I have Meniere's for the past 4 years or so. I had steroid shots in my ear drum that didn't really help. What I have done to control it is eliminated all sugar, grains & processed foods from my diet. I eat only animal protein, some low carb veggies and very little low sugar fruit. I did take an antiviral medication during the height of C0VID, but not taking now. My disease seems to be in remission with the best results coming from a change in my diet. I don't limit salt & do drink electrolytes daily. Of course, good sleep & daily exercise all add to the mix of feeling better once you have the symptoms under control. Again, thanks for sharing. 👍😊💜
I have had menieres all my life, and now I'm sick and tired of it! It is debilitating and just interferes with my whole life. When I'm having an attack, I can't do anything. The attacks come on suddenly and without warning and are most of the time very, very strong. I have over the years developed strategies for coping but I'm not now looking to cope, I want to find a cure. The internet has helped tremendously. Over the years, I have had doctors tell me I'm faking, they've told me there is no such disease, I'm crazy. Thank God, medicine has finally acknowledged its existence, and that there are others out there who are going through the same awful thing
I was diagnosed with Menieres Disease 8 years ago. The first few weeks was horrible. I told the doctor I thought I had a brain tumor. My family doctor sent me to an ENT. He started me on steroids, low dosage of Valium, allergy tests. I've been on allergy shots now for 7 years, low sodium diet. I can feel it coming on. My head is a barometer. There are several things I do to try to keep myself going. It's a terrible disease.
It is a horrible disease. I was just recently diagnose. Diuretics are offering little relief if any. My entire personality had changed because i can't here people talk normally and many sounds and voices are so irritating to listen to. The depression this has caused is overwhelming. I feel hopeless.
I have it. It is horrible. I get bad attacks during any weather changes. Low sodium & low dose benzodiazepines at night. It helps. I get very ear fullness, anxious, sweat profusely, depressed, pain, hear weird sounds, even noxious smells, drop spells, nausea, nystagmus, brain fog, & vertigo. I have 2-3 a month.
Hi Jim, I was diagnosed a few months ago. My first episode, I thought I was dying. It lasted 30 ish hours. After I was diagnosed I started to research it. My findings led me to Epstien Barr Virus family. Also belonging was shingles n cold sore viruses. I started to triple my daily amount of L lysine 1000 mg. This keeps it in check for me.
@@gretchenhughes9652 i feel diziness during any weather changes too but maby it is due to neck musles press on arteries and the blood which reach the brain is less and cause the problem as i discussed with my doctors ,keep that in mind too
Jim, happy to see you are doing better. The health care system in our country can be a difficult and sad thing to go theough. From my experience half the time the Primary Care Physician will not listen or take your worries seriously and then when they do it takes months to see a specialist. In the meantime you are just left suffering and fending for yourself. There seems to be no sense of urgency. I wonder if these doctors would be so slow to get things done if it was them in the hot seat. Just rambling here, going through some medical issues here and frustrated with our health care system. Anyways glad to see you are doing better.
This is the most accurate testimony and description. From thinking it might be a stroke. To feeling hung over after the episode. People think im drunk or hung over. Especially at work. When i have to call in or go home early. Please do a follow up to let us know how things are with you... We appreciate you ✌️♥️🙏
Thank you! I had never read about antivirals. I will start learning about the subject because lately I have been losing hearing and having severe tinnitus, but without dizziness or vertigo, fortunately. Most doctors here in Spain only recommend taking corticosteroids, antihistamines, and betahistine. It seems that we have to learn for ourselves. Thank you very much again!
I’ve had menieres for over 6 years. I’ve seen every ear nose and throat doctor in the Pittsburgh area. MRI’s, hearing tests, crystals tested you name it I’ve done it. Had one doctor ask me if I felt depressed. I wanted to literally beat him to death. “You won’t die from it, but you wouldn’t mind if you did!” Is the truest statement ever. I’m so happy I found your video! At least it’s something I can try, cause the doctors sure aren’t helping! My nausea is so violent at times I gave myself a hernia.
Hi. I also suffered terribly for a couple of years and after trying absolutely everything, my ENT finally resorted to Gentamicin drops in my right ear. Even though it totally killed my hearing in the affected ear……it completely stopped the almost daily attacks. It changed my life. I hope you find a solution to this utterly horrendous disease.
3 месяца назад+2
regular ENTs do not have the knowledge to treat meniere;s. it is hard to find a doctor that specializes in meniere's. do yourself a favor and seek an expert. you may have to travel, but it is worth it.
The symptoms are isolating, friends don’t understand or care to UNDERSTAND, either. I have constant ringing in my ear/ears, dizziness, off-balance, and weakness quite often, toooooo. ALLLLL THESE SYMPTOMS CAUSE DEPRESSION AND YOU DON’T want to be involved in ANYTHING, either.🤪😜😝😫😩🥺😦😯😧😮😲🙄🥴
I highly recommend trying this, Dramamine the motion sickness drug which active ingredient is Dimenhydrinate 50mg. You can get it at W mart for low cost. It is a life changer. B complex and D3 with K2 vitamins help reduce dizziness. Low salt and sugar, lower caffeine intake and good sleep habits. I take Cortexi for tinnitus and it cuts the ringing to about half as much. Lmk if this helps out. Good luck.🤞🏻👌🏻
Jim I have meniers and I take a water pill and only when needed but I promise you it changed my life. 30 years of this and 6 months ago I was diagnosed. Remove salt and caffeine and it’s amazing. I had so much pain with fluid and mass pressure in one ear with hearing loss. Good luck my friend.
I've tried the low sodium, no caffeine and it did absolutely nothing for me. I went so low sodium my fingers cramped. for whatever reason, this didn't work for me.
Good to know/. I think I saved myself from going to a walk in clinic and a 3 hour wait around other sick people/ thanks water pills/ do they make you pee more? I'd do anything to kill the headaches and ear pain/ dam coffee huh? well at least there is still wine🍷/ I don't even use salt thankfully
I’ve had Meniers disease since I was 17….. at first the doc didn’t want to believe I had Meniers because he thought I was too young. Its so crippling and life altering. I get severe attacks where I turn completely pale like a ghost, I get super hot and sweat buckets. The room spins and I vomit profusely. The only thing I can do is sleep. When I wake up I feel like shit, I have attacks all the time. It’s gotten so bad where it’s caused me to have anxiety attacks. I don’t even like to go anywhere anymore because I’m always thinking I’m gonna have an attack. I would do anything to get rid of it.
@@TarnishedtheGOAT I bought a rowing machine(from Amazon cheap as dirt) I row with my eyes closed because I need enough exercise then I don't suffer as bad if I give into lethagic tendenacies // sucks I know but rowing in the dark or eyes closed has given me some joy too. If you can get your hands on Dristan sinus tabs take 1/2 of one for a full day of relief/no longer available in Canada as Americans are afraid they won't get enough meds for themselves.... since Covid we have half empty shelves drugs trickle into Canada now we know what it's like to be third world
I am a 20 yr sufferer and this story is spot on! I went to 8 Ents and I have learned more from the internet.I had the injections into my inter ear, They claim that it will burn out in 5 to 8 years. From support groups and you tube your brain adjusts to the good ear, A hearing aid is immense help, even with balance, make sure that your crystals are where they belong too.
this is a very rare disease. on;y 0.2% of people have it. it is very hard to find a doctor that specializes in meniere's disease. regular ENTs don't have the knowledge to treat meniere;s disease.
Jim I followed your channel when you first got your titan rack. Ive checked a couple times over the years to see if you returned. I saw this new video and was very excited. I was real sorry to see what you have gone through. Keep us updated how everything goes.
Jim, Thank you for sharing your journey. My husband has all the symptoms and he started JOH protocol today. We are so grateful for the information you shared. God Bless You, The Garcias
I hope it works. Also, don't forget to talk to a doctor about either an Acyclovir or Valacyclovir prescription if you can get it. That's going to work a lot faster.
My first attack was sudden and without warning when the room suddenly span round and I found myself on the floor with sudden acute nausea and cold sweating. Like you I called for an ambulance because I had no idea what was happening to me. At the hospital the nausea abated and I began to return to normal. The whole episode lasted about 2 hours. When I asked what they thought was wrong they said it could be a variety of things and suggested it might be de-hydration. I started to increase my fluid intake and thought it was the answer until I had an identical attack 3 months later and a further attack after another 2 weeks. By now I was looking for a solution on the internet when I came across Meniere's which described my symptoms perfectly. I mentioned it to my doctor who agreed it sounded the most likely cause. I was prescribed Betahistine which i now take daily. It has now been 3 years since I had my last attack. I haven't had any problem taking the medication. Thankyou for your video.
How about being drowsy after taking betahistine ? doctor has prescribed me anyihistamine but i m just scared and not sure about takinh it i dont wan to atay drwiay whole day i have hot two little kids .
exactly. The healthcare system is similar to that of the judicial system in that doctors are not educated to "cure", but educated to "maintain" the disorder in-order to continue the revolving door effect of patients coming/going to hospitals. The system is in it for the $$$.
@@peterandkodiak9762 Sad but true :/ I really believe there is already a cure for Cancer out there and HIV/Aids, but its only given to those that are super wealthy. Example: Magic Johnson
Thank you Jim, for sharing your story! I have been to 2 Brain docs, 3 ENT specialist, I go to PT 2ce a week for the vertigo excersises, that really does not help. and only recently A doc at UT SouthWestern here in Dallas said he thinks I may have Menieres Disease. I go for more Testing tomorrow 3 different test. I have had this severe vertigo with throwing up and it can last up to 4-6 hours for about 9 months. It Really Sucks! As you said, they come out of nowhere. Scary! Hearing your story sounds like exactly what I am suffering from. The J.O.H supplaments along with the antivirals sounds like a good try for me . Thank you again for sharring your story and providing the links. I gave you a thumbs up and also will Subscribe. Blessings for us all that suffer from this for a much better 2023. mark
Just an update after taking the antivirals for one week, I’m starting to feel so much better and relief. Thank you so much for your helpful information. I am going to physical therapy now once a week opposed to twice a week for vertigo I’ve been doing certain test. Much better. I did have more extreme test done at the hospital with a with goggles they put on you and then put you in a small vertical tube while you sit in a chair in total darkness. For those of you, that are a little claustrophobic, no need to worry because it’s like sitting in the dark with your eyes closed you don’t feel much. They do rotate the chair very slowly both ways to see if you have minor symptoms of vertigo, but nothing to be alarmed about. A little lightheadedness but no vertigo. Then there were other various tests they did with goggles and monitoring. Very light symptoms if any. The one thing that did cause vertigo was when they did the cool air in your ears. My right ear had a little bit of vert but it only last a few seconds. A little more extreme in my left ear and lasted a bit longer , maybe 10 seconds. The warm air in the ear was much more intense in my right ear and way intense in my left ear that lasted for about five minutes then it finally went away. Making progress. For those of you, that may have to go through this test, just know you are in a safe facility that people are experiencing and trained to deal with your vertigo and if it happens, they can help you right away. I was dealing with extreme vertigo drops and throwing up. Thank you so much for taking the time to share your video Jim to help others like me and you dealing with this. May you be very blessed because you are certainly blessing others with your helpful information. Thank you.👍😊 Mark
Hello sir I have meniere's disease affected both year continue tinnitus unbalanced body headache vertigo I don't know what I do please suggest me what I do
Ah! You finally had a full-blown Menieres attack. Much like you, I struggled with mild symptoms until I actually had covid. That's when I started having the full blown episodes for 5 or so hours. It's scary! That is what took me to my ENT. Prednisone & dietary changes helped immensely and I did regain some hearing. Finding the regimine from John of Ohio has made a big difference and I regained most of my hearing. Unfortunately, my symptoms are weather related and the barometric changes that happen in the Fall have me fighting symptoms again. But we keep going! The most important thing is not to give in and decide that you are now a home-bound shut-in destined to live in misery. JOH is definitely a big help, but mindset and the help of a good ENT when symptoms flair is important. Good luck on your journey! Thank you for sharing your story and spreading the knowledge of JOH!
@paul_devos the prednisone was only a short-term treatment when my symptoms were severe and the attacks were happening more often and fairly horrible. It helped immensely.
If I hadn’t watched your video I would have never known to ask my doctor for antiviral medication. It’s day 2 and I can hear for the first time after suffering for just 3 months (not years like you) post Covid/cold infections all winter. I have permanently lost some hearing in one ear after seeing the audiologist/ENT. Prednisone did nothing but make me sick, my balance/vertigo was bad to but betahistine did help. Thank you thank you thank you for your video. I hope you are continuing to have good results after a year now. I believe you saved my hearing from getting worse and I hope more doctors try this approach sooner for people.
So glad to hear it! I suspect that this won't help everyone, but if it can help a few of us, it's well worth putting out the word. So happy to hear this helped you!
Thank you!! Triggers for me: Gluten, MSG, Sodium, Dairy, Peanuts, Soy, Caffeine, Alcohol can all be factors, Gluten and MSG, and Gluten the most. I take an over the counter motion sickness pill (Meclizine HCI 25 mg). The Anti Viral you mention is intriguing and I will try it out. I mostly do ok if I avoid Gluten. Thank you for this video!
I'm curious about diet changes as well, but the antiviral really has this under control, with no other changes necessary. I will probably try some diet changes, anyway.
@@susanneschauf7417 , Not in my case of age. My first bad episode was when i was 60 . I stay pretty active. Now doing testing for Menieres. Same exact systems as Jims.
I am very sorry for you guys, because I know very well how it is. Recently a doctor mentioned that it could be a simple vitamin deficiency. Vit. B12 if I remember correctly (occurs only in meatvor). Daily 10,000 I.u. Vit. D3 in combination with 400 mcg Vit. K2-MK7 and magnesium I also recommend. Try it, it can't hurt. Don't believe the official intake limits. They are so low that they cannot heal. But in any case I recommend you to change to a species-appropriate human diet. This has already cured many chronic diseases. And that is mainly meat, eggs, liver, bacon. Only whole foods with one ingredient, no label. Rock salt as much as you want. Eat only 2x a day, no snacks. No industrially produced food. No seed oils (highly pro-inflammatory). Instead: Animal fat/lard, lots of butter, very good virgin olive oil, coconut oil. Few or no plants: Leafy lettuces, cruciferous vegetables, very few nuts, mushrooms. No nightshade crops, no corn, no seeds! What can you drink? Real coffee, real tea (no instant), water. Nothing else. Highly recommended here in YT: 1. Dr. Ken Berry, 2. Dr. Chaffee. 2023 will be your healing year! Good luck and success! 🤗❤
I was diagnosed having Ménière’s at least 8 yrs ago horrible pressure, balance is off.. I’ve seen every specialist all my tests results come back normal. I don’t know what normal is anymore but whoever said if drs figure out what cures anything, they’d be bankrupt. I think drs are just practicing physicians. Aren’t we all? Just practicing and looking for any solutions to actually help? Our healthcare system makes me scream! We need The good doctor! Remember that tv show? He actually cared about others dealing with symptoms and dire help. My 2¢
Thanks for sharing Your story is similar to mine I have not tried the antivirals but I do the vitamins. Does not help how easily doctors just tell us to live with the disease 😞 I am older and have been with this disease for more than 16 years. To avoid the nasty vertigo episodes , what really helped me through the years , is to identify my triggers . There are two of them that are critical for me, Caffeine and MSG (monosodium glutamate used to enhance foods flavors ). However I can tolerate low levels of regular salt in food. But something that really works for me is to excersise to a point of breaking a heavy and intense sweat. If I don't do that at least once every other week , my ear fullness returns. The way I explain this is because intense perspiration helps my body to get rid of sodium fast. My disclaimer , speak with your doctors before attempting intense excersise to sweat. Thanks again.
Exercise actually brings on my menieres. I guess it's the head movement, movement in general. Once into a full blown attack, the best thing for me is to get to a nice comfortable room, I go to my bedroom, make the room as dark as I can get it, no noise, no music no television, cover my eyes with a cool damp washcloth, get into a comfortable sleeping position and try not to move and keep still as I possibly can and go to sleep. Have my medicine, soda (something bubbly and clear--Sprite, 7up, etc.) zip lock freezer bags , phone all handy on my nightstand. Then just try to sleep. But if my stomach starts bleeding because of all the throwing up, I may have to go to the ER to get help. I also have diabetes and if vomiting causes bleeding I might get too low in electrolytes and blood sugar and blood count. That has happened to me before. My blood count dropped below a safe level, and I had to have a blood transfusion. They also irrigated my stomach to stop the bleeding because bleeding causes even more vomiting, If that starts up I usually don't try to control it by myself anymore, but go to the ER. If the blood count gets too low, it could means lights out! It all happens pretty fast, so stay on top of it to keep it from becoming a big ordeal. Sorry, I didn't mean to write a book or give you my life history. Just trying to help someone who is experiencing the same things I do, and sharing useful information that I have learned from years of experience. Hopefully someday this will all just be a bad nightmare. Good luck.
I was pretty sure that I had meneres because of my dizziness and lose of hearing in my left ear. I talked to an ENT at Toyonaka city hospital in Osaka Japan He ran tests and informed me it wasn't meneres. He said that due to my age it's possible to have dizzy spells. He gave me a list of exercises and wished me well. I think he missed diagnosed me. I see my family doctor next week and will ask him for the antivirals and see if my constant dizziness goes away. I want to thank you so much for your help and teaching. Kind wishes, Edward in Osaka Japan BTW I've never had vomiting attaches.
I been going through this for a year it's so hard I'm on medication that doesn't seem to work I eat so healthy I can barely make it to work some days I can't get our of bed I have attack every day almost I been so depressed just listening to your story gives me a lil hope but it's hard
Im not sure if i have Meniers but......I get similar issues with any type of energy drink, caffeine pill or pre workout. Funny thing is coffee help reverse the problem ( its a diuretic ) Also anti viral foods like garlic, onion, oregano, cayenne will help drain the sinus and ear areas. Eating tons of fruits, and veggies, and removing all processed junk will help detox the body and heal. Hope this helps somebody
@@nrevathy91 I think coffee helps the issues, but other forms of caffeine are bad. Everyone is different so try different things and see what helps. For example, i don't eat or drink dairy products because they create excess mucous in the sinus / throat area. That could clog things up and cause allergies or other issues since the sinus is connected to the ears. Black coffee seems to be a great natural anti histamine and clears out the junk in the head/ sinus area for me, just don't add dairy or sugar. Also using a netti pot to flush things out will speed up the process may help. Do you consume dairy or milk?
I have had Meniere's for about 10 years and after the first 3 years which were really bad. I had regular periods of Vertigo, throwing up violently, no balance and hearing loss - gradually. Then it slowly went away for about 5 years with just the tinnitus and the gradually getting worse hearing loss in one ear. About 18 months ago it came back with a vengeance. Vertigo, lack of balance, nausea and total hearing loss in my left ear. I went for head adjustments in case it was not Meniere's this time and balance therapy, which helped a little, but I started back on the Methazolamide tablets that my doctor gave me 10 years ago when this first started which is a diuretic and it has calmed right down again except for feeling a little off balance now and then. I also obtained some Betahistine which is not available in the US, but used in Europe and other areas of the world to treat Meniere's. If it gets bad again I will switch to this from the Methazolamide, which I take daily. The one thing that I do know is that once you get this disease it will abate, it will change in intensity and types of events, but it will never seem to end.
Thank you for your sincere suggestions. I appreciate listening to your sharing of the Meniere's Disease dilemma you are suffering through. You are also telling my story. A+
Thank you for sharing. I had exactly the same experience after the C shot. Woke up without balance, migraines lasting for months, brain fog and ear pressure. I have been like this for the last 3 months making my life miserable. God bless you for sharing this information, I will try the vitamins and minerals mentioned in the pdf file ❤
If you can, get a doc to prescribe 1g valcyclovir or 800mg acyclovir (valcyclovir if your insurance covers it), 3x a day and then taper off of it. I'm on a maintenance dose. that's what basically cured me in 2 days.
I’ve dealt with Meniere’s for over 6 years now. During that time I have gone as long as 3 and a half years without an attack, and last fall they happened ever two to three days. I have been told of two different treatments. One is an injection of gentamicin in the ear which is supposed to be 90-95% effective at stopping the vertigo, but does have a significant chance of increased hearing loss. The other is an outpatient surgical procedure called Endolymphatic sac reduction. It is supposed to be 70-75% effective. I am scheduled for the procedure in April.
This was my experience exactly. Went to bed Saturday night normal hearing. Woke up Sunday morning and my left ear was so muffled and I thought it was ear wax buildup. Went to my ENT had an MRI and the doc said it was probably Meniere's disease and cut down on the sodium. He said there was nothing wrong structurally just a fluid buildup that causes the fullness and no way to relieve it. When people talk everything in that ear sounds like a buzzing bee talking. Sometimes it feels full and sometimes not so much. There are times my hearing starts improving and I get optimistic and then it goes back to muffled again. Fortunately there was no vertigo or tinnitus. Just impaired hearing. As a guitarist it is depressing.
Shorty after your covid shot, fancy that. My flatmate relapsed with her auto immune disease shortly after her covid shot. I did try warn her not to get the shoot but her ex put pressure on her. I was surprised so many were so trusting and willingly got the shot.
My ENT is in the top 3 in the country. I was very Blessed to have him ..I was doing studies for 4 years and they were finding it in truck drivers. They really dont know how you get this ..
Thanks for this video! I am on the same merry-go-round. I did get onto the steroids early, because I did lots of research and pushed the doctor to prescribe them. I’ve been on and off the steroids for nearly nine months now. My hearing comes back, I go off the steroids then I get dizziness. There are tablets for meniere’s here in Australia (Betahistine?) but my ENT says I don’t have meniere’s, maybe just cochlear hydrops so he didn’t prescribe anything but steroids. I had an MRI which supposedly ruled out an acoustic neuroma (tumour). Since you’ve mentioned anti-virals, I thought I’d mention that Vitamin C is actually a NATURAL anti-viral, and can be taken in high doses. Think I’ll give that a try today as I’m lying on the bed after another horrible attack of dizziness.
Hi I'm in Australia too and taking betahistine. I've recently come across DTR therapy in the US and hoping for something like that here! There's an entire playlist on RUclips with patients with ménière's, having this treatment done.
Bless you it is a horrible disease,I was diagnosed in 2011.Changedmy life profoundly but I try to watch my diet,low salt only drink redbush tea and I definitely notice lack of sleep and stress makes it worse.Ginger in any form is extremely helpful.Good luck
Interesting, thanks for sharing your experience. I’ve had a similar experience but attacks every few months. That’s hard enough. I’m seeing this 2 years after you posted it, and I’m curious how you are doing now.
I was diagnosed with MD about 6 years ago. I was put on Beta histamine to which I am intolerant..I was about 4 years without treatment and I was a shadow of myself. I now have a new ENT and he put ne on acetazolamide. I feel almost normal again. I still have attacks but less frequently..He also prescribed me potassiun to replenish loss of electrolytes from the medication. I have also heard that vit b1 helps with tinnitus. Thankyou for taking the time to share you're experience with us. 💜
I got rid of mine for 6 years doing oregano oil in nose and orally, as well as parasmart parasite cleanse and four day fast. I was just like you horrible. Started mild couple times year 20 years ago to everyday.
Wow that sounds like possible Lyme disease or coinfections from it, did they test for it? I had it early 2000's took years to get better it's back again. I have chronic Lyme disease, it comes with parasitic infections they use oregano oil to treat along with many other things to get rid of parasites. This is good to know! Horrible disease yes.
My rheumatologist years a go told me go into an Anti inflamatory diet, lukewarm water om an empty stomach, grounding, deep breathing, bit D3, complex B, K2, potassium, magnesium, Zinc, natural vitamina C, stretching, deep breathing; for My fibromialgia and boy no vertigo!! No migraines, no pain, no stomach issues. It's important to know when your vertigo is from TMJ, cervical issues, vagus Nerve, positional, etc. Important to loose weight, sleep early, dinner light. Good posture.
Hi Jim, thanks for your video, I have suffered with Meniere's. Having read a book with advice I started taking Tumeric with black pepper, I have not had a problem for over two years now. I beleive it does not work with everyone, I hope maybe this might help some sufferers, Cheers.
Mine started with a severe allergic reaction to mold. I sneeze so violently that I grenaded my inner ear, which cause meniere’s symptoms but with 100% hearing loss but constant tinnitus and slight imbalance problems. Low sodium and diuretics only made it worse. Staying fully hydrated helps more than anything I’ve tried. Don’t think antivirals will help with destroyed inner ear. Pilots and deep divers have also suffered from mechanically destruction of the inner ear. Too many doctors may miss this as a cause
Yes I have the exact same thing, the antivirals stopped the attacks for 4 months. When I went off them the started coming back after a couple months. Low sodium was not reliable but low-histamine diets really made a huge difference for me and you can eat more normally. Also taking anti-histamines helps. Now I am taking motion sickness meds like dramamine and they really help as well I am of the antiviral and just doing those and have it under control for about a month so we will see. Thanks for posting this. Good Luck!
Thanks for the video. I have been diagnosed with meniere’s since 2014. I was having severe attacks weekly that would last 18 to 24 hours at a time. The day after I felt like I had a hangover. My primary care sent me to a ent doctor and he first prescribed me diuretics and and that didn’t seem to help a lot. So my ent did a surgery and put a shunt in my ear to drain it. That surgery greatly reduced the frequency of attacks and duration. I still take lasix to try to keep the fluid off that ear. But my doctor has to keep a close eye on my potassium because of the long term diuretic, low potassium can be a life threat. I have had a couple of er trips for that. Initially my ent wanted me to do a low sodium diet,so I tried it for a few months and it made me feel terrible and I couldn’t tell it helped my menieres at all. I read a study since then that said some menieres is affected by sodium and some are not. I think stress is my number one trigger. When I say stress I mean mental and physical (like being really tired,sick,allergies ). For the last few years I have only had a couple of attacks a year, but recently I have had a little more trouble with it. I just want to say thanks again for the video I hadn’t heard of antivirals being used for treatment. I am going to run that by my doctor
Good luck! It's sometimes hard to find a doctor willing to treat it. I go in loaded for bear. I hope you continue to do well. Thanks for the info on the shunt. Antivirals have worked for me for a year, now, but who knows what the future holds. The description has some links to various things related to using antivirals. Cheers!
Hey Jim, I feel your misery. I too have Vertigo, but I really think it's Meniere's as my Great-Aunt had it and it is genetic supposedly. I've seen a Neurologist and she prescribed Meclizine. All I think it does is lessen the chance of vomiting (sometimes). This disease is life altering for sure. I have had hearing loss in my right ear for decades and I'm quite deaf in the right ear now with tinnitus. My left ear is declining now. I'm 70 years old. I've been sick with this since last fall Sept/Oct 2021. I saw my ENT and he sent me to another one of his offices to have an ENG test. I show up for the test and they said I was not in the computer as having an appointment. Two ENT offices were merging practices apparently and I got deleted. I was relieved because I was terrified of the test making me nauseous. I fired that place. I haven't yet moved on finding another ENT. Last night I was watching a RUclipsr "For Beautiful Smiles" who is a dentist and he located in Oregon. The patient (a man) made the trip from Houston and his story is very good. This dentist has patients who were cured of Meniere's (maybe not permanently) by treating them with the therapy he uses for people with TMJ. It's called a DTR test. The patients felt a significant change after the first treatment. Subsequent visits continued to help this man. The Dentist's name is Ben Sutter. I left a message for him in the comments if he knew of a dentist he could recommend in my area (Long Island). When I see my daughter-in-law I'm going to ask her about this because she's a dental hygienist. I wish you all the luck in the world. I'm really hoping that President Trump and Military will release the miracle working Med Beds to the public. There are different ones for different problems. This is technology that has been kept secret from we the people and only used for the Elite of this world. It cures practically everything. They even can regrow limbs.
if this ever stops working, I'll look into that tmj treatment. The other thing I'm curious about is that Dana White from the UFC flew to Germany and got some sort of stem cells injected into his ear (i may have gotten that wrong, but that's what I think it was.) He claims that after 2 treatments, he was cured. The problem is, of course, that means 2 flights to Germany, but that's another thing I will try if this ever stops working. I hope you find relief. Stay in touch!
@@JS-lr8nj i just saw Danas video about biengranada cured with some type of blood injection. Sounds expensive though ☹️. I suffered from this for a long time. Now i feel like I’m getting anxiety panic attacks from this🥺
@@ASDonohoe i just saw his video and he won’t say the name, but he said you have to get referred by someone( and he meant famous people ☹️) to get in the place. I wish we could get this kind of treatment 🙏
Started taking the anti virals yesterday and they seem to be helping the blocked ear cleared and the tinnitis stopped roaring and is a lot quieter, feeling a lot better. Hope I keep improving
I joined a group for menieres on Facebook. People are very helpful on sharing their personal experiences. A decent amount recommended psychical therapy for vertigo. My ENT was being a pain in the ass saying he doesnt think that will work but he will give the referral. I denied a medication called nortriptyline after reading the side effects. I should be starting the PT for vertigo next week 🤞
I’ve been low sodium for 3 years now. Yes, I have to make all my own food, but it is possible. I am interested in trying antivirals. Thank you, my last episode, I do think I was having a tiny cold sore on my mouth.
FYI - Just the other day I saw a video mentioning how there is a history of using niacin and thiamin for Menier's. The niacin probably has to be the "flush" kind, not the "no flush" kind.
I e been suffering bi-lateral Menieres since 2006. I tried the vitamin regimen with no luck. I suffer so much sometimes I wish.... My hearing is almost completely destroyed. I can't hear my wife, can't hear my children, and can't hear my grand children. Im doing research for hearing aids now, but can't afford them. If I'm being honest, I hate my life most days.
I'm so sorry to hear that. There's an experimental treatment n Germany that Dana White from UFC did, but I bet it's outrageously expensive. i'm so sorry. I hope something improves for you.
@@JS-lr8nj well, had an appt yesterday to try the anti virals. My right ear has severe hearing loss and very poor word recognition. My left ear is still aidable. Woke up with vertigo today and puked for a few hours before falling asleep. I pray these antivirals work.
Thank you for sharing this Jim. Many of things that you said really resonated with me. I will bring the concept of antivirals up with my doctors. I'm currently scheduled for an Endolymphatic Sac Decompression surgery but they can't do it until November so I have to find a way to live with it for 3 months as the last 2 weeks for me have been hell as I've had more bouts of vertigo/dizziness than the previous 18 years of being diagnosed with meniere's disease. I'm hoping it helps stabilize my hearing loss that has occured over the last 2 years also.
Daughter had it for 36 years. She suffered and gotten used to the ringing in ears and dizziness. She started taking B1 but has to take with B3. No response on how it worked with fluid in her middle ears. But when she was in her 20’s and would blackout even when driving but fir a couple seconds. I’ll tell her about this.
Jim, this is so treasure info I have up to today and may I ask how often you take such anti-virus and how much of it each time to keep you without the symptoms?
I have tried lifting weights and exercise to manage the symptoms.. it worked for about 8 months until I hurt myself and came back after a month.. I recommend doing this.
Thank you Jim. I’m pretty desperate at this point. I was curious as to your prescription and dosage/ frequency. I do or should say used to get cold sores so I’m no stranger to valeted. I have a constant roar in my ear, have damaged vestibular system on my right, hearing loss and had at least 11 attacks last year and just had a severe one 2 weeks ago. I am on a diuretic and watch my salt intake. Tried lots of things. I am going for extensive allergy testing and a very comprehensive work up very soon and will be trying a new therapy involving a different med.
Hi Michelle. Typical Dosage is 3x per day of either Acyclovir 800mg, or Valacyclovir 1g. Usually for 3 weeks. I needed it a lot longer. Well into 4 months later, I was on 3x per day, but then cut down. After that, 2 per day. Then, maintenance dosage of 1 per day indefinitely. HOWEVER, I notice in my case, 1 per day is not enough. I probably need 2. Working that out now. Best of luck! I understand the desperation. Hang in there. Don't be afraid to reach out.
Hello Michelle Im asking honestly how are you living with this? I cant comprehend how can people live with this constant roaring 24 7 and plus the attacks...Im scared if that happens to me I might take my own life
Thank you for your video. I too am suffering from this disease. Mine developed after l got Covid. It's been 3 years now. The one pill that has helped me cope when I have sever attacks is Dramamine. I also have eliminated alchol and limited my sweets intake. Maybe someday they find a cure. God bless
This disease is supposed to be rare. It sure doesn’t seem like it to me. I’m just so disappointed in my life and the quality of it. I’m sure y’all can relate. What to do. I’ll try anything. So I started saying affirmations. I am stable and well. I am balanced. I am safe. I dove into the spiritual side of things and I think you’ll find more answers there than in the medical field. I also haven’t had a vaccine in over 30 yrs because I was in the healthcare field in the navy and I saw repercussions of them all around me. I would also like to say that I had labrynthitis when I was younger a few times. There’s gotta be a correlation
I have bilateral Ménière’s, was basically vertigo free because my ENT placed shunts in my ears early on. Now 36-years later started having daily vertigo attacks again. I live too far to go to my original ent, so going to another one today. Hopefully, this can be rectified. It does decrease your ability to live life like you should be able to. I also read somewhere that herpes in the ear like shingles can be a factor.
Hi Jim - thank you for sharing. Any update on how you are doing and if this is still working? I’m suffering from the same so curious if I should try this too.
Hi Jim! I hope you are well. Thank you for this very informative video. I have a question did you take prednisone and anti virals at the same time or the anti vitals on its own? Also did you have any side effects from the anti virals? My ent had prescribed valacyclovir but it says can cause possible dizziness. I was just curious if you had experienced any side effects. Thanks again so much for you video.
The doctor's nurse says my dizziness is because my stress has my BP up, but this is a VERY DIFFERENT dizzy. It pulls my body either to the left or right. No nausea, or other symptoms except that I have had tinnitus for months, and I rarely produce earwax. I am very careful to NEVER get water in my ears when washing my hair. I tried warm Hydrogen Peroxide with water, but it did nothing. Next time I'll do it straight, because I have gone way longer without even a tiny wax ball.
how often do you take the antiviral medication, and have you experienced and side effects? My ENT mentioned them but said they don't really do anything but after listening to you I think they are work trying. Also, how much are they if you don't mind sharing.
Insurance covers mine. I take daily as needed. 1g valacyclovir. It’s ridiculous that this is controversial. I don’t think it works for everybody but it’s cheap and easy to try. Your ent is ignorant and wrong but you’ll never get them to see that
You might want to check your insulin resistance/ insulinimea with your doctor. Close to 80% of patients with Ménière's disease have insulin resistance, and that might be the underlying issue. Look up Dr. Ben Bikman to learn more. Unfortunately I think I might have this condition and I'm hoping that by reversing my insulin resistance I can reverse or at least manage my episodes. Sending healing energy to all of you ✨️ 💓🙏🏽
I was thinking the same about insulin resistance . I started feeling the symptoms of menieres almost a year now and finally got officially diagnosed just last month. I’ve noticed in the past 5 months I’ve rapidly gained belly fat that has been a lot harder to get off. I know hormonally my body is probably a mess since I’m constantly dizzy and don’t sleep as well. I’m pretty certain insulinimea is just one of the shitty side effects of this hellish disease.
After many years same symptoms: but x-rays, MRI, blood and urine tests…gave up and then found a Functional Neurologist…blood tests and nose swab found I had toxic mould or gray water in my system…they created a nose spray….onward to cure my CIRS, and now following the Shoemaker protocol….one month after nose spray and towards healing now….
Bio-film covered bacteria…viral nose spray developed to eradicate it and then the VIP to repair leaky gut and remove the toxins from my system. See a Naturopathic Dr and a Functional Neurologist…
@@nargeesnazeer6296 how old are you ... and what is your condition at the moment ,, you have to avoid sodium plus check upper cervical disk on your ne need to be aligned
I had an attack in May this year and have been dizzy every day since. I have become partially deaf in my right ear and have the fullness and tinnitus. At best I feel like I'm walking the deck of a ship, at worst I lose my balance and stagger. The original attack had me at the emergency room with virtigo and vomiting. Has anyone else has the experience of constant daily dizzyness?
Constant dizzyness is not the ménieres disease. With a ménière's attack you are not able to walk because it is a spinning dizziness. Terrible. But I heard B12 can help with dizziness or Carnivore diet, search for Dr. Ken Berry
This is identical to me! Shopping centres are the worst for my dizziness too. I've got severe hearing loss in my right side. Tinnitus. I had a bad attack a few weeks ago, couldn't move, vomiting. I have alot of tension headaches from my neck, no energy, feeling weak. It's awful
@@katenewt7130 I feel your pain! I've now had two osteopathic treatments. My dizzyness has gone down to a minimum over the last three weeks. It's too soon to know if the treatment worked - (I have another coming up) - but it's worth trying. It may be that the Meniers has faded out for the time being. I don't want another attack anytime soon!
I've been diagnosed with Menier's disease for a few years now, I am 34. I feel nascious, get vertigo attacks, have been visiting two doctors and both treat Menier's with Betahistin, Hydrochlorothiazid and Cinarizin (pills, pills and pills to reduce the amount of water in my body and decrease heartbeat, even though I am not a cardiac). My MRI was negative, clean spine, no tumors, nothing, thank God. Have not been drinking, smoking, eating salt for months now. I still have the same sympthoms - feeling like standing on a boat or right-side-spinning while having pulsitile tinnitus and it is getting progressively worse which sucks. Tinnitus changes based on changing my body or head position. When I bend over, tinnitus gets more intense. And occassionaly there is sound sensitivity. I visited a physiotherapist, have been working out in the gym, getting 8-10 hours of sleep, and yet I still feel tired in the afternoon. From my blood work I have a higher level of lipids. (6'9, 290lbs.) I can see, when opening my jaw, it goes left side first then the right side, it is like half-an-inch late. My ORL doctors told me many times I need to just get used to having Menier's disease. What the hell can I do that I have not tried, yet ? PLEASE, SOMEBODY HELP ME
Ow that sounds really bad man, I hope you will find some remedy that will help... Have you looked upon intercranial hypertension? That can cause the hydrops and is also associated with pulsatile tinnitus and the things you have mentioned. Do you also experience that the symptoms kind of fade during the day and then come back at night?
Think about migraines as a trigger. Migraines come in many forms. Visit a neurologist and see if you perhaps should try a migraine prevention prescription.
Hey Jim by any chance do you feel crackling in your inner ear when you swalllow or even open your mouth really wide? My ENT recently diagnosed me with some sort of menieres disease as well. Trying to figure this out
Kinda. I always had the ability to open my ears (for instance to relieve pressure from airplanes or scuba diving.) So, I have always been able to hear things working in there. Hope you find some relief!
Sounds like your C1/C2 neck are out of alignment. It’s the tiny bone behind your jaw which can press against the brain stem and cause fluid build up, aka Ménière’s syndrome
@@1Love772 I had stumbled upon some research in my findings as to what causes Ménière’s. I was lucky enough to get an appointment with an upper cervical specialist who determined that was the cause. You can actually RUclips a video of me receiving my treatment here on RUclips. Search doctor Suh, Ménière’s disease. I’m the guy with the tattoos and mustache.
My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on RUclips and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus
Hi Jim, I just recently got diagnosed with menieres after a year of symptoms. Currently seeing a specialist that has me on betahistine but have had lots of ups and downs. I’m interested in antivirals. How’s it going for you? Getting desperate.
3 years now. Have not had another attack. 1g valcyclovir or 800 mg acyclovir 1-3 times/day. Be prepared to fight for this and find a doctor who will prescribe it.
pretty similar story. But my ENT (heads of the department at Stanford), came up with the same info. I actually had shingles (localized on my hip, so not on my face/head), prior to my attacks. They felt that maybe I did have an antifungal infection in my inner ear, or in the area where it's a closed system. I was only on that medication for 45 days or something, plus my shingles vaccinations. Hearing loss is prevalent, in fact I lost 67% hearing in my right ear, in a 6 month time frame. I'm not on any antibiotics or antifungal now, so not sure if you are continuing to take them, but that would be interesting to know. I'm also not minears positive, but it very well could be A typical meniere's, I can tell you that my attacks moved from right to left horizontal, to vertical attacks, where the floor seemed to drop from from under me after the antifungal treatments. currently attacks seem to be seasonal now, Nov-Mar, but they are lessening... Recent discussions from a German doctor seems to be that they are having success treating your blood to help with meniere's (cell treatments), hopefully I can get some more information from them, but since I'm not a celebrity or a billionaire, I may not have any luck.
The sea sickness pills Bonine-with meclizine as active ingredient, helps a lot. It’s inexpensive and available without a prescription. It does make me sleepy tho. I was diagnosed many years ago-early 1990s. That’s what was regularly used then.
I got Menerier's Diease July 12 of 2012 .It was horrible just came on really quick .My doctor sent me to Physical Therapy to bounce the crystals back into place the next day I woke up falling down and throwing up this was the start of Menerier's..I lost my job because I couldn't drive for 5 years..I had a Labythithtomy back in 2014 and the dizziness went away .Now I have Menerier's in my left ear and I don't know what's going to happen..The doctor has given me a cortisone shot and see what happens
1g per day if you use valcyclovir and 800mg with acyclovir. as much as 3x the dosage at first. You take the antivirals until you no longer have symptoms. So, perhaps indefinitely.
@JimintheGym , Is the JOH vitamin contains antivirals? Or the JOH vitamin therapy is only a webpage where you readed about antiviral treatment for meniere? Should i try this JOH vitamin or only antivirals for meniere disease? And what type of antivirals?
I’ve been having these symptoms ever since my 2nd dose of Pfizer. 28 years of age never had any issues before hand was healthy no medical issues, no meds nothing. Now im diagnosed with MD, have been trying everything, drs can’t seem to help, prescribing me betahisamine, makes me feel worse. Just been taking vitamins & trying to minimise salt & sugar but it’s been hard. Having these symptoms daily for the last 8 months. Seeing a neuogolist next month been waiting for ages to be seen!. Im hoping can get some help because these symptoms are bad !!! Don’t wish upon anyone. If you can give me some name of the meds you got given or vitamins ect ? Would be helpful Ma y thanks
Check the video description for links to a list of the vitamins. and again: antivirals worked for me. 1000mg or valcyclovir or 800mg of acyclovir, 3x per day, seem to be the common dosages. Hang in there. I know this is hard. Come back if you need support.
@@JS-lr8nj thanks for getting back to me I appreciate it. I already spoke to my dr about giving antivirals ago, think she isn’t really sure about it. So it will be hard to find someone to be able to prescribe these meds for this. Did you try taking any other meds to help with the dizziness/ off balance? I was prescribed betahistamine for MD but it doesn’t fully knock out the symptoms. I was having bad migraines taking them as well. So I’ve stopped and just been trying to change my diet Taking: Vit D Zinc L-lysine B12 Monolaurin Vit c I’ve felt minimal improve over taking the supps/ vits but it’s just taking so longggg. Willing to try anything to get back to normal, as I am a mum as well so it’s been challenging to be strong for him and the family as well as myself during this time.
Something to look into is having your C1 atlas looked and corrected by a certified upper cervical chiropractor (don't worry they are very gentle) it helped me out a ton I did NUCCA method.
@@wesporter2176 thank you I will look into it and see if the chiropractor can help in any way possible. It has improved the dizziness over time so hoping it will get better !
Prochlorperazine (Stemetil) is quite effective in preventing episodes- bit surprised that this was not prescribed. Although, ENT specialists do not recommend it for the long term. The vaccine lowers immune response, as well as causing clotting- according to studies. Perhaps it might be worthwhile getting your lymphocyte & d-dimer levels checked. Lowering the immune response can lead to emergence of latent viruses appearing (ie-EBV, CMV, HV6 etc...). EBV is implicated in affecting hearing. Acyclovir, Ganciclovir, and Valacyclovir seem to show some efficacy against the herpes family of viruses. Also cleaning up the gut is important. Perhaps try a functional medical doctor- as most of our immunity is in the gut.
there's a link to the paper that explains it in the description. But you'll have to find a source to order them from. I use Vitacost for some of them. Best of luck.
I have Meniere's for the past 4 years or so. I had steroid shots in my ear drum that didn't really help. What I have done to control it is eliminated all sugar, grains & processed foods from my diet. I eat only animal protein, some low carb veggies and very little low sugar fruit. I did take an antiviral medication during the height of C0VID, but not taking now. My disease seems to be in remission with the best results coming from a change in my diet. I don't limit salt & do drink electrolytes daily. Of course, good sleep & daily exercise all add to the mix of feeling better once you have the symptoms under control. Again, thanks for sharing. 👍😊💜
What have you been eating
That is great!! I think I have it.. I would like to hear about carnivore and meniers
@jekim3 Ineat a carnivore diet and i know it would have helped my Meniere's. It keeps it from recurring in my other ear.
I have had menieres all my life, and now I'm sick and tired of it! It is debilitating and just interferes with my whole life. When I'm having an attack, I can't do anything. The attacks come on suddenly and without warning and are most of the time very, very strong. I have over the years developed strategies for coping but I'm not now looking to cope, I want to find a cure. The internet has helped tremendously. Over the years, I have had doctors tell me I'm faking, they've told me there is no such disease, I'm crazy. Thank God, medicine has finally acknowledged its existence, and that there are others out there who are going through the same awful thing
I was diagnosed with Menieres Disease 8 years ago. The first few weeks was horrible. I told the doctor I thought I had a brain tumor. My family doctor sent me to an ENT. He started me on steroids, low dosage of Valium, allergy tests. I've been on allergy shots now for 7 years, low sodium diet. I can feel it coming on. My head is a barometer. There are several things I do to try to keep myself going. It's a terrible disease.
It is a horrible disease. I was just recently diagnose. Diuretics are offering little relief if any. My entire personality had changed because i can't here people talk normally and many sounds and voices are so irritating to listen to. The depression
this has caused is overwhelming. I feel hopeless.
I have it. It is horrible. I get bad attacks during any weather changes. Low sodium & low dose benzodiazepines at night. It helps. I get very ear fullness, anxious, sweat profusely, depressed, pain, hear weird sounds, even noxious smells, drop spells, nausea, nystagmus, brain fog, & vertigo. I have 2-3 a month.
Hi Jim, I was diagnosed a few months ago. My first episode, I thought I was dying. It lasted 30 ish hours. After I was diagnosed I started to research it. My findings led me to Epstien Barr Virus family. Also belonging was shingles n cold sore viruses. I started to triple my daily amount of L lysine 1000 mg. This keeps it in check for me.
Try doing an hour in the gym every second day. It worked for me until I stopped..hard exercise gives your body something else to worry about ..
@@gretchenhughes9652 i feel diziness during any weather changes too but maby it is due to neck musles press on arteries and the blood which reach the brain is less and cause the problem as i discussed with my doctors ,keep that in mind too
Thank you for sharing your story. This really helps me try to understand this disease 🙏🏾👍
Jim, happy to see you are doing better. The health care system in our country can be a difficult and sad thing to go theough. From my experience half the time the Primary Care Physician will not listen or take your worries seriously and then when they do it takes months to see a specialist. In the meantime you are just left suffering and fending for yourself. There seems to be no sense of urgency. I wonder if these doctors would be so slow to get things done if it was them in the hot seat. Just rambling here, going through some medical issues here and frustrated with our health care system. Anyways glad to see you are doing better.
This is the most accurate testimony and description. From thinking it might be a stroke. To feeling hung over after the episode. People think im drunk or hung over. Especially at work. When i have to call in or go home early.
Please do a follow up to let us know how things are with you...
We appreciate you ✌️♥️🙏
things are good. no attacks since this video. the antivirals have worked for me.
@@JS-lr8njhow it feels to have an attack
Thank you! I had never read about antivirals. I will start learning about the subject because lately I have been losing hearing and having severe tinnitus, but without dizziness or vertigo, fortunately. Most doctors here in Spain only recommend taking corticosteroids, antihistamines, and betahistine. It seems that we have to learn for ourselves. Thank you very much again!
You antivirals drugs or not ?
Now hearing loss recovery or not please tell us in detail brother .
I’ve had menieres for over 6 years. I’ve seen every ear nose and throat doctor in the Pittsburgh area. MRI’s, hearing tests, crystals tested you name it I’ve done it. Had one doctor ask me if I felt depressed. I wanted to literally beat him to death. “You won’t die from it, but you wouldn’t mind if you did!” Is the truest statement ever. I’m so happy I found your video! At least it’s something I can try, cause the doctors sure aren’t helping! My nausea is so violent at times I gave myself a hernia.
So sorry to hear it. Hope you find some relief, soon.
Hi. I also suffered terribly for a couple of years and after trying absolutely everything, my ENT finally resorted to Gentamicin drops in my right ear. Even though it totally killed my hearing in the affected ear……it completely stopped the almost daily attacks. It changed my life. I hope you find a solution to this utterly horrendous disease.
regular ENTs do not have the knowledge to treat meniere;s. it is hard to find a doctor that specializes in meniere's. do yourself a favor and seek an expert. you may have to travel, but it is worth it.
Good to see you again! Prayers for you! Stay strong Jim!
Thanks man!
The symptoms are isolating, friends don’t understand or care to UNDERSTAND, either. I have constant ringing in my ear/ears, dizziness, off-balance, and weakness quite often, toooooo. ALLLLL THESE SYMPTOMS CAUSE DEPRESSION AND YOU DON’T want to be involved in ANYTHING, either.🤪😜😝😫😩🥺😦😯😧😮😲🙄🥴
It’s very isolating. 😢
I highly recommend trying this, Dramamine the motion sickness drug which active ingredient is Dimenhydrinate 50mg. You can get it at W mart for low cost. It is a life changer. B complex and D3 with K2 vitamins help reduce dizziness. Low salt and sugar, lower caffeine intake and good sleep habits. I take Cortexi for tinnitus and it cuts the ringing to about half as much. Lmk if this helps out. Good luck.🤞🏻👌🏻
@@rheaa1400please read the replies on here to find out what has helped me out tremendously. Any questions. Lmk.
Jim I have meniers and I take a water pill and only when needed but I promise you it changed my life. 30 years of this and 6 months ago I was diagnosed. Remove salt and caffeine and it’s amazing. I had so much pain with fluid and mass pressure in one ear with hearing loss. Good luck my friend.
Hello, how many months or years you are suffering in menieres? How's your hearing ability? Can you tell me pleasee
I've tried the low sodium, no caffeine and it did absolutely nothing for me. I went so low sodium my fingers cramped. for whatever reason, this didn't work for me.
Good to know/. I think I saved myself from going to a walk in clinic and a 3 hour wait around other sick people/ thanks water pills/ do they make you pee more? I'd do anything to kill the headaches and ear pain/ dam coffee huh? well at least there is still wine🍷/ I don't even use salt thankfully
I’ve had Meniers disease since I was 17….. at first the doc didn’t want to believe I had Meniers because he thought I was too young. Its so crippling and life altering. I get severe attacks where I turn completely pale like a ghost, I get super hot and sweat buckets. The room spins and I vomit profusely. The only thing I can do is sleep. When I wake up I feel like shit, I have attacks all the time. It’s gotten so bad where it’s caused me to have anxiety attacks. I don’t even like to go anywhere anymore because I’m always thinking I’m gonna have an attack. I would do anything to get rid of it.
@@TarnishedtheGOAT I bought a rowing machine(from Amazon cheap as dirt) I row with my eyes closed because I need enough exercise then I don't suffer as bad if I give into lethagic tendenacies //
sucks I know but rowing in the dark or eyes closed has given me some joy too. If you can get your hands on Dristan sinus tabs take 1/2 of one for a full day of relief/no longer available in Canada as Americans are afraid they won't get enough meds for themselves.... since Covid we have half empty shelves drugs trickle into Canada now we know what it's like to be third world
I am a 20 yr sufferer and this story is spot on! I went to 8 Ents and I have learned more from the internet.I had the injections into my inter ear, They claim that it will burn out in 5 to 8 years. From support groups and you tube your brain adjusts to the good ear, A hearing aid is immense help, even with balance, make sure that your crystals are where they belong too.
How's your hearing ability? What about your balance when walking?
What kind of injections you took is it gentamecin?
Finally a solution to the problem
this is a very rare disease. on;y 0.2% of people have it. it is very hard to find a doctor that specializes in meniere's disease. regular ENTs don't have the knowledge to treat meniere;s disease.
Jim I followed your channel when you first got your titan rack. Ive checked a couple times over the years to see if you returned. I saw this new video and was very excited. I was real sorry to see what you have gone through. Keep us updated how everything goes.
will do. thanks for checking in.
Jim, Thank you for sharing your journey. My husband has all the symptoms and he started JOH protocol today. We are so grateful for the information you shared. God Bless You, The Garcias
I hope it works. Also, don't forget to talk to a doctor about either an Acyclovir or Valacyclovir prescription if you can get it. That's going to work a lot faster.
Any improvement from JOH?
Hows he feeling?
Did this help at all?
My first attack was sudden and without warning when the room suddenly span round and I found myself on the floor with sudden acute nausea and cold sweating. Like you I called for an ambulance because I had no idea what was happening to me. At the hospital the nausea abated and I began to return to normal. The whole episode lasted about 2 hours. When I asked what they thought was wrong they said it could be a variety of things and suggested it might be de-hydration. I started to increase my fluid intake and thought it was the answer until I had an identical attack 3 months later and a further attack after another 2 weeks. By now I was looking for a solution on the internet when I came across Meniere's which described my symptoms perfectly. I mentioned it to my doctor who agreed it sounded the most likely cause. I was prescribed Betahistine which i now take daily. It has now been 3 years since I had my last attack. I haven't had any problem taking the medication. Thankyou for your video.
Thank you, I'll talk to my doctor and mention that medication. These attacks are so debilitating and it's really difficult to deal with. 😢
How about being drowsy after taking betahistine ? doctor has prescribed me anyihistamine but i m just scared and not sure about takinh it i dont wan to atay drwiay whole day i have hot two little kids .
@@WeAreAFamily4Betahistine also works for me. Don't be afraid to try it. It is best taken with meals.
How many mg of Betahistine do you per day? Did you experience any hearing loss/weakness? Were u able to restore it?
@@HKT-b6x in my case, my doctor prescribed 16mg every 12 hours. I don't feel any side effects.
They’d lose money if they found a solution to an ailment. Thanks for sharing your journey and finding.
exactly. The healthcare system is similar to that of the judicial system in that doctors are not educated to "cure", but educated to "maintain" the disorder in-order to continue the revolving door effect of patients coming/going to hospitals. The system is in it for the $$$.
@@peterandkodiak9762 Sad but true :/ I really believe there is already a cure for Cancer out there and HIV/Aids, but its only given to those that are super wealthy.
Example: Magic Johnson
Thank you Jim, for sharing your story! I have been to 2 Brain docs, 3 ENT specialist, I go to PT 2ce a week for the vertigo excersises, that really does not help. and only recently A doc at UT SouthWestern here in Dallas said he thinks I may have Menieres Disease. I go for more Testing tomorrow 3 different test. I have had this severe vertigo with throwing up and it can last up to 4-6 hours for about 9 months.
It Really Sucks! As you said, they come out of nowhere. Scary! Hearing your story sounds like exactly what I am suffering from.
The J.O.H supplaments along with the antivirals sounds like a good try for me . Thank you again for sharring your story and providing the links. I gave you a thumbs up and also will Subscribe.
Blessings for us all that suffer from this for a much better 2023.
mark
Thanks for sharing your experience. I hope you find relief soon!!!
Just an update after taking the antivirals for one week, I’m starting to feel so much better and relief.
Thank you so much for your helpful information. I am going to physical therapy now once a week opposed to twice a week for vertigo I’ve been doing certain test. Much better.
I did have more extreme test done at the hospital with a with goggles they put on you and then put you in a small vertical tube while you sit in a chair in total darkness. For those of you, that are a little claustrophobic, no need to worry because it’s like sitting in the dark with your eyes closed you don’t feel much. They do rotate the chair very slowly both ways to see if you have minor symptoms of vertigo, but nothing to be alarmed about. A little lightheadedness but no vertigo. Then there were other various tests they did with goggles and monitoring. Very light symptoms if any. The one thing that did cause vertigo was when they did the cool air in your ears. My right ear had a little bit of vert but it only last a few seconds. A little more extreme in my left ear and lasted a bit longer , maybe 10 seconds. The warm air in the ear was much more intense in my right ear and way intense in my left ear that lasted for about five minutes then it finally went away.
Making progress. For those of you, that may have to go through this test, just know you are in a safe facility that people are experiencing and trained to deal with your vertigo and if it happens, they can help you right away. I was dealing with extreme vertigo drops and throwing up.
Thank you so much for taking the time to share your video Jim to help others like me and you dealing with this. May you be very blessed because you are certainly blessing others with your helpful information.
Thank you.👍😊
Mark
Good to see you back! Seems to be a common issue with our healthcare system. Thanks for sharing your story!
Thanks David!
Hello sir I have meniere's disease affected both year continue tinnitus unbalanced body headache vertigo I don't know what I do please suggest me what I do
@@JimintheGym ..Can you pls share the antivirals treatment and vitamins
@@oyenike5540 It's in the description. LInks there.
Ah! You finally had a full-blown Menieres attack. Much like you, I struggled with mild symptoms until I actually had covid. That's when I started having the full blown episodes for 5 or so hours. It's scary! That is what took me to my ENT. Prednisone & dietary changes helped immensely and I did regain some hearing. Finding the regimine from John of Ohio has made a big difference and I regained most of my hearing. Unfortunately, my symptoms are weather related and the barometric changes that happen in the Fall have me fighting symptoms again. But we keep going! The most important thing is not to give in and decide that you are now a home-bound shut-in destined to live in misery. JOH is definitely a big help, but mindset and the help of a good ENT when symptoms flair is important.
Good luck on your journey! Thank you for sharing your story and spreading the knowledge of JOH!
hi @user-hi8bs1so4p -- for the prednizone, are you taking that regularly -- or is that just when you have an episode?
@paul_devos the prednisone was only a short-term treatment when my symptoms were severe and the attacks were happening more often and fairly horrible. It helped immensely.
If I hadn’t watched your video I would have never known to ask my doctor for antiviral medication. It’s day 2 and I can hear for the first time after suffering for just 3 months (not years like you) post Covid/cold infections all winter. I have permanently lost some hearing in one ear after seeing the audiologist/ENT. Prednisone did nothing but make me sick, my balance/vertigo was bad to but betahistine did help. Thank you thank you thank you for your video. I hope you are continuing to have good results after a year now. I believe you saved my hearing from getting worse and I hope more doctors try this approach sooner for people.
So glad to hear it! I suspect that this won't help everyone, but if it can help a few of us, it's well worth putting out the word. So happy to hear this helped you!
Jim so Glad i ran Across your Video, THANK YOU! THANK YOU!
best of luck!
Thank you!! Triggers for me: Gluten, MSG, Sodium, Dairy, Peanuts, Soy, Caffeine, Alcohol can all be factors, Gluten and MSG, and Gluten the most. I take an over the counter motion sickness pill (Meclizine HCI 25 mg). The Anti Viral you mention is intriguing and I will try it out. I mostly do ok if I avoid Gluten. Thank you for this video!
I'm curious about diet changes as well, but the antiviral really has this under control, with no other changes necessary. I will probably try some diet changes, anyway.
What is the name of antiviral pls
@@oyenike5540 valacyclovir 1mg 3times a day or acyclovir 800 mg 3×d
Thanks for sharing your story. I have a meniere's disease too almost 12yrs now. My life is terrible 😪😪😪
I'm so sorry to hear this. I hope you're able to find a treatment that works for you.
The good thing is it disappears when you get older 40/45/50 hold on!
In the meantime change your nutrition. Go Carnivore. Dr. Ken Berry here in YT
@@susanneschauf7417 how so? I'm 46 and just got my first TERRIBLE vertigo episode. Is there still hope?
@@susanneschauf7417 , Not in my case of age. My first bad episode was when i was 60 . I stay pretty active. Now doing testing for Menieres. Same exact systems as Jims.
I am very sorry for you guys, because I know very well how it is. Recently a doctor mentioned that it could be a simple vitamin deficiency. Vit. B12 if I remember correctly (occurs only in meatvor). Daily 10,000 I.u. Vit. D3 in combination with 400 mcg Vit. K2-MK7 and magnesium I also recommend. Try it, it can't hurt. Don't believe the official intake limits. They are so low that they cannot heal.
But in any case I recommend you to change to a species-appropriate human diet. This has already cured many chronic diseases. And that is mainly meat, eggs, liver, bacon. Only whole foods with one ingredient, no label. Rock salt as much as you want.
Eat only 2x a day, no snacks. No industrially produced food. No seed oils (highly pro-inflammatory). Instead: Animal fat/lard, lots of butter, very good virgin olive oil, coconut oil.
Few or no plants: Leafy lettuces, cruciferous vegetables, very few nuts, mushrooms. No nightshade crops, no corn, no seeds!
What can you drink? Real coffee, real tea (no instant), water. Nothing else.
Highly recommended here in YT: 1. Dr. Ken Berry, 2. Dr. Chaffee.
2023 will be your healing year! Good luck and success! 🤗❤
I was diagnosed having Ménière’s at least 8 yrs ago horrible pressure, balance is off.. I’ve seen every specialist all my tests results come back normal. I don’t know what normal is anymore but whoever said if drs figure out what cures anything, they’d be bankrupt. I think drs are just practicing physicians. Aren’t we all? Just practicing and looking for any solutions to actually help? Our healthcare system makes me scream!
We need The good doctor! Remember that tv show? He actually cared about others dealing with symptoms and dire help. My 2¢
Thanks for sharing
Your story is similar to mine I have not tried the antivirals but I do the vitamins. Does not help how easily doctors just tell us to live with the disease 😞 I am older and have been with this disease for more than 16 years. To avoid the nasty vertigo episodes , what really helped me through the years , is to identify my triggers . There are two of them that are critical for me, Caffeine and MSG (monosodium glutamate used to enhance foods flavors ). However I can tolerate low levels of regular salt in food.
But something that really works for me is to excersise to a point of breaking a heavy and intense sweat. If I don't do that at least once every other week , my ear fullness returns. The way I explain this is because intense perspiration helps my body to get rid of sodium fast. My disclaimer , speak with your doctors before attempting intense excersise to sweat.
Thanks again.
makes sense!
Exercise actually brings on my menieres. I guess it's the head movement, movement in general. Once into a full blown attack, the best thing for me is to get to a nice comfortable room, I go to my bedroom, make the room as dark as I can get it, no noise, no music no television, cover my eyes with a cool damp washcloth, get into a comfortable sleeping position and try not to move and keep still as I possibly can and go to sleep. Have my medicine, soda (something bubbly and clear--Sprite, 7up, etc.) zip lock freezer bags , phone all handy on my nightstand. Then just try to sleep. But if my stomach starts bleeding because of all the throwing up, I may have to go to the ER to get help. I also have diabetes and if vomiting causes bleeding I might get too low in electrolytes and blood sugar and blood count. That has happened to me before. My blood count dropped below a safe level, and I had to have a blood transfusion. They also irrigated my stomach to stop the bleeding because bleeding causes even more vomiting, If that starts up I usually don't try to control it by myself anymore, but go to the ER. If the blood count gets too low, it could means lights out! It all happens pretty fast, so stay on top of it to keep it from becoming a big ordeal. Sorry, I didn't mean to write a book or give you my life history. Just trying to help someone who is experiencing the same things I do, and sharing useful information that I have learned from years of experience. Hopefully someday this will all just be a bad nightmare. Good luck.
I was pretty sure that I had meneres because of my dizziness and lose of hearing in my left ear. I talked to an ENT at Toyonaka city hospital in Osaka Japan He ran tests and informed me it wasn't meneres. He said that due to my age it's possible to have dizzy spells. He gave me a list of exercises and wished me well. I think he missed diagnosed me. I see my family doctor next week and will ask him for the antivirals and see if my constant dizziness goes away. I want to thank you so much for your help and teaching.
Kind wishes,
Edward in Osaka Japan
BTW I've never had vomiting attaches.
For what it's worth, I agree with you that it was a lazy diagnosis. I have had terrible luck with ENTs.
@@edwardlove4300 he said it was due to your age...how old are u please?
I been going through this for a year it's so hard I'm on medication that doesn't seem to work I eat so healthy I can barely make it to work some days I can't get our of bed I have attack every day almost I been so depressed just listening to your story gives me a lil hope but it's hard
So sorry to hear what you are going through. It may be hard to find a doc to prescribe antivirals but i think it’s worth a try.
I’ll pray for you ❤
Try doing an hour in the gym every second day. It worked for me until I stopped..hard exercise gives your body something else to worry about ..
Im not sure if i have Meniers but......I get similar issues with any type of energy drink, caffeine pill or pre workout. Funny thing is coffee help reverse the problem ( its a diuretic ) Also anti viral foods like garlic, onion, oregano, cayenne will help drain the sinus and ear areas. Eating tons of fruits, and veggies, and removing all processed junk will help detox the body and heal. Hope this helps somebody
Thank you.. anything fresh and natural !
But they are saying not to drink coffee ..please tell me..I am having this .I can't let go of my coffee
@@nrevathy91 I think coffee helps the issues, but other forms of caffeine are bad. Everyone is different so try different things and see what helps. For example, i don't eat or drink dairy products because they create excess mucous in the sinus / throat area. That could clog things up and cause allergies or other issues since the sinus is connected to the ears. Black coffee seems to be a great natural anti histamine and clears out the junk in the head/ sinus area for me, just don't add dairy or sugar. Also using a netti pot to flush things out will speed up the process may help. Do you consume dairy or milk?
I have had Meniere's for about 10 years and after the first 3 years which were really bad. I had regular periods of Vertigo, throwing up violently, no balance and hearing loss - gradually. Then it slowly went away for about 5 years with just the tinnitus and the gradually getting worse hearing loss in one ear. About 18 months ago it came back with a vengeance. Vertigo, lack of balance, nausea and total hearing loss in my left ear. I went for head adjustments in case it was not Meniere's this time and balance therapy, which helped a little, but I started back on the Methazolamide tablets that my doctor gave me 10 years ago when this first started which is a diuretic and it has calmed right down again except for feeling a little off balance now and then. I also obtained some Betahistine which is not available in the US, but used in Europe and other areas of the world to treat Meniere's. If it gets bad again I will switch to this from the Methazolamide, which I take daily. The one thing that I do know is that once you get this disease it will abate, it will change in intensity and types of events, but it will never seem to end.
Thank you for your sincere suggestions. I appreciate listening to your sharing of the Meniere's Disease dilemma you are suffering through. You are also telling my story. A+
Best of luck to you. Antivirals worked for me. I hope you find something that works for you.
@@JS-lr8nj Thank you. Your video is very heartfelt. Upon your suggestion, I will try antivirals like acyclovir.
@@peterandkodiak9762 you could also try lysine and follow John of Ohio protocol
@@michaels999 Thank you. Very much appreciate your response. Best Regards to you.
Thank you for sharing. I had exactly the same experience after the C shot. Woke up without balance, migraines lasting for months, brain fog and ear pressure. I have been like this for the last 3 months making my life miserable. God bless you for sharing this information, I will try the vitamins and minerals mentioned in the pdf file ❤
If you can, get a doc to prescribe 1g valcyclovir or 800mg acyclovir (valcyclovir if your insurance covers it), 3x a day and then taper off of it. I'm on a maintenance dose. that's what basically cured me in 2 days.
Yes. My tinnitus started after the Covid vaccine.
Same here..
I’ve dealt with Meniere’s for over 6 years now. During that time I have gone as long as 3 and a half years without an attack, and last fall they happened ever two to three days. I have been told of two different treatments. One is an injection of gentamicin in the ear which is supposed to be 90-95% effective at stopping the vertigo, but does have a significant chance of increased hearing loss. The other is an outpatient surgical procedure called Endolymphatic sac reduction. It is supposed to be 70-75% effective. I am scheduled for the procedure in April.
How did the surgery go?
How’d the surgery go?
How did the surgery go, may I ask?
Isn't gentamicin used for eliminating ear function completely? Did your hearing get any better after taking it? Curious. Please reply.😊
This was my experience exactly. Went to bed Saturday night normal hearing. Woke up Sunday morning and my left ear was so muffled and I thought it was ear wax buildup. Went to my ENT had an MRI and the doc said it was probably Meniere's disease and cut down on the sodium. He said there was nothing wrong structurally just a fluid buildup that causes the fullness and no way to relieve it. When people talk everything in that ear sounds like a buzzing bee talking. Sometimes it feels full and sometimes not so much. There are times my hearing starts improving and I get optimistic and then it goes back to muffled again. Fortunately there was no vertigo or tinnitus. Just impaired hearing. As a guitarist it is depressing.
Did they give you cortisone? If not go to the doc and get a scrip right away!
Shorty after your covid shot, fancy that.
My flatmate relapsed with her auto immune disease shortly after her covid shot.
I did try warn her not to get the shoot but her ex put pressure on her.
I was surprised so many were so trusting and willingly got the shot.
Yes me too! Very common re the uknowwhat, reason why I didn't get it.. heaps of pots too and tinnitus..
My ENT is in the top 3 in the country. I was very Blessed to have him ..I was doing studies for 4 years and they were finding it in truck drivers. They really dont know how you get this ..
does he specialize in meniere;s disease?
Thanks for this video! I am on the same merry-go-round. I did get onto the steroids early, because I did lots of research and pushed the doctor to prescribe them. I’ve been on and off the steroids for nearly nine months now. My hearing comes back, I go off the steroids then I get dizziness. There are tablets for meniere’s here in Australia (Betahistine?) but my ENT says I don’t have meniere’s, maybe just cochlear hydrops so he didn’t prescribe anything but steroids. I had an MRI which supposedly ruled out an acoustic neuroma (tumour).
Since you’ve mentioned anti-virals, I thought I’d mention that Vitamin C is actually a NATURAL anti-viral, and can be taken in high doses. Think I’ll give that a try today as I’m lying on the bed after another horrible attack of dizziness.
Hi I'm in Australia too and taking betahistine. I've recently come across DTR therapy in the US and hoping for something like that here! There's an entire playlist on RUclips with patients with ménière's, having this treatment done.
Bless you it is a horrible disease,I was diagnosed in 2011.Changedmy life profoundly but I try to watch my diet,low salt only drink redbush tea and I definitely notice lack of sleep and stress makes it worse.Ginger in any form is extremely helpful.Good luck
What did the steroids helps you with?I just got the prescription and I forgot to ask dr
Interesting, thanks for sharing your experience. I’ve had a similar experience but attacks every few months. That’s hard enough. I’m seeing this 2 years after you posted it, and I’m curious how you are doing now.
No attacks since going on antivirals
I was diagnosed with MD about 6 years ago. I was put on Beta histamine to which I am intolerant..I was about 4 years without treatment and I was a shadow of myself.
I now have a new ENT and he put ne on acetazolamide. I feel almost normal again. I still have attacks but less frequently..He also prescribed me potassiun to replenish loss of electrolytes from the medication. I have also heard that vit b1 helps with tinnitus.
Thankyou for taking the time to share you're experience with us. 💜
I got rid of mine for 6 years doing oregano oil in nose and orally, as well as parasmart parasite cleanse and four day fast. I was just like you horrible. Started mild couple times year 20 years ago to everyday.
Wow that sounds like possible Lyme disease or coinfections from it, did they test for it? I had it early 2000's took years to get better it's back again. I have chronic Lyme disease, it comes with parasitic infections they use oregano oil to treat along with many other things to get rid of parasites. This is good to know! Horrible disease yes.
My rheumatologist years a go told me go into an Anti inflamatory diet, lukewarm water om an empty stomach, grounding, deep breathing, bit D3, complex B, K2, potassium, magnesium, Zinc, natural vitamina C, stretching, deep breathing; for My fibromialgia and boy no vertigo!! No migraines, no pain, no stomach issues.
It's important to know when your vertigo is from TMJ, cervical issues, vagus Nerve, positional, etc.
Important to loose weight, sleep early, dinner light. Good posture.
Hi Jim, thanks for your video, I have suffered with Meniere's. Having read a book with advice I started taking Tumeric with black pepper, I have not had a problem for over two years now. I beleive it does not work with everyone, I hope maybe this might help some sufferers, Cheers.
Can u please write more broadly please🙏🏼
Mine started with a severe allergic reaction to mold. I sneeze so violently that I grenaded my inner ear, which cause meniere’s symptoms but with 100% hearing loss but constant tinnitus and slight imbalance problems.
Low sodium and diuretics only made it worse. Staying fully hydrated helps more than anything I’ve tried. Don’t think antivirals will help with destroyed inner ear. Pilots and deep divers have also suffered from mechanically destruction of the inner ear. Too many doctors may miss this as a cause
Get well soon! Love the channel! God bless.
Wow, thanks Michael!
Hope you’re doing well brother
Doing much better. It's under control, now. So, fingers crossed. Thanks man!
Yes I have the exact same thing, the antivirals stopped the attacks for 4 months. When I went off them the started coming back after a couple months. Low sodium was not reliable but low-histamine diets really made a huge difference for me and you can eat more normally. Also taking anti-histamines helps. Now I am taking motion sickness meds like dramamine and they really help as well I am of the antiviral and just doing those and have it under control for about a month so we will see. Thanks for posting this. Good Luck!
sorry to hear you're going through it. I hope you're able to keep it under control.
Thanks for the video. I have been diagnosed with meniere’s since 2014. I was having severe attacks weekly that would last 18 to 24 hours at a time. The day after I felt like I had a hangover. My primary care sent me to a ent doctor and he first prescribed me diuretics and and that didn’t seem to help a lot. So my ent did a surgery and put a shunt in my ear to drain it. That surgery greatly reduced the frequency of attacks and duration. I still take lasix to try to keep the fluid off that ear. But my doctor has to keep a close eye on my potassium because of the long term diuretic, low potassium can be a life threat. I have had a couple of er trips for that. Initially my ent wanted me to do a low sodium diet,so I tried it for a few months and it made me feel terrible and I couldn’t tell it helped my menieres at all. I read a study since then that said some menieres is affected by sodium and some are not. I think stress is my number one trigger. When I say stress I mean mental and physical (like being really tired,sick,allergies ). For the last few years I have only had a couple of attacks a year, but recently I have had a little more trouble with it. I just want to say thanks again for the video I hadn’t heard of antivirals being used for treatment. I am going to run that by my doctor
Good luck! It's sometimes hard to find a doctor willing to treat it. I go in loaded for bear.
I hope you continue to do well. Thanks for the info on the shunt. Antivirals have worked for me for a year, now, but who knows what the future holds.
The description has some links to various things related to using antivirals.
Cheers!
Pls what is the name of antiviral and vitamins
@@oyenike5540 see notes at beginning - Acyclovir or Valtrex
Hey Jim, I feel your misery. I too have Vertigo, but I really think it's Meniere's as my Great-Aunt had it and it is genetic supposedly. I've seen a Neurologist and she prescribed Meclizine. All I think it does is lessen the chance of vomiting (sometimes). This disease is life altering for sure. I have had hearing loss in my right ear for decades and I'm quite deaf in the right ear now with tinnitus. My left ear is declining now. I'm 70 years old. I've been sick with this since last fall Sept/Oct 2021. I saw my ENT and he sent me to another one of his offices to have an ENG test. I show up for the test and they said I was not in the computer as having an appointment. Two ENT offices were merging practices apparently and I got deleted. I was relieved because I was terrified of the test making me nauseous. I fired that place. I haven't yet moved on finding another ENT. Last night I was watching a RUclipsr "For Beautiful Smiles" who is a dentist and he located in Oregon. The patient (a man) made the trip from Houston and his story is very good. This dentist has patients who were cured of Meniere's (maybe not permanently) by treating them with the therapy he uses for people with TMJ. It's called a DTR test. The patients felt a significant change after the first treatment. Subsequent visits continued to help this man. The Dentist's name is Ben Sutter. I left a message for him in the comments if he knew of a dentist he could recommend in my area (Long Island). When I see my daughter-in-law I'm going to ask her about this because she's a dental hygienist. I wish you all the luck in the world. I'm really hoping that President Trump and Military will release the miracle working Med Beds to the public. There are different ones for different problems. This is technology that has been kept secret from we the people and only used for the Elite of this world. It cures practically everything. They even can regrow limbs.
if this ever stops working, I'll look into that tmj treatment.
The other thing I'm curious about is that Dana White from the UFC flew to Germany and got some sort of stem cells injected into his ear (i may have gotten that wrong, but that's what I think it was.) He claims that after 2 treatments, he was cured.
The problem is, of course, that means 2 flights to Germany, but that's another thing I will try if this ever stops working.
I hope you find relief. Stay in touch!
@@JS-lr8nj hi did you find out which place he went to for the treatment?
@@JS-lr8nj i just saw Danas video about biengranada cured with some type of blood injection. Sounds expensive though ☹️. I suffered from this for a long time. Now i feel like I’m getting anxiety panic attacks from this🥺
@@ASDonohoe i just saw his video and he won’t say the name, but he said you have to get referred by someone( and he meant famous people ☹️) to get in the place. I wish we could get this kind of treatment 🙏
@@ev8560 its called Orthokine and about €6000 a pop. Apparently its not permanent and wanes after 1 to 2 years
Started taking the anti virals yesterday and they seem to be helping the blocked ear cleared and the tinnitis stopped roaring and is a lot quieter, feeling a lot better. Hope I keep improving
that's awesome!!!! Give it a few days. But you will probably continue to notice a difference this first week! Keep us posted!
Hey bud, how you feeling? still making a difference?
Can u buy anti Virals online
@@paul32596 Not sure I was in Thailand when I started to take them so i could buy at pharmacy
Anyways? How are you? Did it improve?
I joined a group for menieres on Facebook. People are very helpful on sharing their personal experiences. A decent amount recommended psychical therapy for vertigo. My ENT was being a pain in the ass saying he doesnt think that will work but he will give the referral. I denied a medication called nortriptyline after reading the side effects.
I should be starting the PT for vertigo next week 🤞
How's that going?
I’ve been low sodium for 3 years now. Yes, I have to make all my own food, but it is possible. I am interested in trying antivirals. Thank you, my last episode, I do think I was having a tiny cold sore on my mouth.
best of luck
FYI - Just the other day I saw a video mentioning how there is a history of using niacin and thiamin for Menier's. The niacin probably has to be the "flush" kind, not the "no flush" kind.
interesting. I have some flush niacin and have taken it in the past. It felt like it lit my body on fire. haha!
I e been suffering bi-lateral Menieres since 2006. I tried the vitamin regimen with no luck. I suffer so much sometimes I wish....
My hearing is almost completely destroyed. I can't hear my wife, can't hear my children, and can't hear my grand children. Im doing research for hearing aids now, but can't afford them. If I'm being honest, I hate my life most days.
I'm so sorry to hear that. There's an experimental treatment n Germany that Dana White from UFC did, but I bet it's outrageously expensive.
i'm so sorry. I hope something improves for you.
@@JS-lr8nj SP1005 is a new drug they are starting a study with that may offer help. I pray the study is effective and FDA approved.
@@JS-lr8nj well, had an appt yesterday to try the anti virals. My right ear has severe hearing loss and very poor word recognition. My left ear is still aidable. Woke up with vertigo today and puked for a few hours before falling asleep. I pray these antivirals work.
I'm sending you the most positive energy for a cure. ❤
Thank you for sharing this Jim. Many of things that you said really resonated with me. I will bring the concept of antivirals up with my doctors. I'm currently scheduled for an Endolymphatic Sac Decompression surgery but they can't do it until November so I have to find a way to live with it for 3 months as the last 2 weeks for me have been hell as I've had more bouts of vertigo/dizziness than the previous 18 years of being diagnosed with meniere's disease. I'm hoping it helps stabilize my hearing loss that has occured over the last 2 years also.
best of luck!!!
Meclizine and Advil help me immensely and also, I have to carefully avoid Gluten
What is the cost of endolymphatic sac decompression.
@@texuztweety ibuprofen usually causes ringing in the ear and vertigo
Hello Tom. Did you have your surgery? Did it relieve your problems?
Thank you for sharing your experience and treatment!
Glad to do it. Hope all is well.
I can not even get the diagnosis so I am trying everything. thank you.
I think is worthy of a try. Thank you Jim! I also saw some chiropractors that can make it feel better too..
I think chiropractors are about as likely to help you as astrology and for the same reason.
Daughter had it for 36 years. She suffered and gotten used to the ringing in ears and dizziness. She started taking B1 but has to take with B3. No response on how it worked with fluid in her middle ears. But when she was in her 20’s and would blackout even when driving but fir a couple seconds. I’ll tell her about this.
Jim, this is so treasure info I have up to today and may I ask how often you take such anti-virus and how much of it each time to keep you without the symptoms?
1000mg valacyclovir daily. Cheers!
@@JS-lr8nj thank you so much for you information, that's a good reference.
@@JS-lr8nj may I ask if it gives you any side effect since you take it daily?
I have tried lifting weights and exercise to manage the symptoms.. it worked for about 8 months until I hurt myself and came back after a month.. I recommend doing this.
Thank you Jim. I’m pretty desperate at this point. I was curious as to your prescription and dosage/ frequency. I do or should say used to get cold sores so I’m no stranger to valeted. I have a constant roar in my ear, have damaged vestibular system on my right, hearing loss and had at least 11 attacks last year and just had a severe one 2 weeks ago. I am on a diuretic and watch my salt intake. Tried lots of things. I am going for extensive allergy testing and a very comprehensive work up very soon and will be trying a new therapy involving a different med.
Hi Michelle. Typical Dosage is 3x per day of either Acyclovir 800mg, or Valacyclovir 1g. Usually for 3 weeks. I needed it a lot longer. Well into 4 months later, I was on 3x per day, but then cut down.
After that, 2 per day.
Then, maintenance dosage of 1 per day indefinitely. HOWEVER, I notice in my case, 1 per day is not enough. I probably need 2. Working that out now.
Best of luck!
I understand the desperation. Hang in there. Don't be afraid to reach out.
Hello Michelle Im asking honestly how are you living with this? I cant comprehend how can people live with this constant roaring 24 7 and plus the attacks...Im scared if that happens to me I might take my own life
Antihistamines work best. Was in hospital 2 days, soooo bad IV has SALT so made me worse.
@@hrvojebozanovic follow John of Ohio protocol especially lemon bioflavonoids
@@michaels999how I get the JOH vitamins? Thanks in advance.
Thank you for your video. I too am suffering from this disease. Mine developed after l got Covid. It's been 3 years now. The one pill that has helped me cope when I have sever attacks is Dramamine. I also have eliminated alchol and limited my sweets intake. Maybe someday they find a cure. God bless
This disease is supposed to be rare. It sure doesn’t seem like it to me. I’m just so disappointed in my life and the quality of it. I’m sure y’all can relate. What to do. I’ll try anything. So I started saying affirmations. I am stable and well. I am balanced. I am safe. I dove into the spiritual side of things and I think you’ll find more answers there than in the medical field. I also haven’t had a vaccine in over 30 yrs because I was in the healthcare field in the navy and I saw repercussions of them all around me. I would also like to say that I had labrynthitis when I was younger a few times. There’s gotta be a correlation
It's horrible. Honestly, until I went on antivirals, I didn't think i was going to make it.
I just started affirming as well. It does help shift the mind. How are you doing?
I have bilateral Ménière’s, was basically vertigo free because my ENT placed shunts in my ears early on. Now 36-years later started having daily vertigo attacks again. I live too far to go to my original ent, so going to another one today. Hopefully, this can be rectified. It does decrease your ability to live life like you should be able to. I also read somewhere that herpes in the ear like shingles can be a factor.
Hi Jim - thank you for sharing. Any update on how you are doing and if this is still working? I’m suffering from the same so curious if I should try this too.
still symptom-free
Thanks for making this. Going to try this joh regimen.
best of luck. And try the antivirals if you can find a doctor to prescribe them.
@@JS-lr8nj thanks. Yeah I read a study online that done 800g of aciclovir 3 times a day for 3 weeks then cut it two times then one. Trying that.
Thanks Jim just realized there was a reply for the same question.
No worries. don't hesitate to reach out.
Thanks for sharing this I have also Meniers diagnosis one month ago.
Hi Jim! I hope you are well. Thank you for this very informative video. I have a question did you take prednisone and anti virals at the same time or the anti vitals on its own? Also did you have any side effects from the anti virals? My ent had prescribed valacyclovir but it says can cause possible dizziness. I was just curious if you had experienced any side effects. Thanks again so much for you video.
No side effects. I haven't needed prednisone since starting antivirals. Cheers!
Dr Danner, ENT in Tampa put me on valtrex, it has greatly helped me.
The doctor's nurse says my dizziness is because my stress has my BP up, but this is a VERY DIFFERENT dizzy. It pulls my body either to the left or right. No nausea, or other symptoms except that I have had tinnitus for months, and I rarely produce earwax. I am very careful to NEVER get water in my ears when washing my hair. I tried warm Hydrogen Peroxide with water, but it did nothing. Next time I'll do it straight, because I have gone way longer without even a tiny wax ball.
Glad to hear you feeling better.I get itchy eyes and burning eyes on valtrex.I get cold sores inside nostril and around the eye.💜✌️
Not a doctor, but I think I read that can be a flare up and a sign it is working
Take lysine
how often do you take the antiviral medication, and have you experienced and side effects? My ENT mentioned them but said they don't really do anything but after listening to you I think they are work trying. Also, how much are they if you don't mind sharing.
Insurance covers mine. I take daily as needed. 1g valacyclovir.
It’s ridiculous that this is controversial. I don’t think it works for everybody but it’s cheap and easy to try.
Your ent is ignorant and wrong but you’ll never get them to see that
Thank you very much for the information. At least this something to look into. 🖖
You might want to check your insulin resistance/ insulinimea with your doctor. Close to 80% of patients with Ménière's disease have insulin resistance, and that might be the underlying issue. Look up Dr. Ben Bikman to learn more. Unfortunately I think I might have this condition and I'm hoping that by reversing my insulin resistance I can reverse or at least manage my episodes. Sending healing energy to all of you ✨️ 💓🙏🏽
I was thinking the same about insulin resistance . I started feeling the symptoms of menieres almost a year now and finally got officially diagnosed just last month. I’ve noticed in the past 5 months I’ve rapidly gained belly fat that has been a lot harder to get off. I know hormonally my body is probably a mess since I’m constantly dizzy and don’t sleep as well. I’m pretty certain insulinimea is just one of the shitty side effects of this hellish disease.
Is the pressure in your ear better? Is your hearing better? Thank you!
Jim, i think the link that you provided for the JOH vitamin therapy is broken.
wow thanks for sharing Jim this info was amazing.
Thanks! Hope this helps.
Hi what was your dosage etc...? Im going to DR and want to ask for this
If you found something that works for you, lucky. I'm going 41 years living with it
so sorry man.
@JS-lr8nj don't be sorry. At some point, you just have to live with cards dealt to you....
All these years with medicine? How to overcome this terrible disease. What did you do. Having it for decades
@@MeenaRam-o8p that durg is not helpful...
@@sircampbell1249 That's what doctors used to say, "learn to live with it". That's a hard row to hoe!
How long is the course for antivirals? This happened to me after the vaccine too
It’s ongoing. I’m still on them.
After many years same symptoms: but x-rays, MRI, blood and urine tests…gave up and then found a Functional Neurologist…blood tests and nose swab found I had toxic mould or gray water in my system…they created a nose spray….onward to cure my CIRS, and now following the Shoemaker protocol….one month after nose spray and towards healing now….
Bio-film covered bacteria…viral nose spray developed to eradicate it and then the VIP to repair leaky gut and remove the toxins from my system. See a Naturopathic Dr and a Functional Neurologist…
How is your Meniere’s now? Are you still using Acylovior
no attacks Still on antivirals
Hi thanks for the info. I live in Charlotte so super close. I will keep this in mind at my next Doctor's appt
Thank you so much for sharing this..God bless you Brother.
back at you. Best of luck with this. The link for JOH is in the description. But mostly, find a doctor who will try antivirals.
@@JS-lr8nj I did ask the doctor to give me antivirals but he only gave me for 1 week ..
Now where I have to go ent or neurology I have meniere's disease please suggest me
Iam from India
@@nargeesnazeer6296 how old are you ... and what is your condition at the moment ,, you have to avoid sodium plus check upper cervical disk on your ne need to be aligned
I had an attack in May this year and have been dizzy every day since. I have become partially deaf in my right ear and have the fullness and tinnitus. At best I feel like I'm walking the deck of a ship, at worst I lose my balance and stagger. The original attack had me at the emergency room with virtigo and vomiting. Has anyone else has the experience of constant daily dizzyness?
Constant dizzyness is not the ménieres disease.
With a ménière's attack you are not able to walk because it is a spinning dizziness. Terrible.
But I heard B12 can help with dizziness or Carnivore diet, search for Dr. Ken Berry
Yeah i do. Gets worse when i go for longer walks etc.
This is identical to me! Shopping centres are the worst for my dizziness too. I've got severe hearing loss in my right side. Tinnitus. I had a bad attack a few weeks ago, couldn't move, vomiting. I have alot of tension headaches from my neck, no energy, feeling weak. It's awful
@@katenewt7130 I feel your pain! I've now had two osteopathic treatments. My dizzyness has gone down to a minimum over the last three weeks. It's too soon to know if the treatment worked - (I have another coming up) - but it's worth trying. It may be that the Meniers has faded out for the time being. I don't want another attack anytime soon!
@@mlk1965 how u going now with meniere improving and no attack yet?
What was the quantity and dosage that you were taking. Please let me know
I've been diagnosed with Menier's disease for a few years now, I am 34.
I feel nascious, get vertigo attacks, have been visiting two doctors and both treat Menier's with Betahistin, Hydrochlorothiazid and Cinarizin (pills, pills and pills to reduce the amount of water in my body and decrease heartbeat, even though I am not a cardiac). My MRI was negative, clean spine, no tumors, nothing, thank God.
Have not been drinking, smoking, eating salt for months now. I still have the same sympthoms - feeling like standing on a boat or right-side-spinning while having pulsitile tinnitus and it is getting progressively worse which sucks.
Tinnitus changes based on changing my body or head position. When I bend over, tinnitus gets more intense. And occassionaly there is sound sensitivity.
I visited a physiotherapist, have been working out in the gym, getting 8-10 hours of sleep, and yet I still feel tired in the afternoon.
From my blood work I have a higher level of lipids. (6'9, 290lbs.)
I can see, when opening my jaw, it goes left side first then the right side, it is like half-an-inch late.
My ORL doctors told me many times I need to just get used to having Menier's disease.
What the hell can I do that I have not tried, yet ? PLEASE, SOMEBODY HELP ME
Ow that sounds really bad man, I hope you will find some remedy that will help... Have you looked upon intercranial hypertension? That can cause the hydrops and is also associated with pulsatile tinnitus and the things you have mentioned. Do you also experience that the symptoms kind of fade during the day and then come back at night?
Think about migraines as a trigger. Migraines come in many forms. Visit a neurologist and see if you perhaps should try a migraine prevention prescription.
Hey Jim by any chance do you feel crackling in your inner ear when you swalllow or even open your mouth really wide? My ENT recently diagnosed me with some sort of menieres disease as well. Trying to figure this out
Kinda. I always had the ability to open my ears (for instance to relieve pressure from airplanes or scuba diving.) So, I have always been able to hear things working in there.
Hope you find some relief!
Sounds like your C1/C2 neck are out of alignment. It’s the tiny bone behind your jaw which can press against the brain stem and cause fluid build up, aka Ménière’s syndrome
@@marcschoenbach2397 hi there! How are you aware of that being a problem and solving the symptoms?
@@1Love772 I had stumbled upon some research in my findings as to what causes Ménière’s. I was lucky enough to get an appointment with an upper cervical specialist who determined that was the cause. You can actually RUclips a video of me receiving my treatment here on RUclips. Search doctor Suh, Ménière’s disease. I’m the guy with the tattoos and mustache.
Sometimes it feels like I have a piece of cellophane against my eardrum.
My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on RUclips and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus
Hi Jim, I just recently got diagnosed with menieres after a year of symptoms. Currently seeing a specialist that has me on betahistine but have had lots of ups and downs. I’m interested in antivirals. How’s it going for you? Getting desperate.
3 years now. Have not had another attack. 1g valcyclovir or 800 mg acyclovir 1-3 times/day. Be prepared to fight for this and find a doctor who will prescribe it.
pretty similar story. But my ENT (heads of the department at Stanford), came up with the same info. I actually had shingles (localized on my hip, so not on my face/head), prior to my attacks. They felt that maybe I did have an antifungal infection in my inner ear, or in the area where it's a closed system. I was only on that medication for 45 days or something, plus my shingles vaccinations. Hearing loss is prevalent, in fact I lost 67% hearing in my right ear, in a 6 month time frame. I'm not on any antibiotics or antifungal now, so not sure if you are continuing to take them, but that would be interesting to know. I'm also not minears positive, but it very well could be A typical meniere's, I can tell you that my attacks moved from right to left horizontal, to vertical attacks, where the floor seemed to drop from from under me after the antifungal treatments. currently attacks seem to be seasonal now, Nov-Mar, but they are lessening... Recent discussions from a German doctor seems to be that they are having success treating your blood to help with meniere's (cell treatments), hopefully I can get some more information from them, but since I'm not a celebrity or a billionaire, I may not have any luck.
Yeah, I heard about stem cell treatment. Like you, I'm not rich. I probably won't get it.
The sea sickness pills Bonine-with meclizine as active ingredient, helps a lot. It’s inexpensive and available without a prescription. It does make me sleepy tho. I was diagnosed many years ago-early 1990s. That’s what was regularly used then.
I got Menerier's Diease July 12 of 2012 .It was horrible just came on really quick .My doctor sent me to Physical Therapy to bounce the crystals back into place the next day I woke up falling down and throwing up this was the start of Menerier's..I lost my job because I couldn't drive for 5 years..I had a Labythithtomy back in 2014 and the dizziness went away .Now I have Menerier's in my left ear and I don't know what's going to happen..The doctor has given me a cortisone shot and see what happens
What is the dose and for how long do you take antivirals Jim? xx
1g per day if you use valcyclovir and 800mg with acyclovir. as much as 3x the dosage at first. You take the antivirals until you no longer have symptoms. So, perhaps indefinitely.
@JimintheGym , Is the JOH vitamin contains antivirals? Or the JOH vitamin therapy is only a webpage where you readed about antiviral treatment for meniere? Should i try this JOH vitamin or only antivirals for meniere disease? And what type of antivirals?
joh is a series of vitamins that simulate antivirals. get actual antivirals if you can. (Even the joh says so). 1g valcyclovir or 800mg acyclovir.
I’ve been having these symptoms ever since my 2nd dose of Pfizer.
28 years of age never had any issues before hand was healthy no medical issues, no meds nothing. Now im diagnosed with MD, have been trying everything, drs can’t seem to help, prescribing me betahisamine, makes me feel worse.
Just been taking vitamins & trying to minimise salt & sugar but it’s been hard. Having these symptoms daily for the last 8 months. Seeing a neuogolist next month been waiting for ages to be seen!.
Im hoping can get some help because these symptoms are bad !!! Don’t wish upon anyone.
If you can give me some name of the meds you got given or vitamins ect ?
Would be helpful
Ma y thanks
Check the video description for links to a list of the vitamins.
and again: antivirals worked for me. 1000mg or valcyclovir or 800mg of acyclovir, 3x per day, seem to be the common dosages.
Hang in there. I know this is hard. Come back if you need support.
@@JS-lr8nj thanks for getting back to me I appreciate it.
I already spoke to my dr about giving antivirals ago, think she isn’t really sure about it. So it will be hard to find someone to be able to prescribe these meds for this. Did you try taking any other meds to help with the dizziness/ off balance? I was prescribed betahistamine for MD but it doesn’t fully knock out the symptoms.
I was having bad migraines taking them as well.
So I’ve stopped and just been trying to change my diet
Taking:
Vit D
Zinc
L-lysine
B12
Monolaurin
Vit c
I’ve felt minimal improve over taking the supps/ vits but it’s just taking so longggg. Willing to try anything to get back to normal, as I am a mum as well so it’s been challenging to be strong for him and the family as well as myself during this time.
Something to look into is having your C1 atlas looked and corrected by a certified upper cervical chiropractor (don't worry they are very gentle) it helped me out a ton I did NUCCA method.
@@wesporter2176 thank you I will look into it and see if the chiropractor can help in any way possible. It has improved the dizziness over time so hoping it will get better !
Yeah I had this BS 3 months after my 1 and only shot of Pfizer. It’s been a year now. Terrible.
I heard it’s very genetic…my Dad, Aunt, and sister all had it…think I am next 😢, terrible vertigo and tinnitus.
I am experiencing episodes now. It lasts for 2 to 10 hours. I keep throwing up, and it's hard.
Prochlorperazine (Stemetil) is quite effective in preventing episodes- bit surprised that this was not prescribed. Although, ENT specialists do not recommend it for the long term.
The vaccine lowers immune response, as well as causing clotting- according to studies. Perhaps it might be worthwhile getting your lymphocyte & d-dimer levels checked. Lowering the immune response can lead to emergence of latent viruses appearing (ie-EBV, CMV, HV6 etc...). EBV is implicated in affecting hearing. Acyclovir, Ganciclovir, and Valacyclovir seem to show some efficacy against the herpes family of viruses.
Also cleaning up the gut is important. Perhaps try a functional medical doctor- as most of our immunity is in the gut.
Can someone please share the link where I can order those JOH vitamins?
Thanks
there's a link to the paper that explains it in the description. But you'll have to find a source to order them from. I use Vitacost for some of them. Best of luck.
What is the name of anti viral and vitamins pls