🍂 What's a J-Pouch? The Question I Get Asked the Most! ✨ Vlogtober Day 23
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- Опубликовано: 27 сен 2024
- Vlogtober! Daily life vlogs every day in October, join me for autumnal shenanigans every day - cooking, organising, crafting, faffing about and general family life in the UK :)
~ THINGS MENTIONED ~
• If you need more information about Crohn's and Colitis visit:
UK - crohnsandcolit...
US - www.crohnscoli...
Tim Minchin "Not Perfect" • Tim Minchin - Not Perf...
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• This time last year -
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• Music: www.epidemicso...
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I hope you enjoy these little peeks into an ordinary life, thank you for watching 😃
Ali xx
© Little Drops of Wonderful
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* any links marked with an asterix above above are affiliated - meaning I receive a small percentage of the revenue made from purchasing products through this link at no cost to you...however this doesn't influence what I say about stuff, I just share the things I like (or don't!) 😊
Hello Ali. I’m all for talking about bowels and poo 💩 I’m a bowel cancer survivor and I’m happy to talk about bowels and poo to anyone. We need to normalise speaking about bowel issues so that people are not embarrassed by it. Early diagnosis of bowel issues such as inflammatory bowel disease, diverticulitis and bowel cancer leads to better quality of life and higher survival rates. I also had open surgery as my innards are a mess and the surgeon had to convert to open from keyhole. Thank you, thank you, thank you for being open and spreading valuable information. If anyone reads my comment and is having bowel issues, don’t ignore them, speak to your Doctor/Nurse. Take care, Sam xxx
*Thanks for being here for another Vlogtober! Today's video is a little different - I'm explaining what a j-pouch is and why I have it. I probably get asked this question the most (along with "how do I start knitting socks?")* 🧶🤗
*Normal daily vlog content WILL resume tomorrow with pumpkin picking!*
*I hope this video is helpful to anyone that needs it to be :) I am nervous about sharing it!*
*Thank you, as ever, for your kind comments and enthusiasm!*
*Ali*
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Don't be nervous, I'm sure this video will be such a help to so many people x
Thank you for explaining about IBD. I have IBS and was diagnosed at 19 and have suffered on and off for 33 years. You and your lovely family have brought so much joy to me watching your vlogs so relaxing and enjoyable. Watching from over here in West Sussex 👋 xx
I know you have talked about your j pouch before, but it was really helpful to hear your explanation along with your crochet j pouch. I know it's not usual to talk about our plumbing but as Terry Pratchett said it's the commonality of man kind. We need to be able to talk about what we eat and excrete! I love the fact that you share this stuff, not just the best bits. We all love to share the best bits, but we need to keep in mind, that it's not all best bits in other people's lives, they are dealing with their own tough stuff too. I feel like I know you all so well, yet we have never met. I hope to see you in person someday. 😊
Thank you for talking about your health, I have an ileostomy as I was diagnosed with bowel cancer during the first lockdown and also have a lot of scars as I suffered sepsis during the second lockdown. It’s good to share information so we all know that we’re not alone, hopefully sharing will help others who are struggling.
If anyone reading this thinks that they have something wrong with their health, get it checked out. It maybe nothing but if it is something, the sooner they diagnose it, the sooner it can be dealt with. It could save your life, like it did mine!
❤ A big thank you to the NHS ❤ x
I have the bump on my finger too. No idea if this is true but I was told it relates to how I hold pen/pencil and the amount of pressure I use. Thank you for sharing you day to day with us. I love the month of vlogs whenever you do them.
I was just about to comment about this, too! I also have a bump on my finger and I'm sure mine is from the pressure of writing implements. It's on my 3rd finger, which is where I happen to hold the pen/pencil, not my middle finger (this is proof, in my opinion 😁).
Thank you for sharing your experience. I have Crohn’s disease. I am 66 and it has been under control for a long time. 🙏🏻 I had surgery when my girls were little and it was like night and day. I felt so much better after surgery.
Thank you for explaining this so eloquently I’m sure you have helped a lot of people embarking on this journey. You are right our bodies are amazing things. Hoping the anti b’s kick in soon Ali x
Well done explaining to us all your bodily difficulties that can’t have been easy 👏🏻👏🏻👏🏻👏🏻
but you have helped me to understand jpouch
I had Diverticulitis issues 6yr ago hospitalised for 10 days & careful about certain foods not 16yrs my goodness ( big virtual hug )
❤
I have the bump too. It’s a callus from holding my pencil/pen so tight when I write. 😊
I really appreciate your openness in sharing about your ulcerative colitis and j-pouch. I got long covid last year and learning to live with a chronic illness and readjusting my expectations for my near future has been really difficult for me. Hearing you talk about your journey with a chronic illness and how it has effect your life over time and your relationship with your body has been so so helpful. What you said about loving going on long walks now because there was a time when you couldn't really resonated with me. I was doing the washing up the other day, which I don't do much these days because it's so tiring, and it occurred to me that I really miss doing the washing up regularly like I used to. Who would have thought I would miss doing the dishes 🤣
The bump on your fingers is from holding a pen and writing. I have one 😂🇬🇧
very gratefuly outalked about your issues. Hope you feel better soon. My brother came to my Son's wedding, I was so happy as he didn't leave the country for 14 years. He suffers too but hasn't had any ops.
Thank you for sharing. Hope you feel better soon. The crochet j-pouch is adorable.
The finger bump is from writing if you're right handed and hold your pen or pencil that way.
Fingers crossed your new medication is working Ali. I too had symptoms from the age of 19, but it took 11 years to diagnose UC, after having two children. I remember I used to lay on the sofa in agony as they played. Eventually put on the best medication for me when my youngest was 16, which was a life changer, even tho its made me immunosuppressed. Age 59 and been in remission for 16 years 😃 Good luck with your treatment and journey as well Dan xx
Hi Ali, long time viewer here but ive never commented before. Thank you so much for sharing your story. I was diagnosed with UC at 16 and after many years of struggling i began Vedolizumab infusions in 2019 , im now 40 and finally found something that works for me. Your story really resonated with me and made me very emotional. I also now make the most of getting out and about. Long trips out just never used to happen for fear of needing the toilet, meals out were certainly a no go. Like yourself i also have 2 beautiful children and so even though i have at times believed by body to be useless and messed up, i realize that its also pretty amazing too. Thank you for being so honest and open and also raising awareness of this condition. ❤
Ali, that was very thoughtful and informative. Thank you for sharing with us. The more we know and understand these difficult issues, the better we can support those facing these challenges. I've had IBS-C since I was ten, so I can understand how the insidious and lengthy episodes affects our quality of life. I'm so glad the Jpouch has given you so much relief and an opportunity to have a rich and full life! Hopefully this is just a minor bump in the road, and it will settle and heal. I hope you do tell us your ulcerative colitis story..it helps both the teller and the receiver don't you think? I love this line from the Louise Penny, Inspector Gamache series, "all will be well and all will be well".
Thank you for sharing, you did a great service by explaining your experiences. I'm a colon cancer survivor, so I relate to many of the things you have gone through.
Thanks Ali,,,!!!
For all the explanation,,,,,
Glad u have a great team,,,,,and feel better soon,,,,
I am sure it helps alot of people,,,,!!!
Take care,
Elaine 💖💖
Fish and chips van!!!!oh how great,,,!!!
I hope you are feeling better.. you are so brave !!!
Oh, Ali, this video has been amazing, i am currently in bed with a flare of crohn's disease, its so nice to know i am not the only one with this situation ❤❤
Thanks for sharing your story, hope you feel better today xx
I am so grateful to you talking about this. I am currently having tests to work out what’s going on with my dodgy bowel and I find it really hard to discuss with anyone other than my partner. Knowing that other people have differences in the way they function, especially in this area, is always so refreshing. Thank you for being so real and I hope the meds get you all sorted soon 🥰 x
Omg! I want a fish and chip van!!!
I actually didn’t know that there was an internal solution for bowel issues, rather than having a stoma/bag. That is very good to know, and you explained it all so well. I do hope that your inflammation is temporary and that it clears up soon with antibiotics. ❤
love Lilia's nails!!!!!! 🖤
❤ very interesting, thank you for sharing. I have ulcerative colitis as well. I have an intravenous medication every two months, I’m so grateful for that. Huge change in my lifestyle as well. Thanks again 💕
I hope you feel better soon.
Very interesting- thank you for sharing!
Lilia's nails look so good! Thank you Ali for discussing the J pouch! I don't, but, I know so many who have these issues.
Thank you so much for sharing about your J pouch! I found it really interesting. I hope you,re able to get things sorted out and start feeling better soon !
Thank you for sharing. Valuable information x
Thank you for sharing all of this, it has been really interesting! Glad to know you've managed to get in touch with the hospital. I hope you're feeling better soon x
Sending good wishes your way and hoping you are feeling better soon! Thanks for sharing. I’ve had colon surgery years ago and I’m happy that everything turned out well. I’m very attuned to my “inner workings” as a result. 😂 When your digestive system is upset or hurting, it seems to make you feel bad all over! Hope you feel back to your perky self soon!
Hope you're feeling better soon. We are so lucky to have such a wonderful NHS ❤
i'm glad your health care team is so quick to help you and hope the meds will make you feel better soon.
❤Ali you are a warrior. It is a wonderful life. I’ve the same crooked knot at that same joint of the same finger on my left hand…… I guess we’re somehow related. lol.
Loving Vlogtober. Thanks for this info
I hope you feel better soon. And thanks for sharing your journey with us. And on a lighter note…..A FISH AND CHIPS TRUCK??? You guys in the UK have way cooler stuff than here in the US. 😂
I have the bump on my middle finger too. It’s on my left hand as I am left handed. I’ve always presumed it was due to the fact that I hold the pen or pencil very tight when I’m writing.
Thank you for sharing, I found it very interesting.😊
Thank you for this lovely video x
Thanks for sharing Ali! I admire your resilience and the fact that you definitely don’t go on about Poor Me!
You and your family have a terrific attitude to life and I love you for it ❤
Awh I’m so sorry you’ve had such a rough time in life , sounds like you’ve been on quite a journey, I’ve just started my journey , I ve to get a colonoscopy which is booked for next month ,and dreading it ,as my test results showed an issues in that department . Thank you so much for sharing this information with us it sure helps me knowing what to expect. I wish I was as positive as you as your always so funny and pleasant on your vlogs . 😍💕xx
Brilliantly explained! Another great visit. Loved your mom’s reading yesterday. Her historical references were fun to hear. Happy pumpkin hunting!
Sorry you're suffering right now. I am just watching your Monday vlog and hoping that by the time you read this you'll have got some good medication xx
Thank you for making this video. I’m sure it will help many people who are suffering like you were. It sounds like amazing surgery to enable anyone suffering to lead a normal comfortable life! Very courageous of you Ali. Thank you xx
All our struggles and difficulties in life that we accept and overcome make us so much stronger so Ali you are a strong and beautiful woman inside and out, I am sure you have helped many people talking about your health journey, I have cared for many people with Colitis, and so many were relieved to have surgery to regain freedom from their condition, feel better soon. Love & hugs, Suze. ❣️🤗🥰 xxx
Hi Ali, thank you for sharing with us. I hope your feeling better soon and that the dizziness improves with the treatment. I have an autoimmune disorder too, it was interesting to hear your thoughts on health and body functionality, I feel the same way. I do think it's definitely outpoop not output from now on! 😂
Thank you so much for sharing your journey with UC and being a j poucher. It was interesting but what a horrible time you’ve had. Hope you feel better soon.
You are so wonderfully open and honest and that is fantastic! Thank you for talking about all of this, you will definitely be helping others by talking about it 💛
Gosh you have bravely been through a lot over the years. I bet you have given hope to lots of other sufferers with your excellent explanation. I hope you feel better real soon. X
I have a bump on my finger too and it's from writing with a pen I think as it's the middle finger on my left hand and that's the hand I write with. Thanks for sharing your JPouch journey, I hope it will settle down soon. I have chronic joint pain and it's not fun, I also get a bit of anxiety when I feel unwell due to past experience with autoimmune issues.
I hope you got some meds today and are feeling better, Ali.
Just watched this video. Hope you're feeling better soon. Antibiotics are such a gift. 19 years seems to be an age where the immune system in some gets a trigger and blasts off into a world of unidentifiable pain and weird symptoms. At 19 I was sure I had MS. All the symptoms..but symptoms that came and went. After 30 years of unreal lower back pain especially hormonal times, a Dr from Poland came to my superb and had the same thing. Unreal. She recognised what was rmwrong immediateky. Specialists refused to believe females could have this. Its an autoimmune thing. The marker on HLAB27 in the immune sequence had triggered at 19. I'm thinking it was a Smallpox immunisation. I feel for you, sweet girl and hope that your drs will sort you out asap. Blessings for good health xx
Bless you miss I hope you are fit as a fiddle soon
Thanks for sharing. Glad you are doing well. You are so positive all of the time and inspirational in all that you do.
Hi girl get better soon, thanks for the info big hug
Thank you for talking about stuff that usually isn’t talked about…it’s about normalising what our bodies do and don’t do and opening up discussions about it…and that way people don’t feel like that they are the only ones that have stuff that’s happened to them.
Also I have a little bump on my middle finger as well on my writing hand…I think it might be from the way you hold your pens/pencils because my sis and bro don’t have it…
This was very interesting, thank you for sharing such personal information with us. Now when you mention having issues with your J pouch we’ll understand better. Enjoy your pumpkin picking 🎃
oh, I want a fish & chips van on my street!! Sounds adorable. Thank you for explaining this in such detail. I did wonder if the pouch was an external thing, like a colostomy bag, or internal. Now it's totally clear. I've had IBS for the last 30 years, possibly more, with my ups and downs, and I know how these things affect our lives. You've been through hell... I'm glad there was a solution. Hope you get better soon!! x
That was actually very interesting and I am relieved to know that you have a good team of health practitioners in your corner. Thanks, Ali!
Ali, thanks so much for sharing your journey with us. Such a personal subject, but one many deal with and it's nice to be educated on solutions to bowel problems. Thanks again!🦋
Thank you for sharing your story. Sometimes you feel alone and people think they understand but dont. I dont have a j pouch, I have some symptoms of uc and some of crohn's, which they call indeterminate, medication helps some times, which I am able to adjust myself daily. My consultant is also a great asset to the NHS. Take care. I love both Chanel's, I love crochet, but definitely no knitter.
Hi Ali. Thank you so much for sharing and talking about bowels. It will help people I have a complex bowel condition and it can be hard to cope. So Thank you ❤
The bump on your finger is from holding a pen or pencil for years. I have it as well.
Ah you would think so but we were born with it! Although I do love drawing, maybe I was born with natural reinforcements 😄
@@ThisLittleWonderfulLife oh wow, maybe we’re all born with it lol!
Also, thank you for talking about your J-Pouch. My son was diagnosed with Crohn’s 5 years ago and spent a lot of time in hospitals. He had surgery and has been in remission since. Hopefully the antibiotics do the trick and you’re feeling yourself again soon.
it's hard to tell you are struggling because of your pleasant demeanor, I think I would not be as nice as you. I hope that your will feel bright-eyed and bushy-tailed very soon. ❤
Lilia's nails look very cool! I used to have that same bump as you both - I always thought it was because I wrote a lot.
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Sorry you've been feeling rough at the moment. Thank you for sharing your chronic illness, I was aware of your pouch but not why you needed to have it and how it affects you. It was really eye opening. Looking forward to the last week of Vlogtober, it has been great so far x
Thank you for this video - very educational, and also inspiring to hear how the procedure changed your life so much. I do hope you feel better soon.
Love your volgs and just wanted to say that I really like you without bangs and longer hair. Very pretty! My son-in-law is a gastroentorologist and we all call him Dr. Poop. His 2-year old daughter's favorite book is titled "Everyone Poops!"
Giving this comment a big gold star ⭐️ That’s so brilliant! I’m so grateful that people choose gastroenterology as a specialism and I do enjoy some poo humour 😄💩
I'm so sorry you've been feeling lousy, but you did a great job explaining about what you have been going through. I hope you get to feeling better really soon. And Lilia, those nails are amazing. Have you seen the powder gel stuff? My daughter does hers with that and really enjoys it.
Thank you for sharing ,it was so interesting , hope you feel better very soon 😊, my husband was rushed into hospital 20 yrs ago he had emergency surgery and is very lucky to be here he has diverticulitis he had too have a colostomy bag fitted but luckily he had it reversed 18 months later , he still gets some flare ups but is much better, then my son was diagnosed with crohn's disease when he was 30 and he has had a few flareups and ended up in hospital and the last time was 2 yrs ago now and now they saying he has Colitis he is now 39 and fingers crossed doing good at the moment, it is so nice you can talk about this , I googled lots of things over the years but not always had the correct information Thank you again for sharing your experiences 🤗x
Thank you for sharing your experience with us and yes, I was very interested in your journey. I had googled what a J pouch was and thought how amazing it is that they can do this. Hope you are feeling much better. You always look amazingly bright and cheerful which is why I enjoy watching your vlogs. I strongly believe that a strong positive attitude goes a long way.
I confess I have often wondered if you were able to 'go' in the normal fashion. Thanks for a great explanation. xx
I hope it settles done soon thanks for the information.🐧🐧🐧🐧🐧
Thank you for sharing this. I don’t have a j pouch but totally relate to your thoughts on not always appreciating what our bodies do for us. The words to that song made me emotional! I am loving your vlogtober and watch previous year’s also n the evening. Guaranteed to be very calming and I truly thank you for that🧡
That was really interesting learning about a j pouch!I really was clueless.
I have the weird bump too
Thank you very informative. Take care and hope you feel better soon. ❤️
Thanks for sharing I’m always interested in how the body work and it’s flaws. I’m an ex nurse retired early due to a spinal abnormality this equals chronic pain,depression,fatigue etc. your J pouch fascinates me as I hadn’t heard of them. Love the crochet example. My Brother in law was diagnosed at 16 years of age he had a colostomy in his early twenties. I feel the ulcerative colitis, has lowered immune response so at sixty catches cold etc easily. He isn’t physically strong etc. I always felt that boiled or poached eggs saved him before and after his surgery. His go too food. So best wishes for your specialist appointment. Take care of yourself. Love julie Tasmania Australia ❤️❤️
Thank you for your explanations about your J Pouch. My mother had a rough go in the early 80's which involved two colostomies. I was familiar with what she went through. Her colostomy bags were external, and I assumed the JPouch was also. Your explanation helped. I come at it from being diabetic, and having a serious allergie to soybeans. So..I understand some of what you are talking about. I can relate to staying hydrated and the importance of potassium. My system did a huge crash in August. I had lost too much weight too quickly, and it messed with my diabetes meds, it was extremely hot, and I got seriously dehydrated, my potassium levels dropped very low. So it took quite a while to get it all unwound. I am doing much better now, but I can really related to your descriptions of the pre-Jpouch days. Only, I didn't have to do any of this with a toddler.
Such a brilliant explanation about the J Pouch!
Deb VanDerMolen. The bump on your middle fingers is probably a callous from holding pens and pencils and writing a lot. I know I have one.
Love this. Thank you from all of us that suffer… 😊♥️🍃
Thank you for sharing this was so interesting. Hope you get your medication soon and it clears the flare up. 🎉
That was an amazing explanation, thank you. Hope you feel better soon X
Thank you Ali for explaining about the J pouch. Your explanation was very good, as I had thought a J pouch was a colostomy bag. I don’t have a J pouch but pineapple upsets my stomach as well. Oh my how, funny a fish and chip van. Your Vlogs are amazing, I always enjoy them. I hope you will do Vlogmas. I bought the Greenlampkins Christmas box today, I wish I had gotten the advent calendar as well. Lillia’s nails are so cute!
I think it's brave and tough of you to be so open about it and to explain it well, because unfortunately there is still a taboo on these kinds of things. I also find it striking that we have similarities with regard to the sunken stoma, I also have a sunken and narrowed urinary stoma since I was 15 (almost 50 years old ;) ) At the time they were not yet that advanced in medical science, so they then had my bladder must remove. Nowadays they can also solve it internally. Unfortunately not anymore for me because I have now had 15 correction operations for the narrowing and galvanization, all of which have failed, but I can no longer have surgery for corrections, etc. because my small intestine has become too short. And there is no going back. So we will have to (learn to) live with it. I'm doing well by the way ;) But there is still a taboo about these matters and they need to be broken and that's why I think it's brave and tough of you to be open about it, just like me. it's just part of us and without it we would have a completely different (worse life) so I embrace mine every time despite all the complications. it belongs to me and is part of my life. I also have to take 2 to 3 liters of fluid every day and I also have to pay attention to what I eat and take vitamin D and B12 for my intestines because my small intestine is too short. I hope that you feel better soon and that everything is not too bad and that you can do what you want again. You are a cool girl ;)
Just want to say thank you Ali - that was brilliant - and sending love to you all x
Thanks for sharing really good information this helps people feel they are not alone, love the fingernails 🎃
I used to have a bump like that on my finger years ago and I think it was from pressure of writing with a pen all the time at school? Now most that I do is laptop based it seems to have gone. I didn't even notice it go... I just looked to see if I still had it when you were comparing fingers with Lilia. Wicked nails by the way Lilia!!!!
Ali, thanks so much for sharing your JJJJourney with us. (sorry, couldn't resist 🥰) I looked up the topic some time back and still never fully understood what you were going through. Your explanation has made it so much easier to understand. I hope the new medicine does its job and makes you feel better and you can get out and enjoy those long fall walks . BTW, love the nails. How did the cake turn out??
We do have to talk poo more! It’s such an important indicator of what our internals are up to. I’ve had 5 perforated ulcers, I have also had a 2 inch split in my stomach both because I was on Voltarol for too many years and have a very thin lining. Then to top it off I had a tumour in my duodenum, which I’ve since have mostly removed along with tumour. More ups and downs with the the cameras than I care to think of and a few blue lights at high speed to get me transfusions. Like pee, the colour is a big sign of how we’re doing. Take more note of what you flush people.
I have a friend who has a pouch, but she has had a great deal of trouble. She can hardly leave her couch and has a lot of pain.
Thank you for sharing this. I didn't know whether to say this or not as I didn't want it to be something extra for you to think about, etc. If it were me I would go to my Dr/Specialist & explain about how poorly & uncomfortable I've been with my periods & the J Pouch. Simply because there could be something else going on. Although not having a J Pouch, a friend of mine had her ovary adhere to the outer wall of her bowel and she was in so much pain. Just a thought to check out & cross off the list if it isn't that!
Thank you for sharing your experience, your so brave! What a scary time it must have been when Pheobe was so young. I realy hope you feel better soon. P.s love Lilliahs nails! 😍Xx
Thank you for sharing , it is very interesting . I hope you get some antibiotics , so you can get to feeling better ❤ I love Lillia her nails , so cute and what a good job 👍🥰
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Thank you for explaining and updating us ❤ hope you’ll feel well very very soon ❤ Lillia’s nail art is beautiful!!! Also, we usually get the bump on the middle finger as a result of writing, so it might be that? 😊 hugs from Sardinia, Simona xx
I'm so glad you posted this as I have been worried about you. I do hope your j-pouch has a smiley face like your crochet one 😂😂 Hope you feel better soon xx My rubbish bowels are under investigation at the moment. Being referred for a colonoscopy so that's something to look forward to 😬😬💩💩
I have the same bump 😂