Hi Catherine'. My name is kim. I was diagnosed a similar type of ovarian cancer when I was 18. My tumor was 2 pounds and had destroyed my right ovary and fallopian tube. The good news is I'm 55 and still in remission. I will pray you have the same outcome.
Hi Catherine, I just randomly ran onto your video! My daughter at the age of 16 also had this rare cancer. Was yours called an endodermal sinus tumor? Everything you are mentioning is practically identical to what she went through, even down to the appearance of your scar!! Also, her surgeon compaired her tumor to the size of a volleyball and lifted right out as well. He took her right fallopian tube, ovary, I think appendix, and I believe some lymph nodes. She was diagnosed with stage 1 cancer and had Chemotheropy for 3 months. This all happened in 1999 and she has had 3 healthy children since, with no complications, her oldest is 16 and youngest is 8. I believe God had a plan for her life and saved her from this horrible illness so that she could become a special needs teacher and make a difference in so many lives!! Today she is almost 40 years old and cancer free!! God bless you and hope to hear from you!
Hello. Catherine. I was diagnosed with same cancer 2015 when I was 30. I’m actually being treat MD Anderson in Houston Tx. I went thru chemotherapy. I’m doing great at this time. I have been cancer free for 4 years. Don’t worry everything will be fine.
Your post gives me hope ! I have to see the oncologist this week. I have a huge mass in my belly and it’s from my ovaries. The ct scan shows I need to see an oncologist. I’m so scared ! Trusting God best I can Glad you’re cancer free
I just found your video first talking about your cancer today, and I'm kind of glad I was late to the show because now I know that you're okay. That's awesome. I had a lot of people tell me when I was still going through chemo that I needed to get over it, and that it wasn't a big deal. Even if you're not going through that piece of treatment, you had a life-altering diagnosis and procedure, and anyone who can disregard that part of your life so flippantly truly has no idea what's going on. In my experience, they were not lifelong friends. I hope you continue to stay positive and strong.
I was diagnosed with uterine cancer grade 3 stage 1B I had a complete hysterectomy with removal of both my ovaries. I wish my doctor didn’t take them... surgical menopause is hell for me. It’s just pure hell going through this at a young age. I did also have radiotherapy as they said grade 3 has a high risk of recurrence. Thank you so much for making this video. Please follow your heart and get your eggs froze xxx
Hi Amanda, I have the same, grade 3 endometrial cancer stage 1B. I had just passed menopause when I was diagnosed. I had chemo and radiation. The doctor said if it was a low grade, I would have been finished after the surgery. So far I have had two clear scans. I had endometrial carcinocarcinoma. I still have close surveillance so I am hoping that God Forbid if it comes back it will be caught quickly. How are you doing now, and how long since your treatment?
@@aanaperdigao I had endometrial cancer, an aggressive type. Never had any problems in the past with periods or anything of that nature. It just happened.
I'm now at the egg freezing stage after being a breast cancer survivor for 5.5 years. It's stressful but I'm hopeful. Partner and I currently do not want kids but who knows in the future. I'm also glad I live in Australia where egg freezing is pretty much free for me cause I have cancer. I'm 33 turning 34 this year
My partner and I definitely want kids but we are currently both 23 and for sure not ready yet. So so glad to hear your insurance is good, it makes things a lot less stressful. Congrats on 5 years!!
Another interesting fact, if you have your ovaries removed, you can still get cancer where your ovaries were. My grandma had ovarian cancer, but unfortunately she caught it too late as this is called the silent killer for us women. My mama had uteran cancer and only ended up with partial hysterectomy. I am so very glad that you are in remission.
You don't need makeup. You are beautiful and strong with your scar. I am happy to hear that you are depending on God. I am a male and 42 years old but feel compelled to watch your progress. I can't imagine the journey you have had at such a young age. Be strong and depend on God. Thankyou for making me appreciate my mundane existance knowing that I am blessed. I hope for you to have a healthy body and a great life moving forward.
Thank you so so much for sharing your story about this. I went through a surgery for the same thing a few years ago and I think it’s amazing that you’re spreading awareness. My experience changed my outlook on life for sure and made me a better person- there is light at the end of the tunnel
I was diagnosed with chondrosarcoma in my sternum. Found a lump. This type of sarcoma is chemo-resistant and is also resistant to most radiation. Surgery was essentially my only option. They told me before my surgery that if they couldn’t get it all that I would have to do something called proton radiation that can sometimes be effective on it. Luckily they got it all with surgery. I have scans every 3 months and the fear of recurrence is with me every minute of everyday. But I also feel like an imposter because I didn’t go through chemotherapy treatment. And feeling that sort of guilt just makes the PTSD even worse. I’m so incredibly happy to know your surgery was successful and that it was caught in an early stage. I wish I had the nerve to make a video like this. These cancer story videos are EVERYTHING when you’re newly diagnosed and looking for support on RUclips. I did the same as you and went right to RUclips after being diagnosed and there wasn’t much at all. So thank you for sharing your story with the world. ♥️
THIS THIS THIS!!! Thank you for your comment. It means the world that someone else understands. Regardless of the details, our experiences are still valid. My thoughts are with you and wishing you remission for a lifetime!!
Hi, just passing by in April 2021. Well done to you and your surgeons and all those who helped you along the way. And I REALLY want to share in your opinion that we MUST self-advocate. This is critical. I often think about some of my older loved-ones. I'm 55, so my parents are a bit older, as are other relatives. Many of our elders come from a world where you would never EVER question your physician, it would just not be the "Done thing". Having moved from the USA to the UK (dual citizen now!) I see this is even more apparent in the UK, though the US also struggles. What would be brilliant would be groups of those of us who have some understanding, ability to get older folks to their appointments and sit-in as their advocates. That's something as simple as taking notes, helping ask questions and helping "push" (with love, of course! LOL) to ensure all our loved-ones get the care they need. Thanks again for having the forethought to share this with all of us! And most of all, stay well, stay happy and keep learning. You are a lovely human! :)
Hi there! So glad you are doing well. I just thought I would let you know that I was 28 years old when I found out that I was born with only one ovary, one Fallopian tube and one kidney. I was able to have a child and menopause at 54. So, hopefully, with your clean bill of health - you will continue on the journey you dream of. Thank you for sharing your story! 🙏🏻
Also, I ended up having a full hysterectomy at age 40 due to severe pain during periods in the scar tissue of the first ovary that was removed earlier in my child bearing years (having pain there didn’t make sense to my gynecologist, however). Anyway, I did NOT go into early menopause. I started menopause in my early 50’s. So them telling you you’ll go into early menopause has not proven true, at least for me
I love that your applying your makeup, in a away it makes listening to your answers less scary if you get me,like your doing something so normal talking about something so important
Thanks for sharing your story. You should start a crowd fundraiser to help with the costs, I am sure many would be willing to donate to take care of your health care costs! I hope the recovery continues to go well. I have a bizarre cyst I'm getting looked at this week, so wish me luck!
I'm not in the position where I need assistance, so I think even though people would love to help, their money is better used elsewhere! Thank you for the idea though! Hopefully you are doing well
How can I contact you? I was also diagnosed with the same cancer as you back in 2014 when I was 20. I’ve been remission since then. I did not have to get chemo for the same reason. I really would like to know how I can contact you because you are the first person that has the same thing that I did! I’ve been to doctor’s office lately because I’m feeling the pain again😖 I’m so happy to hear that you are in remission!! Thank you so much for sharing your story☺️
That really sux that it costs so much to freeze your eggs(I think that kind of service should be available to all women, even healthy ones...no guarantees, right?). In aging societies when we need more kids, more should be done to help women/families give birth and care for their kids. Kids are the future! Hope all is well with you.
Im so glad that you're still okay!!!! I was just wondering, Were you CONSTANTLY Bloated or did the bloating come and go? I have Ehlers danlos syndrome and we can have GI issues like pain in the abdomen, Bloating, bowel changes etc. I get really bad pains and bloating which do subside and the drs say its just EDS (possible mild gastroparesis) but havent really looked into anything o3o...
Was the burning pain constant, intermittent, or occur with certain activities? I'm happy you're doing well and that things ended up working out positively. Thank you for sharing your story!
The burning was pretty constant. I didn’t do anything for the 2 months I was in pain. My doctors explained that the reason my organs felt inflamed is because the tumor was pushing my organs out of place. I hope that helps!
when you werent bloated or distended, did your abdomen still feel as if there was a mass? I have heard two people ik have had no idea, one being really skinny and lean...she didnt know she had a mass....I go for an ultrasound on the 5th, with bowel issues for years, recent dizziness and nausea, heavy menstruation with clots...etc..... as well as cramps and bloating and distention.....i am very nervous but this was also reassuring, stay strong:)
I’m glad this could be reassuring for you! It felt hard as if I was pregnant, like something was in there. It really depends on your body how each person experiences the bloating. But because my stomach was hard, it gave me more of a leg to stand on when negotiating with the doctors on the severity of my condition.
Thank you so much for all this information. I am from India and my wife was diagonised with Mucinous cystadenocarcinoma. Stage 1c2. Infiltrative pattern. Can you please ask your doctor the prognostic value? And we are going thorugh oxaliplatin and capecitabine. Will this help us? We have also gone thorugh unilateral ophrectomy. Anepdectomy and omentectomy with negative malignancy.
Not every hysterectomy comes with a bilateral oopherectomy. I had everything taken because I was done using it. Lol. I have lynch syndrome that causes my body to make all kinds of cancer. I also haven't had any bad symptoms related to my hysterectomy.
@@pamelcakes04 did you have side effects... As they say there are a lot of complicationa removing ovaries at such young age... I'm having bilateral Milagnant tumor.... I'm not willing to remove my ovaries
@Mariaashraf3930 I had a bad history with painful cysts. I wasn't going to get pregnant anymore, so I just figured it would eliminate a few places for cancer to grow. I have had troubles in the past with regulating my hormones with the patches. But we have found the right dosage now. Other than that I've been blessed. I know not all women are.
My daughter is going through this now abs has ascites from the cyst . Did you have this and did it go away after surgery? Her surgery is planned for next week
Hi Catherine'. My name is kim. I was diagnosed a similar type of ovarian cancer when I was 18. My tumor was 2 pounds and had destroyed my right ovary and fallopian tube. The good news is I'm 55 and still in remission. I will pray you have the same outcome.
Hi Kim. I just want to know I how are you today? May I pm you
Did i undergo chemo?
Thank you for sharing
@@CatherineSaoudhi. are you fine now
Welcome to the ovarian cancer survivors club...
I am also a survivor of ovarian cancer and now 46years old. I had it at 32years old..
I'm 23 I had cancer when I was 23
@@theforbiddenwords9262so did they remove your both ovaries...
Hi Catherine, I just randomly ran onto your video! My daughter at the age of 16 also had this rare cancer. Was yours called an endodermal sinus tumor? Everything you are mentioning is practically identical to what she went through, even down to the appearance of your scar!! Also, her surgeon compaired her tumor to the size of a volleyball and lifted right out as well. He took her right fallopian tube, ovary, I think appendix, and I believe some lymph nodes. She was diagnosed with stage 1 cancer and had Chemotheropy for 3 months. This all happened in 1999 and she has had 3 healthy children since, with no complications, her oldest is 16 and youngest is 8. I believe God had a plan for her life and saved her from this horrible illness so that she could become a special needs teacher and make a difference in so many lives!! Today she is almost 40 years old and cancer free!! God bless you and hope to hear from you!
Hello. Catherine. I was diagnosed with same cancer 2015 when I was 30. I’m actually being treat MD Anderson in Houston Tx. I went thru chemotherapy. I’m doing great at this time. I have been cancer free for 4 years. Don’t worry everything will be fine.
I had the same cancer at 18. I'm 55 now. I'm so happy you're doing well. Evelyn.
Your post gives me hope ! I have to see the oncologist this week. I have a huge mass in my belly and it’s from my ovaries.
The ct scan shows I need to see an oncologist.
I’m so scared !
Trusting God best I can
Glad you’re cancer free
Have you removed your ovaries? ...i m also having same cancer I'm 18@@kimkramer3973
I just found your video first talking about your cancer today, and I'm kind of glad I was late to the show because now I know that you're okay. That's awesome. I had a lot of people tell me when I was still going through chemo that I needed to get over it, and that it wasn't a big deal. Even if you're not going through that piece of treatment, you had a life-altering diagnosis and procedure, and anyone who can disregard that part of your life so flippantly truly has no idea what's going on. In my experience, they were not lifelong friends. I hope you continue to stay positive and strong.
I was diagnosed with uterine cancer grade 3 stage 1B I had a complete hysterectomy with removal of both my ovaries. I wish my doctor didn’t take them... surgical menopause is hell for me. It’s just pure hell going through this at a young age. I did also have radiotherapy as they said grade 3 has a high risk of recurrence. Thank you so much for making this video. Please follow your heart and get your eggs froze xxx
Hi Amanda, I have the same, grade 3 endometrial cancer stage 1B. I had just passed menopause when I was diagnosed. I had chemo and radiation. The doctor said if it was a low grade, I would have been finished after the surgery. So far I have had two clear scans. I had endometrial carcinocarcinoma. I still have close surveillance so I am hoping that God Forbid if it comes back it will be caught quickly. How are you doing now, and how long since your treatment?
@@dawnlovescouture2644 do you know the cause? Pcos?
When was your treatment?
@@aanaperdigao I had endometrial cancer, an aggressive type. Never had any problems in the past with periods or anything of that nature. It just happened.
@@aanaperdigao I had surgery in July, chemo from August until November, and three radiation treatments afterwards. I finished in December.
I'm now at the egg freezing stage after being a breast cancer survivor for 5.5 years. It's stressful but I'm hopeful. Partner and I currently do not want kids but who knows in the future. I'm also glad I live in Australia where egg freezing is pretty much free for me cause I have cancer. I'm 33 turning 34 this year
My partner and I definitely want kids but we are currently both 23 and for sure not ready yet. So so glad to hear your insurance is good, it makes things a lot less stressful. Congrats on 5 years!!
Hello I know who can help you with the cure. Are you interested ?
Another interesting fact, if you have your ovaries removed, you can still get cancer where your ovaries were. My grandma had ovarian cancer, but unfortunately she caught it too late as this is called the silent killer for us women. My mama had uteran cancer and only ended up with partial hysterectomy. I am so very glad that you are in remission.
You don't need makeup. You are beautiful and strong with your scar. I am happy to hear that you are depending on God. I am a male and 42 years old but feel compelled to watch your progress. I can't imagine the journey you have had at such a young age. Be strong and depend on God. Thankyou for making me appreciate my mundane existance knowing that I am blessed. I hope for you to have a healthy body and a great life moving forward.
How sweet, thank you so much
She will never find you attractive (unless you are some hollywood hunk which is doubtful)
Thank you so so much for sharing your story about this. I went through a surgery for the same thing a few years ago and I think it’s amazing that you’re spreading awareness. My experience changed my outlook on life for sure and made me a better person- there is light at the end of the tunnel
I was diagnosed with chondrosarcoma in my sternum. Found a lump. This type of sarcoma is chemo-resistant and is also resistant to most radiation. Surgery was essentially my only option. They told me before my surgery that if they couldn’t get it all that I would have to do something called proton radiation that can sometimes be effective on it. Luckily they got it all with surgery. I have scans every 3 months and the fear of recurrence is with me every minute of everyday. But I also feel like an imposter because I didn’t go through chemotherapy treatment. And feeling that sort of guilt just makes the PTSD even worse. I’m so incredibly happy to know your surgery was successful and that it was caught in an early stage. I wish I had the nerve to make a video like this. These cancer story videos are EVERYTHING when you’re newly diagnosed and looking for support on RUclips. I did the same as you and went right to RUclips after being diagnosed and there wasn’t much at all. So thank you for sharing your story with the world. ♥️
THIS THIS THIS!!! Thank you for your comment. It means the world that someone else understands. Regardless of the details, our experiences are still valid. My thoughts are with you and wishing you remission for a lifetime!!
Hi, just passing by in April 2021. Well done to you and your surgeons and all those who helped you along the way. And I REALLY want to share in your opinion that we MUST self-advocate. This is critical. I often think about some of my older loved-ones. I'm 55, so my parents are a bit older, as are other relatives. Many of our elders come from a world where you would never EVER question your physician, it would just not be the "Done thing". Having moved from the USA to the UK (dual citizen now!) I see this is even more apparent in the UK, though the US also struggles. What would be brilliant would be groups of those of us who have some understanding, ability to get older folks to their appointments and sit-in as their advocates. That's something as simple as taking notes, helping ask questions and helping "push" (with love, of course! LOL) to ensure all our loved-ones get the care they need. Thanks again for having the forethought to share this with all of us! And most of all, stay well, stay happy and keep learning. You are a lovely human! :)
Hi there! So glad you are doing well. I just thought I would let you know that I was 28 years old when I found out that I was born with only one ovary, one Fallopian tube and one kidney. I was able to have a child and menopause at 54. So, hopefully, with your clean bill of health - you will continue on the journey you dream of. Thank you for sharing your story! 🙏🏻
Thank you, this helps so much!
I love how you said you actually prefer your body with your scar
Thank you so much! I often feel like I may not be explaining things well so this warms my heart!
Also, I ended up having a full hysterectomy at age 40 due to severe pain during periods in the scar tissue of the first ovary that was removed earlier in my child bearing years (having pain there didn’t make sense to my gynecologist, however). Anyway, I did NOT go into early menopause. I started menopause in my early 50’s. So them telling you you’ll go into early menopause has not proven true, at least for me
I love that your applying your makeup, in a away it makes listening to your answers less scary if you get me,like your doing something so normal talking about something so important
So glad to hear that!
Thank you so very much for sharing your story. I’m so proud and happy for your strength and resilience, as you are truly inspirational!
I’m telling everyone I know to watch your videos and to watch them more than once!!!! You’ll get your 8k in no time!!!!!!!! Best wishes love ❤️
This is the sweetest ever! Thanks so much for the support and love ❤️
Looks like you are doing well in all aspects of life there. Keep living your life!
Welcome back miss u
Happy you are better ❤️ change the world babe
Omg thank you!!
Thanks for sharing your story. You should start a crowd fundraiser to help with the costs, I am sure many would be willing to donate to take care of your health care costs! I hope the recovery continues to go well. I have a bizarre cyst I'm getting looked at this week, so wish me luck!
I'm not in the position where I need assistance, so I think even though people would love to help, their money is better used elsewhere! Thank you for the idea though! Hopefully you are doing well
I watched your channel last night.. You helping lot of people ❤
How can I contact you? I was also diagnosed with the same cancer as you back in 2014 when I was 20. I’ve been remission since then. I did not have to get chemo for the same reason.
I really would like to know how I can contact you because you are the first person that has the same thing that I did! I’ve been to doctor’s office lately because I’m feeling the pain again😖
I’m so happy to hear that you are in remission!! Thank you so much for sharing your story☺️
My Instagram is @catwithovca if you want to have a dialogue with me!
get well soon
thank you
You are so strong! I salute you!
Vow, u are an angel
I don't have a words to say thank you for sharing your life, God bless you 🙏
That really sux that it costs so much to freeze your eggs(I think that kind of service should be available to all women, even healthy ones...no guarantees, right?). In aging societies when we need more kids, more should be done to help women/families give birth and care for their kids. Kids are the future! Hope all is well with you.
Im so glad that you're still okay!!!! I was just wondering, Were you CONSTANTLY Bloated or did the bloating come and go? I have Ehlers danlos syndrome and we can have GI issues like pain in the abdomen, Bloating, bowel changes etc. I get really bad pains and bloating which do subside and the drs say its just EDS (possible mild gastroparesis) but havent really looked into anything o3o...
I was ALWAYS bloated. If you check out my first video I have pictures of my stomach. I looked pregnant and my stomach was hard.
Was the burning pain constant, intermittent, or occur with certain activities? I'm happy you're doing well and that things ended up working out positively. Thank you for sharing your story!
The burning was pretty constant. I didn’t do anything for the 2 months I was in pain. My doctors explained that the reason my organs felt inflamed is because the tumor was pushing my organs out of place. I hope that helps!
when you werent bloated or distended, did your abdomen still feel as if there was a mass? I have heard two people ik have had no idea, one being really skinny and lean...she didnt know she had a mass....I go for an ultrasound on the 5th, with bowel issues for years, recent dizziness and nausea, heavy menstruation with clots...etc..... as well as cramps and bloating and distention.....i am very nervous but this was also reassuring, stay strong:)
I’m glad this could be reassuring for you! It felt hard as if I was pregnant, like something was in there. It really depends on your body how each person experiences the bloating. But because my stomach was hard, it gave me more of a leg to stand on when negotiating with the doctors on the severity of my condition.
What was your ca125 level
Thank you so much for all this information. I am from India and my wife was diagonised with Mucinous cystadenocarcinoma. Stage 1c2. Infiltrative pattern. Can you please ask your doctor the prognostic value? And we are going thorugh oxaliplatin and capecitabine. Will this help us? We have also gone thorugh unilateral ophrectomy. Anepdectomy and omentectomy with negative malignancy.
Give me your contact number please beacus my mother same stage
Not every hysterectomy comes with a bilateral oopherectomy. I had everything taken because I was done using it. Lol. I have lynch syndrome that causes my body to make all kinds of cancer. I also haven't had any bad symptoms related to my hysterectomy.
Thanks for sharing your experience!
At what age did you remove... I'm 18 doctor told me.. But I fear side effects of ovries removal
@Mariaashraf3930 it was in 2020. I was 44. I was diagnosed in March and surgery was in July.
@@pamelcakes04 did you have side effects... As they say there are a lot of complicationa removing ovaries at such young age... I'm having bilateral Milagnant tumor.... I'm not willing to remove my ovaries
@Mariaashraf3930 I had a bad history with painful cysts. I wasn't going to get pregnant anymore, so I just figured it would eliminate a few places for cancer to grow. I have had troubles in the past with regulating my hormones with the patches. But we have found the right dosage now. Other than that I've been blessed. I know not all women are.
My daughter is going through this now abs has ascites from the cyst . Did you have this and did it go away after surgery? Her surgery is planned for next week
I have not experienced this. Good luck to your daughter and I hope all is well!
And my Mother had ovarian cancer
Which was your treatment în the beginning?
How can i contact you please tell
💕
How are you now girl? ❤
How are you doing now?❤
Hi! I'm still doing very well. Doctors appointments are even more spread out now! :)
🌻🌻🌻
Is she still in remission?? Are there side effects ?
Hi there, and yes! I'm still in remission!
How much was your ca125?
I talk about those levels in my most recent video about remission!
❤
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