Thank you for this. I was diagnosed with right sided tonsilar cancer . 7 sessions of chemo and 35 radiation sessions. I’m into week 4. Loss of taste is the worst all pain is in right side. Yup they keep saying get ready it’s gonna get worse. Thank u for this! I appreciate your giving of yourself
I’m glad you are on the other side of it. Your story sounds really similar to mine. Had hoarseness that progressed, ENT said it was allergy, finally biopsy, was squamous cell carcinoma on my left vocal cord. I went to Mayo and had a laser newer laser surgery in July of 2021. And been cancer free since. Have check ups every 3 months. God bless!
Great to hear they gave you a good diagnosis. I'm 15 months out from tonsil cancer with 2 lymph nodes. I had 3 high dose chemo cisplatin and 35 radio sessions. The whole treatment kicks the stuffing out of you for sure.But it's effective!. Best wishes for a cancer free future.
Same diagnosis for me. Finished first dose of chemo and 2 weeks of radiation so far. . Loss of taste is really the worst side effect at this point. Did the chemo get worse for you as you had your 2nd and 3rd? My first really had no side effects.
I did 40 rounds of radiation and 3 cisplatin treatments. Lost 55 pounds with a feeding tube. I’m 6 months out. Not much saliva improvement and no taste as of yet. I am very exhausted. Any info to share would be appreciated.
@@michelleduke-vn4imyou feel like you had to have the feeding tube? im refusing mine right now. i have what appears to be early stage SCC small spot in my throat
Your videos give me hope. I’m also Eagles fan now living in Florida after growing up in southeast PA. This afternoon my radiologist will map my head and throat and fit my mask. Hopefully, my experience is no worse than yours, but I’ve heard some really rough stories from others. Thanks for making these videos.
Thank, God, that you are cancer free. Yes, Oxy, is super addictive so I’m happy for you that you toughed it out. May God bless you with good health. ❤🇨🇦
Thanks for the videos, I’m going through the same thing right now, just found the cancer a few days ago. I am also a roofer. 37 years. At least I know what I’m in for. Really curious to how you’re doing now.
Thank you, for your relevant information needed without side tracks,! I'm at the commencement stage of radiotherapy starting in 2 days till mid Jan 2024 for head and neck cancer. Have had 4 separate areas removed with good results. I am looking forward to seeing February onwards, hopefully maintaining a positive attitude like yours. You have provided me with the information I needed for my next few months Well done wishing you a wonderful Christmas and further recovery. For the others around us, quietly suffering who may think they've been unnoticed , you are the heroes too!
Glad it's going so well for you. Please stay vigilant monitoring your health. I had throat cancer with chemo and proton radiation therapy. I was cancer free for 18 months and it came back (it was at the base of my tongue and was early stage three). I had to have my tongue removed and am now three years out from that. It's pretty tough speaking without a tongue but I'm getting along. I'm one of those you mentioned using a feeding tube. Again, stay vigilant.
@scambodia147 I have to say it was horrific. Only completed 28 of the treatments out of 32. My throat felt like it was lined with sandpaper, and I only was able to get maybe 2 hours of sleep a night, For a month. the amount of phlegm accumulated in my throat would shut off my breathing and wake me up every 10 minutes, and then I would never get back to sleep. I'm still having problems with the phlegm. I was informed that it might take a year to clear up.
So glad to hear you are now doing well. I'll be having my last radiation treatment next week (28 in total) for vocal cord cancer which was caught very early, in stage 1. Not sure what to expect as far as recovery goes, I'm told the recovery time is about the same as the treatment takes, but we'll see on that. I guess every case is different. I feel very fortunate to have a great team at Orlando Health. But, enough about me, again, very happy to hear you are now doing well, it sounds like your recovery was pretty tough. Hang in there, bud! Thanks much for sharing your story.
Glad all is well now!!!....I am half way thru 28 treatments.....diagnosed with left vocal cord cancer stage one.....no chemo has been mentioned......how did your last half go.....was it as rough as you may have thought???
Hi Jimmy: Thanks for your question and I will do my best to answer your question. For me, the first half of the 28-day regimen was not terrible, but at about at that point, I started to notice some changes, most notably the radiation was really getting bad for the skin on my throat. Really raw, really painful, although the radiation oncologist gave me some salve, I don't remember what it was called, but it helped considerably. My voice became increasingly worse (they said it would) and by the end of the treatment I was at a whisper (they said it would and it was). Sore throat, some trouble swallowing but that subsided and is gone at this point. My last radiation treatment was 12/12/23. So, I guess what I would tell you is the second half of the treatment is worse than the first half. But then, slowly, I began to recover. It took quite a lot of patience, but gradual improvement day by day. I did not have any interest in talking, but again, a gradual improvement, day by day. My first scan and scope after the completion of radiation was 2/8/24, showing all clear, vocal cords are symmetrical. At this point 6/21/24, my voice is about 90-95% of normal - it may never be perfect, but certainly functional, although It does still get a bit tired, If I try to talk a long time (no more public speaking -yea!) I hope your experience is the same as mine, not what we asked for but a pretty good outcome. I hope the same for you, and I that you will recover as I did. I hope this helps. Please let me know your outcome. I wish the best for you! We got one thing in common, it's true.....@@jimmyclark3869
Thank you for sharing your story. Right now I'm going through something similar. I had an extremely hoarse when I went to the ENT and they ran the camera down there and said I have laryngitis caused by ulcers. I'm on Bactrim until the end of Sept and if that doesn't work I go back a few days later for a biopsy and to explore treatment options. Wish me luck cause my voice is completely gone now. It's good to hear somebody's story who's been though it and is ok because I'll be honest between learning that it could be cancer and not being able to talk a lot of the time other than to myself has kinda put me in a dark place. Thanks for sharing a be sure you keep an eye on it. I've been reading about it and from what I've read it is very treatable but there is a high risk of it coming back. Good luck.
I am so happy that you are cancer free! And thank you for making these videos. I have tonsil cancer, tiny tumor on the right side that spread to one lymph node. Stage one, had surgery, negative margins, and I start six weeks radiation tomorrow. I live alone and have to admit I'm a little frightened. Throat cancer groups on Facebook are absolutely terrifying, but your videos have become Bible for me. I keep referring back to them to try and stay calm. I don't have a question at this point, I just wanted to reach out and thank you for creating this content. It's incredibly helpful.
Actually I do have a question. Did you do swallowing exercises during your treatment? My ENT sent me to a voice rehabilitation Doctor Who gave me a crazy list of swallowing/stretching exercises. Wondered if you thought that would be beneficial, or if you did it did it help you. Thank you!
No but ur treatment and cancer may require more aggressive therapy. For me I didn’t care about any therapy that was suggested to me…I just suffered through and now I’m good. I can’t sing as well but I wasn’t in a band so 🤷🏻♂️…I really hope ur treatment goes quick and welcome to the club/group …those Facebook group r 💩. Everyone experiences these treatment differently for me I’m use to pain …I’m a roofer 😂…I’m prayin for u…u probably r half way down now..hang in…u got this 🙏
Really great that you broke down the videos into weekly sessions since they provided a clear step by step picture of what you went through. I have seen other UT videos and you blessed in that you did not endure the suffering those other survivors experienced. Did you catch the cancer early? Did you have chemo (or I just missed it)? Thank you for sharing your journey. I have been diagnosed with squamous cell carcinoma in the tonsils. I will begin my treatment next week. Stay healthy and prosperous with your roofing business. Go Eagles!
I’m going through the same as you. But now they want me to go first and get a pet scan and then make an appointment and go back and see my ENT. I did do a CT scan before radiation Did you ever do a pet scan? My last radiation treatment was November 9 went back and seen my doctor November 22. Now I am mainly having issues with serious coughing like you keep me up most of the night. I have an appointment for February 6 to get my PET scan done then go back and see my ENT. I’m glad you’re in remission wish you nothing but the best thanks for all your help.
Hey man, watched all your vids as I’m on day 9 of 35, and really startin to feel it now. Got some good tips from watching and appreciate you doin this.
Man....now that I'm on the other side of the treatments...I barely think about it now and its almost like it wasn't real. When it got overwhelming or when I thought the other side of the treatments would never happen...II asked myself what is the worst pain I could ever have? I chose having my arm cut off (with no pain meds) and it helped me adjust my pain level and gave me perspective. I wish time will fly for you during the treatments🙏
today is my day 12 it's been 3 day that feel like i burned my mouth with a real hot coffee and every time i swallow it like a Tonsillitis real cold water help or icecream but everything has a bad taste
@@dyrnenorka yeah that’s that fucking radiation doing it’s job…the pain is temporary …but it sucks and doesn’t get better … just put that pain against the worst pain u could experience and it makes it feel not as bad…at least it did for me … These treatments are an experience…one thing I know the more it hurts the more it’s eliminating the cancer!!
@@CertitudeHI Hi i did not reply to your message and i ' m sorry but i was sick like a dog since september i have lost 20 kg its about 40 pound i throw up mucus that is building up in my throat DID YOU HAVE THAT PROBLEM and i have a hard time to eat because all the food or drink i eat taste like Sh.. have you had any problem with the taste of food BAD TASTE and did the taste of the food come back (teats good again) and after how long. Thank you for answering me because you really help me not to go crazy. Hope you are doing ok today and have a great Xmas with your familly God bless you
@@dyrnenorka no worries, everything tasted like nothing and it didn’t come back until after like 3 wks of my last treatment. I didn’t lose any weight I think because of the steroids I was on (prednisone) I would ask ur doc for some…can’t hurt to ask worst u get is no or a let’s try it and see if it helps. These treatments are a journey and it’s painful. I thought to myself to help me endure the pain that if someone special in my life died I would have to face that they would never return and that there was a finality to it then I said to myself that the pain I was going through was not final and it would go away at some point….I gave myself that to look forward to. I feel for u … Merry Christmas brother. I will be thinking about u..u got this🤘🏼👊
Congratulations on your progress. Thank you for taking the time to do these videos. Wishing you the best for the future. I have had a slight difficulty swallowing for about a week now and noticed a hoarseness in my voice. Hope it’s nothing but I have been a heavy smoker my whole life (64 now). If my symptoms don’t clear real soon I am going to get checked.
looks good. my dad started treatment a week ago with chemo and its crazy cuz i watched ur videos and though if he lost his voice hed be screwed cuz hes half deaf and they decided to work around that by blasting it with chemo at the same time or whatever. but your looking tons better already since then. thanks for telling your story. hope the best!
Thank u…everything about having this cancer is crazy..the crazy part u can’t control anything but the mental part. Physically ur a hostage. Please share that with him knowing the hard truth is sometimes more comforting and makes the journey more acceptable.
@@CertitudeHI hes got a tube in his stomach and cant eat anymore. hes got to stage 2 of chemo. His is bad. It'll be over in february. But, for sure. He can't do anything but do whatever they say. Even if all it does is make him sicker. ect. Thanks!
@@sabavoice3355 my dad passed away in February. The radiation was fine but it only took one round of chemo and he lost 100lbs. The second round killed him. I dunno why they practiced on him the way they did. Ít was beyond horrible. I don't think he understood why they were trying to kill him.
Thanks so much for sharing your experience. I start 29 days of radiation tomorrow for stage 1 squamous cell cancer on my right vocal cord. The surgeon said radiation would be best because of the location (top of right cord). I think I've been living with some level of denial about what I will experience. Your sharing helps SO much. They suggest that I got it due to reflux that I've had for long time. Now I take Pepcid to prevent it. My father died of Esophageal cancer (alcoholic and pipe smoker al his life), so I was sort of on the alert for anything like that. Glad I caught it early, and glad to hear that you're cancer free! Live each day like it was your last. Love freely, especially yourself.. I'm ready for tomorrow......
I am praying for you and your family. The pain is temporary and will go away. I told myself every time the pain kicked in to think about the worst pain imaginable and that type of contrast helped minimize my fixation on it. And one last note FUCK CANCER!
Good day sir, I will be starting my treatment on the left vocal cord soon and was trying to get information on the process.. Your videos have given me a ton of hope and I thank you from my heart.. You have done a beautiful thing sharing your experience with others...
God bless you brother, how is it going now? I start my radiation therapy this August 8th, stage 4 throat cancer. I hope I don't suffer as much. Take care and God bless.
I hope your recovery continues and you feel better every single day. I’m not judging when I ask - did you use tobacco products in your past? I’m asking because my son is addicted to smokeless tobacco and I’m so afraid he will receive a cancer diagnosis before long. Bless you for having the courage to tell your story so that others might learn something from your experience. 🌷
I have throat pain for 3 weeks, VA doc can't see me until April 4th, blood in my saliva not much but traces of it when i cough up Flem. had this lump on my neck for two years now, va doc wasn't too worried about it. I hope i catch i early like you did, glad you got your life back, God speed the rest of the way.
Brother you have no idea how helpful your videos are! I'm reading the comments! Wow! I'm not looking forward to treatments but like you Said "if it hurts that means it's killing the cancer" please give us a update in the future! FUCK CANCER
My son has 4 treatments left. He is also type 1 diabetic which frightens me because he is having a hard time drinking and eating. He has a great attitude which helps. His dr does not want to do a feeding tube because she says not everyone comes off of them. I just keep praying. Thanks for your information. I know everyone is different His is actually tongue cancer but radiation affects his throat as well.
Good on you from Australia for sharing your story. My tongue base cancer is too big to operate so start radiation & chemo in a couple of weeks. May follow your lead and do a couple of vids for Aussie patients. Thanks again.
I appreciate your series. i wished I would have found earlier in March. I am 3 weeks post epiglottis cancer ( The flapper). 6 chemo and 33 radiation. If you wouldn’t mind, I would appreciate your feedback on the 1-4..5 weeks post treatment. Like you, I have been very lucky. I was able to eat up to week six, loss maybe 1 lb total. Post three weeks , I am down 15lbs, and just dragging. I know everyone is different, but I haven’t talked with anyone and would like to know your experience.
Lots of soup, lots of ice pops, lots of ice cream..lots of drinking water... I am a roofer so pain in the name of the game...chew everything up real good and force it down...not much else u can do
Thank you for the videos, I am getting ready to start this soon big help. I have a question did you drive yourself to and from all the treatments? From the videos looks like you did and were you able to work your business as you went through it?
My husband is now in his last week of proton radiation. He is struggling to swallow. It is difficult for him to swallow the boost drinks even just a bit of it. He has no taste. He has a lot of phlegm and his throat feels pencil thin to him. He coughs a lot and it is brutal for his throat. We were so happy he was only two lbs down but when I read below it seems that as he enters his last week things begin to really get bad to get calories in. Drs prescribed Magic Rinse for his throat which has lidocaine in it but it has been useless. He finds a bit of short relief with advil but the coughing is a struggle. Thank you for posting your saving journey for us to know that he is not alone in his symptoms stage to stage.
Hi, hope you don’t mind me asking if he had a PEG tube fitted prior to his proton therapy and if he ever needed it. I’m starting my proton therapy soon and my oncologist suggested it although I was advised that Proton therapy minimizes the chances of needing PEG tube. Thank you and hope your husband is much better by now.
Congratulations you’ve done amazing Iv got to for biopsy in 3 weeks for husky voice for over 7 month n abnormallty on left vocal cord I’m so scared even thow Iv just turned 50 I’m still so nervous can I ask was u sore after the biopsy and was u on voice rest thank u so much for sharing I’m so clostraphobic so the mask would be so bad for me tbh but uv done amazing and again huge thank u for sharing such a personal journey it’s very much appreciated
Hi Chloe, You are going to be fine. Trust in the Lord and He will take Your fears away and give You strength. He took care of Me while I went through surgery, chemo and radiation for breast cancer. You are in My prayers.💞
I finished my 28 treatments almost 2 weeks ago and you are correct about the post treatments symptoms. Mine were not so much the swelling, but more hard cough to the point of almost vomiting. Then the Phlegm was real bad and is just now starting to taper off. My question is when will my normal voice come back? I am very hoarse and it will trail off to a whisper at times. IF I talk too much I will get this weird dry tickle that if I dont drink something it turns into a uncontrollable cough. Its like my vocal cord does a weird spasm that I can feel up to my eyeballs. I just want my voice back and not to be sleeping on the couch anymore with the late night cough fits. Thanks for the info and Go Phils..
Sweeeeet. Yeah after treatment recovery sucks. I had the same issue with the cough it didn’t go away after treatments and it kept me up many nights. I choked on and coughed and It took 4 months to finally get rid of it…u just have to wait it out (it will piss u off) but know it will go away. As far as the voice thing it’s a slow process also. My voice finally sounds normal again. I now have days where it sounds worse than others but then gets back to normal the next day. I can’t sing or yell as well as I use to ..definitely makes me mad. Welcome to the other side …once u recover it will feel like a distant bad dream. I am so happy for u and ur family…Live it up ….I am🤘🏼
Hi, I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will be healed completely and that the cancer will not return. Amen. Best regards Chris “For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.
I am sending healing prayers , God bless you. My husband has the same thing but was diagnosed at a late stage two years ago. He has gone through two full rounds of radiations and three rounds of chemo and a radical surgery. They Removed part of his jaw and half of his tongue he had to have a trach and a feeding tube is unable to eat they rebuilt his tongue it with a muscle from his leg it is affecting his speech. He was initially diagnosed as cancer free but God has different plans. We are fortunate we live in Michigan and he goes to U of M cancer cancer for treatments. Great people.
Thank you for the prayers...I hate cancer so much and yet that doesn't stop it from happening. I know having support from my wife was a blessing. It sounds to me he is blessed. I will be thinking/praying about/for you both. 🙏🙏
Bless you brother thanks for sharing. I’m 75 years old and I start my radiation this Wednesday for cancer of the vocal cords. I’m really nervous but moving forward with faith. How are you doing about a year later ?
Your videos are a great help. Did you get another cancer other than throat cancer? You seem to imply this when you said that your throat cancer was gone.
I just finished my treatment a month ago , can’t eat yet and still on my g tube How long can you eat after and did you get your taste back ? Thank you for sharing you story.
Thanks very much for the videos. I’ve watched them all. I was diagnosed with medullary thyroid cancer stage 3 in August. November 3/22 I had major surgery, cut ear to ear like a columbian neck tie. They removed 18 cancerous tumours. Although it sounds horrible , the surgery was a big success. But to my surprise 3 weeks ago I was told I should do 33 treatments of radiation therapy as preventative treatment. As of today I’ve done 7. Unfortunately I got bronchitis last week and am really feeling the congestion and rough throat. Your videos at least give some perspective from a patients experience. I’m hoping I do as well as your experience. Just wanted to touch base and thank you. And I’m very happy you’ve come through this shit doing well. Dan Botnick. Toronto Ontario
Bro… that’s a journey…I am so glad the surgery was a success…if ur like me I got lots of shit to do before I check out of here. I hope those treatments felt fast ..ur probably done them by now…doing treatments as a preventive thing is a great way to protect urself…I pray for everyone that reaches out and for the doctors..mine was a beast and knew his shit. I am also thankful/ grateful that technology/ medicine (right now) has figured out how to deal with this..We r lucky 🍀
My haunted is going sometime this week to get his throat checked for cancer... He was battling thrush or that's what they thought.. Then it kept coming back.. Now they want an upper GI.. THROAT CANCER runs in his family.. His younger sister died from it 3 years ago.. And in the early 90's his aunt died from throat cancer.. My husband is already terminally ill... He has CHF (Congestive heart failure) along with having emergency hypertensive his BP usually runs about 180/110..hightest has been 290/180 not lying.. Most ppl would be dead.. He was in icu though.. My husband also has other major problems.. I'm just praying he doesn't have throat cancer but things don't look good In the past 3 months he's lost a lot of weight.. He use to weigh 200-220 he's 6'1 his thinnest he was 180..last week his doc weighted him he now weighs 130 pounds... He's lost a lot of body mass.. Extremely sore throat.. White spots.. Antibiotics did make him feel better but as soon as he was off of them he was sick again.. His voice has changed and it's hard for him to talk.. He sleeps a lot but I can't tell if that's from his throat or his heart.. He sleeps 98% of the time.. It's been like that for 2 or 3 months now... Out of breath yes but again I can't tell if it's from that or his heart.. He's not coughing or spitting up blood.. He did quit smoking we both did.. He has been smoking since he was 13.. So stopping is huge for him.. We stopped in Jan.. Of this year.. What I would Ike is if everyone reading this could you please Pray for him.. Living life without my husband /best friend is something I'm not ready for.. I'm not ready for good byes or the thought of our son no longer having a father.. Even if he's 23 years old.. please think about him and we'll wishes.. Thanks ❤
Dude! Yer voice sounds immensely better! In total, how much weight didja lose? You still have weight on ya but you look a lil smaller? My hub was just diagnosed with tonsil cancer and hes only 140pounds so were scared of the weight loss for him through treatment.
30 RT, chemo. First 3 weeks no biggie. Weeks 5, 6, and then after treatment ends it gets worse. No sugar coating... It's brutal. Best of luck. I'm 4 days after end of treatment
Went through this last year came off a 5k jog with a real sore throat had a bit of acid reflux at the time went to see the GP he put it down to the reflux about a week later started to lose my voice went back was referred to ent had a scope was told 99.9% nothin sinister but to get voice back better lesion had to be removed n would be biopsied, had follow up appointment was told it was carcinoma in situ stage 0, then had laser surgery after the laser surgery was told the biopsy itself removed everything, go for a check up every 4 months. Stay strong if your battling this 🤲🏽
@@CertitudeHI I would like to thank you much im going thru this now at 21 treatments seen your vid after I was diagnosed you gave me a great insight. Check out Manuka honey I use it before and after radiation God bless all
I am sitting my husband down to watch this as he is going thru the same journey and he is in a lot of throat pain with ten more sessions of proton radiation to go. I am searching for something to help his throat.
you gave me a lot of information a few weeks ago and it helped me a lot to know what i should go through. I start the radiation treatments monday 21 Nov 2022 and just after that i go for chemotherapy for 8 hours the same day. I have to 35 radiation treatments and 3 time 8 hours of chemotherapy. The doc said it might get to a point where I can't eat so the doc did an operation and put a gastric tube not through my nose but strait down my belly to the stomach. I am so happy for you and your familly that you are cancer free. Enjoy your life to the fullest stay safe and i really hope that you will have a long life and not to have to go through this hell again. May GOD Bless you and your Family
@@CertitudeHI Thx very much for your support tomorow is my last day of the week of radiation treatments 31 more to go, but last Monday I had to do chemotherapy i got sick for 2 days but it was still ok. The great thing here in Belgium we have a lot of help all the different bills and payments and like cancer got a health code E its all most a 100% paye back by the health care system we have here, for 35 radiation treatments i have to paye 2 Euro and chemotherapy its totaly free, but for medication i have to keep all the payment i did to send it back to the Fondation contre le cancer Belgique aide au patien in english ( Foundation against cancer Belgium helps for patient ) where i can get each year 1490euro, but not more than 2 years . I remember when I lived in West Virginia from 1977 -1984 my dad had part of health care with his work but he had to get a insurance to cover the rest of his health care. I just don't get why the greatest and the richest country in the world that is the USA don't have a system like that to help its people. Our system works with solidarity like a tax that can go from 8 euro every 3 months and 24 euro every 3 months and familly that are on welfare its free, anyway that's another topic0 THE MOST IMPORTANT IS THAT YOU ARE CANCER FREE and that you can have great new things on your mind with your kids and wife be happy in life and have a long one i will be praying for you. THX again for all the help and support it do help me THX again from the other side of the world. sorry for my english writing i rarely write English I forgot a lot, try to do my best with google translation it help me remember a bit.
@@MsLadyBluesWorld THX veruy much. Since i finished the radiotherapy treatments 11 days ago, I am better but I am waiting to regain my taste and to eat some good food again and regain some pounds I've lost since September 70 lb (32kg)
I'm going through throat cancer just now Had my op to remove my tonsil and some tounge also back of throat Due to start radiation and chemo in march Any tips for pain relief ?? I'm in the UK so things maybe different . Hope you are still doing well 👍 All the best Melissa x
Welcome to the club 💩… I would just suggest that you rate pain differently than normal. I did the 1-10 scale and 10 is my arm getting ripped off or leg and dealing with it without any doctors or pain relief. Then as I was going through radiation it helped me put the actual pain in the 1-10 scale correctly. I wish for it to feel fast for u and for u to forget it ever happened when’s it’s over. 🙏
It's great that you caught it early on. I also caught mines early and did the radiation therapy but had negative effects and it didn't do anything effective SMH 🤷🏽 and it re- turned and was told to do chemo but I felt like I was too weak to deal with the side effects and wanted an alternative which I did and saw a specialist with options. My go to therapy was turmeric capsules which is produced locally here in Hawaii. It reduced and froze carciogenic levels and the oncologist was surprised with results. I use the spice in my foods as maintenance and preventive care. So far so good. Hope and pray we don't ever go through this again. Thanks for sharing your experience. 🌺 ALoHa and GOD ❤ Bless
So I’ve been watching your videos since I randomly lost my voice late last year. I went to an ENT and after the scope they found papilloma on my vocal cord. They didn’t think it was cancerous so I had surgery and it was removed. After it was removed they did a biopsy to be sure and it was in fact cancer. Both to my surgeon surprise and mine. I’ll be going through radiation treatment soon we just don’t know when yet. I notice all the Eagles/Phillies shirts and hats. I’m from south jersey so I was wondering where your treatment was.
Welcome to the club...I'm in Malvern, PA and went to the cancer center at Paoli Hospital! I wish you the best with your treatments and I will be prayin for you and your family.
Hey my man. I have vocal chord cancer. Just finished rad #2. My voice is shot. I would love to be able to connect. Insight would be helpful. If not I understand.
I was diagnosed with the same thing.I have Squamous cell carcinoma it it in my left vocal cord and a small spot on the right. I did not do radiation I did KTP laser surgery they said I could go either way radiation or laser. I have had my 2nd and hopefully last surgery .They operate on one at a time so my vocal cords would heal separately instead of webbing together.My voice sounds rough time will tell how much it improves. I now have follow ups ever 4-6 weeks.I hate the coughing when im trying to heal.
Thank you for posting these videos. Like you, I have oropharyngeal cancer (throat cancer), but unlike you, I will have to do radiation and chemo at the same time. Did your doctors score your tumor? I have a T4-N1-M0, which means the tumor size is a 4, only 1 lymph node is involved, and the cancer has not metastasized anywhere else in my body. I will have daily (weekday) radiation treatments for six weeks and weekly chemo treatments. I may do a similar daily/weekly update.
Hey champ, great to see you got through this relatively ok to what I'm seeing alot of, and that is the feeding tube for a long time. I'm on day 7 of 35 plus chemo once a week for 7 weeks. Here in Australia they add dexamethsone with the chemo and that's 6 times stronger than prednisone with a long half life. They said it was to stop the nausea and it will give me energy which it did, but it got rid of the pain in my traps which is chronic and radiates to my head, and I felt like I was on top of the world, but 3 days later I was back to square 1. I will ask about the prednisone if I feel I will need it after the 7 weeks, although I do have a jar which was prescribed to me for bronchitis a few years ago.
Thank man. The prednisone helped me (was like magic). It so hard for the docs because each of these cancers get treated so differently because they are all unique and so are the people(us) that get it. They are guessing in my opinion. So I just kept them up to date with my pain level so they could help me as best they could. I think they add medication in order to ramp up the intensity of the radiation. I guess the goal is to kill the cancer so its a fine line between keeping us alive and destroying the cancer. I will be thinking/praying for you and your family. OH and FUCK CANCER!!!
I'm 8 days after last radiation treatment and wondering about how much longer I'll have to deal with not being able to 1. swallow anything but Boost, 2. dry mouth, 3. sense of taste.
Going thru this now thank you for your vid God bless .vid gave me help any one starting this should try Manuka honey before and after helped a lot .may God bless all
Thank you for this. I was diagnosed with right sided tonsilar cancer . 7 sessions of chemo and 35 radiation sessions. I’m into week 4. Loss of taste is the worst all pain is in right side. Yup they keep saying get ready it’s gonna get worse. Thank u for this! I appreciate your giving of yourself
How did the remainder of your treatment go please?
I’m glad you are on the other side of it. Your story sounds really similar to mine. Had hoarseness that progressed, ENT said it was allergy, finally biopsy, was squamous cell carcinoma on my left vocal cord. I went to Mayo and had a laser newer laser surgery in July of 2021. And been cancer free since. Have check ups every 3 months. God bless!
Did you have leukoplakia
Great to hear they gave you a good diagnosis. I'm 15 months out from tonsil cancer with 2 lymph nodes. I had 3 high dose chemo cisplatin and 35 radio sessions. The whole treatment kicks the stuffing out of you for sure.But it's effective!. Best wishes for a cancer free future.
Same diagnosis for me. Finished first dose of chemo and 2 weeks of radiation so far. . Loss of taste is really the worst side effect at this point. Did the chemo get worse for you as you had your 2nd and 3rd? My first really had no side effects.
hello, where are your 2 lymph nodes located?
I hope you’re doing better now.
I did 40 rounds of radiation and 3 cisplatin treatments. Lost 55 pounds with a feeding tube. I’m 6 months out. Not much saliva improvement and no taste as of yet. I am very exhausted. Any info to share would be appreciated.
@@michelleduke-vn4imyou feel like you had to have the feeding tube? im refusing mine right now. i have what appears to be early stage SCC small spot in my throat
Your videos give me hope. I’m also Eagles fan now living in Florida after growing up in southeast PA. This afternoon my radiologist will map my head and throat and fit my mask. Hopefully, my experience is no worse than yours, but I’ve heard some really rough stories from others. Thanks for making these videos.
Your voice “sound” so much better! God bless!
Thank, God, that you are cancer free. Yes, Oxy, is super addictive so I’m happy for you that you toughed it out. May God bless you with good health. ❤🇨🇦
Ur not kidding...that stuff worked great until it started messing with me. 🤟
Thanks for the videos, I’m going through the same thing right now, just found the cancer a few days ago. I am also a roofer. 37 years. At least I know what I’m in for. Really curious to how you’re doing now.
So glad to hear u pulled through & beat this. Thank you for sharing ur testimony
Thank you, for your relevant information needed without side tracks,! I'm at the commencement stage of radiotherapy starting in 2 days till mid Jan 2024 for head and neck cancer. Have had 4 separate areas removed with good results. I am looking forward to seeing February onwards, hopefully maintaining a positive attitude like yours. You have provided me with the information I needed for my next few months
Well done wishing you a wonderful Christmas and further recovery. For the others around us, quietly suffering who may think they've been unnoticed , you are the heroes too!
Glad it's going so well for you. Please stay vigilant monitoring your health. I had throat cancer with chemo and proton radiation therapy. I was cancer free for 18 months and it came back (it was at the base of my tongue and was early stage three). I had to have my tongue removed and am now three years out from that. It's pretty tough speaking without a tongue but I'm getting along. I'm one of those you mentioned using a feeding tube. Again, stay vigilant.
Man that terrible I’m so sorry about that
I Start my Radiation treatments in 4 days. Thank you for posting your videos.
Did you have leukoplakia
@@AmberMichealsCholeNicole-cj7sy no
Not being able to taste is the worst part for me. 3 weeks in and now I have to tube feed. Good luck
How did the radiation go?
@scambodia147 I have to say it was horrific. Only completed 28 of the treatments out of 32. My throat felt like it was lined with sandpaper, and I only was able to get maybe 2 hours of sleep a night, For a month. the amount of phlegm accumulated in my throat would shut off my breathing and wake me up every 10 minutes, and then I would never get back to sleep. I'm still having problems with the phlegm. I was informed that it might take a year to clear up.
So glad to hear you are now doing well. I'll be having my last radiation treatment next week (28 in total) for vocal cord cancer which was caught very early, in stage 1. Not sure what to expect as far as recovery goes, I'm told the recovery time is about the same as the treatment takes, but we'll see on that. I guess every case is different. I feel very fortunate to have a great team at Orlando Health. But, enough about me, again, very happy to hear you are now doing well, it sounds like your recovery was pretty tough. Hang in there, bud! Thanks much for sharing your story.
Glad all is well now!!!....I am half way thru 28 treatments.....diagnosed with left vocal cord cancer stage one.....no chemo has been mentioned......how did your last half go.....was it as rough as you may have thought???
Hi Jimmy: Thanks for your question and I will do my best to answer your question. For me, the first half of the 28-day regimen was not terrible, but at about at that point, I started to notice some changes, most notably the radiation was really getting bad for the skin on my throat. Really raw, really painful, although the radiation oncologist gave me some salve, I don't remember what it was called, but it helped considerably. My voice became increasingly worse (they said it would) and by the end of the treatment I was at a whisper (they said it would and it was). Sore throat, some trouble swallowing but that subsided and is gone at this point. My last radiation treatment was 12/12/23. So, I guess what I would tell you is the second half of the treatment is worse than the first half. But then, slowly, I began to recover. It took quite a lot of patience, but gradual improvement day by day. I did not have any interest in talking, but again, a gradual improvement, day by day. My first scan and scope after the completion of radiation was 2/8/24, showing all clear, vocal cords are symmetrical. At this point 6/21/24, my voice is about 90-95% of normal - it may never be perfect, but certainly functional, although It does still get a bit tired, If I try to talk a long time (no more public speaking -yea!) I hope your experience is the same as mine, not what we asked for but a pretty good outcome. I hope the same for you, and I that you will recover as I did. I hope this helps. Please let me know your outcome. I wish the best for you! We got one thing in common, it's true.....@@jimmyclark3869
Thank you for sharing your story. Right now I'm going through something similar. I had an extremely hoarse when I went to the ENT and they ran the camera down there and said I have laryngitis caused by ulcers. I'm on Bactrim until the end of Sept and if that doesn't work I go back a few days later for a biopsy and to explore treatment options. Wish me luck cause my voice is completely gone now. It's good to hear somebody's story who's been though it and is ok because I'll be honest between learning that it could be cancer and not being able to talk a lot of the time other than to myself has kinda put me in a dark place. Thanks for sharing a be sure you keep an eye on it. I've been reading about it and from what I've read it is very treatable but there is a high risk of it coming back. Good luck.
🙏
I'm so pleased that they caught it early, & you are now recovering, take care ❤
I am so happy that you are cancer free! And thank you for making these videos. I have tonsil cancer, tiny tumor on the right side that spread to one lymph node. Stage one, had surgery, negative margins, and I start six weeks radiation tomorrow. I live alone and have to admit I'm a little frightened. Throat cancer groups on Facebook are absolutely terrifying, but your videos have become Bible for me. I keep referring back to them to try and stay calm. I don't have a question at this point, I just wanted to reach out and thank you for creating this content. It's incredibly helpful.
Actually I do have a question. Did you do swallowing exercises during your treatment? My ENT sent me to a voice rehabilitation Doctor Who gave me a crazy list of swallowing/stretching exercises. Wondered if you thought that would be beneficial, or if you did it did it help you. Thank you!
No but ur treatment and cancer may require more aggressive therapy. For me I didn’t care about any therapy that was suggested to me…I just suffered through and now I’m good. I can’t sing as well but I wasn’t in a band so 🤷🏻♂️…I really hope ur treatment goes quick and welcome to the club/group …those Facebook group r 💩. Everyone experiences these treatment differently for me I’m use to pain …I’m a roofer 😂…I’m prayin for u…u probably r half way down now..hang in…u got this 🙏
Really great that you broke down the videos into weekly sessions since they provided a clear step by step picture of what you went through. I have seen other UT videos and you blessed in that you did not endure the suffering those other survivors experienced. Did you catch the cancer early? Did you have chemo (or I just missed it)? Thank you for sharing your journey. I have been diagnosed with squamous cell carcinoma in the tonsils. I will begin my treatment next week. Stay healthy and prosperous with your roofing business. Go Eagles!
Thank god you are cancer free now 👏🏾
🙏👊
I’m going through the same as you. But now they want me to go first and get a pet scan and then make an appointment and go back and see my ENT.
I did do a CT scan before radiation Did you ever do a pet scan? My last radiation treatment was November 9 went back and seen my doctor November 22. Now I am mainly having issues with serious coughing like you keep me up most of the night. I have an appointment for February 6 to get my PET scan done then go back and see my ENT. I’m glad you’re in remission wish you nothing but the best thanks for all your help.
Hey man, watched all your vids as I’m on day 9 of 35, and really startin to feel it now. Got some good tips from watching and appreciate you doin this.
Man....now that I'm on the other side of the treatments...I barely think about it now and its almost like it wasn't real.
When it got overwhelming or when I thought the other side of the treatments would never happen...II asked myself what is the worst pain I could ever have? I chose having my arm cut off (with no pain meds) and it helped me adjust my pain level and gave me perspective. I wish time will fly for you during the treatments🙏
today is my day 12 it's been 3 day that feel like i burned my mouth with a real hot coffee and every time i swallow it like a Tonsillitis real cold water help or icecream but everything has a bad taste
@@dyrnenorka yeah that’s that fucking radiation doing it’s job…the pain is temporary …but it sucks and doesn’t get better … just put that pain against the worst pain u could experience and it makes it feel not as bad…at least it did for me … These treatments are an experience…one thing I know the more it hurts the more it’s eliminating the cancer!!
@@CertitudeHI Hi i did not reply to your message and i ' m sorry but i was sick like a dog since september i have lost 20 kg its about 40 pound i throw up mucus that is building up in my throat DID YOU HAVE THAT PROBLEM
and i have a hard time to eat because all the food or drink i eat taste like Sh.. have you had any problem with the taste of food BAD TASTE and did the taste of the food come back (teats good again) and after how long. Thank you for answering me because you really help me not to go crazy. Hope you are doing ok today and have a great Xmas with your familly God bless you
@@dyrnenorka no worries, everything tasted like nothing and it didn’t come back until after like 3 wks of my last treatment. I didn’t lose any weight I think because of the steroids I was on (prednisone) I would ask ur doc for some…can’t hurt to ask worst u get is no or a let’s try it and see if it helps. These treatments are a journey and it’s painful. I thought to myself to help me endure the pain that if someone special in my life died I would have to face that they would never return and that there was a finality to it then I said to myself that the pain I was going through was not final and it would go away at some point….I gave myself that to look forward to. I feel for u … Merry Christmas brother. I will be thinking about u..u got this🤘🏼👊
Congratulations on your progress. Thank you for taking the time to do these videos. Wishing you the best for the future. I have had a slight difficulty swallowing for about a week now and noticed a hoarseness in my voice. Hope it’s nothing but I have been a heavy smoker my whole life (64 now).
If my symptoms don’t clear real soon I am going to get checked.
So glad you’re cancer free ! ❤
I appreciate that ...
looks good. my dad started treatment a week ago with chemo and its crazy cuz i watched ur videos and though if he lost his voice hed be screwed cuz hes half deaf and they decided to work around that by blasting it with chemo at the same time or whatever. but your looking tons better already since then. thanks for telling your story. hope the best!
I pray your dad gets better 🙏 ❤
Thank u…everything about having this cancer is crazy..the crazy part u can’t control anything but the mental part. Physically ur a hostage. Please share that with him knowing the hard truth is sometimes more comforting and makes the journey more acceptable.
@@CertitudeHI hes got a tube in his stomach and cant eat anymore. hes got to stage 2 of chemo. His is bad. It'll be over in february. But, for sure. He can't do anything but do whatever they say. Even if all it does is make him sicker. ect. Thanks!
@@typerightseesight hows you father now
@@sabavoice3355 my dad passed away in February. The radiation was fine but it only took one round of chemo and he lost 100lbs. The second round killed him. I dunno why they practiced on him the way they did. Ít was beyond horrible. I don't think he understood why they were trying to kill him.
Thanks so much for sharing your experience. I start 29 days of radiation tomorrow for stage 1 squamous cell cancer on my right vocal cord. The surgeon said radiation would be best because of the location (top of right cord). I think I've been living with some level of denial about what I will experience. Your sharing helps SO much. They suggest that I got it due to reflux that I've had for long time. Now I take Pepcid to prevent it. My father died of Esophageal cancer (alcoholic and pipe smoker al his life), so I was sort of on the alert for anything like that. Glad I caught it early, and glad to hear that you're cancer free! Live each day like it was your last. Love freely, especially yourself.. I'm ready for tomorrow......
I am praying for you and your family. The pain is temporary and will go away. I told myself every time the pain kicked in to think about the worst pain imaginable and that type of contrast helped minimize my fixation on it. And one last note FUCK CANCER!
Good day sir, I will be starting my treatment on the left vocal cord soon and was trying to get information on the process.. Your videos have given me a ton of hope and I thank you from my heart.. You have done a beautiful thing sharing your experience with others...
God bless you brother, how is it going now? I start my radiation therapy this August 8th, stage 4 throat cancer. I hope I don't suffer as much. Take care and God bless.
🙏
How are you now , please tell me, my father is now diagnosed cancer, we are very scared.
How are you doing?
I hope your recovery continues and you feel better every single day. I’m not judging when I ask - did you use tobacco products in your past? I’m asking because my son is addicted to smokeless tobacco and I’m so afraid he will receive a cancer diagnosis before long. Bless you for having the courage to tell your story so that others might learn something from your experience. 🌷
I smoked and work around lots of chemicals that could have cause it.
@@CertitudeHIHPV caused your cancer....
Hope you’re well. My wife is an NP at Sloan Kettering in NYC. Keep on rocking!
I have throat pain for 3 weeks, VA doc can't see me until April 4th, blood in my saliva not much but traces of it when i cough up Flem. had this lump on my neck for two years now, va doc wasn't too worried about it. I hope i catch i early like you did, glad you got your life back, God speed the rest of the way.
Gonna see a doc in a couple of days for pain in my throat. We'll get through this, man.
@@robbhays8077 they had to cut extra out of the mass so i can breathe, waiting for lab results to come back :(
I received radiation and chemo for 4 months. The treatment almost killed me. Good luck to you brother.
So very happy for you!
Brother you have no idea how helpful your videos are! I'm reading the comments! Wow! I'm not looking forward to treatments but like you Said "if it hurts that means it's killing the cancer" please give us a update in the future! FUCK CANCER
Check out Manuka honey I'm using it now trying to help keep your faith
@@du43ranger
I did some research on Manuka Honey, great stuff! Ty
The pain is temporary…and by now which was like 3 months ago I have forgotten all about the treatments. 🙏 …FUCK CANCER
My son has 4 treatments left. He is also type 1 diabetic which frightens me because he is having a hard time drinking and eating. He has a great attitude which helps. His dr does not want to do a feeding tube because she says not everyone comes off of them. I just keep praying. Thanks for your information. I know everyone is different
His is actually tongue cancer but radiation affects his throat as well.
Good on you from Australia for sharing your story. My tongue base cancer is too big to operate so start radiation & chemo in a couple of weeks. May follow your lead and do a couple of vids for Aussie patients. Thanks again.
I think if you can you should do some vids people need to know what to expect. I am praying for you and your family.
Glad to see your cancer free
Thx 🙏
I appreciate your series. i wished I would have found earlier in March. I am 3 weeks post epiglottis cancer ( The flapper). 6 chemo and 33 radiation. If you wouldn’t mind, I would appreciate your feedback on the 1-4..5 weeks post treatment. Like you, I have been very lucky. I was able to eat up to week six, loss maybe 1 lb total. Post three weeks , I am down 15lbs, and just dragging. I know everyone is different, but I haven’t talked with anyone and would like to know your experience.
Lots of soup, lots of ice pops, lots of ice cream..lots of drinking water... I am a roofer so pain in the name of the game...chew everything up real good and force it down...not much else u can do
Thank you for the videos, I am getting ready to start this soon big help. I have a question did you drive yourself to and from all the treatments? From the videos looks like you did and were you able to work your business as you went through it?
My husband is now in his last week of proton radiation. He is struggling to swallow. It is difficult for him to swallow the boost drinks even just a bit of it. He has no taste. He has a lot of phlegm and his throat feels pencil thin to him. He coughs a lot and it is brutal for his throat. We were so happy he was only two lbs down but when I read below it seems that as he enters his last week things begin to really get bad to get calories in. Drs prescribed Magic Rinse for his throat which has lidocaine in it but it has been useless. He finds a bit of short relief with advil but the coughing is a struggle. Thank you for posting your saving journey for us to know that he is not alone in his symptoms stage to stage.
Hi, hope you don’t mind me asking if he had a PEG tube fitted prior to his proton therapy and if he ever needed it. I’m starting my proton therapy soon and my oncologist suggested it although I was advised that Proton therapy minimizes the chances of needing PEG tube. Thank you and hope your husband is much better by now.
I like your strengh and smarts about you , godbless , a strong role model for people going through this
Congratulations you’ve done amazing Iv got to for biopsy in 3 weeks for husky voice for over 7 month n abnormallty on left vocal cord I’m so scared even thow Iv just turned 50 I’m still so nervous can I ask was u sore after the biopsy and was u on voice rest thank u so much for sharing I’m so clostraphobic so the mask would be so bad for me tbh but uv done amazing and again huge thank u for sharing such a personal journey it’s very much appreciated
Hi Chloe, You are going to be fine. Trust in the Lord and He will take Your fears away and give You strength.
He took care of Me while I went through surgery, chemo and radiation for breast cancer.
You are in My prayers.💞
I finished my 28 treatments almost 2 weeks ago and you are correct about the post treatments symptoms. Mine were not so much the swelling, but more hard cough to the point of almost vomiting. Then the Phlegm was real bad and is just now starting to taper off. My question is when will my normal voice come back? I am very hoarse and it will trail off to a whisper at times. IF I talk too much I will get this weird dry tickle that if I dont drink something it turns into a uncontrollable cough. Its like my vocal cord does a weird spasm that I can feel up to my eyeballs. I just want my voice back and not to be sleeping on the couch anymore with the late night cough fits. Thanks for the info and Go Phils..
Sweeeeet. Yeah after treatment recovery sucks. I had the same issue with the cough it didn’t go away after treatments and it kept me up many nights. I choked on and coughed and It took 4 months to finally get rid of it…u just have to wait it out (it will piss u off) but know it will go away. As far as the voice thing it’s a slow process also. My voice finally sounds normal again. I now have days where it sounds worse than others but then gets back to normal the next day. I can’t sing or yell as well as I use to ..definitely makes me mad. Welcome to the other side …once u recover it will feel like a distant bad dream. I am so happy for u and ur family…Live it up ….I am🤘🏼
Hi,
I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably.
I would like to share the diet with you.
The soup
Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat.
Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready.
I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame.
(Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.)
During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame.
It seems to be working for me, maybe it will also work for you.
I pray to God the Father in the name of Jesus Christ that you will be healed completely and that the cancer will not return. Amen.
Best regards
Chris
“For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life”. John 3:16 (King James Version Bible)
Jesus Christ is the only begotten Son Of God the Father.
I am sending healing prayers , God bless you. My husband has the same thing but was diagnosed at a late stage two years ago. He has gone through two full rounds of radiations and three rounds of chemo and a radical surgery. They Removed part of his jaw and half of his tongue he had to have a trach and a feeding tube is unable to eat they rebuilt his tongue it with a muscle from his leg it is affecting his speech. He was initially diagnosed as cancer free but God has different plans. We are fortunate we live in Michigan and he goes to U of M cancer cancer for treatments. Great people.
Thank you for the prayers...I hate cancer so much and yet that doesn't stop it from happening. I know having support from my wife was a blessing. It sounds to me he is blessed. I will be thinking/praying about/for you both. 🙏🙏
I pray for his healing 🙏
Bless you brother thanks for sharing. I’m 75 years old and I start my radiation this Wednesday for cancer of the vocal cords. I’m really nervous but moving forward with faith. How are you doing about a year later ?
How are you doing my friend
Your videos are a great help. Did you get another cancer other than throat cancer? You seem to imply this when you said that your throat cancer was gone.
Glad you are doing great!
Thank you!
You sound great I am glad you made it through this.
You sound so much better God bless
Thank you for sharing your story.
I just finished my treatment a month ago , can’t eat yet and still on my g tube
How long can you eat after and did you get your taste back ?
Thank you for sharing you story.
Thanks very much for the videos. I’ve watched them all. I was diagnosed with medullary thyroid cancer stage 3 in August. November 3/22 I had major surgery, cut ear to ear like a columbian neck tie. They removed 18 cancerous tumours. Although it sounds horrible , the surgery was a big success. But to my surprise 3 weeks ago I was told I should do 33 treatments of radiation therapy as preventative treatment. As of today I’ve done 7. Unfortunately I got bronchitis last week and am really feeling the congestion and rough throat.
Your videos at least give some perspective from a patients experience. I’m hoping I do as well as your experience.
Just wanted to touch base and thank you. And I’m very happy you’ve come through this shit doing well.
Dan Botnick. Toronto Ontario
Bro… that’s a journey…I am so glad the surgery was a success…if ur like me I got lots of shit to do before I check out of here. I hope those treatments felt fast ..ur probably done them by now…doing treatments as a preventive thing is a great way to protect urself…I pray for everyone that reaches out and for the doctors..mine was a beast and knew his shit. I am also thankful/ grateful that technology/ medicine (right now) has figured out how to deal with this..We r lucky 🍀
Glad to hear it worked out Brother!
Me too! Thanks
Your are so brave , my farher is now in thet situation, he is very scared , no i will show this videos to him .
I hope you are doing ok. I hope your cancer free, I wish you the best in life, I hope you live a long happy life. Much respect
My haunted is going sometime this week to get his throat checked for cancer... He was battling thrush or that's what they thought.. Then it kept coming back.. Now they want an upper GI.. THROAT CANCER runs in his family.. His younger sister died from it 3 years ago.. And in the early 90's his aunt died from throat cancer.. My husband is already terminally ill... He has CHF (Congestive heart failure) along with having emergency hypertensive his BP usually runs about 180/110..hightest has been 290/180 not lying.. Most ppl would be dead.. He was in icu though.. My husband also has other major problems.. I'm just praying he doesn't have throat cancer but things don't look good
In the past 3 months he's lost a lot of weight.. He use to weigh 200-220 he's 6'1 his thinnest he was 180..last week his doc weighted him he now weighs 130 pounds... He's lost a lot of body mass.. Extremely sore throat.. White spots.. Antibiotics did make him feel better but as soon as he was off of them he was sick again.. His voice has changed and it's hard for him to talk.. He sleeps a lot but I can't tell if that's from his throat or his heart.. He sleeps 98% of the time.. It's been like that for 2 or 3 months now... Out of breath yes but again I can't tell if it's from that or his heart.. He's not coughing or spitting up blood.. He did quit smoking we both did.. He has been smoking since he was 13.. So stopping is huge for him.. We stopped in Jan.. Of this year..
What I would Ike is if everyone reading this could you please Pray for him..
Living life without my husband /best friend is something I'm not ready for.. I'm not ready for good byes or the thought of our son no longer having a father.. Even if he's 23 years old..
please think about him and we'll wishes..
Thanks ❤
I can tell u have so much love for him. To be loved like that is everything …it’s the world. I’m praying for u both❤️
Praying for him to be healed in the name of Jesus ! Keep faith God is good! Amen 🙏🙏🙏🙏♥️♥️♥️♥️
Dude! Yer voice sounds immensely better!
In total, how much weight didja lose?
You still have weight on ya but you look a lil smaller?
My hub was just diagnosed with tonsil cancer and hes only 140pounds so were scared of the weight loss for him through treatment.
And by the way, congratulations on pulling through and getting off the meds successfully!
Thank The Most High your better now. Did they find a tumor somewhere or was it like lesions?
For me it was just a lesion…or growth they called it..bunch of white stuff growing in my vocal cords. 😬🤦🏻♂️
Starting radiation and chemo next week. I'm a roofing salesman too. Hoping it won't be as bad as some guys.
30 RT, chemo.
First 3 weeks no biggie. Weeks 5, 6, and then after treatment ends it gets worse. No sugar coating... It's brutal.
Best of luck.
I'm 4 days after end of treatment
Yeah...I'm getting 30 with 6 chemo for HPV neck. Starting April 15th. 🙏🍀 How are you feeling?
Went through this last year came off a 5k jog with a real sore throat had a bit of acid reflux at the time went to see the GP he put it down to the reflux about a week later started to lose my voice went back was referred to ent had a scope was told 99.9% nothin sinister but to get voice back better lesion had to be removed n would be biopsied, had follow up appointment was told it was carcinoma in situ stage 0, then had laser surgery after the laser surgery was told the biopsy itself removed everything, go for a check up every 4 months. Stay strong if your battling this 🤲🏽
It’s crazy to find out like that ..it’s great news that all is good for u now…so u know I’m cancer free now and I feel lucky 🍀
That's good it was stage 0. I pray that it doesn't come back 🙏
@@MsLadyBluesWorld Was given a 95% chance of a complete cure 💪🏾
@@CertitudeHI I would like to thank you much im going thru this now at 21 treatments seen your vid after I was diagnosed you gave me a great insight. Check out Manuka honey I use it before and after radiation God bless all
how you doing? i’m just going through this now going to do a CT scan tomorrow then surgery
Try Sour sop tea and Apricot kernels! (Seeds) My aunt did this and within 6 weeks her tumour disappeared! 🙏🙏
I am sitting my husband down to watch this as he is going thru the same journey and he is in a lot of throat pain with ten more sessions of proton radiation to go. I am searching for something to help his throat.
you gave me a lot of information a few weeks ago and it helped me a lot to know what i should go through. I start the radiation treatments monday 21 Nov 2022 and just after that i go for chemotherapy for 8 hours the same day. I have to 35 radiation treatments and 3 time 8 hours of chemotherapy. The doc said it might get to a point where I can't eat so the doc did an operation and put a gastric tube not through my nose but strait down my belly to the stomach. I am so happy for you and your familly that you are cancer free. Enjoy your life to the fullest stay safe and i really hope that you will have a long life and not to have to go through this hell again. May GOD Bless you and your Family
🤘Thx...I will be praying for you. 👊
@@CertitudeHI Thx very much for your support tomorow is my last day of the week of radiation treatments 31 more to go, but last Monday I had to do chemotherapy i got sick for 2 days but it was still ok. The great thing here in Belgium we have a lot of help all the different bills and payments and like cancer got a health code E its all most a 100% paye back by the health care system we have here, for 35 radiation treatments i have to paye 2 Euro and chemotherapy its totaly free, but for medication i have to keep all the payment i did to send it back to the Fondation contre le cancer Belgique aide au patien in english ( Foundation against cancer Belgium helps for patient ) where i can get each year 1490euro, but not more than 2 years . I remember when I lived in West Virginia from 1977 -1984 my dad had part of health care with his work but he had to get a insurance to cover the rest of his health care. I just don't get why the greatest and the richest country in the world that is the USA don't have a system like that to help its people. Our system works with solidarity like a tax that can go from 8 euro every 3 months and 24 euro every 3 months and familly that are on welfare its free, anyway that's another topic0
THE MOST IMPORTANT IS THAT YOU ARE CANCER FREE and that you can have great new things on your mind with your kids and wife be happy in life and have a long one i will be praying for you.
THX again for all the help and support it do help me THX again from the other side of the world. sorry for my english writing i rarely write English I forgot a lot, try to do my best with google translation it help me remember a bit.
@@dyrnenorka Hope ur doing good and the treatments r doing their job. ...I have been thinking about you!
I pray you get better soon 🙏
@@MsLadyBluesWorld THX veruy much. Since i finished the radiotherapy treatments 11 days ago, I am better but I am waiting to regain my taste and to eat some good food again and regain some pounds I've lost since September 70 lb (32kg)
Im so happy that you are cancer free
I'm going through throat cancer just now
Had my op to remove my tonsil and some tounge also back of throat
Due to start radiation and chemo in march
Any tips for pain relief ??
I'm in the UK so things maybe different .
Hope you are still doing well
👍
All the best
Melissa x
Welcome to the club 💩… I would just suggest that you rate pain differently than normal. I did the 1-10 scale and 10 is my arm getting ripped off or leg and dealing with it without any doctors or pain relief. Then as I was going through radiation it helped me put the actual pain in the 1-10 scale correctly. I wish for it to feel fast for u and for u to forget it ever happened when’s it’s over. 🙏
Thank God you’re cancer free
God bless you..i don't know if I have cancer or not but I am having symptoms..hopefully it is not cancer.
It's great that you caught it early on. I also caught mines early and did the radiation therapy but had negative effects and it didn't do anything effective SMH 🤷🏽 and it re- turned and was told to do chemo but I felt like I was too weak to deal with the side effects and wanted an alternative which I did and saw a specialist with options. My go to therapy was turmeric capsules which is produced locally here in Hawaii. It reduced and froze carciogenic levels and the oncologist was surprised with results.
I use the spice in my foods as maintenance and preventive care.
So far so good.
Hope and pray we don't ever go through this again. Thanks for sharing your experience.
🌺 ALoHa
and GOD ❤ Bless
I going thru this same radiation...I'm at 19 of 28 treatments.....I'm having terrible heartburn...Did you?....If yes, what did you do?
Were you able to work doing your treatments
god bless you.. how many weeks after last treatment until your throat back to normal?
So I’ve been watching your videos since I randomly lost my voice late last year. I went to an ENT and after the scope they found papilloma on my vocal cord. They didn’t think it was cancerous so I had surgery and it was removed. After it was removed they did a biopsy to be sure and it was in fact cancer. Both to my surgeon surprise and mine. I’ll be going through radiation treatment soon we just don’t know when yet. I notice all the Eagles/Phillies shirts and hats. I’m from south jersey so I was wondering where your treatment was.
Welcome to the club...I'm in Malvern, PA and went to the cancer center at Paoli Hospital! I wish you the best with your treatments and I will be prayin for you and your family.
Hey my man. I have vocal chord cancer. Just finished rad #2. My voice is shot. I would love to be able to connect. Insight would be helpful. If not I understand.
Thanks for the info.
I was diagnosed with the same thing.I have Squamous cell carcinoma it it in my left vocal cord and a small spot on the right. I did not do radiation I did KTP laser surgery they said I could go either way radiation or laser. I have had my 2nd and hopefully last surgery .They operate on one at a time so my vocal cords would heal separately instead of webbing together.My voice sounds rough time will tell how much it improves. I now have follow ups ever 4-6 weeks.I hate the coughing when im trying to heal.
Going through same thing.Had 37 Rads and 6 chemos How long to you were able to eat ?
Thank you for posting these videos. Like you, I have oropharyngeal cancer (throat cancer), but unlike you, I will have to do radiation and chemo at the same time. Did your doctors score your tumor? I have a T4-N1-M0, which means the tumor size is a 4, only 1 lymph node is involved, and the cancer has not metastasized anywhere else in my body. I will have daily (weekday) radiation treatments for six weeks and weekly chemo treatments. I may do a similar daily/weekly update.
Mine was t1 and no chemo for me ... do the videos people need to know what to expect
Is radiation treatment external without surgery...? How are you doing now? Wish you the best.
Yeah no surgery and the radiation is just beamed at you and the docs try to aim it the best they can and zap the shit out of it.
Hey champ, great to see you got through this relatively ok to what I'm seeing alot of, and that is the feeding tube for a long time. I'm on day 7 of 35 plus chemo once a week for 7 weeks. Here in Australia they add dexamethsone with the chemo and that's 6 times stronger than prednisone with a long half life. They said it was to stop the nausea and it will give me energy which it did, but it got rid of the pain in my traps which is chronic and radiates to my head, and I felt like I was on top of the world, but 3 days later I was back to square 1. I will ask about the prednisone if I feel I will need it after the 7 weeks, although I do have a jar which was prescribed to me for bronchitis a few years ago.
Thank man. The prednisone helped me (was like magic). It so hard for the docs because each of these cancers get treated so differently because they are all unique and so are the people(us) that get it. They are guessing in my opinion. So I just kept them up to date with my pain level so they could help me as best they could. I think they add medication in order to ramp up the intensity of the radiation. I guess the goal is to kill the cancer so its a fine line between keeping us alive and destroying the cancer. I will be thinking/praying for you and your family. OH and FUCK CANCER!!!
How are you doing now brother ? I’m 75 years old and just finished radiation # 21 … what has your year of recovery been like ?
Well a couple months after it was still hard but after that all is good 👍 👌
Thank God for your recovery ,, What kind of radiation treatment did you get?
I dont really know ...which probably sounds stupid of me.
I'm 8 days after last radiation treatment and wondering about how much longer I'll have to deal with not being able to 1. swallow anything but Boost, 2. dry mouth, 3. sense of taste.
It took 3 months for me but it goes away hang in the pain is temporary 🙏
@@CertitudeHI ok thanks.
@@petewhite85Pete how did you get on since your last post ?
Hi.how did you manage your self to the food,your using by tube in stomach
Going thru this now thank you for your vid God bless .vid gave me help any one starting this should try Manuka honey before and after helped a lot .may God bless all
Glad it’s helping..thx for the tip. I wish u a speedy recovery 🙏
I am 21 i smoked for 6-7 months and after quitting my voice changed a bit and having sore throat ent says its tonsillitis but its been a month.
so did you get a feeding tube?
Heal up soon!!!
I’m good now …it’s all a distant memory🥃
I’m 8 weeks post chemo radiation tonsil cancer. Did you lose your beard. I am 159 lbs down from 210 taste is terrible teeth are hurting
Yeah the radiation is a blessing and a curse. I kept the beard and it didnt glow...lol.. I pray that your treatments go quick and you recover fast.
Voice sounds a lot better!!
God Bless
Ur voice is better now
I'd you have any suggestions on how not to lose my ability to swallow I'm all ears.
Hi,how did you manage about to eat the food ,by using tube or by using mouth.
God bless you ♥️🙏
I'm really surprised you didn't end up with dead thyroid and salivary glands.
Congratulation
🙏🙏🙏
Does your throat cancer have stage? thanks 🙏 🙏🙏
What is your symptoms plzz
Follow the channel i put a video up called throat cancer symptons
it was HPV ?
Did you experience any skin burns?
Burned the skin on my neck bad
Did you have pain when your voice went south?
no none at all...I just struggled more an more every day to speak and it slowly got to a whisper over time.
Did you have leukoplakia