Chronic Fatigue Syndrome: cause, treatment and impact

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  • Опубликовано: 21 сен 2024
  • In this video from The CTAD Clinic, Dr Mike Lloyd (Clinic Director) discusses Chronic Fatigue Syndrome (also known as ME) and how it can present to health services, often masking underlying causes. This is part of a series looking at conditions associated with trauma (and dissociation, such as Other Specified Dissociative Disorder (OSDD) or Dissociative Identity Disorder (DID). Mike looks at research-led information on risk factors, and different ways of approaching treatment, via techniques recommended within therapy settings.
    #otherspecifieddissociativedisorder #osdd
    #dissociativeidentitydisorder #did #therapy
    #chronicfatiguesyndrome #CFS #myalgicencephalomyelitis
    www.nhs.uk/con...
    www.cdc.gov/me...
    jamanetwork.co....

Комментарии • 102

  • @olivefusse483
    @olivefusse483 2 месяца назад +18

    This is the first time I’ve ever heard a health care expert link dissociative disorders, ACEs and CFS. it was so validating and quite moving. Thank you Dr Mike, I so appreciate these videos.

  • @kratze1738
    @kratze1738 Месяц назад +4

    My dad had something like this most of his life. The cause was discovered when he was past retirement: He had sleep apnea, and probably hadn't had a solid night of sleep since he was a teenager. Getting a CPAP changed his life. Something for people to consider when trying to figure out why they are always tired.

  • @enoch4499
    @enoch4499 2 месяца назад +17

    When I lived in the big city, my stress and exposure to toxins was so high that I developed endometriosis, fibromyalgia, ME/CFS, rheumatoid arthritis and was extremely dissociated and psychotic. I was in my early 20's. Eventually the fatigue took me out totally and after moving to the country, it's dwindled down to ME/CFS with an occasional flare up of inflammation and being in the healthier environment gave me a chance to finally discover being part of a dissociative system.

  • @karenmatuska3812
    @karenmatuska3812 2 месяца назад +17

    As a psychotherapist, I greatly appreciate this series. I had intuited much of what you were saying so it helps to have the research (what there is of it) to make more clear the connection between trauma and fatigue. Thank you. I have some clients that I will be sharing this video with to help them with their understanding of their experiences.

    • @thectadclinic
      @thectadclinic  2 месяца назад +3

      Wonderful! Thank you Karen, it is so great knowing you are out there doing such good work!

    • @jazminebellx11
      @jazminebellx11 2 месяца назад +4

      Adore seeing therapists in spaces like this, willing to learn and share!

  • @evamarie2247
    @evamarie2247 2 месяца назад +4

    My Dr put me on 3 things because of the fatigue, autoimmunity and pain. They found very low vitamin D levels, so on that. Then Zinc for the autoimmunity, and last vitamin B12 for the energy lacking. This was a huge change and difference in helping with it and it doesnt effect somatic symptoms and alternative states. Then for IBS pain Im put on doxicycline. This has helped me lose weight and the fibro to be less painful. I also am put on a none THC based oil I put under my tongue to stop the fibro throbbing pain. All researched between my therapist and medical care team.

  • @traumaVerse
    @traumaVerse 2 месяца назад +8

    I've always thought the true cause of mitochondrial 'dysfunction' is dissociation. Because rest and digest are switched off when we dissociate, it makes sense that energy is not getting into our cells. Coupled with people pleasing, not knowing our needs, or how to meet them as you've shared... batteries depleat and we don't know how to recharge them again until we can get out of the dissociation. Loved this video! - M

  • @ronibaker9262
    @ronibaker9262 2 месяца назад +7

    Thank you for this. The cycles you talk about is something that has been a mystery. Sitting for hours noticing how tired or unfocused i am. Next are feelings of complete worthlessness and depression. It's nice to be able to understand more.

  • @magnoliaskogen
    @magnoliaskogen Месяц назад +2

    I always get nervous when I see people who don't specialize in MECFS release content about it. What a relief that you handled the topic well. I definitely feel that a major fueler of my MECFS is trauma

  • @lonelycrescendo
    @lonelycrescendo 2 месяца назад +3

    This combined with autism and living in a big city with the person who abused me. I can't take it anymore.

  • @elisabethhansen3590
    @elisabethhansen3590 2 месяца назад +4

    I developed fibro and chronic fatigue about ten years ago, and in all that time, I've tried to get help from medical professionals. I've been shoved around, medicated, disbelieved to the point of having a really hard time believing myself(especially since my memory is so spotty) Even nowadays knowing that I have trauma and dissociation as a major factor, it's taken 10 years and leaving the US to talk to a GP in the UK for them to acknowledge that working on the trauma is what will help me the most. And finally, finally, I have some therapy.
    So I saw this video and thought 'no that can't be me' because I so easily gaslight myself about medical stuff. But every point you made hit really hard with me, so I don't think I can say I have nothing 😵
    I have so many friends with this same box-standard experience, all of them with dissociation from trauma. Trauma NEEDS to be a key factor of approaching health stuff like this, especially chronic conditions!!!

  • @theresadutcher4750
    @theresadutcher4750 2 месяца назад +8

    We used to have chronic fatigue but we wouldn't qualify for that any longer. We recovered. What helped me personally: I started with getting grounded and grounding so regularly (several times in every hour) that being grounded became the new normal instead of being constantly dissociated. (this can bring up all kinds of tricky sensations and inner experiences, so it is good to do this with a therapist for help!) It came with a felt sense of safety, realizing that life today is actually safe and no terrible things are happening, just stressful things. I used body-focused therapies to learn how to sense my body (as Mike said, to be able to feel my needs and limits) and then how to regulate stress responses in my body. I believe that these things made the biggest difference for me. I still have fibromyalgia but that too got better with more stress management.

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад +1

      Were you diagnosed with chronic fatigue or chronic fatigue syndrome? Coz they're two completely different things. People with ME/CFS very rarely fully recover. I've had it for more or less 24 years. Chronic fatigue is a symptom of many illnesses, such as depression, cancer, etc... and is temporary, while ME/CFS is a neuro-immune problem and very little people recover (there's no official test or cure for it.) It's like having a permanent mononucleosis. I hate how they have such similar names because people confuse them, even doctors! I personally don't mention CFS anymore and just say ME. I also tell them to watch the UNREST documentary (which is on YT with subtitles in over 30 languages) so they can better understand the difference.

    • @theresadutcher4750
      @theresadutcher4750 2 месяца назад

      @@ShikisaiMaki I intentionally didn't say ME/CFS and mean exactly what Mike was talking about in the video, chronic fatigue without medical reason. I am aware that your situation is different and my solution won't work for a medical problem. My recovery from what I had for many years is still true and real.

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад

      @@theresadutcher4750 Ahhh okay.
      I'm sorry, I think I misunderstood part of the things he said in the video, because I thought he was only talking about ME/CFS but forgot to say "syndrome". I shared the video in a few ME/CFS communities and people got really upset and explained to me that he was actually saying that CF and ME/CFS are the same thing and that he thinks both can ONLY be caused by trauma... which is definitely untrue. That is a myth that has perpetuated great harm in our community. Some groups even deleted my post because of this.
      I think trauma can make someone more predisposed to certain illnesses such as ME and fibromyalgia, but I know so many people who developed ME after having a viral infection (such as mono or C0V19) and a lot of them don't have any history of trauma whatsoever.
      I participated in Pr. Alain Moreau's 8 days long study (he's a top researcher on ME/CFS and C0V19) and he said that the majority of people who participated (I think the study has been ongoing for ~7 years if not more, so he has had thousands of participants) had developed ME/CFS after having mononucleosis or some other viral infection (and they did ask a lot of question regarding trauma, mental health issues, so it's not like they didn't consider that either.)

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад +1

      @@theresadutcher4750 Mike just replied to one of my comments saying that he was actually talking about ME/CFS, but he was omitting to say "syndrome" because it's a mouthful. Apparently he said that in the video, but I somehow seem to have missed that part. I'll have to re-watch the video when I have more energy and less brain fog. PS: For some reason, I can't see my comment and his reply anymore, so you might not be able to find it, but I got the notification. RUclips is weird...

    • @theresadutcher4750
      @theresadutcher4750 2 месяца назад

      @@ShikisaiMaki I understand how important it is to make the difference clear. It gets upsetting when people start to talk about stuff like they know about it when really they don't because they are talking about something else... I can assure you that I am aware that my experience was different from ME/CFS (even though I did learn a bit about pacing on the way) and I always try to keep informed about the medical progress made for that because it is an important topic of our time and people with it deserve to be seen and acknowledged.

  • @Roseyla
    @Roseyla 2 месяца назад +5

    READ: Not seeking advice, don't tell me to "find a good therapist/doctor" because fuck that noise.
    I agree with the messaging in this video, but caution against the language of necessity. Therapy is just another place where I relive my patterns of trauma. I really dislike medical professionals and therapists, and that doesn't mean *all* as I'm not going to engage in black and white thinking, but part of me sure as hell wants to. I'm tired of being hurt by trying to get help, when the path to healing has nothing to do with what others can do for you as much as you can do for yourself. I have that potential, and act on it daily, and see more progress without doctors and therapists by doing my own research and putting what I've discovered into practice. I'm much better for it today and will continue this path. It isn't easy, but it is far easier than being gaslit and ignored.

    • @thectadclinic
      @thectadclinic  2 месяца назад +5

      I agree, really! The actions of poor or dangerous therapy or help can mean that people cannot trust again, and have to find their own path. This can be done very successfully with decent support and a careful approach.

    • @Roseyla
      @Roseyla 2 месяца назад +2

      @@thectadclinic I believe it, just that the training is so poor. I feel held up to models that don't apply to me, and the decisions they make based on those models only harm me. I don't know for certain but based on watching your videos over the last year I believe that you would be far more curious and patient. You understand that what is on the surface is not what is underneath, and that maybe I just need help getting it out. I tell therapists how I struggle, but they never support me in those struggles. Instead, I am accused or made to feel bad somehow. I believe you wouldn't do those things, but, I also know now the answers have been with me all along. I just need to listen.

  • @enoch4499
    @enoch4499 2 месяца назад +8

    Thank God this subject is finally getting more attention!!! I've been suffering with this for nearly a decade now. I've become interested in German New Medicine and eastern medicine, especially in regards to mental conditions, chronic fatigue and autoimmune disorders. ❤

  • @catherinefoster3820
    @catherinefoster3820 2 месяца назад +7

    I'm sure there is a link, Mike. As you know I've suffered with fibromyalgia for 30+ years now and it's had a massive impact on my health, wellbeing and eventually affecting my ability to continue working. However, since starting therapy I have regained more energy and im able to do more, which I'm sure is because of the work I've done in my therapy sessions. In saying that, though, there are still occasions when it still knocks me sideways and literally pulls the plug on my energy. My pain levels are still the same as is my sleep patterns. Not to mention my eating habits and inability to know when I'm hungry. I think if I can look into this for the last chapter of my therapy, it would be good. 🤞🤞.
    Thank you for everything you do, you have honestly saved my life and I shown me that despite my childhood, I still have a life worth living 😊

  • @BaraNoUta17
    @BaraNoUta17 2 месяца назад +2

    We've never been officially diagnosed with CFS, but this fits in really well with our experiences. We have a very hard time relaxing (because of hypervigilence), so we tend to keep on pushing ourselves until the fatigue comes in and it's like our body forces us to take a break. (We're working on changing that pattern, but for all the reasons you mentioned, that's easier said than done and takes time.) We also notice that healing tends to be very exhausting for us. Recently we had a big success with increasing communication between a particular (non-trauma-holding) part and other non-trauma-holding parts of the system, and we (that part in particular, but all of us to an extent) felt totally exhausted for days afterward, and then developed a migraine. But it makes sense to us, in that our brain is working hard, developing connections between parts it hadn't previously had connecttions between, and all the ramifications of that.
    Btw, I'd love if you talk about migraines in this series. It's something I see many other systems talk about anecdotally, but as far as research goes, all I can find is "thunderclap headaches" when switching... which isn't quite the same as migraine. We've heard a little bit of information about dissociation in general being linked to a higher risk of migraine, but not a lot, and nothing specific to complex dissociative disorders. So it'd be great to hear any thoughts you have on it, if you want to share.
    Anecdotally, there are a lot of things we've noticed can be migraine triggers for us. Some aren't DID-specific, like stress and crying and lack of sleep. But we find that internal conflict, blocking switches, someone in the system feeling like they aren't being listened to, and other things like that are often migraine triggers for us too.

  • @9crutnacker985
    @9crutnacker985 Месяц назад +1

    This is the first time (I think) where I've heard that dissociative amnesia being an 'explanation' of poor memory, which is something I've suspected for a while. Also that depersonalisation as responsible for not know recognising hunger (or thirst) being tired needing to go to sleep etc. Something that I struggle with but have been calling problems with interoception - doesn't rule that out of course.
    I have learned so so much about myself from watching your videos and still am and that knowledge has been highly beneficial even if it has at times also been quite a painful process.

  • @MyDisavow
    @MyDisavow 2 месяца назад +4

    I've always hesitated to talk about my fatigue and brain fog. When you've already got the CPTSD and DID labels, exhaustion is kinda assumed, so at what point does CFS 'start' to apply?
    I'm tired. On the other hand, I haven't slept a night without nightmares for 20 years, so of course I'm bl**dy tired!
    It makes sense if the CFS 'label' arrives first though, and the discovery of trauma comes later on. Interesting how dissociation could interfere with managing CFS symptoms and implementing treatments, tho. I hadn't considered that you may *think* you've been sitting down but due to amnesia, actually a bunch of stuff could have been happening without you being aware.
    How frustrating it must be!
    Otoh, an alter who wants to do exercise for me would be welcome! 😋
    Great first video for the series, doc.

  • @debbiev.1311
    @debbiev.1311 2 месяца назад +5

    I'm 63 y.o. & "exhausted" - this video explains so much...thank you!!

  • @amandaball7116
    @amandaball7116 2 месяца назад +2

    Oh my goodness. This is brilliant Dr Mike. MeWe exhaust so much energy in suppressing switching and so it’s not a case for us that another part switches in to exercise more that I just HAVE to keep moving and I NEED to run! If I can’t run then I am less likely to eat and sleep well and also it’s the main way I socialise with other people. So if I didn’t run other than my T we’d hardly see anyone. But I know when I say to people we are exhausted (once we have managed to tune in to it!) then they say but you manage to run. Yes we are able to run because of DP and dissociation ! I’ve even harmed ourselves by running too hard and not knowing we’ve hurt our Achilles. We are trying sooooo hard with self care but we feel shame and a sense of any feeling of ‘rest’ being wrong and that we mustn’t do it - constantly hyper vigilant. I want to cry and this being so relevant and validating but I won’t because ‘I’ don’t cry and that’ll need someone else to help with inside ! Thank you thank you thank you

    • @thectadclinic
      @thectadclinic  2 месяца назад

      Thank you so much, Amanda, for sharing the meaning of this video to you with us.

  • @ichi_san
    @ichi_san Месяц назад +1

    This was a deeply helpful explanation of not just CFS but also how people with dissociation and OSDD/ DID may experience this condition as well. It's really tough to hear how childhood trauma can lead to physical conditions such as CFS. I am also chronically ill, and it's sad hearing trauma can lead to this condition.

  • @josd04
    @josd04 2 месяца назад +1

    As a single mother with DID I feel exhausted every single second because I don't have control of my energy. Omg, thank you so much! It all makes sense now.

  • @arihill2727
    @arihill2727 2 месяца назад +1

    This couldn't have come at a better time. I just started trauma therapy with a trauma/DID therapist. And I was having a really hard time with fatigue the past couple of days. This helps me to understand why and also offer myself some grace. Thank you.

  • @alittlespacetime
    @alittlespacetime 2 месяца назад +5

    Glad to see you well! ❤ thank you for all you do. 😊

  • @xariasys
    @xariasys Месяц назад +1

    I love this series! It's so interesting to consider all the connections a dissociative issue can have. I'm sharing these videos to get this info out!

  • @Altereddandelion
    @Altereddandelion 2 месяца назад +1

    I would've really needed this video 5 years ago, I had chronic fatigue for 4 years until I was diagnosed with DID during an 8 week intensive inpatient treatment. I think when I finally knew what was wrong, I could make peace with it and started to heal. I also become a lover of walking in nature during the treatment :))

  • @purkleL
    @purkleL 2 месяца назад +4

    Fantastic video thanks Mike. I follow this channel as a person who dissociates (BPD) and at times when I'm unwell in various capacities, this channel is a real lifeline of grounding, non judgemental & scientific, informative but not belittling discussion. I also have ME, & this was the last place i expected a video about ME to pop up!!! But the link with trauma definitely makes sense & I found this super interesting, thanks. I love how you explain stuff without making us feel like kids or idiots by simplifying it more than necessary.

    • @thectadclinic
      @thectadclinic  2 месяца назад +1

      You are so welcome, thanks for the wonderful feedback!

  • @etienneetincelle7800
    @etienneetincelle7800 2 месяца назад +4

    I had chronic fatigue for three years. In the end, it was really quite impairing. I used a wheelchair for some daily activities.
    It turned out that this was entirely caused by an antidepressant and went away completely when I got off that medication. Doctors overlooked this because I also have partial DID, and they thought it is functional. So many drugs used for mental health patients have fatigue as a side effect, and I feel it is often overlooked.

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад +3

      Were you diagnosed with chronic fatigue or chronic fatigue syndrome? Coz they're two completely different things. People with ME/CFS very rarely fully recover. I've had it for more or less 24 years. Chronic fatigue is a symptom of many illnesses, such as depression, cancer, etc... and is temporary, while ME/CFS is a neuro-immune problem and very little people recover (there's no official test or cure for it.) It's like having a permanent mononucleosis. I hate how they have such similar names because people confuse them, even doctors! I personally don't mention CFS anymore and just say ME. I also tell them to watch the UNREST documentary (which is on YT with subtitles in over 30 languages) so they can better understand the difference.

    • @etienneetincelle7800
      @etienneetincelle7800 2 месяца назад

      @@ShikisaiMaki i was in the process of getting diagnosed with ME. The symptoms were all there and pretty severe.

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад

      @@etienneetincelle7800 you're incredibly lucky that you managed to recover! A few years ago, I read that people are less likely to recover after having ME for over 5 years and recently someone said it was actually 2 years!

  • @kellyschroeder7437
    @kellyschroeder7437 2 месяца назад +2

    Bingo - lack of self care. 😩. So so easy it was to care for others. Currently disabled unable to do physically. Limited funds ….

  • @Cathy-xi8cb
    @Cathy-xi8cb 2 месяца назад +3

    CFS is not the same as chronic fatigue. The diagnosis of CFS/ME would exclude pre-morbid psychological causation. Chronic fatigue due to a lifetime of having a trauma disorder, depression, life issues such as being unable to work, have effective therapy, etc. IS NOT CFS/ME. It can be equally devastating, but if you have ever treated anyone with diagnosed CFS, this becomes easier to see. They don't respond as well to psychological treatment. They don't consistently have a pre-morbid history of mental health issues. And they don't have the same attachment, amnesia, and identity confusion issues.

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад +3

      I've had ME for 24 years, and I also hate how people confuse "chronic fatigue" with ME/CFS. This is why I just call it myalgic encephalomyelitis and describe it as a chronic post-viral exhaustion or neuro-immune exhaustion. I personally started experiencing symptoms of ME after having mononucleosis twice between 1998-2000 (I was 14-16).
      However, I also have a lot of childhood trauma, little to no memories before the age of 9, suffer from depersonalization, am autistic, etc... I think that people who have experienced childhood trauma are more predisposed to developing ME after a viral infection.
      A lot of people that I know who are diagnosed with ME have experienced childhood trauma, and many are also diagnosed with dissociative disorders and/or other mental health issues.
      My condition also got worse after other shocking events/traumas in my adult life, I went from having mild ME to moderate-severe. I haven't been able to work or study due to ME for nearly a decade.

    • @shawnaford5540
      @shawnaford5540 2 месяца назад +1

      @@Cathy-xi8cb I agree ME/CFS is not the same as chronic fatigue.
      Yet I can see a subset of people having both, but this approach is so harmful as the video is saying ME/CFS is the same as chronic fatigue.
      I experienced misdiagnosis of depression and standard treatments (antidepressants) did not work and the exercise made me worse.
      Even CBT was traumatic, finally got a new psychiatrist that diagnosed ME/CFS.
      That was transforming even though he did say he did not do “bodywork”.

    • @ShikisaiMaki
      @ShikisaiMaki 2 месяца назад +2

      @@shawnaford5540 Maybe I'm wrong, but I think he isn't confusing the two, because what he's describing sounds like a description of ME. I think he simply made the mistake of saying chronic fatigue instead of chronic fatigue SYNDROME, which is indeed, bad. But the title says syndrome and he mentions that it's called ME too. I think he should edit the video and clarify this right at the start of the video.

    • @Cathy-xi8cb
      @Cathy-xi8cb 2 месяца назад

      @@shawnaford5540 I would hope a psychiatrist would not do bodywork. They don't have the training. They are physicians, and you were lucky they went to medical school and paid attention.

  • @vt140
    @vt140 2 месяца назад +1

    I was dx with Idiopathic Hypersomnia, then Narcolepsy (bc IH didn’t have insurance covered medication but Narcolepsy did). I had a great sleep doc though who said that generally, people with IH or Narcolepsy who don’t respond much to meds AND have a history of s abuse should be evaluated for dissociative disorders.

  • @ChromeSkeletons
    @ChromeSkeletons 24 дня назад

    I would also caution people to make sure you still look for underlying medical causes as well (not that you are suggesting not to do that but just so people don't give up advocating for themselves in the medical system). I had chronic fatigue for years with no answers and my therapist assumed it was because of my childhood trauma/dissociation/depression but I still kept pushing my doctors for more tests. After 4, years with no answers and many doctors telling me there was nothing wrong with me and refusing to do any testing, I finally got a doctor who would and it turned out I had celiac disease and my body was literally destroying itself from the inside out. Autoimmune diseases can also be linked to childhood trauma and many of them cause chronic fatigue so it's another place to potentially look for answers. I still have some chronic fatigue which I do believe is related to the dissociation but it is SO much better now that I'm treating my celiac as well.

    • @thectadclinic
      @thectadclinic  24 дня назад +1

      @@ChromeSkeletons I absolutely agree, there are so many possible physical causes that need investigating. Linking psychological to physical whenever relevant is vital.

  • @Natalie09800
    @Natalie09800 2 месяца назад +1

    I believed my whole life that I was suffering from narcolepsy. I managed to be checked in a sleeping laboratory and they told me, no narcolepsy. I still can’t believe it. Interesting video because I know I have complex trauma. Perhaps the connection is there.

  • @arayasununkingpet8496
    @arayasununkingpet8496 2 месяца назад

    Exactly everything you said, that's my life😢

  • @willow6726
    @willow6726 2 месяца назад

    I wished all clinicians had this information. This is such great content! I have made this discovery on my personal Journey of dealing with CFS over the past 16 years which eventually led me to a diagnosis of DID. Thank you much for putting this content out there! This is invaluable!

    • @thectadclinic
      @thectadclinic  2 месяца назад +1

      That’s really kind of you to say, thank you!

  • @itisdevonly
    @itisdevonly 2 месяца назад

    I've been struggling with chronic fatigue for the last decade. It definitely ties into my trauma and dissociation. I've noticed that being triggered and dissociated can lead to significant fatigue. I guess my brain is using a lot of energy to keep that trauma from surfacing in response to the trigger. Healing work has also lightened the load a bit. Though I still struggle with chronic fatigue.

  • @Nickymaassen-f9c
    @Nickymaassen-f9c 2 месяца назад

    Thank you so much dr Mike L. Your video's are so helpfull. I do respect all the work you do and the way you do it. I'm so gratefull that i found your Chanel🙏 ❤ Nicky from Belgium

  • @Jennifer-oq4zj
    @Jennifer-oq4zj 2 месяца назад

    Thank you Dr Mike, watched this several times. It’s almost uncanny that I’m literally jaw dropping. I didn’t have any idea there. Was a connection, it makes so much sense! Even the bit about putting other’s first. Can’t thank you enough ❤ looking forward to the next video 🙏🌻🌻

    • @thectadclinic
      @thectadclinic  2 месяца назад

      Glad it was helpful! Thank you for the lovely comment!

  • @imjustjules
    @imjustjules 2 месяца назад

    Wow, we learned so much from this. It made us reflect on a lot.
    A few months ago, our partner unexpectedly had to go into work over the weekend when we were together, which hasn’t happened before. I’m also autistic for context and was terrified and shocked. All of a sudden I felt overwhelmed by the state of the house and had a part say “if you’re going to be bothered by the mess, just clean it yourself” rather judgmentally. I don’t do chores because of some trauma things/chronic pain from fibromyalgia and I still live at home. I sincerely thought I didn’t know how to clean.
    I switched into a part that is basically a younger version of my mom, who cleaned for 3 hours. I don’t remember any of it, just coming out to be confused that I knew how to clean all along.
    I also saw a comment saying “I wish I had a part that exercised”. As someone who spent years in OSFED recovery and who is still being evaluated for OSDD, I’m going to argue that no you don’t. I have two system members that led my OSFED. I spent years with my dietitian giving me all sorts of advice and appeasement parts taking it in, and the others just doing what they want. It’s been years, and we’re doing better, but those parts still can return to old coping mechanisms when we’re hurting or facing triggers. And PEM, as you mentioned Mike, is really debilitating to deal with.
    We think we may have developed further chronic illness as a way to make our ED behaviors stop. If our body can’t do certain things, it protects us in a way.
    Lastly, as much as my parents tried to do self care, they were people pleasers too. Both are working on it and I’m so proud of them! But my dad had to retire early due to chronic illness worsening from work burnout. And the same thing happened to us when we tried to be a therapist for a couple years, and currently we can’t work. So again, maybe our dad’s parts kicked up the intensity as a protective mechanism, to finally demand rest and care.
    Thanks for helping us understand all of this. The intersection of trauma/dissociation and chronic illness is really important to us, and we appreciate that you center intersections like these in your work.

    • @thectadclinic
      @thectadclinic  2 месяца назад +1

      You're truly welcome, and really hope things improve for you.

    • @imjustjules
      @imjustjules 2 месяца назад

      @@thectadclinic thanks, I’m hopeful it will! I watched your video about questions to ask therapists to see if they’re skilled in working with dissociation and I found someone who really is, and gets we need to focus on safety and stabilization long term, before any trauma processing. I’m reading more about energy conversation therapy now, because that would be a great addition to my treatment too. Your channel makes such a difference!

    • @thectadclinic
      @thectadclinic  2 месяца назад

      @@imjustjulesthat’s great, the best of luck for your progress!

  • @tatiananazarova1094
    @tatiananazarova1094 2 месяца назад

    Hello! I'm a big fan of your content, and it has been extremely useful and helpful to me on a number of occasions. Thank you for creating it and making it available. I keep noticing how when you refer to symptoms, you're often saying that there is "no medical cause" however psychiatry is very much a part of medicine, and should to be taken just as seriously as all other branches. Approaching it otherwise impacts the patients too, not just the ego of medical professionals :) Maybe "no somatic cause" could be a reasonable substitute for "no medical cause" ? In any case, thanks again for all your work, and best wishes.

    • @thectadclinic
      @thectadclinic  2 месяца назад +1

      Thank you for the comment, and feedback. I use the term 'medical' as it does then include psychiatry - if a condition is resulting from an organic/medical/physical issue (for example, tumour, aneursym, side effect of medication, head injury, virus, substances etc) then it would be taken into account. 'Somatic' can also be taken in all sorts of ways, so 'medical' seems the simplest to think about the effect of the body within a clinical setting.

    • @tatiananazarova1094
      @tatiananazarova1094 2 месяца назад

      ​@@thectadclinic Thank you very much for your answer! Indeed, somatic is maybe not the best idea. In a number of videos, I remember thinking "Hey! How does a symptom felt in the body as a (direct) result of a mental illness/condition *not* have a medical cause? What cause is it implied to have then?" Vocabulary can be terribly tricky or awkward sometimes.

  • @newtnoot2794
    @newtnoot2794 2 месяца назад

    Our system was recently diagnosed with NEAD (PNES here in the states). It's often comorbid with psychological disorders inculding traumatic and dissociative disorders. The current treatment is theraputic (esp CBT therapy), it would be interesting to see a video on this topic.

  • @crystalhearteddragon4197
    @crystalhearteddragon4197 Месяц назад

    I have M.E I have been so sick from 6 years ago, cant work, can barely leave my house. It is so absolutely disabling.
    I am an ambulatory wheelchair user due to my lack of energy and how much I'm affected by P.EM

  • @Mmmitchell
    @Mmmitchell 2 месяца назад

    So many things suddenly make so much sense! Thank you!

  • @alysmarcus7747
    @alysmarcus7747 2 месяца назад

    hours of activity, i wish. Thankyou so much for addressing this. I was diagnosed with Fibromyalgia a number of years ago; and what i noticed that myself and others I know with DID have Fibromyalgia or ME - perhaps both. I have thought about what happens to the brain, and how trauma can change the wiring of body reaction . . .for Fibromyalgia every thing is turned up full blast which is what hyperviligance is like for example. I also wonder if after time one can eventually develop into the other. I never had trouble with energy until 3 years ago . . .when i had more trauma happen in my life. what you said at 15 min- yes, over here no one talks about that except the folks like us dealing with it. And yes, I have actually been aware of that switch, oh, i know i'm tired now, need to lay down ----and NO not lay down

  • @progressnotperfection1839
    @progressnotperfection1839 2 месяца назад +2

    I’m very curious now if this is what I’m suffering from. I’ve been telling my therapists for the last 4 years, I just don’t have the same energy I had before. Wondering if I will ever get it back.

  • @Nik-tp5sf
    @Nik-tp5sf 2 месяца назад

    Thank you so much for this, it really makes perfect sense. I like the longer videos with more information 😊

  • @sad_doggo2504
    @sad_doggo2504 2 месяца назад +1

    There's a splintering of necessary skills and knowledge required to take care of the body in the case of forming parts that can be overlooked. In the case of it masking the trauma, I wonder if it could be playing a protective function? A thought I always had in the back of my mind was that I had to save my energy, because what if I really needed it later? And this is not to mention that if we have less energy, we might engage in less 'dangerous' situations.

  • @pardalote
    @pardalote 2 месяца назад

    Loved the video. It made so much sense of my experience. I now have a diagnosis of FND, which I feel is very related to what you have discussed here. Are you planning to cover it in this series? ❤😎

  • @emmalyckajacobsson590
    @emmalyckajacobsson590 2 месяца назад

    Thank you for this video. It is a little longer than usual, but I managed. Interesting content.

  • @justj4021
    @justj4021 2 месяца назад +1

    Wonderful video. Thank you!

  • @totalcontrol4205
    @totalcontrol4205 2 месяца назад

    I am way past from chronic fatigue, at some point, I crossed over to feeling nothing and just don't care about anything, so all good. My energy is back mostly, but I don't care.

  • @dana_drachentaenzer
    @dana_drachentaenzer 2 месяца назад

    Thank you so much for this video!

  • @shawnaford5540
    @shawnaford5540 2 месяца назад +3

    Chronic Fatigue and Chronic Fatigue Syndrome are very different.

    • @thectadclinic
      @thectadclinic  2 месяца назад +1

      As I said in the video, I was using the term 'chronic fatigue' to signify CFS/ME as an overall term. All the references are related to CFS specifically. Sorry if that wasn't clear!

    • @shawnaford5540
      @shawnaford5540 2 месяца назад

      @@thectadclinic Still not clear as the content seemed to be psychological and not the physical condition of ME/CFS.

    • @thectadclinic
      @thectadclinic  2 месяца назад

      @@shawnaford5540 the video was about the connection between diagnosed conditions seen with people who are dissociative and childhood trauma, so it was focused on the psychological. The physical aspects of CFS/ME weren't the focus of the video. I hope that helps!

    • @shawnaford5540
      @shawnaford5540 2 месяца назад

      @@thectadclinic Thanks yet still this connection is not science and as the ME/CFS community has been harmed with such connections leading to inappropriate CBT and GET or incremental exercise, this is where the connection fails so many.
      I know nothing about your area but was misdiagnosed patient of treatment resistant depression and lost years and quality of life until I finally received the ME/CFS diagnosis.

    • @thectadclinic
      @thectadclinic  2 месяца назад +1

      @@shawnaford5540 Really sorry to hear about your experience. We have so much CFS/trauma in the service, it is really common. The research helps people understand the symptoms and ways to address these using tagerted interventions for the trauma.

  • @kellyschroeder7437
    @kellyschroeder7437 2 месяца назад

    I agree ace = > CFS etc….

  • @kellyschroeder7437
    @kellyschroeder7437 2 месяца назад

    Thank you 💙👊

  • @crystalclear6864
    @crystalclear6864 Месяц назад

    My fatigue started fir no reason around 25. I had a great childhood. No idea cfs existed in this time. It was quite low level fir many years, only looking back do i see i had been coping with it for no reason. I am now 70. And the energy levels are much worse but i do know about self care now so can pace my life. So could it be emotional trauma later in life? Say in my 30’s ( despite i started the tiredness when i was working and had weeks off at a time) Do anti depressants cause this? I really cant see why i have this and vit b injections got me through the hard times and stopped a lot of brain fog when i did not know about self care and pacing in this condition. I thankfully do not have fibromyalgia.

  • @Grace.allovertheplace
    @Grace.allovertheplace 2 месяца назад +1

    🫶

  • @homounsapiens1287
    @homounsapiens1287 29 дней назад

    The trauma of American Capitalism