I am 9 months post-stroke & now require 10 hours of sleep per night plus an hour nap every afternoon to function... fortunately, my sleep is much better since my stroke! 🙏😴💤
Elyse, I'm officially three years out from my stroke.Thank goodness I made it, but it is still frustrating. My mind is over stimulated all of the time. Even If I take naps my mind is spiraling. I do live in the brightest and loudest city in the U.S. so it's a little difficult, I do keep my blinds closed to try and sleep. Thanks again for your advice.
I'm 9 months post-stroke & also mentally overstimulated & light-sensitive. I'm finding earplugs & a eye mask help so much with sleep & an afternoon nap!
I wouldn’t be surprised if this is the problem I am having, I sleep an average of 4 to 6 hours per night and my cognitive has definitely declined and I’m always fatigued.😢tfs❤
Cleaning-up our diets makes a huge difference...also investigate how many seemingly innocent things like most commercial toothpastes and mouthwashes raise blood pressure.
Thank you so much. I couldn't sleep in the beginning but it improved a bit i must learn to sleep in the day too. In the beginning i werent dreaming at all.
I definitely experienced problems with my sleep after stroke initially. I was only getting about 4-5 hours a week until I recognized I needed to change my habits and go to bed to get proper rest bc I read a few articles saying sleep increases recovery. Thankfully I am now averaging 7-8 hours of sleep. To get to this point I had to force myself to go to bed around 10:30pm. I am 8 years post stroke. I did a lot of work to figure how I got to the place of stroke and knew I needed to make serious changes so I changed my diet too removing most all processed foods and replaced it with mostly Whole Foods which I am currently still enjoying. It made a huge difference in my sleeping schedule too.
I found meditation most helpful after my stroke. I was plagued by awful sleep for over a year after. Caffeine seems to affect me more than others, so I always avoided it after noon each day.
Elyse thank you for your informative videos. I would like one on post stroke fatigue. It’s been a year and a half since my stroke and I still have a problem with getting fatigued. Frustrated to feel good and then be fatigued after doing something. Thank you for anything you could offer on this subject.
@frankspina6004 Hey there! You're so welcome. You may find the video I did on neurofatigue a few months ago helpful! ruclips.net/video/wEexVzFyz6Y/видео.htmlsi=nHp0AydcN7IlDJqO
It wouldn’t be so bad if sleep wasn’t made so irregular during stroke treatment- When I was treated for stroke almost three months ago, I was constantly poked, prodded, and examined through most of the time (even at night), with nothing in terms of support for the sleep, either medical or psychological (it was a VERY stressful time). I’m talking less than three hours a night for the three months, even when I was in acute physical therapy. While I understood why this was done (to see if I was still alive), my sleep patterns were irrevocably changed as a result- getting more than seven hours of sleep was a blessing these nights, and I could count the number of nights I’ve had more than nine hours on one hand, and that was aided with melatonin, which I take 3mg nightly. I never did this before. In my opinion, there needs to be more done to help stroke victims with regard to sleep for overall health, which was sorely lacking in my case.
You make a great point. Sleep is so important and sometimes it get pushed aside in the acute phases because so much is going on, but that can even create a habit of a poor sleep cycle. Sleep is so important in stroke recovery bc your brain needs time to recover, and I def think sleep hygiene is an area that will grow in the future, bc mental fatigue is so prevalent with stroke recovery
I think I have hypersomnia. Last night I slept close to 11 hours. I do have sleep apnea, but I had that before my stroke. I’ve talked to all my doctors and they tell me that so long as I’m not groggy during the day it’s OK to sleep as much as my body needs it, but I think 11 hours might be overdoing it a bit lol
@heatherguill9614 haha oh my word, that gave me chuckle! I think that's a good point. If you don't feel bad the next day after getting lots of sleep or feel that it impacts your day-to-day, then go for it. We all have different sleep needs, too. I feel my best when I get 9 hours of sleep whereas my husband does great with 8. Although sleep has definitely been up and down since our little one was born haha. I'm NOT getting 9 hours lol
@@PostStrokeOrg i’m sure it’s been a long time since you’ve gotten 9 hours of sleep since your little one came along. I do think that’s a great thing you pointed out in your video is that everyone requires a different amount of sleep. Some people thrive with six hours and some people can barely function with eight. It’s all about finding out what your body needs to function and trying to make sure your schedule allows for you to get that.
Sleep has always been an issue for me even before my stroke. But my stroke happened in my sleep so in the early weeks after I was super scared to sleep. But if I don't sleep at least 7 hours I'm pretty much messed up the next day
I am currently being looked at owing to having memory problems. I'm told it could be sleep related, my medication or viral dementia. I so wish they were quicker in looking into things as it's an awful worry.
How long does it usually take for spasticity to go away im at 5 months,i know it's different with everyone just asking if there is a usual mark though,i exercise stretch i walk good with a cane and have started taking steps without a cane if the spasticity would go I would be golden because ive gotten to this point pretty much on my own with my wife's help and the rehabilitation center i went to didn't do anything i just started doing things i felt would work to strengthen me and believe 100% im healed since day one
@mrstevek118 I'm so sorry you're experiencing this. It's often about finding the right combinations of things that work for you. I deal with this due to my anxiety but between a combination of anti-anxiety medication, exercising consistently, and being so tired with my little one, I'm finally falling asleep more quickly ❤️
Hello , I'm on aspirin. I just sneeze last night and it cause a nose bleed. Should i be worried about this. The bleeding didn't last too long. More like few seconds and it stopped. 😢
I am 9 months post-stroke & now require 10 hours of sleep per night plus an hour nap every afternoon to function... fortunately, my sleep is much better since my stroke! 🙏😴💤
Elyse, I'm officially three years out from my stroke.Thank goodness I made it, but it is still frustrating. My mind is over stimulated all of the time. Even If I take naps my mind is spiraling. I do live in the brightest and loudest city in the U.S. so it's a little difficult, I do keep my blinds closed to try and sleep. Thanks again for your advice.
I'm 9 months post-stroke & also mentally overstimulated & light-sensitive. I'm finding earplugs & a eye mask help so much with sleep & an afternoon nap!
I wouldn’t be surprised if this is the problem I am having, I sleep an average of 4 to 6 hours per night and my cognitive has definitely declined and I’m always fatigued.😢tfs❤
@Mooregirl oh wow! Have you ever talked to your doctor about this? If so, did they suggest anything? I'm so sorry you're dealing with this.
@@PostStrokeOrg i have a cpap, not insomnia it’s a nocturnal kitty🤔
Cleaning-up our diets makes a huge difference...also investigate how many seemingly innocent things like most commercial toothpastes and mouthwashes raise blood pressure.
Toothpaste & mouthwash, seriously?? 😮
Thank you so much. I couldn't sleep in the beginning but it improved a bit i must learn to sleep in the day too. In the beginning i werent dreaming at all.
I definitely experienced problems with my sleep after stroke initially. I was only getting about 4-5 hours a week until I recognized I needed to change my habits and go to bed to get proper rest bc I read a few articles saying sleep increases recovery. Thankfully I am now averaging 7-8 hours of sleep. To get to this point I had to force myself to go to bed around 10:30pm. I am 8 years post stroke. I did a lot of work to figure how I got to the place of stroke and knew I needed to make serious changes so I changed my diet too removing most all processed foods and replaced it with mostly Whole Foods which I am currently still enjoying. It made a huge difference in my sleeping schedule too.
Thank you so much for sharing the above. Very informative indeed
@@poojahm120 no problem speedy recovery and here’s to getting more rest which means more recovery! You got this!
I found meditation most helpful after my stroke. I was plagued by awful sleep for over a year after. Caffeine seems to affect me more than others, so I always avoided it after noon each day.
Now what is your condition are you fully recovered?
Elyse thank you for your informative videos. I would like one on post stroke fatigue. It’s been a year and a half since my stroke and I still have a problem with getting fatigued. Frustrated to feel good and then be fatigued after doing something. Thank you for anything you could offer on this subject.
@frankspina6004 Hey there! You're so welcome. You may find the video I did on neurofatigue a few months ago helpful! ruclips.net/video/wEexVzFyz6Y/видео.htmlsi=nHp0AydcN7IlDJqO
@@PostStrokeOrg It’s been a year and a half since the stroke and I still get fatigued. Will this improve? Or is this how it’s going to be? Thanks
It wouldn’t be so bad if sleep wasn’t made so irregular during stroke treatment-
When I was treated for stroke almost three months ago, I was constantly poked, prodded, and examined through most of the time (even at night), with nothing in terms of support for the sleep, either medical or psychological (it was a VERY stressful time).
I’m talking less than three hours a night for the three months, even when I was in acute physical therapy.
While I understood why this was done (to see if I was still alive), my sleep patterns were irrevocably changed as a result- getting more than seven hours of sleep was a blessing these nights, and I could count the number of nights I’ve had more than nine hours on one hand, and that was aided with melatonin, which I take 3mg nightly. I never did this before.
In my opinion, there needs to be more done to help stroke victims with regard to sleep for overall health, which was sorely lacking in my case.
You make a great point. Sleep is so important and sometimes it get pushed aside in the acute phases because so much is going on, but that can even create a habit of a poor sleep cycle.
Sleep is so important in stroke recovery bc your brain needs time to recover, and I def think sleep hygiene is an area that will grow in the future, bc mental fatigue is so prevalent with stroke recovery
VERY GOOD
Sleep? Nice struggle i have. Cheers from Portugal
Thank you for sharing this very valuable information 💕
I think I have hypersomnia. Last night I slept close to 11 hours. I do have sleep apnea, but I had that before my stroke. I’ve talked to all my doctors and they tell me that so long as I’m not groggy during the day it’s OK to sleep as much as my body needs it, but I think 11 hours might be overdoing it a bit lol
@heatherguill9614 haha oh my word, that gave me chuckle! I think that's a good point. If you don't feel bad the next day after getting lots of sleep or feel that it impacts your day-to-day, then go for it. We all have different sleep needs, too. I feel my best when I get 9 hours of sleep whereas my husband does great with 8. Although sleep has definitely been up and down since our little one was born haha. I'm NOT getting 9 hours lol
@@PostStrokeOrg i’m sure it’s been a long time since you’ve gotten 9 hours of sleep since your little one came along. I do think that’s a great thing you pointed out in your video is that everyone requires a different amount of sleep. Some people thrive with six hours and some people can barely function with eight. It’s all about finding out what your body needs to function and trying to make sure your schedule allows for you to get that.
I also sleep 10-11 hours per night since my stroke plus an hour afternoon nap. My body & brain need it to function! 😊😴💤
I wake up at 2:30-3:00 every morning. I takes an hour or two to get back to sleep, if I manage at all.
me too
Sleep has always been an issue for me even before my stroke. But my stroke happened in my sleep so in the early weeks after I was super scared to sleep. But if I don't sleep at least 7 hours I'm pretty much messed up the next day
Appreciate U always
I am currently being looked at owing to having memory problems. I'm told it could be sleep related, my medication or viral dementia. I so wish they were quicker in looking into things as it's an awful worry.
i got sleep apnea from baclofen. i stopped taking it and it went away!
❤
How long does it usually take for spasticity to go away im at 5 months,i know it's different with everyone just asking if there is a usual mark though,i exercise stretch i walk good with a cane and have started taking steps without a cane if the spasticity would go I would be golden because ive gotten to this point pretty much on my own with my wife's help and the rehabilitation center i went to didn't do anything i just started doing things i felt would work to strengthen me and believe 100% im healed since day one
I wonder if they just us asleep would we heal better in the beginning 🤷♀️
I have a hard time getting to sleep. Could take several hours. Can’t shut my brain off
@mrstevek118 I'm so sorry you're experiencing this. It's often about finding the right combinations of things that work for you. I deal with this due to my anxiety but between a combination of anti-anxiety medication, exercising consistently, and being so tired with my little one, I'm finally falling asleep more quickly ❤️
Hello , I'm on aspirin.
I just sneeze last night and it cause a nose bleed. Should i be worried about this. The bleeding didn't last too long.
More like few seconds and it stopped. 😢
I would recommend reaching out to your doctor about this as I'm a stroke rehabilitation specialist not a medical doctor ❤️
Thank you for replying!!! ❤@PostStrokeOrg
Does sleep become less effective over time?
@joshporter8286 I'm not sure what you mean. Over the course of our lives? Or less effective the more that we get, say 8 hours versus 10 hours?
@@PostStrokeOrg I mean for a survivor of 5 plus years, does more sleep become less affective?
I deal with insomnia.
ButI love doom scrolling😅
After sleep i can't sleep
@VernonRhem I'm sorry you're dealing with this issue ❤️