I’ve just been told I will need open heart surgery to fix a bicuspid valve with aortic stenosis. I’ve watched all your videos to date and want to wish you well with your ongoing journey. I estimate I’m 1-2 months from the actual surgery as I’m getting Dental clearance finalized and some additional testing so I will continue following you. I’m 28 years older than you so I anticipate a tough recovery as well just based on my age but as you said each person’s recovery is different so I’ll just have to wait and see. So have a Merry Christmas and hopefully 2024 will be a good year for the both of us!
Merry Christmas to you! I hope all goes well and you have an easy recovery. Just know that there are more of us out there that have gone through it and hopefully that encourages you on your journey.
I am so sorry to hear you have been having a challenging and discouraging month. You're two months ahead of me, and I just wanted to you to know how much I have appreciated your videos and have been inspired by your progress. I hope the new regimen resolves the issues you are experiencing, and that you will get back on track soon!
Hi, just wanted to say I had mine done in 2001 and I can relate to what you are going through , it took me about a year before L really started to feel great !! l am also on a beta blocker and warfarin, when I woke up from surgery a lady with a clown costume was in the room looking at me ,L thought that I had died and went to clown heaven! slow and steady wins the race, best wishes😉@@bicuspidaorticvalvereplacement
I so feel your struggle. I’m one month post opt open heart had my aortic valve replaced for the 2nd time and when I came home I had some anxiety for the first couple days when I lay in bed when I had the oxygen on like I couldn’t breathe, so I took the oxygen off and also had to have a night light on to sleep or I couldn’t breathe and that’s a Horrible feeling. Thank God that’s over!
It has definitely been the worst part of recovery for me. Being on the beta blocker for the last few weeks seems to have helped me a good bit with the anxiety. I hope your recovery goes well.
Thank you for your videos. I was born in 1993 with a congenital heart defect called Tricuspid Valve Atresia (I have no right ventricle) and had what is called a Fontan open heart surgery in 1994. Starting in 2017 I've struggled with atrial flutter, nearly died in 2020, and just this year started having more episodes of flutter as well as bradycardia and low BP from the meds I was on. I just had a Fontan Revision (an update to my old surgery), a maze procedure and a pacemaker placed on December 5th. Our surgeries may not be the the same but seeing your recovery and story has been an encouragement to me as I move forward after all this. You are in my prayers and I hope that your doctors are able to get the V-Tach situation figured out. God bless you.
Wow, you've been through a lot. I'm happy these videos are helpful for you, I'm sure you have plenty of experience that would be helpful to me as I go through this.
Thanks again for sharing and posting these video…so I had the exact same open heart surgery as you, and got the on-x valve. What you are describing I have experienced the same feelings and symptoms. I also see my pulse in my vision every now and then. I’m about 6 weeks out from surgery. Thanks again man for all these videos it really is useful and even reassuring in some ways too
Tough recovery Jeff but gotta keep pushing. All your symptoms you are experiencing now I've experienced after I had an episode with a blackout. I've never experienced anxiety especially when I have to drive until recently. I've forced myself to not let the anxiety to take over my life. I've done some tests for my heart and found out I need open heart surgery including an aortic valve replacement. I've been booked in for early January for the operation and let's see what happens after that. All the best for the festive season to you and your family and I hope all goes well moving forward.
I had aortic valve replacement and 3 way bypass. I did not have his problems. So if you get this surgery, dont worry, you may not have this mans issues.
Thank you for watching. I'm glad your recovery went well, I have several friends that didn't have these issues along the way either. I can only share my experience and hope it encourages some.
Thank you for sharing your experience. My son is 16 and he has Bicuspid Aortic Valve. We are torn in between 2 opinions from major hospitals. One side is telling us we have to do surgery as soon as possible (within 3 months) and the other opinion is not recommending surgery at this time and would wait if numbers are stable. As a parent, I feel like both opinions made sense but I don’t know what is right? From your experience how bad your numbers were bad before you had to do surgery?
Everyone is different. Multiple opinions are definitely smart. My numbers were monitored for 21 years so there was lots of data that pointed toward this being the right time for me. I hope all goes will with your son.
I tune it out most of the time. I can make myself hyper focused on it sometimes though. It's a part of life now and for the most part, I doesn't bother me.
I’ve just been told I will need open heart surgery to fix a bicuspid valve with aortic stenosis. I’ve watched all your videos to date and want to wish you well with your ongoing journey.
I estimate I’m 1-2 months from the actual surgery as I’m getting Dental clearance finalized and some additional testing so I will continue following you.
I’m 28 years older than you so I anticipate a tough recovery as well just based on my age but as you said each person’s recovery is different so I’ll just have to wait and see.
So have a Merry Christmas and hopefully 2024 will be a good year for the both of us!
Merry Christmas to you! I hope all goes well and you have an easy recovery. Just know that there are more of us out there that have gone through it and hopefully that encourages you on your journey.
Thank you for posting, it's reassuring hearing you working through this. Please continue to keep us updated.
Thanks for the kind words. So far, the metoprolol seems to be helping. I'll have another update at the 6 month mark.
Thank you for sharing your journey. Prayers for your continued improvement. I'm having aortic valve surgery in January 2024.
Thank you! I hope all goes well and you have a perfect surgery.
I am so sorry to hear you have been having a challenging and discouraging month. You're two months ahead of me, and I just wanted to you to know how much I have appreciated your videos and have been inspired by your progress. I hope the new regimen resolves the issues you are experiencing, and that you will get back on track soon!
Thanks. I'm glad that these videos are helpful. I'm hopeful that my new regimen will get me back on the right path.
Hi, just wanted to say I had mine done in 2001 and I can relate to what you are going through , it took me about a year before L really started to feel great !! l am also on a beta blocker and warfarin, when I woke up from surgery a lady with a clown costume was in the room looking at me ,L thought that I had died and went to clown heaven! slow and steady wins the race, best wishes😉@@bicuspidaorticvalvereplacement
I so feel your struggle. I’m one month post opt open heart had my aortic valve replaced for the 2nd time and when I came home I had some anxiety for the first couple days when I lay in bed when I had the oxygen on like I couldn’t breathe, so I took the oxygen off and also had to have a night light on to sleep or I couldn’t breathe and that’s a Horrible feeling. Thank God that’s over!
It has definitely been the worst part of recovery for me. Being on the beta blocker for the last few weeks seems to have helped me a good bit with the anxiety. I hope your recovery goes well.
Thank you for your videos. I was born in 1993 with a congenital heart defect called Tricuspid Valve Atresia (I have no right ventricle) and had what is called a Fontan open heart surgery in 1994. Starting in 2017 I've struggled with atrial flutter, nearly died in 2020, and just this year started having more episodes of flutter as well as bradycardia and low BP from the meds I was on. I just had a Fontan Revision (an update to my old surgery), a maze procedure and a pacemaker placed on December 5th. Our surgeries may not be the the same but seeing your recovery and story has been an encouragement to me as I move forward after all this. You are in my prayers and I hope that your doctors are able to get the V-Tach situation figured out. God bless you.
Wow, you've been through a lot. I'm happy these videos are helpful for you, I'm sure you have plenty of experience that would be helpful to me as I go through this.
Thanks again for sharing and posting these video…so I had the exact same open heart surgery as you, and got the on-x valve. What you are describing I have experienced the same feelings and symptoms. I also see my pulse in my vision every now and then. I’m about 6 weeks out from surgery. Thanks again man for all these videos it really is useful and even reassuring in some ways too
I'm glad it is helpful. I hope your recovery continues to go well.
I have BAV before surgery and I have had these kinds of panic attacks as well.
They are tough. I find that if I stay occupied with other things it helps. I hope yours are few and far between.
Tough recovery Jeff but gotta keep pushing. All your symptoms you are experiencing now I've experienced after I had an episode with a blackout. I've never experienced anxiety especially when I have to drive until recently. I've forced myself to not let the anxiety to take over my life. I've done some tests for my heart and found out I need open heart surgery including an aortic valve replacement. I've been booked in for early January for the operation and let's see what happens after that. All the best for the festive season to you and your family and I hope all goes well moving forward.
Thank you. I appreciate the well wishes and hope your operation is successful and you get back to 100%.
I had aortic valve replacement and 3 way bypass. I did not have his problems. So if you get this surgery, dont worry, you may not have this mans issues.
Thank you for watching. I'm glad your recovery went well, I have several friends that didn't have these issues along the way either. I can only share my experience and hope it encourages some.
Thank you for sharing your experience. My son is 16 and he has Bicuspid Aortic Valve. We are torn in between 2 opinions from major hospitals. One side is telling us we have to do surgery as soon as possible (within 3 months) and the other opinion is not recommending surgery at this time and would wait if numbers are stable. As a parent, I feel like both opinions made sense but I don’t know what is right? From your experience how bad your numbers were bad before you had to do surgery?
Everyone is different. Multiple opinions are definitely smart. My numbers were monitored for 21 years so there was lots of data that pointed toward this being the right time for me. I hope all goes will with your son.
Also, am I hearing your valve ticking? How do you deal with that?
I tune it out most of the time. I can make myself hyper focused on it sometimes though. It's a part of life now and for the most part, I doesn't bother me.
6 Months Post AVR i still feel fainted, lightheaded , ECO ECgs and blood works are normal, 😢
That's tough. Give it time, it's easy to forget how much our bodies have been through.