Hi Lauren, I've been watching your videos for a long time now. I love your happy optimist spirit. I am the same way. Life is wonderful. I have spasticity on my left side, especially my left leg. I take Baclofen and Flexeril for it. The usual. It helps more than I probably realize. And I've been on Tysabri for over 6 1/2 years. Tysabri has been the biggest contributor to my wellness I think. I sit when I need to, absolutely. I was serving at a school Valentine party just yesterday and I had to sit for a while. Keep well and keep the videos coming.
I have spasticity in my right thigh. The longer I stand or the more I walk the stiffer it gets. The muscles are very tight (like there is a weight wrapped around it). To help relieve it like you, I have to sit. I recently started yoga (found some great RUclips videos for yoga - I'll give you the links if you like) and I feel that it is helping relieve some of the discomfort. Also, I used to take Baclofen to help relieve the stiffeness, but stopped after a few months because it wasn't doing anything for me.
Dear Lauren, I remember when I received my diagnose 8 years ago, how lost I felt. The only thing I knew about MS was that it is not curable. On my journey to find out more about my condition I found your videos. You have this God given Gift to be a motivation and encouragement and a great source. I cant thank you enough. And now, every time I get the chance I tell on all occasions who inspired me. Thank you Lauren for starting this so many years ago. Many greetings from Germany
Woke up early 08' and felt like no balance. Just had received God's Spirit a few months before and decided it must be a test. Finally moved back to my mother's after a couple months. Been near 7yrs now and just started using a walker. Keeps slowly getting worse and not long til' wheel chair I'm afraid. Baclofen didn't seem to help. Just started on Tizidine and it seems to ease the spasms a little. Primary progressive. Still hoping God is testing me and once my Spirit is right I'll get back to normal. I was very active up til' it hit. 47yrs old, rode dirt bike, bricklayer and all other time out in the woods letting my beagles chase rabbits. I never stopped. Believe me I am stopped now.
Lauren Parrott Don't be sorry. I'm in the best spiritual and happier than ever in my life. Life is good. Maybe it's what I needed to learn to appreciate life. Hummm, that could be what God is up to now I think about it. I watched a couple of your vids and am happy to see you are in good spirit.
Hi Lauren. You are like a breath of fresh air, I Love your enthusiasm and zest for Life. I realize that you are experiencing some pain, and still you keep Smiling and being Sweet.I used to take 3 Baclofen a day, but my Neurologist recommended that I only take 2 a day now. I get more Cramps than Spasm's, and both are painful. Please make video's Forever, I could easily watch you 10 hours a day : ) Stay Safe and Happy. Drink a lot of water and stay Hydrated as much as possible.
Hi lauren. How are you feeling? I have a lot of spasticity-basically all parts of my body, and when it gets really bad I know that I'm going to have an exacerbation. I am on the max oral dose of Baclofen, Tizanidine, and Klonopin. I would recommend that you try doing a lot of stretching, keep moving even if you're super tight, and get massages. Don't be afraid to rest. Don't be embarrassed about spasticity.
Hi Lauren, Hope you are doing well. Stumbled upon this and I think it's great that you are sharing these videos. It's so helpful to have someone be positive but also honest about MS symptoms. I have the exact opposite problem with spasticity. I'm usually ok standing but lying down or sitting for over about 1 1/2 hours causes my left leg to go into very painful spasms and then I can't walk without a very noticeable limp. Fortunately heat prevents this from happening so I wrap my leg in heating pads when I sleep and if I have to sit for a long period of time I use icy/hot. I have it written in my work restrictions that I have to be able to stand or walk as needed. I also have to stretch my leg out every 8 hours or so.
thank you for all your videos and your positive outlook - it is quite encouraging! I have SPMS my spasticity manifests like dozens of "charlie horses" and is very painful. Tizanidine helps along with massage mostly in my legs but i also have it in my arms. My arms will do what your legs do in regards to the jerking etc. I wish you the best, i really like your videos please keep them coming - you are a blessing!
Loved your video! I'm diagnosed with PTSD and fibromyalgia but my Dr thinks I have MS, he is sending me for a brain MRI and a spine MRI. My muscles are tight at the top of my legs I can hardly walk, I have so much going on. My cheekbone burns and like a grinding feeling with what feels like something screwing into the side of my head. I've been taken to hospital loads with with feels like someone squeezing my chest.my joints hurt so bad but mostly on my left side, my left eye keeps blurring and like translucent swirls of light.all my fingernails are turning white, my left wrist, elbow and fingers burn.on top I have loads of stomach problems so hopefully now after my MRI's I will get help and I've decided I'm going to start doing videos and also I'm going to start reaching out, and helping all those who are affected with MS and fibromyalgia. Because I know many are being ignored and taking their lives. If I can help just one I will be happy. Keep making your video's awesome!😀x
You are GORGEOUS!!! I am so happy to see your progression and how well you have been doing. This was posted in 2014 and it is 2016 now but I hope you are doing this well now a days as well as here! You are always so vibrant and beautiful no matter what! Love your videos!!!
Lauren Parrott I am so happy to hear you are doing good! Let's hope you just keep getting better and better! A kind and beautiful person like you should never have to go through this but it makes you even more wonderful and beautiful by using this to help other people and share what you are going through step by step. I don't care if this video was years ago, you are so brave and courageous! You should honestly be a model though, I am serious! You are just so pretty!!!
Hi Lauren, last time I posted I was in hospital for extreme spasms in my back and chest, I have recently found a combination of diet and stretching plus meds when needed has helped. For some reason just walking makes it worse for me. It has now spread to my lower back and legs but when it gets very bad I now take norflex for three days give or take and try to rest the affected muscles or it just makes them more angry. But for sure when things are good I'm finding that the diet and stretching is helping increase the time I have between episodes and recovery. I'm back to playing tennis with no fear of spasm, I still fall a lot because of balance but it's good to be out there living as much as I can while it's cold here. Stay strong
Hi, Lauren! I have had a "twitch" in my right elbow for as long as I can remember. I only learned, at my last neuro. appointment, that it is a form of spasticity! The more I think about it, the more I realize that I have these friendly "twitches" all over. LOL I haven't had to do anything about them, that I can cognitively remember. However, I am certain that I do more than just a few things to compensate. If I learn more about or more attention is brought to my personally spasticity, I will certainly pass along anything I learn! It is wonderful to see and hear that you are doing so well. Keep up the good work! Hugs...
+Lauren Parrott quick question. I haven't been diagnosed yet- mostly random , seemingly unrelated symptoms but they've been getting progressively worse over the last 2 wks. bumping into things, tripping and stumbling, pins & needles / limbs falling asleep limbs at odd and curious times. like both hands going numb. it is not the same as when you sit on your foot too long while crossing your legs. it just shows up, and also something else that's started: legs and other joints / limbs twitch/ spasm. when is it ever an emergency? I rec'd a call this morning and now have mri appt but wondering if it's ok to wait or is there any urgency? thanks for your help. last nite, the front sides of my legs went numb. not the backs of legs, just the front. and this morning, I woke up, and as soon as I stood up when getting up from the bed, I vomited. it's sort of coming in waves if I don't concentrate to keep it at bay somewhat. when is it ever an emergency
Hello! i went to ER last night because my left leg was numb, and then my right foot went numb, to the point that it was interfering with my ability to drive safely, so i finally went in. they drew blood and took a urine sample and sent me home. ER doc says "well it sounds like MS, which is a DEVASTATING (really serious voice) disease, but I'm sure you don't have it, but Ive been wrong before... keep your MRI appt (in 8 days) and follow up with Primary care doc. no MRI or any other test. (a few neurological things during exam that I could not do- touching heal of foot to opposing knee and draw downward toward ankle) ... so now I guess i wait.
I came across your video when i was researching muscle spasm relief. I have had them for about a year now. First of all I am the glass is half full type of person and am very grateful I am as well as I am. My last MRI showed NO more lesions! I have been on a low dose of baclofen and i have found it has no effect. I have been to a physical therapist and a chiropractor. Neither helped. I also went on all natural supplements. That was the most effective so far but I had to take a lot of them throughout the day. I have tried many different exercises and do yoga 3 times a week so am not in bad shape and are very flexible so that is great. I just dont know what to do at this point and why they started. There has absoluted got to be a cure! I am hopping that one day i will wake up and they will just be gone! I sure doesnt hurt to think that I figure.
Wow....you are beautiful in so many ways. Your personality and smile are extremely uplifting. Anyway....I have spasticity in both legs. I lay down for a while to lessen the pain. Lots of rest and some stretching is what helps me the most. I wish you best that life has to offer. Good luck.
Hello Lauren, I understand spasticity. In 2011 I found out that I have a rare form of spastic Quadriplegia. I went through different types of stages throughout my time and mostly I stretched or walked or even went into the pool. My spasticity grew so intense that I would have to plan on lasting hours. At the time. The only thing I could do with stretch. Please be careful of falls. Since sometimes this comes unexpectedly. I know Our situations are so different, but I ended up getting Botox treatments every 2 to 3 months. That was the only way that I could, for example bend my arm or fingers. I found this very helpful and I still do it.I am now experiencing extreme specificity in my arms and I hate it. I feel like I was in a skiing accident. Soon as I'm stretched properly. I Bend easily. Stretching really works. For myself, I have tried to fight for people with multiple sclerosis and paralysis because I think people don't try rehab therapy. I would definitely see a rehab therapist and they would be able to give you the best advice :-) Your friend, Christine
Yes Laurn I to deal with spasticity and the weird thing is I had it more before I knew I had MS. My legs had a mind of their own moving when they wanted. I now have really bad stiffness, I feel like I'm stuck in cement trying to move/walk. I take Baclofen for it, it makes me sleepy but it helps. Because of the winter we had here in Detroit I'm sure the summer is gonna be one to remember.....
Hi, I usually don't post but I have many symptoms of MS. Am currently waiting to see the Neurologist in March. I didn't realize exposure to sun could cause so much pain. Right now I'm dealing with spasticity in my right neck, should and back. Very severe pain. I will say that one thing I did notice helps tremendously is giving up gluten; I also don't eat dairy. Before giving up gluten permanently and for most of my life I got Charlie horses on both my legs almost on a daily basis. I also had other spastic symptoms but this stood out to me the most. I will add that I tested myself with gluten after I hadn't eaten it for a while and (don't recall how long it took but I believe it was within hours or at most a day or two) I could feel something running through my body. It felt like a current but it was in my muscles. I soon realized it was my muscles contracting and becoming stiffer throughout my body. Within days I was having spasms, stiffness, and Charlie horses again. The only thing that has caused this severe pain with spasticity again is exposure to the sun; I had no idea. Thanks for listening. I hope this info helps at least one person.
I was just diagnosed with MS, and for a long time I thought I was crazy because of my symptoms... but my experience with spasticity is really bad right now. I woke up the past 2 mornings where I cant move my legs without a charlie horse in both of them, and after I am able to stand it is like my calves are springs and my legs are that of a scarecrow. It makes it very hard and extremely painful to walk... I have tried stretching. My doctor ordered my copaxone but its tied up in pharmaceutical bureaucracy so I am just trying to survive until I can obtain some level of relief....
Hi Lauren, I've had MS since June 1997 and spasticity kicks in once in a while. Tried Baclofen but stopped it quickly as it makes your muscles weaker. Apart from stretching and yoga, do some research on magnesium glycerophosphate oral therapy. Magnesium does wonders on spasticity. Hope you are well. :)
Lauren, Spasticity is my worst symptom. It has caused me to lose muscle tone in my right foot and ankle, to where I can no longer move my foot. In a sense, I'm paralyzed. I started on 10mg of Baclofen about a year ago and have quickly moved up to 90mg. It doesn't seem to help me and only makes me extremely tired. My neurologist suggested Valium with the Baclofen, but that just makes me exhausted and so weak, I can't stand. I either experience a lot of tone or I'm very weak. I had an intrathecal Baclofen trial done last month at the University of Miami for the possible placement of a Baclofen pump, but noticed very little effect to warrant surgery. I'm going to talk to my neurologist this coming Monday to see if he recommends another trial with a high dose, as Medtronics recommends if the first lower dose does not produce great results. My legs and ankles experience so much clonus. Spasticity is taking my ability to walk away. I have the Bioness, but with both legs so spastic, as I call it, I walk like the Tin Man and feel like I could fall with every step. I would love to hear what others are doing to alleviate this symptom.
I used to have severe spasms, especially at night - my legs would shoot straight out in front of me, and I could not stop this symptom; however, I found a lot of relief through daily exercise, using the cross-trainer, weight machines for legs and arms, and most of all STRETCHING. Try to make the latter a daily activity, and your spasticity will lessen or be completely eradicated, the way mine is. Feels great to no longer have this symptom : )
Dear Lauren, I can totally relate to your leg kicking out. I've described it a little bit like the build up of a sneeze, you feel it gently start and then it builds up and up until you sneeze (kick out). Also spasticity, yes yes definitely.. I get this in my back which consequently effect both my legs and my walking etc. Regards Neil.
Thank you Latia Thank You Lauren. I appreciate it but the thing is I feel so helpless so hopeless, every thing that I tried has failed. I keep changing doctor after doctor looking for a miracle but they keep doing the same tests over & over & they give me nothing to make my condition & life better.
Spasti-city is really not my kind of town, Lauren :) When needed I use Baclofen, Tizanidine, different pain medications and of course magnesium. Resting is also important. In my case it is difficult to say whether the spasticity is due to MS or my other back related problems. Well anyway I have some sort of stiffness on daily basis. The movement, even small one is the key. Especially now after being two weeks in location of 100F daytime temperatures one has to balance with activities and resting. Again, it was so wonderful to hear about your flower caring activities and other newa, flower-girl-Lauren :) Take care, J.
Drinking water helps a ton. I have found that if I’m dehydrated, I have terrible spasms. Has anybody just started taking Percocet for the pain? It also knocks out the spasms for me but it is a narcotic.
Hi Lauren; As you know I have had spasticity fairly bad in the past and I used Baclofen to combat it. Now I have stiffness in the mornings but the spasticity is very mild.
For what it's worth, I use tizanidine 2mg. 2 tablets 3 times a day and Gabapentin 400 mg. one capsule 3 times a day. Both of these are for the spasticity in my legs, they seem to help. I use ampyra once a day and that has really helped with my walking. I'd like to use less medication so if anybody's got any ideas I'm all ears. thanks and God bless you
When I get tired while walking I sing these words of a song,the words are (The way or path said; you will stop you will get tired, better stop now. If Yu continue there will be strong wind,there's gonna be a storm 'Better Stop Now.Crazy me said to it 'why don't you come along & we both will go ahead together.oh common now yu common.) & I keep singing until I reach the place I want to go.
Came across your video while researching my own self diagnosis. I only suspect that I have MS because of very intense and painful muscle cramps in my lower legs and feet mostly, but in the arms, hands, obliques and lower abdomen. I'm 60 now and these onset in my early 30s with periods of acute numbness in the hands and feet. Over the years I've tried many different foods and supplements to help lessen the really bad cramps. My doctor suggested magnesium and vitamin d2. It did seem to help a little. I found that chewable magnesium supplements are more effective than pills. You can get them at Target. It helps to take them with calcium citrate. I usually chew up a couple of calcium enriched Tums with the magnesium. And I mean 4 to 6 magnesium tablets. I still get cramps but they seem more easy to get rid of. About a year ago I discovered during a particularly bad six or seven week cramping cycle that a teaspoon of table salt in a half glass of water helped during an actual cramp attack within about 15 minutes. That was after I had taken the magnesium and calcium. Bad cramps sometimes last longer and reoccur dozens of times usually, particularly when laying prone in bed and sleeping. But the saltwater seemed to lessen the frequency and severity of the cramps for the rest of the night. So the salt helped but I remembered that magnesium, sodium and calcium are all things needed for nerve cells to function properly. Potassium too but blood tests show that I am normal range in all of them. So I realized that I was only treating the symptoms of nerve cells not insulated by myelin. Oh, I was also taking normal doses of aspirin with the magnum and calciu. at bedtime, thinking the aspirin could help the inflammation of the nerve cells. While researching supplements to reduce inflammation I heard from a doctor on RUclips that garlic and dark green leafy vegetables like kale include ingredients that could help reduce inflammation of myelin cells and allow them to heal somewhat. I put about 2 tblspns of crushed garlic in my 5 egg breakfast omelet everyday for three weeks. It was a trial and I stopped. After the third week I went into a remission, or a low cramping period. After a couple of weeks without garlic a cramping period started again. They usually start with minor finger, hand, upper leg and abdomen cramps during waking hours. That's how I know a cramp cycle is beginning. That was this past Monday. I started putting garlic into my breakfast again and now its Friday and my night cramps are very easy to control. They still wake me up but are so minor that simply standing up to stretch the leg and foot muscles, or turning my torso in a certain way helps them to go away. So I think garlic might be helping. Like you I can also tell when they are about to happen. (If I'm awake.) The target muscle will feel a little twitch, or a small portion of its strings will cramp just a second or two before the entire muscle cramps. If it's in my leg I can sometimes shoot my leg outward quickly to avoid the cramp. Of course the inflammation is still present and so it will continuously attempt to cramp until the inflammation or the bad chemicals produced by the information is moved away from the area. A brisk walk excersize for about 10 to 30 minutes will help to reduce the inflammation and the muscle will settle. Of course being sedentary during sleep causes the inflammation to erupt again and those nights are horrible. During bad cycles that can last for months I can lose a lot of sleep. Even with the sleep tranquilizers I take. But they certainly help. Another strange thing is my legs produce a lot of histamines. I assume it's from the inflammation of the nerve cells within. On most days I can dry scrub the skin on my legs with a bath brush and get plumes of histamines for like 15 straight minutes in the same affected area. The garlic (already crushed garlic, you can usually get it in plastic tubs in your grocers produce dept) is a new remedy for me and I hope it will help with the histamine production. I dont know if this will help you or not. I'm not sure if I have sclerosis in my central nervous system or if it is more localized nerve damage. So we may not have the same problems.
'spasticity' is a tough symptom,for me my right lower limb usually gets spastic from time time, [it's especially irritating in a crowded place ] anyway i suggest physical therapy, and hopefully that will help because the most common medication in this case are muscle relaxants such as Tizanidine (Zanaflex®) and there are some others but i do not recommend it unless it becomes unbearable as it has it's own set of side effects (consult with your neurologist ). keep up the good work!!
I was recently diagnosed with MS and I've struggled with this for awhile. Mostly when I sleep. I wake up feeling like I have a charlie horse or something similar... that's the whole reason I ended up at the doctor in the first place! My fiance couldn't handle the constant 'kicking' feeling waking him up, so he encouraged me to go. Honestly, though, I'm incredibly stubborn and (having come from a very athletic background), I sometimes ignore my symptoms and try to push myself to not react to them (i.e., I just ignore them). Guess I just have a learning curve to get through! Good to know I'm not alone though :)
Hi Lauren, mine is worst first thing in the morning. I found a low dose of amitriptyline helps as it works as a bit of a muscle relaxant. I know how you feel about the sitting thing and will just plonk myself down anywhere! my extremities are most badly effected and also my neck can be very painful and stiff I sit up without any support for too long but that might just be me!
Hi Lauren, I recently started experiencing spasticity in my right side, from my hand down my leg to my foot, it only last for a few seconds, I can't move, but after it finishes, I feel weak.
I get spasticity during elongated rest. This combined with my rheumatoid arthritis causes excruciating pain. My legs bend and writhing into positions they are not supposed to go into. Don’t know where to go for help - my neurologist and rheumatologist are both scratching their heads.
hi Laren hope all ia well😊. My nane Stacey I was diagnosed june 2014 and I do a few things to help is ecercise, walking and leg weights. I know living in the midwest make it difficult to go out in the winter living here in Chicago. In the summer I avoid sugary drinks and alcohol, if it's extremely hot I go out in the morning for a walk then stay in for the rest of the day. Managing MS is diffucult do what is best for you when dealing with your symptoms beleive me I'm still learning, take care GOD BLESS😃
Hi laure! To marrow I see my awesome neurologist ( I love her!) she offered Baclofen to me before...so I know she'll offer it again! My spasticity is sooo bad!! What do you take? =o)
I was diagnosed last year and I have spasticity, my left side is tight and numb and for work I drive a lot when the sun hits my left side. It gets way worse but nothing seems to help. Any help would be great
Try to stretch my leg before I know I have to go out but really I won’t go out. I always have to think of the amount of walking, steps are their benches close by. Treadmill is my best walking because I can hold on. My dream vacation to CA is on hold for what feels like forever till there is a cure and I am back to normal. 😟wishful thinking, if not my lifetime I pray for the next.
Lauren, have you thought about receiving occupational therapy services? They can help you out with your legs spasticity. Let me know if you have ever received occupational therapy and if it helped? Thank you for the awesome video.
I am an occupational therapy student and wanted to see how I could help you? Are you on Facebook? On Facebook I am Raul Partida from Elgin, Illinois. My alma mater is Northern Illinois University. Your health insurance will most likely cover occupational therapy services Lauren. P.S. Keep me informed and good luck Lauren.
For me dealing with MS two years still considered very early but my god I already gone thru the most ugliest things about Ms from hot wheater to cold wheater end up on the hospital with a dislocated elbow because I fell my passion and likes are cars and my favorite is a 6 speed vw gold gti that I'm a point it's a bit hard to drive because my spasticity I don't even have the desire anymore to get my drive license renewed since I'll need not only the written test but the driven test as well so yeah it sucks on a good day people will see me walking with my walker on a bad day on my wheelchair my cane days are practically gone so I ended up with a collection of canes in my closet
I have severe spasticity in my upper and lower body due to a cervical spinal cord injury. I have a incomplete injury and am not paralyzed but I could not walk more than a few steps most days because of spastic muscles. I would also wake up in the middle of the night with my arms bent and unable to straighten them. I had a baclofen pump placed and it got me walking again. I still struggle but it is much better. I have terrible pain when my disease is bad.
sam here. I also suffer from spinal cord injury and a neck that is unstable and considered to be fractured. I cant have surgery to fix it but i have spasticity from it. I also used baclofen but use it in pil from. It does help!
Yes I have a form of spasticity, At times my leg acts like it's playing a big bass drum and just going nuts like it's trying to out play the band, The meds the doctor's put me on do not seem to do anything at all, Had I been there at the stadium when that ignorant woman said "where was your sign" I would have asked her where the vacancy sign was that should have been stapled to her forehead cos her mind was evidently not there.. I tried to post a few weeks ago but RUclips + Windows 7 + IE seem to have issues and conflicts...
¡Many times people around do it harder for us! to me, many times people went agresive against me for moving and walking strange when spasticity is more notorious
A little update, was in with my Dr Wednesday he's sending me for an MRI of the brain, and spine. Well got a call from the DR's Friday morning saying my bloods were back. My bad cholesterol is high so is my white blood cell count, but my vitamin d is seriously low!! And Dr has said low vitamin d is linked to a relapse of MS. So on the right track.😊 he has put me on HuxD3 20,000 IU colecalciferol for two weeks, then another medication for 6 months.😊
I have that. I am going through what they call the MS Hug and it is bad. I have had it for 6 days now. I am stiff all the time. It really hurt all the time. I try and put my mind away from the pain. I have not been on any medications in a long time and now my relapses are so bad that I am going to start looking for a good MS specialist.
+Lauren Parrott I have had this for years now about ten years and it just keeps getting worse so I need to try and get things together before I become disabled
I have spasticity; however, mine is most prominent in my neck, shoulders, and arms. Instead of having involuntary movements, I have extremely painful stiffness. In fact, this stiffness does not go away no matter what meds my doc prescribes. Basically, I had severe pain in my neck and shoulders for literally years. This has been an issue since I'm in Arizona and the heat makes it worse. I will say this: I have had pretty much all the meds for spasticity that they have out there and NONE of them worked for me. But, I am in Arizona....very lucky for me. I have found that a medicine dropper full of a tincture made from medical marijuana relieves the pain and loosens my muscles. I do use it because the THC in the tincture has been de-activated so I do not feel "high" or "buzzed", I simply get the relief that I need. I am thrilled about the tinctures b/c, in my opinion, smoking medical marijuana simply gives me the symptoms of an MS relapse that I do not like. (e.g., dizziness)...so, I'll stick to the tinctures. Understand though, that heat can bring the spasticity back which would require another hot drink with the drops. I belong to an MS group and see people who have been in constant pain from spasticity for many years and it is unfathomable to me that this relief has been withheld from them for all these years. I urge you to take up the cause of medical marijuana for your state even if you, yourself do not feel you need it. There are thousands in your state who do need it very much. Constant pain for 15 or 20 years is a huge burden to bear. Good luck....I am still learning about this illness as my dx is only 4 years old but I am happy to share whatever I've learned with anyone who needs it.
Marian - I've been experiencing extreme spasticity in my hands for the past 6 weeks and they just keep getting worse. I'll have to look into what you're taking as it's just so frustrating not having the use of my hands.
I BEAUTI THE SAME HAPENDS TO ME TOO, BUT YOU'RE BRAVE AND YOU'RE HAVING A GREAT TIME IN APRIL, I TAKE BACLOFEN AND THAT HELPS A BIT BUT BETTER THAN NOTHING AND "GOD" HELP I'M OK,TAKE CARE SWEET SMILE
I really love your smile, don't care what people think if I wasn't this old or sick I would love reach out to you and ask you if you want to get marry oops!!! got go loo!!!
I'm 16 years old and I was diagnosed with MS , at the beginning It was difficult for me to accept it cause I'm too young for it , I think the most weird thing about it was spasticity it was so hard for me to explain what spasticity feels like , and no matter what I tried they just don't understand
Wissel Tahir'' sister try Vitamine D 5000 iu Daily, Omega 3 fish oil, B complex , Biotin, spirulina. They Might help. Most imp stay active. Don't tell GOD ' My problems are great' instead tell your problems ' My GOD Is greater' .
I have spasticity in my legs and lower back, I have to sit down and then the spasms in my back start. I'm going to talk to my docter about baclofen or zanoflex.
I get it in my butt muscles often and have to turn on my side because sitting on those muscles aggravates it. Also I have another type in my legs that causes them to jerk when I lift one of my legs off the ground. I'm currently on Tizanidine.
+Lauren Parrott It does except sometimes it doesn't work for the full 8 hours, so if it's wearing off after 5 or 6 hours and then I have to sit up in my wheelchair to go to a doctor's appointment I can still feel pretty miserable until I can take another dose.
I have spasticity, especially in the mornings when I first get up, Both of my whole legs stiffen up. I usually have to hold on to my walker and go up on my toes, then it goes away. Something like a Charlie horse. Also when I have been sitting for a long time. I have tried Baclofen, but doesn't seem to help., and it can make you weaker.
I just found your videos tonight. Thank you so much for your videos... I use Baclofen three times a day. I can really tell if i miss a dose. It really gets bad if I miss a dose.
My favorite word!!. Spasticity stiffness) the relax more in the summer for me. Now is at there worst tymes cause this cold weather. Stiffness in both sides, right side worst then left by far. But there both buldged severe south in your trousers I had 3000 mgs solumedrol for three days now I'm taking prednisone 2 week taper. Didn't wanna go this route but your dammed if you do and your damn if you don't: gotta do what you gotta do, you know. But I try everythyng mediation pills praying to GOD SAYING POSITIVE ITS BEEN LYKE THIS FOR TEN YEARS. The winter kills me. But we get by I wish you the best of love wyth your MS. I have a few videos. Others have been at war for years and some just starting the battle I love you god br wyth you. -MULTIPLE SCLEROSIS MAN SNEEDERFACE JOHNSON
Its one of my biggest issues:( I take Baclofen and sometimes Zanaflex too because I am at the maximum dose of Baclofen for the last ten years. Yoga and stretching . You should be able to get a free yoga for ms dvd at www.msactivesource.com/ It's Biogen's website, the maker of Tysabri and Tecfidera. I can not recommend yoga enough. Also check NMSS for a local class for MS yoga. I'm starting one in a few weeks for 15.00 a month once a week.
Hi every one,just wanna say ' My Life Is Over' every thing I believed in, every thing is gone.Activity in my life is on a stand still. It's been 2 months now I use a walker for walking. Lost my confidence to walk unsupported. Exercise is finished. Just waiting for death here.
Hi Lauren, I've been watching your videos for a long time now. I love your happy optimist spirit. I am the same way. Life is wonderful. I have spasticity on my left side, especially my left leg. I take Baclofen and Flexeril for it. The usual. It helps more than I probably realize. And I've been on Tysabri for over 6 1/2 years. Tysabri has been the biggest contributor to my wellness I think. I sit when I need to, absolutely. I was serving at a school Valentine party just yesterday and I had to sit for a while. Keep well and keep the videos coming.
I have spasticity in my right thigh. The longer I stand or the more I walk the stiffer it gets. The muscles are very tight (like there is a weight wrapped around it). To help relieve it like you, I have to sit. I recently started yoga (found some great RUclips videos for yoga - I'll give you the links if you like) and I feel that it is helping relieve some of the discomfort. Also, I used to take Baclofen to help relieve the stiffeness, but stopped after a few months because it wasn't doing anything for me.
Dear Lauren, I remember when I received my diagnose 8 years ago, how lost I felt. The only thing I knew about MS was that it is not curable. On my journey to find out more about my condition I found your videos. You have this God given Gift to be a motivation and encouragement and a great source. I cant thank you enough. And now, every time I get the chance I tell on all occasions who inspired me. Thank you Lauren for starting this so many years ago. Many greetings from Germany
Woke up early 08' and felt like no balance. Just had received God's Spirit a few months before and decided it must be a test. Finally moved back to my mother's after a couple months. Been near 7yrs now and just started using a walker. Keeps slowly getting worse and not long til' wheel chair I'm afraid. Baclofen didn't seem to help. Just started on Tizidine and it seems to ease the spasms a little. Primary progressive. Still hoping God is testing me and once my Spirit is right I'll get back to normal. I was very active up til' it hit. 47yrs old, rode dirt bike, bricklayer and all other time out in the woods letting my beagles chase rabbits. I never stopped. Believe me I am stopped now.
Lauren Parrott Don't be sorry. I'm in the best spiritual and happier than ever in my life. Life is good. Maybe it's what I needed to learn to appreciate life. Hummm, that could be what God is up to now I think about it.
I watched a couple of your vids and am happy to see you are in good spirit.
You asked if I'm in a support group. I think I am now, yours. If you don't mind that is?
Hi Lauren. You are like a breath of fresh air, I Love your enthusiasm and zest for Life.
I realize that you are experiencing some pain, and still you keep Smiling and being
Sweet.I used to take 3 Baclofen a day, but my Neurologist recommended that I
only take 2 a day now. I get more Cramps than Spasm's, and both are painful.
Please make video's Forever, I could easily watch you 10 hours a day : ) Stay
Safe and Happy. Drink a lot of water and stay Hydrated as much as possible.
Hi lauren. How are you feeling? I have a lot of spasticity-basically all parts of my body, and when it gets really bad I know that I'm going to have an exacerbation. I am on the max oral dose of Baclofen, Tizanidine, and Klonopin. I would recommend that you try doing a lot of stretching, keep moving even if you're super tight, and get massages. Don't be afraid to rest. Don't be embarrassed about spasticity.
Hi Lauren,
Hope you are doing well. Stumbled upon this and I think it's great that you are sharing these videos. It's so helpful to have someone be positive but also honest about MS symptoms. I have the exact opposite problem with spasticity. I'm usually ok standing but lying down or sitting for over about 1 1/2 hours causes my left leg to go into very painful spasms and then I can't walk without a very noticeable limp. Fortunately heat prevents this from happening so I wrap my leg in heating pads when I sleep and if I have to sit for a long period of time I use icy/hot. I have it written in my work restrictions that I have to be able to stand or walk as needed. I also have to stretch my leg out every 8 hours or so.
Donna Sexton A
Hi Lauren, just a hint :: taking some magnesium tablets might decrease the spasms, and give you less fatigue.
thank you for all your videos and your positive outlook - it is quite encouraging! I have SPMS my spasticity manifests like dozens of "charlie horses" and is very painful. Tizanidine helps along with massage mostly in my legs but i also have it in my arms. My arms will do what your legs do in regards to the jerking etc. I wish you the best, i really like your videos please keep them coming - you are a blessing!
Loved your video! I'm diagnosed with PTSD and fibromyalgia but my Dr thinks I have MS, he is sending me for a brain MRI and a spine MRI. My muscles are tight at the top of my legs I can hardly walk, I have so much going on. My cheekbone burns and like a grinding feeling with what feels like something screwing into the side of my head. I've been taken to hospital loads with with feels like someone squeezing my chest.my joints hurt so bad but mostly on my left side, my left eye keeps blurring and like translucent swirls of light.all my fingernails are turning white, my left wrist, elbow and fingers burn.on top I have loads of stomach problems so hopefully now after my MRI's I will get help and I've decided I'm going to start doing videos and also I'm going to start reaching out, and helping all those who are affected with MS and fibromyalgia. Because I know many are being ignored and taking their lives. If I can help just one I will be happy. Keep making your video's awesome!😀x
You are GORGEOUS!!! I am so happy to see your progression and how well you have been doing. This was posted in 2014 and it is 2016 now but I hope you are doing this well now a days as well as here! You are always so vibrant and beautiful no matter what! Love your videos!!!
Lauren Parrott I am so happy to hear you are doing good! Let's hope you just keep getting better and better! A kind and beautiful person like you should never have to go through this but it makes you even more wonderful and beautiful by using this to help other people and share what you are going through step by step. I don't care if this video was years ago, you are so brave and courageous! You should honestly be a model though, I am serious! You are just so pretty!!!
I can never tell that they're coming. It happens in my right leg when I'm relaxed and going to sleep. It wakes me up.
Just wanted to add Lauren Parrott you have a beautiful personality, you remind me of my daughter. God bless you.
Hi Lauren, last time I posted I was in hospital for extreme spasms in my back and chest, I have recently found a combination of diet and stretching plus meds when needed has helped. For some reason just walking makes it worse for me.
It has now spread to my lower back and legs but when it gets very bad I now take norflex for three days give or take and try to rest the affected muscles or it just makes them more angry.
But for sure when things are good I'm finding that the diet and stretching is helping increase the time I have between episodes and recovery.
I'm back to playing tennis with no fear of spasm, I still fall a lot because of balance but it's good to be out there living as much as I can while it's cold here.
Stay strong
Hi, Lauren!
I have had a "twitch" in my right elbow for as long as I can remember. I only learned, at my last neuro. appointment, that it is a form of spasticity! The more I think about it, the more I realize that I have these friendly "twitches" all over. LOL I haven't had to do anything about them, that I can cognitively remember. However, I am certain that I do more than just a few things to compensate.
If I learn more about or more attention is brought to my personally spasticity, I will certainly pass along anything I learn!
It is wonderful to see and hear that you are doing so well. Keep up the good work!
Hugs...
feeling it coming and then seeing the resulting limb jump spontaneously. wow. I've never heard it described exactly the way I feel it. thank you.
+Lauren Parrott quick question. I haven't been diagnosed yet- mostly random , seemingly unrelated symptoms but they've been getting progressively worse over the last 2 wks. bumping into things, tripping and stumbling, pins & needles / limbs falling asleep limbs at odd and curious times. like both hands going numb. it is not the same as when you sit on your foot too long while crossing your legs. it just shows up, and also something else that's started: legs and other joints / limbs twitch/ spasm. when is it ever an emergency? I rec'd a call this morning and now have mri appt but wondering if it's ok to wait or is there any urgency? thanks for your help.
last nite, the front sides of my legs went numb. not the backs of legs, just the front. and this morning, I woke up, and as soon as I stood up when getting up from the bed, I vomited. it's sort of coming in waves if I don't concentrate to keep it at bay somewhat. when is it ever an emergency
Hello! i went to ER last night because my left leg was numb, and then my right foot went numb, to the point that it was interfering with my ability to drive safely, so i finally went in. they drew blood and took a urine sample and sent me home. ER doc says "well it sounds like MS, which is a DEVASTATING (really serious voice) disease, but I'm sure you don't have it, but Ive been wrong before... keep your MRI appt (in 8 days) and follow up with Primary care doc. no MRI or any other test. (a few neurological things during exam that I could not do- touching heal of foot to opposing knee and draw downward toward ankle) ... so now I guess i wait.
I came across your video when i was researching muscle spasm relief. I have had them for about a year now.
First of all I am the glass is half full type of person and am very grateful I am as well as I am. My last MRI showed NO more lesions!
I have been on a low dose of baclofen and i have found it has no effect. I have been to a physical therapist and a chiropractor. Neither helped. I also went on all natural supplements. That was the most effective so far but I had to take a lot of them throughout the day. I have tried many different exercises and do yoga 3 times a week so am not in bad shape and are very flexible so that is great.
I just dont know what to do at this point and why they started. There has absoluted got to be a cure! I am hopping that one day i will wake up and they will just be gone! I sure doesnt hurt to think that I figure.
Wow....you are beautiful in so many ways. Your personality and smile are extremely uplifting. Anyway....I have spasticity in both legs. I lay down for a while to lessen the pain. Lots of rest and some stretching is what helps me the most. I wish you best that life has to offer. Good luck.
Hello Lauren, I understand spasticity. In 2011 I found out that I have a rare form of spastic Quadriplegia. I went through different types of stages throughout my time and mostly I stretched or walked or even went into the pool. My spasticity grew so intense that I would have to plan on lasting hours. At the time. The only thing I could do with stretch. Please be careful of falls. Since sometimes this comes unexpectedly.
I know Our situations are so different, but I ended up getting Botox treatments every 2 to 3 months. That was the only way that I could, for example bend my arm or fingers. I found this very helpful and I still do it.I am now experiencing extreme specificity in my arms and I hate it. I feel like I was in a skiing accident. Soon as I'm stretched properly. I Bend easily. Stretching really works.
For myself, I have tried to fight for people with multiple sclerosis and paralysis because I think people don't try rehab therapy. I would definitely see a rehab therapist and they would be able to give you the best advice :-)
Your friend, Christine
Yes Laurn I to deal with spasticity and the weird thing is I had it more before I knew I had MS. My legs had a mind of their own moving when they wanted. I now have really bad stiffness, I feel like I'm stuck in cement trying to move/walk. I take Baclofen for it, it makes me sleepy but it helps. Because of the winter we had here in Detroit I'm sure the summer is gonna be one to remember.....
Hi,
I usually don't post but I have many symptoms of MS. Am currently waiting to see the Neurologist in March. I didn't realize exposure to sun could cause so much pain. Right now I'm dealing with spasticity in my right neck, should and back. Very severe pain. I will say that one thing I did notice helps tremendously is giving up gluten; I also don't eat dairy. Before giving up gluten permanently and for most of my life I got Charlie horses on both my legs almost on a daily basis. I also had other spastic symptoms but this stood out to me the most. I will add that I tested myself with gluten after I hadn't eaten it for a while and (don't recall how long it took but I believe it was within hours or at most a day or two) I could feel something running through my body. It felt like a current but it was in my muscles. I soon realized it was my muscles contracting and becoming stiffer throughout my body. Within days I was having spasms, stiffness, and Charlie horses again. The only thing that has caused this severe pain with spasticity again is exposure to the sun; I had no idea. Thanks for listening. I hope this info helps at least one person.
I rarely have spasticity when I do I try to stretch my muscles, it helps.
I was just diagnosed with MS, and for a long time I thought I was crazy because of my symptoms... but my experience with spasticity is really bad right now. I woke up the past 2 mornings where I cant move my legs without a charlie horse in both of them, and after I am able to stand it is like my calves are springs and my legs are that of a scarecrow. It makes it very hard and extremely painful to walk... I have tried stretching. My doctor ordered my copaxone but its tied up in pharmaceutical bureaucracy so I am just trying to survive until I can obtain some level of relief....
fragnugget it's the worst in the mornings.. for the first two three hours. 4 me
How are you Lauren? My friend's 20 year old daughter was just diagnosed with MS. Trying to figure out how to help.
Hi Lauren, I've had MS since June 1997 and spasticity kicks in once in a while. Tried Baclofen but stopped it quickly as it makes your muscles weaker. Apart from stretching and yoga, do some research on magnesium glycerophosphate oral therapy. Magnesium does wonders on spasticity. Hope you are well. :)
Hi. Which type of ms do you have? You may have told us that but I havent watched them all.
Lauren,
Spasticity is my worst symptom. It has caused me to lose muscle tone in my right foot and ankle, to where I can no longer move my foot. In a sense, I'm paralyzed. I started on 10mg of Baclofen about a year ago and have quickly moved up to 90mg. It doesn't seem to help me and only makes me extremely tired. My neurologist suggested Valium with the Baclofen, but that just makes me exhausted and so weak, I can't stand. I either experience a lot of tone or I'm very weak. I had an intrathecal Baclofen trial done last month at the University of Miami for the possible placement of a Baclofen pump, but noticed very little effect to warrant surgery. I'm going to talk to my neurologist this coming Monday to see if he recommends another trial with a high dose, as Medtronics recommends if the first lower dose does not produce great results. My legs and ankles experience so much clonus. Spasticity is taking my ability to walk away. I have the Bioness, but with both legs so spastic, as I call it, I walk like the Tin Man and feel like I could fall with every step. I would love to hear what others are doing to alleviate this symptom.
I used to have severe spasms, especially at night - my legs would shoot straight out in front of me, and I could not stop this symptom; however, I found a lot of relief through daily exercise, using the cross-trainer, weight machines for legs and arms, and most of all STRETCHING. Try to make the latter a daily activity, and your spasticity will lessen or be completely eradicated, the way mine is. Feels great to no longer have this symptom : )
Hi Lauren, I've had MS for so long, 29 years this August, that I feel I am an expert on this illness! Really wish I wasn't though.Lauren Parrott
Dear Lauren, I can totally relate to your leg kicking out. I've described it a little bit like the build up of a sneeze, you feel it gently start and then it builds up and up until you sneeze (kick out). Also spasticity, yes yes definitely.. I get this in my back which consequently effect both my legs and my walking etc. Regards Neil.
Thank you Latia Thank You Lauren. I appreciate it but the thing is I feel so helpless so hopeless, every thing that I tried has failed. I keep changing doctor after doctor looking for a miracle but they keep doing the same tests over & over & they give me nothing to make my condition & life better.
Spasti-city is really not my kind of town, Lauren :)
When needed I use Baclofen, Tizanidine, different pain medications and of course magnesium. Resting is also important. In my case it is difficult to say whether the spasticity is due to MS or my other back related problems. Well anyway I have some sort of stiffness on daily basis. The movement, even small one is the key. Especially now after being two weeks in location of 100F daytime temperatures one has to balance with activities and resting.
Again, it was so wonderful to hear about your flower caring activities and other newa, flower-girl-Lauren :) Take care, J.
Drinking water helps a ton. I have found that if I’m dehydrated, I have terrible spasms. Has anybody just started taking Percocet for the pain? It also knocks out the spasms for me but it is a narcotic.
Hi Lauren; As you know I have had spasticity fairly bad in the past and I used Baclofen to combat it. Now I have stiffness in the mornings but the spasticity is very mild.
For what it's worth, I use tizanidine 2mg. 2 tablets 3 times a day and Gabapentin 400 mg. one capsule 3 times a day. Both of these are for the spasticity in my legs, they seem to help. I use ampyra once a day and that has really helped with my walking. I'd like to use less medication so if anybody's got any ideas I'm all ears. thanks and God bless you
When I get tired while walking I sing these words of a song,the words are (The way or path said; you will stop you will get tired, better stop now. If Yu continue there will be strong wind,there's gonna be a storm 'Better Stop Now.Crazy me said to it 'why don't you come along & we both will go ahead together.oh common now yu common.) & I keep singing until I reach the place I want to go.
Came across your video while researching my own self diagnosis. I only suspect that I have MS because of very intense and painful muscle cramps in my lower legs and feet mostly, but in the arms, hands, obliques and lower abdomen. I'm 60 now and these onset in my early 30s with periods of acute numbness in the hands and feet. Over the years I've tried many different foods and supplements to help lessen the really bad cramps. My doctor suggested magnesium and vitamin d2. It did seem to help a little. I found that chewable magnesium supplements are more effective than pills. You can get them at Target. It helps to take them with calcium citrate. I usually chew up a couple of calcium enriched Tums with the magnesium. And I mean 4 to 6 magnesium tablets. I still get cramps but they seem more easy to get rid of. About a year ago I discovered during a particularly bad six or seven week cramping cycle that a teaspoon of table salt in a half glass of water helped during an actual cramp attack within about 15 minutes. That was after I had taken the magnesium and calcium. Bad cramps sometimes last longer and reoccur dozens of times usually, particularly when laying prone in bed and sleeping. But the saltwater seemed to lessen the frequency and severity of the cramps for the rest of the night. So the salt helped but I remembered that magnesium, sodium and calcium are all things needed for nerve cells to function properly. Potassium too but blood tests show that I am normal range in all of them. So I realized that I was only treating the symptoms of nerve cells not insulated by myelin. Oh, I was also taking normal doses of aspirin with the magnum and calciu. at bedtime, thinking the aspirin could help the inflammation of the nerve cells. While researching supplements to reduce inflammation I heard from a doctor on RUclips that garlic and dark green leafy vegetables like kale include ingredients that could help reduce inflammation of myelin cells and allow them to heal somewhat. I put about 2 tblspns of crushed garlic in my 5 egg breakfast omelet everyday for three weeks. It was a trial and I stopped. After the third week I went into a remission, or a low cramping period. After a couple of weeks without garlic a cramping period started again. They usually start with minor finger, hand, upper leg and abdomen cramps during waking hours. That's how I know a cramp cycle is beginning. That was this past Monday. I started putting garlic into my breakfast again and now its Friday and my night cramps are very easy to control. They still wake me up but are so minor that simply standing up to stretch the leg and foot muscles, or turning my torso in a certain way helps them to go away. So I think garlic might be helping. Like you I can also tell when they are about to happen. (If I'm awake.) The target muscle will feel a little twitch, or a small portion of its strings will cramp just a second or two before the entire muscle cramps. If it's in my leg I can sometimes shoot my leg outward quickly to avoid the cramp. Of course the inflammation is still present and so it will continuously attempt to cramp until the inflammation or the bad chemicals produced by the information is moved away from the area. A brisk walk excersize for about 10 to 30 minutes will help to reduce the inflammation and the muscle will settle. Of course being sedentary during sleep causes the inflammation to erupt again and those nights are horrible. During bad cycles that can last for months I can lose a lot of sleep. Even with the sleep tranquilizers I take. But they certainly help. Another strange thing is my legs produce a lot of histamines. I assume it's from the inflammation of the nerve cells within. On most days I can dry scrub the skin on my legs with a bath brush and get plumes of histamines for like 15 straight minutes in the same affected area. The garlic (already crushed garlic, you can usually get it in plastic tubs in your grocers produce dept) is a new remedy for me and I hope it will help with the histamine production. I dont know if this will help you or not. I'm not sure if I have sclerosis in my central nervous system or if it is more localized nerve damage. So we may not have the same problems.
it's actually caused me to lose my foot from the gas pedal. guess I need to be especially careful.
'spasticity' is a tough symptom,for me my right lower limb usually gets spastic from time time, [it's especially irritating in a crowded place ] anyway i suggest physical therapy, and hopefully that will help because the most common medication in this case are muscle relaxants such as Tizanidine (Zanaflex®) and there are some others but i do not recommend it unless it becomes unbearable as it has it's own set of side effects (consult with your neurologist ).
keep up the good work!!
I was recently diagnosed with MS and I've struggled with this for awhile. Mostly when I sleep. I wake up feeling like I have a charlie horse or something similar... that's the whole reason I ended up at the doctor in the first place! My fiance couldn't handle the constant 'kicking' feeling waking him up, so he encouraged me to go. Honestly, though, I'm incredibly stubborn and (having come from a very athletic background), I sometimes ignore my symptoms and try to push myself to not react to them (i.e., I just ignore them). Guess I just have a learning curve to get through! Good to know I'm not alone though :)
Oh my God. it says
ocrerzulimab might come in market in 2016. Thankyou so much Lauren you gave me a hope to live again.
Hi Lauren, I miss seeing updates on your videos, was just wondering how are you?
Hi Lauren, mine is worst first thing in the morning. I found a low dose of amitriptyline helps as it works as a bit of a muscle relaxant. I know how you feel about the sitting thing and will just plonk myself down anywhere! my extremities are most badly effected and also my neck can be very painful and stiff I sit up without any support for too long but that might just be me!
unfortunately I gained 2 stone on the amitriptyline which is not good for the self esteem!
Hi Lauren, I recently started experiencing spasticity in my right side, from my hand down my leg to my foot, it only last for a few seconds, I can't move, but after it finishes, I feel weak.
I get spasticity during elongated rest. This combined with my rheumatoid arthritis causes excruciating pain. My legs bend and writhing into positions they are not supposed to go into. Don’t know where to go for help - my neurologist and rheumatologist are both scratching their heads.
hi Laren hope all ia well😊. My nane Stacey I was diagnosed june 2014 and I do a few things to help is ecercise, walking and leg weights. I know living in the midwest make it difficult to go out in the winter living here in Chicago. In the summer I avoid sugary drinks and alcohol, if it's extremely hot I go out in the morning for a walk then stay in for the rest of the day. Managing MS is diffucult do what is best for you when dealing with your symptoms beleive me I'm still learning, take care GOD BLESS😃
Thank you I'm coping with it. I pray you are doing well too.😀
Hi laure! To marrow I see my awesome neurologist ( I love her!) she offered Baclofen to me before...so I know she'll offer it again! My spasticity is sooo bad!! What do you take? =o)
Lauren Parrott I do not take Baclofen and I decided not to after talking to my Neuro and I read all the side effects!
Temperature affects me too, I am better when I am cool.
I was diagnosed last year and I have spasticity, my left side is tight and numb and for work I drive a lot when the sun hits my left side. It gets way worse but nothing seems to help. Any help would be great
I get it in my legs, hands, and all crazy different places. I take baclofen also. Thanks again Lauren
Try to stretch my leg before I know I have to go out but really I won’t go out. I always have to think of the amount of walking, steps are their benches close by. Treadmill is my best walking because I can hold on. My dream vacation to CA is on hold for what feels like forever till there is a cure and I am back to normal. 😟wishful thinking, if not my lifetime I pray for the next.
I don't suffer from Spasticity but I hope things get better for you.
I don't personally believe in God, so Tom Cruise bless you my dear.
Hey I was wondering where r u from? Like what state do u live in I'm in nc. I have ms too!
Oh ok neat will if we were closer we cOuld hangout n be ms buds lol
Lauren, have you thought about receiving occupational therapy services? They can help you out with your legs spasticity. Let me know if you have ever received occupational therapy and if it helped? Thank you for the awesome video.
I am an occupational therapy student and wanted to see how I could help you? Are you on Facebook? On Facebook I am Raul Partida from Elgin, Illinois. My alma mater is Northern Illinois University. Your health insurance will most likely cover occupational therapy services Lauren.
P.S. Keep me informed and good luck Lauren.
For me dealing with MS two years still considered very early but my god I already gone thru the most ugliest things about Ms from hot wheater to cold wheater end up on the hospital with a dislocated elbow because I fell my passion and likes are cars and my favorite is a 6 speed vw gold gti that I'm a point it's a bit hard to drive because my spasticity I don't even have the desire anymore to get my drive license renewed since I'll need not only the written test but the driven test as well so yeah it sucks on a good day people will see me walking with my walker on a bad day on my wheelchair my cane days are practically gone so I ended up with a collection of canes in my closet
Also, my neurologist told me that I am better in the morning or the evening..
For me, I like to do everything and finish it before 2 p.m.
I have severe spasticity in my upper and lower body due to a cervical spinal cord injury. I have a incomplete injury and am not paralyzed but I could not walk more than a few steps most days because of spastic muscles. I would also wake up in the middle of the night with my arms bent and unable to straighten them. I had a baclofen pump placed and it got me walking again. I still struggle but it is much better. I have terrible pain when my disease is bad.
sam here. I also suffer from spinal cord injury and a neck that is unstable and considered to be fractured. I cant have surgery to fix it but i have spasticity from it. I also used baclofen but use it in pil from. It does help!
Yes I have a form of spasticity, At times my leg acts like it's playing a big bass drum and just going nuts like it's trying to out play the band, The meds the doctor's put me on do not seem to do anything at all, Had I been there at the stadium when that ignorant woman said "where was your sign" I would have asked her where the vacancy sign was that should have been stapled to her forehead cos her mind was evidently not there.. I tried to post a few weeks ago but RUclips + Windows 7 + IE seem to have issues and conflicts...
¡Many times people around do it harder for us! to me, many times people went agresive against me for moving and walking strange when spasticity is more notorious
A little update, was in with my Dr Wednesday he's sending me for an MRI of the brain, and spine. Well got a call from the DR's Friday morning saying my bloods were back. My bad cholesterol is high so is my white blood cell count, but my vitamin d is seriously low!! And Dr has said low vitamin d is linked to a relapse of MS. So on the right track.😊 he has put me on HuxD3 20,000 IU colecalciferol for two weeks, then another medication for 6 months.😊
What are some good leg stretches?
I have that. I am going through what they call the MS Hug and it is bad. I have had it for 6 days now. I am stiff all the time. It really hurt all the time. I try and put my mind away from the pain. I have not been on any medications in a long time and now my relapses are so bad that I am going to start looking for a good MS specialist.
Thank you very much I am looking for one now and your videos have inspired me to do it
+Lauren Parrott I have had this for years now about ten years and it just keeps getting worse so I need to try and get things together before I become disabled
It does effect me and I have to sit..I also use can for safety,,thanks for sharing.
I have spasticity; however, mine is most prominent in my neck, shoulders, and arms. Instead of having involuntary movements, I have extremely painful stiffness. In fact, this stiffness does not go away no matter what meds my doc prescribes. Basically, I had severe pain in my neck and shoulders for literally years. This has been an issue since I'm in Arizona and the heat makes it worse. I will say this: I have had pretty much all the meds for spasticity that they have out there and NONE of them worked for me. But, I am in Arizona....very lucky for me. I have found that a medicine dropper full of a tincture made from medical marijuana relieves the pain and loosens my muscles. I do use it because the THC in the tincture has been de-activated so I do not feel "high" or "buzzed", I simply get the relief that I need. I am thrilled about the tinctures b/c, in my opinion, smoking medical marijuana simply gives me the symptoms of an MS relapse that I do not like. (e.g., dizziness)...so, I'll stick to the tinctures. Understand though, that heat can bring the spasticity back which would require another hot drink with the drops. I belong to an MS group and see people who have been in constant pain from spasticity for many years and it is unfathomable to me that this relief has been withheld from them for all these years. I urge you to take up the cause of medical marijuana for your state even if you, yourself do not feel you need it. There are thousands in your state who do need it very much. Constant pain for 15 or 20 years is a huge burden to bear. Good luck....I am still learning about this illness as my dx is only 4 years old but I am happy to share whatever I've learned with anyone who needs it.
Marian - I've been experiencing extreme spasticity in my hands for the past 6 weeks and they just keep getting worse. I'll have to look into what you're taking as it's just so frustrating not having the use of my hands.
might want to get off gluten soy and diary especially gluten if not already
Does anyone know of a good spasticity forum site? Maybe where people share experiences and tips?
I BEAUTI THE SAME HAPENDS TO ME TOO, BUT YOU'RE BRAVE AND YOU'RE HAVING A GREAT TIME IN APRIL, I TAKE BACLOFEN AND THAT HELPS A BIT BUT BETTER THAN NOTHING AND "GOD" HELP I'M OK,TAKE CARE SWEET SMILE
I really love your smile, don't care what people think if I wasn't this old or sick I would love reach out to you and ask you if you want to get marry oops!!! got go loo!!!
i have had my ms almost a year now, and i don't i have spasticity maybe i'm just lucky.
I take 2 magnesium tablets ... usually before bed.
Really helps me.
I'm 16 years old and I was diagnosed with MS , at the beginning It was difficult for me to accept it cause I'm too young for it , I think the most weird thing about it was spasticity it was so hard for me to explain what spasticity feels like , and no matter what I tried they just don't understand
Wissel Tahir'' sister try Vitamine D 5000 iu Daily, Omega 3 fish oil, B complex , Biotin, spirulina. They
Might help. Most imp stay active.
Don't tell GOD ' My problems are great' instead tell your problems ' My GOD Is greater' .
I have spasticity in my legs and lower back, I have to sit down and then the spasms in my back start. I'm going to talk to my docter about baclofen or zanoflex.
THX GREAT VIDEOS.
I get it in my butt muscles often and have to turn on my side because sitting on those muscles aggravates it.
Also I have another type in my legs that causes them to jerk when I lift one of my legs off the ground.
I'm currently on Tizanidine.
+Lauren Parrott It does except sometimes it doesn't work for the full 8 hours, so if it's wearing off after 5 or 6 hours and then I have to sit up in my wheelchair to go to a doctor's appointment I can still feel pretty miserable until I can take another dose.
I have spasticity, especially in the mornings when I first get up, Both of my whole legs stiffen up. I usually have to hold on to my walker and go up on my toes, then it goes away. Something like a Charlie horse. Also when I have been sitting for a long time. I have tried Baclofen, but doesn't seem to help., and it can make you weaker.
Richard Lisacki I have it when I wake up too
I have spasticity every morning also when waking up. Funny thing is that it doesn't bother me when I'm sleeping, just when I get up.
I just found your videos tonight. Thank you so much for your videos... I use Baclofen three times a day. I can really tell if i miss a dose. It really gets bad if I miss a dose.
kicked my wall a few months ago while trying to sleep, and now i have tremors
i use baclofen sometimes but massage is best. i have it in my legs mostly
i do have spasticity in my right leg. It get intense when I walk and in hot weather
Going to do Phenal nerve blockage to help with spacticity.
I like your channel
I do. Horablely.
greetings from GR!
I don't know that means. But good information!!
My favorite word!!. Spasticity stiffness) the relax more in the summer for me. Now is at there worst tymes cause this cold weather. Stiffness in both sides, right side worst then left by far. But there both buldged severe south in your trousers I had 3000 mgs solumedrol for three days now I'm taking prednisone 2 week taper. Didn't wanna go this route but your dammed if you do and your damn if you don't: gotta do what you gotta do, you know. But I try everythyng mediation pills praying to GOD SAYING POSITIVE ITS BEEN LYKE THIS FOR TEN YEARS. The winter kills me. But we get by I wish you the best of love wyth your MS. I have a few videos. Others have been at war for years and some just starting the battle I love you god br wyth you.
-MULTIPLE SCLEROSIS MAN SNEEDERFACE JOHNSON
Its one of my biggest issues:( I take Baclofen and sometimes Zanaflex too because I am at the maximum dose of Baclofen for the last ten years. Yoga and stretching . You should be able to get a free yoga for ms dvd at www.msactivesource.com/
It's Biogen's website, the maker of Tysabri and Tecfidera. I can not recommend yoga enough. Also check NMSS for a local class for MS yoga. I'm starting one in a few weeks for 15.00 a month once a week.
MMJ works wonders ❤️
That's great!!
You should show examples
Hi every one,just wanna say ' My Life Is Over' every thing I believed in, every thing is gone.Activity in my life is on a stand still. It's been 2 months now I use a walker for walking. Lost my confidence to walk unsupported. Exercise is finished. Just waiting for death here.
Please don't think like that! Pray God answers and hears all prayers!
I just sit down and rest
I have a walker with a seat on it
Baclofen seams to be popular among DR...that what i use..
I have spasticity sometimes , usually when I’m sleeping I’ll kick n itll wake me up n I’ll go back to bed haha.
MMJ works wonders 7/23/15
Lauren Parrott it helps for real
❤️
Yes I wake up and fill sore !!
I get botox injection
Did that work well?