Can you make a flow chart of each possible component in MCAS and what could cause each response? Ie mast cells, EOSinophils. basophils etc.
Carnivore really helps me with this condition 😊
@@stellaancimer8505 for now i controlled mine with homeopathy medicine ...some say after a long fasting One hás a chance to reset the immune system... Worth the shot if you know what you are dóing.
@@stellaancimer8505 i recovered and Im vegetarian 🤔...
I have a very irritable bladder due to mcas. It flares when I try to take a new supplement to help with mcas or help with the bladder keeping me up all night hurting so much. I have no one to turn to who understands this bladder problem. How can I calm it down and keep it in good shape???
Do you eat chicken on a regular basis? Odd question, I know...
My Mother had an eighteen month bladder infection. Much pain, several rounds of antibiotics, dmso treatments, and minimal relief. I was so beside myself for her and started researching. The industrial processing of chicken for human consumption causes Ecoli to become overgrown in women's bladders. To break the cycle, one must remove it from the diet for approximately four weeks. After doing this, my Mom found relief, and the Doctor did not believe me that it was the fix Mom needed. We never had to go back to that urologist, and we considered it an act of God. Mom was able to eat chicken again , in moderation, after the break, and never suffered from a painful UTI, again... hope this is of some assistance 😊
The Interstitial Cystisis network recommend Aloe, which I find is key for flares - I've found that along with a low histamine diet, lower oxalate foods (reduce them) , Antihistamines, plus zero alcohol helps. Years ago during severe flaring I also took Endep prescribed by urologist (not for long term).
@@kd2533how do you take the aloe? Orally? Pills?
had this, it was horrible. I tried everything my doctor recommended as well as what I found independently researching. Eventually I stumbled across a site discussing IC & other painful bladder symptoms. One person on there said two rounds of praziquantel cleared their issues and their spouses. My doctor prescribed it for my spouse and me. It completely cleared. It’s been two years without any symptom recurrence.
I found that applying magnesium oil topically over my lower abdomen ( bladder area) every morning and evening helped to calm things down.
If one is perimenopause or menopausal being on estradiol 1mg transdermal only and 200mg progesterone caps or cream really helps all autoimmune conditions and all this mast cell activity. Don’t eat high fat diets and drink home delivery spring water - that was such a game changer for my health. ❤thanks Dr A ❤
Estrogen and progesterone always irritated me. It always caused a severe inflammatory response.
Did you say Do or Don’t drink bottled spring water?
what a good idea...water in a plastic bottle smh
You're amazing
I’m new to this but I have this, seeing a dr they told me to take Albizia, goldenseal, zeolite spray, Trisha mushroom, turmeric and chickory root. Can I do yours with this bc I have a lot of yeast.
Thank you.
I am One of those with salicylate intolerance, oxalate intolerance, sulfur and fat intolerance. I live on very limited foods and always sick, but I live in Australia where the dark ages of medicine is still practiced. They only know one thing ( antidepressants ) they don’t work and neither do antihistamines for me. Is there a way I could get online consultation?
It’s been three years of hell.
How do u know all your intolerances? Esp since you said medicine is still limited....did you take a test or something and from where...can you give website? Cost?
Hey there, read your comment and was curious about the same thing. Did you come to know about your specific intolerances through trial and error, or did you perform any kind of testing?
SIBO channel is out of Australia. They discuss mcas on that channel....so maybe check with the channel host who seems to know about mcas and treating drs...maybe they have a name to refer you to...in Australia. I found several channels out of Australia talking about mcas....I even suggested to them that they put Australia into their title so that folks who are looking for mcas drs in Australia can contact them for suggestions. Dont know if they ever did but thought it might be helpful for you. It is also very difficult in US
@@maryr7593 I cut out absolutely everything then tried one food at a time I noted what I react to and the list then became obvious of what they had in common. You then cut out let’s say salicylate altogether and you feel better for a while try to test again , you get symptoms. And so on. It’s a looooong process but it’s to do with mast cells.
What about mostly low-HISTIDINE diet because that is what our gut bacteria turn into HISTAMINE and what cultures the bacterial profile leaning towards producing histamine and ruining the intestinal enzymes working with breaking down histamine and other amines.
Histidine actually helps some people with allergies.
Any high overgrowth of any gut microbe can cause MCAS, they don’t necessarily have to be histamine producers.
@@PVern2316 Interesting. Kind of makes sense. WOuld like to see papers on that though for more details.
@@PVern2316 any suggestions on fixing this?
@@PVern2316 please elaborate and do you have a protocol?
What are your thoughts on ketotifen? Haven't heard you mention this...
What do you think of medical medium and his approach
benydryl, claritin, cromolyn sodium, didn't work for me. some of it is not treatable. i can only eat a small list of foods.
Best of luck, keep going! -Team Dr.A
@@JustinMoss-bj9yu i was like that, i turned to homeopathy and Chinese medicine and alternated between the meds of both ... And i eated everything. One week homeopathy, home week, the following chinese medicine and so forward...
I just had an extreme histamine reaction after taking Ivermectin for one day that was suggested for long covid symptoms. Many supplements also trigger a hist. reaction...eg B12. And I have found that ANY chemical/supplement that has the word 'methyl' in it causes a reaction. I am experiencing bronchial inflammation and sinus pain with swollen face, baggy eyes. My Dr has given up on me and just said 'take tylenol 3'. Forgetting, I guess, that I am allergic to codiene. I take black seed oil, curcumin, grapeseed extract in nasal wash, D3 with K2. And, of course, I follow low hist. diet since Ihad covid a year a go. Ordianry anti histamines cause problems for me but I do find a little relief taking a homeopathic anti hist. containing formic acid. I live in a small town in Canada and MCAS is not a well known syndrome in this medical community. I am losing ground. Even fasting triggers excess histamine!!!
Fasting triggers excess histamine? I did not know this! Or is this just the specific response in your body? If so curious about how you ended up finding this out, like if you ended up finding out just through trial and error or if you ended up doing any kind of testing to figure this out?
Start an anti histamine diet, drink ginger and tumeric and camomile teas, not a cure but its a stsrting point
Try daofoods and xiao feng san, camomile tea... More sports, more anti stress life ... Oh and avegetsrian diet, no meat, just veggies , if youncan grow your own organic the better and eggs... And screen your organs if its all ok, and take some probiótics and vitamins
Did you try carnivore?
Have you been tested for the MTHFR gene?
You should lead with the information about the diet
I think D3 at gene activation , senolitics fisetine + quercetine and NMN as stem cell stimulant can fix this disorder.Did someone tried?
I did , plus l-theanine, resveratrol, vitamin c, magnesium , tourine , apigenine, you name it I tried it , no luck. Mine has only one trigger , rubbing the skin , no other symptoms or food allergies
@@slobodandokuzovski373 the thing with hives is thís... You have a problem in the engine... But the engine is malfunctioning because the battery needs fixing ... Só in thís condition there is no standard treatment for everyone... Because the problems might BE One or Multiple ... Some people have a leaky gut só if they fix the leaky gut it goes away, others its the tyroid or the bladder... Só you see its not the same for everyone ... Others stress plus all the above and other causes, same problem but diferent causes
Só its Tricky unless people screen whats wrong to figure things out or stumble in the right treatment for themselves because its always personal...
What about the untested jibbies that were forced on many countries in recent times. Could they be a contributing factor?
Hi, good information about MCAS. Do you have any thoughts on using Anti-Histamine meds like Zyrtec (Citrizinehydrochloride) and what seems to bring long term side effects of itchy skin after a few years of daily use. MCAS may just started with just that symptom with an itchy skin and the treatment is with Cetirizindihydrocloride and now you dont want to stop using Zyrtec because of the same side effects like the symptoms like MCAS.
Zyrtec eventually only gave me side effects, while doing nothing to help. Seriously messed with my ability to make stomach acid as well. Not ever touching antihistamine meds ever again. There are plenty of plant foods that are natural antihistamines. I have very good results with them. MCAS gone in under six months, histamine intolerance not yet. I eat a a lot of raw plant foods daily.
I substituted a quercetin and bromelain combo for zyrtec, and have been doing pretty well. I keep zyrtec in case of a massive flair, or if I happen to eat something that sets off a horrid dizzy spell. Otherwise, I stay away from it and try to be careful with my triggers. Hope you find a working solution, as each patient is different...
Quercetin @@sonicbloomtuts
I feel so much better when I take Claritin-D (12 hour) once a day. I don’t need to take it twice a day, once a day is enough.
@@sonicbloomtuts can you be more specific with what has helped you?
I’m living in S France and am trying to sort together some semblance of full spectrum care. I think an Epstein Barr virus triggered my Mast Cell (whatever it is) into high gear, and that I’ve had it for years. Chicken, eggs, coffee, living in Dubai or other places where heat and humidity come together, seem to be my biggest triggers.
Avoiding Histamine, Oxalates, salicylates sounds like a carnivore diet would help> Maybe? I am so food phobic right now...
Work with your practitioner 🤣what a joke. I live in South Carolina, Doctors here are still in the stone age.
@@quake2u yes i had to BE my own Doctor...
Thanks for posting this information.
Thank you for the language and for the hope. 🤎