As a former Muslim, I can say that religion is something separate from me. My autism, on the other hand, is an intrinsic part of me. I've known I was 'different' for some forty years now. I just didn't know why untill recently.
I pointed this out to the company I work for. They teach person first language and I think it should come with "say whatever the person uses and prefers"
@@lugaruna I'm not so sure what the point you're making is but my comment was just poking fun at how silly it sounds to use person first language when discussing a disability :-)
Ooooow sorry sometimes im not so good with formulating sentences and being clear:). Dyslexia is realy anoying with grammer and stuffXD. But what i ment was things like cattarax, injury's from harmfull chemicals or glaucoma? The last one is something im under supervision for with an eye docter:). I don't have it but alot of people on my dad's side of the family have it:). And sorry i just woke up when watching this video and reading the comment'sXD. Im not good at interpeting things at those moment's:p. Sorry if i ruined your joke:).
Since autism is as inseparable from our life and experience as our skin, I agree that person first is completely unnecessary, I actually was thinking about how sometimes I fantasized about being more "normal" and now that I think about the implications, I would be a completely different person if I were neurotypical. It's not like if you have an illness that leaves you in pain all the time, it shapes every moment of every day of our lives, how we see, hear, smell, feel, understand, react, act, and more. If I weren't autistic, I wouldn't be who I am, if I weren't who I am, I wouldn't exist, I like me, don't ask if I would like to be erased and replaced by someone else.
Love your channel and how open you are about your diagnosis; as a recently diagnosed autistic person I just want to say thank you for all you do to make people like us understood better within society. You're amazing to me x
I think why carers, teachers, therapists, etc. prefer person first language is because they typically deal with autism as a disability where as we as autistic people primarily deal with autism as a trait. I primarily experience my autism as stimming and special interests but I don’t go to my therapist when I want to talk about the Rakatan Infinite Empire, I go to my therapist when I’ve had four meltdowns in one week and during one of them I bruised my knuckles punching a concrete wall. And they’re right in a sense, I’m not my disability. My disability is something I can learn to cope with and move past. But autism isn’t just a disability.
Perfectly put. Perhaps people in caring professions should consider just asking how the individual feels instead of assuming? "What are your preferred pronouns and your preferred centered language?" I'm currently in training to be a counselor.... I might look into this a bit more at the professional association level. :D
I love hearing your reasoning for this, I already knew the autistic community preferred identity first language and the basic reasoning for it. Hearing you say it though helped clarify for my why I usually speak that way regarding my mental illness. I have been told before that I should be using person first language to remind myself that I am not just my mental illness. But the same as you say I can't separate myself from it and I wouldn't be the person that I am if I didn't have it. It took me a while to become comfortable with being called disabled but that was mainly because I am 'high functioning' and so didn't fit the stereotype that I grew up with (didn't think I was disabled enough to be disabled). I spend a bit of my time a place for people with mental illnesses and it was the staff there that were well the government believes that you are disabled enough to be on benefits then there is something to it. Same I don't have an issue with saying that it is a disability that some people are able to live a 'normal' life but I am always going to need supports.
Honestly if nearly half the human population is autistic, then why is it even considered a divergence? Let alone thinking of it as a mental illness. It's not a mental illness, it's just how we are.
@@Jane-oz7pp I never said that autism was a mental illness, I said that I have a mental illness and hearing Chloe speak clarified for me why I usually use identity first language.
I wonder if there’s something similar for ADHD. I tend to say that I have ADHD, but it’s a part of who I am, too, not a disease, even with the disorder in the label. Although since I’ve begun to suspect I’m autistic as well I’ve mostly just been using the neurodivergent label.
ADHD is interesting because the symptoms can change over time (change to other symptoms or improve). Technically, it's possible to have symptoms improve to the point where they're subclinical, although usually ADHD isn't simply outgrown. I like the neurodivergent label more as well, because it isn't focused on the obstructive symptoms, it's more focused on how the cognitive processes are just different. It isn't better or worse, it's just different.
I was wondering the same thing. I'm not autistic, but I have adhd and there is simply not one part in my life that is not affected by it. Also I think the medical view on adhd - you can only get diagnosed when it has a strong negative impact on your life- is not really painting a complete picture of what it means to have adhd. I struggle with lots of think, but there is also this amazing creativity and empathy that come from noticing all the small details around you and I wouldn't trade that for anything. I really wish we had a proper name for it instead of some letters that really don't do us justice.
Well said and completely agree with you! I started watching Atypical and there is a long scene explaining how ‘autistic person’ was wrong and it should be said ‘person with autism’. Not only did this demonstrate that they did not research autism from an autistic persons view or consult with the autistic community in their show (which is scary since the entire series is based on ASD), but they are spreading misinformation.
I’ve been forced to use “I have autism” by unimportant neurotypical people. Now I’ve distanced myself from them, I’ve been using the other term. I feel a lot more free and independent Thank you 🙏 Chloe
Hey Chloe, I’m neurodivergent and have an education degree and we were told to use person first language when submitting papers. This was confusing to me because I’ve always used identity first and same with all the autistic/otherwise neurodivergent people I know. It’s drilled into education students that they have to use PFL because the academic resources unfortunately come from “childhood development experts” (teachers and psychiatrists usually) rather than firsthand from actually autistic people. Universities also love to preach “differentiation” and inclusivity but don’t actually acknowledge the feelings and beliefs of actually disabled people. Person-first language also comes across as pathologising autism rather than acknowledging it as a real part of a person’s identity and worldview.
I’m in the mental health field and I agree with you. It’s been drilled into our heads to use person centered language but it should be up to you, not my supervisors.
Thank you so much for speaking wirh such depth, clarity, and honesty. I had a sister that was so afraid of me telling a potential employer that I am autistic because "they will look down at you". Completely the opposite: Employees love me helping them organize and plan processes, and that gives me Joy. I am Autistic... and proud to say it. 😊
Heck yes, that's awesome to hear. Neurodiversity is slowly gaining awareness in the corporate sphere because many autistic people are amazing workers and offer a lot of value and new perspectives. Some of the best people I've worked with were autistic. They accomplished things no neurotypical person could, at least that's my honest belief (I worked with a lot of engineers haha).
I am autistic myself and it was never really clear to me why saying ‘I have autism’ is seen as ‘bad/incorrect’ but you explain it so clearly and I understand now!! So thank you so much and I can now explain it to people who don’t understand this as well ♥️
I personally would rather just be called by my name which is rachel or rach. I’m visually impaired, autistic, epileptic, have cerebral palsy, anxiety and depression. I like it when people just see me as me and not a condition. That’s my take on it 😊 xxx
Thank you for explaining. I was taught person first language by a professor in a wheelchair who was a strong advocate for that phrasing. He explained it as recognizing the person and not their disability. In his life, he had experienced being reduced to just his wheelchair. I am trying to adjust my own language to respect individuals and how they want to be referenced. The comparison to other identity first groups was very helpful.
Thanks for being respectful while stating your opinion. I personally don’t really like identity first language, because autism is not all there is to my brain. My cousin is also diagnosed with autism, and he has a completely different personality to mine, which is part of the reason that I wasn’t diagnosed until I was 18 years old. While I acknowledge that autism is a big part of who I am, we have to remember that autism affects each individual differently, so you don’t have your children fall for the trap of "oh you’re nothing like you’re autistic cousin". As for how autism affects my personality, I don’t feel like it affects my personality as much as my ADHD does, but sadly, there is no identity first language for ADHD. if there was, I would gladly use it. But I still refer to myself as a person with autism. It’s also a question of what sounds natural and what sounds forced. Like, I’m blind, and saying I’m a person with blindness would sound really weird, but person with autism sounds more normal, so I use it. If person with blindness, or person with bisexuality, or any other label thrown at me, were accepted terms, I’d use those too.
I wish I could play this video for my law and discrimination class, they did a decent job of explaining the medical vs the social model of disability, but the profs insisted on person first language and I feel like this would help a lot
I’m an able-bodied, neurotypical person (at least I’ve never been told otherwise) and I tend to use both identity first and person first language interchangeably. I don’t really think about and just say whatever is more relevant to the situation.
Thank you for this video. I’m autistic and I’ve really struggled to wrap my head around what these different ways of saying things meant. I never knew if I was typing things “wrong” in a way that was spreading misinformation. But I couldn’t separate the difference between them. This video really helped me understand what it all means and I agree with your views on it.
I wish people valued the thoughts of the autistic people themselves. I'm glad to hear your thoughts. I am as well, and it's interesting to think the way people refer to you in little situations really shows the way they think about you
Hey Chloe. I am a recent fan of yours. First I adore your jacket.... Second I think your words are strong and I love them... Except society is stronger than us.... So I don't feel strong enough to go against the system... But I admire you for doing that.... Well done..... Keep it up girl you are making a difference for autistic people. Just for the record, I am a 36 years old woman diagnosed a year ago....
You go Chloe! I am autistic as well I was at birth and always will be, it just took me a really long time to figure it out 39 years. I prefer being called autistic because it’s who i am it can’t be cured nor would I ever want it to be, it defines me and without my autism I wouldn’t be complete.
Thank you Chloe! You are an earth Angel - My daughter Erin,almost 20yrs old is autististic, & thanks to you,I just had a great conversation w/ her, asking what language she prefers, examples I may say she does NOT prefer...THANK YOU for opening this topic up in my mind,& now between Erin & Mon& Dad! I will be listening to my word choices With even more awareness thank you! Say hello to your incredible animals -and watching you and your little sis on the various horses you are both so skilled - WOW! I loved the animal tour video by the way! Thank you for sharing and educating! 🌸
I don't really know how it actually got started, but person-first language has always sounded to me like some attempt to avoid using the wrong word as the main/only noun just got twisted into not using adjectives because some people don't know how to grammar.
Hi Chloe!, I have a question aside from the vid, I was diagnosed with ADHD but my parents say I will grow out of it. Is this true? to what extent? love you❤️
You can’t outgrow ADHD! It’s a key part of who you are. Your ‘symptoms’ may change as you grow older and understand yourself, but it’s impossible to simply not have it anymore x
Yes, it the ADHD will express differently at different times in your life and with the tools you learn (they can call it therapy) tricks to help you but, that part of you will be there.
Completely agree. One technical issue, though. I notice a lot of your videos are very brightly lit, which is fine if that's intentional. I just find the brightness a little overwhelming ,so I usually turn on "night light" filter on.
Thank you for this! I really want to understand the experience and needs of autistic people, and you are right, the person first language was trained into me.
I used to wish I didn’t have autism and thought my life would be better without it but now I’m proud to be autistic and apart of this amazing Community xxxx
Hi chloe, this may be a wierd question but I've begun to question if I may have autism, (I've watched a lot of videos, including several in depths explanations of the qualifications for an autism diagnoses and checked off all the boxes for those) however unfortunately i am still a minor and my parents have refused to get me therapy so I don't have a professional to talk to about it. I did bring up some of my symptoms to my mother and she immediately denied me being on the spectrum but especially since I am a person assigned female at birth, a lot of my traits relate to those of AFAB people with autism instead of the stereotypical traits. Do you have any tips on how to explain this to my parents?
Just to be clear, you want therapy, not necessarily a diagnosis? Getting a formal diagnosis may be a requisite to get therapy. I don’t know where you live so money, health insurance and education might be an issue here, not just ignorance. You may want to look into these things. Being a minor, there are unfortunately a couple of drawbacks. I hate to say this but, if your peers learn that you are in therapy or are autistic, you risk becoming the subject of bullying. You must decide for yourself if you are willing to risk this. Lots of schools have “zero tolerance policies” in regard to bullying. It has been my experience that those are just pretty words on a piece of paper, they don’t mean anything when they need to be put into action. Getting a formal diagnosis may open up some options, but it also closes some. For instance you may be required to list such a diagnosis when applying for a job. This may make it a lot harder to get a job. Many countries have laws that forbid employers to discriminate autistic people, but proving that an employer is in violation of such a law is virtually impossible. On the other hand it might give you extra time at school tests. I would recommend you watch some videos with Tony Attwood. He has some (very long but educational) RUclips videos on therapy for autistic people. I would also recommend watching some videos with Sarah Hendrickx, she has a few videos on RUclips about girls and women with autism, in particular why they much harder to diagnose than boys and men. Knowing more about these things may make it easier for you to make a convincing argument to your parents.
I intern for a nonprofit that provides services and advocates for people with disabilities and we are always told to use person first language.. I feel so conflicted because I’m scared I am hurting people’s feelings without knowing I am
I did my dissertation and chose to use a mixture of identity first and person first language since I know that people prefer different labels and my lecturer put in my feedback that I should be using person first language I genuinely feel like I should show her these videos but also I’m literally autistic and prefer identity first who are you to stop me
Idendity First Language: Autism is meaning that we should say “an Autistic Girlfriend”, “An Aspie Father” or “I have Nine Autistic Friends”. Autism is never going to go. It is always changing characteristics on an Idendity, but not outgrown nor removed.
My "friends" all say that there is no way that my daughter nor I are autistic. I am almost certain we are. I can't believe they don't "see" it. But I also can't believe that they don't care about it; they obviously don't care about us.
Hi I would just like to pipe in and say that I have never once in my entire 40-year long life ever referred to it as me having autism whenever I say it I always say I am autistic because it is it's who I am it's everything about how my mind works which is what makes me who I am I don't have it I am it
I'm going to proclaim myself as a "hollow boy". That's just how I've always felt, not quite complete and unable to determine the exact step needed for completion. I'll just continue to study and all of my tastes are eclectic.
You are so correct and yes what you are saying about identity first say applies to so many other area of like and so called “political correctness” Separate note - you jacket is cool
Epic video, thanks for helping me understand as someone part of this community but only recently discovering it. Thanks so much for all you share. Love you lots. Keep being you ❤❤👍🌼🌼🌼
Great video, I am an autistic, dyspraxic and epileptic person, i prefer identity first language because i feel it descibes me best. if i was not autistic or dyspraxic or even epilpetic i would be a very different person so therefore for people to say " oh but it dosent define you" is frustrting because it does.
@@Dancestar1981 I'm sorry did i say that wrong? I didn't mean to be cruel I'm so sorry i don't know how to give complements i was trying to be nice I'm so sorry
I use identity first when I talk about others, but me and my autistic best friend both like person first (I picked it up from her, she says it in a stimmy way)
Ok. You’ve changed my mind. I have preferred to say I have ADHD because I didn’t want to label myself as ADHD. After listening to you I realize that that reinforces the idea that ADHD is a bad thing and something that I could get rid of. It’s not though. It’s a part of me and a part that I should accept and identify as. It’s not something I can get rid of and act like a normal person. I have to become it and embrace it and let myself grow and be more as who I am, not who society wants me to be. And I want the same thing for my son. I will no longer say “my son has ADHD” but instead “my ADHD son”. It’s easy to focus on the difficulties of our disorders rather than see where it makes us special and unique and better than normal.
How do we know what to use? Identity First or the Other Way? Because there are many people who themselves prefer identity first and there are people who don't like identity first. So how to decide which thing to use if we are seeing and talking to the person for the first time? What if we don't use identity first and the person doesn't like it or if we use identity first and the person doesn't like it? I know I might be sounding silly and you may say just ask the person but what if I ask and the person doesn't like that I asked? By the way, I really like you and your channel! 💛💛 I got to know so much about the people around me and what challenges they have to face. Thank you so much for making videos!!♥️
@Gaia R Thanks to autistic people for making the world a better place! ♥️♥️ And thanks to Chloe and other autistic RUclipsrs to make videos about autism and educating people!
Hi! I just found this video and channel. You’ve given me so much good information. I’m disabled (person with a disability), but I’m not sure how to use identify first. My disability is called schizencephaly. It’s a neurological disability. So, do you have any suggestions on how I would use identity first since my disability is rare and only called schizencephaly?
“Everything is fake, everything is made up” Chloe getting deep in the first 1 minute. Joking aside tho thank you for this video, I had been a bit confused about what language I should use but now I know :D!
With clinicians with Dr Tony Attwood the person with autism I get is from experience of a study of people as a clinicain as he says in his lectures. So the autism Attwood top with level 1 autism (formerly aspergers sepecialist) so I get person with autism it is behavioutr study of autistic people, If I thik about the 3rd wall in the comments i say autistic person. Because I knoe majority reading my comment would be autistic so use l;anguage they like.i prefer to.
Really interesting video and I think it is really interesting and kind of rude that professionals sometimes refuse to use the language the autistic person want them to be using...
I am a neurotypical person and I am doing a presentation on the Paralympics. After watching this video, I am kinda insecure about my choice of words. What am I supposed to write, person with disabilities or disabled person? Does your explanation about autism apply to that more general term or is that a different thing? I am very sorry if I said something wrong or offending, I do not have any experience myself...
Hello. I have a question that's been playing on my mind for ages. How do I portray autism in a animated series? Bc I have a series inspired by my story (including fantastic elements) and I don't want to ruin the show by portraying one single thing wrong
Chloe, I really LOVE your beautiful jacket shirt and it matches your floral headband:)!! And although I am not Autistic, I do agree with you when you said, "I am the politics in the situation":)!! I have always seen you as a real awesome person period because you are strong, creative, fun loving, and it does not matter to me whether you identify as Autistic or not:)!! And as for identity, I have learning disabilities and a Psychologist thought she could tell me that my Academic I.Q. Number is "who I am" and I think that we can not tell anyone who they are!! So, I would say that we should let each person Adult and Child to find their own identity and not impose an identity on others:)!! So, if you believe your identity is being Autistic that should be your choice. Just like I do not agree with this Psychologist that my I.Q. number is "who I am" because there is way more to me than academics, I believe I have a Soul which has been created by God and that is where my identity is for me and that is my choice:)!! So, I believe as long as we listen to our Conscience, have a good heart, care about each other, and follow the law, we should respect other people's identities:)!!
Personally, I couldn't care less about the terminology. But I can see the deeper issue, and I've gone back and forth over it since I discovered (around 1980) that I was different. Yes, it's part of my identity, and I would definitely not be the same person if I weren't autistic. There are even positive aspects to it. But the price has been very high. Even at this late date I can't say I wouldn't take a "cure" if such a thing were possible.
What if the so called cure removed all your gifts too. The only thing I’d want to get rid of would be the deficits. At least that’s my opinion as a 40 yo female Aspie who is going to go for an ADHD assessment in a few weeks
@@Dancestar1981 Yes, I covered that point. My point is that it isn't simple, and, like the trolley problem, almost certainly does not have an answer at all. Those who would eliminate autism and those who proudly celebrate the identity should both remembe that.
Really interesting video and I think it is really interesting and kind of rude that professionals sometimes refuse to use the language the people who have a disability want them to be using...
What about adhd? As I know a lot of people with adhd who would say their identity is also dictated by there adhd. Yet it doesn’t sound right to say someone is an adhd person? Just curious what your opinion as someone who is both autistic and has adhd? 😊
Being from Austria I added another word into the game - autist. Not sure if it has been used before but I'm just gonna continue now 😅 It is fitting for me... I am an autist. And I think it's a way of being proud of myself 😊
May I possibly suggest a theme song or amma mata for autistic individuals? Please take a listen to beyonce's song "Listen" and please let me know if it's appropriate thanks?
The other day I saw a tiktok where someone in the comments critisized the first person language used in the video. And first I didn't really get it at first. The video specifically said "my adhd friend" and when I thought about I noticed that I wouldn't like it if a friend called me that, because it sounds like they are just friends with me because of my disability and that they can show off their tolerance. It's like saying my gay friend or my black friend, so they can reassure that they're not homophobic or racist. I guess in the case of adhd first identity language also bothers me because adhd isn't an adjective but a noun.
Great topic and excellent explanations. What are you thoughts on the more broader terms of neurotypical and neurodivergent, neurodiverse, or neuroatypical? Or when people say "on the [autism] spectrum". I totally agree with you that the words we use matter, not just in communicating exactly what we mean with others but it also shapes how we think, how we conceptualize the world around us. (Maybe the neurotypical label should be replaced with neurobasic hahaha)
![I Am Disabled #SayTheWord - Why I Choose Identity-First Language [CC]](http://i.ytimg.com/vi/7FiZ6np-1Tc/mqdefault.jpg)
That jacket is next level. 🦄
I absolutely love it 😊
Ikr it’s gorgeous
She's worn it a couple of times. It reminds me of her. Colorful, enthusiastic, bright and cheerful!
I ❤️ your jacket
I AM THE POLITICS WE'RE TALKING ABOUT!!!!! quote of the year, love it xx
As a former Muslim, I can say that religion is something separate from me.
My autism, on the other hand, is an intrinsic part of me. I've known I was 'different' for some forty years now. I just didn't know why untill recently.
I pointed this out to the company I work for. They teach person first language and I think it should come with "say whatever the person uses and prefers"
Exactly today everyone is pushing for everyone to change grammatically correct English to describe pronouns in non binary individuals it’s 2021
@@Dancestar1981 I'm from Germany and here the thing called 'gendern' is often dicussed at the time.
"No sweetie that is not a 'blind person' they are just a person who has blindness"
but what if they weren't born with it and it can be fixed? not trying to be a smartass just curious:).
@@lugaruna I'm not so sure what the point you're making is but my comment was just poking fun at how silly it sounds to use person first language when discussing a disability :-)
Ooooow sorry sometimes im not so good with formulating sentences and being clear:). Dyslexia is realy anoying with grammer and stuffXD.
But what i ment was things like cattarax, injury's from harmfull chemicals or glaucoma? The last one is something im under supervision for with an eye docter:). I don't have it but alot of people on my dad's side of the family have it:).
And sorry i just woke up when watching this video and reading the comment'sXD. Im not good at interpeting things at those moment's:p. Sorry if i ruined your joke:).
@@lugaruna You would probably use the label "Visually impaired"
Ooooow okay:) thanks for clarifying it for me:)
Since autism is as inseparable from our life and experience as our skin, I agree that person first is completely unnecessary, I actually was thinking about how sometimes I fantasized about being more "normal" and now that I think about the implications, I would be a completely different person if I were neurotypical. It's not like if you have an illness that leaves you in pain all the time, it shapes every moment of every day of our lives, how we see, hear, smell, feel, understand, react, act, and more. If I weren't autistic, I wouldn't be who I am, if I weren't who I am, I wouldn't exist, I like me, don't ask if I would like to be erased and replaced by someone else.
Love your channel and how open you are about your diagnosis; as a recently diagnosed autistic person I just want to say thank you for all you do to make people like us understood better within society. You're amazing to me x
Chloe, I love your jacket it’s stellar. If any asks me I always say I have learning disabilities. I much prefer identity first language.
😍
I think why carers, teachers, therapists, etc. prefer person first language is because they typically deal with autism as a disability where as we as autistic people primarily deal with autism as a trait. I primarily experience my autism as stimming and special interests but I don’t go to my therapist when I want to talk about the Rakatan Infinite Empire, I go to my therapist when I’ve had four meltdowns in one week and during one of them I bruised my knuckles punching a concrete wall. And they’re right in a sense, I’m not my disability. My disability is something I can learn to cope with and move past. But autism isn’t just a disability.
Perfectly put. Perhaps people in caring professions should consider just asking how the individual feels instead of assuming? "What are your preferred pronouns and your preferred centered language?" I'm currently in training to be a counselor.... I might look into this a bit more at the professional association level. :D
I love hearing your reasoning for this, I already knew the autistic community preferred identity first language and the basic reasoning for it. Hearing you say it though helped clarify for my why I usually speak that way regarding my mental illness. I have been told before that I should be using person first language to remind myself that I am not just my mental illness. But the same as you say I can't separate myself from it and I wouldn't be the person that I am if I didn't have it. It took me a while to become comfortable with being called disabled but that was mainly because I am 'high functioning' and so didn't fit the stereotype that I grew up with (didn't think I was disabled enough to be disabled). I spend a bit of my time a place for people with mental illnesses and it was the staff there that were well the government believes that you are disabled enough to be on benefits then there is something to it. Same I don't have an issue with saying that it is a disability that some people are able to live a 'normal' life but I am always going to need supports.
Honestly if nearly half the human population is autistic, then why is it even considered a divergence? Let alone thinking of it as a mental illness. It's not a mental illness, it's just how we are.
@@Jane-oz7pp I never said that autism was a mental illness, I said that I have a mental illness and hearing Chloe speak clarified for me why I usually use identity first language.
I wonder if there’s something similar for ADHD. I tend to say that I have ADHD, but it’s a part of who I am, too, not a disease, even with the disorder in the label. Although since I’ve begun to suspect I’m autistic as well I’ve mostly just been using the neurodivergent label.
ADHD is interesting because the symptoms can change over time (change to other symptoms or improve). Technically, it's possible to have symptoms improve to the point where they're subclinical, although usually ADHD isn't simply outgrown. I like the neurodivergent label more as well, because it isn't focused on the obstructive symptoms, it's more focused on how the cognitive processes are just different. It isn't better or worse, it's just different.
I was wondering the same thing. I'm not autistic, but I have adhd and there is simply not one part in my life that is not affected by it. Also I think the medical view on adhd - you can only get diagnosed when it has a strong negative impact on your life- is not really painting a complete picture of what it means to have adhd. I struggle with lots of think, but there is also this amazing creativity and empathy that come from noticing all the small details around you and I wouldn't trade that for anything. I really wish we had a proper name for it instead of some letters that really don't do us justice.
I sometimes use ADHDer. It's not grammatically correct but idc. I've been using neurodivergent lately as I suspect I'm also autistic
Well said and completely agree with you! I started watching Atypical and there is a long scene explaining how ‘autistic person’ was wrong and it should be said ‘person with autism’. Not only did this demonstrate that they did not research autism from an autistic persons view or consult with the autistic community in their show (which is scary since the entire series is based on ASD), but they are spreading misinformation.
I’ve been forced to use “I have autism” by unimportant neurotypical people.
Now I’ve distanced myself from them, I’ve been using the other term.
I feel a lot more free and independent
Thank you 🙏 Chloe
@Gaia R yay I got a response
Hey Chloe, I’m neurodivergent and have an education degree and we were told to use person first language when submitting papers. This was confusing to me because I’ve always used identity first and same with all the autistic/otherwise neurodivergent people I know. It’s drilled into education students that they have to use PFL because the academic resources unfortunately come from “childhood development experts” (teachers and psychiatrists usually) rather than firsthand from actually autistic people. Universities also love to preach “differentiation” and inclusivity but don’t actually acknowledge the feelings and beliefs of actually disabled people. Person-first language also comes across as pathologising autism rather than acknowledging it as a real part of a person’s identity and worldview.
I'm diagnosed and I really don't care which one people use, as long as they are treating me with respect that's all I care.
I’m in the mental health field and I agree with you. It’s been drilled into our heads to use person centered language but it should be up to you, not my supervisors.
Thank you so much for speaking wirh such depth, clarity, and honesty.
I had a sister that was so afraid of me telling a potential employer that I am autistic because "they will look down at you".
Completely the opposite: Employees love me helping them organize and plan processes, and that gives me Joy.
I am Autistic... and proud to say it. 😊
Heck yes, that's awesome to hear. Neurodiversity is slowly gaining awareness in the corporate sphere because many autistic people are amazing workers and offer a lot of value and new perspectives. Some of the best people I've worked with were autistic. They accomplished things no neurotypical person could, at least that's my honest belief (I worked with a lot of engineers haha).
I’m glad it was super positive for you in my case diagnosed at 23 it was damned if you do disclose and damned if you don’t
I am autistic myself and it was never really clear to me why saying ‘I have autism’ is seen as ‘bad/incorrect’ but you explain it so clearly and I understand now!! So thank you so much and I can now explain it to people who don’t understand this as well ♥️
I personally would rather just be called by my name which is rachel or rach. I’m visually impaired, autistic, epileptic, have cerebral palsy, anxiety and depression. I like it when people just see me as me and not a condition. That’s my take on it 😊 xxx
Yaaaaz!!!
Thank you for explaining. I was taught person first language by a professor in a wheelchair who was a strong advocate for that phrasing. He explained it as recognizing the person and not their disability. In his life, he had experienced being reduced to just his wheelchair. I am trying to adjust my own language to respect individuals and how they want to be referenced. The comparison to other identity first groups was very helpful.
Thanks for being respectful while stating your opinion. I personally don’t really like identity first language, because autism is not all there is to my brain. My cousin is also diagnosed with autism, and he has a completely different personality to mine, which is part of the reason that I wasn’t diagnosed until I was 18 years old. While I acknowledge that autism is a big part of who I am, we have to remember that autism affects each individual differently, so you don’t have your children fall for the trap of "oh you’re nothing like you’re autistic cousin". As for how autism affects my personality, I don’t feel like it affects my personality as much as my ADHD does, but sadly, there is no identity first language for ADHD. if there was, I would gladly use it. But I still refer to myself as a person with autism. It’s also a question of what sounds natural and what sounds forced. Like, I’m blind, and saying I’m a person with blindness would sound really weird, but person with autism sounds more normal, so I use it. If person with blindness, or person with bisexuality, or any other label thrown at me, were accepted terms, I’d use those too.
THE WAY I GOT SO HAPPY WHEN I SAW U POSTED ILY
I wish I could play this video for my law and discrimination class, they did a decent job of explaining the medical vs the social model of disability, but the profs insisted on person first language and I feel like this would help a lot
This video is so helpful thankyou!!
Ps. Love the outfit ( especially the flower crown which I really want to make )
I’m an able-bodied, neurotypical person (at least I’ve never been told otherwise) and I tend to use both identity first and person first language interchangeably. I don’t really think about and just say whatever is more relevant to the situation.
God I love how fast you talk it vibes so so well with my adhd!!! 💖
Thank you for this video. I’m autistic and I’ve really struggled to wrap my head around what these different ways of saying things meant. I never knew if I was typing things “wrong” in a way that was spreading misinformation. But I couldn’t separate the difference between them.
This video really helped me understand what it all means and I agree with your views on it.
Love this video! I agree with everything. I’m proud to be autistic and disabled 🖤
I wish people valued the thoughts of the autistic people themselves. I'm glad to hear your thoughts. I am as well, and it's interesting to think the way people refer to you in little situations really shows the way they think about you
THAT JACKET AND THE FLOWER CROWN OMG- I loooooove your colourful style so much!!!
I love how you can tell how enthusiastic she is to spread awareness:)
My fave. is I'm an Autist. Love your rants Chloe & giving other Autists a voice who might otherwise not have one.
Hey Chloe. I am a recent fan of yours. First I adore your jacket.... Second I think your words are strong and I love them... Except society is stronger than us.... So I don't feel strong enough to go against the system... But I admire you for doing that.... Well done..... Keep it up girl you are making a difference for autistic people. Just for the record, I am a 36 years old woman diagnosed a year ago....
You go Chloe! I am autistic as well I was at birth and always will be, it just took me a really long time to figure it out 39 years. I prefer being called autistic because it’s who i am it can’t be cured nor would I ever want it to be, it defines me and without my autism I wouldn’t be complete.
Thank you Chloe! You are an earth Angel - My daughter Erin,almost 20yrs old is autististic, & thanks to you,I just had a great conversation w/ her, asking what language she prefers, examples I may say she does NOT prefer...THANK YOU for opening this topic up in my mind,& now between Erin & Mon& Dad! I will be listening to my word choices With even more awareness thank you! Say hello to your incredible animals -and watching you and your little sis on the various horses you are both so skilled - WOW! I loved the animal tour video by the way! Thank you for sharing and educating!
🌸
omg finally someone talking at a pace that i can understand & comprehend!?
Thankyou I'm sending this to my ableist family
you're so funny and positive Chloe! Keep up the great work!
I don't really know how it actually got started, but person-first language has always sounded to me like some attempt to avoid using the wrong word as the main/only noun just got twisted into not using adjectives because some people don't know how to grammar.
♡ I love listening to you and I love learning about autism! My cousin is autistic. It's good for me to know what is appropriate and what isn't!
Hi Chloe!, I have a question aside from the vid, I was diagnosed with ADHD but my parents say I will grow out of it. Is this true? to what extent? love you❤️
You can’t outgrow ADHD! It’s a key part of who you are. Your ‘symptoms’ may change as you grow older and understand yourself, but it’s impossible to simply not have it anymore x
Yes, it the ADHD will express differently at different times in your life and with the tools you learn (they can call it therapy) tricks to help you but, that part of you will be there.
No you don’t grow out of it an ADHD child grows into an ADHD adult it will just affect their life in different ways as they age
No yo can't outgrow ADHD
Adult with ADHD here. Mine got “worse” with adulthood.
I love your energy, your stlyle, your way of explaining things. You're amazing and definitely my favorite youtuber at the moment
Completely agree.
One technical issue, though. I notice a lot of your videos are very brightly lit, which is fine if that's intentional. I just find the brightness a little overwhelming ,so I usually turn on "night light" filter on.
Thank you for this! I really want to understand the experience and needs of autistic people, and you are right, the person first language was trained into me.
I used to wish I didn’t have autism and thought my life would be better without it but now I’m proud to be autistic and apart of this amazing Community xxxx
Omg I LOVE your jacket!!
Hi chloe, this may be a wierd question but I've begun to question if I may have autism, (I've watched a lot of videos, including several in depths explanations of the qualifications for an autism diagnoses and checked off all the boxes for those) however unfortunately i am still a minor and my parents have refused to get me therapy so I don't have a professional to talk to about it. I did bring up some of my symptoms to my mother and she immediately denied me being on the spectrum but especially since I am a person assigned female at birth, a lot of my traits relate to those of AFAB people with autism instead of the stereotypical traits. Do you have any tips on how to explain this to my parents?
Just to be clear, you want therapy, not necessarily a diagnosis?
Getting a formal diagnosis may be a requisite to get therapy. I don’t know where you live so money, health insurance and education might be an issue here, not just ignorance. You may want to look into these things.
Being a minor, there are unfortunately a couple of drawbacks. I hate to say this but, if your peers learn that you are in therapy or are autistic, you risk becoming the subject of bullying. You must decide for yourself if you are willing to risk this. Lots of schools have “zero tolerance policies” in regard to bullying. It has been my experience that those are just pretty words on a piece of paper, they don’t mean anything when they need to be put into action.
Getting a formal diagnosis may open up some options, but it also closes some. For instance you may be required to list such a diagnosis when applying for a job. This may make it a lot harder to get a job. Many countries have laws that forbid employers to discriminate autistic people, but proving that an employer is in violation of such a law is virtually impossible. On the other hand it might give you extra time at school tests.
I would recommend you watch some videos with Tony Attwood. He has some (very long but educational) RUclips videos on therapy for autistic people.
I would also recommend watching some videos with Sarah Hendrickx, she has a few videos on RUclips about girls and women with autism, in particular why they much harder to diagnose than boys and men.
Knowing more about these things may make it easier for you to make a convincing argument to your parents.
Perfect timing, I was wondering about this very topic!
I intern for a nonprofit that provides services and advocates for people with disabilities and we are always told to use person first language.. I feel so conflicted because I’m scared I am hurting people’s feelings without knowing I am
If in doubt, listen to the community
I did my dissertation and chose to use a mixture of identity first and person first language since I know that people prefer different labels and my lecturer put in my feedback that I should be using person first language I genuinely feel like I should show her these videos but also I’m literally autistic and prefer identity first who are you to stop me
It isn’t a condition, it’s a key part of your identity
Dang, if only I could've found this video a week earlier when my school was making a big deal telling everyone to use person first language
as an autistic nurse student who's doing an essay about autism, it helps a lot
Great video! Thank you!
Idendity First Language: Autism is meaning that we should say “an Autistic Girlfriend”, “An Aspie Father” or “I have Nine Autistic Friends”.
Autism is never going to go. It is always changing characteristics on an Idendity, but not outgrown nor removed.
You explain things very well thank you for making videos
My "friends" all say that there is no way that my daughter nor I are autistic. I am almost certain we are. I can't believe they don't "see" it. But I also can't believe that they don't care about it; they obviously don't care about us.
The nuortipicals don't have the right to say how we as neroudivergents live our lives
Hi I would just like to pipe in and say that I have never once in my entire 40-year long life ever referred to it as me having autism whenever I say it I always say I am autistic because it is it's who I am it's everything about how my mind works which is what makes me who I am I don't have it I am it
Can you do a video on what burnout is and what causes it
Still love your chanle ❤️💛💚💙💜🖤♥️♥️🖤💜💙💛💓💓💓💓💗💗💗💗💗💋💖💖💖💝💝💝💝
I'm going to proclaim myself as a "hollow boy". That's just how I've always felt, not quite complete and unable to determine the exact step needed for completion. I'll just continue to study and all of my tastes are eclectic.
You are so correct and yes what you are saying about identity first say applies to so many other area of like and so called “political correctness”
Separate note - you jacket is cool
Epic video, thanks for helping me understand as someone part of this community but only recently discovering it. Thanks so much for all you share. Love you lots. Keep being you ❤❤👍🌼🌼🌼
Nice jacket 🦄 makes me think of that Netflix film The Unicorn Store 🦄 where’d you get it from
Great video, I am an autistic, dyspraxic and epileptic person, i prefer identity first language because i feel it descibes me best. if i was not autistic or dyspraxic or even epilpetic i would be a very different person so therefore for people to say " oh but it dosent define you" is frustrting because it does.
This is so empowering. Thank you🦋
How does one say Chloe dresses like a four year old in the best way possible? Like as a compliment.
Chloe dresses like how i really wanted to dress when i was younger but couldn't because parents, now I'm a goth but still
Ouch people who give so called back handed compliments don’t realise how they hurt others
@@Dancestar1981 I'm sorry did i say that wrong? I didn't mean to be cruel I'm so sorry i don't know how to give complements i was trying to be nice I'm so sorry
I use identity first when I talk about others, but me and my autistic best friend both like person first (I picked it up from her, she says it in a stimmy way)
intersting... i never realy thought about it but it makes sense. you realy explained it beautifully:), thank you for teaching us:).
😃
ilu “WHO I AM IS EXACTLY WHO I’M SPOSED TO BE”
God bless you
Ok. You’ve changed my mind. I have preferred to say I have ADHD because I didn’t want to label myself as ADHD. After listening to you I realize that that reinforces the idea that ADHD is a bad thing and something that I could get rid of. It’s not though. It’s a part of me and a part that I should accept and identify as. It’s not something I can get rid of and act like a normal person. I have to become it and embrace it and let myself grow and be more as who I am, not who society wants me to be. And I want the same thing for my son. I will no longer say “my son has ADHD” but instead “my ADHD son”. It’s easy to focus on the difficulties of our disorders rather than see where it makes us special and unique and better than normal.
How do we know what to use? Identity First or the Other Way? Because there are many people who themselves prefer identity first and there are people who don't like identity first. So how to decide which thing to use if we are seeing and talking to the person for the first time? What if we don't use identity first and the person doesn't like it or if we use identity first and the person doesn't like it?
I know I might be sounding silly and you may say just ask the person but what if I ask and the person doesn't like that I asked?
By the way, I really like you and your channel! 💛💛 I got to know so much about the people around me and what challenges they have to face. Thank you so much for making videos!!♥️
@Gaia R Okay! Thanks!
@Gaia R Thanks to autistic people for making the world a better place! ♥️♥️ And thanks to Chloe and other autistic RUclipsrs to make videos about autism and educating people!
@Gaia R ♥️♥️
Now I feel way more comfortable saying I am borderline and hypersensitive because that's part of who I am.
Yours so intelligent! Makes you so much more beautiful.
I agree. Autism is a pervasive neurological developmental disorder. Therefore I _AM_ autistic by definition!
Need a jacket like yours. From where is it?
Your amazing
Hi! I just found this video and channel. You’ve given me so much good information. I’m disabled (person with a disability), but I’m not sure how to use identify first. My disability is called schizencephaly. It’s a neurological disability. So, do you have any suggestions on how I would use identity first since my disability is rare and only called schizencephaly?
Your amazing this is amazing 💝💝
“Everything is fake, everything is made up” Chloe getting deep in the first 1 minute. Joking aside tho thank you for this video, I had been a bit confused about what language I should use but now I know :D!
PREACH
With clinicians with Dr Tony Attwood the person with autism I get is from experience of a study of people as a clinicain as he says in his lectures. So the autism Attwood top with level 1 autism (formerly aspergers sepecialist) so I get person with autism it is behavioutr study of autistic people,
If I thik about the 3rd wall in the comments i say autistic person. Because I knoe majority reading my comment would be autistic so use l;anguage they like.i prefer to.
Really interesting video and I think it is really interesting and kind of rude that professionals sometimes refuse to use the language the autistic person want them to be using...
I am a neurotypical person and I am doing a presentation on the Paralympics. After watching this video, I am kinda insecure about my choice of words. What am I supposed to write, person with disabilities or disabled person? Does your explanation about autism apply to that more general term or is that a different thing? I am very sorry if I said something wrong or offending, I do not have any experience myself...
Good luck. I am glad I am not in your situation. Different communities have different preferences. I would try to avoid using IFL and PFL altogether.
Hello. I have a question that's been playing on my mind for ages. How do I portray autism in a animated series? Bc I have a series inspired by my story (including fantastic elements) and I don't want to ruin the show by portraying one single thing wrong
Aw, yay- first lol (never done that before ) This is such an interesting topic!
Chloe, I really LOVE your beautiful jacket shirt and it matches your floral headband:)!! And although I am not Autistic, I do agree with you when you said, "I am the politics in the situation":)!! I have always seen you as a real awesome person period because you are strong, creative, fun loving, and it does not matter to me whether you identify as Autistic or not:)!! And as for identity, I have learning disabilities and a Psychologist thought she could tell me that my Academic I.Q. Number is "who I am" and I think that we can not tell anyone who they are!! So, I would say that we should let each person Adult and Child to find their own identity and not impose an identity on others:)!! So, if you believe your identity is being Autistic that should be your choice. Just like I do not agree with this Psychologist that my I.Q. number is "who I am" because there is way more to me than academics, I believe I have a Soul which has been created by God and that is where my identity is for me and that is my choice:)!! So, I believe as long as we listen to our Conscience, have a good heart, care about each other, and follow the law, we should respect other people's identities:)!!
Perfect.
Personally, I couldn't care less about the terminology. But I can see the deeper issue, and I've gone back and forth over it since I discovered (around 1980) that I was different. Yes, it's part of my identity, and I would definitely not be the same person if I weren't autistic. There are even positive aspects to it. But the price has been very high. Even at this late date I can't say I wouldn't take a "cure" if such a thing were possible.
What if the so called cure removed all your gifts too. The only thing I’d want to get rid of would be the deficits. At least that’s my opinion as a 40 yo female Aspie who is going to go for an ADHD assessment in a few weeks
@@Dancestar1981 Yes, I covered that point. My point is that it isn't simple, and, like the trolley problem, almost certainly does not have an answer at all. Those who would eliminate autism and those who proudly celebrate the identity should both remembe that.
My neurotypical friends getting offended when I make a joke about being autistic: ThAtS aBlEiSt
I wish I could talk as fast as you but I tend to forget breathing, especially when hyperfocused
Really interesting video and I think it is really interesting and kind of rude that professionals sometimes refuse to use the language the people who have a disability want them to be using...
What about adhd? As I know a lot of people with adhd who would say their identity is also dictated by there adhd. Yet it doesn’t sound right to say someone is an adhd person? Just curious what your opinion as someone who is both autistic and has adhd? 😊
Being from Austria I added another word into the game - autist. Not sure if it has been used before but I'm just gonna continue now 😅
It is fitting for me... I am an autist. And I think it's a way of being proud of myself 😊
It’s commonly used in Sweden. I personally don’t like it, because it sounds like we are of a different species.
@@the_5th_night I'm not bothered by that but I can understand why you might feel uncomfortable by that.
Thanks so much this is so informative :)))
May I possibly suggest a theme song or amma mata for autistic individuals? Please take a listen to beyonce's song "Listen" and please let me know if it's appropriate thanks?
The other day I saw a tiktok where someone in the comments critisized the first person language used in the video. And first I didn't really get it at first. The video specifically said "my adhd friend" and when I thought about I noticed that I wouldn't like it if a friend called me that, because it sounds like they are just friends with me because of my disability and that they can show off their tolerance. It's like saying my gay friend or my black friend, so they can reassure that they're not homophobic or racist. I guess in the case of adhd first identity language also bothers me because adhd isn't an adjective but a noun.
Although maybe there should be an adjective, since it is like autism a neurotype
It was cool to see you at my school today.
Ps: do you play video games and if you do what games?
Great topic and excellent explanations. What are you thoughts on the more broader terms of neurotypical and neurodivergent, neurodiverse, or neuroatypical? Or when people say "on the [autism] spectrum". I totally agree with you that the words we use matter, not just in communicating exactly what we mean with others but it also shapes how we think, how we conceptualize the world around us. (Maybe the neurotypical label should be replaced with neurobasic hahaha)