Changes: Living with Postural Orthostatic Tachycardia Syndrome

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  • Опубликовано: 10 янв 2025

Комментарии •

  • @deborahtaylor9714
    @deborahtaylor9714 2 года назад +2

    I wish that we had seen this 2 years ago when my daughter was diagnosed. We would have had better questions and been better advocates. It is amazing how uninformed so many of the doctors are/were that we have seen. My only complaint about the video is the use of so many clips featuring men, when the majority of people affected are women. As you stated, many men/doctors reduce symptoms to anxiety and depression rather then knowing that anxiety and depression are part of the disease. Thank you for creating this video. I am passing it along to family members so that they can finally better understand my daughter's situation.

  • @KaiserRollvideoTV
    @KaiserRollvideoTV 2 года назад +3

    This is very helpful to someone like me, who is new to POTS. My 16-yr old granddaughter has recently been diagnosed. The testimonials from the interviews ring so true to our experience. The expertise of the docs and the hope conveyed by the participants creates hope for me and my family. Thank you for creating this video.

    • @DysautonomiaInformationNetwork
      @DysautonomiaInformationNetwork  2 года назад

      We are so happy that the information has been helpful to you and your family. In addition to all the videos on this channel, our website includes medical resources as well as articles about lifestyle issues and the latest research. One of the features that you may find very helpful is our moderated forum for patients and caregivers. It provides a safe and anonymous way to "talk" to others who can offer tips, their experience with treatments and general support. The website address is www.dinet.org Best regards to you and your family.

  • @ewelinastanulewicz8919
    @ewelinastanulewicz8919 3 года назад +1

    Also chest pain while breathing deeply.
    The breaths I mentioned above are shallow. po2 levels at the moment are at 60 %

    • @DysautonomiaInformationNetwork
      @DysautonomiaInformationNetwork  3 года назад +1

      As I mentioned in your comment on a different video, you need to see a doctor as soon as you possibly can. Very low 02 levels can be very dangerous and should not be ignored. Especially if you have had COVID recently as you mentioned in the other video. Please see your PCP as soon as you can. Best wishes for a quick recovery.

  • @rachelscott5412
    @rachelscott5412 Год назад +1

    I was just diagnosed with Pots last week!!!

    • @DysautonomiaInformationNetwork
      @DysautonomiaInformationNetwork  Год назад

      I'm sorry that you are dealing with POTS symptoms but it is usually a relief to finally know what has made you ill. It's the first step to managing symptoms and feeling better. Be patient with yourself, it definitely takes time. I encourage you to watch our videos and check out our website and patient forum. The knowledge and support from other patients is really helpful. Best of luck.

  • @annaleelangnes9153
    @annaleelangnes9153 3 года назад +1

    same

  • @ewelinastanulewicz8919
    @ewelinastanulewicz8919 3 года назад

    Is it possible to have shortness of breath I mean non stop increased breaths per minute at level between 80-100.
    It only decreases in horizontal position while sleeping.