STORY TIME: I HAVE A BRAIN TUMOR - PITUITARY
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- Опубликовано: 7 сен 2024
- #prolactinoma #pituitarytumor #braintumor
Yes it’s true #amazongang
Recently I found out I have a tumor, brain tumor. I wanted to share what I have been feeling since finding out.
Though benign this tumor is pretty powerful. I wanted to share my story in hopes of helping someone else with their story and the unknown.
This is just my story in my current experience, I am not a healthcare professional. If you feel something please please consult with your doctor!!
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Hope you guys enjoyed and learned something from my story. I will be updating #amazongang as my journey continues.
If you did please give this video an thumbs up, comment and please please share your stories with me!!
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Let’s keep in touch:
Insta: JasHanginAround
Podcast: #bktalks2much
RUclips: JasHanginAround
Hey…… I hear you. I feel you. Had the tumor. Had the brain surgery. Life is good…… not as before, but, I am good. Don’t give up. Hugs.
Me too!! I have 2 kids too! I did not need IVF either. God is so good.
@@annettewashington9124am happy for you.
Did you have 2 children after the surgery?
Did you take a medication if so for how long and did you stop the medication after you found out you are pregnant?
After how long did you get pregnant?
How is your prolactin level now and your symptoms?
Thank you in advance
I’m so sorry about the tumor. I just had an unsuccessful tumor resection in my cerebellum. All in a few weeks. Non cancerous brain tumor does not mean it won’t kill you. Mine is killing me because it wrapped around something that can’t be touched. I know that kind of headache. I had been asking for a brain scan for a couple of years due to symptoms. I knew it was my brain. I had cancer three times already. I knew something there was wrong. Oncologist wouldn’t make a move. Now it wrapped around a nerve and I’m terminal. What a painful way to go.
I'm holding you in my prayers 🙏🏾💕
I'm so greatful I found you! I seen this was recorded 3yrs ago..but I'm in the same situation! Nervous as heck!! Crying on my own time! I am on medication.. gurl I need to make a video on my situation also! But I'll be tuning in on other videos on yr progress..this is my first video of you,so I hope to hear great news on yr journey..I'm right there with ya! 🙏🏼♥️
aww this makes me happy!! yes, I wanted to document it because it's not something you hear about often, so I was full of different emotions. I have a playlist on my page about my journey. I tried to stay as updated as possible. You will be okay!! This is a process you will get through with the right support and strength in yourself. Keep me updated on your journey. I wish you all the best :)
I’ve watched almost everyone’s videos about pituitary tumors, I have a pituitary tumor and I am 19 years old. I’ve cried almost everyday not knowing how things are going to play out, I’ve had to get two MRI’s done and I had to get a wash cloth over my eyes because I have anxiety.Mine was 11cm or 11mm one of those I have an appointment with and endocrinologist very soon simply because he wants to talk about taking something to shrink it because of my age instead of surgery but I want it completely gone 😭 your video made me feel so much better because I can relate
And mine is growing into my sinuses
First, know you will be okay. My endocrinologist suggested the same, cabergoline medication, it is to shrink the tumor. Because you are 19 it may have may shrink your tumor, for me it did not. You will have anxiety and stress but you will make it through! My number 1 suggestion on this journey you are getting ready to Embark on is to change your lifestyle. The tumor is a hormonal tumor, you have to get begin healing your MIND BODY & SOUL. it will help heal you faster. YOU GOT THIS GIRL! I have documented my journey to be as open as possible! Check out those videos for some reassurance. I GOT YOU SIS💜💜💜
Thank youuuu!❤️
I am in the same situation. I walk a lot and try to be with nature. I read many books about how to happy and mindfulness. it helps me a lot. Your mental and Physical health are your first line of defense. We can do it!
I made my own videos too...
It’s actually NOT a brain tumor. The pituitary gland is located at the base of the brain 🧠 I’m going through this with my daughter who was recently diagnosed with this tumor.
I think I may have a brain tumor. I have been having headaches since August off & on. I'm going to get a CT scan this week. I just want to bounce back, recover & let this be one of those life lessons if it is. Stay strong & keep us updated. God Bless 💪🏽
Definitely get checked. I neglected the headaches I was experiencing for a long time. Once I went to the doctor and discovered what was going on, I began a new journey
MRI is better to such discovery! We pray for you! Otherwise its along journey that we live!
I have my MRI scheduled today, but doc is pretty sure I have a prolactinoma. Thanks for all the details on your experience, especially the headaches I feel like mine are very similar.
No problem!! Check out my videos on my journey I tried to provide as much detail as possible 😀😀
I have had like 8 MRI scans so far. Had a baseball sized meningioma removed on feb 1. I totally feel you on the MRI thing. I hate it. Takes like 45 minutes, music does not help. Just being enclosed and that noise going off can drive anyone insane!
How are you feeling now?
@@jashanginaround5316 i still have dizziness and throbbing on my head in the area the tumor was. I think because theres fluid in that spot that shifts around. Also my incision is sore still on the right side. How about yourself?
@@mattscott6591 I could only imagine. Right now doing a lot bette, still have my days
@@jashanginaround5316 Tell me about it. It’s been two months since my surgery and some days I feel like I’m doing better and then some days I feel like crap. Like whenever I change position and go from ceded to standing I get these really bad head rushes and throbbing. I also get ringing in the ears that scares the crap out of me but my doctor say that my scans look good and it’s just going to take time.
Don't worry, I had this. I took medication and it went away.
Thank you for this I’m praying it does....
Just curious what meds were taken? If you don't mind
@@tacydavis8290 I'm curious too. I don't want surgery.
@@bekind3050 I have a tumor not doing any surgery I just need to know what medication bromocriptin don't help .
I am currently going through this right now. Just found out a few days ago. The hardest part was finding an endocrinologist to see me before the spring. I found one but it’s a virtual appointment. I am trying to be positive but it is hard. I thank God for my support system.
Thank you for sharing your story. It is truly helpful
I completely understand the emotions that you are feeling. you have begun the process and it gets easier, it's less scary as the process continues on. I am glad my story can help you during this time. If you help I have documented my journey to share my experience. Remember everyone's journey is different, but keep your support and stay encouraged and you will be fine!!! LOTS OF LOVE!!
@@jashanginaround5316 Thank you so much!
I recently had a miscarriage and after hormonal study came to know my prolactin level is high.Waiiting for my MRI Appointment. I can totally understand how do you feel.Hope you are good now.
I recently posted an updated video. So far I am okay, just made some major lifestyle changes that seem to be helping. You got this💪🏾💪🏾
How high is your prolactin
And any luck with pregnancy after that?
Ur video helped me. I got diagnosed 2 weeks ago . 😥
You are so welcome. I will continue to give you guys updates with my progress. I’m here if you ever need an outlet!! WE GOT THIS
Love your video girl stay strong girl
I’m binge watching videos on this because my dad was just diagnosed with a big one. His is dangerous because his Endocrinologist said his cortisol levels were not where they are supposed to be. He said my dad could’ve dropped dead at any moment. His surgery is scheduled for in the morning.
GM sis. I will be praying for Dad and the family. Though my tumor was binge I can only imagine what your feelings are. I am always here to give as much support as I can. Praying for all the best!!
Praying everything went well with dad’s surgery 💜💜
What are the early signs of Brain Tumor? I’ve been having mild headaches for almost every day. Btw I am praying for you sister!.
I gotta get a MRI next week.....they also asked me the same questioned as well about being in tight spots.
absolutely hate MRIs lol. YOU GOT THIS!
Don't mean to laugh i went thru this as well. The head unit sent me into panic
Itat machine is the absolute worst!!!🤦🏾♀️
I just found out this week that I have a pituitary tumor. I'm devastated.
it was alot emotions for me in the beginning, but it will be alright we will get through it together. #Ithinkitstimeforanupdate
@@jashanginaround5316 I found last week. I walk a lot.You have surgery?
Hi, how did you go?
How are you now?
@@ahadu1457 everything is going well!! Im happy life moving along great, thank you for asking. I get the question often so I may just give a 3yr update 😉😏
@@jashanginaround5316 thanks for replying, an update will be good
How are doing today??
I have updated videos posted but I am doing pretty good these days 😄😄
I know what you mean about having a mRI I hate them also it was horrible! I’m claustrophobic and I felt like I was in a casket and couldn’t breathe
Same it’s awwwwwful
I do too im feel so helpless
Dont be you will get through this its a process but you will be ok 😊😊
U scarring me I am just going threw test but mine it’s 2009 my levels
Prolactinoma
once this is treated you will most likely be able to have children
Thank you, I’m praying