I have all that and just got diagnosed for Alpha Gal 🎉 Had MCAS my entire life and now an allergist is challenging that diagnosis. As a patient I know I have all 3 and didn't notice the progression of Alpha because the symptoms are allergies and joint pain. I just thought I was progressing. It deserves honorable mention and doctors who can rule that out.
@bendybodiespodcast Had mouth-bleeding from a food and the allergist's nurses who administered allergen shots had zero clue as to why. Should have brought it up with the allergist...
If most mcas food triggers/allergies are not ige mediated, does that mean they won't cause anaphylaxis or love threatening symptoms? That's what scares me about testing foods.
Have you tried keeping a symptom journal?
I have all that and just got diagnosed for Alpha Gal 🎉 Had MCAS my entire life and now an allergist is challenging that diagnosis. As a patient I know I have all 3 and didn't notice the progression of Alpha because the symptoms are allergies and joint pain. I just thought I was progressing. It deserves honorable mention and doctors who can rule that out.
Thank you for your comment and I will add alpha gal to the list of things to mention soon!
What about latex-based food allergies?
Yes, latex-fruit syndrome is serious and anyone with latex related food allergies should be under the care of a knowledgeable physician!
@bendybodiespodcast
Had mouth-bleeding from a food and the allergist's nurses who administered allergen shots had zero clue as to why.
Should have brought it up with the allergist...
Yikes! I am so sorry to hear this. Any concerns should definitely be brought up with your care team.
@bendybodiespodcast
Thank you. Took me a long while to figure it out. Here it's an uphill battle and living on and island compounds it.
That would be challenging!
If most mcas food triggers/allergies are not ige mediated, does that mean they won't cause anaphylaxis or love threatening symptoms? That's what scares me about testing foods.
Thank you for your question. Unfortunately, anaphylaxis CAN occur without IgE activation.
So how do we manage trialing foods and discovering our food triggers? Will all mcas patients experience anaphylaxis?
Not all MCAS patients experience anaphylaxis. The question of trialing foods has come up a number of times so I will cover that in a future episode.
I'm already dying to listen to it!
@@felicityporter8375 I hope you will find it helpful!