Woody it’s good news you are reducing the drugs and suffering less fatigue in the evening. Keep up the positive thoughts. I am also stage 4 Gleason 9 and am hoping for a cure.
The doctors will become patients someday. Check out the movie "The Doctor." Woody, you are working to enlighten us; unfortunately, most believe it will never happen to them. Please keep spreading the wisdom.
I will check it out, I believe we have innate possibilitieswhen the mind is focused on believing 💯 that's when miracles happen and there is lots of evidence now to say this is true. Check out radical remissions hundreds of not thousands of cases of people with stage 4 cancers that have beaten the odds. We can do it my friend we just have to have no doubts in our minds of what we can do.🙏
Woody I suggest finding another oncologist, my oncologist and I have half hour conversations about new medications, sports and its like talking to a close friend. He’s always reassuring and tells me you’ll be fine for years and that helps me tremendously. I don’t know how the health system works in the U.K. Or if you even have a choice in different doctors but if you do you need to move on to another oncologist. Praying for you my friend.
Hi Bon I think we tend to just get an oncologist given to us. I've never thought about asking for someone else. I've never had anyone else to compare her with.
@@Livingwith-prostatecancer you should look into it . I sense your not thrilled with her and that’s not a good thing for you. You need someone who treats you like a person not cancer.
I second the call the you need a new oncologist. I was crushed by your video of how the Hormone treatment side effects seemed to surprise you (she must have done a terrible job of informing you). Next, there is the fact that she make you feel like a cancer and not an individual. That is enough right there to find a new one. Finally, you seem to not be getting any standard “how to mitigate hormone therapy side effects” advice. (another failure on her part). You need to be on vitamin D…not C. ( although vitamin C is always fine). You need to worry about bone density… weight lifting..vitamin D…even bone density drugs. Yes…incurable. But that doesn’t equate to fatal. That isn’t the same thing…medically…technically. Many men live many many years with “incurable” prostate cancer. The hormone treatment will reduce your tumors…you’ll track it with lowering PSA blood tests. I expect that it may get even low enough for you to get off of HT for a while…. PSA might then start to rise again…and you go back onto HT. That is the cycle of this. Sadly…PC might someday become “castrate resistant”… in other words, the HT stops working. That may or may not happen to but it isn’t worth worrying about today. When that day comes, there are even MORE treatments available. No…you are at the start of this journey…not even close to the end yet.
Woody it’s good news you are reducing the drugs and suffering less fatigue in the evening. Keep up the positive thoughts. I am also stage 4 Gleason 9 and am hoping for a cure.
So glad you’re doing good Woody. Stay positive brother, talk to God, praying for you!
Thank you Hal
Agree
The doctors will become patients someday. Check out the movie "The Doctor." Woody, you are working to enlighten us; unfortunately, most believe it will never happen to them. Please keep spreading the wisdom.
I will check it out, I believe we have innate possibilitieswhen the mind is focused on believing 💯 that's when miracles happen and there is lots of evidence now to say this is true.
Check out radical remissions hundreds of not thousands of cases of people with stage 4 cancers that have beaten the odds. We can do it my friend we just have to have no doubts in our minds of what we can do.🙏
Woody I suggest finding another oncologist, my oncologist and I have half hour conversations about new medications, sports and its like talking to a close friend. He’s always reassuring and tells me you’ll be fine for years and that helps me tremendously. I don’t know how the health system works in the U.K. Or if you even have a choice in different doctors but if you do you need to move on to another oncologist. Praying for you my friend.
Hi Bon I think we tend to just get an oncologist given to us. I've never thought about asking for someone else. I've never had anyone else to compare her with.
@@Livingwith-prostatecancer you should look into it . I sense your not thrilled with her and that’s not a good thing for you. You need someone who treats you like a person not cancer.
Hey woody check out today’s new video on the prostate cancer research institute channel. 16 yr survivor and still going. It’s on you tube
Cheers Bon will watch it tomorrow
It's interesting there are plenty of examples of people surviving cancer.
I second the call the you need a new oncologist. I was crushed by your video of how the Hormone treatment side effects seemed to surprise you (she must have done a terrible job of informing you). Next, there is the fact that she make you feel like a cancer and not an individual. That is enough right there to find a new one. Finally, you seem to not be getting any standard “how to mitigate hormone therapy side effects” advice. (another failure on her part). You need to be on vitamin D…not C. ( although vitamin C is always fine). You need to worry about bone density… weight lifting..vitamin D…even bone density drugs.
Yes…incurable. But that doesn’t equate to fatal. That isn’t the same thing…medically…technically. Many men live many many years with “incurable” prostate cancer. The hormone treatment will reduce your tumors…you’ll track it with lowering PSA blood tests. I expect that it may get even low enough for you to get off of HT for a while…. PSA might then start to rise again…and you go back onto HT. That is the cycle of this.
Sadly…PC might someday become “castrate resistant”… in other words, the HT stops working. That may or may not happen to but it isn’t worth worrying about today. When that day comes, there are even MORE treatments available.
No…you are at the start of this journey…not even close to the end yet.
Thanks Brad for that helpful advice.