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My POTS seems to be triggered now when i get really sick. I had nausea really bad a few months ago and had an episode too. Interesting thanks for sharing

If you can I’d recommend a bedjet!! It has CHANGED my life. Before I got it I had to change my sheets every other day bc my night sweats were horrible! Look into a bedjet!!!

I love this style video! I’m interested in what kinds of meals you make

The trick with puppies is socialize, socialize, socialize. Expose her to as many new people, places, and things as you can. If she growls at people, she needs to meet new people under positive conditions, like the person gives her a treat, etc. The fears of puppyhood will become lifelong fears if not overcome puppies. Joining a puppy class would be great for her, too. Also, don’t indulge her fears. For instance if she is growling at someone, don’t pick her up and give her attention. Give attention when she’s doing what you want her to do and ignore her when she’s acting how you don’t want her to act. This was long…sorry.

I love that you make these videos and chat about your life being chronically ill. I am also chronically ill. I have fibromyalgia, IBS, seizures, POTS and joint pain.

Hi! I'm Claudia from Austria and I'm also chronically ill (hEds + other stuff). And, funnily enough, I'm also a teacher. AND I also quit two weeks ago for the exact same reasons you mentioned (amongst other things). 😅 AND my boyfriend told me yesterday that I should get into a career similar to yours yesterday, haha. Your video made me feel less alone. ❤ I can relate to so much you said (also the friends part) and really enjoyed it! I hope 🤴 will show up soon! Your puppy is sooooo cute! ❤ Congrats!

I found out I’m lactose intolerant last year.

They have been selling them at Michael's and TJMaxx foe several years.

So happy to see your face! :)

Hi Averie, yeah that sucks. I developed afib after I retired and undergone 2 catheter ablations. After the second procedure, I began to experience sinus tachycardia, where my resting heart rate was at 100bpm…all the time and even higher after my morning walk. At the moment, after many combinations of drug therapies, my heart rate at rest is now 58-65 bpm. Has your doctors ruled out afib? Your ecgs appeared to reflect that…

If I have an ice pick headache I’m not finishing at the grocery store.

Now your ist feeling good?

I was told wear button down tops, nighties, pjs , I am waiting to hear when I’m having mine, but I’m having a 5 day inpatient one with video

Never stop posting here! Remission or not your story of living with chronic illnesses is inspiring! I also have a chronic illness and live mostly in remission but it’s a battle everyday. Either I’m dealing with being too tired or constantly having to think about what foods I’m eating and how it may affect me in the days to come or not being able to do certain things. It’s a constant battle with your body and you should share the good times as much as the bad! I am very lucky to have found a job that has 2 weeks of sick time on top of unlimited PTO. They do exist, just hard to find. 😬 I used to have to earn all my PTO and was never able to take vacation because my time off would have to be used for treatments and doctor appointments. It can really be a struggle. ❤ As for dating… 🤢 I couldn’t imagine having to date now so much luck to you there! I love broccoli cheese soup so much, I can’t eat it often tho because of my illness. I have heard of people using some instant mashed potatoes to help thicken up soups and such. It might be a good alternative 🤷🏼‍♀️ Love your content so much! Sending positivity your way! ❤

Loved this time it was a great chat!! We are in the same boat on the dating scene my friend. 😂😅we gonna make it some how

So glad you are doing this! I follow your Booktube channel. I have just discovered I have osteoarthritis and seem to have continuous flare ups and debilitating pain. So I thought try gluten free, but have no idea where to start and pursue this as well as an anti-flammatory diet. I am looking forward to this videos and what you cook, maybe a recipe or two posted??? 😊 You really are a true inspiration.

If you have a favourite chicken stock powder that you like to use, in stead of using so much salt you can add a little bit of that or until you’re happy with the taste. You could even use vegetable stock powder if you prefer but it’ll give you more flavour then just salt. I also put chicken stock powder in my mashed potatoes with lots of butter & a little milk, makes it so delicious 😋

I love Twilight! 😀I don’t know why people give it such a hard time?! It was fun then and it still is today 😀

Hi! Have you ever been tested for mold/mycotoxins or Lyme? I get those symptoms whenever I’m inside a moldy building… learning about mold sensitivity has changed my life… check out Dr Jill Carnahan maybe

Hope you enjoy your soup, I love brocoli and cheddar soup! Also this is why I only date fictional characters, dating sucks in the real world lol

Not me yelling at my phone “Ava turn the heat up a little bit more!” 😂 but loved this video and glad your back posting on this channel! ☺️

Wow... gotta love the "I'll pray for you" when they learn about reading romance. 😅❤

Kill switch made me want a snowflake tattoo 💚

Hello again, welcome back!

Mines getting worse and worse and it sucks. I used to get relief from laying down but now I’m dizzy even laying down :/

Hi, sorry youre going thru so much, just wanted to point out IST is definately more common in women under 30-35, and can cause you to faint. There are multiple other medications to try including beta blockers like propanolol or Iverbradine other than the midodrine. So others watching this pls dont think there are no safe options for you

I just got diagnosed with POTS finally after being misdiagnosed with extremely somatic panic attacks. I get a spike in heart rate, adrenaline rush, sweating, catatonia - feeling like my body is too heavy to move, shaking, chills after the sweating, and nausea/vomitting. I finally had a doctor listen. Now, I can take small breaks as needed and listen to my body instead of thinking I'm crazy and agoraphobic and can't function like a normal human being in social settings. haha. I was convinced it was me this whole time. My brain causing it all.

to say that inappropriate sinus tachycardia has nothing to do with postural orthostatic tachycardia syndrome is just simply and clearly not true. They are both significant diagnoses within the dysautonomia spectrum, and both have to do with chronic tachycardia..

I have IST too ,,, do I need catheter ablation or it will be Cure automatically ?

It's OK to cry. You are facing a hard thing. You will find ways to cope, but feelings are hard, and everyone grieves in their own way. I have a suggestion for the leaving the house thing, have one day a week that different people ,or the same one, that is for you. My neighbor can't drive, so I give him Tuesdays. If he has a doctor appointment or grocery run or anywhere he needs to go, he knows Tuesday I am available for that. We live in a rural area, so no ubers or taxis. It works for us both. I too went on the "I can't find anything wrong with you so you must just be a hypochondriac" doctor tour. Turns out I was sick and live with multiple autoimmune conditions. The doctors don't always know what they're talking about. I wish for you answers, and love. With your teacher degree, you could do online tutoring, or private tutoring.

Do you have a good Dr.? Dr. Saperstein in Phoenix has changed my life. I have POTs, hEDS and MCAS.

I hope you're doing well ❤ It's been a while since your last video, I noticed, so yeah! I hope you're okay 💓 I came across this video and mentioned to my therapist about it. I had been speaking with her about the grieving process that one goes through living with chronic illnesses and then BOOM. This video pops up! It's really rough living with multiple chronic, incurable illnesses. I am so hurt by the grief that I can't even cry. I just dissociate because I get SO depressed thinking about all that I've "lost" and all that I've ever wanted but will never have 😅 I think the most difficult thing for me is having to step away from higher education because I love learning. However, I have come to terms with the fact that distance learning is going to have to be my jam once I'm well enough to go to school again. In the meantime, I am self-taught with many things. Linguistics, Foreign Languages, Sociology, Psychology...those are my favourite things to study so I just...study in bed most days and it does make me happy 😁 I think that a lot of us chronically ill spoonies have a lot of internalised ableism as well that we have to get rid of but that internalised ableism is not because we really believe these things, it's because--like you said--people suck and make us think that we are failures and worthless and meaningless to society because we "don't contribute" lol However, we cannot change the fact that we are chronically ill but others CAN change how they perceive, view and think about us. I used to also be in education as a TESOL instructor and I had to leave my job and stop my continued education because of my illness and I don't think I ever really thought about how negatively this impacted me. I will talk about this in therapy today, I think 😄 Thank you so much for this video. I really feel seen with this and can relate so much but I don't want to make this comment any longer than I already have 😂 Anywho, hope you're thriving as much as you can. I have POTS as well and all we can do with this condition is try our best. And, like you said, when we fall, what matters is that we get back up and keep going ❤

I’m getting a 72 hr EEG on the 4th and I’m very nervous. It’s been 5 yrs of passing out without any definitive reason or even warning. This video has helped to ease my anxiety about it. So thank you ❤

I’m haveing this done right now. Day one right now lol can’t sleep. I’m watching this and it’s midnight. There checking me for epilepsy. Also they have a heart thing on me to. Mine is smaller than yours. It’s attached to a cord. I have cords all over the place. Also there like taped together too keep them from getting tangled. I have seizures everyday. I know they already caught one. I gotta push a button each time I have one. They also have cameras one in the front room 1 in the bedroom. Can’t be off camera very long. They people come here to my apartment to put it on and take it off. If some cord comes loose I got to fix it. My epilepsy is hard to catch. People think I’m ignoring them when I’m not but it’s my epilepsy. My family even said I was faking it. But I know I’m not. 😢 You’re not alone girl. We are not crazy. We know when something is wrong with us

I'm getting my 96 hours done this Friday. So glad I found your video 💕

I would wear button up shirts.❤

On my second day! This is my 5th since I was diagnosed with epilepsy 5 years ago. My other EEG were uncomfortable but this has been the the most uncomfortable and frustrating EEG that I’ve had so far. I also have to do ECG with the EEG and it’s a video EEG so the people that are monitoring me can also hear everything that’s happening here in my room😭🤦🏻‍♀️

I have epilepsy and feel like I just found a friend in you. I just discovered your channel and just subscribed! Thank you! We are chronically courageous ❤️

Thank you for this I have said this to my kids and cried so many times. I can't watch my grandkids anymore. I have fainted in front of my grandson and scared him to death. He called his mom, my daughter, right away thank goodness. Then using a walker just tough. I can't drive anymore either. I totalled My car from having an episode . I have a shower chair too... Just all the things! So many things are different now. 😢 It really has helped me since I have found other people like you! I don't feel so alone. Totally grieving my independence. I am 55 and live with my dad now. I thought I could be a help to him and instead he is helping and taking care of me😢 I just saw videos about service dogs and am going to get one.

Bless you I’m going through something similar but they said I have Vasovagel syncope all the things your saying I can relate in some way I hope things get better for you 🙏🏾

Your video really touched me and you are so damn brave. I love the distraction using make up as when I think about my own past life I crumble. You are showing remarkable strength and I am in such awe of you. For what it is worth, you inspired me to react better to my own limitations. And also f*ck anyone that doesn't hire you because of how you are now. That is on THEM. You are the best of us. Xxx

Great video, thanks! Have you read My Body and Other Crumbling Empires, by Lyndsey Medford? So good! Highly recommend.

You hit my feed today. Didn't feel great for a few years but at 58 had levaquin and things got much worse. People at grocery insisted I use mobility carts. The shower thing,had to cut hair short,had trouble eating,seeing,driving so after 39 years couldn't be a nurse, needed help from reluctant son.housework didn't get done esp in 2020 when very sick twice. Every day is a struggle. Bright spot is rescue dog who is protective and aware of how I feel, makes me eat, sleep,gets out of my way or presses on legs to steady me,lifts me from floor... still won't do house work but.. after being gaslit tried myasthenia med and some days ate better. Hard thing is many think my life should be over at 66. Had a whole different life planned out for this time. Definitely grieving

Thank you for this video! I have ankylosing spondylitis and just got diagnosed with POTS three weeks ago.

I went back to college in 2010, mainly because family members and the guy I was seeing kept making comments about me being a lazy underachiever. I was majoring in nursing, not because I actually wanted to be a nurse, but because I knew the subject matter was challenging, and I was inrellectually capable of mastering the material. In other words, I was trying to prove something. I had some of the best grades in the class, and my adult son was so proud of me. I started fainting again. My heart was pounding nonstop. What I now know were palpitations were diagnosed, once again, as panic/anxiety. I was given twice the therapeutic dose of an SSRI, which only exacerbated my symptoms. I had to withdraw. For the first time ever, my son told me he was disappointed in me. He didn't know why I couldn't just control it. I didn't know why I couldn't control it. My relationship with my son changed that day, and has never recovered. I hardly ever hear from him. That bothers me more than any of the rest of it. I have yet to find a doctor who believes me. I rented a wheelchair yesterday, as I have been collapsing just making a quick trip to the store on foot, I have been bedbound, and the fatigue is like trying to move at the bottom of the ocean. This is the first day in over a year of having a Fitbit that I had zero zone minutes at 11am, and I had even taken my service dog for a walk around the elementary school grounds after the store. I hope that when a doctor sees the difference in my stats between before the chair and after, they will know I'm not making it up or "choosing" to be sick. I get the feeling of being terrified to go to sleep because of the episodes starting in my sleep. I wish you the very best. You were wondering about teachers with disabilities. I love Ms. Chang's channel. She teaches gifted children, and lives with spina bifida. She's a wonderful person and is absolutely hilarious and uplifting. 💜

I’m having a 96 hour eeg and I’m honestly very nervous, I pray I have a loc episode when I’m in the test Also, yes heart monitors suck! I had the zio xt for a week and it was so beyond itchy and awful! I completely understand what you are going through I’m so sorry

Thank you for this

Does anyone else get a very low blood pressure when they're having an episode? I get the lightheadedness, nausea, etc and very low BP during an episode

Thank you for sharing!!! Painfully, I understand how you feel!!!! I have "blackouts" & chronic pain" because of "sleep derviation"!!!! I MUST sleep (8) hours everyday and not allow my body to be tired or fatigued. Thank God I have "auroras" to let me know that I will be having a "blackout"!!! I can still drive and live independently!!! But my family don't understand that I'm a "disabled person"!!! They want the "old" person "before" my disability!!! I have to say "NO" to my family concerning traveling, visiting, shopping, driving and coming home during the Hoildays!!!

You can take Corlanor for IST, it’s helped me with my POTS as well. I have both conditions like you.