You cannot imagine how important this video is for me and how grateful I am for it. Everything is so much clearer to me now. It explains everything, even the elevated bilirubin levels that none of the doctors could figure out, as well as all the tumors that grew so large in just a few months: in the thyroid, kidneys, uterus, and so on.
Omgosh, how this syndrome has been so stealthy for so long! So grateful to this brilliant Dr for her interest, passion, research & dedication to this horrid condition 👏🏻
Thanks God that I can handle MCAS symptoms with natural remedies. Adress methylation is also a fundamental key! Thanks Dr for this brilliant presentation! 🙏
I really wish every Provider knew about this. I just turned 60 after a lifetime of strange medical issues. It was by chance my Allergist ran some tests after my allergy tests were negative. After COVID vaccination within hours I developed symptoms that kept increasing. I have Primary MCAS, positive CKIT D816V and HaT, DM type 2. Neg BMB. Unfortunately, I am having to figure out my own treatment. After severe reactions to initial treatments given all at once at highest dose...both my MDs are just done. I am functioning with my own plan but missing some stuff that needs a script. So many folks could be helped if MDs would just not give up and also just believe this is a real thing.
I was already diagnosed with Mcas before Covid but refused the shot because I thought it would cause more problems. I had to cut ties with my PCP because of it. I'm glad I didn't now
This was an amazing video. Thank you so much! I wish your office was closer to LI! Purchase is not close. Great info. Im hoping for help with my challanges. The ENT, Allergy doc, and 3 docs at my GP all point the finger to go to each other so I have no help. I am becoming my own pro while I wait for a doc to help me....I go to ID doc tomorrow.
I was 100% healthy.. until after receiving my 2 jab... horrific, painful hives, migranes, diarrhea, extreme fatigue...its been life changing...so sad... was just diagnosed with mastocytosis...
After getting the third shot is when my health started to deteriorate and i started feeling tired all the time. Became more allergic to things that i could normally eat with little to no issues. I was totally fine before the booster shot.
truth is, we weren't 1005 healthy before (I didn't get the clot shot...I'm a nurse, refused fu shot under obamacer, etc..I didn't choose the poison. I got it it naturally, and was neglected by healthcare, didn't get ANY medical help, had stroke, seizures, etc....alone in my home...total ptsd now). Covid was easy to treat...I did it with many people. I'm sorry you got the shot. You need to contact Dr Bruce Patterson, also FLCCCnet protocols. Mold toxicity at my workplace is where this all started for me in 2017...it made the severe covid light the match. My life was joyful and active, until now. It's miserable and depressing but I don't stop in trying to get better. Prayers for you. Who diagnosed your mastocytosis by the way?
I have had this since birth, spent my first 2 years unable to eat anything but chicken, rice, applesauce, and peas. Hives, and crazy rashes my whole life, have been diagnosed with EDS, and multiple autoimmune conditions. Migraines, anaphylaxis...can't find a doctor who will help me...and I look at the consult prices for doctors who know about this and its like...$3000 for an initial visit. I am so discouraged. My life has been absolutely ruined by this disease.
There is a community for people with Mast cell disease on Telegram and Discord in the works right now with all info and access to many treatments. You should check it out.
I discovered chlorine dioxide treated water (the same used to sanitize water for campers) (Aquamira brand) works to calm my mast cell activation. I've sipped this water throughout the day for 2.5 years and haven't had to take antihistamines or avoid high histamine water since the first week I started this protocol. Amazing stuff!
I live near the sea I do have a mould problem as one of my problems, I’m on a very specialist diet because of that . I can’t eat wheat yeast sugar and I’m lactose intolerant and chemicals . Clothes , sun , cold , and have every single hayfever allergy lol 😂 I’ve got to laugh it’s crazy I live a very very simple life now because I’m even intolerant to medication because everything I’m intolerant to is in medication .
@@daniellerandall6486do you happen to have hypomobility heds asperger's ADHD the genes for this I have had si many symptoms but fybromyalgia us now my main symptom
please explain if you can, as I have my own hypothesis, as to why ivermectin helps with MCAS. It is MUCH less drowsy-causing than antihistamines. Thank you! I want to be a patient, but I can't wait over a year for a spot, and I'm broke..
I wish I could find a doctor who will help with diagnosis. PCPs don’t know enough and the specialists won’t see you without a diagnosis. We are in the Boston area so you would think it would be easier to get help.
This is me and videos of docs talking about this gives me hope but i need to see someone who can help me with it. It has sidelined my life and I don't have money to pay out if pocket. Really need help with this. My biggest event I know changed everything was a bad toxic mold exposure after that I can't tolerate sleeping in moat buildings I'm a mess. As a child I got hives easily and was asthmatic but I was pretty normal until I was 34 and got fibromyalgia then a bad mold expoaure brought on MCS and now I know it's MCAS. Just don't know how to overcome this
I benefitted incredibly from NAC+bromelain+quercetin plus binders an biofilm disrupters, but I’m still suffering with flair-ups - one of my main symptoms is severe constipation and pelvic floor tightness, so I can’t go for antihistamines or cromlyn, since they are both associated with constipation - I recently heard about DMSO - do you think this might be an option? Thank you in advance for all your extremely valuable and precious research and work! I’m also a researcher and I can really appreciate that ❤
+ mold...that set me up for severe covid ..heathcare neglect came next. I'm a nurse and worked the plandemic. I got no help when I was a patient. I am disabled and miserable head to toe but not stopping!
@@Jennifer-gr7hnwell I was born with autism as my mother grandfather great grandmother great great grandmother grandfather had no pain apart from slipped disc from.the hypomobility mother had severe ms my son as autism ADHD no pain yet so must be before hard to no check out Dr lenz thankyou very confusing
I have retinal vasculitis, vitreous hammeorhage and chronic rhinitis. I carried out all test but I didnt found any cause of issue. One day my doctor prescribe my cetrizine my rhinitis temporary cure. I came to know about Mast cell and histamine intolerance. Can it be issue for my retinal vasculitis and vitreous hammeorhage? My opthalmologist isnt known about any reason about by retinopathy.Please let me know
Naturopath. But they need to have experience with this... or you can see a disautonomia specialists. We have good ones in Seattle if you want to come visit 😊
I have noticed a few years ago that being exposed to various allergens defiently makes me potsy. If I can avoid the allergens than pots is not a problem. Of course I keep my legs strong too. Oddly enough I never had that C19.
![Felix "Unfair" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/Oswujxm2Ag0/mqdefault.jpg)
You cannot imagine how important this video is for me and how grateful I am for it. Everything is so much clearer to me now. It explains everything, even the elevated bilirubin levels that none of the doctors could figure out, as well as all the tumors that grew so large in just a few months: in the thyroid, kidneys, uterus, and so on.
How can we get this more public and more views so people understand us?
Share with friends and family XXX
@@shereeglasson22 and doctors who aren't addicted to their pride
Omgosh, how this syndrome has been so stealthy for so long! So grateful to this brilliant Dr for her interest, passion, research & dedication to this horrid condition 👏🏻
Wow. This is a great gift that you've given to MCAS sufferers. Thank you.
Thanks God that I can handle MCAS symptoms with natural remedies. Adress methylation is also a fundamental key! Thanks Dr for this brilliant presentation! 🙏
I really wish every Provider knew about this. I just turned 60 after a lifetime of strange medical issues. It was by chance my Allergist ran some tests after my allergy tests were negative. After COVID vaccination within hours I developed symptoms that kept increasing. I have Primary MCAS, positive CKIT D816V and HaT, DM type 2. Neg BMB. Unfortunately, I am having to figure out my own treatment. After severe reactions to initial treatments given all at once at highest dose...both my MDs are just done. I am functioning with my own plan but missing some stuff that needs a script. So many folks could be helped if MDs would just not give up and also just believe this is a real thing.
Im in same place. 60 with MCAS after a recient covid infection. So sick living on high dose antihistamines and low histamine diet. No fun😒
@@user-ii4hq5gd6chypomobility?
@@user-ii4hq5gd6cdid it start after adrenal fatigue do you have autism ADHD heds causation
I was already diagnosed with Mcas before Covid but refused the shot because I thought it would cause more problems. I had to cut ties with my PCP because of it. I'm glad I didn't now
Am same. Esp after covid, see 11 Drs who treat 11 body parts.failed western med system 🙏❤️
This was an amazing video. Thank you so much! I wish your office was closer to LI! Purchase is not close. Great info. Im hoping for help with my challanges. The ENT, Allergy doc, and 3 docs at my GP all point the finger to go to each other so I have no help. I am becoming my own pro while I wait for a doc to help me....I go to ID doc tomorrow.
I was 100% healthy.. until after receiving my 2 jab... horrific, painful hives, migranes, diarrhea, extreme fatigue...its been life changing...so sad... was just diagnosed with mastocytosis...
After getting the third shot is when my health started to deteriorate and i started feeling tired all the time. Became more allergic to things that i could normally eat with little to no issues. I was totally fine before the booster shot.
Caused mcas fight or flight in overdrive would have anything from.them
My booster shot was the end of me. I have Dysautonomia and MCAS severe. Lost 45 pounds and muscles atrophied. Chronic pain.
truth is, we weren't 1005 healthy before (I didn't get the clot shot...I'm a nurse, refused fu shot under obamacer, etc..I didn't choose the poison. I got it it naturally, and was neglected by healthcare, didn't get ANY medical help, had stroke, seizures, etc....alone in my home...total ptsd now). Covid was easy to treat...I did it with many people. I'm sorry you got the shot. You need to contact Dr Bruce Patterson, also FLCCCnet protocols. Mold toxicity at my workplace is where this all started for me in 2017...it made the severe covid light the match. My life was joyful and active, until now. It's miserable and depressing but I don't stop in trying to get better. Prayers for you. Who diagnosed your mastocytosis by the way?
@@sharlene4mylife.. am same,,, was celiac, previous mold, Lyme, covi jab tipped me over🙏❤️
Passionate and brilliant. Thank God for you. systemic mastocytosis patient on besuclastinib trials. I appreciate you so much.
Best lecture on mcas ive ever seen 💯💯💯
Excellent ! How this topic get more public so more people can reach it .
Excellent presentation
I have had this since birth, spent my first 2 years unable to eat anything but chicken, rice, applesauce, and peas. Hives, and crazy rashes my whole life, have been diagnosed with EDS, and multiple autoimmune conditions. Migraines, anaphylaxis...can't find a doctor who will help me...and I look at the consult prices for doctors who know about this and its like...$3000 for an initial visit. I am so discouraged. My life has been absolutely ruined by this disease.
There is a community for people with Mast cell disease on Telegram and Discord in the works right now with all info and access to many treatments.
You should check it out.
Excellent presentation. Thank you.
EXCELLENT information and presentation!! 1:07:01
I discovered chlorine dioxide treated water (the same used to sanitize water for campers) (Aquamira brand) works to calm my mast cell activation. I've sipped this water throughout the day for 2.5 years and haven't had to take antihistamines or avoid high histamine water since the first week I started this protocol. Amazing stuff!
I have mcas , a allergist figured what was going on with me , I have intolerances to everything pretty much .
Do you live in a moldy or water damage building?
I live near the sea I do have a mould problem as one of my problems,
I’m on a very specialist diet because of that .
I can’t eat wheat yeast sugar and I’m lactose intolerant and chemicals . Clothes , sun , cold , and have every single hayfever allergy lol 😂 I’ve got to laugh it’s crazy I live a very very simple life now because I’m even intolerant to medication because everything I’m intolerant to is in medication .
@@daniellerandall6486do you happen to have hypomobility heds asperger's ADHD the genes for this I have had si many symptoms but fybromyalgia us now my main symptom
@daniellerandall6486 are you intolerant to fexofenadine or other antihistamines?
@@daniellerandall6486try ldn slowly
Dr. DEMPSEY CAN YOU RECOMMEND A DOCTOR FOR THIS IN LOS ANGELES AREA? WHO ALSO TAKES MEDICAL? SO DESPERATE
please explain if you can, as I have my own hypothesis, as to why ivermectin helps with MCAS. It is MUCH less drowsy-causing than antihistamines. Thank you! I want to be a patient, but I can't wait over a year for a spot, and I'm broke..
You skip a dose and flare??? And what happens if for whatever reason you cannot get that stuff ??
Is it possible that Mast cells could cause the activation of the Lupus Anticoagulant?
Are your slides viewable somewhere?
HOW MUCH QUERCITIN-Bromelin-NAC?
I wish I could find a doctor who will help with diagnosis. PCPs don’t know enough and the specialists won’t see you without a diagnosis. We are in the Boston area so you would think it would be easier to get help.
I would suggest finding a good naturopathic doctor who has experience with this. Also, not all MAST cells show up on a blood draw.
This is me and videos of docs talking about this gives me hope but i need to see someone who can help me with it. It has sidelined my life and I don't have money to pay out if pocket. Really need help with this. My biggest event I know changed everything was a bad toxic mold exposure after that I can't tolerate sleeping in moat buildings I'm a mess. As a child I got hives easily and was asthmatic but I was pretty normal until I was 34 and got fibromyalgia then a bad mold expoaure brought on MCS and now I know it's MCAS. Just don't know how to overcome this
Thank you so much for this fantastic lecture.
I benefitted incredibly from NAC+bromelain+quercetin plus binders an biofilm disrupters, but I’m still suffering with flair-ups - one of my main symptoms is severe constipation and pelvic floor tightness, so I can’t go for antihistamines or cromlyn, since they are both associated with constipation - I recently heard about DMSO - do you think this might be an option? Thank you in advance for all your extremely valuable and precious research and work! I’m also a researcher and I can really appreciate that ❤
Susceptibility + Covid + Stress = MCAS
Suseptabilty is asperger's ADHD heds
Susceptibility is hypomobility autism adhd
+ mold...that set me up for severe covid ..heathcare neglect came next. I'm a nurse and worked the plandemic. I got no help when I was a patient. I am disabled and miserable head to toe but not stopping!
@@Truerealism747 autism adhd is an affect of, not cause of
@@Jennifer-gr7hnwell I was born with autism as my mother grandfather great grandmother great great grandmother grandfather had no pain apart from slipped disc from.the hypomobility mother had severe ms my son as autism ADHD no pain yet so must be before hard to no check out Dr lenz thankyou very confusing
I have MCAS I started to have symptoms after becoming sick in December 2022, colonoscopy biopsy indicated that I had MCAS
What was the test for mcas interesting
I believe they can syain the biopsy on the slide to show the Mast cells.@@Truerealism747
I have retinal vasculitis, vitreous hammeorhage and chronic rhinitis. I carried out all test but I didnt found any cause of issue. One day my doctor prescribe my cetrizine my rhinitis temporary cure. I came to know about Mast cell and histamine intolerance. Can it be issue for my retinal vasculitis and vitreous hammeorhage? My opthalmologist isnt known about any reason about by retinopathy.Please let me know
What kind if doctor do i need to see? My gp, allergist, and dermatologist look at me like im crazy when i bring up mcas or histamine intolerance.
Naturopath. But they need to have experience with this... or you can see a disautonomia specialists. We have good ones in Seattle if you want to come visit 😊
My GP doctor in the UK mentioned a low histamine diet for me!
I need practical advice to navigate the usa health insurance system to even get tested. Explain it like im 5.
Go find a naturopathic doctor who knows about this...
@@christiewelsh5718 thx
The Screen is blurry. I can't see or read anything from start to end. Anybody else ?
The images are clear on my smartphone. Including the printed parts shown on the screen.
Maybe clear your cache and restart. Check the speed of your connection. Mine is fine.
These symptoms can be part of spd though to?
result of, not cause
Heparin OMG I had anaphylaxis to it
Sitting here an inflamed mess and my allergist told me to see my general practitioner! What?!! Looking for a new one now I guess. (HaTs)
Charles Darwin had it centuries ago
Lyme and Co infection's, mold
huge and left untreated by the mainstream maffia
From Lyme disease
I have noticed a few years ago that being exposed to various allergens defiently makes me potsy. If I can avoid the allergens than pots is not a problem. Of course I keep my legs strong too.
Oddly enough I never had that C19.
Nothing about natural medication!
most natural things can't cut it with this....sorry
She mentioned quercertin and bromelaide. These are natural substances. We can't get enough from foods alone so need to supplement these.
Also, look at the 42 minutes mark, she puts up a slide with natural options, albeit some of them still require pill form.
Excellent presentation, in the end, we have to be our own advocates..western med a failure..chrinic dusesses are the firgitten population😥🌊❤️