I'm 65 years old now. I didn't have any idea about this brain disruption until I was 40 plus years old. I now know why I had the difficulties I did in my grade school years. Some of my difficulties over time were facial recognition and remembering names to faces. I have been able to hold down a decent job in the past. The biggest problem though has been the social interaction aspect. My peers shunned me me when I was younger because of my slowed development. However by 21 years of age I had caught up. I did 13 years military service until some unrelated health problems stopped my progression and discharged honorably. I did very well while I was in service and finished top of the class several times.
I’m 34, have (don’t have?) ACC, and I’m fuckin amazing. Marine corps service, mba in human resource management, bachelors in criminal justice, multiple properties, landlord, spca volunteer, and a Scorpio. I’m doin just fine.,
@user-z1u4u I don’t think comparison is good for any reason, I think I am happy to fight against something that has been a shift in my growth. But through God and Jesus Christ, we are able go on. And be neighborly.
My brother was born with this, unfortunately he has a very hard time interacting with people, but he is very very smart . All through grade school and college maintained straight A’s.
I was born premature, almost 7 months old, with spastic hemiplegic cerebral palsy, which slightly affected my right leg. I have a little difficulty remembering the paths I took, I don't remember much about my childhood, distant family members. I feel a little different, I don't have friends, I'm sociable, but I don't connect with other people. After living with this for most of my life, I decided to see a neurologist, who gave me an MRI, the result was colpocephaly, but my corpus callosum was not damaged. I haven't spoken to the doctor yet about the result, I'm undergoing a neuropsychological evaluation and will receive the diagnosis. I finished high school and in college I got a lot of low grades. I work in a store as a cashier.
I have this condition and my learning curve as a kid was slow and huge. I did not get a proper education as i was in special education. Now i find myself slowing down and i can't get some jobs due to my inability to calculate mathematics well enough. and what people without this condition can learn in a few days to a week, takes me maybe 3 to 4 times that.I do not have a corpus callosum and my neurologist said that i should have been born one of three ways.. still born, a living vegetable or have multiple personality disorder. And yet look where I'm at today at age 52. Yeah...I'm slower at many things...but I'm alive and doing my best for what I am.
My five year old grandson has this disorder and up to now is otherwise perfectly normal in all respects. A bright, healthy and active youngster. All cases are different but so far so good.
Yes same for my daughter, we just recently found out about her diagnosis the weekend we had to drop her off at college. She always had trouble riding a bike, and some difficulty intellectuals but she did well enough to be accepted by her university. She’s a very determined young woman who strives for an equal advantage amongst her peers. She takes vitamins like magnesium and b2 400mg that help with her focus and energy levels. She struggles at times but together we find a good balance or the proper solution
My son has a tumor in his corpus callosum, and it affects how he learns. He needed some help in school, but the impact has been mild. The interesting thing was that I had more success helping him with schoolwork than conventional tutors. He also had a craniotomy for a temporal lobe ganglioglioma. Interesting to note, there is a familial history of temporal lobe seizure activity. His brother and I are receiving treatment for seizure disorder.
You got something in common with a Kangaroo and Opossum for lacking one. Don't take it in a negative light. I am glad you got help for it atleast? ( Trying not assume at all )
I used to find agenesis of the corpus callosum when I was an ultrasonographer many years ago. I often wondered how those children functioned later in life. - Thanks!
I was only diagnosed in my late 30s but have suspected learning disabilities (dyslexia, test anxiety, dyscalculia, dyspraxia, difficulty with time management), some ASD traits (including difficulty reading fear, anger, and aggression in facial expressions, also difficulty seeing gender differences in faces, difficulty understanding some psychosocial behaviour- particularly arbitrary seeming hierarchical structures that include hypocricy, imbalance of "power", and disrespecting others), difficulty processing spatial information, navigating, telling left from right. These things take a long time for me to figure out and once I do, an even longer time to try to communicate if I need to. I often get lost in familiar places like my apartment building and need to figure out where I am. This feeling was highly upsetting to me especially as a child and still causes me anxiety. I cried a lot in the halls of my school because I didn't know where to go and often feared I wouldn't find my way back to class in time which sometimes happened. I didn't have the language to explain why I was getting lost so close to the room and it was embarrassing that I couldn't figure things out and feel confident in a space like other kids did. I knew I could look up and not know where I was at random or how to get where I needed to go. I have a very poor short term memory, always instantly forgetting keys, phone, purse and forgetting to do certain tasks from even familiar sequences, I have difficulty placing what year something happened or what order a series of events took place in, often having slightly different memories than other people do of the same event. I have learned certain details of my memory may or may not be exactly like what happened or when I remember it having happened. For instance I could remember the colour red when something was blue, or remember someone as being there who might not have been, I have chronic sleep problems (frequent, vivid nightmares, sleep paralysis, insomnia since I was little), a feeding disorder that led to malnourishment and starvation for which I was hospitalized long term as a toddler, a weak immune system, eye health problems, genito-urinary defects causing frequent infections and chronic pelvic pain, chronic joint pain, gastrointestinal IBS like symptoms, consistently very high levels of inflammation, a high pain tolerance, but sensitive to textures and sounds (one of the SD traits), these sensations can hurt or feel overwhelmingly unnerving. I correlate letters with numbers and those letters and numbers at times have colours I associate closely with them as well, so that if I am thinking either e, 3, or orange, I may start to write down any one of the three things. I lack the ability to visualize or picture things (aphantasia), and thought everyone was speaking figuratively until well into my 20s. I'm gregarious , kind, and love people, to the point of having no fear of people and trust everyone, which has been an influence I believe in the times I have been assaulted. Not that those times were my fault, I'm just more vulnerable to people who are looking for a target, because of my disability. My friends and family have always been concerned with those traits because I would walk right up to people they would read as not being approachable and start a conversation just like I would with anyone. I did not receive a diagnosis until adulthood and still have not seen a neurologist or had a neuropsych assessment, as my family doctor who doesn't understand the condition and had never heard of it before me, says I don't need and that the waitlist would be too long so why bother. So if I were to see a neuropsychologist privately, it would be extremely expensive. I grew up knowing my brain worked differently, but in a way that left teachers scratching their heads in rural Canada in the 90's. I seemed bright, engaged, interested and like I was understanding the concepts in class and then my assignments would be incorrect no matter how hard I tried, I feel like I needed at least double the time to practice as other students did to be able to learn a concept. I am best at learning when I am doing the thing and following along either with video or print instructions with images of the steps, and/or when I engage in a discussion or multiple discussions about the concept. I was just expected to function like everyone else and so I tried extremely hard and learned to work hard and persevere to get anywhere near the grades my peers were getting. This left me exhausted on top of the social confusion and trying to learn how to mimic to respond appropriately and avoid some of the bullying I experienced, and the comorbid chronic physical health problems and sleep problems and I was and still am often sick with viruses and infections and get run down easily if trying to deal with stress. The funniest times with this disability are when I read billboards wrong. I've memorized a lot of shapes of letters together to help me read or understand what the word is, without having to re read as many times or linger on the word as long as I might otherwise have needed to, but they are dependent on the size and type of font. I only have a certain range of size and font types that I use this with, so when I read a sign or billboard I sometimes read it hilariously wrong and then I laugh and have to read it a few more times until I get it. Billboards are hilarious it turns out! So those are some of the aspects of having half to two thirds of my corpus callosum not developed.
I have it and I’m perfectly able to live normally Only thing was, I can remember struggling in school when I was younger, but it got better. It does take me a bit longer to hit life milestones than others but I don’t know if it’s my own laziness or what
My son has partial agenesis of the corpus callosum and is in the autism spectrum. He would be on the severe side. He’s aggressive and obsessive. What can you share about the care and long term cases?
21 and was born with Near Complete absence and 3 arachnoid cyts one being quite large other then headaches and certain behavioural and developmental issues ive been pretty much normal when considering some out there are quite physically limited i even have asd adhd etc and ive done quite well it makes you a fighter since birth
I have ACC. i was always having trouble when i was in school, as i have a slower learning curve. What took an average student a few days to learn, took me weeks. I was and am always real shy and have hard times being around other people. I tended to trust people too quickly as well (so i been told).Nowadays i am in my mid 40's and i still have some troubles being in social environments (severe shyness) but i'm doing alright otherwise. I just take my time and do as best as i can with things and do not trust people too quickly as much as i used to.
I have a lot of math issues, it doesn't like me. I also have some social awkwardness, lack of volume control, I can't drive, I'm unable to work a regular job because I can't multitask, and if I get too upset or emotional I'm no good to anyone until I calm down because I lose all sense of anything. Also have crap for memory. Not to say every case is the same, because really there's a wide range, just giving a few of my issues for you to think about.
Hello guys just wondering if anyone, could please tell me if my case has anything to do with ACC... Initially I had a mild phobia for not being aware of all things at once and also had an obsession for getting a photographic memory .I would pass my free time by trying to think of two things at once i.e. I would be listening to a teacher in class ,and at the same time, I would want to daydream of other things. But don’t get me wrong, I wasn’t multitasking, I was trying to do those two things at exactly the same time. I would practice this habit a few times a day in class, almost everyday. This habit continued until one fateful day I was doing it, and then an involuntary spontaneous mental process(SMP) struck me. Just before that point, I was trying to think of two things at exactly the same time like as if I had two brains . I would also be trying something else ,an exercise that I found on RUclips for getting a photographic memory that involved not going through the normal process a normal person uses for remembering something ,but trying to remember like remembering a picture(trying to develop a photographic memory) ,which is sort of how my illness is now, because now I can’t coordinate my full brain to recall and therefore I am only able to recall like how I did in that exercise.(so I think they are somehow connected) I would also try some weird exercise like trying to remember in a position in which my head is not accustomed to i.e. normally when I would try to recall something, I would look up, and this was my natural position but I would change it by testing my brain to remember even by looking straight ahead.( I would do so many weird things with my head) So after that fateful moment, whenever I would try to think of anything e.g. I’m concentrating on a math number, a spontaneous mental process would strike my brain and disorganize my concentration. And ever since the SMP struck me ,my thinking has never been the same .Even when my brain is idle ,the SMP is still acting.It is only very severe when I’m trying to think of something. And I also think that, that SMP is sort of a compensation action .Since it wasn’t possible to think of two things at once, the brain tried its best to do what seemed to it like thinking of two things at once .That is sending an SMP as a reflex action ,because it knows it will be the second mental process on top of my thinking mental process. will be closest to thinking of two things at once. And its as if when the brain feels that mental sensation of fear ,it can only be quenched when a certain mental process occurs in my brain. And this mental process occurs involuntarily. The spontaneous mental process strikes the part of the brain that is responsible for the action you want to do i.e. if I’m trying to do a math number ,the front part of my brain is affected and thus I can’t do the number, or if I’m trying to remember something ,that remembering part is affected. But to be more precise , it suppresses that mental activity in the background and puts the SMP in the foreground. And whenever the SMP strikes me ,I feel as if i have two conscience that want to do two different things at exactly the same time. One that is actually me ,and the one that acts because of that SMP. Its like my brain gets separated . And I feel as if, when an SMP is occurring, a part of the brain is being bypassed .And its that part that I’m trying to use . I think maybe the brain was trying to evolve in order for me to be aware of two things at once but didn’t end up the way I had hoped. For the spontaneous mental process to arise ,an excuse thought must first trigger it. e.g. When I’m going to attempt a math number ,I think, what is the use of doing the number if in the end I may get a wrong answer(This is the excuse).But when I was normal, it was normal for me to think of a negative outcome when I’m going to attempt something ,only now it comes with an involuntary spontaneous mental process. It needs that emotion to erupt. When the excuse arises in my head, it triggers the spontaneous mental process. It feels as if my brain thinks that excuse thought to infinity involuntarily which gives an infinite result which my brain comprehends (a normal mind is not supposed to be able to do that) and my brain experiences an emotion appropriate to those thoughts, which is the SMP. And what makes the SMP even harder to avoid is, when I know a certain excuse thought brings an SMP, trying to not think of that excuse thought is almost impossible. And this is mainly because of the natural +tendency of the brain to do the exact opposite of what you want it to do i.e. when you don’t want to think of an elephant, the image of the elephant pops into your head vividly. Thus making it hard as hell for the SMP not to pop into your head. And if a mental activity occurs without my intentional will, it is not affected. So mainly the SMP does not come because it has to but because it can. Let’s assume I want to do a math number, my brain will naturally generate a normal excuse thought. This excuse thought will trigger the SMP, the SMP will then overpower my brain involuntary with a mental process to compensate for the excuse thought, and the mental process is more powerful than my will power to concentrate. Therefore, In order to continue with the math number, I have to bare the pain of sharing my brain with that mental process, therefore I won’t be able to do the math number to my best. The disrupting of the concentration is what happens on the surface but I feel something happening physically in my brain i.e. the bypassing of brain parts as the reflex action. The SMP is like a mental process of its own which occurs alongside me trying to concentrate. But the brain can’t think of two things at the same time thus making it hard as hell to concentrate.(it feels like ripping my head in two parts when I’m trying to concentrate) The SMP sends is comprised of a special type of fear and my brain reacts to that fear with disrupting my concentration as a reflex action. And that SMP cannot just arise but needs to be triggered by something. That something is an excuse thought for the SMP to erupt i.e. when I’m trying to do Math, but I think I may end up getting the wrong answer and so what will be the point in doing that number. That would be a normal thought but in my case ,it triggers the SMP. This mental illness also manifests physically i.e. when I’m suspended upside down, I feel as if blood is not circulating properly through my whole brain. I feel blockages in some places. And those places are the parts affected which I can’t use because of the SMP. It’s like the SMP is blocking the parts I want to use from working. The mental illness further went into affecting mental activities that occur involuntarily e.g. seeing. This happens because it is also a concentrating type of process .Whenever I’m trying to focus my eye on something the SMP attacks the part of the brain responsible for seeing and therefore I can’t see clearly. To be more precise, I can’t comprehend the pictures I see as fast as a normal person. What I have just described to u were just initial stages of this disorder, over time it has manifested in many ways I cannot describe clearly. My brain comes up with a thought whose answer is to infinity and that brings that SMP
i'm 38 and was diagnosed with ACC last year when i went to the ER due to a seizure. when i was in utero the ultrasounds showed normal brain development, so i'm not sure how it was missed? also i was diagnosed autistic in the last couple years as well!
how do you perceive the world? have you noticed that your perception is different to others? if it is, how so? Sorry im just curious, u dont have to answer
im wondering if you could drive? My boyfriend has ACC and wants to drive but his mother is very protective and is worried his ACC would affect his driving
@@kailacook8319 as long as the ACC doesn't present eith seizure activity there should be no reason not to drive. My husband has complete ACC and has been driving for nearly 20 years :)
There has been research done to isolate the specific gene responsible for ACC. Its also close to or the same as the one commonly found anomalous in people with autism, This is why there will be multiple people across generations with the same learning disabilities or abnormal behaviors.
If ACC does NOT get worse with age.. Then why are some people with it( myself included) getting sicker as we age??? Things like muscle,nerve and joint problems? I have been told I won't be walking later in life.
My father is in his 70s now and he's just fine. Walking, talking, it really depends on what your exact situation is. I don't think this condition is a guarantee that you will have issues or that you'll have other conditions or medical issues. He doesn't even have any real medical issues other than heart issue(that just started) he's had 5 tias and that runs in his family and he may have some behavioral things that could be linked to it but he also has BPD. So honestly, I really think it's a situational thing. Go see a dr don't get your medical advice from RUclips.
As he said, there are many different outcomes when people have acc. Some people have mild problems,like hard time to read,or motoric difficulties,some who have severe problems can be unable to speak,walk or some other issues. It really vary from case to case.
My husband has complete ACC. He does have dyslexia but he can drive, has been in work since he left college and has been a wonderful father to our 2 children. 😊 Also, he will be 40 in December. I am very lucky to know this wonderful man 🥰
my son having acc...now he is 12 years ..he can't able to speak properly nd he has behavior problem as u told..i want more information from u....where we can consult u? pls let me know through reply...
lakshmi lakshmi where r u from ? My son has it too and he is 12 he has severe speech delay and behavioral issues Let’s at least connect so we can share our experience and learn from it for the benefit of our kids
My son having acc. Now he is 3 years old, he cant walk & speech delay. We stay in Indonesia. May you can help me. I need guide from you, thanks anyway..
@@barbarasmith4560 im wondering if you could drive? My boyfriend has ACC and wants to drive but his mother is very protective and is worried his ACC would affect his driving
I'm 65 years old now. I didn't have any idea about this brain disruption until I was 40 plus years old. I now know why I had the difficulties I did in my grade school years. Some of my difficulties over time were facial recognition and remembering names to faces. I have been able to hold down a decent job in the past. The biggest problem though has been the social interaction aspect. My peers shunned me me when I was younger because of my slowed development. However by 21 years of age I had caught up. I did 13 years military service until some unrelated health problems stopped my progression and discharged honorably. I did very well while I was in service and finished top of the class several times.
I’m 34, have (don’t have?) ACC, and I’m fuckin amazing. Marine corps service, mba in human resource management, bachelors in criminal justice, multiple properties, landlord, spca volunteer, and a Scorpio. I’m doin just fine.,
@user-z1u4u I don’t think comparison is good for any reason, I think I am happy to fight against something that has been a shift in my growth. But through God and Jesus Christ, we are able go on. And be neighborly.
@user-z1u4u comparison is the thief of joy.
My brother was born with this, unfortunately he has a very hard time interacting with people, but he is very very smart . All through grade school and college maintained straight A’s.
Amazing! What is he up to nowadays?
I was born premature, almost 7 months old, with spastic hemiplegic cerebral palsy, which slightly affected my right leg. I have a little difficulty remembering the paths I took, I don't remember much about my childhood, distant family members. I feel a little different, I don't have friends, I'm sociable, but I don't connect with other people. After living with this for most of my life, I decided to see a neurologist, who gave me an MRI, the result was colpocephaly, but my corpus callosum was not damaged. I haven't spoken to the doctor yet about the result, I'm undergoing a neuropsychological evaluation and will receive the diagnosis. I finished high school and in college I got a lot of low grades. I work in a store as a cashier.
I have this condition and my learning curve as a kid was slow and huge. I did not get a proper education as i was in special education. Now i find myself slowing down and i can't get some jobs due to my inability to calculate mathematics well enough. and what people without this condition can learn in a few days to a week, takes me maybe 3 to 4 times that.I do not have a corpus callosum and my neurologist said that i should have been born one of three ways.. still born, a living vegetable or have multiple personality disorder. And yet look where I'm at today at age 52. Yeah...I'm slower at many things...but I'm alive and doing my best for what I am.
God bless you 🙏
this is my son's doctor for the past 10 years. he's at the University of San Francisco
What was ur son problems
My dad has a PhD
@@streetcitylife kya problem h apko plz btaiye, mere baby ko b h
I have the agenesis of the corpus callosum and it led me to study in a school for dyslexia
Rip
@@artemis3306 I know right lol
I’m just going through it and dealing with it, and I just got a scholarship from a college!
@@Revelie Congradulations!
My five year old grandson has this disorder and up to now is otherwise perfectly normal in all respects. A bright, healthy and active youngster. All cases are different but so far so good.
Good to hear that, even my son has same issue. But as of now he is good, but growth is very late.
@@teluguoffice5498 apka mob no. Dijiye plz
Yes same for my daughter, we just recently found out about her diagnosis the weekend we had to drop her off at college. She always had trouble riding a bike, and some difficulty intellectuals but she did well enough to be accepted by her university. She’s a very determined young woman who strives for an equal advantage amongst her peers. She takes vitamins like magnesium and b2 400mg that help with her focus and energy levels. She struggles at times but together we find a good balance or the proper solution
My son has a tumor in his corpus callosum, and it affects how he learns. He needed some help in school, but the impact has been mild. The interesting thing was that I had more success helping him with schoolwork than conventional tutors. He also had a craniotomy for a temporal lobe ganglioglioma. Interesting to note, there is a familial history of temporal lobe seizure activity. His brother and I are receiving treatment for seizure disorder.
May ALLAH PAK bless your family members with safe and sound health.Aamin
@@drziauddinkhalil2152 Lift high the name of Jesus!
I have it. Doesn’t really affect me. Im just reaalllllyyy shy lol.
You got something in common with a Kangaroo and Opossum for lacking one. Don't take it in a negative light. I am glad you got help for it atleast? ( Trying not assume at all )
I used to find agenesis of the corpus callosum when I was an ultrasonographer many years ago. I often wondered how those children functioned later in life. - Thanks!
i have it you just have to find a way to work around it
@@bonehead5000 can u help me in this my sister's baby was suffering from it plzz
I've learned to counteract it a bit. My IQ helps mask it some, and you just kind of figure out your weak points and don't try to trigger anything.
@@saleemshaik6855 suffering?
I was only diagnosed in my late 30s but have suspected learning disabilities (dyslexia, test anxiety, dyscalculia, dyspraxia, difficulty with time management), some ASD traits (including difficulty reading fear, anger, and aggression in facial expressions, also difficulty seeing gender differences in faces, difficulty understanding some psychosocial behaviour- particularly arbitrary seeming hierarchical structures that include hypocricy, imbalance of "power", and disrespecting others), difficulty processing spatial information, navigating, telling left from right. These things take a long time for me to figure out and once I do, an even longer time to try to communicate if I need to. I often get lost in familiar places like my apartment building and need to figure out where I am. This feeling was highly upsetting to me especially as a child and still causes me anxiety. I cried a lot in the halls of my school because I didn't know where to go and often feared I wouldn't find my way back to class in time which sometimes happened. I didn't have the language to explain why I was getting lost so close to the room and it was embarrassing that I couldn't figure things out and feel confident in a space like other kids did. I knew I could look up and not know where I was at random or how to get where I needed to go.
I have a very poor short term memory, always instantly forgetting keys, phone, purse and forgetting to do certain tasks from even familiar sequences, I have difficulty placing what year something happened or what order a series of events took place in, often having slightly different memories than other people do of the same event. I have learned certain details of my memory may or may not be exactly like what happened or when I remember it having happened. For instance I could remember the colour red when something was blue, or remember someone as being there who might not have been, I have chronic sleep problems (frequent, vivid nightmares, sleep paralysis, insomnia since I was little), a feeding disorder that led to malnourishment and starvation for which I was hospitalized long term as a toddler, a weak immune system, eye health problems, genito-urinary defects causing frequent infections and chronic pelvic pain, chronic joint pain, gastrointestinal IBS like symptoms, consistently very high levels of inflammation, a high pain tolerance, but sensitive to textures and sounds (one of the SD traits), these sensations can hurt or feel overwhelmingly unnerving.
I correlate letters with numbers and those letters and numbers at times have colours I associate closely with them as well, so that if I am thinking either e, 3, or orange, I may start to write down any one of the three things. I lack the ability to visualize or picture things (aphantasia), and thought everyone was speaking figuratively until well into my 20s. I'm gregarious , kind, and love people, to the point of having no fear of people and trust everyone, which has been an influence I believe in the times I have been assaulted. Not that those times were my fault, I'm just more vulnerable to people who are looking for a target, because of my disability. My friends and family have always been concerned with those traits because I would walk right up to people they would read as not being approachable and start a conversation just like I would with anyone.
I did not receive a diagnosis until adulthood and still have not seen a neurologist or had a neuropsych assessment, as my family doctor who doesn't understand the condition and had never heard of it before me, says I don't need and that the waitlist would be too long so why bother. So if I were to see a neuropsychologist privately, it would be extremely expensive. I grew up knowing my brain worked differently, but in a way that left teachers scratching their heads in rural Canada in the 90's. I seemed bright, engaged, interested and like I was understanding the concepts in class and then my assignments would be incorrect no matter how hard I tried, I feel like I needed at least double the time to practice as other students did to be able to learn a concept. I am best at learning when I am doing the thing and following along either with video or print instructions with images of the steps, and/or when I engage in a discussion or multiple discussions about the concept.
I was just expected to function like everyone else and so I tried extremely hard and learned to work hard and persevere to get anywhere near the grades my peers were getting. This left me exhausted on top of the social confusion and trying to learn how to mimic to respond appropriately and avoid some of the bullying I experienced, and the comorbid chronic physical health problems and sleep problems and I was and still am often sick with viruses and infections and get run down easily if trying to deal with stress.
The funniest times with this disability are when I read billboards wrong. I've memorized a lot of shapes of letters together to help me read or understand what the word is, without having to re read as many times or linger on the word as long as I might otherwise have needed to, but they are dependent on the size and type of font. I only have a certain range of size and font types that I use this with, so when I read a sign or billboard I sometimes read it hilariously wrong and then I laugh and have to read it a few more times until I get it. Billboards are hilarious it turns out! So those are some of the aspects of having half to two thirds of my corpus callosum not developed.
1:20 - problem solving issues and maths is my biggest battle
I have Agenesis and thanks to this vid I understand
I have it and I’m perfectly able to live normally
Only thing was, I can remember struggling in school when I was younger, but it got better. It does take me a bit longer to hit life milestones than others but I don’t know if it’s my own laziness or what
hello my daughter was born with corpus callosum agenesis. you are the hope :)
My son has partial agenesis of the corpus callosum and is in the autism spectrum. He would be on the severe side. He’s aggressive and obsessive. What can you share about the care and long term cases?
21 and was born with Near Complete absence and 3 arachnoid cyts one being quite large other then headaches and certain behavioural and developmental issues ive been pretty much normal when considering some out there are quite physically limited i even have asd adhd etc and ive done quite well it makes you a fighter since birth
My son has ACC and has learning difficulties, impulsiveness and difficulty with social interactions with kids his age.
micksmom2 im 17 and im very shy. Its tough
micksmom2 yes even my son also facing this...In which school he s studying? Normal school or special school?
I have ACC. i was always having trouble when i was in school, as i have a slower learning curve. What took an average student a few days to learn, took me weeks. I was and am always real shy and have hard times being around other people. I tended to trust people too quickly as well (so i been told).Nowadays i am in my mid 40's and i still have some troubles being in social environments (severe shyness) but i'm doing alright otherwise. I just take my time and do as best as i can with things and do not trust people too quickly as much as i used to.
I have a lot of math issues, it doesn't like me. I also have some social awkwardness, lack of volume control, I can't drive, I'm unable to work a regular job because I can't multitask, and if I get too upset or emotional I'm no good to anyone until I calm down because I lose all sense of anything. Also have crap for memory. Not to say every case is the same, because really there's a wide range, just giving a few of my issues for you to think about.
hello my daughter was born with corpus callosum agenesis. you are the hope :)

Hello guys just wondering if anyone, could please tell me if my case has anything to do with ACC...
Initially I had a mild phobia for not being aware of all things at once and also had an obsession for getting a photographic memory .I would pass my free time by trying to think of two things at once i.e. I would be listening to a teacher in class ,and at the same time, I would want to daydream of other things. But don’t get me wrong, I wasn’t multitasking, I was trying to do those two things at exactly the same time. I would practice this habit a few times a day in class, almost everyday. This habit continued until one fateful day I was doing it, and then an involuntary spontaneous mental process(SMP) struck me.
Just before that point, I was trying to think of two things at exactly the same time like as if I had two brains .
I would also be trying something else ,an exercise that I found on RUclips for getting a photographic memory that involved not going through the normal process a normal person uses for remembering something ,but trying to remember like remembering a picture(trying to develop a photographic memory) ,which is sort of how my illness is now, because now I can’t coordinate my full brain to recall and therefore I am only able to recall like how I did in that exercise.(so I think they are somehow connected)
I would also try some weird exercise like trying to remember in a position in which my head is not accustomed to i.e. normally when I would try to recall something, I would look up, and this was my natural position but I would change it by testing my brain to remember even by looking straight ahead.( I would do so many weird things with my head)
So after that fateful moment, whenever I would try to think of anything e.g. I’m concentrating on a math number, a spontaneous mental process would strike my brain and disorganize my concentration.
And ever since the SMP struck me ,my thinking has never been the same .Even when my brain is idle ,the SMP is still acting.It is only very severe when I’m trying to think of something.
And I also think that, that SMP is sort of a compensation action .Since it wasn’t possible to think of two things at once, the brain tried its best to do what seemed to it like thinking of two things at once .That is sending an SMP as a reflex action ,because it knows it will be the second mental process on top of my thinking mental process. will be closest to thinking of two things at once.
And its as if when the brain feels that mental sensation of fear ,it can only be quenched when a certain mental process occurs in my brain. And this mental process occurs involuntarily.
The spontaneous mental process strikes the part of the brain that is responsible for the action you want to do i.e. if I’m trying to do a math number ,the front part of my brain is affected and thus I can’t do the number, or if I’m trying to remember something ,that remembering part is affected. But to be more precise , it suppresses that mental activity in the background and puts the SMP in the foreground.
And whenever the SMP strikes me ,I feel as if i have two conscience that want to do two different things at exactly the same time. One that is actually me ,and the one that acts because of that SMP. Its like my brain gets separated .
And I feel as if, when an SMP is occurring, a part of the brain is being bypassed .And its that part that I’m trying to use .
I think maybe the brain was trying to evolve in order for me to be aware of two things at once but didn’t end up the way I had hoped.
For the spontaneous mental process to arise ,an excuse thought must first trigger it. e.g. When I’m going to attempt a math number ,I think, what is the use of doing the number if in the end I may get a wrong answer(This is the excuse).But when I was normal, it was normal for me to think of a negative outcome when I’m going to attempt something ,only now it comes with an involuntary spontaneous mental process.
It needs that emotion to erupt.
When the excuse arises in my head, it triggers the spontaneous mental process.
It feels as if my brain thinks that excuse thought to infinity involuntarily which gives an infinite result which my brain comprehends (a normal mind is not supposed to be able to do that) and my brain experiences an emotion appropriate to those thoughts, which is the SMP.
And what makes the SMP even harder to avoid is, when I know a certain excuse thought brings an SMP, trying to not think of that excuse thought is almost impossible. And this is mainly because of the natural +tendency of the brain to do the exact opposite of what you want it to do i.e. when you don’t want to think of an elephant, the image of the elephant pops into your head vividly. Thus making it hard as hell for the SMP not to pop into your head. And if a mental activity occurs without my intentional will, it is not affected. So mainly the SMP does not come because it has to but because it can.
Let’s assume I want to do a math number, my brain will naturally generate a normal excuse thought. This excuse thought will trigger the SMP, the SMP will then overpower my brain involuntary with a mental process to compensate for the excuse thought, and the mental process is more powerful than my will power to concentrate. Therefore, In order to continue with the math number, I have to bare the pain of sharing my brain with that mental process, therefore I won’t be able to do the math number to my best.
The disrupting of the concentration is what happens on the surface but I feel something happening physically in my brain i.e. the bypassing of brain parts as the reflex action.
The SMP is like a mental process of its own which occurs alongside me trying to concentrate. But the brain can’t think of two things at the same time thus making it hard as hell to concentrate.(it feels like ripping my head in two parts when I’m trying to concentrate)
The SMP sends is comprised of a special type of fear and my brain reacts to that fear with disrupting my concentration as a reflex action.
And that SMP cannot just arise but needs to be triggered by something. That something is an excuse thought for the SMP to erupt i.e. when I’m trying to do Math, but I think I may end up getting the wrong answer and so what will be the point in doing that number. That would be a normal thought but in my case ,it triggers the SMP.
This mental illness also manifests physically i.e. when I’m suspended upside down, I feel as if blood is not circulating properly through my whole brain. I feel blockages in some places. And those places are the parts affected which I can’t use because of the SMP. It’s like the SMP is blocking the parts I want to use from working.
The mental illness further went into affecting mental activities that occur involuntarily e.g. seeing. This happens because it is also a concentrating type of process .Whenever I’m trying to focus my eye on something the SMP attacks the part of the brain responsible for seeing and therefore I can’t see clearly. To be more precise, I can’t comprehend the pictures I see as fast as a normal person.
What I have just described to u were just initial stages of this disorder, over time it has manifested in many ways I cannot describe clearly.
My brain comes up with a thought whose answer is to infinity and that brings that SMP
:'(
hello my daughter was born with corpus callosum agenesis. you are the hope :)

0:55 having a flashback to his medschool Exams
Looking for a neurologist/physiatrist in South Florida for a 30 year old man with partial agenesis of the corpus callosum.
Does it could damage by an accident...
Would stem cell therapy be helpful for someone with ACC?
I have this GANG GANG GANG
i'm 38 and was diagnosed with ACC last year when i went to the ER due to a seizure. when i was in utero the ultrasounds showed normal brain development, so i'm not sure how it was missed? also i was diagnosed autistic in the last couple years as well!
I have acc of the brain and I live life just fine
Really that's beautiful god bless u my 15 year old daughter has it
how do you perceive the world? have you noticed that your perception is different to others? if it is, how so? Sorry im just curious, u dont have to answer
im wondering if you could drive? My boyfriend has ACC and wants to drive but his mother is very protective and is worried his ACC would affect his driving
Never learned to drive
@@kailacook8319 as long as the ACC doesn't present eith seizure activity there should be no reason not to drive. My husband has complete ACC and has been driving for nearly 20 years :)
ok i need to get ahold of this guy. my daughter and i have ACC. is there a correlation between that factor that we both have it. is it hereditary.
I'm only just learning about ACC myself, however I believe there is a 50% chance that a parent with ACC will pass it on with each pregnancy.
i didn't know i had acc until after i had an MRI from a work related accident.But it explained my childhood/life in a nutshell when i had that MRI.
There has been research done to isolate the specific gene responsible for ACC. Its also close to or the same as the one commonly found anomalous in people with autism, This is why there will be multiple people across generations with the same learning disabilities or abnormal behaviors.
If ACC does NOT get worse with age.. Then why are some people with it( myself included) getting sicker as we age??? Things like muscle,nerve and joint problems? I have been told I won't be walking later in life.
I'm 51 and have fibromyalgia and a lot of nerve damage
My doctors told me that it is degenerative and I'm 43 now and I've definitely noticed changes for the worse.
My father is in his 70s now and he's just fine. Walking, talking, it really depends on what your exact situation is. I don't think this condition is a guarantee that you will have issues or that you'll have other conditions or medical issues. He doesn't even have any real medical issues other than heart issue(that just started) he's had 5 tias and that runs in his family and he may have some behavioral things that could be linked to it but he also has BPD. So honestly, I really think it's a situational thing. Go see a dr don't get your medical advice from RUclips.
Oh fuck I hope this won't be my case later. 😰😞
@@scbtripwire my health issues turned out to be from ehlers Danlos a genetics test confirmed it. Not from ACC.
wanna chat with me about ACC anr related problems?
grettagrids yes please give your number
Plz I want some details
Anyone who could anwser this does ACC affect your ability to drive, get a job or graduate school?
As he said, there are many different outcomes when people have acc. Some people have mild problems,like hard time to read,or motoric difficulties,some who have severe problems can be unable to speak,walk or some other issues. It really vary from case to case.
My husband has complete ACC. He does have dyslexia but he can drive, has been in work since he left college and has been a wonderful father to our 2 children. 😊 Also, he will be 40 in December. I am very lucky to know this wonderful man 🥰
my son having acc...now he is 12 years ..he can't able to speak properly nd he has behavior problem as u told..i want more information from u....where we can consult u? pls let me know through reply...
lakshmi lakshmi where r u from ? My son has it too and he is 12 he has severe speech delay and behavioral issues
Let’s at least connect so we can share our experience and learn from it for the benefit of our kids
miraclehandslk hi this s Lakshmi...Iam staying in Bangalore only... Give me your number I will call you
Lakshmi mam i am from India. Please share your contact number. My 5 year daughter is suffering in this disease and i wish your help.
My son having acc. Now he is 3 years old, he cant walk & speech delay. We stay in Indonesia. May you can help me. I need guide from you, thanks anyway..
My son 3years old he cant walk talk and sit he had Acc😪
Can i talk to you about this.
@@arifuddinahmed4693 hello brother, does your child have problems also? What country are you in?
My grandson 2 years an 3months an I only heard him say momma once an that was after a crying fit
How is your son now? My son has acc and is 3 and is exactly as you described your son at 3. He also has seizures.
I have some problems too.. i am in Indonesia..
I have it and also feel like I am getting worse, I am 34 now.
I just found out I have it I'm 51. My mom never knew. We never discussed anything like this.
@@barbarasmith4560 oh wow
@@barbarasmith4560 im wondering if you could drive? My boyfriend has ACC and wants to drive but his mother is very protective and is worried his ACC would affect his driving
ahmm
My dad has a PhD