How I discovered I had a deadly Brain Tumor: Signs, Symptoms, Surgery, Chemo, Diagnosis, Prognosis
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- Опубликовано: 2 май 2024
- Hey guys, Thought as i am locked up and can't continue my usual out and about cancer vlogs that i would make a video on how i discovered the cancerous tumor in my brain. Brain cancer is rare but incredibly deadly, So if you do have any concern there is no harm in seeing a professional.
please look after yourselves. Please comment any questions beneath as i will reply to everything :) thankyou
Lots more content coming i promise
Support Channel directly:
www.paypal.me/MWilliams745
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Thanks Legends
Hey please read this everyone at the very least because it is so important. i want to share the Gospel to you and you all great men and women (that's you reader) Jesus loves you all and only He can save you from hell and you sins. Romans 3:23 says that you and I and all of Man kind (except Jesus, who was both God and Man) have sinned and in Romans 6:23 - For the wages of sin is death; but the gift of God is eternal life through Jesus Christ our Lord. You and I have sinned there is nothing WE can do to escape eternal Death in Hell but Jesus who is God Himself (God is a trinity He is one Being but beyond Mans comprehension He is three "persons" in one its called the trinity God is The Holy Spirit, The Father, The Son/Jesus but Jesus, the Father, and the Holy Spirit are Different but all one equally God) so Jesus came here as a Man born of a virgin and healed and many did great things but the Jewish authority hated him and wanted him dead so they and the Roman authority had him nailed to a cross but on the cross he took our sins on himself and Gods wrath and He died but three days later on Sunday He rose from the dead and all you have to do to be saved is place you faith and trust in Jesus Christ the Messiah as YOUR SAVIOR and Jesus will save you he will Give you the gift of what He did on the cross for you for me and if you haven't DO IT without a savior you go to hell and Jesus is there waiting Put your faith and trust in JESUS. and if you do you are in a moment saved.
John 3:16 "For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life." Romans 21-31 But God has a way to make people right, and it has nothing to do with the law. He has now shown us that new way, which the law and the prophets told us about. God makes people right through their faith in[a] Jesus Christ. He does this for all who believe in Christ. Everyone is the same. All have sinned and are not good enough to share God’s divine greatness. They are made right with God by his grace. This is a free gift. They are made right with God by being made free from sin through Jesus Christ. God gave Jesus as a way to forgive people’s sins through their faith in him. God can forgive them because the blood sacrifice of Jesus pays for their sins. God gave Jesus to show that he always does what is right and fair. He was right in the past when he was patient and did not punish people for their sins. And in our own time he still does what is right. God worked all this out in a way that allows him to judge people fairly and still make right any person who has faith in Jesus.
So do we have any reason to boast about ourselves? No reason at all. And why not? Because we are depending on the way of faith, not on what we have done in following the law. I mean we are made right with God through faith, not through what we have done to follow the law. This is what we believe. God is not only the God of the Jews. He is also the God of those who are not Jews. There is only one God. He will make Jews right with him by their faith, and he will also make non-Jews right with him through their faith. So do we destroy the law by following the way of faith? Not at all! In fact, faith causes us to be what the law actually wants.
😂😆😂
A tumor is a good thing..
It's the body responding to over toxicity..the body will build a bag to isolate toxins from the organs and blood,then the body will build blood vessels to the tumor (angiogenesis) to detox the poisons..the tumor is a result of your shty lifestyle.. the medical doctors are taught to think it's a bad thing and to be cut out .cancer is a symptom of oxidative stress..I will bet that you're on statin DRUGS ,statin drugs stop the liver from making VITAL cholesterol, cholesterol is a BRAIN ANTIOXIDANT..
🤔
HOSEA 4:6
EVERYTHING you know may be false.
@soldier of tough love &
@@belindasellers4344 and?? 🤣
And cancer treatment is genocide under the guise of a dis-ease.
Search..
Chemo mustard gas 😅🤡
He didn't need his head cut open and the tumor removed,he needed to get cellular hydration, essential nutrition,and manage stress and the body could have detoxed the poisons and the tumor would have went away on its own as the toxins we're neutralized..but the medical doctors can't charge insurance for nothing 😂😆😂 🤡
Y'all talking primates make me chuckle 🤭
View my "pistol squat" video and read the description!!
Take the red pill ef the needle
Glad ur still around. U bleed inspiration upon us. I have constant headaches i think its from an out of place neck tho. Rugs? Where? Love ur war updates very intelligent n well spoken but the only war im fighting in will b when Americans finally say enough is enough
Please stay positive my wife had hers for 20 years she died 13th of December 2019, she got hers at the age of 21 and at the time we had a new born and a 1 year old. Because it was a glioblastoma grade 4 the doctors told her she had maximum 5 years they were wrong she set herself a goal and started her own charity up "Mel's go Gray in may" to bring awareness of brain tumours between that the kids and myself that gave her the motivation to survive. Please live your life and take every opportunity and Please don't take one doctors opinion as gospel speak to as many as you can.
🙏
Hi Willy. I’ve been watching your Ukraine and Poland videos and this one popped into my recommendations. I had to build up my courage to watch it as my dad had a brain tumour. I’m glad I did though. You explained it very well, and the way you are experiencing all you can is inspiring. I hope there are many many more experiences in store for you. You’re a lovely guy. I’ve been moved by your kindness and caring for others. You will leave a mark on this world ❤️
Thankyou so much! I really really appreciate it!
Thankyou
I’m 37 and had a seizure 2 days ago. They’ve found a mass in my brain… I’m pretty scared dude 🫣 Thank you for this video… I feel less alone xx
My late husband passed away from an aggressive and rare form of cancer in 2006, at just 50 years old. He waited nearly four weeks for the pathology as sent his labs from Loma Linda, CA to Mayo Clinic in Minnesota before they determined it was a Leukemic form of Berkitts Lymphoma, or “two different cancers in one”. Like you, he took enough chemo to kill half of him until he was 100 pounds. Then we absolutely enjoyed each other and our children until it grew back with nothing to stop it. It was the year our lives mattered. We grew very close as he ticked off a bucket list of things. Everyone had wishes come true. Then he couldn’t get up one morning. His best friend arrived to watch their favorite NASCAR Daytona 500 stock car races, and by lunchtime he was gone. His fire went out so quickly that morning. Like those racers…🏁🏎
I've only known you for 3 days but you're the most inspirational man. You have to deal with things most people cant even imagine and youre still happy and living a great life.
Stay strong Willy, we'll always honour you.
you're a legend mate! thankyou
Just found this and listened through it. I was diagnosed in 2016 with a tumor between my right eye and brain. I remember those weeks after surgery waiting for the result. In my case it was not cancer and I was the luckiest man on earth to celebrate this with my new born twins and wife :) Good luck in the future!
Don't let any doctor tell you how long you have to live, they don't know and they aren't god! Prayers for you and stay strong♥
thankyou
FACT ♥️
They said my late husband had two weeks but he lasted nine months!
They don’t know!
In our case it was time for what we wished for!
They give you an average statistical survivability. I don't think anyone says to take it as an accurate prediction for an individual.
Doctors always give a worse case scenario to prevent a sense of false hope but most will also tell you they have been proven wrong before.
Wow, I’m working backwards through your videos Willy. How frightening, brilliantly told, articulate, honest . The least I can do is to keep watching you. The fact your a Vet too makes you all the more of an inspiration.
Same! I started with the newest videos about the war in Ukraine. And then I had to watch some old videos like this one. And also seeing Willy without beard was interesting :D. But yes, also this crazy tumor experience is something I "wanted" to watch now after I read about it in the other videos and seeing the channels name. Go on with how you are Willy, may people like you (and hopefully me too) make the world a better place!
Thankyou so much! I really appreciate it
@@MiaMaria20 thankyou Mia, I really appreciate it!
@@willyOAM
Man I’m so sorry!. You have my deepest condolences and full support!. My prayers are with you and your family!.
It's a pleasure to meet you Willy and thank you for this video overview. It sucks finding such a character in times like these whom is enjoying his life to be in the middle of the sh1t show.
Thanks for all that you do...
And keep singing ....paradise by the dashboard lights.
Thanks for sharing your journey mate. Your a kind and brave man to be allowing us to join you on this rollercoaster ride. I came across your video and I was immediately touched by your compassion on your journey through Ukraine and Poland. I promise to stay with you on your channel until your journeys end. I know you'll stay strong.
I'm honored to be following your journey. You've had a tough go of it, but you choose to really live. It's all very inspiring. Thanks for taking us along with ya.
So sorry to hear about your diagnosis. Sending love and hugs to you . X
God bless you. Im a cancer survivor and overhauled my life but you absolutely inspire me
Stay strong, man! Thank you for telling us your story. It's very much appreciated.
Just came here to hear your story since I saw you on social media where you are documenting your experience in Ukraine right now. You are an inspiration thanks for sharing your story, I pray you will beat the odds and survive this for many more years.
Good onya mate! Hope V.A is looking after you extremely well.
I wish I had found you sooner. You’re an absolute treasure. Thank you for your service. You make me proud to be Australian. Good luck to you 💐
Just found your channel. Totally inspirational, you have such an amazing, caring soul. Your help, support and clear information to others going through the same diagnosis and life journey is just amazing (especially your recent experience from Ukraine). Love, light and hope to you for everything your giving to us 🙏
Super powerful to find your channel man. I've got MS and post about it a bit here on TheTubes ... a very different situation entirely but I'm SO IMPRESSED by your attitude!!!
I have nothing but love for you man. I Looked you up, subscribed, and found out more after I saw you on funkers. You’re a bad ass and what you’re doing over there for those people right now matters. The truth is no one gets out of this life alive but so many people don’t live while they’re alive. I hope you see this as a gift and if you need anything, you reach out to me man. Your brother in arms, Burlas.
This hurts to watch, I feel blessed to have found this channel I could never forget you willy
Bless you, Willy! You inspire a novice survivor.❤️
Good health and Godspeed, Willy. I found you through your Ukraine series. It is good to het more background on your health situation than just your intro credits. You really are an amazing and awesome human. Deep respect for you M8.
Willy, a whole lot of it is your attitude towards things. Being positive and not letting anything get in your way means that you will have a better experience along the way. Everyone is completely an individual and no one can tell us what the length of time we have. I also came here because I saw you in Ukraine. Great job!
Thanks for everything you give us. Prayers for you.
I hope you are still with us and doing well. My son-in-law was just recently diagnosed with the same type of tumor that you have after having a seizure. He is 37. My daughter is expecting their first baby in July. He is going through radiation and chemo right now. We don’t know what to expect in the coming months. Praying for you and we could use lots of prayers too. 🙏🏻❤️
Thank you for sharing your story and journey. Just found your channel because it's your Ukraine videos of late. Just wanted to tell you my sister has the same type of brain cancer (oligodendroglioma) which was diagnosed in 2004. She's had 2 surgeries (2004 & 2017) here in the US and at this point they say she's got a normal life expectancy which would be about another 20+ years. I hope you outlive your doctor's prognosis! There's always new treatments and new strategies coming out. We got multiple doctor opinions and I hope you do too. Take care and we'll be watching your journey and pray you keep grabbing life fully like you are! Love seeing you sharing your kindness and travels!
Thanks for sharing your story, and I hope that your feeling much better these days. It sounds like a terrible experience for you to go through, but you are a survivor. Take care of yourself 🌹
thankyou so much! I really appreciate that!
Really brave to get on camera about this. Love your channel and the stuff you are doing. Well done for keeping it honest. I have always found medical professionals really frustrating. I always feel I am kept in the dark or they treat me like a moron. Hate it. Keep fighting bud, you are doing amazingly 😁
Continued prayers for you. I’m glad that you’re doing well.
Thankyou
You’re extremely brave, I’m glad you’re doing better.. keep up the great work 👍🏽
thankyou
Hi I hope things get better for you and the pain's are getting a bit better now. I'm 72 and have a brain tumor in my for head the pains are not the nicest things in the world. I'm due for another MRI scan very soon so I'll have to wait and see.All I can say to you is keep your chin up and lots of good luck we all need some of that . Take care.
I’ve been watching your videos mate but after seeing this one I’ll be watching all your posts and videos from now on and be with you through this channel on your journey brother, so fuckin moving man😔 with love and support, from England, AJ, crazy amount of respect for you, you’re a proper warrior ❤️❤️💪🏼
I cannot believe that this 20something year old kid is dealing with this and still takes time to calm us by telling us that this is super rare and that we shouldn't worry about every headache we get.
Willy, I have no words to express how much I admire your bravery and selflessness. I am sad I didn't discover your channel sooner, but I will watch anything you upload from now on. So far I have only seen your work from Ukraine, and I love all the videos you made. You have captured some serious history here and I hope your videos will be used in the future when they make documentaries about what happened in Ukraine. Whatever you upload next, I will watch it and I only wish you the best.
My brother !!! Keep strong , keep rocking that castle !!! You are always an inspiration and don’t forget we still have to go for a jump 🤘🤘🤘🇦🇺⚔️
hell yes brother! thankyou
Thank you for sharing! My brother is 25 and recently diagnosed with rare osteosarcoma cancer in left leg, it has hit out family very hard as you live such a good life thinking you have it all then you hit a bump in the road to be told after chemo/surgery he’s only got 40% chance living then he followed a natural path aswell as western and got told the chemo wouldn’t shrink the tumor just keep the cells alive so doesn’t spread, anyway had pt scan last week and has shrunk and less active obviously due to doing both! He’s about to go under for a 9 hour surgery in 2 days and his petrified! I enjoy watching your videos as it gives more info as he hates to talk about it so thank you 🙏
that's amazing! thankyou so much! I really do appreciate it!
Sending LOVE
Please look up Dr. Joe Dispenza and watch all the testimonials of people healing their cancer completely, even stage 4 cancer. People can heal themselves from it, you can see dozens of people describing what they've been through just search "Dr. Joe Dispenza Testimonial Cancer " on RUclips and you'll find many of them, it's quite incredible
Hey Brother, great work again. Stay strong, and always reach out. Never forget you've got a huge extended family with all current and former ADF. Even if some of us like me went RAAF lol. 🇦🇺
you're a legend! thankyou
WOW...WOW...AND wow!
I had been watching your coverage of Ukraine and subscribed. I have started watching past videos as well. I have so much respect for all you do and your courage is inspiring❤
You are logical and analytical. Your intelligence will get you through and make you maximise what means most to you for the remainder of your life. A great example of a good man with a positive attitude. Kudos to you.
I dont have words to explain what seeing this said to me. We have never met, probally never will, but genuinley a pleasure to have listened to you share this part of you
thankyou so much Rhaa :)
Your positive attitude is commendable and sharing your experiences is incredibly enlightening. I watch your videos as I can and it provides balance and perspective to me , Thanks for sharing
thankyou Brother! I Really appreciate that!
such an inspiration, love your videos ❤
What a beautiful soul. Love and light to you. 💙😘
All the best to you, you are a VERY strong man and you have a Guardian Angel watching over you 🙏💪
Have been watching your very current videos and am impressed with what you are trying to to help our fellow citizens escape the invasion in Ukraine. So pleased your past video popped up so I can learn about your journey
Thank you for this video! Great to hear your honesty and thorough analysis of what you went through from diagnosis through to recovery. It’s so true - brain tumour diagnosis is the SCARIEST bit because you don’t know what you’re dealing with. Once you know you can have some sort of plan at least. Getting to the professionals/surgeons (they see this on a daily basis so it’s not such a big deal for them). I’m just putting all my trust into these people - it’s AMAZING what they can do now and science is so encouraging! It’s so important for governments and the general public to be able to see the importance of funding into all of this because you NEVER know when you’re going to need the life saving amazing care..!!
Thanks again for sharing, I’m happy to see you thriving years later- it gives me hope to do much more living. There’s nothing like a brain tumour diagnosis to give you a kick up the arse and to get on with your bucket list!!
Take care and I hope other people find hope in this video you’ve taken the time to make.
All the best ❤
Willy. You are so inspiring. Your motivation to help bring the truth to us about Ukraine & Poland and the people who are being affected by this violence in Ukraine is really special. I thank you for sharing so much of yourself with the world. You are a Legend Willy! Full on Legend!
It's tough, the anxiety of not knowing. Mine was also an incidental finding but I'd had crippling migraines from the age of three. Unlike you, I won the lotto as mine turned out to be a calcified Meningioma. While nothing's to be done at present but it could go active at any time. What goes through your mind is incredible, there's no sharing what your going through until you get that final diagnosis.
I stayed with the six month follow up, then annual, finally every two years. The MRIs were doing my head in. Finally I decided two years ago that I wasn't going through anymore reviews. I know I will be the first one to know if it goes active. I'll deal with it if and when. I have too much living too do.
So I know where your coming from and really feel for you an can truly understand living for the moment. All the best.
Best wishes Willy, I’m following you in Ukraine atm. Stay safe, you’ll get through this. 💪🏼💖
Thank you for sharing your profound story. I send you love and admiration for your courage.
God Bless you! I am praying daily for you!!!!
Hi Willy! My name is Kelly. Just want to say HI. You've been through so much for someone so young. God bless you, stay safe, stay free.
You're a real inspiration mate!
thankyou brother
Much respect to you, Willy.
All the best to you Willy.
Love to you! I do not think it was discovered by accident, I think your angels got you seen! I hope you have a miracle healing! At least, a happy and wonderful life!
You're a legend mate!
thankyou legend!
You are an amazing man. Hugs to you.
thankyou so much Maree :)
My heart goes out to you♥️
Is it better to know or not know?
I'd say it's best to know. Yes, coming to terms with it is hard. I imagine there is a trenendous toll on your mental health when you learn about it. There'll likely be grief and depression for a period of time.
But, once you get through that part, you'll live life more fully. You'll have a different perspective. You'll be wiser. You won't waste a moment. You can inspire others.
The knowledge is a heavy price to pay, but it is worthwhile.
Thanks for sharing. Keep going strong.
Wishing you all the best through these difficult times. Thank you for your sincerity in sharing this, and your cheerful smile.
you're amazing! thankyou
Great stuff mate, keep it up
thankyou legend!
stay strong mate as an exchoco and reg Nurse I see a few "incidental findings" In ED they suck and like you said are devastating to the Patient and their family
thankyou mate!
Thank you for sharing your story Willy it is very interesting to hear your story and what happened, good to know you are doing good, i hope you keep doing good, your a legend Willy👍
thankyou so much! I hope this sums it up well enough :) thankyou
It sure sums it up brother would love to see more of these vids only if you felt comfortable doing so no ones going to force you, or cooking with Willy that is the stuff 👍 but no problem just keep up the good work and do what you love best
stay strong man!
thankyou!
Your a legend Willy!
thankyou brother!
Always all the best! Let always be health and happiness by you! Greetings from Krakow.
Stay strong! I’m praying for you 🙏 USA grandma 🤣
Brain tumors are the third largest killer of men in their prime.
My son had the IV GBM. He got six weeks notice.
That surgeon sounded flaky.
If you have the stamina, consider doing a second channel about your experience with your progress.
You are great as a story narrator.
Be well and enjoy, Willy.
Thank you for being so willing to open about your condition❣️
#FuckCancer Right NOW!
Please look up Dr. Joe Dispenza, many many people are curing their cancer, even stage 4 through his practises. You can watch the testimonials on RUclips, multiple people with varying different cancers, from breast cancer to 50 tumours in the brain, completely cured.
@@FragranceView please read that response better. She said ‘had’
the wages of SIN
All the best bud, you're a real hero, you just don't know it, imagine of how many people this video, you, will help, now and many years ahead. Kudos. Keep it up, I reckon you've got your best year's ahead of you. None of us know if we have a tomorrow, but all of us know we have today. 👌👍
May The Most High Bless You Sir.
My son started having seizures at the age of 4 months. Took him to the ER to find out he had a mass in his brain. He was put on a helicopter and flown to a nearby university hospital where they did a cat scan and diagnosed him with focal cordical dysplasia. It has been medicine resistant and he will most likely require surgery. Life is so unfair sometimes. Best of luck to you Willy.
Hows it going? Good luck.
Positive attitude will help see you through this,you WILL be ok.
thanks Lee
Thank you for sharing your story.
thankyou legend!
Just got to go within and connect with your soul. Keep visualising light expanding through the tumour. Feel its there for you to get to open up to your soul.
Stay strong mate and f**k cancer! My mum was diagnosed with a GBM late last year as well. I wish you all the best, as well as the strength and courage to face the unknown.
Wishing your family all the best! thankyou
Wishing you all the happiness & good health possible
Thanks for your inspiration mate and wishing you every success your way. Ps Im watching this video and its on 46k.6 views and 46k.6 subs !
wow, that's actually crazy that it was an accidental finding and your headaches were due to something completely different.
Thank you for your courage serving our country and sharing a tough part of your life. I can't relate to your tumor but I can relate to not being able to drive and waiting for the inevitable to creep up on us. I have ushers syndrome which has caused blindness and deafness. If it wasn't for my wife and family I know I wouldn't be here so I try to be the best I can for them. 🤙
thankyou so much Mark, i Really appreciate that mate! thankyou so much, i hope you're well
Hope you are doing well mate👍
@@k9_electricviper942 Thanks mate 😀
@@willyOAM Thanks Willy 😀
I am sincerely sorry to hear this mate however I am glad you have family, keep strong, positive however rest when you need to mate ;) Feef (Gal from oz)
I believe there is a reason for everything and that if you didn't have that headache, you may have discovered the tumor when it was too late or begun having more severe symptoms while working. So I don't know what you're beliefs are but I definitely think God's looking after you. And now looking at what you're being used to do now in a war zone, you're doing a really important thing, bringing awareness to the reality of the situation and also bringing a bit of positivity through the interactions with families and civilians.
You are an amazing bloke Willy. Keep pushing you fucking legend!
thankyou Jamie!
I hope you are getting disability pay at 100% from the Military or are still in the Military. A good friend of mine had a benign brain tumor that happens to 1 in 250,000 people. It was wrapped around a nerve that went to his right ear so he lost hearing on that side, but is still living. I watch your channel but nothing popped up on my screen. I went to your site and this vid popped up. I appreciate your bravery and candor. Now I can catch up on your vids I missed. Keep beating cancer, Bro!
Just keep being positive!!
always! thankyou
Just found this video April 2023 as been following you a while via your Ukraine reporting, Sorry for your findings regarding brain tumour, Stay strong and enjoy life much as you can
i got gbm4 and after surgary i got my diagnosis in two weeks... ive seen the average with treatments is 18 months unless your like apart of the 5% of the lucky people
you seem like your doing do well too!!
hey Tonii, Really hope you're doing well! thankyou
Hey, how ur doing?
Thank you so much for sharing.
oh man! my praying go to you!
Wow man :( i went for a basic examination years ago and the nurse decided to do a blood test , i felt fine but she discovered i have prostate cancer , i thought i was gonna die fast, im still alive 8 years on still fighting ,the treatments suck, good luck dude enjoy your life .
Love you man
Mate, you’ll live. Don’t you worry ;) trust me, I know! ❤
Hey mate i came across you on Facebook ages ago and have learnt heaps from watching your vids. Not only about your condition but how you as a bloke move forward and take every day as it comes. Also seen you with the Pm and getting a mention on Australia Day it was unreal. Keep doing what your doing and if you are ever up in Airlie Beach it would be great to have a beer with you. 🍺
Hey jason, hell yeah man thankyou so much! That really does mean a lot man! beers on me
I had an epileptic fit during the night while my wife was asleep, I sat in mu living room till the next morning and could not speak, so had do explain to her sign language. It was kind of funny thinking back at it although my life changed in an instant. Stay strong have a good attitude and laugh , that’s the best medicine.
I had an oligodendroglioma tumour in my spinal cord 9cm in length when it was removed. It grew very fast, and I relate to your story in many ways. I would fall down and scrape my knee, and I couldn't feel the blood and weakness in my legs. The problem with oligodendroglioma is that it interweaves itself in the spinal cord, so it is complicated to remove. Once removed in 1998, I had 6 months of radiation treatment and a lifelong journey in a wheelchair, but I'm 40 now and still living life.
I would be pissed to. It shouldn't never take that long. I hope your doing good. It was by Gods grace it was found.
Not a nice situation but it was interesting and well explained. Thanks.
I just spent a couple of weeks in the hospital being probed and tested. Going back for a PET scan tomorrow. That waiting for results game sucks balls in a big way. I can deal with the anxiety of waiting, just about, but if any extra anxiety inducing thing happens on top it really pushes me to my limits. Have you looked into seeing if there's any research programme you could turn yourself into a guinea pig for?
great story, thank you for sharing. I ask myself a different question all these years: I never ever had any headaches, never ever, not even after drinking or less sleep, I'm lucky to say I don't know how it feels to have an headache. But I wonder sometimes if this is a good or a bad thing, what do you think ?
Came here today thru one of your Ukraine videos.
I found out in 2007 at age 26 that I had a oligodendroglioma that had been growing for 5-10 years. Mine was operable and turned out to be mainly grade 2 and some 3. I was lucky I guess on where it was, but also unlucky because it’s come back twice since then. So two operations (only grade 2 on 2nd), two rounds of chemo and one round of radiation and I’m still here. Just out of spite I’ll probably live past 60 and regret not planning for that retirement that would never happen. But I’m a realist, once this one has come back a few times all the statistics goes out the window, so my stance is that it will come back and I’ll deal with that shit then and try not to worry now. Yes, maybe it prevents me from living life at my fullest but I refuse to be that blindsided I was the first time it came back. That stance seems really hard for people to understand. Anyway, I’m just rambling at this point, just wanted to leave a mark and say hi 🧠! Screw statistics, be awesome out there! Greetings from a 🇸🇪 girl who frequently jokes about being an airhead, because what can you do when it’s true. 🤷🏻♀️ (Don’t know if that is as funny in english as in swedish! :)
I have no word to make anything I say better. I need to hug you as my own child. I am sorry but to be close and to be with you as I feel your pain.. I am 51yo and my son now 9yo but he was diagnosed at 6y9m optic pathway glioma astrocytoma stage 2.. ................... 3 brain surgeries and a shunt for life. He is ok at the moment but we do not know what tomorrow will be for the next 10 years. I know all of this pain and it is most terrible. The grief a parent feels for their child is as bad as the grief of our people at home in Ukraine. IT IS HELL!!!!! (((((((
This is the same misery. Kajsa