Thank you so much for sharing your story Remika @Mydestiny Hopkins. I related to what you said about being stereotyped based on how we look (although you said your diagnosis was stereotyped, I've experienced the status of my health being stereotyped based on how I look on the outside). I happen to be a physician, but I'm ALSO an LGLL patient. I too have posted videos on 'My Cancer Journey' and how I've applied nutrition to this leukemia with positive outcomes (my lymphocytes [the cancerous cell line] returned to normal range without medicine as did my neutrophils). But all my cellular lines have not corrected yet. It remains a work in progress. I also have a "What is LGLL' video posted. I hope others find your videos and mine as well. There isn't a lot of information about LGLL (not in laymen's terms anyway). How is your health now Remika? My prayers are with you and others with LGLL.
I'm watching your video exactly one year from the date you posted! Currently trying to figure out what's wrong with me! Bless you! Thank you for your sevice!
I was just diagnosed with this LGL and I had a mastectomy in March from breadt cancer I’ve been sick a long time. I don’t have many Ave. for treatment so they just tell me to live with it. I’m glad u put your story out there.
Praying for you. I also have finally been DX but am afraid it is a long journey for me. I have been very sick for a long time with night sweats and just not hungry to eat too much, and the Dr's act like this is hardly anything as I too look alright. My friends do not understand as they think I can still join in. I was an activities director and nurse and danced and raised my family and helped with grandchildren and now barely can do my housework and luckily we are retired and my husband helps me as he can. They have sent me to an Oncologist /Hematologist and they have found my White county way low and the Red count and then it goes up some, and then down as it does not stay stable. They are "watching and waiting" so it seems? Also, I happened to find the DX in my Patient Portal along with all else I have. I am in need of both hips and Right knee total Replacement and have hypertension and also hyperglycemia. So really awful and am 71 yrs old. I am very tired and have been a long time and hurt everywhere. I feel terrible for all you have gone through and with a family and just will pray thign do get better for you and they can turn this around!! The Mayo Clinic from what I have heard anyway * they are are not near me at all* but they are far ahead of many in this unusual leukemia. Thank you for your service! My husband was in the Navy.
Mine was diagnosed with flow cytometry. I see a leukemia\lymphoma oncologist. No treatment it is chronic but told it can turn acute. Took 2 years to diagnose. All bloodwork is wonky.
@@luisenriquegonzalez9313 yes fatigue and labs off for 2 years but first high red blood cells. With low platelets. Then it showed in the white blood cells and flow cytometry showed LGL
Thank you so much for sharing your story Remika @Mydestiny Hopkins. I related to what you said about being stereotyped based on how we look (although you said your diagnosis was stereotyped, I've experienced the status of my health being stereotyped based on how I look on the outside).
I happen to be a physician, but I'm ALSO an LGLL patient. I too have posted videos on 'My Cancer Journey' and how I've applied nutrition to this leukemia with positive outcomes (my lymphocytes [the cancerous cell line] returned to normal range without medicine as did my neutrophils). But all my cellular lines have not corrected yet. It remains a work in progress.
I also have a "What is LGLL' video posted. I hope others find your videos and mine as well. There isn't a lot of information about LGLL (not in laymen's terms anyway).
How is your health now Remika? My prayers are with you and others with LGLL.
I'm watching your video exactly one year from the date you posted! Currently trying to figure out what's wrong with me! Bless you! Thank you for your sevice!
Thank you for your post, Remika. Fellow Air Force Vet. Recently diagnosed LGLL. Similar introduction and progression to this "condition".
My heart goes out you!
I was just diagnosed with this LGL and I had a mastectomy in March from breadt cancer I’ve been sick a long time. I don’t have many Ave. for treatment so they just tell me to live with it. I’m glad u put your story out there.
How r u now?
Praying for you. I also have finally been DX but am afraid it is a long journey for me. I have been very sick for a long time with night sweats and just not hungry to eat too much, and the Dr's act like this is hardly anything as I too look alright. My friends do not understand as they think I can still join in. I was an activities director and nurse and danced and raised my family and helped with grandchildren and now barely can do my housework and luckily we are retired and my husband helps me as he can.
They have sent me to an Oncologist /Hematologist and they have found my White county way low and the Red count and then it goes up some, and then down as it does not stay stable. They are "watching and waiting" so it seems? Also, I happened to find the DX in my Patient Portal along with all else I have. I am in need of both hips and Right knee total Replacement and have hypertension and also hyperglycemia. So really awful and am 71 yrs old. I am very tired and have been a long time and hurt everywhere.
I feel terrible for all you have gone through and with a family and just will pray thign do get better for you and they can turn this around!! The Mayo Clinic from what I have heard anyway * they are are not near me at all* but they are far ahead of many in this unusual leukemia. Thank you for your service! My husband was in the Navy.
@Ms Law Thank you so much ! You too.
Moffitt cancer center Tampa has put my wife's LGL in remission
Mine was diagnosed with flow cytometry. I see a leukemia\lymphoma oncologist. No treatment it is chronic but told it can turn acute. Took 2 years to diagnose. All bloodwork is wonky.
Did you have any symptoms before the diagnose?
@@luisenriquegonzalez9313 yes fatigue and labs off for 2 years but first high red blood cells. With low platelets. Then it showed in the white blood cells and flow cytometry showed LGL
@@darlenefalast9419 how you are doing now ? Any update about your casev
@@soniajamal-u9d Bone marrow biopsy in August. Have mpl mutation. Labs unsteady but still watch and wait.