My Lupus Story part 1
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- Опубликовано: 3 окт 2024
- Hey Yall!
May is lupus awareness month, while the month is ending, I still wanted to share my story. I was diagnosed in 2009 and it took time to get the final word on what all my symptoms were from.
I hope hearing my lupus story is helpful to other lupus survivors. I look forward to sharing next parts that include how I learned my lupus type, managing my lupus, and lupus survivors summer must haves. fighting the wolf isn't easy, but connecting with a community and support group is essential. I wish there was as many lupies sharing their stories years ago when I was diagnosed.
Drop me a line below and let me know what else you would like to know as a person living with lupus.
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PROVERBS 23:7
ROMANS 8:28
Its so depressing especially when no one around you understands. I feel so sad
I know the feeling.
@jessica powers Hi how are you now....are you following herbal meds still or any diet..can you please let us know
Pro trick : you can watch movies at flixzone. Me and my gf have been using it for watching loads of movies lately.
@Gunnar Stetson Definitely, have been using flixzone} for months myself :D
Thanks for sharing your story. I was diagnosed in the hospital while being treated for pancreatitis. My lupus effects my pancreas and brain . The body aches are unbearable and fatigue is non stop. My brain is always in a fog . Lupus has changed my life. I’m a completely different person .its harder for me because I don’t have much family support
Please look into raw foodism and Doctor Gerson. Most of my symptoms have gone with a high raw diet. And I was in alot of pain prior. x
Love hearing your story. I have lupus as well and all I can say is people don’t understand the hell you go through ❤❤
Lupus is very brutal on the body. I was diagnosed 4 yrs ago. Let me just say this...I feel your pain. Everyday I’m in pain, no energy or nothing just pain. Each day is a challenge! Thank you for sharing your video beautiful. Keep the faith and keep fighting!!! Pray there’s a cure one day!!! God bless!!!
Nikki Holmes thank you for watching. I appreciate it. Yes we serve a God who is a healer.
same
help mi
Me too and I am so scared ! My ANA came positive and I don’t know what to do or how to continue raise my 10 year old daughter and I’m a single mom .
Thanks for sharing your story. My daughter was diagnosed with Lupus several years ago and your video helps me wrap my arms around the disease. Knowledge is power and listening to you and others who share their life experiences will help me ask more questions and provide greater assistance for my daughter. Your vlog has increased my awareness and I'm looking forward to your next upload. Thanks
Wow thanks for watching. That means a lot.
Thank you for this. I’m currently in the hospital and diagnosed in the last three weeks. Lupus is completely new to me and this is the first video I’ve seen that I identify with and helped me. I’m definitely subscribing to your channel and I am pulling for you in the battle with Lupus. Thank you so much for this.
THANK YOU FOR WATCHING!
I’m 12 almost 13 and I have all of these symptoms and I was born with the blood marker for lupus and this video really helped me
thank you💜
allison ballard aww thanks for watching chica!! Stay strong!
I was diagnosed with lupus 5 years ago & it’s so strange because it took a year and a half to figure out what the hell was wrong with me. After being to about 1001 specialists, as a last resort, I was FINALLY referred to a rheumatologist... and when she saw me she told me my levels were sky high, and that they must have been high for awhile. I don’t understand how none of these other specialists didn’t notice something was massively imbalanced in my body?! Now I have permanent joint, bone, and organ damage
Thanks for watching. Ugh that is so frustrating to hear. Boils my blood that this happened to you, but you are still here, keep fighting.
I been hurting for bout a year as well I find out if I have lupus in 2 weeks I'm so nerves... How are you doing today???
I Had two strokes lupus showed in my labs because clots caused my strokes. Im cold alot. Aches pains. Spike fever out of the blue. Fatigued every day. Major weight loss in short time period. Severely sweat. Many other issues. I dont wish this on anyone. My white red platlet count is low. Waiting to see a hemotologist for recommended treatment. Im a mess. Your blogs help me keep them coming
Thank you for watching. I hope they figure everything out. Not knowing is the worst.
Russell Loveland I also have lupus SLE, but I have a question on what you said....they found in your blood work you had a stroke. Is it possible to have a stroke and not know it and it would show in your blood work. My doctor always ask me if I ever suffered a stroke, I feel like why does she ask me that. Thank you in advance.
@@irishchick5528 sorry ct scan showed stroke, heart attack in blood work would show tropoinin level would show if u had heart attack. In my case my blood is thick due to it thinks theres an infection in my body when i dont so my immine system attack my body. Telling blood to thicken which causes the clots which caused the two strokes i had. Luckly when i went to my brain i didn't hemorige or anorism
@@irishchick5528 theres a test that can test how your blood clots when they teated mine the test failed or was positive meaning i had a blood disease where my blood clots to easy in the test its called the lupus anticoagulant test i tested positive. Hope this explains it better. I just also was told by my doc the lab notified her i tested positive for rheumotoid arthritis so this explained why my body is inflamed.
@@irishchick5528 im thinking why your doc is asking is shes wonsering if u may have the blood disease i have. The clotting problem that can cause strokes.
I have scleroderma and I ignored the symptoms as well until one day I got to work in 2013 and passed out because my bp was so high both of these diseases are horrible and they are sooooooo similar I pray one day they can find a cure and thanks for sharing your story❤
Thank you for watching! We gotta pay attention to the signs. We only get one body!
I haven't even googled this yet...
I have appt for neurologist but my research is all symptoms of ms, fibromyalgia, lupus... & i HAVE HEART ISSUES. I KNOW I have heart issues but something more too.
I'll research this. My poor future neurologist is in for a LONG APPOINTMENT
My sister has been diagnosed with Lupus and I am researching ways that I can help her manage the symptoms . Ironically today is May 31st , 2020 and I am watching this video. Thank you so much for sharing your knowledge and your story!!
@Marian Cook Give up don't insult our intelligence. You're full of crap get out of here. Fake fake fake money scam
Thank you for your story! As someone who is going through something similar, I need some comfort that there are other people that are going through this. Been relying on my family but it's so scary.
You aren’t alone. Lots of ppl on this journey.
Thanks for sharing your story ❤it's really helpful as I battle with other SLE symptoms
When you said the prednisone had you like the incredible HULK you brought me back to 2014 when they infused me to treat it more "aggressively". Now I know I have to tell my story, I've been praying and seeing your video just confirmed it.. God Bless You😘
Daphne T thank you for watching
hey thank you for share just got diagnosed 3 months ago and still don't know how to deal with it but thank you for sharing your story.
It tries to take control over you. Takes YOU away from YOU.. It's not a friend... not at all. For a second there it made me feel like a monster. An ugly LAZY monster. And you try and fight it. You try and you try and you try. But it takes a part of you. It transforms you into this other person. I feel like I can now love my family more, being grateful it's me and not them.
Tia Kato so true! Thank you for watching. Stay encouraged.
God bless every person who dealing with this even Michael Jackson had lupus u try to keep a strong mind and a good feeling on life and yourself
Cookie Tood gotta stay positive.
My neighbor, my friend passed away last Tuesday from lupus complications. She had many syptoms...rash, joint pains, and them low white cell count. She had to avoid the sun. She had it very bad. She develop infections.
Jan Gibson wow. My heart breaks. We gotta find a cure!
@@TheOfficialBiancaMedia It is very sad as my heart is breaking because I never did such research on lupus. I found out that she was in the sun two days before she got very sick.
Please take good care of yourself sister.
How old was she?
Jan Gibson I have lupus and I don’t know anything about It :,( scared
@@dare-er7sw she was about 35yrs. Sorry for late reply. I hope all is well.
I was diagnosed with Lupus nephritis in 2018 with 17 years so it was really hard for me but before my diagnosis the doctors thought it is cancer🤷🏼♀️ I feel with you and wish you the best!
Thank you for watching. I couldn't imagine being a managing this is as a teenager. I wish you the best. Stay strong.
Hey! I was diagnosed with lupus nephritis 3 months ago and I really wanted someone to talk with who has the same conditions like me if you don't mind!
I was diagnosed at the same age and felt so alone. I had no symptoms but they seen it through my urine, and continued to do more tests and found out it was it.
Looking forward to the upcoming parts.
Your story sounds so much like mine. I have SLE. In the beginning I just thought this was what getting older feels like. 😆 I had just turned 30
margo81172 thank you for watching.
Mine hit to at 30
Thank you for sharing your experiences. Someone in my life that I care deeply for was diagnosed just a few months back. I am not even certain they have it narrowed down yet to which type. I hope your videos will help me understand and assist her in this journey.
you are beautiful,with a great spirit God bless you
hayes Alexa2014 thank you for watching!
I have aching, rushing on my abdominal, brain fog issues many others. Recently also diagnosed with temporal seizures now on meds for that. Have Functional neurological disorder. Also had MRI done found a spot on my lung waiting to see oncologist to have biopsy of that. Keep strong everyone. I wish this on no one.
I two also have lupus same year everything this is a hard thing to except in life specially u never had it or in your family thank God for my friends and family and kids
Cookie Tood yes. Such a surprise and a very hard pill to swallow at first. 😔
That Tin man " I need some oil" metaphor is the truth lol. Made me laugh. I know that pain.😣
2 years ago I was diagnosed with lupus and I was very active at the time but it came to a screeching halt. I’ve been on Benlysta infusion for some time now and no improvement. Seeing videos and post on RUclips on how Dr. Aloha uses his Holistic Herbal Remedy to cure people permanently, This encouraged me and brought me much knowledge so as to contact him which I did. He guided me and prepared the Herbal Remedy for me which I received through DHL delivery service. Just within a week of using this product I tested Negative to lupus the pains stopped. Gained more hair and the rashes on my skin where all cleared up. Kindly contact Dr Aloha through his Email: Alohaherbalhome@gmail.com or Call/Text:+1(202)871-3222 if you need help.
I can totally relate to being the tin man.
Idk if I have lupus, ms, fibromyalgia... But something is wrong with me!
Thank you for sharing!
Same here, but I just have a feeling it's most likely lupus for me. As it came up a few years ago somehow in blood work but they ignored it at the time
@@sensoryzoo8293 saw Dr yesterday & finally going to see neurologist but have to wait...
However, it's a start! I don't want to be sick but if I am (& I'm definitely not well) I'd be better off having a name & diagnosis for my illness & hopefully feel much better with treatment & lead the best life I possibly can.
Wish you the best!
And Dr's can really suck about diagnosis 😟
@@priscillapatten6229 thank you. I wish you luck too.
Have you figured it out? I just started my journey of finding a diagnosis.
Thank you so much for this video as someone else mentioned this is the wonderful thing about RUclips is that some people really put some videos out there that are so helpful for others who are struggling with the same problems me too I have been diagnosed with lupus about four and a half years ago yet I still don't know much about lupus when I was first diagnosed with lupus it barely affected me it gave me the butterfly rashes and I had a sensitivity to Sun and I would always remain cold after seeing this video you seem so knowledgeable about lupus it makes me also want to do my research thanks girl
Latoya Peeler thanks for watching! Let me know what other videos you would like to see.
I was diagnosed with tumid lupus between two and three years ago now and when I was diagnosed I found your video but I haven’t been able to watch it until now because I’m only starting to be able to process and except it, it has changed my lifestyle my diet and my greatest fear. Thank you so much for telling your story
At this point I don’t think I would have the courage you do to share your story
Wow it is crazy to hear your story especially being that everything you went through I just went through the week before Thanksgiving. Your symptoms, all the pain, and even how long you stayed in the hospital. I was diagnosed the day before Thanksgiving with Lupus and I am trying to find ways to handle it. I truly appreciate you sharing your experience and to see that someone went the same thing I went through. I am praying as well as subscribing to your channel.Stay blessed and Thank you!!!
The Power 3 Podcast thank you for watching. Sending you positive vibes. Stay encouraged.
Thank you so much for sharing your story. I have an appointment with a rheumatologist in three months. I've been having similar symptoms since March. It's been quite the battle and I'm hoping to get answers by next year. Your video gives me hope, thank you again💕
Thank you so much for your video. I have been suffers from fatigue and joint pain for years. Now I have the butterfly rash hair loss and other symptoms so they testing me for Lupus. I am scared so I appreciate this so much
Thanks so much for sharing your story...praying for you. I can relate to much of your journey as far as physical symptoms n the emotional feelings; I was diagnosed with Rheumatoid Arithitis earlier this year n I’m still trying to process everything...sharing your story n being transparent is helping so many; Thank you; Sending prayers n hugs your way...🦋💜🦋💜🙏🏾
Karen P thank you for watching.
Thank you for sharing you story! I was diagnosed last year, and it is interesting hearing how this impacts different people in different ways. That is so great to hear that you have such a great support system, that is so key.
Jeanette Moser thank you for watching
Thank you so much for sharing your story. I’ve been feeling the same with my lupus journey. Now I’m looking for a reheumatologist. Thanks to your video lol I know is not in my head. Especially the part when said you couldn’t walk. That happens to me all the time.
Wow! I appreciate you sharing your story. I believe I was sick for a long time before I could get any help! It’s frustrating, you think your going crazy, am I just getting old and this is what it’s like or is something really wrong. After over a year it took took get diagnosed with SLE Lupus, fibromyalgia and carpel tunnel, it was almost a relief that there was a reason I wasn’t feeling good and it wasn’t me being lazy. I still don’t have a good rhythm yet. As I was just diagnosed, my pain is still there and some days I can’t get out of bed but I am hopeful. Again, thanks for sharing!
Stacey Ferguson thanks for watching. Glad you have clarity now. Take it day by day. Don’t forget to celebrate the small wins!!!
see twice in my life in 1996 and in 2006 doctors told me we know your body is fighting something but we dont know what, why are these things so hard to diagnose?
so frustrating
Thanks for sharing. I had so many of the same symptoms before being diagnosed and avoided the doctors, no insurance and fear then i began passing out the weight loss ( omg i looked like death) but i was placed with an excellent RA doctor who is amazed i am not in dire pain or can function as i do. Thank God
latisha bell wow. Thank goodness!!!
Nice to hear, really
God Bless you! Sending love & prayers from New Jersey! Thank you for sharing your story! You’re a beautiful young lady! Wish you the very best!
Janice Pagano thank you for watching
@jessica powers God Bless you 🙏 and thank you for sharing this period of your life with us!
I’m here to learn for my my little cousin💚
Thank you!!
Preach!!! 99% of the symptoms plus ANA labs are like 1:2156.... awaiting the final results of AVISA 5 more days.... I'm a nurse and pretty much quite sure.... kicking my own butt for ignoring the symptoms while caring for everyone else... but God.... thanks for sharing- "tin man" were my exact words!!!!!
Thanks for sharing , after three years I'm still trying to get all the take all this in .
Cassandra Vick it takes time. Have you joined a support group or participated in a lupus walk?
Yes I'm in the purple wings , thank so much sweetie , stay well 💝💝😘
You are so gorgeous and charismatic!! I was laughing through with the ambulance thing! 🤣 I got a friend going through this right now. Yesterday at the gym i noticed her face was red and just working out she felt a burning sensation like coals. It scared me. And today she texted me saying her face was so stiff that she couldnt smile or open her eyes. Her blood results came back abnormal so...yeah :/! Praying for her and you too lovely! 😊
Hi there .. hope you are doing good ...soft hugs 🤗
You are most adorable! Thank you for sharing your story!!!
Thank you for watching!
Thanks for your story. It's so nice to know I'm not alone☹️😉
Thanks for watching.
Your never alone, us Lupies together! x
There are so many parts to the lupus story... I was diagnosed in 2011.
I was diagnosed this month with Lupus. The Dr was very unprofessional. She put me on meds while I had only joint pain, after side effects(9days) she took me off of the meds. Causing my first HORRIBLE flare. That was 2 weeks ago. I and just getting a tad better but I was suffering man. When I called to leave a message for an emergency appt she never called me back! 5 days later I had to call her after hours and get a message back. Her front office people are worse! I will be place on hold for 20 min then hung up on. Or I’ll call n get a machine saying the dr isn’t taking calls. It’s the worst. I have three babies but 1 is over the age of 18. All I keep thinking about is them. When I was told it’s like they told me I was dying. I’m new to all this and don’t know what to do. 😩 i get short winded just getting up to use the restroom. Which freaks me out (🙋🏻♀️ anxiety person ) . I wanna know if that ever goes away? Can ppl with lupus really enjoy life ?
Thank you for watching. Stay encourage. You will make it through. Document everything and be sure to file a complaint with the hospital or even the health department. Find another doctor if you need to. You will make it through.
I woke up today unable to move by body. My heart pumps so fast trying to help me that I feel like passing out. I’ve been to the ER 5 times and the Drs won’t admit me because and I quote “don’t have non emergency beds”. Idk what to do anymore. I went to go get a CT scan yesterday n my heart was pumping so fast that it pumped the medicine too fast before they could take the CT of my heart. My family doesn’t get it. They say it’s anxiety making me feel like not moving. It’s anxiety that causes all of this.
I just listened to your video, thanks for sharing. I myself has lupus, just found out 2 or 3 weeks ago. Your video is so helpful, thank you!
Glad it was helpful!
I love your makeup, girl! You look beautiful!
I just received my diagnosis. I have my 1st official Dr visit since my labs on 2/12. This has been an rollercoaster of feelings. I'm so sick of the joint and muscle pains.
My doctor just called me yesterday and told me my a.n.a is positive. Now i have to see a rheumatologistist soon. My joints hurt and my hair is falling out. Im so depressed i dont know much about lupus. Im so scared!
stay encourage....you will be ok. Ask the doctors as many questions as possible if you don't understand something. take lots of notes, keep a journal of how you feel, what you eat, and physical activity, and your mental state. you will overcome this.
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on RUclips Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, Lupus low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️=``
Hello! Yours is the 5th video I have watched since I got home from the doctor today, but the first I have commented on. I just have to tell you how incredibly well spoken and beautiful you are!!! I can't wait to check out your other videos! Ha! (I was told today that my doctor suspects Lupus and/or RA.. or possibly MS. And, so it begins.)
Thank you for watching
How are you any updates? I go see a rheumatologist today.
Thank you so much for sharing your story. ❤
I felt like charlie brown too when they told me.
It was so unreal.
I was diagnosed on November 19, 1999. I had all of the same symptoms and today somehow your video popped up. I have lupus nephritis also and I’m on a host of meds. for just about everything still. My lupus still isn’t well controlled. I was good for 1 week, I went into remission, and now I’m still very, very sick. God is an awesome God though.
Omg I Finally found someone with Lupus. I was Just diagnosed 2 month's ago
Lillian Trevino stay encouraged. Thanks for watching. Let me know what other videos you want to see
Thank you for sharing your story..
Great testimony! I was truly Blessed.
Wow you are so pretty!
Thank yo.
Thanks for sharing your story. Lupis is a struggle everyday. Everybody does say you look okay. But don't feel okay. Haveing a painful lupus day
Charmin Bruner thank you for watching. Sending positive vibes your way. 💜
I just turned 22 years old. This is my second round of blood work and my ANA test was positive. She said this means i have a high chance of having Lupus. My primary doctor is referring me to a Rheumatologist.I started feeling sick February 20th. I actually got mis diagnosed with mono and thought thats what i had for 2 months. The pain, nausea and fatigue is absolutely horrible. Im hoping to have a complete diagnosis soon so I can finish up my senior year of college in the fall. Thank you for inspiring and sharing your story.
My name is Bianca, too. I also suffer from Lupus/SLE/Lupus Nephritis. I was diagnosed when I was 17.
bbonifacio20 oh wow. Bianca is the best name ever isn’t it!!! 😁
TheOfficialBiancaMedia Haha yup for sure!! ✌️👍
Hi there I wanted to say I give you a lot of credit for posting this video it's amazing to see the strength and courage and positivity you have your an amazing person live your life to the fullest never give up on your hopes and dreams and no matter how hard life can seem sometimes just always remember God gave you this life because your strong enough to live it I hope you have many more blessed days to come your way you have definetly inspired me and others a lot 🤗♥️📿🙏🏻💪🎗
@Marian Cook I love this reply keep up the positive energy luv live everyday to the fullest God bless you 🙏🏻🙏🏻💪🏼🎗
Thank you sharing this video..
just got diagnosed in June .. Having a difficult time
@Marian Cook Get out of here!!
this helped me so much
Thanks for watching
I have lupus Nephritis pulmonary hypertension and eye problems
Thank you for watching. My prayers are with you. STay encouraged.
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on RUclips Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, Lupus, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️=``
Hello sis use Dr Omo Herb's very powerful and active it will help you.
Order Lupus herbs 🌿 ruclips.net/channel/UCZJJR-LpB1SVD09hQkt1-GA
You are so beautiful. Thank you so much for sharing. It's helping me!
Lara Farnham thanks for watching!!
S/o Doc!! 🤫😉 Thanks for not saying her name. Glad you're looking well. Proud of you ALWAYS. 🙏🏾💜
Been having some weird symptoms was in the ER with low wbc they never tested me for lupus .
You’re so beautiful!! ❤️
Thank you
Sorry to hear that my dear,,,god bless you always😘😘😘😘😘😘
Thank you for watching.
Thank you for sharing your story.
Reniel Diaz thanks for watching
Look up Dr. Brooke Goldner, MD @goodbyelupus, she's a great educator on treating/reversing autoimmune diseases! Best to you! ❤
Will do, thanks for watching.
@@TheOfficialBiancaMedia where s part 2 m waiting cause my cousin is diagnosed with lupus and she very much depressed and demotivated. I want to motivate her.
Please look for dr Brooke Goldberg she has a book goodbye lupus and a RUclips channel... you can reverse your lupus
Highly recommend Dr. Brooke Goldner @ goodbyelupus! Her green smoothies are game changers!!
Great video! Thank you for sharing your journey with the world💜 Your skin is amazing!! What do you use if you don’t mind me asking??
Thanks for watching. I like Ole Henrickens products, but I'm always changing.
My friend diagnosed with lupus in 2007, she was hospitalized last dec.25, 2018, its sad cause she had to go. She died last jan.19,2019 and she was diagnosed lately as lupus nepritis. Tomorrow is her burial.
Carla Angelic Vlogs oh wow. 😔. It can really take a person out. So sorry to hear about your friend.
I also Lupus patient for 10 years.
Thanks for watching!
I was very active too. Just had breakfast that morning felt great them bam tired. Couldnt move my left arm very weak dizzy. Hospital did scan confirmedci had stroke
They looked at my heart no clot. Doc ordered labs out of blue she tested for lupus and bang positive. I have low BP i take thinners. B12 fish oil. Its crazy.
Oh wow! Glad they were able to identify it so quickly. Thanks for watching!
Nice to listen to
Thank you for this video i know what i to do now to my girlfriend because she has a lupus too i feel so sad that i saw her struggling for that illness. I hope you do well now godbless to you
antonio agustin give her all the love you can. Keep her encouraged.
Bro....I'm in the same boat. I'm talking to this girl now who I'm really falling for and she has lupus. God fearing woman and I'm the same. I wanted to see how serious it is cause God forbid I dont wanna lose her no time soon. But she seems full of energy and really into me. We love talking about the bible and God's love and she used to be so isolated to herself but around me she is like full of energy and life and I love that about her. Bro thank you for this comment. I want to be extremely supportive to my maybe new girlfriend and maybe wife in the future. And to any others guys out there that maybe have a female partner with lupus we need to support our women and encourage each other. God bless you all in Jeus mighty. Also a special thanks to the owner of this channel and video. God bless you! 🙏
just found out about a week ago .. N it all started with my kidneys n swollen feet
Mine started that i have mild carpal tunnel syndrome..At this point i am still not officially diagnosed that i have lupus but my ANA titer test was positive 1:40 speckled... i’m still going through a lot of test... seeing 4 doctors including my rheumatologist... going through this is so stressful..at times i woke up and i feel so tired, muscles and joints aching
Charissa Aquino thanks for watching. Ugh i totally understand your pain. Keep track of everything. That helps the doctors make a decision. Stay in tune with you body and what you eat.
I’m getting tested for lupus. They suspected ms but the tests came back negative thank god. Two of my aunts have lupus so now they suspect that. I have a lot of tbeclassic symptoms such as joint pain and rashes. :/ thanks for making this video, I hope you’re doing well! 💕❤️
J D thanks for watching. I hope they can figure it all out.
Hi, it’s been almost a year, I’ve been to number of doctors, specialists, and hospitals. I think I’ve lupus, no one could diagnose me yet! I’ve an appointment with rheumatologist in 9 months!!!! But I’m in a daily pain!!! I live in Indiana, I wonder if i can contact you. I have ANA positive btw, joints pain, chronic fatigue, numbness, burning, high pressure and other symptoms since 2 years but developing with time.
I was diagnosed lupus 1 and half year back. I'm having a lot of skin problems these days. What should I do ? I have no idea. Although the medication are treating my pain but not my skin problems.
Bianca
You are so pretty
Thank you!
Hello Bianca my name is tangella this is my first time being on here but i also has lupus and i was diagnosed a month ago and it scared me and still do and i don’t have no friends with this so it’s hard trying to talk to people that don’t no what your going through i just no that i’m not going to be pretty anymore because of my lupus
Thanks for sharing
Thanks for watching!
I’ve been having some symptoms I have rashes , I’m also having issues with my kidneys I’ve had protein in my urine also having a lot of joint pain and low white blood cells just seem like it veryhard to detect
Thanks for watching. Yes, it takes a while for doctors to pin point it. It can be fustrating.
I’ve also had protein in my urine and been diagnosed with lupus nephritis. Had rashes, been on multiple Meds, developed bilateral hip avascular necrosis - had hip surgery...the whole 9 yards. Now my wbc is 1.6 started prednisone again etc but scared to start cellcept. Anyone have advice on cellcept?
@@TheOfficialBiancaMedia
I did blood test for 4 yrs straight before it came out positive. But I knew that there was a strong possibility I had lupus because I did my research on the internet and matched the symptoms. Living with it from 1999
Im so sorry to hear this. I also think i have it i started having seizures last year n January when i have my menstrual and im very moody and aggravated.
Thanks for watching. Be sure to get it checked out! Don't wait!
this is scary close to what i have dealt with. I am searching for whats wrong but its been at least 2 years. for me it started with charlie horses and now I am just stiff an sore all the time. its like my muscles over react to anything I do. If I lift 5 lbs once its like I lifted 10 lbs 20 times with the soreness afterwards. mental stress makes it worse too. I used to be very active and its like I suddenly slammed into a brick wall and everything I do hurts. a coworker with lupus said it sounds like lupus to her but so far nothing shows in the tests.
mental stress can really take a toll on the body.
Thank you so so much you know its hard with this illnesses I suffer from FIBROMYALGIA and its the most horrible painful condition that I would not wish to my worst enemy, every bone and muscles constantly hurts, In my whole body i get bruises and its painful and beyond debilitating that is why is called musculoskeletal decease so I feel for you cause its not funny.
I have lupus I find out in 2017
This sounds like me. Years ago I went to the hospital with the same symptoms. My knee and ankle were swollen and I couldn't walk. They didn't do the ANA test but my d-dimer came back positive. They referred me to a rheumatologist she said I had arthritis. I was suppose to follow up, never did because my insurance didn't fully pay for it. Years later I still have the same symptoms. I went to hospital today and again d-dimer (blood clot test) came back positive. I had a ct scan on my chest because I had chest pain. They ask me do lupus run in my family I said no and again no test was done. Imma keep going to different hospitals until I find answers.
Stay encouraged...you gotta find out what is going on.
I went to ER with chest pain last week
D-dimer was positive, but CT wasclear. I called my primary doctor and she said panic attack. I demanded to be referred to rheumatologist for testing. Something is not right. Pins and needles in my feet, my hands do just what she describes in the video, joints ache, legs/feet swell, I'm exhausted and I have difficulty swallowing. Something isn't right. Ladylocs, keep pushing your doctor. You have to advocate for yourself, because you know your body best. I wish you luck and answers.❤
what song is it in ur intro? the piano song is rly nice :)
Thanks for this Video, I am going through the same thing The pain, sweats, joints locking up extremely fatigued rash from the sun I’m currently going through testing my Docs are leaning towards RA but I think it’s Lupus I may need to get a second opinion
Thanks for watching. Yes, always get a second opinion.
I dealt with your initial symptoms as a child. Deep in the bone ache till i was in fetus form rocking. Had one incident in high school where my elbow swelled up pretty bad but that was in the late 80s early 90s. They just put it in a sling and excused me from gym till it went down. Was healthy and active as an adult. Had my second child at age 35 and my body went ballistic. Waking with hands and feet swoll like baseball mitts hurt to open and close hands. Over an hour to get out of bed and still hurting. Every joint just hurt. While pregnant I stayed in flipflops and socks at work. After I had my son I was still flared...exhausted, toes locking up in joint running bk n forth to ER.. just out of sorts. Been to 4 Rheumys and test show ANA positive but titer not high enough to diagnose. Sedimentation etc reflects my swelling but this rheumy diagnosed me with sero-negative rheumatoid arthritis.
Prior to meds I also had hives. Diagnoses as a child w eczema. Hair fell out but recovered with zetar shampoo. Dont know. Dont want lupus...dont want to be sick but it's very apparent. Trying to stick with this rheumy bc I know they need time to figure things out but it's been 7 yrs w her. Last 4 yrs neurological issues as well. Unstable gait, memory bad, tremors, and migraines w/trimmings.
Listen to your bodies guys. I want to seek Nother doctor but with all the meds I'm on it seems like things are masked and side effects from meds etc. Dont know what to do.
Thanks for your story and God Bless!
@jessica powers thanks so much
You are such a beauty! Thanks a lot for sharing your story. I was wondering what meds do you take now and how often you experience flare ups? Also, is sunbathing okay for you? Please, let me know 💕
Hey chica! Thanks for watching! My flares aren't as bad as they use to be. I probably have a flare two or three times a year and I can feel it coming on. As far as my lupus specific medicine I take plaquanil, my other meds are for other things. Sunbathing, I'd be very cautious. When I"m at the pool or beach I have to make sure there is an umbrella or some place to retreat to out of the sun. I love the summer, but the sun is more draining on me that it use to be. So just air on the side of caution when it comes to the sun.
Hello everyone i was just diagnosed with lupus also and iam very scared my hair is falling out i start it getting rash’s on my face and stuff i just keep telling my family and hubby that i’m not going to look pretty anymore and i just keep crying i’am scared i start it taking my meds for the lupus and everything but i’ma get through this.
Tangella Holloway stay encouraged. This time is temporary.
Thanks hope we could have more conversation
I am having these symptoms as we speak. My fingers are doing the same thing. It's hard to walk on my feet. My knees and toes and fingers are aching and burning so badly. Sore throat the past two weeks straight and has not went away. Also now I'm having reoccurring fevers 😭
Please be sure to connect with your doctor!! We can't live like that.
@@TheOfficialBiancaMedia I have had more symptoms and ongoing pain in my joints and muscles. I have seen a rheumatologist who has since tested me for rheumatoid arthritis and lupus, etc. nothing has been detected. He just started me on lyrica (for fibromyalgia) my lymphocytes, monocytes and neutrophils are messed up
Damn I think I have it. I am familiar with all these symptoms. Mannn I need to go find out for sure
Definitely, see a doctor if you are having issues.