Too late for my husband, who died of ALS in 2000 at the age of 51...but, Lord, please let this be a successful protocol to help all of the other sufferers who have it or will have it. There MUST be a solution to this nightmare...
There was a clinical trial done by NIH that showed that bioactive whey protein stopped the progression...I'll try to find it..friend me on Facebook and I'll post it there..I'm not sure I'll be able to here.
So...building upon the work done using _Ketone Esters_ [beta-hydroxybutrate (BHB)], add _L-Serine_ to that. OR use _virgin coconut oil + MCT oil_ to achieve a more sustained level in the body; about 7 tsp. four times daily....provides a more even body level. Cut sugar out of diet; cut grains out [because those turn to sugar]. Because, if one consumes more good fats, and also eats the usual levels of sugars/grains/carbs, the body will use the carbs FIRST, because it's fast, and store the fat. BUT...if one cuts out most carbs, using a ketogenic diet or Paleo type diet, the body will burn the fats as ketones. Since MCT oil can too easily slide into the airways [very bad!] when swallowed plain, it's best to mix it into food, like a meal shake, or into avocado, etc. This is especially important to those who have swallowing deficits related to their disease process.
@@juliagoesfrugal I doubt there's any research, but burning ketones rather than sugar for fuel definitely makes you feel better and more alert. There are many videos about Keto and Intermittent fasting on RUclips.
@@KayceCrews Absolutely, and a vegan diet makes people feel great, too. Neither of these diets are shown to protect against ALS, Parkinson's or Alzheimer's, though. (A vegan diet is sometimes used in conjunction with medication with MS, though.)
This video makes me so happy that there is hope for a disease that is so horrifying. No one deserve to go through the horror of this disease. I hope that they are able to get this drug on the market very soon so it can start saving lives. In the meantime if the potential cure is a dietary substance, is there something that people can be eating high amounts of to prevent and lower the risk of ALS? This is another instance where diet plays such a significant role in overall health. The last tedx video i watched was about how a certain diet may be able to be used to treat cancer and epilepsy. It is amazing how big of a role it can play. It has the potential to kill you (neurotoxins from cyanobacteria) or possibly save your life. Diet seems to be a common pattern for many diseases. This video is three years old so I am very interested to see how far they have come with this drug and where they are currently in helping to cure ALS. I hope that the cure is known soon because no one deserves to experience this disease.
Yes, BMAA is an issue that causes neurodegenerative disease and upping intake of L-Serine is a viable prevention - and even helps slow progression in new ALS diagnoses. That being said, it's not a cure yet, but we're so close to being there. This was 7 years ago. What other breakthroughs have been done? I know in 2017 they did Phase 1 of the L-Serine trials and Phase 2 is underway. Is taking L-Serine orally enough once the disease has begun? What about intravenous? In the spinal cord? I will be curious to see what Phase 2 results hold. Personally, after all the research done in Ogimi, I'm upping my L-Serine intake. I take it in a pure form & I've begun incorporating more L-Serine in my natural diet, too, by eating tofu, eggs, seaweed and sweet potatoes.
it seems like nobody gets past the theory stage with anything and clinical trials or any drug that *could* potentially have any benefit is put on hold or nixed entirely. it's toying with us and we don't have the time for these games
It hasn't reached that phase yet but I've thought of it. In order for them to be able to do that they would have to get approval to try it in clinical experimental trials. It's worth trying since ALS patients have no other hope.
Pls. Pray the Rosary & Devine Mercy chaplet to free all country from war, calamities and hunger..pls. pray for peace and joy on all families and home.. ....
Parkinson's indicates unresolved rejection, massive amounts of abandonment, rejection and hope deferred. I read a book called"A more excellent way" by Henry Wright.
While it is evident that some disease can be triggered or even worsened by psychologidal pressure, two people I knew have died from Parkinsons, one a family member, the other a music .professor. Both of these people lived to old age and had highly satisfying lives. My family member absolutely had no abandonment, nor regection, nor hope, issues.
I read one of his books now! I have not ALS but ALS symptoms from confirmed Lyme disease!!! I agree on a spiritual Level. On a physical- I think ALS and Lyme and heavy metal intoxication are very interconnected
I read the story in Fortune magazine.. and I am amazed... Could I ask someone a question? Is stiff-person syndrome a tangle disease such as these? This is also a nerve degeneratinve auto-immune disorder... I can not find any place to ask this question... thank you
I believe it is, although I’m not a doctor or a scientist, I was recently diagnosed at the age of 51 years old with autism spectrum disorder. I saw a lecture where they had mentioned that people with autism especially women, have higher rates of Parkinson’s ALS and Alzheimer’s in their population. And that stiffness and other muscle skeletal disorders were common as well. To me that suggests they are somewhat related. I don’t know the exact lecture but I saw it here on RUclips, you could probably search older people with autism symptoms and related disorders/relationship between neurodegenerative diseases.
Unfortunately, yes, a dietary supplement (L-serine, an amino acid), becomes a drug according to the FDA when used to treat a disease. Nevertheless, I hope it provides a piece of the puzzle to these neurological disorders. I am sure there are other causes and factors, yet to be discovered.
Yes you should avoid all forms of Science and instead concentrate on magical thinking, fundamentalism, and all the answers that appear to work for you that have nothing to do with science and the realities of nature
Too late for my husband, who died of ALS in 2000 at the age of 51...but, Lord, please let this be a successful protocol to help all of the other sufferers who have it or will have it. There MUST be a solution to this nightmare...
immunocal stops lou gehrig's disease in its tracks!
@@setapart902 Is that a proven fact? Asking because the doctors say that I have it.
There was a clinical trial done by NIH that showed that bioactive whey protein stopped the progression...I'll try to find it..friend me on Facebook and I'll post it there..I'm not sure I'll be able to here.
@@setapart902 I will reach out to you on facebook. My name is drayah hayward...THANK YOU SO MUCH! I am determined to beat this!!!
@@setapart902 Leah...there are SEVERAL Leah Parker on fb. Which one is you?
Congratulations,so Happy to hear the good news, my brother died in 2002 41 years old he lived with ALS 4 years.
Best regards from Denmark
I lost my dad from PD at age 71, it was devastating seeing him suffer at the hospital the last few days of his life, RIP dad, love you.
So...building upon the work done using _Ketone Esters_ [beta-hydroxybutrate (BHB)], add _L-Serine_ to that.
OR use _virgin coconut oil + MCT oil_ to achieve a more sustained level in the body; about 7 tsp. four times daily....provides a more even body level.
Cut sugar out of diet; cut grains out [because those turn to sugar]. Because, if one consumes more good fats, and also eats the usual levels of sugars/grains/carbs, the body will use the carbs FIRST, because it's fast, and store the fat.
BUT...if one cuts out most carbs, using a ketogenic diet or Paleo type diet, the body will burn the fats as ketones.
Since MCT oil can too easily slide into the airways [very bad!] when swallowed plain, it's best to mix it into food, like a meal shake, or into avocado, etc. This is especially important to those who have swallowing deficits related to their disease process.
Winter Star
@ winter star after 2 years how are you?
I agree with adding L-Serine and cutting added sugars, sure, but I'd like to see the research supporting a keto diet.
@@juliagoesfrugal I doubt there's any research, but burning ketones rather than sugar for fuel definitely makes you feel better and more alert. There are many videos about Keto and Intermittent fasting on RUclips.
@@KayceCrews Absolutely, and a vegan diet makes people feel great, too. Neither of these diets are shown to protect against ALS, Parkinson's or Alzheimer's, though. (A vegan diet is sometimes used in conjunction with medication with MS, though.)
This video makes me so happy that there is hope for a disease that is so horrifying. No one deserve to go through the horror of this disease. I hope that they are able to get this drug on the market very soon so it can start saving lives. In the meantime if the potential cure is a dietary substance, is there something that people can be eating high amounts of to prevent and lower the risk of ALS? This is another instance where diet plays such a significant role in overall health. The last tedx video i watched was about how a certain diet may be able to be used to treat cancer and epilepsy. It is amazing how big of a role it can play. It has the potential to kill you (neurotoxins from cyanobacteria) or possibly save your life. Diet seems to be a common pattern for many diseases. This video is three years old so I am very interested to see how far they have come with this drug and where they are currently in helping to cure ALS. I hope that the cure is known soon because no one deserves to experience this disease.
14 century ago prophet Mohammad told us that food is the cause of disease or well being.
Yes, BMAA is an issue that causes neurodegenerative disease and upping intake of L-Serine is a viable prevention - and even helps slow progression in new ALS diagnoses. That being said, it's not a cure yet, but we're so close to being there. This was 7 years ago. What other breakthroughs have been done? I know in 2017 they did Phase 1 of the L-Serine trials and Phase 2 is underway. Is taking L-Serine orally enough once the disease has begun? What about intravenous? In the spinal cord? I will be curious to see what Phase 2 results hold.
Personally, after all the research done in Ogimi, I'm upping my L-Serine intake. I take it in a pure form & I've begun incorporating more L-Serine in my natural diet, too, by eating tofu, eggs, seaweed and sweet potatoes.
Interesting that you & I are coming across this Ted Talk and it was published so long ago!
And, do we now know where the seaweed comes from?
After 3 years of this video . What are the results nowadays.??
it seems like nobody gets past the theory stage with anything and clinical trials or any drug that *could* potentially have any benefit is put on hold or nixed entirely. it's toying with us and we don't have the time for these games
Thank you very much, we must find a medicine
ALS is a terrible disease. Thank you for your passion.
Agreed.
Well, this was posted years ago. So what is the out-come? Is L-serine effective?
Clearly not
Of course not. This is not covid and there is no real colloboration to solve this. We are probably like 2-3 centuries away to sove this.
Brilliant, bless you!!!!!
This video is over ELEVEN years old. Where is the progress talked about?!?
I just stumbled on this, noticed it's 7 yrs old, last comment was 5 years ago. I guess it didn't pan out?
No, progress has been ongoing with a Phase IIa clinic trial to be completed by the end of 2021.
@@utahnativeplantsociety4479how is it going now?
Has serine been administered intrathecally (?) that is, injected into the spinal fluid, cerebrospinal fluid?
It hasn't reached that phase yet but I've thought of it. In order for them to be able to do that they would have to get approval to try it in clinical experimental trials. It's worth trying since ALS patients have no other hope.
I AM a pacient with ALS. I would like to participate in the tests
Pls. Pray the Rosary & Devine Mercy chaplet to free all country from war, calamities and hunger..pls. pray for peace and joy on all families and home.. ....
its now november 2019, what is status?
OK, but what is the effective dose of L-Serine?
Superb... 👍
Parkinson's indicates unresolved rejection, massive amounts of abandonment, rejection and hope deferred. I read a book called"A more excellent way" by Henry Wright.
While it is evident that some disease can be triggered or even worsened by psychologidal pressure, two people I knew have died from Parkinsons, one a family member, the other a music .professor. Both of these people lived to old age and had highly satisfying lives. My family member absolutely had no abandonment, nor regection, nor hope, issues.
I read one of his books now! I have not ALS but ALS symptoms from confirmed Lyme disease!!! I agree on a spiritual Level. On a physical- I think ALS and Lyme and heavy metal intoxication are very interconnected
I read the story in Fortune magazine.. and I am amazed... Could I ask someone a question? Is stiff-person syndrome a tangle disease such as these? This is also a nerve degeneratinve auto-immune disorder... I can not find any place to ask this question... thank you
I believe it is, although I’m not a doctor or a scientist, I was recently diagnosed at the age of 51 years old with autism spectrum disorder. I saw a lecture where they had mentioned that people with autism especially women, have higher rates of Parkinson’s ALS and Alzheimer’s in their population. And that stiffness and other muscle skeletal disorders were common as well. To me that suggests they are somewhat related. I don’t know the exact lecture but I saw it here on RUclips, you could probably search older people with autism symptoms and related disorders/relationship between neurodegenerative diseases.
This was published 9 years ago and sill nothing substantial progress in this area.
Very interesting
Better buy it before they say it’s medicine.
Great comment check out the price of garlic and lemons in the grocery store these days
What year is this?
10/31/12
7 years ago and still no cure 🤔
7 years ago?
See links posted in response to similar queries above.
MCT oil is amazing for improving brain function!
And coconut oil
@@reglagirl5802 MCT oil is made from coconut oil
Oh, it's an advert is it. Well that was how many years ago? 7?
good vid :-)
Just in case he does not talk about keto diet and benefits of coconut oil at least 7 teaspoons a day
Now at the age of 32..I am in.😎..shivering hands... cognitive issues....
My hands were already shaking at age 32 as well and I ignored 🎉the cognitive issues … As it turns out I should not have
Mother Earth will not bow down...........
Prostratin was the name of the aids chemical found in nature by this hero of mine.
drugs, drugs drugs.
Unfortunately, yes, a dietary supplement (L-serine, an amino acid), becomes a drug according to the FDA when used to treat a disease. Nevertheless, I hope it provides a piece of the puzzle to these neurological disorders. I am sure there are other causes and factors, yet to be discovered.
Ruth Butler you live on "drugs" the neurotoxin responsible for the symptoms is as drug. Don't get fixated on emotional labels.
u
The lumpy calculus surgically zip because pencil curiosly arrange save a delirious composer. well-off, wakeful thistle
You lost me when you said that bacteria created the atmosphere. Better read Genesis.
watchgoose 😂😂😂😂😂😂
watchgoose, what are you even doing here? This is a science place, not a bible study class.
SOUNDS LIKE GENESIS HAS NOT HELPED MUCH IN YOUR SCIENTIFIC UNDERSTANDING
JAJAJAA Genesis??? JAJAJA!!!!!
Yes you should avoid all forms of Science and instead concentrate on magical thinking, fundamentalism, and all the answers that appear to work for you that have nothing to do with science and the realities of nature