Schizophrenia, Malady of the Mind: The Path to Prevention (Ep. 69)
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- Опубликовано: 13 июн 2023
- Guest: Jeffrey Lieberman,M.D., author of Malady of the Mind
For the first time in history, we can effectively treat schizophrenia, limiting its disabling effects-and we’re on the verge of being able to prevent the disease’s onset entirely.
Dr. Jeffrey Lieberman draws on his four-decade career to illuminate the past, present, and future of schizophrenia.
Of the many myths and misconceptions that obscure our understanding of schizophrenia, the most pernicious is that there is no effective treatment or cure. Though that may have been true in the past, the current reality couldn’t be more different: today’s treatments have the potential to be game-changing-and often lifesaving.
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We ask about:
What can families do to get more psychiatrists on board?
Hope for today’s young people who are in First Episode programs after their first psychosis.
Is true recovery possible or what do you mean by recovery?
What can families do to promote housing that heals/works for people like our sons? Why is there so little of it?
The leap that cannabis can cause not only psychosis but also schizophrenia.
Assisted Outpatient Treatment and the right to treatment despite
Anosognosia.
…and much more!
LINKS:
jeffreyliebermanmd.com/
www.simonandschuster.com/book...
www.amazon.com/Malady-Mind-Sc...
Mindy and her book: mindygreiling.com/
Randye and her book: benbehindhisvoices.com/
Miriam (Mimi) and her book: www.miriam-feldman.com/
Hosts:
Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)
Miriam (Mimi) Feldman - is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.
Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.
I haven't finished the video but just purchased the Kindle version of Dr. Lieberman's book and am skimming it now. Excellent. I'm captivated. Stephen has been on clozapine (175 mg/day) plus Abilify (5 mg/day) taken at 8 p.m. every night in full dose (no split) since approximately February 2014. I see he writes: "A comprehensive review found the combination of clozapine and ... aripiprazole [i.e., Abilify] superior to other drugs, including clozapine on its own." (Kindle, p. 312.) Thank you very much for your incredible Channel.
Stephen was just BEAMING in his latest video. On his channel in the notes,, would you share the list of the categories you covered with him when you and Maria went to Chicago? I'm 72, and would like to cover all bases with my son in an organized way ASAP. Thanks!
@@user-zh9sq2zk3v We love how you are helping each other. what is Stephen's channel? @steve_Stephens_Dad
@@SZ3MomsTrenches Surviving Schizophrenia with Stephen
@@user-zh9sq2zk3vHello! I subscribe to Stephen and dad's channel and just adore them! ❤
My son has schizophrenia. He's 36 years old and was diagnosed at age 25, after (in hindsight) it seems his prodrome was very long and insidious. My own first cousin also has schizophrenia, diagnosed in 1975. There are other relatives of mine that have Sz or had, some have died. So I was not caught completely off guard, however as I began researching and reading everything I possibly could and can, including these ladies' beautiful memoirs about their experience with their sons, I became more and more heartsick, alarmed and devastated. I live in WV and I don't have money, I'm tired and depressed. He lives with his father in a house in town, I live in a rural area and see him as much as possible, where he lives with his dad, my ex husband, thankfully on good terms. I have never even considered pushing my son, as some people think should be done, out the door into some kind of group home or whatever. Ex husband wouldn't either. So my son just stays home basically doing nothing, just wandering around in the house smoking. He takes medication, the monthly shot and three pills, but he is still disabled. However, he's not homeless and has never been incarcerated. Has been forced hospitalized five times.
I'm so thankful I found this channel. Since my son was diagnosed with schizophrenia I been trying to get information. And you answered some thoughts I have been having of the way my son behaves.
Thank you! You are not alone. I hope the episodes keep,being useful
I read this book a few weeks back and found it to be compelling and informative. This is a difficult diagnosis so knowing that there is progress and treatment because of doctors like Dr. Lieberman and so many dedicated research psychiatrists, truly is a ray of light for those who suffer with this disorder and for their loved ones.
While the book has its technical and scientific side, it also contains much of the human experience surrounding mental health disorders.
I highly recommend.
Thank you! We agree, the book is so well done.
Thank you. Very informative episode. I’m grateful for the work Dr Lieberman is doing and you moms. I didn’t get the answer to what can you do with someone who doesn’t want help. My son is in a severe state of psychosis and homeless.
I’m unable so far to get him off the street. He has fixed Cagras delusion. I have followed him around when I find him. If he sees me he runs yelling. My son is conserved by me and currently missing in another state.
What can I do!!! I’m not letting this go. He’s been going downhill for 6 years. He’s a childhood cancer survivor, his father has very early onset Alzheimer’s. Yet my son has not had any brain imaging since this started. What can I do!
He’s had 9 or 10 hospitalizations.
I’d also like to say that I think most people, my son, for sure want help or wanted help before they were unable to receive it because of the progression of the illness. When my son was first becoming I’ll. He was scared. He wanted help. He was searching for help and couldn’t get it. Now he is too sick.
I’m so sorry about your heartbreaking situation. So many families go through this, and sadly the “system” doesn’t provide many solutions. In our other episodes, you'll hear about the LEAP method (Dr. Amador), conservatorship, and information from. CT Probate judge, Lisa Wexler. We also have many episodes echoing your thoughts about what needs to be changed in the system. We will keep working on helping families find at least some answers, and perhaps we can do an episode about stories like yours: when our loved ones are homeless and/or run away. How we wish we had the answer. You are not alone.
I am so sorry you have to go through this. I myself have a40 yr old son who is homeless in Fla. I know what you go though . My son refuses help. When he asks for money we do what we can. But eventually we get a message like I'll kill you look what you did to me. Do I feel guilty yep every day . But I have other people in my life that need to be kept safe from his illness. I hope he stays in Fla.
Yes...thanks to all of you. So informative. I ache for my 32-yr-old son, who has suffered since the age of 15. Please let me know if you did an episode on Ulotaront, Kartx or TMS as treatments.
I too have a 30 yo daughter in a similar situation .We have to keep on researching on other people success stories , it seems .
@@jennajagmohan9852 Yes...I have great hope in AI...the imaging is down to the synapse level. I'm hoping the researchers will be able to see HOW clozapine is working in the brain, and how the other antipsychotics are less effective.
Can we change the name to Benjamin Button Syndrome? Kidding but seriously...thank you, moms, for another great episode. Im going to read this book! (Hi, Mimi!!)
thanks, Lisa!
Just discovered MorningMist99....I think he has some interesting ideas about overcoming schiz. He sees the condition as a tug of war.