My Wife has Glioblastoma, and it is large and very aggressive type 4. I wanted her to fight with chemo and radiation, she never wanted that then I realized it is not my choice at all and I was being selfish. so we are letting natrally progress and as her husband and full time support , it is heart breaking to watch how fast it grows and takes away your loved ones abilities. is there a good support group out here on the web ? all the best to all of you in your battle!
Great talk, I wish cancer patients get to watch this video, increase their awareness and understand that they have lot more options than what's given to them.
THANKS SO MUCH! Would like to know your opinion on this: Is it useful to run a molecular profile for recurrent neck cancer (already tried radiotherapy on vocal cord, larynx removal, and then cancer is back near the trachea, right on the tracheostomy). Chemo with cetuximab is the proposal because it is “just the standard one” as they say. Thanks again
Yes. The molecular profile tests should be performed. It is unlikely they will show a mutation that can be acted on, but one must be sure in this regard.
Have you treated many people with mucinous carrcinoma? Last year I had four biopsies following radiation. Only the last one showed a little bit of mucin. I feel like it is so hard to get a sample. I had yearly mammograms as my mother died of breast cancer. Nothing showed up. When first diagnosed, my surgeon thought I would need a simple lumpectomy. When she did the surgery, it was discovered that it had invaded my chest wall. Two years out, and I am very frustrated. I am on fulvestrant and Ibrance and doing well.
I have. As you know, we typically associate mucinous breast cancers with having a favorable diagnosis. They very rarely metastasize. I'm so sorry you're having to deal with this, but it sounds like ibrance/fulvestrant have controlled the disease for 2 years. There is no reason to not expect them to continue doing so.
In Canada our genetic tumor testing is not covered by insurance if we were to pay out of pocket for one which would you recommend? And if your first line of treatment is working should I bother testing?
I hate the idea of you paying for these tests out of pocket. They are too expensive in my opinion. In general, if your first treatment is working you can hold off on testing given the insurance issues. I would need to know much more about your situation to give you a more definitive answer.
I understand saying that the patient needs to know all of these things, but my step dad just got diagnosed with glioblastoma. He doesn't seem to be capable of understanding all of these things because the cancer is affecting his brain.
I am truly sorry. This certainly can happen depending on the location of his cancer. Fortunately, he appears to have a loving family that can help guide him.
My Wife has Glioblastoma, and it is large and very aggressive type 4. I wanted her to fight with chemo and radiation, she never wanted that then I realized it is not my choice at all and I was being selfish. so we are letting natrally progress and as her husband and full time support , it is heart breaking to watch how fast it grows and takes away your loved ones abilities. is there a good support group out here on the web ? all the best to you in your battle!
@@danlachappelle My heart goes out to you. I can't even imagine how difficult that is, but I admire your commitment to respecting her wishes. My step dad finished his first round of radiation and is doing better, but it's still scary to see how he's changing.
So… an oncologist should have patient take a scan for any diagnosis??? How can I get a scan if the oncologist has not ordered one, but issued a diagnosis and recommended a course of treatment?
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My Wife has Glioblastoma, and it is large and very aggressive type 4. I wanted her to fight with chemo and radiation, she never wanted that then I realized it is not my choice at all and I was being selfish. so we are letting natrally progress and as her husband and full time support , it is heart breaking to watch how fast it grows and takes away your loved ones abilities.
is there a good support group out here on the web ? all the best to all of you in your battle!
I'm so sorry. Facebook has a tremendous support group.
facebook.com/groups/197153540892173
I wish you all the best in the world.
You are absolutely awesome. We need more doctors like you in this world. We certainly would have better outcomes.
Thank you for your incredibly kind words Greg. I wish you all the best.
Great talk, I wish cancer patients get to watch this video, increase their awareness and understand that they have lot more options than what's given to them.
this is helping me so much right now
Thank you for your commitment… passion… genuine heart.
You are so right. Nobody understands what it’s like unless they have it. Thank you for everything you do!
Wow! Best information I seen on line
❤ I love Survival Tip #1 clip. So applicable and so inspiring.
I think we have reached the cure stage these clinical trials are essential.
This video is so helpful
I like that attitude
If I had known about my partners cancer I'd have looked or suggested this....
THANKS SO MUCH! Would like to know your opinion on this: Is it useful to run a molecular profile for recurrent neck cancer (already tried radiotherapy on vocal cord, larynx removal, and then cancer is back near the trachea, right on the tracheostomy). Chemo with cetuximab is the proposal because it is “just the standard one” as they say. Thanks again
Yes. The molecular profile tests should be performed. It is unlikely they will show a mutation that can be acted on, but one must be sure in this regard.
@@revolutioncancer6610 thank you
Have you treated many people with mucinous carrcinoma? Last year I had four biopsies following radiation. Only the last one showed a little bit of mucin. I feel like it is so hard to get a sample. I had yearly mammograms as my mother died of breast cancer. Nothing showed up. When first diagnosed, my surgeon thought I would need a simple lumpectomy. When she did the surgery, it was discovered that it had invaded my chest wall. Two years out, and I am very frustrated. I am on fulvestrant and Ibrance and doing well.
I have. As you know, we typically associate mucinous breast cancers with having a favorable diagnosis. They very rarely metastasize. I'm so sorry you're having to deal with this, but it sounds like ibrance/fulvestrant have controlled the disease for 2 years. There is no reason to not expect them to continue doing so.
@@revolutioncancer6610 Thank you for your response.
In Canada our genetic tumor testing is not covered by insurance if we were to pay out of pocket for one which would you recommend?
And if your first line of treatment is working should I bother testing?
I hate the idea of you paying for these tests out of pocket. They are too expensive in my opinion.
In general, if your first treatment is working you can hold off on testing given the insurance issues. I would need to know much more about your situation to give you a more definitive answer.
It would depend on the tumor type and situation.
I understand saying that the patient needs to know all of these things, but my step dad just got diagnosed with glioblastoma. He doesn't seem to be capable of understanding all of these things because the cancer is affecting his brain.
I am truly sorry. This certainly can happen depending on the location of his cancer. Fortunately, he appears to have a loving family that can help guide him.
Thank you for responding. Yes, we all love him so much. I appreciate all the work you put into this channel so that we can educate ourselves.
My Wife has Glioblastoma, and it is large and very aggressive type 4. I wanted her to fight with chemo and radiation, she never wanted that then I realized it is not my choice at all and I was being selfish. so we are letting natrally progress and as her husband and full time support , it is heart breaking to watch how fast it grows and takes away your loved ones abilities.
is there a good support group out here on the web ? all the best to you in your battle!
@@danlachappelle My heart goes out to you. I can't even imagine how difficult that is, but I admire your commitment to respecting her wishes. My step dad finished his first round of radiation and is doing better, but it's still scary to see how he's changing.
So… an oncologist should have patient take a scan for any diagnosis??? How can I get a scan if the oncologist has not ordered one, but issued a diagnosis and recommended a course of treatment?
Would his transplant of his liver 7 years ago have affected the treatment?