I know what you were thinking on the way back without the walker. When you let go of the post, stood there for a second and looked at camera. You are brave, strong and mentally tough. Keep fighting, control what you can, don’t over do it and God bless!
@@MS.inspirational-ul9duthis is really true..I wanted to say this but was afraid of seeming rude..seeing others going thru this same thing is actually helping me to be strong Thank you❤
@@shawn9635 not rude. People can’t get offended by the truth but they do 🤣 my quads are weak. Squats help! For foot drop, dorsiflexion and plantar flexions 👍🏻 you can do them in bed or while sitting 😊
@@jimsperlakis5634 it is hard when you want to push yourself to do things like a “simple” walk but when simple is far from easy (my case right now) it’s best not to test it 🤣🤦🏻♀️ boy do I struggle with that but i also know what to get myself into…sometimes 🤣 i have to remind myself that you crawl before you run ❤️ baby steps, patience is a virtue ❤️ do you exercise? Eris Small has a book, Yoga and Multiple Sclerosis, there are yoga poses you can do on a wheelchair 😊
@@jimsperlakis5634 the third is worse because you feel like you’ll be able to and if you’re not careful the mind takes over forgetting to make the connection between your mind and legs! That’s what happened here 🤣🤦🏻♀️
My husband have the the same Ms. He have truede a Molly Suit. His balance balance is Munch bette agter using Molly Suit. All the best for you…. You are a fighter ❤️
I have never heard of that suit and best believe it looked ot up after reading your comment. Thank you ❤️ and please tell your husband my heart is with him and for him to never stop fighting this MonSter. Best wishes for you too for being by your husbands side in this battle ❤️
Thank you and hope you have someone to fight with to. You Can find videos on RUclips with the Molli Suit. I send your wish to my husbond and he smiled and afsked me to return with a Big hug to you and wish you logs of luck and hope you Can talk with your doktor abort the Molli. 🥰💪❤️ love from Danmark
@@mariannesrensen8409 i do but it gets frustrating at times. That’s cute 🥰 thank you to both ❤️ it hope i can too, i recently changed my MS specialist and i don’t like her either 🤣🤦🏻♀️ it’s upsetting trying to be convinced medicine is the answer when you are so against it. With that said, hopefully she’ll want to because it’s not medicine. Love from California ❤️❤️
That’s cute 🥰 thank you ❤️ gratitude helps a lot. Don’t dwell on it, it’ll make the situation harder. I miss wearing my high heels 😢 going out to sing karaoke, walking around so freely. It sucks! Exercise is so important. You know your body best ❤️ can you still move around?
@@MS.inspirational-ul9du I can move around but it s painfull n weak . Not lik I use to. I use to gym, swim , run drive. Life stole everything I did. I miss my life too. I lost friends relationships career everything. Most of the time on bed. Trying to be positive but God has to guide a way. Cheers to u n ur spirit . 🫂 🤗
Fantastic. When you sit down on a chair that can move, be Careful. I got my feet tangled up and fell off the side of my walker. It was because I got in a hurry. I fell in the driveway and nobody would stop and help me get up.
😱 when i was 2 months into my diagnosis i was on a busy street. A red light to be exact and a man with no legs fell off his scate board. Nobody bothered to help 😢 if only i would’ve been able to help. Truly sad how people don’t give a fk
@@MS.inspirational-ul9du Once, I was sitting at an outside table watching a blues band and my ticket fell on the ground.(I have a 95% fused neck also)The lady behind me picked it up and put it on my table. I was so happy I started to cry. I couldn't help it because it's so seldom that anyone ever wants to help. They step right in front of my wheelchair at the store or give me the dirty look like I did something wrong.
My heart is with you ❤️❤️ i am wall and furniture walking right now. I use the walker out of the house depending how my core feels. Keep strong 💪🏻 it’s not easy ❤️ my mobility got worse
I safering same .mam. I can't find out what I do. I miss all my happy'moment. I spent 3 months no pain no swalling but no balance I fell afraid always.the doctor not told my situation correctly.how much time take to recover this situation ? Pray God for me pl, good lucks to all.
@@Justcillin10 do you exercise? Exercise repairs myelin but it’s not a magic wand. Consistency is very important in the myelin repair journey. Keep your head up ❤️ gratitude makes a difference ❤️ practice distracting your mind by doing things that make you happy, focus your mind on something else like crocheting 🧶 learn new things. Baby steps to success ❤️❤️ you got this 🧡🧡🧡
I am sure you are on some type of medication. Exercise daily even if it is 15 minutes is a key. Thats what my neurologists told me. But thats his perspective ❤
@@sugoshiyer1540 everybody is different but i actually noticed more decline with rituximab. My MS specialist said I’ve only has one infusion and it’ll get better. From personal experience I do better by exercising. Exercising repairs 40% of damaged myelin. The best research is learning about myelin and how to repair it😊
@@MS.inspirational-ul9du thanks , you are an inspiration that my wife needs...she has few permanent symptoms like left leg anke drop /limping and left arm tremors when she wants to work with it...plus fatigue...hope some solution comes for this soon...any idea or info u have on stem cell transplant/ HSCT ?
@@sugoshiyer1540 my pleasure to be an inspiration to your wife 😍 i feel in the same boat as your wife with “permanent” but really it’s all about pushing yourself to work out. Personally i don’t like physical therapy. No pain no gain. I feel physical therapy at least with me they do bare minimum because you are not “suppose to overwork yourself” with ms but my gains were through pushing myself. Stem cells have the potential to repair myelin just like working out. It’s hard, i know it is but maybe put her in a group or one on one. Theres trainers that specifically work with people with disabilities like ms. Maybe that will motivate her. Through the ms society you get $300 for a physical therapist and they give you a list to choose from. I was very blessed that the therapist i choose is also a nutritionist and that was stated in list provided by the ms society
You are brave, Bless you! You are beautiful, thank you.
Thank you 😊❤️
I know what you were thinking on the way back without the walker. When you let go of the post, stood there for a second and looked at camera.
You are brave, strong and mentally tough. Keep fighting, control what you can, don’t over do it and God bless!
🤣thank you for knowing 🙏🏼 you’re cute 😊
Thank you for the affirmations ❤️ God bless you 😊
Very good. Keep up the good work.
Thank you 😊❤️
God bless you ♥️♥️♥️
Thank you 😊 God bless you too ❤️❤️
Your right foot drags just like mine. Hang in there. Nice to see someone else has a same issue I do. Thank you
Yes it does 🫤 it makes a difference to know you’re not alone, that others can identify. You’re welcome. My heart is with you ❤️
@@MS.inspirational-ul9duthis is really true..I wanted to say this but was afraid of seeming rude..seeing others going thru this same thing is actually helping me to be strong Thank you❤
@@shawn9635 not rude. People can’t get offended by the truth but they do 🤣 my quads are weak. Squats help! For foot drop, dorsiflexion and plantar flexions 👍🏻 you can do them in bed or while sitting 😊
Thenk u god bless you
You’re welcome 😊 God bless you ❤️
You did well without walker u are amazing should do another vid with more walking with and without cane. Ty
I know what you mean… It is scary.
Keep it up though -- you're getting there!!
Thank you❤️
It's the 2nd step that's scary, not knowing what the foot is going to do.
My Dr yelled at me for keeping my Cane with me in my wheelchair. He said for me not to try because I fall a lot.(The last fall fractured my pelvis)
@@jimsperlakis5634 it is hard when you want to push yourself to do things like a “simple” walk but when simple is far from easy (my case right now) it’s best not to test it 🤣🤦🏻♀️ boy do I struggle with that but i also know what to get myself into…sometimes 🤣 i have to remind myself that you crawl before you run ❤️ baby steps, patience is a virtue ❤️ do you exercise? Eris Small has a book, Yoga and Multiple Sclerosis, there are yoga poses you can do on a wheelchair 😊
@@jimsperlakis5634 the third is worse because you feel like you’ll be able to and if you’re not careful the mind takes over forgetting to make the connection between your mind and legs! That’s what happened here 🤣🤦🏻♀️
❤👍🏼👍🏼
@@vegasdano7569 ❤️❤️
Thsnk u
My husband have the the same Ms. He have truede a Molly Suit. His balance balance is Munch bette agter using Molly Suit. All the best for you…. You are a fighter ❤️
I have never heard of that suit and best believe it looked ot up after reading your comment. Thank you ❤️ and please tell your husband my heart is with him and for him to never stop fighting this MonSter. Best wishes for you too for being by your husbands side in this battle ❤️
Thank you and hope you have someone to fight with to. You Can find videos on RUclips with the Molli Suit. I send your wish to my husbond and he smiled and afsked me to return with a Big hug to you and wish you logs of luck and hope you Can talk with your doktor abort the Molli. 🥰💪❤️ love from Danmark
@@mariannesrensen8409 i do but it gets frustrating at times. That’s cute 🥰 thank you to both ❤️ it hope i can too, i recently changed my MS specialist and i don’t like her either 🤣🤦🏻♀️ it’s upsetting trying to be convinced medicine is the answer when you are so against it. With that said, hopefully she’ll want to because it’s not medicine. Love from California ❤️❤️
I wish I was strong like u
That’s cute 🥰 thank you ❤️ gratitude helps a lot. Don’t dwell on it, it’ll make the situation harder. I miss wearing my high heels 😢 going out to sing karaoke, walking around so freely. It sucks! Exercise is so important. You know your body best ❤️ can you still move around?
@@MS.inspirational-ul9du I can move around but it s painfull n weak . Not lik I use to. I use to gym, swim , run drive. Life stole everything I did. I miss my life too. I lost friends relationships career everything. Most of the time on bed. Trying to be positive but God has to guide a way. Cheers to u n ur spirit . 🫂 🤗
You are bold my friend, be careful.
Thank you❤️
Fantastic. When you sit down on a chair that can move, be Careful. I got my feet tangled up and fell off the side of my walker. It was because I got in a hurry. I fell in the driveway and nobody would stop and help me get up.
😱 when i was 2 months into my diagnosis i was on a busy street. A red light to be exact and a man with no legs fell off his scate board. Nobody bothered to help 😢 if only i would’ve been able to help. Truly sad how people don’t give a fk
@@MS.inspirational-ul9du
Once, I was sitting at an outside table watching a blues band and my ticket fell on the ground.(I have a 95% fused neck also)The lady behind me picked it up and put it on my table. I was so happy I started to cry. I couldn't help it because it's so seldom that anyone ever wants to help. They step right in front of my wheelchair at the store or give me the dirty look like I did something wrong.
I've got a weakness on both sides but my right is worse than my left at the minute. Do you walk with the weaker.
leg first. My right foot drags too
My heart is with you ❤️❤️ i am wall and furniture walking right now. I use the walker out of the house depending how my core feels. Keep strong 💪🏻 it’s not easy ❤️ my mobility got worse
I safering same .mam. I can't find out what I do. I miss all my happy'moment. I spent 3 months no pain no swalling but no balance I fell afraid always.the doctor not told my situation correctly.how much time take to recover this situation ? Pray God for me pl, good lucks to all.
@@Justcillin10 do you exercise? Exercise repairs myelin but it’s not a magic wand. Consistency is very important in the myelin repair journey. Keep your head up ❤️ gratitude makes a difference ❤️ practice distracting your mind by doing things that make you happy, focus your mind on something else like crocheting 🧶 learn new things. Baby steps to success ❤️❤️ you got this 🧡🧡🧡
Msin insani bu hala gətirəcəyini təsəvvür ede bilmirem 😢😢
Similar here.
@@jeffkardosjr.3825 always keep your head up ☺️ i am so much worse right now 🤣
I am sure you are on some type of medication. Exercise daily even if it is 15 minutes is a key. Thats what my neurologists told me. But thats his perspective ❤
I am on rituximab. I completely agree with your neurologist! Exercising repairs 40% of damaged myelin 😊
Hey , my wife will undertake her 1 gram rituximab infusion in the coming week..has it helped symptoms reduction and better walking in your case?
@@sugoshiyer1540 everybody is different but i actually noticed more decline with rituximab. My MS specialist said I’ve only has one infusion and it’ll get better. From personal experience I do better by exercising. Exercising repairs 40% of damaged myelin. The best research is learning about myelin and how to repair it😊
@@MS.inspirational-ul9du thanks , you are an inspiration that my wife needs...she has few permanent symptoms like left leg anke drop /limping and left arm tremors when she wants to work with it...plus fatigue...hope some solution comes for this soon...any idea or info u have on stem cell transplant/ HSCT ?
@@sugoshiyer1540 my pleasure to be an inspiration to your wife 😍 i feel in the same boat as your wife with “permanent” but really it’s all about pushing yourself to work out. Personally i don’t like physical therapy. No pain no gain. I feel physical therapy at least with me they do bare minimum because you are not “suppose to overwork yourself” with ms but my gains were through pushing myself. Stem cells have the potential to repair myelin just like working out. It’s hard, i know it is but maybe put her in a group or one on one. Theres trainers that specifically work with people with disabilities like ms. Maybe that will motivate her. Through the ms society you get $300 for a physical therapist and they give you a list to choose from. I was very blessed that the therapist i choose is also a nutritionist and that was stated in list provided by the ms society
Comunicate con migo se te ayuda un 80%de mejoría en México
God bless you ❤❤❤
🥰 God bless you too 💕