What Apraxia Feels Like + Adulthood - Fighting for my Voice
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- Опубликовано: 30 июн 2024
- Hey guys! In this podcast, I discuss what it feels like to gave Apraxia as the individual. I also discuss what it is like transitioning into Adulthood with Apraxia. I hope in future podcasts to set up a more funner background and talk into the microphone more, HAHAHAHA. I hope you enjoy the video!
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RUclips: / @jordanchristian9099
I've struggled with apraxia my whole life. I am 27 years old and I've avoided searching for more information because I've been ashamed of it, it is something that causes me a lot of embarrassment when I am out in public, it has also created a huge anxiety problem for me, I avoid going out and being social. I've always tried to ignore thinking about it. It's really tough. Recently I have decided to tackle it and start doing research to better inform myself. Watching your videos has been a massive help to me. Thank you for sharing your journey.
As a parent of a young daughter with verbal apraxia I can not express my profound gratitude for your channel - it means more than you know, I’m so excited by it and humbled by your effort and intention and it has helped me be a better more supportive and confident mother - thank you from the bottom of my heart! Keep it up! It’s people like you who make the world a brighter place for us and the future generation!
As a pediatric SLP, I am thrilled to have your perspective! The parents of the children I work with appreciate you too! Keep speaking out!
Thank you for explaining this. Congratulations to you for so much progress.
thankyou for this, I wondered how much sons speech might progress and you have shown me that it's absolutely nothing to worry about, you speak beautifuly ❤
My 4 year old son has just been diagnosed. He can say about 4 words. He’s so frustrated and aggressive at times. It breaks my heart how he tries so hard to engage with people, and his confidence is already affected. He is a shell of himself at school. I’m glad I found you to give me a good hopeful insight! I pray everyone with this disorder has confidence, acceptance and SELF LOVE x
Thank you for sharing your personal story. We are concerned our grandson may have this and you are inspiring. It is disappointing to hear there is limited help in adulthood and think you are great for sharing.
Thank you for your videos. I have a 6 year old with apraxia and your videos give me hope!!
Lack of resources seems to be very common for many disabilities as the individual transitions from childhood to adulthood. I love hearing your perspective and your voice. Thanks for making this video.
Thank you!
As a father to a son diagnosed with speech apraxia, you have been very helpful & provide a fresh and honest look into what it’s like. Thanks for your willingness and honesty. Take care!
I would love to see more of your content, my niece was just diagnosed and your video of you speaking so well gives me hope!
Thanks for sharing your experience and journey Jordan, it’s really helping others understand and learn 👍👍👏👏
Thank you so much for sharing my 4yr old son has apraxia and we read your book, The Boy Who couldn’t speak, yet and it has helped us both and it gives him so much encouragement while we try to find his voice!
Jordan than you for doing this!! My baby just got diagnosed with it and it’s so reassuring to know I can find relief and not be lost on his diagnosis. You are incredible!
My son is 5 years old and has speech Apraxia. I can’t tell you, as a Mom, how much your videos and your story are helping. I appreciate you so much for telling everyone what it is like, I understand now for my little guy what he must be thinking and feeling. Though he is non verbal now, he has so much to say. I can’t wait until the days he is able to speak his story too. Thank you!
Oh Jordan, you are a beautiful person! Thank you for creating this platform and wanting people to understand this unique condition, and exercise compassion and patience with people who struggle to speak. You do a wonderful job communicating! I have 2 granddaughters (sisters - ages 4 1/2 and 6) with apraxia of speech and you are giving hope with your platforms and sharing yourself in a vulnerable manner. It was so helpful to hear you say how much energy it takes to have the words in your head but not be able to get them out, and also to hear you express how sometimes you try to get words out and you can feel them come down and then go back up into your head.
Thank you so much for your courage to share your journey and experiences! You give us hope. I feel like we have been drowning lately trying to help our son and this is an answer to prayer.
You talk so good. My 4yr old gg granddaughter is with me pal the time her whole family knows what she saying and d
She talks all the time. Has a lot ofthearpy
My nephew is moving into adult hood with apraxia. Its great to hear someone's experience of this - thank your for sharing.
Thank you for sharing your journey 🦋
awesome video, great to leanr about this
Thank you for sharing this. My 8yo daughter has verbal dyspraxia and has intensive speech therapy multiple times a week ❤️
Thank you for these insightful videos. We are looking for an SLP with experience in apraxia right now for my son. He is only 18 months old but already is showing a strong preference for signing versus vocalizing. Did you ever learn signing? Was it easier for you than speaking?
Good job! Keep doing what you are doing, very inpiring…do you remember at all what age you started going for logo therapy? Also how many words were you able to say by that age of 3, 4, or 5 please?
I miss your videos!
Hi I appreciate your video we are struggling with our 7 year old son who has apraxia- our resources are so limited to us
Email me at fightingformyvoice@gmail.com so I can help you!
Thanks for sharing your experience and journey Jordan
My 5 year old grandson was diagnosed with apraxia this year. He can barely speak. They live in Israel where all the speech teachers only speak Hebrew. His parents only know English. It is going to be extra hard on him working with the therapist in Hebrew and the parents speaking only English at home.
Do you have any app i can download to improve my speech?
I don’t know any apps unfortunately
My son has aprexia. We are just starting our journey. I didn’t know April was aprexia awareness month. I would love to collaborate with you and make a video if you are interested. I just noticed you posted this a year ago 😂 but I’m still interested in doing a collaboration of you want to
You tell me the podcast name and I’ll find you and I will listen to you
It will be on here named fighting for my voice :)
Did you stop making videos?
Hi
Hi hi! 💙💙💙💙💙
Hi