My daughter (recently turned 2) was diagnosed with ACC when ahe was 36 weeks gestation. After many late pregnancy scans and tests she was born healthy, with fluid on the brain. She has developed like any other child and has reached some milestones quicker than her older sister. We have her final neurologist appt next month and I'm totally amazed with her.
I was very blessed. I have complete ACC, but virtually no behavioral signals that would have given a clue. I only found out by accident. It really does feel like a roulette wheel. There are folks with Partial ACC with more challenges than I've faced.
Alex, thank you for these messages! I am thrilled that you found my channel and that it has helped you. Keep going strong. It sounds like you’re doing amazing and won’t let anyone stop you from what you want to achieve.
I found out my 5yr old daughter has acc a month ago. This is all so new and sometimes scary. Thank you for your videos. They're very informative and encouraging.
I'm recently dxed with ACC . I am much like you. I'm 43 now . Dr said the symtoms will gradually get worse . which they have the last10 years . my son also has ACC .
Just found out my brother’s unborn son was diagnosed with ACC. Thank you for this video.
My daughter (recently turned 2) was diagnosed with ACC when ahe was 36 weeks gestation. After many late pregnancy scans and tests she was born healthy, with fluid on the brain. She has developed like any other child and has reached some milestones quicker than her older sister. We have her final neurologist appt next month and I'm totally amazed with her.
I was very blessed. I have complete ACC, but virtually no behavioral signals that would have given a clue. I only found out by accident. It really does feel like a roulette wheel. There are folks with Partial ACC with more challenges than I've faced.
your videos are so wonderful, its helped accept who i am more as a adult with ACc
Alex, thank you for these messages! I am thrilled that you found my channel and that it has helped you. Keep going strong. It sounds like you’re doing amazing and won’t let anyone stop you from what you want to achieve.
I found out my 5yr old daughter has acc a month ago. This is all so new and sometimes scary. Thank you for your videos. They're very informative and encouraging.
Yes I am an artist !
Thank you so much
I'm recently dxed with ACC . I am much like you. I'm 43 now . Dr said the symtoms will gradually get worse . which they have the last10 years . my son also has ACC .