I'm a med student and your video was really helpful for understanding CAIS, especially the human side of it instead of just a textbook description. Thanks for sharing!
Aoife Cox of course! Feel free to share with the other students in your program! I often speak to med students to give them a better idea of intersex experiences, since the curriculum and textbooks leave so much out. happy to help! 💖
Me too :) I often look up diseases on RUclips when I want to hear firsthand from patients who experienced them, it definitely helps to remember and empathize with
I am so scared. Where I'm from, we don't talk about these things. We don't acknowledge it. I'm 31 now and I don't have a conclusive diagnosis yet cause the tests are sooo expensive and health insurance is not really a thing here. I have female appearance, no boobs, no periods, baby voice and I'm 6'1". Good to know there are people like me out there.
As a med student, i just wanna thank you...the way u explained it was amazing...and ya as others said before.. reading a textbook was okay...but seeing ur video gave me sense of what really happens and how it feels as a human to have it.
Standard CIS male Hetro here. I just wanted to drop a note in support. You have helped me so much think about gender/sex/and what it means to be "Intersex". I have a lot to learn - but seeing what I see to be a very "feminine" "Female" "woman" in front of me - who is intersex and is so open about her experiences forces me to think. If I find a woman like you attractive, female, feminine and all the things I used to think about my binary concepts of gender - what else have I missed and simply assumed? Thank you for being open and I wish the very best for you.
Please keep making informational videos like this! I am going to school for nursing, and love to learn as much as I possibly can. The more we know, the more we can be accepting and loving of everyone else!
Ch1na of course! I'm happy to help! Feel free to share with the other students in your program! I often give talks to med students because the curriculum and textbooks have so little accurate information about us!
Med student here and your explanation of CAIS was amazing! I literally made my notes from your video :D PS, I'm so jealous that you don't get period, don't sweat and don't have to shave!! I have PCOS and have to deal with elevated androgens, facial hair, more body hair ...:( UGH
Hi, I'm so happy that I found your channel. I have the same syndrom and in my country no one speaks about it. I'm 26 and it's been 11 years that I'm looking for this kind of videos. I'm a woman and I built my personnality but I guess it's just a little relieve to know that there's others women like me. Have a great day and keep the good work ! +1 subscriber obviously 😀
Hi! I just wanted to say thank you for posting these videos. Im a young teen with Cais and my parents found out after I had a hernia at 9 months so I always knew my whole life. Its really hard for me knowing I dont fit in with the other girls talking about their periods and cramps. It was also really hard knowing I was infertille as a child. Your videos really help and inspire me! Thank you for helping me with having cais. :D
Literally just found out what CAIS is today and I am in complete and utter shock! Also I'm kind of jealous of all those benefits you have (no hair no smell etc). Thanks so much for sharing :) !
I have the same exact version of AIS and this is the first time in my 37 years I’ve ever heard someone else explain my exact experience. It’s such a relief! The science wasn’t there when I found out in 2002. I’m learning so much more now.
haha it's true! But thats also because I was able to escape surgery from my doctors. Most people don't get to do that, and I've also had a lot of other negative things because of CAIS! Feel free to watch my other vids on surgery if you want to know more. But you're right - those perks definitely help make it easier!!
It sounds pretty good but on the other hand the fear of people finding out and being bullied because your different and the mental frustration from the Secrets would be just as horrible
@@rebeccabrooks3648 That was how life was for a majority of intersexed people before a group joined together and created the Intersex Society of North America. The ISNA was a springboard for winning basic rights, like bodily integrity and refusal of surgery, that "standard-chromosomed" people take for granted. Their generation suffered lonely and often frightening childhoods spent being rushed off to nebulous "procedures" which were never fully explained to them, and many said during their childhoods that they suspected one or multiple truths about themselves were being deliberately hidden from them. They created www.isna.org/ to ensure future intersex kids would not have to suffer like they did. You can read their stories to see how life was for many. Be warned, most are very sad. It is vital that we do not go back to those days of old, where babies and children were operated on years before they understood or could consent to what was happening-and in the process, so many lost so much, including orgasmic sensation, normal endocrine functioning, and proper adult bone density, to name just a few. I hope ISNA continues to stand strong so future generations of intersexed babies and children can keep every right they have today and then some. We cannot go back to the way things were, cutting up babies and toddlers before they could speak, just because they did not fit into a strict and narrow definition of normal.
I've been searching for so long to find someone talking from firsthand experience about being intersex. I'm so thankful and appreciative that you're doing this and I look forward to seeing your videos in the future and educating myself as much as possible!
You are such a delight, thank you for being a great role model for so many young kids out there that are looking for answers. Keep doing what your doing. 💜
I was recently diagnosed with CAIS and it is really cool to be able to relate to all the things that your talking about because I am living these experiances as well. Thank you for making this video to make all of us others a little less alone :)
do you view yourself as having a disorder ? I'm engaging in conversation on twitter, and this person is telling me I should talk to people.(I brought it up during a conversation that stemmed from that maned lioness) it seems to be wrong of me to see it as something medical.
This was so educational and interesting. It's crazy how our bodies try to "fill in the blanks" when something isn't quite normal as we develop. I'm glad yours figured something out and made you into such a cutie. Also super jealous of the not having to shower thing. That must be so useful when you're doing anything strenuous and don't even have to worry about the self-consciousness.
Thanks for making this video and being public about your health. I know it's hard and I think you're brave for being open. Please keep making more videos.
In Austria we learn something about the CAIS at the University. Your explanation from firsthand is really helpful and interesting. Thank you for your selfconfidence and acceptance with it and the willingness to share it with other people. Amazing.
Thank you!! I'm excited to be making vids! I'm just starting out but I have more on the way. My next two are about surgeries on intersex people and I was researching vaginoplasties which is how I came across your vid. Thanks for making them!!
@@melc311 this person does not have a penis. this person has a vaginal canal. this person is socially perceived by everyone as female, to the point where unless someone was told this person had CAIS beforehand, they would think this person is just like any typical female. this person exhibits female anthropological & behavioral patterns. society perceives this person as a female. why, oh why, should this person be considered anything other than a female? explain your reasoning.
This is both a very informative and humane video. Thank you for making it. And you’re right! Males and females have the same hormones, just different levels. We’re all really not that different from each other. I’m glad you weren’t operated on! A lot of people who are express horrible experiences of feeling like they were broken and needed to be fixed just because their bodies didn’t meet doctors’ expectations.
this is such a wonderful channel, so happy to have found it. i am not intersex myself (not that i am aware of) but am always curious to find out more about humans and the differences. i find that the society is still largely close minded about a lot of natural things, and awareness is the first step to learning about and accepting ourselves.
This is so interesting and totally peaks my "scientific" interests. I've always thought it was amazing how our genome is set up as humans in general, how we develop during conception, etc... It's great that people who are intersex are putting information out there where there wasn't any before. Maybe it will help the next generation and stop the unnecessary operations in the future.
I really love the way you explained all of this!! It was extremely articulate and a bit different from how other intersexed people's conveyance of this topic was. It also goes to show that every so-called "abnormal" condition isn't without upsides, things I never would have known had you not revealed them! One thing I'd like to know though, simply through observation, is if AIS produces clear skin: because yours is absolutely clear and beautiful!!! Thank you so much for the info and good that your life wasn't a nightmare as so many others was. But of course, I wish them well as I do you!
Thank you for posting. I am intetsex too and it's so AWESOME to hear from others and know you're out there! I, too, hate the "syndrome" part of AIS which we have! Much love to you and THANKS!!!
First time knowing this and am 75. The body can do some crazy things. Love the video and your out going personality. Hasn't affected your sense of humour and your healthy outlook. God bless for the new year and sunny days ahead.
All my friends were always curious and kinda jealous at me because I never had acne, always had clean pits, and never had period cramps, etc. I found out in 2014 I was androgen insensitive and couldn't care less 😅. I already knew I couldn't have biological children since my lack of periods but to be honest, I dont want it either. I dont want to bleed 🤭. I'm happy as I am. A huge hug to you.
Same things but get older and estrogen levels dropped that's when I got acne because of the imbalance no facial hair always looked like a girl born with both genitals but sewed at birth which back hrt 4 years finally getting my body back and emotionally more stable since the nonexistent hormones you don't really have emotions 1 month back wow the flood gates opened like crazy
I have CAIS too, it was only recently discovered as I was raised by a single father family so menstruation wasn't really talked about. It was such an eye opening experience finding out what all these strange things I experienced growing up had a cause!
@@dogerogue6621 so this should never be seen as a disorder, and this person is correct in "it's an identity". ? should we not see this as a medical condition at all? I used this as an example thinking nobody could say "it's a social construct" (this person in question also believes physical fitness is a social construct)
It’s so nice to be able to hear from someone else living the same way as me. Experienced a lot of negativity at high school and really began to self loathe. I later realised this isn’t something to hate about myself it’s something to celebrate. I’ve never met anyone in the same position as me so your videos help me relate and know I’m not alone. You’re an inspiration ❤️
Emily these videos are great. Tonight we sat down with our little one (she's 8) and started to watch. This last week has been interesting with questions from her. Amazing questions but hard to answer on the spot. I have made some great connections in the intersex community, they have all been amazing with help. However, Joey loved your videos. She laughed and intently listened. she even said , Now I don't need to take a shower. HA, I said well as long as you roll around in the dirt and have lollipops stuck in your hair you are taking showers. lol. Thank you for being so personable in your videos and speaking out. We will continue to watch, learn and share. ♡
Tiescha Thomasson aw that is so so great to hear!!! Haha sorry for planting the no-showering seed. though tell Joey I shower after hiking and playing outside everytime! (or mostly every time but don't tell her that ;) )
Tiescha Thomasson I'm trying to keep these as kid friendly as possible but the next two videos are about surgeries....just fyi! they're a little heavier. Maybe there's a way I can put a rating on them if they aren't quite age appropriate...?
Emily thank you for the censorship for the young ones. we preview them first to make sure she is okay to watch. You are doing great. No accommodation needed here. I know that we can revisit some of the videos when we feel she is ready. ♡
I thought you saying you didn't shower for a month once was very real of you, and it makes sense given that you don't really have body odors and such. I appreciate that you can be honest about it, it brings the video down to Earth a bit, in the sense that I feel like I'm having a conversation with a friend but learning a lot at the same time. Thanks for a great video :)
Thank you so much for the transparency and for sharing! I am getting ready to have a baby in 2 months and they believe my baby has androgen Insensitivity! This video put my mind at ease and made the syndrome not seem so scary! Love the perks part!😁 I would love to know how your parents handled sharing the info with you and what helped you and what was not so great with dealing with the information. I have heard alot of ppl say in my research that they hated the shame of it. My problem is I tend to be super open about stuff and am trying to find the line between her privacy and being honest. Who to tell and who not to tell etc. A whole new world for me and navigating it is almost worse than the thought of my child having the syndrome. Any helps or suggestions are appreciated! ❤
You are just the most beautiful thing in this world !!! And talented at making videos as well . . . It was really nice to get educated about Intersex . . . and how interesting the way life plays these little tricks. Thanks for being You . . . such a wonderful piece of Creation. -Carey from Michigan
I'm very appreciative of your videos and you have described me to a tee. I'm so fortunate to have escaped surgery. Im glad to have found a group of my peers. Looking forward to your videos. Thank you...
I saw your TED talk and just wanted to say that it was so, so, so, SO good! :D This video is super well put together too. These are topics I really don't know much about, but I'd love to learn more. I think it really sheds light on how complicated sex actually is and, consequently, makes the idea of putting it into a binary seem so arbitrary/silly.
This. Is. Awesome ! Thank you, really thank you for sharing your personal experience. Information on intersex conditions is rare and mostly medical, not about experiences. The fact that you don't have body odor or body hair is news to me ! I'll keep waiting for the next video :-)
Thank you for the intell I found out I had CAIS when I was 14 years old and everyone tried to sugar coat it for me.. so it wasn't until last year that I turned 22 I really started to understand what I have.. thank you for making this video it was emotion for me but it was something I needed ❤❤
Thanks so much love! I'm glad. It was when I was 22 that I finally started to understand and process it too, and that was the first year I went to a support group conference. You should come this year if you can! It's in Phoenix! aisdsd.org
Your story is so compelling and you handle your 'difference' with such grace. I knew about androgen insensitivity but didn't know that people who have it don't grow body hair, get acne and have either no or undeveloped sebaceous glands! My heart breaks when I hear that so many politicians want to take away rights from people in the LGBTQ+ community, based mostly on their ignorance of the vast differences in humans. I'm bi, have been since high school and know that much of our preferences are due to both 'nature and nurture'. I'm a 'manly man' at 6'4" tall but was raised by very strong women, including my mother and two older sisters, so I've been in touch with that side of myself since birth, basically! Proud of you for being so positive about who you are and for educating people about it. That's important in this day and age!
Emily you're so bright, I learned so much, more than I would in a biology class. You have an amazing personality, and beautiful smile. I'm glad you're able to see the positive side of your uniqueness. 😘
THANK YOU!!! I am not intersex, but I am an enthusiastic fiction writer. I really want to represent the intersex community in my stories, but I always get too scared of misrepresentation because I know it's not a "one-size-fits-all" experience. Long story short, I get so overworked about failing representation, that I give up and don't represent at all. I care so much for you all, and the idea of hurting any of you by writing an offensive, stereotypical or flat character breaks my heart. So THANK YOU!!! Thank you for both breaking down your life experience scientifically, biologically, and EMOTIONALLY. It gave me the education I needed to write a well balanced, multi-layered, generally accurate character if they had Androgen Insensitivity. I will definitely reserch more, both online and through other's life stories, (because the more homework the better!) but I just want to thank you because this video was an incredible help. The way you explained things both cured me of my ignorance and inspired me to create. Thank you for sharing your story!! It has been the most helpful research for me by far. It may take time for me to be fully be confident in writing or co-writing an intersex character, but I am one step closer to proper representation. I hope to remain humble and aware of my shortcomings so that I will create characters, and stories, to be proud of.
I truly appreciate your willingness to explain the terminology and what, biologically it describes. It helps me to be a more effective ally to individuals with whom I may come into contact. You are a beautiful individual, and you are appreciated.
Thank you for sharing and educating us... I run peer to peer support group for transgender and intersex individuals... there is so much to learn. bless you
You are helping so many people by talking about this. I am here because I find it all very interesting. My mother was born a twin. Her sister wound up having four children all four were boys. In my family there are also four children. Three girls and me, one boy. Growing up everyone would say "such beautiful girls you have!!! when we were little. That pales in comparison with what you went through while younger, but I sure do love your videos, and they way you talk about something that is needlessly not talked ab out. I subscribed to show my love and support for you. You are fascinating I could talk to you for hours.
Dear E, thank you for this video! Its devastating that we dont learn this in school. Im 34 and I've learned so much from you only by watching this single video. Thank you!
I know nothing about Intersex but I think you are pretty cool for helping people understand. And I wish I could also go without showering for a month (especially in winter)
Thank you for a super video! I've pieced together many of the things you say here from other sources. Your video has all of the basic information about CAIS in one location! Well done!
I have xx chromosomes and my body converts my estrogens to androgens. I found out recently I have PCOS, and hormonally our bodies do the complete opposite(ex. I have excessive oil and body hair. Sometimes have too much of a cycle and other times none at all) It’s actually kind of cool, shows how unique we all are. Really expands on just how pointless gender roles and assigning can get.
Great informative video. Those perks are to die for , plus you're gorgeous , meaning CAIS doesn't interfere with female appearance. But I really hate those forced non-consensual surgeries.
Thank you for being so open and helping educate others, like myself. Like so many, I have been grossly under-educated. Thank you and great job on this video!
Clicked because you're adorable but discovered this absolutely fascinating video on a subject I didn't know existed. Liked and subscribed. Looking forward to becoming more familiar with this.
Thank you so much for sharing your experience! I'm a medical student, and I hope I can shed some light on the usage of the word "syndrome" from a medical standpoint. It's basically a collection of findings due to a root cause, and shouldn't be used interchangeably with disease or disorder. For example, PMS isn't a disease and there isn't anything inherently wrong with it, but rather it describes a variety of signs and symptoms that people experience during the hormonal changes. I hope that more information about the scientific side of intersexuality and other sex/gender discrepancies spreads to the general public in the years to come. People can be cruel when they don't understand, unfortunately.
Thank you for sharing this information so clearly and humanely. You remind us that each of us is a member of a human race that is very diverse, something to marvel at, not to scoff at and make some people suffer for.
Before all of this, I would’ve completely blew this decision as a parent… “What? I get to choose?“ Oh the gates of hell for my baby it could’ve been in the end …and who knew? We don’t even know how many Trans kids started out like this and no one told them! No really! BE KIND TO EVERYONE! DONE ✅ 🌺🌺🌺🌺🌈☀️🍭🌹
The getting to choose is not exactly accurate. It is very dependent on type of 'disorder' that is causing the intersex condition. For example the creator of this content having CAIS, there was never any outward appearance of anything other than female. The reason for this in overly simplified broad terms. All vertebrates are inherently female. Not to be insensitive to the creator or other people who have CAIS, but makes me think about a House MD episode about someone with CAIS in which the character of Dr. House states: "The perfect woman, is a boy."
Well you said in starting that you are not a doctor but you explained in exact textbook manner, I am a medico and you covered every aspects of disease from intrauterine growth to puberty. Very well done.
I just want to say that not everyone with AIS or CIAS identifies as fully female, so I would be careful if you happen to meet someone who is intersex and make an assumption about their gender identity. I have AIS, and I identify as both male and female.
@@MissSpaz People can identify as whatever they want, that is a label, and won't change what the person is. We know that the person on the video has XY chromosomes, so is a male, biologically.
This video has been super util to help people understand and dispel prejudice (I am not intersex, but I like science and respecting people). This helps a lot because it has the proper balance between scientific information, experience, and common lenguaje.
I enjoyed your video. You have given the best description of the gifts we have. Your kind clarifications of medical experts. I will add how they stride into ignorance, the poor things suffer irrational hostility”misogynony”, a morass of complexes, great men, explorers of natural history in the tradition of Royal Society. We all have our gifts. Life is a gift, everyday is a gift, problems or challenges are gifts. For me I was effeminate looking child. When my mom took me out, near always, I was mistaken for a girl. Typically we heard. "What a beautiful girl you have" sometimes we didn't bother to correct the observations of well intended. It was the late 60s, mom dressed me as a little hippie. So I hard long hippie hair. Sadly a lot of people turned angry and sour when they realized I was a boy. Especially older men, they looked at me like I had just burned the American flag. Again sadly, it was the years of the Vietnam war. ha I could go on but I think you can guess the rest. I learned from you , gratefully, thank you.
You've made me a bit jealous. No periods, no body hair, no b.o...and unfortunately my body responds too much to testosterone, so I have to take meds to keep it in check and limit the amount of unwanted body hair...😲
Jason James While I am aware that your comment is a year old, I must admit I am ashamed that you feel that way. If I went to a doctor to reduce unwanted body hair, I'd be incredibly upset to be refused treatment.
What a good video! I loved how you could explain something that may sound quite difficult to understand in such didactic way. I'll be waiting for the next one!! P.S.:And I love you!!
I don't have complete androgen insensitivity I'm right smack in the middle I HATE the word syndrome to sadly I have to use it when explaining things to people especially doctors
You should still bathe regularly. Our bodies have all sorts of bacteria covering them that you should keep in check for hygenic reasons even if you don't smell bad.
You explained it and I still have to watch the video again. So much info in one video. Thanks for sharing. My daughter has PCOS so understanding androgens is important.
I'm a med student and your video was really helpful for understanding CAIS, especially the human side of it instead of just a textbook description. Thanks for sharing!
Aoife Cox of course! Feel free to share with the other students in your program! I often speak to med students to give them a better idea of intersex experiences, since the curriculum and textbooks leave so much out. happy to help! 💖
Same! came here for studying purposes, and I'm grateful you shared your story!
Please keep making videos! Getting information "live" is so much more memorable than dry textbook treatments.
Me too :) I often look up diseases on RUclips when I want to hear firsthand from patients who experienced them, it definitely helps to remember and empathize with
I must vouch with you. Thank you thank you. Seeing people who have conditions helps a lot. You're so cool. Thank you so much
I'm also intersex. Happy to know that I'm not alone
I'm Noor Intersix
@@zoom2089 hi, i just saw your comment. I am also looking for someone to speak with. If you want you can find my instagram: @detduedreng.
Hi I'm the same too
I am so scared.
Where I'm from, we don't talk about these things. We don't acknowledge it. I'm 31 now and I don't have a conclusive diagnosis yet cause the tests are sooo expensive and health insurance is not really a thing here.
I have female appearance, no boobs, no periods, baby voice and I'm 6'1".
Good to know there are people like me out there.
@@janeaa4666does your girl body have a penis
As a med student, i just wanna thank you...the way u explained it was amazing...and ya as others said before.. reading a textbook was okay...but seeing ur video gave me sense of what really happens and how it feels as a human to have it.
Standard CIS male Hetro here. I just wanted to drop a note in support. You have helped me so much think about gender/sex/and what it means to be "Intersex". I have a lot to learn - but seeing what I see to be a very "feminine" "Female" "woman" in front of me - who is intersex and is so open about her experiences forces me to think. If I find a woman like you attractive, female, feminine and all the things I used to think about my binary concepts of gender - what else have I missed and simply assumed? Thank you for being open and I wish the very best for you.
Please keep making informational videos like this! I am going to school for nursing, and love to learn as much as I possibly can. The more we know, the more we can be accepting and loving of everyone else!
Ch1na of course! I'm happy to help! Feel free to share with the other students in your program! I often give talks to med students because the curriculum and textbooks have so little accurate information about us!
@Caitlyn Carvalho yeah she’s probably not gonna know about that
Med student here and your explanation of CAIS was amazing! I literally made my notes from your video :D PS, I'm so jealous that you don't get period, don't sweat and don't have to shave!! I have PCOS and have to deal with elevated androgens, facial hair, more body hair ...:( UGH
We all got molecular biology huh... Is that how you found this video too?
Hi,
I'm so happy that I found your channel. I have the same syndrom and in my country no one speaks about it. I'm 26 and it's been 11 years that I'm looking for this kind of videos. I'm a woman and I built my personnality but I guess it's just a little relieve to know that there's others women like me. Have a great day and keep the good work ! +1 subscriber obviously 😀
Hi! It's nice to meet you! There are so many of us out there - where do you live?
@shruti rani hey shruti i M also from india and i also have the same
Hiiii i have it too!
@@peekaboo4903 Hiiii :)
@shruti rani Hi shruti where are you from? I means where about in india.Just curious to know little bit more.
Hi! I just wanted to say thank you for posting these videos. Im a young teen with Cais and my parents found out after I had a hernia at 9 months so I always knew my whole life. Its really hard for me knowing I dont fit in with the other girls talking about their periods and cramps. It was also really hard knowing I was infertille as a child. Your videos really help and inspire me! Thank you for helping me with having cais. :D
Literally just found out what CAIS is today and I am in complete and utter shock! Also I'm kind of jealous of all those benefits you have (no hair no smell etc). Thanks so much for sharing :) !
I have the same exact version of AIS and this is the first time in my 37 years I’ve ever heard someone else explain my exact experience. It’s such a relief! The science wasn’t there when I found out in 2002. I’m learning so much more now.
Are you married ??
not smelling
no acne
no periods
no hairs
👌 now that's a good life
haha it's true! But thats also because I was able to escape surgery from my doctors. Most people don't get to do that, and I've also had a lot of other negative things because of CAIS! Feel free to watch my other vids on surgery if you want to know more. But you're right - those perks definitely help make it easier!!
It sounds pretty good but on the other hand the fear of people finding out and being bullied because your different and the mental frustration from the Secrets would be just as horrible
Sounds like a godsend
Some people want periods because ethwy want kids
@@rebeccabrooks3648 That was how life was for a majority of intersexed people before a group joined together and created the Intersex Society of North America. The ISNA was a springboard for winning basic rights, like bodily integrity and refusal of surgery, that "standard-chromosomed" people take for granted. Their generation suffered lonely and often frightening childhoods spent being rushed off to nebulous "procedures" which were never fully explained to them, and many said during their childhoods that they suspected one or multiple truths about themselves were being deliberately hidden from them. They created www.isna.org/ to ensure future intersex kids would not have to suffer like they did. You can read their stories to see how life was for many. Be warned, most are very sad.
It is vital that we do not go back to those days of old, where babies and children were operated on years before they understood or could consent to what was happening-and in the process, so many lost so much, including orgasmic sensation, normal endocrine functioning, and proper adult bone density, to name just a few. I hope ISNA continues to stand strong so future generations of intersexed babies and children can keep every right they have today and then some. We cannot go back to the way things were, cutting up babies and toddlers before they could speak, just because they did not fit into a strict and narrow definition of normal.
I've been searching for so long to find someone talking from firsthand experience about being intersex. I'm so thankful and appreciative that you're doing this and I look forward to seeing your videos in the future and educating myself as much as possible!
Me too.
Must be extremely uncommon.
You are such a delight, thank you for being a great role model for so many young kids out there that are looking for answers. Keep doing what your doing. 💜
Thanks Tammy. Soon your babe will be doin it too. :)
You radiate such an intense and beautiful aura of warmth!! Thank you for sharing your experience with us ❤️
I was recently diagnosed with CAIS and it is really cool to be able to relate to all the things that your talking about because I am living these experiances as well. Thank you for making this video to make all of us others a little less alone :)
do you view yourself as having a disorder ? I'm engaging in conversation on twitter, and this person is telling me I should talk to people.(I brought it up during a conversation that stemmed from that maned lioness) it seems to be wrong of me to see it as something medical.
This was so educational and interesting. It's crazy how our bodies try to "fill in the blanks" when something isn't quite normal as we develop. I'm glad yours figured something out and made you into such a cutie. Also super jealous of the not having to shower thing. That must be so useful when you're doing anything strenuous and don't even have to worry about the self-consciousness.
Thanks for making this video and being public about your health. I know it's hard and I think you're brave for being open. Please keep making more videos.
In Austria we learn something about the CAIS at the University. Your explanation from firsthand is really helpful and interesting. Thank you for your selfconfidence and acceptance with it and the willingness to share it with other people. Amazing.
Your videos are really good. I learned things about intersex I didn't know. Make more vids!
Thank you!! I'm excited to be making vids! I'm just starting out but I have more on the way. My next two are about surgeries on intersex people and I was researching vaginoplasties which is how I came across your vid. Thanks for making them!!
I can't believe I forgot about Intersex Awareness Day!! This was a wonderful video and I learned a couple of things!
Lavelle should 8876488
She is drop-dead gorgeous. Her eyes are so expressive and beautiful, she reminds me of a Disney character who also happens to be a model 😂
>She
@@melc311 Yes she. Never grew male private parts and developed a female phenotype because her body doesn’t respond to testosterone.
@@melc311 this person does not have a penis. this person has a vaginal canal. this person is socially perceived by everyone as female, to the point where unless someone was told this person had CAIS beforehand, they would think this person is just like any typical female. this person exhibits female anthropological & behavioral patterns. society perceives this person as a female.
why, oh why, should this person be considered anything other than a female? explain your reasoning.
@@melc311 xy equals male period
@@keithmarshall7715 Androgen equals male without a period.
This is both a very informative and humane video. Thank you for making it. And you’re right! Males and females have the same hormones, just different levels. We’re all really not that different from each other.
I’m glad you weren’t operated on! A lot of people who are express horrible experiences of feeling like they were broken and needed to be fixed just because their bodies didn’t meet doctors’ expectations.
this is such a wonderful channel, so happy to have found it. i am not intersex myself (not that i am aware of) but am always curious to find out more about humans and the differences. i find that the society is still largely close minded about a lot of natural things, and awareness is the first step to learning about and accepting ourselves.
Thank you so much - you have a real gift for putting these things over in an understandable way.
This is so interesting and totally peaks my "scientific" interests. I've always thought it was amazing how our genome is set up as humans in general, how we develop during conception, etc... It's great that people who are intersex are putting information out there where there wasn't any before. Maybe it will help the next generation and stop the unnecessary operations in the future.
I really love the way you explained all of this!! It was extremely articulate and a bit different from how other intersexed people's conveyance of this topic was. It also goes to show that every so-called "abnormal" condition isn't without upsides, things I never would have known had you not revealed them! One thing I'd like to know though, simply through observation, is if AIS produces clear skin: because yours is absolutely clear and beautiful!!! Thank you so much for the info and good that your life wasn't a nightmare as so many others was. But of course, I wish them well as I do you!
Thank you for posting. I am intetsex too and it's so AWESOME to hear from others and know you're out there! I, too, hate the "syndrome" part of AIS which we have! Much love to you and THANKS!!!
LOVE, LOVE, LOVE you Emily.... Super proud of to share this video and happy to call you friend...
I love how honest you are about this!
So kind of you to educate people...your openness is refreshing...
so good boo!
Thanks boo! I love you!
What is boo?
First time knowing this and am 75. The body can do some crazy things. Love the video and your out going personality. Hasn't affected your sense of humour and your healthy outlook. God bless for the new year and sunny days ahead.
All my friends were always curious and kinda jealous at me because I never had acne, always had clean pits, and never had period cramps, etc. I found out in 2014 I was androgen insensitive and couldn't care less 😅. I already knew I couldn't have biological children since my lack of periods but to be honest, I dont want it either. I dont want to bleed 🤭. I'm happy as I am. A huge hug to you.
Hi i am looking for someone to talk about having cais with (I have it too) If you want to talk, add my instagram @detduedreng
cheers to you same hereeee ❤️
❤ 🙌
Same here ❤️
Same things but get older and estrogen levels dropped that's when I got acne because of the imbalance no facial hair always looked like a girl born with both genitals but sewed at birth which back hrt 4 years finally getting my body back and emotionally more stable since the nonexistent hormones you don't really have emotions 1 month back wow the flood gates opened like crazy
Wonderful, I have be confused, now I am beginning to understand and as an older person I am grateful for your sweetness and honesty. Blessings
I have CAIS too, it was only recently discovered as I was raised by a single father family so menstruation wasn't really talked about.
It was such an eye opening experience finding out what all these strange things I experienced growing up had a cause!
welcome to the family!!! 😘
do you view yourself as having a disorder? some people do not believe it is one at all, and should not view this as "something bad or wrong".
@@kaiyodei I used to, when I used to watch idiots like Blaire White, I think much differently now and accept it as just a part of life.
@@dogerogue6621 so this should never be seen as a disorder, and this person is correct in "it's an identity". ?
should we not see this as a medical condition at all?
I used this as an example thinking nobody could say "it's a social construct" (this person in question also believes physical fitness is a social construct)
@kaiyodei It's not a disorder, it's an intersex variance.
It’s so nice to be able to hear from someone else living the same way as me. Experienced a lot of negativity at high school and really began to self loathe. I later realised this isn’t something to hate about myself it’s something to celebrate. I’ve never met anyone in the same position as me so your videos help me relate and know I’m not alone. You’re an inspiration ❤️
Emily these videos are great. Tonight we sat down with our little one (she's 8) and started to watch. This last week has been interesting with questions from her. Amazing questions but hard to answer on the spot. I have made some great connections in the intersex community, they have all been amazing with help. However, Joey loved your videos. She laughed and intently listened. she even said , Now I don't need to take a shower. HA, I said well as long as you roll around in the dirt and have lollipops stuck in your hair you are taking showers. lol. Thank you for being so personable in your videos and speaking out. We will continue to watch, learn and share. ♡
Tiescha Thomasson aw that is so so great to hear!!! Haha sorry for planting the no-showering seed. though tell Joey I shower after hiking and playing outside everytime! (or mostly every time but don't tell her that ;) )
Tiescha Thomasson I'm trying to keep these as kid friendly as possible but the next two videos are about surgeries....just fyi! they're a little heavier. Maybe there's a way I can put a rating on them if they aren't quite age appropriate...?
Emily thank you for the censorship for the young ones. we preview them first to make sure she is okay to watch. You are doing great. No accommodation needed here. I know that we can revisit some of the videos when we feel she is ready. ♡
You are so brave to talk about this so openly and the "stigma" of being intersex. We're all so different, beautiful and wonderfully made!
Im so relieved that the comments down below are supportive and not toxic
they are not toxic bc its how she was born
I thought you saying you didn't shower for a month once was very real of you, and it makes sense given that you don't really have body odors and such. I appreciate that you can be honest about it, it brings the video down to Earth a bit, in the sense that I feel like I'm having a conversation with a friend but learning a lot at the same time. Thanks for a great video :)
Thank you so much for the transparency and for sharing! I am getting ready to have a baby in 2 months and they believe my baby has androgen Insensitivity! This video put my mind at ease and made the syndrome not seem so scary! Love the perks part!😁 I would love to know how your parents handled sharing the info with you and what helped you and what was not so great with dealing with the information. I have heard alot of ppl say in my research that they hated the shame of it. My problem is I tend to be super open about stuff and am trying to find the line between her privacy and being honest. Who to tell and who not to tell etc. A whole new world for me and navigating it is almost worse than the thought of my child having the syndrome. Any helps or suggestions are appreciated! ❤
You are just the most beautiful thing in this world !!! And talented at making videos as well . . . It was really nice to get educated about Intersex . . . and how interesting the way life plays these little tricks. Thanks for being You . . . such a wonderful piece of Creation. -Carey from Michigan
I'm very appreciative of your videos and you have described me to a tee. I'm so fortunate to have escaped surgery. Im glad to have found a group of my peers. Looking forward to your videos. Thank you...
Thank you for the explanation. It really helps to understand what happens to us but not to everyone! Love your smile.
I saw your TED talk and just wanted to say that it was so, so, so, SO good! :D
This video is super well put together too. These are topics I really don't know much about, but I'd love to learn more. I think it really sheds light on how complicated sex actually is and, consequently, makes the idea of putting it into a binary seem so arbitrary/silly.
This. Is. Awesome ! Thank you, really thank you for sharing your personal experience. Information on intersex conditions is rare and mostly medical, not about experiences. The fact that you don't have body odor or body hair is news to me !
I'll keep waiting for the next video :-)
Thank you for the intell I found out I had CAIS when I was 14 years old and everyone tried to sugar coat it for me.. so it wasn't until last year that I turned 22 I really started to understand what I have.. thank you for making this video it was emotion for me but it was something I needed ❤❤
Thanks so much love! I'm glad. It was when I was 22 that I finally started to understand and process it too, and that was the first year I went to a support group conference. You should come this year if you can! It's in Phoenix! aisdsd.org
Thank you for sharing your experiences with CAIS! I'm learning this in med school and its awesome to hear stories :)
love this! you did such a good job describing everything!
Your story is so compelling and you handle your 'difference' with such grace. I knew about androgen insensitivity but didn't know that people who have it don't grow body hair, get acne and have either no or undeveloped sebaceous glands! My heart breaks when I hear that so many politicians want to take away rights from people in the LGBTQ+ community, based mostly on their ignorance of the vast differences in humans. I'm bi, have been since high school and know that much of our preferences are due to both 'nature and nurture'. I'm a 'manly man' at 6'4" tall but was raised by very strong women, including my mother and two older sisters, so I've been in touch with that side of myself since birth, basically!
Proud of you for being so positive about who you are and for educating people about it. That's important in this day and age!
Emily you're so bright, I learned so much, more than I would in a biology class. You have an amazing personality, and beautiful smile. I'm glad you're able to see the positive side of your uniqueness. 😘
THANK YOU!!! I am not intersex, but I am an enthusiastic fiction writer. I really want to represent the intersex community in my stories, but I always get too scared of misrepresentation because I know it's not a "one-size-fits-all" experience. Long story short, I get so overworked about failing representation, that I give up and don't represent at all. I care so much for you all, and the idea of hurting any of you by writing an offensive, stereotypical or flat character breaks my heart. So THANK YOU!!! Thank you for both breaking down your life experience scientifically, biologically, and EMOTIONALLY. It gave me the education I needed to write a well balanced, multi-layered, generally accurate character if they had Androgen Insensitivity. I will definitely reserch more, both online and through other's life stories, (because the more homework the better!) but I just want to thank you because this video was an incredible help. The way you explained things both cured me of my ignorance and inspired me to create. Thank you for sharing your story!! It has been the most helpful research for me by far. It may take time for me to be fully be confident in writing or co-writing an intersex character, but I am one step closer to proper representation. I hope to remain humble and aware of my shortcomings so that I will create characters, and stories, to be proud of.
Loving the series so much!
I truly appreciate your willingness to explain the terminology and what, biologically it describes. It helps me to be a more effective ally to individuals with whom I may come into contact. You are a beautiful individual, and you are appreciated.
Thank you for sharing and educating us... I run peer to peer support group for transgender and intersex individuals... there is so much to learn.
bless you
You are helping so many people by talking about this. I am here because I find it all very interesting. My mother was born a twin. Her sister wound up having four children all four were boys. In my family there are also four children. Three girls and me, one boy. Growing up everyone would say "such beautiful girls you have!!! when we were little. That pales in comparison with what you went through while younger, but I sure do love your videos, and they way you talk about something that is needlessly not talked ab out. I subscribed to show my love and support for you. You are fascinating I could talk to you for hours.
Thanks for this video! I've learned a lot! Looking forward to more videos from you!
i am a medical student and this helped me a lot! you answered all questions i had in my mind! thank you emi
Thanks for sharing and educating! Also your tattoo is really pretty!
Dear E, thank you for this video! Its devastating that we dont learn this in school. Im 34 and I've learned so much from you only by watching this single video. Thank you!
I know nothing about Intersex but I think you are pretty cool for helping people understand. And I wish I could also go without showering for a month (especially in winter)
Knowledge cancels ignorance! Thanks for the knowledge you shared. 7 years later, I hope you've continued to teach.
Great segment girl!!!!
Thank you for a super video! I've pieced together many of the things you say here from other sources. Your video has all of the basic information about CAIS in one location! Well done!
I have xx chromosomes and my body converts my estrogens to androgens. I found out recently I have PCOS, and hormonally our bodies do the complete opposite(ex. I have excessive oil and body hair. Sometimes have too much of a cycle and other times none at all) It’s actually kind of cool, shows how unique we all are. Really expands on just how pointless gender roles and assigning can get.
I like your sensitivity. You're nice. Civil. Kind to put a finer point on it. I feel joy. I feel good when I listen to you. Thank you.
Great informative video. Those perks are to die for , plus you're gorgeous , meaning CAIS doesn't interfere with female appearance. But I really hate those forced non-consensual surgeries.
Well it does interfere. It makes them prettier than other girls 😊
Of course it does not interfere, because androgen has no effect on these people.
I learned so much about this topic in 6 minutes and 9 seconds. Thank you so much! Love this! Love you! Subscribed!
Holy shit! This is fascinating :D
I appreciate how you share your experience to bind together all that more theoretical knowledge. I learned a lot! Thank you.
My body turns my estrogens into androgens and I have XX chromosomes.
Really? I've never heard of that, at all. What's the medical name for that form of intersexuality? Just curious!
Thank you for being so open and helping educate others, like myself. Like so many, I have been grossly under-educated. Thank you and great job on this video!
I'm with CAIS ,too. Thank you for your videos 🌼🌼🌼😊😊😊
Clicked because you're adorable but discovered this absolutely fascinating video on a subject I didn't know existed. Liked and subscribed. Looking forward to becoming more familiar with this.
I'm glad I'm not the only one!!
Thank you so much for sharing your experience! I'm a medical student, and I hope I can shed some light on the usage of the word "syndrome" from a medical standpoint. It's basically a collection of findings due to a root cause, and shouldn't be used interchangeably with disease or disorder. For example, PMS isn't a disease and there isn't anything inherently wrong with it, but rather it describes a variety of signs and symptoms that people experience during the hormonal changes. I hope that more information about the scientific side of intersexuality and other sex/gender discrepancies spreads to the general public in the years to come. People can be cruel when they don't understand, unfortunately.
OMG great explanation, thx for sharing,
Thank you for sharing this information so clearly and humanely. You remind us that each of us is a member of a human race that is very diverse, something to marvel at, not to scoff at and make some people suffer for.
Before all of this, I would’ve completely blew this decision as a parent… “What? I get to choose?“ Oh the gates of hell for my baby it could’ve been in the end …and who knew? We don’t even know how many Trans kids started out like this and no one told them! No really! BE KIND TO EVERYONE! DONE ✅ 🌺🌺🌺🌺🌈☀️🍭🌹
Indeed. Very likely some started intersex
The getting to choose is not exactly accurate. It is very dependent on type of 'disorder' that is causing the intersex condition.
For example the creator of this content having CAIS, there was never any outward appearance of anything other than female. The reason for this in overly simplified broad terms. All vertebrates are inherently female.
Not to be insensitive to the creator or other people who have CAIS, but makes me think about a House MD episode about someone with CAIS in which the character of Dr. House states: "The perfect woman, is a boy."
Well you said in starting that you are not a doctor but you explained in exact textbook manner, I am a medico and you covered every aspects of disease from intrauterine growth to puberty.
Very well done.
Thank you Emily for being proud of who you are and making your videos. I will be honest that I did not know that much about the subject until now.
Loved the video!
I appreciate your openness about this. You are a nice sweet person. Glad to know you are doing well.
so, basically, you're a really pretty and beautiful girl, that never gets periods...amazing!!!
I just want to say that not everyone with AIS or CIAS identifies as fully female, so I would be careful if you happen to meet someone who is intersex and make an assumption about their gender identity. I have AIS, and I identify as both male and female.
She got male spit and blood
@@MissSpaz People can identify as whatever they want, that is a label, and won't change what the person is. We know that the person on the video has XY chromosomes, so is a male, biologically.
This video has been super util to help people understand and dispel prejudice (I am not intersex, but I like science and respecting people). This helps a lot because it has the proper balance between scientific information, experience, and common lenguaje.
the music is very distracting
I'M SORRRY I'M STILL LEARNING PLEASE DON'T HATE MEEEEEEEEE
Yeah don't worry,ur interesting enough to not need it
I enjoyed your video. You have given the best description of the gifts we have. Your kind clarifications of medical experts. I will add how they stride into ignorance, the poor things suffer irrational hostility”misogynony”, a morass of complexes, great men, explorers of natural history in the tradition of Royal Society.
We all have our gifts. Life is a gift, everyday is a gift, problems or challenges are gifts. For me I was effeminate looking child. When my mom took me out, near always, I was mistaken for a girl.
Typically we heard. "What a beautiful girl you have" sometimes we didn't bother to correct the observations of well intended. It was the late 60s, mom dressed me as a little hippie. So I hard long hippie hair. Sadly a lot of people turned angry and sour when they realized I was a boy. Especially older men, they looked at me like I had just burned the American flag. Again sadly, it was the years of the Vietnam war. ha I could go on but I think you can guess the rest. I learned from you , gratefully, thank you.
Can u post mor vids please?
Very interesting and informative videos, so far. Only watched two. But I'll watch more. Love your attitude and presentation. Good job. :)
My God! This is fresh water in a desert!!!
Thank you for being so brave to share your story and educating us on this personal subject.💕😊
You've made me a bit jealous. No periods, no body hair, no b.o...and unfortunately my body responds too much to testosterone, so I have to take meds to keep it in check and limit the amount of unwanted body hair...😲
Who ever the moron doctor is that is giving you hormones to limit the amount of body hair you have, should lose his license to practice.
Jason James While I am aware that your comment is a year old, I must admit I am ashamed that you feel that way. If I went to a doctor to reduce unwanted body hair, I'd be incredibly upset to be refused treatment.
What a good video! I loved how you could explain something that may sound quite difficult to understand in such didactic way. I'll be waiting for the next one!! P.S.:And I love you!!
Yay!! Thanks so much! Love you!
I don't have complete androgen insensitivity I'm right smack in the middle I HATE the word syndrome to sadly I have to use it when explaining things to people especially doctors
I absolutly adore you and Pidgeon!! Yall are amazing seriously and truly
You should still bathe regularly. Our bodies have all sorts of bacteria covering them that you should keep in check for hygenic reasons even if you don't smell bad.
You explained it and I still have to watch the video again. So much info in one video. Thanks for sharing. My daughter has PCOS so understanding androgens is important.
Being intersex has nothing to do with being transgender. The pandering in your description is pathetic.
Yeah, that nonsense in the description needs to be edited.
Agree.
I love the way you're great being you! Exactly how you were made, perfectly YOU. Awesome video.
👏🏼👏🏼👏🏼👏🏼👏🏼you are helping so many people both to feel free and to understand. Bravo!