Danny Chats Ep4. Wilson's Disease & Liver Transplants; Guest Virginia Lee

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  • Опубликовано: 3 окт 2024
  • Danny Chats Episode 4 features special guest Virginia Lee.
    In this episode Virginia and I talk about our experience of Wilson's Disease and having a liver transplant, Virginia tells me about her life and we cover relationships, food and the current happenings (Covid-19).
    If you enjoyed the video or found it interesting please give it a thumbs up and subscribe to the channel for future videos.
    If you would like to join me on an episode or have any questions please feel free to message me on Facebook or Instagram. I have also added a link to my blog where I talk more about my life with Wilson's Disease and where that has lead me.
    Facebook: / danny.hiles
    Instagram: / danny_hiles86
    Blog: organtransplan...
    #wilsonsdisease #livertransplant #liverdisease #wilsons #blog #vlog #dannychats

Комментарии • 5

  • @landcruiser1055
    @landcruiser1055 4 года назад +1

    Hi to both of you, it’s good to hear of other people’s experience with this disease. It affects everyone differently. I haven’t bounced back like you two, probably because I was older when I got really sick & have neurological problems etc. But very grateful to my donor & family for giving me a life extension. Keep going strong! Love from Australia 💚

  • @elicapetsea8822
    @elicapetsea8822 3 года назад

    It seems that Wislson's Disease is often misdiagnosed with Mononucleosis...I was misdiagnosed with this when I was in grade 3...and the nickname for mono at that time( late 1970s) in Canada was Kissing Disease...lol...I can laugh at that now but at the time I definately felt self conscious about it. It was so interesting to hear this story...alot of similarities in my symptoms but a very different time frame in how it all played out.
    Stay safe and healthy my fellow Wilson's Disease / Liver Transplant Warriors 💪😊💖💕

  • @mohammadmohebbi9580
    @mohammadmohebbi9580 3 года назад

    I diagnosed at the age of 4 or 5 and i had a really normal life but now it’s a couple of years that i feel fatigue and having focus problem. I use DPenicilamin 3 per day till now. Even now i have those complaints but stil my doctor said everything is okay and i just use 3 per day.

    • @mohammadmohebbi9580
      @mohammadmohebbi9580 3 года назад

      Sorry I forgot to mention that now I’m 28 and sorry for my broken English actually this is one of my complaint before i was good at making good sentences or learning new language but now its really hard even when i want to write in my own mother language.

    • @TransplantStrong
      @TransplantStrong  3 года назад

      Hello Mohammad sorry to hear you are not feeling great now. Maybe speak with your doctor again and tell him all your symptoms. Explain to him you don’t feel as good as you did. He might do some tests on you to find out if there are any problems.