You guys are making really good content, I know that it's not getting that much views.. but please don't give up! The algorithim might favour you one day, so please keep making this quality content, we really don't have anything like this on youtube nowadays :)
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024 i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
@@eivindgjengstjohansen9625 I’m still in high school and was just diagnosed with this. It’s related to my other auto immune condition. I’m trying to educate myself on what it is since it’s so new. Seeing all these comments has been making me quite nervous haha.
@@eivindgjengstjohansen9625bro what treatment follow what kind of diet foods eat regularly exercise or allopathy or homeopathi or Ayurveda or siddha what kind of medicine use bro
I'd really recommend looking into yoga too, just experiment and steal the stretches that hit the right spots, then do them daily. I've gone from hardly being able to roll over in bed for the agony to living pretty decent and rarely using painkillers with just that (though I've done all the tests so I'm ready to hop on biologics if needed)
Thank you for this video. I have to mention that you can still have the condition without the gene, about 60 percent of the people with AS have the gene too
To those all out there..pls feel to ask any questions about anklylosing spondylitis....Iam positive with ankylosing spondylitis...I HAVE DONE HELL LOT OF RESEARCH WITH MYSELF AND WITH EXTREME CONSCIOUS iam saying this so don't think iam some stupid saying this because i know A- Z about this disease...Brush your teeth for more than 5 minutes... even though it damages your enamel ..i mean do a thorough brushing in morning...after sometime you will feel saliva like stuff coming out of your stomach...spit it out .. always use salt included paste....so that saliva ( like phelgm).....spit that completely out... practice that every morning....YOU WILL BE ANKYLOSING SPONDYLITIS FREE.....THIS IS NOT DISEASE BUT A CONDITION LIKE DIABETES....SO you can reverse this condition by following this method like iam doing every single day !!!!!
I have Ankylosing Spondylitis and Secondary Fibromyalgia. Its just life changing. Iam on Cimzia. Had many steroid injections. Some days cannot get out of bed. Nerve pain. Swollen hip and leg. But still some good days. Few but some.
@learning7140 hi, iam currently getting biological treatment called Cimzia. The drug suppresses the immune system. Iam better but of course not 100%. Thank you 🙏
Very informative and to the point presentation. I understand that all days are not same for such patients. But, exercise and right medication along with yoga will keep you in stable state. Please keep in mind that your immune system is fighting with your body considering it your enemy and damage your body parts. A sound mind is necessary to control your immune system. Accept your condition and work on it. Regards
If anyone reading this has this condition or similar, please, try Chiropractic. Chiropractic is not just for back pain etc. It's very, very safe compared to those drugs and especially compared to surgery. Worth a shot!
Just a note, when I was 19 I was diagnosed with Ankylosing Spondylitis. They did blood tests. I had lots of swelling and pain. A couple of years later I cured it by drinking massive amounts of water and taking massive amounts of Vitamin C. 4-5 1000 Mg tabs 2 to three times a day, and as much water as I could drink. It said hot packs, yes that will make it feel better, but it will make it worse. The more heat therapy the worse you will get, that is because the heat causes more swelling. Cold packs will make it feel worse, but it will make it better.
are you seriously speaking this , bcoz i am also diagnosed with ankylosing spoyndilitis and i am just 19 . all people are saying this disease in incurable
@@gauravbhatt5541 "incurable" technically but thats such a stupid word, it is possible for it to go into permanent remission which is essentially the same thing, which is my goal but this condition is pretty hard to get into permanent remisssion but not impossible
You guys are making really good content, I know that it's not getting that much views.. but please don't give up! The algorithim might favour you one day, so please keep making this quality content, we really don't have anything like this on youtube nowadays :)
My father got AS at 19 in the army he died 3 days ago at 82,5 he had AS and COPD he closed his eyes at the hospital then he was gone he simply decided that it was his time he didn't want to experience the risk of a wheelchair and oxygen assistance he told me "if i can't walk on my own then i will stop taking my medications" R.I.P. dad you were a warrior 1941-2024
i'm 32 and i have had AS since 20/21 it's hell on earth he had a older son who died at 46 had severe AS it was a heart attack the heart exploded so yeah AS is quite scary...
@@eivindgjengstjohansen9625 I’m still in high school and was just diagnosed with this. It’s related to my other auto immune condition. I’m trying to educate myself on what it is since it’s so new. Seeing all these comments has been making me quite nervous haha.
@@eivindgjengstjohansen9625bro what treatment follow what kind of diet foods eat regularly exercise or allopathy or homeopathi or Ayurveda or siddha what kind of medicine use bro
Great Video, thankful from an Ankylosing spondylitis patients
I've tested positive for HLA-B27 and the doctor is getting me more tests, thank you for the information it is very helpful.
I was just diagnosed and I'm so happy to finally feel like I'm not crazy ehh
Thank you for the video. I think I have this though I'm not sure. I hope to know it. 🙏
I'd really recommend looking into yoga too, just experiment and steal the stretches that hit the right spots, then do them daily. I've gone from hardly being able to roll over in bed for the agony to living pretty decent and rarely using painkillers with just that (though I've done all the tests so I'm ready to hop on biologics if needed)
I've stretched for 35 years
Pain is same
Thank you for this video
very good.I have A.s and nicely put for friends and relativesxxx
Thank you for this video. I have to mention that you can still have the condition without the gene, about 60 percent of the people with AS have the gene too
great 👍🩺♥️
To those all out there..pls feel to ask any questions about anklylosing spondylitis....Iam positive with ankylosing spondylitis...I HAVE DONE HELL LOT OF RESEARCH WITH MYSELF AND WITH EXTREME CONSCIOUS iam saying this so don't think iam some stupid saying this because i know A- Z about this disease...Brush your teeth for more than 5 minutes... even though it damages your enamel ..i mean do a thorough brushing in morning...after sometime you will feel saliva like stuff coming out of your stomach...spit it out .. always use salt included paste....so that saliva ( like phelgm).....spit that completely out... practice that every morning....YOU WILL BE ANKYLOSING SPONDYLITIS FREE.....THIS IS NOT DISEASE BUT A CONDITION LIKE DIABETES....SO you can reverse this condition by following this method like iam doing every single day !!!!!
I have Ankylosing Spondylitis and Secondary Fibromyalgia. Its just life changing. Iam on Cimzia. Had many steroid injections. Some days cannot get out of bed. Nerve pain. Swollen hip and leg. But still some good days. Few but some.
The first treatment of Angylosing Spondylitis has been registered in Russia recently. Maybe you can get treatment.
@learning7140 hi, iam currently getting biological treatment called Cimzia. The drug suppresses the immune system. Iam better but of course not 100%. Thank you 🙏
Thanks. Me also a patient.
Very informative and to the point presentation. I understand that all days are not same for such patients. But, exercise and right medication along with yoga will keep you in stable state. Please keep in mind that your immune system is fighting with your body considering it your enemy and damage your body parts. A sound mind is necessary to control your immune system. Accept your condition and work on it.
Regards
Will it come on thorasic region also or only at lower back
If anyone reading this has this condition or similar, please, try Chiropractic. Chiropractic is not just for back pain etc.
It's very, very safe compared to those drugs and especially compared to surgery.
Worth a shot!
Not true at all, chiropractic is completely useless and even dangerous for this
@@Mafyu30explain
Ouch.
Humira saved me.
It’s saved me also Alhmdullah 🙏
It do be doing that sometimes 😢
Thank u for d video
My spine at base feels like its stuck together and painful its hell
Wow this sounds like hell
Oh it is! Luckily we have good medications the sooner someone gets on them the better
It definitely is. I was dx with fibromyalgia, rheumatoid arthritis and AS. The AS dx came just today. The other 2 last year.
Just a note, when I was 19 I was diagnosed with Ankylosing Spondylitis. They did blood tests. I had lots of swelling and pain. A couple of years later I cured it by drinking massive amounts of water and taking massive amounts of Vitamin C. 4-5 1000 Mg tabs 2 to three times a day, and as much water as I could drink.
It said hot packs, yes that will make it feel better, but it will make it worse. The more heat therapy the worse you will get, that is because the heat causes more swelling. Cold packs will make it feel worse, but it will make it better.
are you seriously speaking this , bcoz i am also diagnosed with ankylosing spoyndilitis and i am just 19 . all people are saying this disease in incurable
@@gauravbhatt5541 "incurable" technically but thats such a stupid word, it is possible for it to go into permanent remission which is essentially the same thing, which is my goal but this condition is pretty hard to get into permanent remisssion but not impossible
Wow
@@gauravbhatt5541o have the gene HLA B27 positive way is it curable of have that .. maybe if negative its possible who knows
The gene is not present in all people with AS though. I have AS without the gene - it is a less common gene in nonwhite people
Took me 15 years and being dismissed and accused of just wanting drugs to be dianosed
Consider using time stamps in future videos, it makes everything much easier for lazy watchers, who might leave video unwatched because of this
What am I looking art
Absolutely me too im very like the animated
This disease will be the death of me
I get it. we should be so lucky...
@@thaumatology Please explain.
@@johnsalisbury3768 at its worst, this condition is very hard to live with. that's all.
Is this what Zach from the Try Guys suffers from?
Yes. I was just diagnosed after 15-20 years of living with it. This disease is horrible. 😢