STRUGGLING WITH LONG VIDEOS? ✅ Subscribe to my weekly newsletter for a bullet-point summary from our latest recovery interview 💌 mailchi.mp/3bd95045319b/raelan-agle
I always love listening to both of you. I recently watched a video with Wim Hof explaining how a cold shower in the morning calms the nervous system for the day. So I decided to devote the month of March to cold showers first thing after I wake up and I have to say the last 6 days have been really good. I hope to share my story one day but I’ve gone from bed bound and suffering from about 40 symptoms about three years ago to taking my kids fishing today. Still have a ways to go but I’m slowly getting my life back!
No I’ve been doing brain retraining for about a year now but it seems to be just another layer to my healing journey. I’m going to do it for the month of March then stop for a bit and see what happens. I still get symptoms but they seem to be less intense and not as long in duration.
Are we sharing the same life lol? I also fell ill 3 years ago, suffering from about 40 symptoms. Am a mom to 3 kids. I’ve been doing cold shower rinses for over 2 years. But it wasn’t until I learned about TMS and started working with a coach that I am starting to feel the benefits of the cold. Knowledge therapy is powerful and makes us more resilient. Wish you all the best on your recovery!
Have to attest that knitting saved my sanity. I used to sew everything but when I got CFS in 1995 I couldn’t sit up and hunch over a machine anymore so I took up an old hobby of knitting. Not only was it meditative with the repetitive stitches but I felt like I was still contributing something. I was bedbound for a very long time and had 4 year old twins so being able to at least knit them sweaters felt like something I could still do for them. When I was too exhausted to do that and my arms were too weak, I spent the days looking through my knitting magazines. It gave me something to look forward to. The smallest accomplishments became huge to me. I still knit, but go out to regular knitting meetings, and travel with friends on knitting retreats. It’s been my friend through all of this. I still am not “normal” but a lot of it relates to scoliosis which is affecting the way I move. CFS wise, anxiety is still there but I would say I’m 80% and with all this new knowledge I’m positive I’ll get to at last 95%. In 1995 we still has to read about CFS from library books so we’ve come a long way.
Thanks for sharing this beautiful reflection. My grandma recently passed and she was a big crocheter, so I'm learning to crochet. I'm thinking it'll also help me to have something I can do that doesn't deplete me when my energy is running low. I hope you're doing well. :)
@@jayverasummer thank you. I am doing well and hope you are too. Crocheting is just as meditative and I think when you get into the rhythm it’s very relaxing for your mind and body. Good luck with it all 🤗
Wonderful interview!!! You are both amazing ladies and I continue to see how people who get CFS are, for the most part, truly lovely people. When Rebecca said animals, it is so true. I adopted five wild horses (a lifelong dream) and I knew I still had a way to go to recover, but I find they bring me peace, and motivation to be grounded and healed. Thank you awesome ladies!!!!🙏🏻🙏🏻🙏🏻🙏🏻
It’s crazy all the stuff we go through to try to heal. The fact that we are willing to spend so much time, energy, and money on anything attests to how horrendous this condition is. Thanks for sharing your story. ❤
1000% agreed about knowing which state we are in. As soon as I realized my brain and body were holding on to old unprocessed traumas, I made the link that they were all based on being in freeze mode. I worked on all of those and improved dramatically. In addition to many other mind body elements, now it’s healing some of the other stuff and I’m getting back to work slowly. Great interview.
This is your absolute best interview. Rebecca is explaining the theory so well. Makes me understand why things has worked for me and also why I have been stuck. I now understand what I shall prioritize to finally get 100% well
I loved this interview...a great topic to discuss 💖 I really think these non recovery story videos hold so much value You've covered most topics but I'd like to see more talked about relationships...how we navigate that during our recovery with friends, family and partners...or how we don't navigate it successfully in some instances! Also how we navigate things during what I call the re integration phase...starting to socialise/ build new friendships etc etc. Hope that makes sense 🙂
Greetings everyone, Drbeen Medical Lectures (Mobeen Syed Md) sent me here! Thanks for sharing this info to help others... Stay safe and take care of you and yours.
The more i watch all these cfs videos the more i am convinced its core is about calming the CNS and brining the parasympathetic system to the front as opposed to sympathetic fight or flight. Gupta, TMS and all these programs are all the same in the core: calm the central nervous system and take away triggers like stress work, lifestyle (diet, exercise ect.)
So happy to see another interview with Raelan and Rebecca! Always learn something new! I follow TMS approach and also see the connection with phobias but also anxiety and panic disorder x eg: if you’re having a panic attack and use that somatic tracking approach by just feeling the symptoms as a neutral curious observer its like your brain just goes ‘oh she’s ok, i dont need to send danger signals then’ and you calm down so much quicker x thanks for your clear explanations rebecca, always love your videos ❤
Wow, I‘d like to give you both three thumbs up, five stars and 🤗 and 😘 and….. This is so much needed! I will share the link in the ME/CFS-Group I‘m following, hoping that people will be really listening to it. Most of them seem to reject every thought about how much our psyche and personality is involved, probably due to the experience, that the only thing most doctors and insurances here in Germany have to offer to you is a diagnosis of psychosomatic disorder combined with a standard activating therapy that made them even sicker. Thank you so much for this!!!
There are some toxic groups and forums where they censor any mention of recovery / mind body healing! Jan Rothney describes this very well in her great book "breaking free". It's crazy that some people want to keep others from healing.
I love this interview! I have watched it multiple times. I agree with so much of this. I still need to step up being in the moment, engaging senses more, and getting out of my head. I WILL interview with you someday, Raelan. I have 43 years time served. I appreciate the comment about being in it a long time. I do think it makes it harder to break long standing patterns. I WILL recover.
really helpful to distinguish between symphonic and dorsal nervous system, and that they both need different input. I also feel inspired by taking a position of 'tracking' the sensations in the body rather than using it sensation awareness to fuel my worry and mistrust of my body by trying to determine if the sensations are a message something is going wrong. In the end it seems all common sense as we all know how to help an anxious child or animal to re establish their equilibrium.
This was wonderful and really inspiring. Thank you both for your work to help everyone with these nervous system-related symptoms. So many great points here that I have learned through this interview.
Thank you for talking about life after recovery! I don’t consider myself fully recovered YET but I’ve made leaps and bounds since working with a coach. I’ve recently discovered that my job may have been a contributing factor to my illness. Not the cause, but a huge anchor and I actually just put in my 2-week notice. I thought I loved my job, but there is a correlation between symptoms and when I started. My coach and I are interested to see what my symptoms do after my last day. 😅 Even so, I am rediscovering my true self during this journey, and my job wasn’t tending to that. To my utter surprise. So in this regard, I am thankful for this TMS journey.
Yah! I'm happy to hear you're having these realizations and healing leaps, Lianne. It's a process for sure, but it sounds like you're on the right path and we're rooting for you! 😍
@@rebeccatolinmind-bodycoach Rebecca, thank you always for your encouragement! I recently gave you a shoutout on my Twitter account (just search my name) as your videos have been an integral part of my recovery journey also. I wanted to spread the word on that platform too.
@@liannevalle That's so appreciated Lianne! Thank you for your kind words and for sharing my work. And I'm so happy that my videos have supported you in your recovery journey!! 😍
I was starting to recover and went through this phase, from shutdown to fight or flight. And I experienced a huge peak in my anxiety. As I didn’t know how to manage such crazy amount of anxiety, I crashed back down to dorsal for a very long time. Now that I know what to expect I hope the next transition will be a little bit easier!
Love this interview. I am doing all the mind/body practices mentioned here, in the #primaltrust program by Dr Cathleen King, who I discovered on this channel❤! We also go into the science behind what is happening and why the practices are important. The only difference is that this program is designed for all chronic illness which is a result of a maladaptive/chronic stress response. This interview just confirms that the mind/body approach (with somatics) is a major part of the healing process.
I think there is a huge caveat when it comes to selfishness. Modern self help / therapies and so on, constantly talk about boundaries and saying no, etc.. But what I observe is that people become even more consumed by their own existence. This most likely doesn't apply to people with CFS, so it depends where is your starting point. But we certainly don't need more selfishness in society. We could actually use less. But then again, for people with never ending guilt and people pleasing tendencies and with no boundaries, of course more selfishness is needed. So it really really depends.
Absolutely, I think balance is key and having a sense of community. I care but also rest and I accept support from those in my community as well as offer mine when I can but not to the point where I burn🙏
@@samiad357that's a very healthy approach and so it should be. And as I said, with all of these self help advices (even outside CFS community) I see people actually losing the idea of what it is to sacrifice some amount of comfort for community, loved ones, friends, family. I just had a need to say that. :)
@@djVania08I am in 100% agreement with you. The people who need to hear this message are the ones who will never take it to heart. This is all a careful balancing act. There is so much value in helping others, but we must also take care of our own body and mind. At no point should anyone ever become callous to the needs of others.
Setting boundaries and putting yourself first is good for you psychologically. Self-care is NOT selfish, it's self-love. It doesn't mean you don't help in the community, volunteer, aid a friend. It just means you don't do it automatically to the point where you endanger your OWN health. You just learn to value yourself as much as you do other people. A good thing!
I had a big shift out of my life long trauma pain after understanding the science of pain only being a signal in the brain but now it is all back to where it was and almost worse. I started on graded exposure and it seemed wonderful but now that is not even possible anymore as I'm crippled with trauma again.
Thank you so much for this interview (and all of your interviews). A lot of what Rebecca discusses is what's in the Heal Your Nervous System program by Dr. Linnea Passaler that I've been doing. It'd be awesome if you could interview her one day too!
Graham... thank you! I appreciate your support and you continue to inspire me to show more gratitude to others. For instance, I've started sending financial contributions to my meditation teacher through the app he uses. I probably wouldn't have done that without your solid example of this. Thank you for being you 💛
The ladder analogy and symptoms as a message is interesting. Has anyone else noticed how certain or patterns of symptoms can disappear and reappear based on our current baseline of being ‘normal’? I’ve had some symptoms return from when I was last at my current baseline level of activity.
Thank you for this content and the work you do to support this community! Regarding the mind-body healing approach for someone who has viral triggered ME/CFS, is the concept that we can enable our bodies to fight the viruses into remission by calming the overactive nervous system? Would the change (e.g., reactivated EBV being knocked into remission through mind-body healing) show up on an IgG test?
I love these stories but I'm always intrigued about how these people who can barely get out of bed and can't work, sometimes for a decade or more, still manage to have a safe roof over their heads for all that time, a household that's maintained (whether a washer and dryer needs replacing or a new roof has to be put on), have enough warmth and coolness against weather, have enough food and drink, have technology for communication maintained, and often are also able to try many many doctors and supplements. Some of us are too old to have living or healthy parents we can go back home to, or spouses that will remain strong and healthy and provide everything for us for that decade. We may have friends but they would not allow or support alternative healing. I guess we just don't hear about those people because they never do recover.
Hi Rebecca. This is excellent, thank you so much. I've got out of the freeze state now but now getting unbelievable anxiety and mood swings, what do you suggest to nudge forward out of this? Thank you, Paul
You're so welcome Paul! Congrats on getting out of freeze! That is monumental and a notch up the Polyvagal ladder. It's common for people to experience anxiety, which is a flight-fight response, after freeze and this happened to me too. Some things that can be helpful, depending on your situation: more rigorous movement (as much as you can tolerate), creative expression like dancing or drawing, breath work with an extended exhale, vagal toning through humming, singing or other vocal sounds. You might also write out your emotions freely onto the page and then rip it up! It's important to remember that even through the anxiety and moods are uncomfortable, they are not dangerous. Good luck with your continued recovery!
I'm also there Paul, especially the anxiety. I did have a period where lots of stored (or frozen) emotions came up, especially anger, fear, and sadness. This is a good thing, it means we're now feeling safe enough to feel them. It's just overwhelming after being in freeze, so we need to take it slowly and titrate. What has helped me a lot is naming the emotion, and then sitting with it, acknowledging what it feels like. I had good people around me at the time, who held me and listened to me when this happened. Also did it by myself a lot. I told people around me I wasn't angry with them too, so they wouldn't be intimidated by my feelings 😂 EFT was a great help too, with Brad Yates here on YT. That often helps me with anxiety as well. Severe anxiety is so difficult to experience, isn't it? I can't be that physically active unfortunately and it often comes on at night where I'm really tired, and don't feel like going outside for a walk, but I've started listening to funny jokes and it's actually helping. Watching animal videos. Before I tried to stay with the feeling of anxiety, but that often didn't really help and became too overwhelming after a moment or while, so after talking to my psychologist, I've started distracting myself with things, showing my brain I don't need to focus on anxiety/danger and that it's safe to just do something else. Like listening to a podcast or audiobook, watching a show or movie, moving to music. When the distractions don't work, in my worst times, I've had to call someone to not feel alone. Also taking a cold shower, or dipping my face in cold water. Trying to stay connected to the body, standing firm, stomping on the floor/ground. What is my no 1 thing to feel safe though, is physical intimacy, someone else's nervous system, but since I live alone that's often not possible at night. Maybe it's different for you, hope you get through this soon, all the best! ❤
@@rebeccatolinmind-bodycoach Hey Rebecca, good to see you here, I've just started watching this interview 😊 A question, when we get into anxiety, and you say it's fight or flight, is it a good thing to allow the body to do just that, to fight or flee in that moment? As to allow the body to follow through what we previously couldn't and went into freeze instead? ❤
@@rebeccaledam7544 Likewise, Rebecca! Yes, it's often a helpful strategy to allow the body to move how it wants when you're in flight or fight. It's also helpful to do so with awareness. You can try several different strategies: reminding yourself that while it feels like it, you're not actually in danger. And/or you can imagine fighting or fleeing from a subject/object that feels threatening. This can bring a palpable release. It can be hard to sit still when you're biology is primed for defense. We want to work with our biology while harnessing our higher brain centers. This can help prevent us from falling back into freeze. Great question and I hope this helps!💞
I’m confused about brain/system training, as it seems there are many different approaches. Is healing a dorsal/freeze state different from healing the nervous system? How does somatic training differ from the typical brain training program?
Hi. I’m curious about what kind of gentle stimulation you’d suggest for a freeze state? Also, would you suggest the Curable App for accompanying pain or brain/pain sensations in the arms and perhaps even for post exertion flare ups? I know you suggested graded exposure for movement. Somatic tracking would be a good thing to do for that?
Great questions! To coax yourself out of a freeze state, here are some ideas: gentle, mindful movement like yoga, qigong, walking etc. It could even be dancing or shaking in a free, organic way that matches your energy level. Nature is also gently stimulating. Singing, chanting, humming or other sounds are wonderful, as they activate the vagus nerve and encourage regulation. Cold water is another one, as well as breath practices like the box breath. So many to choose from.. find what works for you! The Curable App can be a great way to start with this approach. Yes, you can use somatic tracking in a more active way as well. It's similar to graded exposure we also activate the imagination with graded exposure. I hope this helps!💖
Hm, so when I use my body and it goes bonkers and I stop and rest for days and weeks because I love my body and it’s systems and try to take care of it as best as I can because it is trying to keep me alive as is it’s primary purpose. It means that I’m afraid of moving it and that fear is my biggest enemy? Why then am I brave enough to repeat my cycle of using my body again and go through the same process of physical agony over and over again, year after year, decade after decade if fear of my systems reaction is my nemesis? Poppycock.
Honestly gives me pause when someone says I heard four words and then ran around the block. Just furthers the misperceptions around invisible illnesses.
I agree. Those four words "You are not sick." are not only not true, they're harmful. I am all for healing through the mind/body connection, but that doesn't mean this isn't a legitimate illness that makes people very sick. There's plenty of research showing abnormalities in the bodies of ME/CFS patients, one being micro-clotting. Healing may still be possible, but we can't deny reality in the process.
The polyvagal theory is not supported by much research. Even tho the guest explains it as fact, it is a theory that is not accepted by most neuroscientists. The person who invented the theory is a psychologist.
STRUGGLING WITH LONG VIDEOS?
✅ Subscribe to my weekly newsletter for a bullet-point summary from our latest recovery interview 💌 mailchi.mp/3bd95045319b/raelan-agle
Yes, Raelan, you are helping people and saving lives. I can’t thank you enough.
I always love listening to both of you. I recently watched a video with Wim Hof explaining how a cold shower in the morning calms the nervous system for the day. So I decided to devote the month of March to cold showers first thing after I wake up and I have to say the last 6 days have been really good. I hope to share my story one day but I’ve gone from bed bound and suffering from about 40 symptoms about three years ago to taking my kids fishing today. Still have a ways to go but I’m slowly getting my life back!
Wouw, so amazing! Is this only because of the cold showers?
No I’ve been doing brain retraining for about a year now but it seems to be just another layer to my healing journey. I’m going to do it for the month of March then stop for a bit and see what happens. I still get symptoms but they seem to be less intense and not as long in duration.
@@chaseoklahoma7267 thanks you for your reply.. I hope it will bring you even more!
Your welcome I hope your having a blessed day
Are we sharing the same life lol? I also fell ill 3 years ago, suffering from about 40 symptoms. Am a mom to 3 kids. I’ve been doing cold shower rinses for over 2 years. But it wasn’t until I learned about TMS and started working with a coach that I am starting to feel the benefits of the cold. Knowledge therapy is powerful and makes us more resilient. Wish you all the best on your recovery!
Have to attest that knitting saved my sanity. I used to sew everything but when I got CFS in 1995 I couldn’t sit up and hunch over a machine anymore so I took up an old hobby of knitting. Not only was it meditative with the repetitive stitches but I felt like I was still contributing something. I was bedbound for a very long time and had 4 year old twins so being able to at least knit them sweaters felt like something I could still do for them. When I was too exhausted to do that and my arms were too weak, I spent the days looking through my knitting magazines. It gave me something to look forward to. The smallest accomplishments became huge to me. I still knit, but go out to regular knitting meetings, and travel with friends on knitting retreats. It’s been my friend through all of this. I still am not “normal” but a lot of it relates to scoliosis which is affecting the way I move. CFS wise, anxiety is still there but I would say I’m 80% and with all this new knowledge I’m positive I’ll get to at last 95%. In 1995 we still has to read about CFS from library books so we’ve come a long way.
Thanks for sharing this beautiful reflection. My grandma recently passed and she was a big crocheter, so I'm learning to crochet. I'm thinking it'll also help me to have something I can do that doesn't deplete me when my energy is running low. I hope you're doing well. :)
@@jayverasummer thank you. I am doing well and hope you are too. Crocheting is just as meditative and I think when you get into the rhythm it’s very relaxing for your mind and body. Good luck with it all 🤗
@@dalede thank you! And I hope you’re doing well!
Wonderful interview!!!
You are both amazing ladies and I continue to see how people who get CFS are, for the most part, truly lovely people. When Rebecca said animals, it is so true. I adopted five wild horses (a lifelong dream) and I knew I still had a way to go to recover, but I find they bring me peace, and motivation to be grounded and healed. Thank you awesome ladies!!!!🙏🏻🙏🏻🙏🏻🙏🏻
so cooL!!! My dream is also to adopt wild horses!!!!!!!!
It’s crazy all the stuff we go through to try to heal. The fact that we are willing to spend so much time, energy, and money on anything attests to how horrendous this condition is. Thanks for sharing your story. ❤
1000% agreed about knowing which state we are in. As soon as I realized my brain and body were holding on to old unprocessed traumas, I made the link that they were all based on being in freeze mode. I worked on all of those and improved dramatically. In addition to many other mind body elements, now it’s healing some of the other stuff and I’m getting back to work slowly. Great interview.
What great insights and progress you've made! Thanks for sharing. We're rooting for you!
This is your absolute best interview. Rebecca is explaining the theory so well. Makes me understand why things has worked for me and also why I have been stuck. I now understand what I shall prioritize to finally get 100% well
I'm so happy to hear this Lars! I wish you the best prioritizing what you need to feel well. Finding clarity and agency are so key!
I loved this interview...a great topic to discuss 💖 I really think these non recovery story videos hold so much value You've covered most topics but I'd like to see more talked about relationships...how we navigate that during our recovery with friends, family and partners...or how we don't navigate it successfully in some instances! Also how we navigate things during what I call the re integration phase...starting to socialise/ build new friendships etc etc. Hope that makes sense 🙂
Greetings everyone, Drbeen Medical Lectures (Mobeen Syed Md) sent me here!
Thanks for sharing this info to help others... Stay safe and take care of you and yours.
The more i watch all these cfs videos the more i am convinced its core is about calming the CNS and brining the parasympathetic system to the front as opposed to sympathetic fight or flight.
Gupta, TMS and all these programs are all the same in the core: calm the central nervous system and take away triggers like stress work, lifestyle (diet, exercise ect.)
Yeah I came to the same conclusion.
Yes! Our body can find balance much more readily with a regulated nervous system and balanced life!
@@rebeccatolinmind-bodycoach yes thats why its crazy that traditionalnscience says only 5% recover from cfs which is clearly not true
@@DarkoFitCoach For sure, Raelan's channel is testament to all the people with CFS who are recovering!
@@rebeccatolinmind-bodycoach for sure and its a great channel. Its all about cns
So happy to see another interview with Raelan and Rebecca! Always learn something new! I follow TMS approach and also see the connection with phobias but also anxiety and panic disorder x eg: if you’re having a panic attack and use that somatic tracking approach by just feeling the symptoms as a neutral curious observer its like your brain just goes ‘oh she’s ok, i dont need to send danger signals then’ and you calm down so much quicker x thanks for your clear explanations rebecca, always love your videos ❤
Thanks so much, Sarah! And I love your explanation for somatic tracking! ❤
Well-said.
I absolutely love Rebecca Tolin's interviews
That's heartwarming to hear... thank you! 💖
Yes she’s so soothing and has a BEAUTIFUL smile that makes me smile.
Her voice is so soothing
@@sandrag6500 You're so sweet! Keep smiling Sandra! 🥰
💖
Thank you for your channel, you have no idea how much you’re helping me thank you so much ~ God bless you!
Incredible! Thank you for sharing!
Yes I get burning and say to myself, we are safe
This was such terrific interview and one I will probably go back and listen to again!
Wow, I‘d like to give you both three thumbs up, five stars and 🤗 and 😘 and….. This is so much needed!
I will share the link in the ME/CFS-Group I‘m following, hoping that people will be really listening to it. Most of them seem to reject every thought about how much our psyche and personality is involved, probably due to the experience, that the only thing most doctors and insurances here in Germany have to offer to you is a diagnosis of psychosomatic disorder combined with a standard activating therapy that made them even sicker.
Thank you so much for this!!!
There are some toxic groups and forums where they censor any mention of recovery / mind body healing! Jan Rothney describes this very well in her great book "breaking free". It's crazy that some people want to keep others from healing.
I love this interview! I have watched it multiple times. I agree with so much of this. I still need to step up being in the moment, engaging senses more, and getting out of my head.
I WILL interview with you someday, Raelan. I have 43 years time served. I appreciate the comment about being in it a long time. I do think it makes it harder to break long standing patterns. I WILL recover.
You've got this, Dee! 🧡 🧡
I loved this interview ❤ thank you
I am from Nepal🇳🇵 and you are angel for us mam. You inspirr heal million people around world❤ keep uploading video👍
I love what you do, thank you raelan
Such a great interview! So helpful! All of theses interviews strengthens my hope and confidence in recovery ❤
Such a great interview with so many helpful perspectives this has helped me hugely thank you both so much ❤
really helpful to distinguish between symphonic and dorsal nervous system, and that they both need different input. I also feel inspired by taking a position of 'tracking' the sensations in the body rather than using it sensation awareness to fuel my worry and mistrust of my body by trying to determine if the sensations are a message something is going wrong. In the end it seems all common sense as we all know how to help an anxious child or animal to re establish their equilibrium.
So true, Marianne! We need a similar approach that a scared child or animal needs in a challenging time.
This was wonderful and really inspiring. Thank you both for your work to help everyone with these nervous system-related symptoms. So many great points here that I have learned through this interview.
Yes, I do photography now❤ love this. Somatic exp is def what I need. Grounding helps me within mins
Excellent interview filled with most helpful information. I will bookmark this and review it often!
What a wonderful interview and two wonderful women!!! Loved it 😍😍😍
Thanks Martina... I'm looking forward to our conversation!
Thank you for talking about life after recovery! I don’t consider myself fully recovered YET but I’ve made leaps and bounds since working with a coach. I’ve recently discovered that my job may have been a contributing factor to my illness. Not the cause, but a huge anchor and I actually just put in my 2-week notice. I thought I loved my job, but there is a correlation between symptoms and when I started. My coach and I are interested to see what my symptoms do after my last day. 😅
Even so, I am rediscovering my true self during this journey, and my job wasn’t tending to that. To my utter surprise. So in this regard, I am thankful for this TMS journey.
Yah! I'm happy to hear you're having these realizations and healing leaps, Lianne. It's a process for sure, but it sounds like you're on the right path and we're rooting for you! 😍
That's great! What's the name of your coach?
@@rebeccatolinmind-bodycoach Rebecca, thank you always for your encouragement! I recently gave you a shoutout on my Twitter account (just search my name) as your videos have been an integral part of my recovery journey also. I wanted to spread the word on that platform too.
@@liannevalle That's so appreciated Lianne! Thank you for your kind words and for sharing my work. And I'm so happy that my videos have supported you in your recovery journey!! 😍
Amazing info thank you!
I was starting to recover and went through this phase, from shutdown to fight or flight. And I experienced a huge peak in my anxiety. As I didn’t know how to manage such crazy amount of anxiety, I crashed back down to dorsal for a very long time. Now that I know what to expect I hope the next transition will be a little bit easier!
I never knew there was a freeze mode , that makes a lot of sense when it comes to fatigue , you feel like you can’t move, paralysed by the fear.
There are 4 F. Fight, flight, freeze and/or flow (surrender)
Love this interview. I am doing all the mind/body practices mentioned here, in the #primaltrust program by Dr Cathleen King, who I discovered on this channel❤! We also go into the science behind what is happening and why the practices are important. The only difference is that this program is designed for all chronic illness which is a result of a maladaptive/chronic stress response. This interview just confirms that the mind/body approach (with somatics) is a major part of the healing process.
Are you recovered?
Thankyou so much for this info 🤩🙏🏻🤯
Im doing gradual exposure and using the Curable App
I think there is a huge caveat when it comes to selfishness. Modern self help / therapies and so on, constantly talk about boundaries and saying no, etc.. But what I observe is that people become even more consumed by their own existence. This most likely doesn't apply to people with CFS, so it depends where is your starting point. But we certainly don't need more selfishness in society. We could actually use less. But then again, for people with never ending guilt and people pleasing tendencies and with no boundaries, of course more selfishness is needed. So it really really depends.
Absolutely, I think balance is key and having a sense of community. I care but also rest and I accept support from those in my community as well as offer mine when I can but not to the point where I burn🙏
@@samiad357that's a very healthy approach and so it should be.
And as I said, with all of these self help advices (even outside CFS community) I see people actually losing the idea of what it is to sacrifice some amount of comfort for community, loved ones, friends, family.
I just had a need to say that. :)
@@djVania08I am in 100% agreement with you. The people who need to hear this message are the ones who will never take it to heart. This is all a careful balancing act. There is so much value in helping others, but we must also take care of our own body and mind. At no point should anyone ever become callous to the needs of others.
Setting boundaries and putting yourself first is good for you psychologically. Self-care is NOT selfish, it's self-love. It doesn't mean you don't help in the community, volunteer, aid a friend. It just means you don't do it automatically to the point where you endanger your OWN health. You just learn to value yourself as much as you do other people. A good thing!
Thanks!
Thank you so much, Matt! Very generous and thoughtful. :)
I had a big shift out of my life long trauma pain after understanding the science of pain only being a signal in the brain but now it is all back to where it was and almost worse. I started on graded exposure and it seemed wonderful but now that is not even possible anymore as I'm crippled with trauma again.
Thank you so much for this interview (and all of your interviews). A lot of what Rebecca discusses is what's in the Heal Your Nervous System program by Dr. Linnea Passaler that I've been doing. It'd be awesome if you could interview her one day too!
Thanks for the suggestion, Jay! Dr. Passler sounds super interesting. 😊
Thanks
Graham... thank you! I appreciate your support and you continue to inspire me to show more gratitude to others. For instance, I've started sending financial contributions to my meditation teacher through the app he uses. I probably wouldn't have done that without your solid example of this. Thank you for being you 💛
Curious to know once the anxiety kicked in how Rebecca navigated that part of the healing journey. Would it be the same tools as in Freeze?
The ladder analogy and symptoms as a message is interesting. Has anyone else noticed how certain or patterns of symptoms can disappear and reappear based on our current baseline of being ‘normal’? I’ve had some symptoms return from when I was last at my current baseline level of activity.
Thank you for this content and the work you do to support this community! Regarding the mind-body healing approach for someone who has viral triggered ME/CFS, is the concept that we can enable our bodies to fight the viruses into remission by calming the overactive nervous system? Would the change (e.g., reactivated EBV being knocked into remission through mind-body healing) show up on an IgG test?
Wow, amazing video and what a soothing voice! I would really like to know if there is a link to the discussed pre-print study. Thank you!
I've just added it to the video description. Rebecca had added it here in the comments but YT keeps deleting it!
@@RaelanAgle Thank you!
I have so much pain and Brianfog and so afraid all time
I love these stories but I'm always intrigued about how these people who can barely get out of bed and can't work, sometimes for a decade or more, still manage to have a safe roof over their heads for all that time, a household that's maintained (whether a washer and dryer needs replacing or a new roof has to be put on), have enough warmth and coolness against weather, have enough food and drink, have technology for communication maintained, and often are also able to try many many doctors and supplements. Some of us are too old to have living or healthy parents we can go back home to, or spouses that will remain strong and healthy and provide everything for us for that decade. We may have friends but they would not allow or support alternative healing. I guess we just don't hear about those people because they never do recover.
Could you please bring in the link to the study she talks about?
I've just added it to the video description. Rebecca had added it here in the comments but YT keeps deleting it!
Hi Rebecca. This is excellent, thank you so much. I've got out of the freeze state now but now getting unbelievable anxiety and mood swings, what do you suggest to nudge forward out of this? Thank you, Paul
You're so welcome Paul! Congrats on getting out of freeze! That is monumental and a notch up the Polyvagal ladder. It's common for people to experience anxiety, which is a flight-fight response, after freeze and this happened to me too. Some things that can be helpful, depending on your situation: more rigorous movement (as much as you can tolerate), creative expression like dancing or drawing, breath work with an extended exhale, vagal toning through humming, singing or other vocal sounds. You might also write out your emotions freely onto the page and then rip it up! It's important to remember that even through the anxiety and moods are uncomfortable, they are not dangerous. Good luck with your continued recovery!
@@rebeccatolinmind-bodycoach thanks so much
I'm also there Paul, especially the anxiety. I did have a period where lots of stored (or frozen) emotions came up, especially anger, fear, and sadness. This is a good thing, it means we're now feeling safe enough to feel them. It's just overwhelming after being in freeze, so we need to take it slowly and titrate. What has helped me a lot is naming the emotion, and then sitting with it, acknowledging what it feels like. I had good people around me at the time, who held me and listened to me when this happened. Also did it by myself a lot. I told people around me I wasn't angry with them too, so they wouldn't be intimidated by my feelings 😂 EFT was a great help too, with Brad Yates here on YT. That often helps me with anxiety as well.
Severe anxiety is so difficult to experience, isn't it? I can't be that physically active unfortunately and it often comes on at night where I'm really tired, and don't feel like going outside for a walk, but I've started listening to funny jokes and it's actually helping. Watching animal videos. Before I tried to stay with the feeling of anxiety, but that often didn't really help and became too overwhelming after a moment or while, so after talking to my psychologist, I've started distracting myself with things, showing my brain I don't need to focus on anxiety/danger and that it's safe to just do something else. Like listening to a podcast or audiobook, watching a show or movie, moving to music. When the distractions don't work, in my worst times, I've had to call someone to not feel alone. Also taking a cold shower, or dipping my face in cold water. Trying to stay connected to the body, standing firm, stomping on the floor/ground. What is my no 1 thing to feel safe though, is physical intimacy, someone else's nervous system, but since I live alone that's often not possible at night. Maybe it's different for you, hope you get through this soon, all the best! ❤
@@rebeccatolinmind-bodycoach Hey Rebecca, good to see you here, I've just started watching this interview 😊 A question, when we get into anxiety, and you say it's fight or flight, is it a good thing to allow the body to do just that, to fight or flee in that moment? As to allow the body to follow through what we previously couldn't and went into freeze instead? ❤
@@rebeccaledam7544 Likewise, Rebecca! Yes, it's often a helpful strategy to allow the body to move how it wants when you're in flight or fight. It's also helpful to do so with awareness. You can try several different strategies: reminding yourself that while it feels like it, you're not actually in danger. And/or you can imagine fighting or fleeing from a subject/object that feels threatening. This can bring a palpable release. It can be hard to sit still when you're biology is primed for defense. We want to work with our biology while harnessing our higher brain centers. This can help prevent us from falling back into freeze. Great question and I hope this helps!💞
Where's the link to this study? DOI number? Is it peer reviewed?
I've just added it to the video description. Rebecca had added it here in the comments but YT keeps deleting it!
@@RaelanAgle There is no link to the study in the video description yet.
Hi wonder i always got blister in my thoat and been so ill at spring !
Also pain all over my body!
Is this from my brain ?
I’m confused about brain/system training, as it seems there are many different approaches.
Is healing a dorsal/freeze state different from healing the nervous system?
How does somatic training differ from the typical brain training program?
Can fatigue be a symptom? Have no other symptoms at this point.
Yes, it could be the start
Yes absolutely, Sandra. Fatigue is a symptom associated with a freeze or shutdown state in the nervous system.
@@khatijakay4107 or the end
Brutal selfishness ftw 💪☺️
Do you have the details of the Harvard pre-print?
Hi Jon, It's in the video notes!
Dejavu whoa!
Hi. I’m curious about what kind of gentle stimulation you’d suggest for a freeze state? Also, would you suggest the Curable App for accompanying pain or brain/pain sensations in the arms and perhaps even for post exertion flare ups? I know you suggested graded exposure for movement. Somatic tracking would be a good thing to do for that?
Great questions! To coax yourself out of a freeze state, here are some ideas: gentle, mindful movement like yoga, qigong, walking etc. It could even be dancing or shaking in a free, organic way that matches your energy level. Nature is also gently stimulating. Singing, chanting, humming or other sounds are wonderful, as they activate the vagus nerve and encourage regulation. Cold water is another one, as well as breath practices like the box breath. So many to choose from.. find what works for you! The Curable App can be a great way to start with this approach. Yes, you can use somatic tracking in a more active way as well. It's similar to graded exposure we also activate the imagination with graded exposure. I hope this helps!💖
I have abandontment feelings and all be horrible att spring /summer
What can I do about breathing I am suffocating for about two years now my lungs are affected and also developed asthma.
Do you have acid reflux? Sometimes stomach acid can splash up and then you breath it in causing asthma.
@@DMCPLAYS Yes I do but I am taking Nexium for that it helps to some extent... it is more complicated that reflux :(
@@fwdflashwebdesign You may find useful information on asthma and acid reflux by searching medcram, dr berg, and dr sten ekberg. Life changing for me.
Bloody hell, what you two cackling about hahaha The Blokey Bloke sounds like a great band name 😃
Hmm, do you know a musician who might want to use it? We love you, Nick!
Nick, I LOVE the blokey-bloke!! It is so You and also I think legitimizes the people who feel less blokey-bloke to also consider these methods ✨
@@RaelanAgle if only I had said Greek God or Zeus dam
Hm, so when I use my body and it goes bonkers and I stop and rest for days and weeks because I love my body and it’s systems and try to take care of it as best as I can because it is trying to keep me alive as is it’s primary purpose. It means that I’m afraid of moving it and that fear is my biggest enemy? Why then am I brave enough to repeat my cycle of using my body again and go through the same process of physical agony over and over again, year after year, decade after decade if fear of my systems reaction is my nemesis? Poppycock.
You are keep talking bout breathing, I can't brath for almost two years because of covid :(
I'm so sorry FWDesigh, that sounds horrible 💛 I hope you are finding what you need to het past this!
Rebecca 🙏💪👍😇
&
Raelan🙏💪👍😇
Honestly gives me pause when someone says I heard four words and then ran around the block. Just furthers the misperceptions around invisible illnesses.
I agree. Those four words "You are not sick." are not only not true, they're harmful. I am all for healing through the mind/body connection, but that doesn't mean this isn't a legitimate illness that makes people very sick. There's plenty of research showing abnormalities in the bodies of ME/CFS patients, one being micro-clotting. Healing may still be possible, but we can't deny reality in the process.
It most likely was just a surge of adrenal from being excited, and she probably crashed after the adrenal wore down.
The polyvagal theory is not supported by much research. Even tho the guest explains it as fact, it is a theory that is not accepted by most neuroscientists. The person who invented the theory is a psychologist.