I was diagnosed 32 years ago and advised to embrace lifestyle changes to manage the condition. I have always only worked part- time to control exhaustion which is a factor. When I sleep well, eat regularly and don't exceed my work boundaries, I experience a low level of pain that is managable in every day living. Also I agree with Cynthia re swimming in a warm pool, this is sometimes painful but when you persevere the movement is very good at preventing and easing stiffness.
I have been diagnosed for years, in my early stages I found that no two people followed the exact same course of medication and other means to help with the symptoms. It really hurts when people say it is not real. Another bit of info that you don’t mention is that the number one cause of death is suicide. So please be kind to people when you don’t know what they are dealing with.
I have suffered for years also. I also have other medical issues. Next month I've got my Drs. appt. & I've got more pain & tiredness. I'm unable to sleep well at night which I do take medicine. Every 4 months I see my Dr. to keep track of my health. I wish I didn't have this and if there's more insight my anything else I'm going to try to get more help. Also I see a neurologist which actually was my Dr. that told me I've got fibromyalgia. I miss seeing her as I moved into another state. Best to you, healing also. Please share any help you've experienced as I love to know. God bless.
Low-Dose Naltrexone has been a life changer for me in that it has lowered the general daily level of fibro pain. I still have the 'knots', but they don't hurt as much if at all on most days. I asked dozens of practitioners to prescribe it, and finally found one that would. It has to be made at a compounding pharmacy, which means big pharm doesn't benefit from me telling you it helps. You will hear practitioners say there's not much known about it (there is), it's new (it's not), blah, blah, blah...Big pharm will say anything. On another note, when my respiratory rate got knocked down to 5 a minute and I developed chest pain I had to research my own meds and discovered gabapentin now has a black box warning on it for respiratory suppression when taken with opiates. I don't take opiates, so I read the research and learned that respiratory suppression can occur even when opiates aren't taken, it just occurs more commonly with opiates. Bye bye big gabapentin pharma. Good thing I'm a retired RN or I'd be dead.
@borderlandsdude3543 - Chiropractors do not have medical degrees and it doesn't sound like your family does either. I would encourage you to find a medical provider who can help you figure out your symptoms and come to a diagnosis for you. Let a medical provider help you. Doubters will only affect your mental health more than fibromyalgia already does.
I was diagnosed 32 years ago and advised to embrace lifestyle changes to manage the condition. I have always only worked part- time to control exhaustion which is a factor. When I sleep well, eat regularly and don't exceed my work boundaries, I experience a low level of pain that is managable in every day living. Also I agree with Cynthia re swimming in a warm pool, this is sometimes painful but when you persevere the movement is very good at preventing and easing stiffness.
I have been diagnosed for years, in my early stages I found that no two people followed the exact same course of medication and other means to help with the symptoms. It really hurts when people say it is not real. Another bit of info that you don’t mention is that the number one cause of death is suicide. So please be kind to people when you don’t know what they are dealing with.
I have suffered for years also. I also have other medical issues. Next month I've got my Drs. appt. & I've got more pain & tiredness. I'm unable to sleep well at night which I do take medicine. Every 4 months I see my Dr. to keep track of my health. I wish I didn't have this and if there's more insight my anything else I'm going to try to get more help. Also I see a neurologist which actually was my Dr. that told me I've got fibromyalgia. I miss seeing her as I moved into another state. Best to you, healing also. Please share any help you've experienced as I love to know. God bless.
Thank you
Low-Dose Naltrexone has been a life changer for me in that it has lowered the general daily level of fibro pain. I still have the 'knots', but they don't hurt as much if at all on most days. I asked dozens of practitioners to prescribe it, and finally found one that would. It has to be made at a compounding pharmacy, which means big pharm doesn't benefit from me telling you it helps. You will hear practitioners say there's not much known about it (there is), it's new (it's not), blah, blah, blah...Big pharm will say anything.
On another note, when my respiratory rate got knocked down to 5 a minute and I developed chest pain I had to research my own meds and discovered gabapentin now has a black box warning on it for respiratory suppression when taken with opiates. I don't take opiates, so I read the research and learned that respiratory suppression can occur even when opiates aren't taken, it just occurs more commonly with opiates. Bye bye big gabapentin pharma. Good thing I'm a retired RN or I'd be dead.
@susanmoore9839 What is your dose on LDN? My doctor suggested this drug as well . Thank you. Kally from Canada
My sister was diagnosed with it. Symptom went away when she eliminated processed foods
I have Fibromalgia
Thank you
🙏
It’s not real.
They told me I had it. It is a cop out. I have a genetic disorder they just didn’t bother to test for.
Try having it
A chiropractor said I have it but my family doesn't believe in it...
It’s the same as chronic fatigue syndrome in a way. Very very real and not fun to deal with. Usually caused by viruses.
@borderlandsdude3543 - Chiropractors do not have medical degrees and it doesn't sound like your family does either. I would encourage you to find a medical provider who can help you figure out your symptoms and come to a diagnosis for you. Let a medical provider help you. Doubters will only affect your mental health more than fibromyalgia already does.