The Glioblastoma Brain Cancer Patient Journey DEMYSTIFIED.

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  • Опубликовано: 24 дек 2024

Комментарии • 324

  • @dasottonator1363
    @dasottonator1363 2 месяца назад +8

    My mom was admitted back to ICU for recurrence less than 2 months after a

    • @bluesmoke8826
      @bluesmoke8826 27 дней назад +1

      Whatever your name is,I'll pray for your mom

  • @MarioCiroCaniza-pz1jh
    @MarioCiroCaniza-pz1jh 9 месяцев назад +22

    A son (42) of a close friend was operated of GBT (grade four) few month ago. He is still investigating the best posible treatment. We think is a good idea to be open to new ways to treat this horrible disease. Thanks very much.

    • @RomeoFiles-f4l
      @RomeoFiles-f4l Месяц назад +1

      I know a case that improved after several NK cell injections (in Asia)

    • @thiamhuatang5109
      @thiamhuatang5109 14 дней назад

      ​@@RomeoFiles-f4l
      Please give more details. Thanks.

    • @thiamhuatang5109
      @thiamhuatang5109 14 дней назад

      How is your son?

  • @321chaza
    @321chaza 9 месяцев назад +70

    I’m 26 now - I had surgery last year at 25 years old. I’m still on chemo now. Wish me luck

    • @revolutioncancer6610
      @revolutioncancer6610  9 месяцев назад +8

      We all wish you the best of luck!

    • @mikebyrd546
      @mikebyrd546 6 месяцев назад

      Try to get a juicer and juice greens stop sugar and try to get Hyperbaric oxygen treatments. These all help boost your immune system and get oxygen to the brain and tissues to help heal. Do research on it

    • @kenadams5504
      @kenadams5504 2 месяца назад +2

      Have you heard of keto ?.

    • @nettie4408
      @nettie4408 26 дней назад

      Iwould not go near chemo if you paid me.....sigh

    • @nettie4408
      @nettie4408 26 дней назад

      Anyway we all have to die why is everyone so scared of going to better place? I waa misdiagnosedcat 52 n have carcinoid syndrome but no fear at all lookingbforward to next step n i 3 kids. Maybe some of us have more advanced souls so no i dont wish luck eithervasvasking shows how little faith one has in Divine...in he whom created YOU AND UNIVERSE as we sure did not do it.
      Fear is your biggest enemy.....

  • @hrvojeivankovic1891
    @hrvojeivankovic1891 Год назад +19

    My mom was diagnosed with GBP grade IV yesterday. She is very positive and we will fight. Next week she well have surgery. Hope everything goes well.Thank you for you video, I learnt a lot and will be helpfull in future treatment. Good bless you

  • @profalexis
    @profalexis Год назад +33

    i had my brain surgery in december of 2019 followed by radiation and chemo. did at mayo clinic in Minnesota. i'm sill here! andi's about every 4-6 months. i'm still alive but im not myself. completely disabled:( i trust mayo completely and do everything they tell me. i'm still here!

  • @peterhealy1844
    @peterhealy1844 Год назад +42

    My girlfreind died from this i wouldnt wish it on my worst enemy im prayin for you all who are living with this my heart aches for you all

    • @chuckhere
      @chuckhere Год назад +5

      God Bless You, same boat here, had golf ball size tumor taken out last night. Also waiting for Pathology, but thankfully no pain. i've been watching soothing stories about Near Death Testimonies.

  • @FerociousPancake888
    @FerociousPancake888 11 месяцев назад +6

    Not a patient, but preparing to apply to medical school next year and have very high hopes for getting into neurosurgery. Really great presentation! Would love to work with this doctor. What a great personality and skill to explain such complex topics to all audiences.

    • @revolutioncancer6610
      @revolutioncancer6610  11 месяцев назад +1

      Thank you for your wonderful comments. I wish you the best of luck in your neurosurgical career. Please take care.

  • @darlenejuliana3591
    @darlenejuliana3591 Год назад +64

    Awesome talk. I would have liked to have heard this when 1st diagnosed. So helpful. I was diagnosed April of 21 had surgery then chemo and radiation
    All of my scans have looked good. No sign of reoccurance. I am 23 months post surgery and doing great thus far. Just having a ray of hope helps tremendously with this journey. At first I was not given much hope. I decided I couldn't navigate daily life that way. So I decided, to concentrate on the positives. #1 I'm still here. My last oncologist appointment I was finally given positive affirmation. Dr. Said, every day that you live that this doesn't come back, you are one day closer to it never coming back. Attitude makes a difference especially on this journey.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +7

      I love everything about this. At this point you could give this talk better than I could. I am completely with you and wish you so very well.

    • @hemantsharma1858
      @hemantsharma1858 Год назад

      What was your first symptom and the time between first
      Symptom and diagnosis

    • @taribeer4985
      @taribeer4985 Год назад +3

      I am so happy to read your post! There are people out there pulling for better research and procedures for this battle! Awesome to hear you’re well! ❤️

    • @nancynelson5365
      @nancynelson5365 7 месяцев назад +1

      Thank you for your story. My husband is going through treatments now. He is completely disabled, right side paralyzed. We look for hope . My prayers are with you that you are still alive and doing well.

    • @VishalSharmaOfficialVS
      @VishalSharmaOfficialVS 24 дня назад

      My dad was diagnosed this in 2nd week of November. His surgery is done a week ago. We are very troubled hearing this news. Neurosurgeon has referred us to Medical and Radio Oncologist for radiation and chemo. Did you made any dietary and lifestyle changes?

  • @amandag7777
    @amandag7777 Год назад +10

    This is the best presentation I have ever seen. I wish I had watched this eight months ago. Thank you so much. My mom is battling GBM

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      I am so sorry about your mom. Thank you so much for your kind feedback. It really helps. I wish you and your family, and especially your mom, all the best.

    • @amandag7777
      @amandag7777 Год назад +2

      @@revolutioncancer6610 thank you so much

  • @chopcityhk
    @chopcityhk 10 месяцев назад +9

    My mom was overall very healthy until late December ‘23 and was suffering headaches, loss of balance, falling, and a few other motor symptoms. It got bad very fast and we ended up taking her to the ER in the beginning of January to find out that she had Grade IV GBM in her right frontal lobe. She had it surgically removed middle of January and is now completely back to normal, even better in some ways luckily. She was given a prognosis of 10 months to 3 years and is set to start chemotherapy and radiation towards the end of February. I’m hoping she can make it to the 3 year mark or hopefully surpass the 3 year mark.. She’s only 57 and I can’t imagine losing her at my age of 24..

    • @revolutioncancer6610
      @revolutioncancer6610  10 месяцев назад +2

      I wish her all the best. I'm so sorry this is happening.

    • @Nokless
      @Nokless 3 месяца назад +1

      Hope your mon is still going strong man

  • @roewai8132
    @roewai8132 Год назад +8

    I just wanted to say thank you for all that you do. My mom was recently diagnosed with grade 3 glioma and I’m heart broken but I’m going to do everything I can

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      I wish you and her so incredibly well. Thank you so much for the kind message.

    • @_Babu_TD
      @_Babu_TD Год назад +1

      How is your mother, i am facing the same with my father GBM4- Non Methylated

  • @simonevelin08
    @simonevelin08 Год назад +33

    My mom was diagnosed 1 month ago with glioblastoma, her right side is paralysed; speech is very limited and the neurologists said it is inoperable. She always ate healthy; didn’t smoke or drink or ever complain about headaches, she always had an active life. It is so painful and once the doctors said she might live max up to 5/years i felt the earth is going to swallow me. It is a horrible feeling /thought and awareness that my mom will depart from me. She is 57 years old and i still cannot believe this happened. But God has a great plan for everyone and through His Grace miracles can happen but God knows better why this happened and what the future brings. I just pray and hope that the remaining time will be pain free. Last time she was still joking with me #Godknowsbest #Strengthandlovetoall

    • @surenderoati
      @surenderoati Год назад

      In the same boat bro...Jai Mata Di...God is kind❤❤

    • @taribeer4985
      @taribeer4985 Год назад +3

      Same thing about the healthy lifestyle for my husband! Incredible and hard to wrap my head around!

    • @Karla-yi5ld
      @Karla-yi5ld Год назад +3

      So sorry about your mom. I was blown away and couldn’t grasp this was happening to my husband. He did everything right in his life too.

    • @sunshine-bs2jx
      @sunshine-bs2jx 11 месяцев назад +2

      Same for my sister diagnosed few mths ago too . My life is over if I lose her . I won't do it once she's gone I've nobody else

    • @michaelb41
      @michaelb41 11 месяцев назад

      God loves our brother and sister more then we ever could.@@sunshine-bs2jx

  • @tubularbrit88
    @tubularbrit88 Год назад +4

    Thank you for this information. My dad was recently diagnosed and this is bringing some comfort and positivity.

    • @janetmyers3729
      @janetmyers3729 Год назад +3

      I think your dad is on a similar timeline as my sister who is 75 and otherwise healthy and very active. Her treatments will begin in just over a week.

    • @tubularbrit88
      @tubularbrit88 Год назад

      @@janetmyers3729 is she starting temodor?

    • @janetmyers3729
      @janetmyers3729 Год назад +3

      @@tubularbrit88 yes. She started a three week course of radiation and the tremor one week ago. So far no nausea.

  • @monkeybot
    @monkeybot Год назад +15

    Just wanted to jump in and thank you for the encouragment and peace I got from watching this. I had surgery a couple weeks ago for a grade 4 monster, haven't started treatments yet, but I'm ready for the fight. Also, it was a real pleasure looking at a version of my 8th grade self when I was still smart af and ready to be a geneticist (I ended up in the arts :P). Thank you again, much love brother. You a good one.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +3

      Thank you for this wonderful comment. I wish you so very well.

    • @hemantsharma1858
      @hemantsharma1858 Год назад +3

      What is your symptoms and what is the time between first symptom and diagnosis 😢

    • @monkeybot
      @monkeybot Год назад +2

      @@hemantsharma1858 Only ataxia and headache. Diagnosis about a week later. Zero symptoms since.

    • @susiepolancodemejicanos3554
      @susiepolancodemejicanos3554 Год назад +1

      Mucho ánimo

    • @hemantsharma1858
      @hemantsharma1858 Год назад

      @@monkeybot only a week between first symptom and diagnosis so fast

  • @nataliepapolis
    @nataliepapolis 10 месяцев назад +4

    Don't apologize for explaining in details, the people that complain about that can look elsewhere

  • @clarkbennett2312
    @clarkbennett2312 Год назад +13

    A close friend of mine has GPM and her son has chosen no chemo or radiation because her left side is now paralyzed and doesn’t feel her quality of life will be good. We have to support him in his decision, but I worry about how long her life will be. This was an outstanding presentation and I appreciate knowing more. Thank you!

    • @gabrielle5175
      @gabrielle5175 Год назад +1

      How is your friend now?

    • @clarkbennett2312
      @clarkbennett2312 Год назад +2

      She has a few days before her end of life😿

    • @gabrielle5175
      @gabrielle5175 Год назад +1

      @@clarkbennett2312 I’m sorry to hear … sending strength

    • @SharonWillits
      @SharonWillits Год назад +5

      My mother died from this. Her dr who diagnosed it told her that the remains months-of her life would be better if she did not have the treatments. However she wanted the treatments. Unfortunately her Dr was right. She lived seven months. Most of those months in bed It was sad .

  • @ontoyoualways9183
    @ontoyoualways9183 Год назад +61

    My husband died in 2016 with glioblatoma after 17 months. He was 64. There is absolutely no cure!! If you have Cadillac insurance, the docs will put you through a ton of treatment that simply destroys what quality of life that is left.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +8

      I am very sorry.

    • @barbararyan2428
      @barbararyan2428 Год назад +8

      You are totally right.

    • @DavGreg
      @DavGreg Год назад +7

      It is a tough cancer but there are people who have went on to high quality life after treatment. My nephew is at the front end of this and I work in the medical field, so I understand what you are saying. I am so sorry for your loss and pain.

    • @starborchardt9209
      @starborchardt9209 Год назад +13

      My brother is going through this right now at the age of 58 😢. I am is POA for health care, one week post-surgery he is at a decision making cross road. Do I do radiation or do I use the little time I have left of what quality I have left and forego the radiation. It’s heartbreaking. My heart goes out to all of you that have had to go through this.

    • @mtorres4445
      @mtorres4445 Год назад +5

      Thank you for sharing. My husband has been diagnosed with it 2 months ago and UCSF has been honest and said possibly 2 years with standard treatment.

  • @turtleandspence
    @turtleandspence Год назад +7

    Just shared this with a family suffering - thank you for doing this again.

  • @mcawesomest1
    @mcawesomest1 Год назад +6

    “A good quality of life” is something that can vary from person to person… a good quality of life could me you’re still breathing for one person and for another it could mean your able to go to the bathroom, talk, and not spend 20 hours a day sleeping .

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +4

      Yes, this is implied when I say "a good quality of life", but I didn't feel it was necessary to be overly pedantic.

  • @lindaanderson1921
    @lindaanderson1921 3 месяца назад +5

    To anyone who has Glioblastoma or known someone that had it. What Blood Group were they?
    I am trying to see if their is a link between blood group and developing Glioblastoma.
    thanks in advance

    • @Matowix
      @Matowix 3 месяца назад

      Google it

  • @jackierajewski3166
    @jackierajewski3166 Год назад +19

    I had a glioblastoma in November 2019. I had surgery, and the cancer was removed. I had radiation and chemo. It has been 3 yes 6 months since that surgery. Well, my last MRI in March showed a small growth. So I need to have surgery soon so it doesn't spread to other areas. It makes me nervous this time. I have afib now and an irregular heartbeat. I have had cardio aversion trying to get it back in rhythm, but 4 times hasn't done it.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +12

      atrial fibrillation can be difficult to fully resolve, but many people live with it without complication. When it comes to atrial fibrillation there are three treatment approaches:
      1) Rate control
      2) Rhythm control
      3) Cardioversion
      The underlying idea is that atrial fibrillation is where, as the term implies, the atria don't contract in an appropriate rhythmic fashion and basically fibrillate. Nonetheless, as long as the heart rate is reasonable things usually go well. Specifically, we ensure the heart rate is between 60-100. If the heart rate is above 100 we call that "atrial fibrillation with a rapid ventricular response". This can be problematic because the heart doesn't have enough time to fill with blood before it contracts, thereby resulting in a decrease in the heart's output (we call this the cardiac output). Accordingly, we often use medications to contain the heart rate below 100 if a patient has atrial fibrillation.
      The second primary concern with atrial fibrillation is that it increase the risk of strokes by approximately 4-6% per year (this varies a bit from patient to patient). The reason for this is that when the atrial chambers of the heart "fibrillate" the blood running through them is a bit stagnant. This can increase the risk of the blood clotting in the atria, most often on an area we call the left atrial appendage. The resultant blood clots can then "shoot off" and cause a stroke at a risk of about 4-6% per year, as above. As such, we generally put patients with atrial fibrillation on blood thinners (e.g. eliquis, pradaxa, xarelto, coumadin, edoxaban, etc.) to prevent blood clots and strokes. In addition, many people are on aspirin (usually a baby aspirin) in this regard.
      Ultimately, people with atrial fibrillation can do very well as long as they are treated appropriately. Let's revisit the three treatment approaches we take with atrial fibrillation now:
      1) Rate control: As I stated above we typically want the heart rate below 100 in patients with atrial fibrillation. As such, we use drugs to accomplish this. Drugs often used include:
      a) calcium channel blockers (e.g diltiazem)
      b) beta blockers (e.g metoprolol)
      c) digoxin
      So long as your heart rate is well controlled, even if the atrial fibrillation is present, you should do well.
      2) Rhythm control: This is when we use medications to try and get the heart into a sinus rhythm. Medications often used are amiodarone, flecainide, sotalol, etc. Sometimes this works, sometimes it doesn't, but it's a widely used approach.
      3) Cardioversion: This is where we try to convert the heart back to a normal sinus rhythm using either electrical (shock) or medical (using a drug called ibutilide) therapies.
      Some people, such as yourself, fail attempts to get the heart into a normal rhtyhm. This can happen for various reasons. Often times this is because the left atrium, one of the four chambers of the heart, is too dilated. Nonetheless, patients can still do extremely well with atrial fibrillation taking a rate control approach discussed above.
      In terms of your GBM it seems that you have done extraordinarily well to date and I fully applaud you for that. You are doing tremendously and it certainly sounds like surgery is a viable approach at this time, but obviously it's impossible for me to say anything more definitive without knowing more about your case. You clearly are in good hands though.
      I wish you all the best...

    • @michaelb41
      @michaelb41 Год назад +2

      Gamma Tiles were approved by the FDA the end of September 2023. There is hope! God bless you in Jesus name.

    • @lauren92567
      @lauren92567 Год назад +1

      @@michaelb41what is gamma tiles? Had my friend hubby ask northern westchester hospital about getting gamma knife for wife GBM gr 4 cerebellum wild type. They said , no, sorrry, not for you’re type !! Why not??? Now I’m
      Telling him to demand the right to try !! We joe have that right !! I’m so mad I’m twisted !!

    • @michaelb41
      @michaelb41 Год назад

      Gamma tile is nuclear medicine. I was told in was approved by the FDA in September 2023. Cesium is placed at the time of surgery at the space left where a tumor was removed. It releases radiation to the affected area for 100 days. It has serious risk. A nuerologist would determine if this is for you. God bless you.

    • @sunshine-bs2jx
      @sunshine-bs2jx 11 месяцев назад +1

      Good luck xxx❤

  • @fairpurenature
    @fairpurenature Год назад +3

    fantastic talk, thanks so much, I learned so much from you 😀

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      thank you for the kind comment. It means a lot. I wish you so very well.

  • @lisa_lightguided
    @lisa_lightguided 6 месяцев назад +1

    Incredibly informative. Thank you.

  • @ChloeK-v6z
    @ChloeK-v6z Год назад +3

    This was so informative! Thank you so much ❤

  • @karenyates5953
    @karenyates5953 3 месяца назад

    I’ve just lost my dad from this . 4.5 mths after diagnosis . He went so suddenly it caught us all unaware 😢 I went round to cook him a roast dinner as he was still up and about in his wheelchair ! He had no headaches, he lost his vision and movement down left side . Up until when this hit him he was an active 92 yr old driving and going to his clubs and living his life ! This is such a-brutal, cruel tumour RIP dad xxx

  • @carolbrownleehalbert3593
    @carolbrownleehalbert3593 10 месяцев назад +8

    My husband died of glioblastoma 17 years ago ... He lasted 8 months after diagnosis. He was 59 years old. His death has ruined my entire life!!!

  • @StrykerHomeSales
    @StrykerHomeSales 10 месяцев назад +1

    Is there a link to the fist video you mentioned? I cannot find it on your channel.

  • @elmariekritzinger3666
    @elmariekritzinger3666 Год назад +30

    Thank you so much for this video. However my husband was a healthy, fit 58 year old man. Just had stress hb for 3 years. Early August 2019 my husband told me that he is struggling to consentrate when reading... He was a good reader. On Monday 19 Aug morning he had which seemed to be symptoms of a stroke... He walked into the ER, and the ICU.. Had a mri brain scan and immediately they told us that he had 2 brain tumors one as big as an egg just above his right ear, other one smaller at the back... GBM stage... Grade 4!!! They did 2 more scans to make sure that there are no other tumors anywhere else. The neurologist said that it is a very fast growing and even if they operated and gave chemo and radiation would always return. The big tumor was at difficult place to operate.. Did a biopsy on small tumor.. Gave him 3 to 6 months. We decided to not go the conventional way.. We just invested to consentrate on providing my husband with a good quality of life. Early September he had a stroke which left him semi paralised on the right side, but he worked hard and could walk again and also his a peach improved a little. However late November (after 3 months) he had another mri which showed that both the tumors had doubled in size with much swelling and it has spread. I was privileged to be able to take care of him for 5 months and 5 days when he went to rest on 23 January 2020.
    Thinking of all who has the GBM struggle. ❤

    • @surenderoati
      @surenderoati Год назад +5

      ❤❤
      My mother (62) is in same boat. She has 5 cm brain tumor on right side and her left side of body get paralysed. It was hard decision for us to go for her brain surgery But she survived first surgery and body recovered fine and left hand and legs are working fine and there is no symptoms of paralysis, it has been 1 month for surgery.
      But I am afraid of its recreation in next 8 to 12 months.
      What should be the next step guys...
      Love you mom ❤❤

    • @firstofthemonthclub4491
      @firstofthemonthclub4491 Год назад +5

      You are a beautiful person. Such a loving spouse. God bless.

    • @TR-nv3if
      @TR-nv3if Год назад +5

      I’m so sorry for the loss of your husband..

    • @Karla-yi5ld
      @Karla-yi5ld Год назад +6

      My husband’s first symptoms were headaches. All day he was taking Tylenol. Then he saw bright red and blue colors during a dental treatment and thought he was experiencing a panic attack. It scared him. The MRI showed he had two small tumors at the bottom of his brain and one Lima bean very aggressive tumor on his occipital lobe. When I heard “aggressive” I went numb or shock. Don’t know what else Dr was saying to my husband at that point. Lost my breath. The aggressive tumor was surgically removed but biopsy said GBM stage 4.

    • @elmariekritzinger3666
      @elmariekritzinger3666 Год назад +2

      @@TR-nv3if Thank you... not an easy road, but the Lord is leading..

  • @candykane4271
    @candykane4271 2 месяца назад +2

    Writing for my daughter In law who followed protocol almost exactly as this video explains, including a trial. Nearing her 3 year mark, on frontal R lobe GBM, she cannot walk and has no short term memory. Bed ridden, on hospice. I think there was an error in reading her pictures and more radiation caused her to be totally blind. We Regret not doing optune. She hasn’t changed in symptoms in 2 months.

  • @Louis66666666
    @Louis66666666 3 месяца назад +1

    My 57 yo father has this. It's been the most difficult week of my life trying to accept this. The tumour has been removed by a neurosurgeon and been referred to an oncologist. I feel that ultimately the decision for which route to take should be up to the patient. Except that he has severe difficulty with communication and understanding the situation and has had severe depression for years prior. He barely wanted to live before the diagnosis. No idea what to do now. I don't want him to suffer. But I and so many others love him and want to have him around as long as possible. What the hell do I do

    • @revolutioncancer6610
      @revolutioncancer6610  3 месяца назад

      communicate with him as best you can to see if you can determine how he wants to proceed. It may prove difficult, but I often find families who feel they are making decisions about undergoing treatment or not struggle more internally than those who feel they are knowingly doing what their family member desires. You are doing the best you can with the information at hand. Please appreciate that you are amazing in this regard and try not to internalize too much. Just keep doing the best you can in the moment. There generally are no "right" or "wrong" answers here and every situation is different.

    • @Louis66666666
      @Louis66666666 3 месяца назад

      @@revolutioncancer6610 Thanks for the response. And thank you for the video. It has helped a lot. The lab results have indicated it is an epithelioid (IDH-Wildtype) glioblastoma. I've read that in this type of cancer, the BRAF-V600E mutation is more common. And that MGMT promoter methylation frequency is around 40%. Unfortunately, the oncologist that we were referred to is not aware of any clinical trials, and does not think there is any merit in doing tests to check for MGMT methylation or the BRAF V600e mutation. We stay in South Africa. Is there any way to take part in the trials mentioned in the video and get better treatment? We are well off enough but not super wealthy and the insurance will only cover the standard chemo and radio therapy. Perhaps a sponsored trial if something like that is possible? Thanks again for the video and response!

  • @danlachappelle
    @danlachappelle Год назад +5

    My Wife Laurie has a 1" by 2.5" GBM grade IV but it is inoperable because located towars the center of her left brain, we only found out 2 weeks ago! she is 61 years old and has lost loved ones, late husband before me , and her dad less than a year ago!

  • @amandahernandez7717
    @amandahernandez7717 11 месяцев назад +2

    My dad is currently 67 yrs old. He recently beat stage 4 lung cancer that the doctors didn't think he would. He went to chemo once a week a radiation 5 days a week that targeted both sides of his lungs. He is very sensitive to medications and is allergic to a lot of them. He had the worst allergic reaction to the first chemo that they tried giving him the nurses and the doctor said. He had every allergic symptoms there was. At this time I had never seen my daddy more afraid nor have I ever seen him in so much pain. They changed his meds I believe twice and then he seemed to be doing okay. But the radiation and chemo destroyed his heart. He has 20% heart function now. And recently he was diagnosed with stage 4 glio blasfema. What can i do to keep him safe? I am the one who takes care of him. I haven't been able to work since he had his lung cancer

    • @revolutioncancer6610
      @revolutioncancer6610  11 месяцев назад +1

      I'm sorry about all of this. I would need to know so much more to make any comment. It sounds like you are an amazing caregiver though.

  • @robertrockwell7581
    @robertrockwell7581 Год назад +3

    Monday August 28 2023 my sister has just been diagnosed with this 3 weeks ago.

  • @jannieveer-kuropka3499
    @jannieveer-kuropka3499 2 года назад +11

    Thank you very much for all the information provided in this video. Recently my father found out that he has a GBM IV grade... Our whole family is devastated... Thanks to the information in the video I know that to expect next and what are the options to fight this horrible cancer.
    Professor, are there any chances to ask for an online appointment? We are based in Poland and I would love to ask some questions about the NGS and possible clinical trials. Thank you very much for the work you are doing to help and support patients!

    • @revolutioncancer6610
      @revolutioncancer6610  2 года назад +13

      I am so sorry you are dealing with this. I wish you so very well on your journey. I'm happy to meet with you for FREE to talk more. My email is basemgoueli@gmail.com. I will help in any way I can.

    • @jannieveer-kuropka3499
      @jannieveer-kuropka3499 2 года назад +4

      @@revolutioncancer6610 Thank you very much! There are no right words to express how thankful I am. I sent you an email with the detailed explanation of our situation.

    • @gabrielle5175
      @gabrielle5175 Год назад

      How did the appointment go?

    • @RiouxGrandz274
      @RiouxGrandz274 Год назад

      @@jannieveer-kuropka3499 did you get intouch personally with them? Looking for all info I can get for my FIL as well. Just lost my dad to blood cancer MDS in February and can’t believe we could be losing my FIL now as well!

  • @martimcgowan-chitwood761
    @martimcgowan-chitwood761 3 дня назад

    Some amazing recovery stories are from individuals who have embraced integrative and/complimentary therapies, including nutritional, sun therapy and more. Why no mention of these? Thank you for your work and dedication..

  • @RiouxGrandz274
    @RiouxGrandz274 Год назад +6

    I am sadly so disappointed in the health and medical industry at least in our area at the moment! My FIL was diagnosed the beginning of June and after 10 days of consistent outreach to so many hospitals and imaging centers while having at stat order from Dr we have yet to find a place to take him for his functional MRI. One place scheduled him mid July and couldn’t take the stat order at this time. With how fast these things grow it’s no wonder the survival rate is short! Waiting a mth between each tx is no way to save lives or even attempt!

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      I am sorry you are facing these issues

    • @RiouxGrandz274
      @RiouxGrandz274 Год назад +1

      @@revolutioncancer6610 thank you

    • @firstofthemonthclub4491
      @firstofthemonthclub4491 Год назад +1

      I was diagnosed with aggressive cancer (misdiagnosed thank God) and my pulmonologist didn't see me for 3 weeks ajd diagnostic surgery was 7 weeks later it's a great point and CRAZY part of medical system

    • @TR-nv3if
      @TR-nv3if Год назад +2

      Yes, we’ve had the same problem getting mri scheduled for my spouse…

  • @andreaknow
    @andreaknow Год назад +5

    I was diagnosed within theast week an told weeks given an that I need to take a MRI it's on the right an had swelling last scan!)Can you advise please as I have one daughter an I am scared!

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      Your physicians appear to be doing everything right. A MRI is very much needed.

    • @catlyn777
      @catlyn777 3 месяца назад

      You need the MRI.

  • @suzannequigley2925
    @suzannequigley2925 Год назад +13

    My husband was diagnosed with glioblastoma multiforme grade IV Feb. 9, 2022 and passed away May 26, 2022. He was 64. He had surgery, chemo, and radiation. I was told his tumor had many mutations. It's a terrible disease.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +4

      I am truly sorry

    • @RiouxGrandz274
      @RiouxGrandz274 Год назад +2

      So very sorry! What were his symptoms when he was diagnosed? My fil has been tentatively diagnosed but we are currently waiting full pathology report to come back before final diagnosis. We have appt with neurologist June 20th. His only issue at the moment is suddenly started having problems with words and speech. No headaches or anything else. They are saying stage 4. Lemon size tumor. He is almost 73 yrs old.

    • @firstofthemonthclub4491
      @firstofthemonthclub4491 Год назад +2

      So sorry. God bless.

    • @joann1234
      @joann1234 11 месяцев назад +1

      My condolences to you. My hubby passed away in 11/22 after suffering from GBM for 2 and a half years.😢.He too,did chemo and radiation. It's a devastating,ravaging cancer.

  • @julianthreadgill9050
    @julianthreadgill9050 Год назад +5

    I have a grade 3/4 astrocytoma. they removed 60%. My treatment has been playing out just how this Dr talks about. I'm 35 going into cycle 5 chemo as well as using "MMF". I'm still on the "first bullet". Hope for the best?

  • @cherylvenger2764
    @cherylvenger2764 8 месяцев назад +3

    My daughter is taking Vorasidenib on an extended trial. Her debunking was two years ago and we chose to "wait and see" meaning no radiation or chemo -thank goodness or she would not have qualified for this medication. What are your thoughts on this medication?

    • @revolutioncancer6610
      @revolutioncancer6610  8 месяцев назад +2

      It had excellent data for idh1 mutated low grade glioma. I would need more details on your daughter’s case but the nejm paper on the drug was favorable

  • @danielaevseev7412
    @danielaevseev7412 Год назад +2

    So grateful for this video. My mom (age 68) was just diagnosed with grade 4 GBM. Looking for the best care/Doctor/Clinic near West Palm Beach, FL or San Diego, CA. If you have recommendations, could you please reply? Thanks!!!

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      I'm not familiar with the West Palm Beach area, but San Diego has UCSD which is tremendous.
      I wish you and your mom all the best

    • @firstofthemonthclub4491
      @firstofthemonthclub4491 Год назад

      If you can go to LA I have a VERY GOOD friend I grew up with. She's a doc. Her female very good friend is on year 5+ years of treatment with Dr Keith Black.

    • @samaanthag
      @samaanthag 8 месяцев назад

      How is your mom doing now?

    • @danielaevseev7412
      @danielaevseev7412 7 месяцев назад

      @@samaanthag She fought hard for 8 months. Most evil thing I've ever witnessed 😢

    • @samaanthag
      @samaanthag 7 месяцев назад +1

      ​@danielaevseev7412 I'm so sorry :( I assume she did the traditional chemo and radiation? Ugh this is the worst. My mom was just diagnosed a month ago...

  • @bojigirl5672
    @bojigirl5672 8 месяцев назад +1

    My neurosurgeon just flashed two MRI pictures up. I couldn’t really see. He was always in such a hurry. Even after surgery the information level was low. I am stuck trying to find more info on the internet, so don’t criticize. It got me to your reputable site.

  • @elisanchez2276
    @elisanchez2276 Год назад +13

    My dad just died from this terrible disease last week he was 66 and battled for 21 hard months. In the midst of all this God has been good and merciful I believe and have peace that my dad made it to heaven because of what Jesus Christ did on the cross for every human.
    If you know someone who has this disease do not lose hope. God is not willing that any should perish but that all come to repentance.

  • @michaelb41
    @michaelb41 Год назад +2

    Gamma Tiles were approved by the FDA the end of September 2023.

  • @rose-zy4me
    @rose-zy4me 5 месяцев назад

    My husband of 11 yrs just passed, close to 3 weeks ago, he lived 25 months, with 2 surgeries and treament..this is a very cruel and ugly disease..I truly hope Dr's and scientists figure a cure , or at least better treatment plans..his was glio 4, wildtype..bless everyone on this journey..it's a tough road.

  • @Iva.lilDiva
    @Iva.lilDiva 3 месяца назад +1

    My dad was diagnosed 2 weeks ago. 59yo He has GBM IDH1 R132H.. please while i still have time.. can he also hav BRAF mutation at the same time..? These tests are not regularly done.. ? 🇦🇺

    • @thiamhuatang5109
      @thiamhuatang5109 14 дней назад

      How is your father?

    • @Iva.lilDiva
      @Iva.lilDiva 14 дней назад

      @thiamhuatang5109 going strong.! 🤞🙏 just finished his second round of chemo.. waiting for the 2nd MRI fingers crossed..

    • @Iva.lilDiva
      @Iva.lilDiva 14 дней назад

      @revolutioncancer6610
      Can you please recommend something in Australia

  • @joannehiiro1111
    @joannehiiro1111 4 месяца назад +1

    My 22 year old daughter has stage 4 glioblastoma that parented as psychosis due to the location being her left amygdula. Her pathology showed her genes mutated 400 times. Because of the mutations they started her on Keytruda. I can’t find anyone else that is on Keytruda for glioblastoma. She also had her left amydula and anterior temporal lobe removed and 6 weeks of radiation. What do you think about using Keytruda. She gets it every three weeks and is getting her 7th dose next week.

    • @emilybruce368
      @emilybruce368 3 месяца назад

      so sorry to hear this ! Was she exposed to any ionizing radiation, nuclear power plant or black mold?

    • @joannehiiro1111
      @joannehiiro1111 3 месяца назад

      @@emilybruce368Not that I know of.

    • @emilybruce368
      @emilybruce368 3 месяца назад

      @@joannehiiro1111 look into Fenbendazole and Praziquantel, she may want to try them. There are studies showing a slowing of glioma cells and slowing of tumour growth

  • @AKispert1965
    @AKispert1965 Год назад +11

    My wife lost her life to a GBM. Over a 17 month period we must have had 7-10 MRI's. A Functional MRI was never offered to determine whether my wife's cancer getting "worse" was actually pseudo-progression or actual cancer growth. Also, for a fast growing cancer like GBM, we got different information from different Oncologists as to how often an MRI should be taken. One said every month and another was sticking to the 2 month cadence. What about Gamma Knife radiation? Can that be a replacement for the standard 6 month mini-doses?

    • @lauren92567
      @lauren92567 Год назад +1

      Gamma knife works. My friends FAMOUS Dr in NY said it’s not for her type of GBM BS !! It is! Look up dr Lederman he is the guru in NY that my friend chose not to go to. Sad she didn’t see it 😢

    • @Karla-yi5ld
      @Karla-yi5ld Год назад

      Yes look into gama knife. I heard it’s more targeted to the tumor rather than radiation spread all over the brain. I asked Memorial Sloan and they said my husband’s tumor was too spread.

    • @gohilrajpal1380
      @gohilrajpal1380 Год назад

      ​@@lauren92567😮😮fg

  • @ksciencebuddy
    @ksciencebuddy Год назад

    Where can I contact Dr. Basem Goueli ?
    It's extremely urgent

  • @taribeer4985
    @taribeer4985 Год назад +7

    My family member is going through this battle now. Diagnosed in March, Biopsy, Craniotomy left him unable to function. He’s paralyzed on one side, can’t talk, walk, go to the restroom and has a palsy that gives him knee jerk motion that is so intense he rubs the skin off his bones. He has 3cm tumor in the parietal lobe. Zero ability to proceed with chemo radiation. We had no idea he could end up in such awful shape from the surgery! The worst thing ever!

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +3

      I am truly sorry

    • @taribeer4985
      @taribeer4985 Год назад +2

      @@revolutioncancer6610 thank you! He passed away August 7 at 5:15 am. We are devastated but glad he’s no longer suffering. I plan to get involved to see if I can help with research funding. Thank you for your comment. It means so much!

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      @@taribeer4985 I never have words for this. Sorry seems hollow and insufficient.

    • @taribeer4985
      @taribeer4985 Год назад +2

      @@revolutioncancer6610 it’s difficult on the receiving end, too. I would simply say I am sorry for your loss. It says it all…🌷

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      @@taribeer4985 I am truly sorry for your loss.

  • @AnhNguyen-tk1ee
    @AnhNguyen-tk1ee 8 месяцев назад

    My husband just passed away 2 months ago from Glioblastoma multiform 😭. We have been battling this cancer together around 9months and a half.

  • @ldjt6184
    @ldjt6184 9 месяцев назад +2

    I’m sorry, but Decadron is an evil drug. It led to my mother’s demise. They kept telling her she needed to get stronger before they would treat her with either immunotherapy or chemo, but she couldn’t get stronger because the steroid depleted all her muscle strength. She could barely walk, let alone exercise, because the steroid caused extreme weakness, which kept her bed bound, which compounded the muscle atrophy in her legs, which worsened her weakness…ensuring she’d never get better. She never did get strong enough to commence treatment and she died very quickly because of the doctors’ very poor knowledge of how to take care of patients and how to HEAL them. They have a shitty rusty toolbox filled with broken tools, and they think they’re helping patients with all their drugs. Hospitals are THE place to go if you want to die. You know, there ARE other things one can do to reduce brain swelling, but too many people put all of their eggs in the allopathic basket because they get sucked into the ‘standard of scare’.

  • @codydyer
    @codydyer 4 месяца назад

    After diagnosis and the first resection, during the period between the initial tumour removal and it recurring what is the daily symptoms GBM patients suffer from while the tumour is out before it recurs?

  • @tubularbrit88
    @tubularbrit88 Год назад +1

    Is there a difference with multicentric GBM and GBM? Is there a possibility that a person could have 2 different kinds of tumor?

  • @hanhaitao8794
    @hanhaitao8794 Год назад +5

    Hi Doctor, what's your opinion on Ketogenic Metabolic Therapy?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      I'm just not sold on it yet. There are numerous ongoing studies exploring the potential benefit of a ketogenic diet, but until I see those results, I simply can't recommend it at this time.

  • @tubularbrit88
    @tubularbrit88 Год назад +2

    Is anyone eligible for clinical trial? The hospital that did my dads biopsy said he has to wait for a genetic testing to come back to determine eligibility

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      Depends on the trial eligibility criteria
      Watch the other video i did for all new patients
      There is a section on clinical trials

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      Depends on the trial
      Watch the very first video i did for all new patients
      There is a section on clinical trials

  • @_Babu_TD
    @_Babu_TD 10 месяцев назад

    My father died last week because of GBM. It was detected October 22 and undergone surgery by Nov 2. 40 Gry radiation for 15 days and used temsol for recovery. It was MGMT type.

  • @kailynengels45
    @kailynengels45 11 месяцев назад

    Question on the slide of MGMT promoter: how is hypermethylated, responsive or not? I also see lots of clinical trials just identified as either but not hyper, is there a way to identify this as well? Lastly, the molecular testing- I did genetic testing and gave the results plus the information from pathology would all of that be found in those two tests?

    • @revolutioncancer6610
      @revolutioncancer6610  11 месяцев назад +1

      There are trials that will specify unmethylated MGMT versus methylated/hypermethylated. If it doesn't say unmethylated then it likely correponds to either all comers or methylated/hypermethylated. It depends on the molecular testing they did. The testing in house pathology labs do is relatively limited, but if your test was sent elsewhere (e.g. FoundationMedicine, Tempus, Caris) then you likely had full next generation sequencing, PD-L1, TMB, and MSi.

    • @revolutioncancer6610
      @revolutioncancer6610  11 месяцев назад +2

      I talk about molecular testing here:
      ruclips.net/video/AsaclBWksWo/видео.html

    • @revolutioncancer6610
      @revolutioncancer6610  11 месяцев назад +2

      Best of luck to you

    • @kailynengels45
      @kailynengels45 11 месяцев назад

      @@revolutioncancer6610thanks for the extra info. Is Dr. Goueli still treating GBM patients at this time?

    • @kathyr1516
      @kathyr1516 5 месяцев назад

      I have Glioblastoma GradeIV and just found out it is unmethylated MGMT. I am due to start radiation and temozolomide therapy on Monday. It is for 6 Weeks then a break of 28 days and then chemo again. Is it possible the chemo will help even though it is unmethylated? Thank you!

  • @meenaloshinig
    @meenaloshinig Год назад

    shall I get the slides?

  • @Karla-yi5ld
    @Karla-yi5ld 2 года назад +4

    My husband died from GBM just two days before you posted this video. 😢

    • @revolutioncancer6610
      @revolutioncancer6610  2 года назад +4

      I am sorry

    • @Karla-yi5ld
      @Karla-yi5ld 2 года назад

      @@revolutioncancer6610 thank you 🙏🏼

    • @carlabolling2277
      @carlabolling2277 Год назад +1

      Hi Karla. I am sorry to hear about your dear husband. My dear husband has just been diagnosed with Glioblastoma high grade and gee whiz I am pretty nervous. I am pleased to find this ypu tube presentation. Take care.

    • @melihcangirli1516
      @melihcangirli1516 Год назад +1

      ​@@carlabolling2277hello,my mom she has GBM, how is your husband's last 2 months progressing? What kind of treatment period did the doctors recommend?

    • @TR-nv3if
      @TR-nv3if Год назад

      So sorry ..

  • @clintonmaher6930
    @clintonmaher6930 Год назад +3

    Doctor - your thoughts on CBD oil and medicinal cannabis for Glioblastoma?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      No harm in doing it, but I do no feel it has a big impact on the cancer.

    • @clintonmaher6930
      @clintonmaher6930 Год назад +1

      @@revolutioncancer6610 Thanks, was also thinking of it for symptom management as much as affecting the actual tumour

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +3

      @@clintonmaher6930 yes, that sounds very reasonable along with doing standard treatments or enrolling in a clinical trial. I wish you the best of luck.

  • @dennismills8646
    @dennismills8646 Год назад +2

    This is a great video

  • @Karla-yi5ld
    @Karla-yi5ld 2 года назад +1

    Very interesting

  • @simonentwistle2437
    @simonentwistle2437 Год назад +10

    Side effects of radiation are downplayed by doctors. Edema and hydraucephalus, radiation necrosis are the really worst side effects from radiation. Edema can be treated by steroids. Hydraucephalus might be relieved by shunt if put on time. Necrosis is as bad as GBM itself.
    Don't think it's too hard to tell the difference between tumor progression and effects from radiation. Not only based on images, but also based on symptoms.
    The timing for radiation and chemo after surgery should be reconsidered to extend the benefits from surgery as long as possible. More people refused radiation after succesful surgery and seek other alternative treatments.

    • @carinemanne3264
      @carinemanne3264 Год назад +1

      Simon Entwhistle Entièrement d'accord avec votre commentaire sur les effets II des radiations ...
      Êtes-vous concerné aussi par un GB4 ?
      Localisé où ?
      Et dans ce cas quels traitements ou interventions avez-vous déjà subis ??
      De quels traitements alternatifs (efficaces !!) parlez vous ?
      Thanks a lot for your answer

    • @susiepolancodemejicanos3554
      @susiepolancodemejicanos3554 Год назад

      Cierto

    • @SharonWillits
      @SharonWillits Год назад +1

      I agree the side effects from radiation were very debilitating for my mother. The radiation in her case killed brain tissue that it had to travel through to get to the tumor. Her first dr told us that . However it was the only option and she wanted to try it.

  • @Georgian4ever
    @Georgian4ever Год назад +1

    Can treatments other then chemotherapy and radiotherapy help with Glioblastoma in children 8 years old?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +3

      I do not know of any that have been proven in a randomized control study

    • @RomeoFiles-f4l
      @RomeoFiles-f4l Месяц назад

      I know a case that improved after several NK cell injections (in Asia)

    • @Georgian4ever
      @Georgian4ever Месяц назад

      @@RomeoFiles-f4l probably in Turkey or Kazakhstan.... it doesn't work unfortunately

    • @RomeoFiles-f4l
      @RomeoFiles-f4l 28 дней назад

      @@Georgian4ever I know of two cases where cord blood-derived NK cells (CBNK) have shown effectiveness. These NK cells are cultured in laboratories, specifically in Japan, and have been used in conjunction with the WT1 peptide vaccine. In these cases, the combination of CBNK cells and WT1 vaccine produced a synergistic effect, which significantly enhanced the overall therapeutic outcome.

    • @Georgian4ever
      @Georgian4ever 28 дней назад

      @ did patients survive?

  • @pearlroses3697
    @pearlroses3697 Год назад +3

    i’m listening to this and I’m not texting. I’m speaking in slowly. I have brain cancer and the medication is worse than having the cancer. It has mentally physically got me 1000 times worse I never had radiation. I never had chemo and I’m glad I never did. I’ve had this and it was found in 2009 I had a biopsy. I was not told. Yes this is true story, I had a biopsy and 2009 and they did not take enough cells to know what kind of tumor I have I was not told and this is now 2023. I found out when I came out of state and to another state and told me I always had at the doctors that I had at my hometown basically told my family it was all psychological, but there was nothing wrong with me. I was like to I just like doctors now for this I have PTSD I have symptoms that are beyond comprehension. I can’t speak well right well walk well here well I understand and when I have seizures the pressure in my head, I pass out, mine was found by accident and a accident. I know I had it a long time but I’m suffering and I can’t breathe well because the pressure in my head right now I’m able to talk but in the morning and then my sleep is beyond comprehension what kind of pain, I can’t believe what kind of Nuro oncologist. I had that lied to me for so many years and didn’t tell me things and I didn’t even know or it was not explained is it is put my family through so much. I don’t trust the medical system anymore, I go from doct to the doctor with all kinds of symptoms and problems from falls. My face is sideways now I have a deviated septum bones, but the list goes on and on, I’m sorry anybody has this disease but to say you understand no you don’t you don’t I mean I saying this to you, Doctor there are many good doctors, but why why in biopsy and surgeries things go wrong that happens but to not be told and I found out in 2019 10 years after I had a biopsy in another state I get confused and I guess I am right now very tired. I guess I’m just saw this and I’m just venting it out. I don’t know why but I have mood swings. That’s all I can say I didn’t listen to the whole thing all I heard is something like understood no no, I wish everybody well and again, Doctor this is not against you at all. I’m going through a fight of emotions and anger for a reason besides a tumor in my head and cancer they know it’s a glioma. That’s what they’re saying. I don’t know astrocytoma, but my symptoms and my seizures are so terrifying. I just wish I was told this is what gets me why why why why not tell me

  • @Kharris92130
    @Kharris92130 4 месяца назад

    Couple of comments:
    You should have differentiated between GBM and Astrocytoma Grade IV. The WHO changed their classification system several years ago.
    Also, on the slide, “No 2 Stage [sic] 4 GBMs are the same”, “1q/19q” should be “1p/19q”.

  • @JoHJoH-u4z
    @JoHJoH-u4z Год назад

    Hi my mum has gilomblastoma grade 4 just had debulking surgery. Many people have told me cancer hates oxygen but listening to this it seems cancer needs oxygen in cells to grow which is bit confusioning. I have a 2 friends with brain cancer, one first diagnosis 2nd a regrowth after 3 year. They are doing oxygen chamber therapy and have had good results. Do you have any views or knowledge on this treatment and if you think it would benefit this type of cancer if cancer actually does hates oxygen?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      Hyperbaric oxygen treatment really hasn't been proven to treat glioblastoma. Indeed, there are a lot of myths regarding oxygen and cancer on the internet, which is unfortunate. For four years I gave two separate lectures to medical school students on free radicals and antioxidants. However, I don't want to get too much in the weeds here. The bottom line is the notion that cancer cells "hate oxygen" is wrong and the use of hyperbaric oxygen therapy in glioblastoma simply hasn't been proven. To this end, it's probably worth knowing that there are a lot of people who feed off cancer patients and their loved ones by offering oxgen treatments, high-dose vitamin Cs, infusions of various cocktails, etc., outside of a typical medical setting. In my personal opinion, they are stealing peoples' money, but I am admittedly heavily biased towards proof of benefit, science, basic human decency, etc. In terms of your 2 friends with brain cancer I'm not entirely sure what to make of it. I would have to know a lot more about the cases, but the principle behind high oxygen therapy is to facilitate the development of free radicals that can be toxic to all sorts of cells, potentially including cancer cells. Nonetheless, I'm really happy for your friends and if your mom wanted to try hyperbaric oxygen for GBM in some capacity I don't think it would hurt her.

  • @sornarekhasomasundarapandi420
    @sornarekhasomasundarapandi420 Год назад

    My brother suffering from this .Left frontal lobe measure 4.5 cm.multiple lesion seen in bilateral gangliocapsular region left thalamus, left cerebellum.the largest one in that measures 18 mm.GFAP mutation is there strongly positive.IDH1: negative tumour cells .ATRX : STRONG NUCLEAR expression. P53 : strong nuclear expression. KI-67 : 45% . CD : negative tumour cells. Is it easy to treat due to location .whether any medicines are there to treat this? What are the steps to treat this ?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      The video will walk you through how this is presently treated in the US for the most part. I wish you and your brother very well.

    • @aaronjames2987
      @aaronjames2987 Год назад

      Basically untreatable atm unfortunately...most people usually last acouple years through multiple surgeries and chemo

    • @samaanthag
      @samaanthag 8 месяцев назад

      Hello, what treatment did you choose and how is your brother doing now?

  • @janetmyers3729
    @janetmyers3729 Год назад

    My sister’s doctors at a very big teaching hospital told her there are no clinical trials for her. Should we trust them on this? Why would they be so certain there or none andhow in the world could we find one if they couldn’t?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +4

      I would venture outside of the hospital. Many big teaching hospitals fail to do their duty by having appropriate clinical trials for various reasons. Indeed, in my opinion, the primary reason to go to a big name institution is for their trials. All you need do is watch the other talk I referenced and go to the clinical trial section. Go to clinicaltrials.gov, use the beta version at the top link, and put in your location and distance you are willing to travel. Search for glioblastoma and you will find what you are looking for (make sure to check on the "enrolling" status button"

  • @octaviapatrova2581
    @octaviapatrova2581 Год назад

    I have a low grade glioma and it’s malignant and I don’t know if it’s cancer or not yet. I don’t know what my survival rate will be. I don’t know if I will be able to have children later on or not. I still am waiting on my results. So I’m waiting on answers. It’s complicated I’ve had my surgery. I intend of going through remission and chemo if I need to. I’m not going to rule it out it will give a higher life expectancy. I have not felt like myself sense I left the hospital unfortunately. I have not been myself in whole host of ways. I don’t know how long I will live I don’t know if I will be able to have a kid later on or not. I don’t know what to expect but they took a tumor out of my pre frontal cortex. Am I scared not really mainly because emotions are hard since surgery. But otherwise I don’t know how to be afraid of it to begin with. If I live I live if I die I die neither sounds great either way you slice it.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      Thank you for sharing your story. I wish you so very well. Please keep me posted on your progress.

    • @octaviapatrova2581
      @octaviapatrova2581 Год назад

      @@revolutioncancer6610 gladly right now I don’t know more than I’ve said as soon as I do I’ll let you know though

    • @samaanthag
      @samaanthag 8 месяцев назад +1

      Octavia, I hope you are alive to read this... how are you doing?

    • @octaviapatrova2581
      @octaviapatrova2581 8 месяцев назад +1

      @@samaanthag doing pretty good, getting through my chemo pills cycles. My head feels weird since the surgery and I’m still not fully back to myself. But on the plus side for someone with grade 2 cancer I don’t feel so much like I have cancer. Although my neurologist might be prescribing me pills for my dulled emotions and lack of drive. Otherwise still going out and doing things. Really thankful it was only grade 2 and not anything more serious. How are you doing?

    • @samaanthag
      @samaanthag 8 месяцев назад

      @@octaviapatrova2581 So glad to hear that! It's crazy how life changes eh?
      My mom went through surgery about a month ago to remove a glioblastoma from her right frontal lobe and currently going through appointments with oncologists to discuss her situation. This video and the comments have been great!

  • @janewagner1601
    @janewagner1601 Год назад +3

    My partner died last year. He had 2 tumors at the front of his brain. Metastases from lung cancer. He was too advanced for surgery. The thing that makes me mad is that he was a transplant survivor (liver) the immune suppresants fed the cancer. Not fair. He was 57.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      I'm so sorry to hear this Jane

    • @janewagner1601
      @janewagner1601 Год назад

      @@revolutioncancer6610 thankyou

    • @janewagner1601
      @janewagner1601 Год назад

      @@revolutioncancer6610 is it common for immune suppressants to cause cancer? He was on them for 7 years

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      @@janewagner1601 it is a complicated question with a complicated answer. It is relatively uncommon but certain types of immunosuppression can absolutely increase the risk of certain cancers. Lymphomas are the most common cancer we see in this regard.

    • @janewagner1601
      @janewagner1601 Год назад +1

      @@revolutioncancer6610 thankyou. I guess he didn't have a chance of survival as the brain surgeon wouldn't operate. He kept this all to himself and didn't tell anyone. He was diagnosed in October 2021 and died 4 January 2022.

  • @apurbakhan1082
    @apurbakhan1082 4 месяца назад

    My mother suffering gbm gr4 😢

    • @emilybruce368
      @emilybruce368 3 месяца назад

      so sorry to hear this ! Was she exposed to any ionizing radiation, nuclear power plant or black mold?

  • @afiyaameer5410
    @afiyaameer5410 Год назад +6

    Sir
    Iam from India
    27 years old
    Recently diagnosed with Oligandroglioma grade 3
    Alhamdulillah my surgery completed successfully
    They can remove entire tumor
    If there left any microscopic cells that we can’t see with eyes for that they are giving 30 days radiation with chemo pills..
    Sir this can be cured or not???

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +2

      For some reason I'm just seeing this now. For starters, yes, grade 3 oligodendroglioma is theoretically curable. In terms of seeing microscopic cells there is no current way to do that which is not experimental. Your physicians will do periodic MRIs to track your cancer, but you have done great already completing surgery and from what I can tell your physicians are doing wonderfully, and will be giving you chemoradiation. I wish you all the best and am obviously completely with you.

    • @EnviroMation
      @EnviroMation Год назад

      Which hospital?

    • @profalexis
      @profalexis Год назад

      no cure

    • @profalexis
      @profalexis Год назад

      can't believe anyone can be forced to have surgery against their 6will😮

    • @profalexis
      @profalexis Год назад

      i have grade 4 gb

  • @cyrusshah6175
    @cyrusshah6175 Год назад +1

    My dad has surgery in 7 hours 🙏🙏🙏

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +1

      WE wish you and him the best of luck

    • @_Babu_TD
      @_Babu_TD Год назад +1

      How is he now, My father’s surgery is over

    • @cyrusshah6175
      @cyrusshah6175 Год назад

      @@_Babu_TDMy father is doing great right. How is he ?

  • @andrewbelch891
    @andrewbelch891 Год назад

    What age is this most common in?

  • @amandahernandez7717
    @amandahernandez7717 11 месяцев назад

    My dads tumor was in his frontal lobe inside his brain

  • @eyekandy3000
    @eyekandy3000 Год назад +1

    What do you think of Dr. Baskins’ gene therapy Adv-Tk therapy?

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +3

      It's interesting. HSV1 based treatments have proven effective in Japan and one is already approved based on early data. I can't make a prediction here, but it would be like so many other trials and worth a shot depending on the situation and other available trials.

  • @AKispert1965
    @AKispert1965 Год назад +1

    Avastin can also exclude you from Clinical Trials. We found this out the hard-way. Our Oncologist immediately put us on Avastin when my wife started to experience Aphasia and after the fact learned for some clinical trials it disqualified my wife.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      I am sorry to hear that

    • @gabrielle5175
      @gabrielle5175 Год назад

      May I ask why was she given Avastin for aphasia? My husband has just recently got this from his 3rd craniotomy.

    • @AKispert1965
      @AKispert1965 Год назад +1

      @@gabrielle5175 My wife was coming off a radiation+chemo therapy and had developed a fair bit of inflammation...she started to have trouble speaking and completing sentences. Her Oncologist after looking at the MRI had recommended Avastin. Within 2 days of the Avastin treatment, her aphasia went away. When my wife was first diagnosed, a number of NeuroOncologist ruled out surgery. We were getting opinions from various places and UCSF had stated they could remove 70% of my wife's tumor. We were seeing an integrative oncologist at this time and told he were were considering surgery. My wife did not have "clean margins" and so we also used Avastin to try to concentrate the tumor to prepare for a possible surgery.
      About a year after her diagnosis after a craniotomy, radiation + chemo, my wife was on another experimental therapy that ultimately did nothing for her. At the time someone had told me about Rick Simpson Oil (Cannabis Oil), or Full Extract Cannabis Oil (FECO). I didn't look into it at that time, but later I did (after my wife passed). I wished I had because based on everything I've read about Cannabis Oil, it likely would have saved my wife's life had we started giving it to her from day one. I would strongly suggest you look into RSO or Cannabis Oil for your husband. It's not CBD oil (tincture). But a tar like substance typically stored in a syringe. You want the full extract as you want to include all the helpful cannabinoids and terpenes. Take a look at the following:
      1. CannabisHealthRadio.com - Corrie Yelland -- 100's of podcasts with various people that used Cannabis Oil along with dietary changes to defeat cancer....various cancers.
      Corrie can refer you to oil suppliers.
      2. AuntZeldas.org -- Mara Gordon -- works with cancer patients on dosing, etc., and produces Cannabis Oil herself.
      3. BuyRickSimpsonOil.com/shop - they produce RSO, ship world wide, they have a fair bit of information on their site about cannabinoids, cancer and dosing.
      4. Dennis Hill -- ruclips.net/video/8GXlCRKc248/видео.html -- Dennis is a biochemist (worked at MD Anderson in Houston), cured himself of Stage 4 Prostate cancer using Cannabis Oil.
      Dennis researched why it was so effective and can explain in it layman's terms.
      5. Paper on how Cannabis Impacts Cancer Cells - encyclopedia.pub/entry/21365
      6. Clint Werner -- journalist that cover's the Cannabis medical news (part of his presentation on how Cannabis fights brain cancer) -- ruclips.net/video/F8eNzzjhZMk/видео.html
      7. If you husband starts Cannabis Oil and isn't squeamish about suppositories, this route is supposed to help absorb THC into the blood stream faster and can result in a greater %
      of THC reaching the brain. THC binds to CB-1 receptors on cancer cells and results in the cancer cells producing a substance that shutdown down the cells ability to produce ATP (energy)
      resulting in cancer cell death (apoptosis).

  • @lauren92567
    @lauren92567 Год назад

    Close friend DX Aug 2023. Got her on fenbendazole & no sugar low carb diet. After 7 wks, the GBM DID NOT grow back !! Tried to get get her to do radio static gamma knife surgery which is less invasive and more targeted . but she opted for Rockefeller medicine treatment.. whole brain radiation and chemo (temodar)
    I feel broken she didn’t listen to me 😔

    • @audranicolio
      @audranicolio Год назад +3

      Its not your place to determine her treatment.

    • @j.s.173
      @j.s.173 8 месяцев назад

      You simply know nothing.

  • @shantelpine9456
    @shantelpine9456 Год назад

    I was told I have stage 4gbm I was made to have craniotomy against my will and then given radiation to control symptoms I never had I was given 1 week to live it's been 2years by myself and here I sit homless in my car because I got kicked out after 6weeks i had to do radiation the doc who did surgery won't see me at all says I'm a illegal liability??????what that means idk

    • @jackierajewski3166
      @jackierajewski3166 Год назад +12

      In November 2019, I fell, and they did a CT. They found a tumor on the front right side of my brain. It was GBM. I had surgery 3 days later. The cancer was sent to the University of Nebraska for a biopsy. It took a week for results. That was a long week. I went home after a short stay in the hospital. Then I had radiation and chemo. After i finished the radiation, I stayed on the chemo. I had MRIs done every 3 months. Well, it was 1 year, 2 years, and 3 years . I have now reached 3 years 6 mo. Cancer free. I am so blessed. Because at first I. Was told I had 6 months to live. The Dr. was surprised to see me doing so well. I just told him I had just stayed positive and didn't let it stop me. I told god I needed 2 years back in 2021 because in 2023, it is my 40th wedding anniversary.its in July, 3 months to go. But now I have been told to go to KU MED CTR because they can't help me anymore. Where I am at, and I need to see another Dr. so I have an appt. In May. I will see what happens. As long as I make it till July 13. That's all i need. I'll let you know what happens after my appt. Wish me luck, and a few prayers couldn't hurt.

    • @Fuedez
      @Fuedez Год назад

      Wish u the best and Hope u Will win this fight ! Love u stay strong ! Much blessings ❤️🙏

    • @samaanthag
      @samaanthag 8 месяцев назад

      @@jackierajewski3166 How are you doing today Jackie?

  • @kimberlyjohnson6607
    @kimberlyjohnson6607 Год назад +2

    Lost my mom to this

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      I am truly sorry

    • @Fuedez
      @Fuedez Год назад

      Im very Sorry to hear this , Wish u all the love u can get and the best in Life ❤️🙏

  • @ovimanisumontmcr
    @ovimanisumontmcr 8 месяцев назад

    My 32 year old brother passed away last 4 months due to this life threatening High Great Glioblastma disease😭😭

  • @amandahernandez7717
    @amandahernandez7717 11 месяцев назад

    His was a little bigger than a gulf ball

  • @pennybeaver713
    @pennybeaver713 Год назад +1

    Wrap the head in castor oil packs. Wrap all organs in castor oil packs. Every night/day. Castor oil turbo charges lymphatic system, breaks up tumors. Helps you sleep better!! I am using the wraps now for stage4 breast cancer. Tumors are shrinking. ThankYou Lord.

  • @maryannroupas7169
    @maryannroupas7169 Год назад +1

    Please talk more slowly so we can clearly hear and understand what you are saying.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +3

      I'm sorry you had difficulty. You can slow down my speaking rate on youtube by clicking on the gear like button and putting it 0.5 speed.
      Please appreciate that I am an exceedingly busy physician and made this talk for free. I receive no income, advertising, money, etc., from it. I don't want to. Having said that, I did spend countless hours preparing and giving this talk, and did the best I could. If I talked any slower it would have been several hours longer (it is already over an hour).
      I'm sorry it disappointed you...

  • @Noodles.FreeUkraine
    @Noodles.FreeUkraine Год назад +1

    No idea why such an interesting lecture from an undoubtedly well-intentioned speaker has to curveball into stereotypical do-gooder virtue signaling regarding guns. The topic is medicine, not politics. Beats me.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +6

      I am sorry it came across that way. All i was saying is i am not a gun person. That is it. I did not make a comment on the gun control issue in the lecture.
      With that said i also did not want to give the impression I am a gun fanatic.

    • @Noodles.FreeUkraine
      @Noodles.FreeUkraine Год назад

      @@revolutioncancer6610 Dear Dr. Goueli, I really appreciate that you took the time not only to answer my comment, but also countless other ones on this video.
      While I did not assume ill intentions, it just gets tiresome after a while when hardly a topic can be raised without immediate display of agenda towards one side or another, it has basically become a reflex driving societal division ever further.
      In this case, the mere display of bullets being grounds for assumption of extreme gun fanaticism.
      It's a general issue all over social media and beyond, and I didn't really mean to snap at you personally. Indeed, I think highly of you. Thanks for all you do.

    • @catswambo9706
      @catswambo9706 Год назад +1

      Dear Dr thank you for lecture. You certainly are a very knowledgeable dr. The lecture however loses its impact for me, I stress for this is only for me personally, due to your habit of constant unnecessary words. Kay, Like, Right, guys,we are going to talk about, OK. I understand you are very enthusiastic and that comes across and you are going to have a very successful career and will be doing a lot of public speaking. Breath. Slow down speach. See a speech coach. Sorry, I don't want to be mean.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад +7

      @@catswambo9706 This is a laughable comment. I was seventh in the country in high school in forensics. The approach I used was very much intentional as I gave what is arguably the absolute best talk on the internet for gbm patients and their families FOR FREE.
      To do what I did in one hour in the way I did if is unprecedented.
      Go find a single talk that covered everything I did in an hour. It does not exist.
      Next time feel free not to watch the video and I promise you the world can do without your preposterous and ridiculous comments.
      Honestly, you need to work on yourself because only a certain type of person writes a comment like this on a talk compiled entirely FOR FREE.

    • @revolutioncancer6610
      @revolutioncancer6610  Год назад

      @@catswambo9706 Case in point: ruclips.net/video/6Nnb6JhsSXQ/видео.html

  • @rachelwalmsley5893
    @rachelwalmsley5893 Год назад

    I lost my mum from glioblastoma in march 23 x she lasred 13 months from diagnosis xx i never see any charitys for it x