How to Heal from Topical Steroid Withdrawal (TSW) - The Eczema Podcast S2E6

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  • Опубликовано: 14 дек 2024

Комментарии • 64

  • @daniellealivio5974
    @daniellealivio5974 2 года назад +10

    Thank you for all the helpful information. Going through TSW for 3 months now. Burning skin at the moment. Sore. No sleep and super itchy and a whole lot of mixed emotions right now. 😔
    Hopeful to better days and complete healing! Hang on tight. We'll get through it! 🙏🏻

  • @bmcfsu_
    @bmcfsu_ 6 лет назад +61

    Video starts at 3:56
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    .
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    .
    Thank me later

  • @Shadow77999
    @Shadow77999 4 года назад +18

    12 years of use and only 1,5 month to recover?? Wow i hope i can recover as fast..

  • @ChiangXW
    @ChiangXW 4 года назад +7

    Running everyday helps too.

  • @briandavis1798
    @briandavis1798 9 месяцев назад

    Thank you for this I’ve been on topical steroid spot treatment for two years more heavily in the last six months. I’m going through withdrawal. I am on week three. I’m having minor symptoms. Compared to what I’ve seen from other people. It’s still very troublesome to me, but I want to thank you because you’re the first personwho makes me feel not hopeless makes me feel like OK maybe I’m almost out of the woods. Thank you for that.

  • @chisanainoris5364
    @chisanainoris5364 6 лет назад +7

    Thank you! Your channel has been a God send!!

    • @EczemaConquerors
      @EczemaConquerors  6 лет назад

      Chisanainori S Thanks so much!! :) That means a lot!

  • @baconegggandcheese
    @baconegggandcheese 6 лет назад +23

    hello guys, im currently on my 2nd month of TSW and ive been on steroids for about 24 years on and off. And hollllyyyy, this withdrawal period was absolutely hell for me. im currently still withdrawaling and healing my gut as well with supplements like "RESTORE Gut well-being" Liquid (check it out) and been drinking grass fed chicken broth every day. Withdrawaling from these strong medications can really affect you mentally, i hope and pray that people with this horrific condition can overcome the process the withdrawal.

    • @Shadow77999
      @Shadow77999 4 года назад +4

      Hey man. Is it any better? Its been 2 weeks for me and its absolute hell. I hope ur doing better

    • @MAHA-vz1kc
      @MAHA-vz1kc 4 года назад

      Updateee

    • @jenniferlamo2712
      @jenniferlamo2712 Год назад

      It would be so helpful to those of us with children who cannot speak for themselves if adults going through TSW would make a video explaining stages and what they’re feeling. Best wishes as you heal.

  • @alonacrown9839
    @alonacrown9839 5 лет назад +9

    I cannot do cold turkey i use to slowly cut steriod every day or week.. if any one cannot go to cold tukey i advince make it slowly cut the steriod until completely not use any more...

    • @YogeshRana-fg8jr
      @YogeshRana-fg8jr 4 года назад +2

      How r u doing now ???

    • @Shadow77999
      @Shadow77999 4 года назад +1

      I did cold turkey lol

    • @queen.reignee
      @queen.reignee 4 года назад +1

      me too and now I'm struggling with TSW

    • @goddessexy690
      @goddessexy690 4 года назад

      Sorry so late reply it's me alona my skin is doing well I'm 15 months already TSW. My skin is getting OK still have flair up dry and redness sometimes itchy but I'm soo happy not bad like before. I'm still using sudocream to manage this TSW keep going guys soon all us will heal ❤️❤️❤️

    • @farzanashaikh3095
      @farzanashaikh3095 3 года назад

      @@goddessexy690 hey alona can you tell how did you started getting rid of steroid ointment/cream..I am planning to get away from this too. It’s been 12 years I am using the topical steroid on face ..really scared after going through everyone experiences. Please share your journey please

  • @mastakilla_2k218
    @mastakilla_2k218 5 лет назад +7

    Whats the best way to heal from TSW and heal the gut i didnt hear an actual answer in this video of what to do he just explained is. I used momatasone daily for up to 5 Yrs on facial skin i withdrawn from topical steroids for now 3 years now my facial skin is very dark and thin and my neck is also very dark and i have TSW eczema all over my body im just wondering is this just time that will heal this or is their something i can be doing to speed this up I.E diet in taking of particular natural remedies??

    • @jdw9260
      @jdw9260 4 года назад +2

      I’m going through TSW at the moment, I don’t know the protocols and am not a Dr but would advise getting tested for any true allergies so you can avoid anything causing flare ups outwith. For healing the gut I have been looking into fasting and probiotics. Some are proposing avoiding moisturisers though some do well with coconut oil. It seems that we are all so different in relation to sensitivities etc that personal trial and error are likely necessary. All the best, hope things have gotten a bit better for you!

    • @tpb1006
      @tpb1006 2 года назад

      @@jdw9260 can you pls update your tsw progress?

    • @tpb1006
      @tpb1006 2 года назад

      can you pls update your tsw progress?

  • @Chicatsbri
    @Chicatsbri 7 месяцев назад

    Im so stupid I had been going through TSW two times before started using a nasal spray had no idea they had steroids bow O have to go through this again and I am devastated

  • @Chandra-fm3vp
    @Chandra-fm3vp 5 лет назад +1

    I wanted to find out if fat is good for eczema patients. Fats like coconut oil, red palm oil, avocado oil, olive oil. The Medical Medium said it's not good for the liver so I just want to find out what the deal is. Thanks

  • @PHOENIXAHELO
    @PHOENIXAHELO 6 лет назад +7

    Off topic but Dr. Lee is a hottie!!!

  • @MrSqilz
    @MrSqilz 4 года назад +2

    what the hell? i've been using clobetasol steroid cream since 16 so 5-6 years and I didn't even use it so much during some of them years, only in my 21st year did i use a lot and i'm going through this TSW for 2 weeks. when will it go away?

    • @ch1995
      @ch1995 3 года назад

      months to years,most cases last around 15 months

    • @MrSqilz
      @MrSqilz Год назад +1

      @@TheRealBina yep

    • @neelumshamshad2185
      @neelumshamshad2185 10 месяцев назад

      My skin is also thinned by Steroid. My green veins ate visible. How much time it'll take to thicken again. As it's 1.5 years now

  • @elKarlo
    @elKarlo 6 лет назад +1

    How exactly do you taper off steroids? I can't find much online. I am tapering now, but I have no real direction on how to reduce the amount of steroids and how to reduce the intervals. Any help or links woukd be greatly appreciated

    • @alexlg9521
      @alexlg9521 6 лет назад +3

      You DON'T taper off steroids! I tried for THREE YEARS! Only got wors and worse!
      My advice wound be to get all things sorted out in your life and job and finances and circumstance so that you van head into a time of healing. Best of luck to you❤

  • @Shadow77999
    @Shadow77999 4 года назад +3

    Im going through hell right now and cant believe ill have to whitsand it for an entire year to heal.. guess i can just commit sepukku

    • @jdw9260
      @jdw9260 4 года назад +1

      Jesus, likewise. The burning is bad but the unbearable itch is the worst, can’t even play guitar it’s so persistent. Stick with it, it will get better. Get tested for allergies and eat clean. Am finding anything I’m sensitive to or any junk food ends up with everything going supernova. All the best!

    • @Shadow77999
      @Shadow77999 4 года назад +2

      @@jdw9260 check out leaky gut syndrome, i just discovered i have that and it causes my dermatitis

    • @Shadow77999
      @Shadow77999 4 года назад +2

      @@jdw9260 start avoiding diary and wheat/gluten as much as you can, also protein high foods like meat which have long protein chains.
      And to repair the intestinal wall eat lots of kefir (not yogurt, kefir) kombucha, sauerkraut, etc. Whatever has lots of pre and probiotics!

    • @jdw9260
      @jdw9260 4 года назад +2

      @@Shadow77999 thanks! Will get on those!

    • @Shadow77999
      @Shadow77999 4 года назад +2

      @@jdw9260 also get A-Z vitamin supplents and Omega 3 pills if u can. I had some lying around when i was really bad and took those as well

  • @kevinfang6005
    @kevinfang6005 6 лет назад +2

    Are the intolerance test he mentions igg tests or ige (allergy) tests? Can you confirm this please, thanks :)

    • @BetterBestForgotten
      @BetterBestForgotten 6 лет назад +1

      IgE's are the ones involved with allergys, but you can also get patch tests and what not done for allergies

  • @elizabethrivas323
    @elizabethrivas323 6 лет назад +2

    Hi there- I’ve dealt with eczema on and off most of my life. I’ve been on topical steroids since May 2014 (4yrs 3mos) when it first flared up again.
    It sounded like Dr. Lee went cold turkey but recommended gradual withdrawal. I’m considering cold turkey. Is that a bad idea?
    Also, where is Dr. Lee located? I’m in Dallas, TX but would love to meet with him for further testing (similar to the oil example he provided).

    • @williamtang6604
      @williamtang6604 6 лет назад +2

      I believe he is located in Canada, not sure which city though.

    • @baconegggandcheese
      @baconegggandcheese 6 лет назад +1

      i tried cold turkeying it but i couldnt. the withdrawal symptoms were too severe for me. try gradual reducing the medication.

  • @miguelteran-raful2718
    @miguelteran-raful2718 Год назад

    What about babies with ezcema!

  • @mrsmooootth
    @mrsmooootth 4 года назад +2

    The title is saying something, you say something
    else

  • @wowsydney
    @wowsydney 11 месяцев назад

    He didnt really talked about how to heal from it..