what it's like to have a P.O.T.S. episode | my worst flare up ever
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- Опубликовано: 14 янв 2022
- Hi y'all!❤️ Welcome to my channel! Today I am going to be giving a storytime on my worst flare up / episode ever.
Thanks so so much for watching!!
MY CHRONIC ILLNESS STORY: • My Chronic Illness Jou...
✨ABOUT ME✨
Hi y'all!! My name is Averie and I am a 23-year-old college student studying to become a teacher! I fell in love with making RUclips videos when I started my BookTube channel in 2017. It has become a huge passion of mine, and so many people have persuaded me to start a new channel talking about all things gluten-free and things related to my chronic illness! I found out I have Celiac Disease when I was seven, and have been Gluten Free ever since! During this pandemic, I have gotten really into cooking and baking and I have been loving all of the different types of recipes that I have been trying. I made this channel in hopes that I could help others out there who are having a hard time eating gluten-free or just having celiac disease. I have struggled (and honestly still struggle) with my autoimmune disorder, but I hope that I can help and find other people like me out there who are just looking for some GF friends!! Feel free to reach out on my socials listed below!!💖
✨SOCIALS✨
Booktube Channel: / darkblueluver27
Instagram: averie.love...
Email: avasromancebooks@yahoo.com
TikTok: @ avasromancebooks
Intro and Outro Music is from: www.bensound.com
xoxo Averie 💕
I have POTS, and have never fainted. My doctor told me most people with POTS do not faint. I have experienced the nausea and definitely come close to fainting but never do. My main symptoms are rapid heart rate, lightheadedness, and brain fog. I am so sorry you are going through this. I pray for your healing as well as mine.
Same here.
Did you get the Covid vaccine? I’m curious because I get heart palpitations.
@@mrs.s8855 Well there are all kinds of side effects to the vaccine, it's why they take a bit to make sure you're good afterwards. Though hmmm I'm not sure how or if POTS would effect the vaccine and how you feel on it. I just felt tired. Though it may be a good idea to speak to the doctors or even a cardiologist about it.
That is why it took me 10 years to be diagnosed. I never fainted, and according to doctors, no fainting, no POTS/Dysautonomia. 🙄
@@margaritasaborio4475My heart rate and blood pressure spike when I stand. The cardiologist said I don’t have pots because blood pressure drops with pots. It wasn’t until I researched that hyper pots will raise standing blood pressure. I have most of the symptoms of hyper pots.
You shouldn’t say that fainting is the main symptom of POTS. That’s very incorrect.
Give her a break lol . We are all dealing with brain fog here
I just got diagnosed with POTS finally after being misdiagnosed with extremely somatic panic attacks. I get a spike in heart rate, adrenaline rush, sweating, catatonia - feeling like my body is too heavy to move, shaking, chills after the sweating, and nausea/vomitting. I finally had a doctor listen. Now, I can take small breaks as needed and listen to my body instead of thinking I'm crazy and agoraphobic and can't function like a normal human being in social settings. haha. I was convinced it was me this whole time. My brain causing it all.
From what I'm aware of you have a pretty unique presentation of Pots. Almost makes me think it might be misdiagnosed but that's not my place. But either way, I know the feeling of chronic illness imposter syndrome and it sucks. But hey if it helps, I have Pots and I have never fainted. I even have presyncope or near-faint episodes at least once a day, usually more, but I've never blacked out. During my tilt table test my heart rate jumped 70 bpm in about 10 minutes but for some reason my body doesn't faint from it. I've had similar imposter syndrome because of it
I went to the ER a few days ago and the doctor suspects that I have pots, and I'm also anemic so I am glad that I stumbled upon your video. I think I am having a flare-up today, but I'm still trying to recognize the signs of mine
thank you so much for sharing. im 18 years old with pots and me and you are having such similar experience with this. i just had my worst episode yesterday, and i’ve never had this nausea with it. my shower got too hot and i switched on the cold water too late and i had to sit down and barely made it to my bedroom before i (TMI) threw up out my window.. i don’t know how i didn’t pass out when i threw up out my window honestly, my vision was almost completely black. and i barely have episodes every few months or weeks as well. i just want to say thanks for sharing again because you are the first person now that i’ve watched that i can relate my symptoms more to🙏🏼
(i went to my window because i NEEDED fresh air and also really needed to throw up and there’s no way in hell i was going to walk downstairs to go outside😂)
I’ve suffered from chronic illness for a long while I’m nearly 65 and being investigated for POTS, listening to you video reminded me of when I used to get frequent migraines. I couldn’t move anything on my body without throwing up. I’m hoping that sickness doesn’t start affecting me again there’s nothing worse, so you have someone here who empathises totally. Xx
Oh Averie I’m so sorry you have to go through this. Sending you so much much. I’ll absolutely be keeping you in my prayers as well. You’re going to help so many people and I’m excited to for movies on this channel. Love you sweet friend!
thank you Zae💗love you too!
Does anyone else get a very low blood pressure when they're having an episode? I get the lightheadedness, nausea, etc and very low BP during an episode
Happy to see you uploading on this channel again! I'm sorry about your recent flare up and how bad it was recently.
thank you Aspasia❤️
Thank you for sharing all of this!! I hope you’re feeling better soon!! As someone who feels nauseous a lot (probably ibs/anxiety), I know how terrible that feels!! Sending all the good vibes
thank you!! how do you help with your nausea ??
@@ChronicallyCourageous Peppermint candies are my go to! I also learned on tik tok that the phosphoric acid in Coca Cola helps so I sip on those too! Mostly for me it’s waiting it out for a few hours 😅
Thank you so much for being brave enough to share your chronic illness story. Exposing our vulnerabilities can be scary, but keeping them in the dark only magnifies them! I am so sorry to hear about your most recent flare. I can't even begin to imagine how scary it must have been. I hope you are feeling better! 🙂🙂 I can't wait for the gluten free recipes!!
thank you so much, you are so sweet💜
I get this I feel like heaviness of the legs and then to the point where walking my ankles feel like they are sprained. Getting up feeling so dizzy that cannot stand up and only laying down calms is as there is the rapid heart beat that only laying down can calm. Feeling no energy and just feeling very tired and fatigued most of the day.
Mines getting worse and worse and it sucks. I used to get relief from laying down but now I’m dizzy even laying down :/
🤍🤍🤍 flare ups are the worst and I’m so sorry you had to go through this.
thank you tori💛 love you sweet friend
Is it normal for POTS to have heart rate of 140 bpm walking around and 120 standing?
They won’t diagnose me but I have 15 yrs of high heart rate consistently unless asleep 60s
I get episodes as fast as 190s sinus rhythm when I eat or get too hot.
Doing laundry or dishes or a flight of stairs it’s 160
I have visual snow and tunnel vision
I am on medication but it doesn’t stop all the Episodes I have them daily
Yes my heart rate does the same thing the last four days I'm so scared. Just wear told trust I have pots
If I have an ice pick headache I’m not finishing at the grocery store.
Does bad episode feel like heart attack or stroke ? The other day I had the worst chest pressure after over doing it which wasn't much . I got lightheaded, felt so sick , felt like I was going to pass out couldn't breathe , really dizzy and confused , couldn't talk, part of my body was super tense and clenched . Heart rate about 110 I just laid down and it went away in about an hr and then i just snapped out of it . Its been going on for about a year but this one felt really severe. Ive had them that lasted for hrs but I cant get help
Sounds similar to what pots sufferer’s go through, speak to your local doctor and get checked out - mention pots and what symptoms you have that are similar
Hey this reply is pretty late, but I have had all of your symptoms and went to the ER because I could have sworn I was having a heart attack. They did every test possible for me and everything game back normal, i was just having heart palpitations. Sometimes I do feel like I am about to fall into a stroke or seizure but it turns out its all just a POTS flare up. All of my symptoms are being on the verge of fainting, severe tremors, trouble breathing, confusion, brain fog, slight memory loss (it felt like i was high), headache, nausea, some chest pain, heart palpitations, and insomnia. It really sucks and it makes me feel like I am about to die or something. So to put it all together, a very bad flare/episode could feel like a heart attack or stroke. You should still make sure to see your doctor though
@@Hailey-if9yv Omggg this exact thing happened to me a few months ago. I was having severe tremors, couldn’t speak correctly, my thoughts were in slow motion. I couldn’t remember my birthday at one point. Scariest thing ever. It was like I was having a stroke. They are still trying to figure out. But they seem to be 99% sure it’s POTS. Which I’ve suspected I’ve had for years but I didn’t know it could cause that!? Was that really a POTS flare up!? That’s crazy.
♥️ love you 🥺
love you too emma💕💕💕
Sounds so much like a seizure too
I think I've got pots. I've got cptsd and the drs blame the dizzness, the chest pains.. everything that could be apots symptom on cptsd. I ask them, why can't you just test me? Annoys me
Why didn’t any dr. Ever give you a beta blocker medication ? It did a terrific job for me. I got POTS at age 18 when working hard in NURSING school and got Bronchitis ( the typical way of contracting an illness ) and NEVER being normal again because the Autonomic Nervous System was affected. It continued with many strange symptoms. Seven years later Tachycardia came suddenly……more doctor searching. I was 1 of 5 women to be Research patients at the National Institutes of Health in 1982. YES it was REALLY that long ago!! They truly saved my life since NO regular Neurologists knew about POTS in those days. I would like to write my story to help others who Might me disabled sInce previously ( before my time ) they may be disabled from it completely. HOW do yoU as a yOUNG PERsON TODAY FEEL I can contribute to help people with my early experience of this tough condition? I am now 68 years old !! Thank the good Lord .Very Truly Yours, Gerda S.😊