#stoma #colostomy#constipation welcome to my channel Sydney Stoma. In this video I will be talking about my experience of Slow Transit Constipation, I explain what it is.
I have a ileostomy for profound slow transit and it has changed my life ❤. I was on all the medication going from my Consultant and daily irrigation. I put up with it for 10 years and now I’m living. Good luck 🤞
Thank you for making these videos, problems like these aren’t easily discussed and as much as I wouldn’t want another to go through it, it’s a comfort to listen to someone who would understand. I’ve had slow transit constipation for 14 years after a traumatic birth and it’s horrible. I used to irrigate till additional surgery to fuse my pelvis prevented me from doing so. Unfortunately no laxatives work and I can go 5-6 weeks without a peep. I have a lovely new consultant who is genuinely the kindest doctor I’ve met who is considering an ileostomy which I’d snap their hand off for. I know that probably sounds crazy but I’m so fed up. Your videos have made me feel like I’m mentally prepared, as much as you can be, should the surgery go ahead.
I can completely understand why you would be considering ileostomy surgery. It was my decision to have a colostomy as I couldn't go through the suffering I was going through with my Crohn's. To not go for 5 to 6 weeks must be awful. That must cause incredible pain and is very dangerous. If I was in your shoes I would seriously be contemplating ileostomy surgery.
Hello. I’m sorry you are having such a hard time with slow transit. I’ve had it for years. Sometimes there is no peristalsis for weeks on end. What I wanted to say was that about two years ago I was worried enough to try exercises. We had a big staircase at the front of the house and I started walking up the steps slowly one at a time. I would pull in my lower abdomen as much as I could then push off as I stepped to the next step holding the muscles in as much as possible. I would stop on each step and repeat until I reached the top. I kept doing it over the following days and the perstalsis started. Unfortunately we left there to a house on flat land in the country. I also have chronic fatigue syndrome and find it hard to go to somewhere where I can start doing the exercise again. Sorry, this is a long description but I wanted to share that technique with you and it reminds me to make more effort to get out❤️🙏😊
Hi. Sorry for the long delay in replying. Exercise is good advice and works for a lot of people. Running or walking up and down stairs is a really good way to try and get things moving as you say. I am now doing stoma irrigation and that has been great so far, and I have felt my energy increase. I will do a video about stoma irrigation soon.
Thanks for sharing. Hope you are finding relief. Also recovering through CFS and think maybe lack of exercise has contributed to transit and elimination issues. Exercising is improving/ becoming more tangible (walking and physical therapy) so hopefully digestive improvements are soon to follow! Well wishes.
Bp, good tip thanks. What about sit ups and breathing as you've explained? Or rather sit on the edge of a chair and lift your legs up high and down again, then breathing as you've explained ? Same thing more or less?
Hi Sydney! I am about to have a colostomy. I have watched your videos for some time. I had anal cancer 17 yrs ago. Have gone back and forth with whether to do this. I have never felt comfortable going anywhere. It’s time! Bless you and others for sharing! It’s good to feel you’re not alone and know others understand what you go through.
Thank you for this video. This is what I think I have . I get to a point the the poop is so large around I have to manually remove it myself. Then slowly I will go . In that time I'm bloated ,nausea, can't eat , the sweat drips off me and then im freezing I drink bottles and bottles of water even electrolytes, I get pain not only in my tummy but all over my body ,headaches , indigestion, I wee all the time , I'm weak and sleep the days around . I have no life . My Dr put it down to ibs c but I just don't think that's what it is. My mental health is horrendous when my gut is bad . Can't go on like this and I'm also menopausal. 😢
I don't know other people's circumstances but digestive enzyme supplements, magnesium and vitamin b1 and b6 in foods certainly helped me speed up motility. Also it may be a good idea to make sure you have enough stomach acid. For this vitamin C, diluted apple cider vinegar before meals and possibly a betaine hydrochloric acid tablet during meals may help. Hope this is of benefit to some .
@@contrarian717 Yes most of my digestive problems are a thing of the past for now. I since cut out all highly processed foods, including vegetable oils. I also reduced sugars as much as possible. Now my anxiety levels and inflammation have reduced significantly as well. I feel much better over all.
So far the only thing that worked for me is an all meat diet. Very difficult to stick to but i felt like a new person. I am still searching for other solutions because I just can’t eat ONLY meat. But i do eat a lot of meat now where as before i barely ever ate meat.
I just came across this channel and found it to be very helpful. I have been suffering with what seems to be this problem for some years on and off but now seems to be all the time. I have just started seeing the doc about this problem but as yet she has not mentioned anything like this. She has done some bloods and stool sample and also requested a ct scan, this is something I could talk to her about as it sounds so much like whats happening. Thank you so much. Good luck in the future and God Bless.
Nice to see you again...was wondering where you were. Hope it all goes okay with you, though you didn't have slow output at first if I remember correctly. You're looking well anyway.. nice man, was happy to see you when I came out of hospital originally 😊
I believe I have this and every 1 to 2 months I have extremely bad pain but the hospital who told me I got slow transition sent to another one and they’ve said I’ve just got a bad tummy and guess this is what I have for the rest of my life
Hello my first time on. I had and end colostomy 1 month ago. I have had colonic inertia perhaps my entire life having a BM every 5-7 days never bloated no issues. Normal for me. I am a nurse and had 3 back surgeries affected Lumbar4-5 and Sacral 6:54 S1. From 1983-1990. In the late 1997 I started having difficulty defecating. Many years, many GI visits, behavior modification, anal mammography. I always flunked tests. My last Sitz marker test 30 markers ingested and 5 days later all 30 had finally made in to the top of my ascending colon. The only way I could have a BM was to manually remove it. I hid this habit from 6:54 everyone except my Dr. Treatments always consisted of fiber and trying every new laxative on the market. Laxatives and diet gave me terrible cramps and pain. But unless I uncorked the bottle nothing would flow. So I decided I wanted a colostomy for my 80 th birthday. I had many sleepless nights worried about who would care for this problem if and when I could not! So I have my colostomy but still have colonic inertia. My biggest problem is I have a significant stoma divot necessitating using a convex system. I tried several but am now using Coloplast. I cannot seem to get poop to enter the bag often resulting in pancaking. Even if I have a normal stool, the matter rests in the convex portion. I drink and eat right. Any suggestions?
Hi so sorry for the long delay in replying! I hope you are ok. What type of convex bag are you using? I use convex bags because I suffered with pancaking, I rarely have a problem with pancaking now. Have you discussed with your stoma team about a firmer convex?
@@sydneystoma385 hi! I am doing good it’s been 8 weeks since surgery. Spoke with my Colopast team and they recommended I try a deep convex. Using that with the mio click . Since I only have BM mmatter every few days it’s easy to manage. I still have to deal with some pancaking because stool is normally formed. Using the disposable bag helps. My system appears to be returning to its normal state. How are you?
You can try putting baby oil inside bag, especially where the output come out. For stool consistency, need it be soft to reduce pancaking, perhaps you can play around small dose movical/miralax mix with psyllium husk to keep it soft, and drink lots of water too.
I'm a carer for my friend. I find what causes his is medication like omeprazole etc as it's a gut tablet. Also lactulose is worth taking as it lubricates the intestine and isn't to harsh. What is harsh is fibre gel.
I had to have a ileostomy because of slow transit.. I was having an ostomy bag anyway due to a prolapse bowel.. but because I had a slow tansit it was an ileostomy.. I'm very suprised you haven't had the iliostomy.. stool comes out of small intestine instead of colon.. you need one x
Hi. I have considered asking for an ileostomy, but before I make that decision I will try home irrigation of my colostomy. I am certainly not adverse to the idea of an ileostomy. Thanks for watching.
Hi Chris, would you please be open to talk about your diet what you eat? Your videos are very helpful and that would enhance them if you would be open to that. Thank you.
Constipation really sucks!! I am sorry you have to deal with this! Is this connected to the Crohn's diseease, or is this something entirely separate? Does it only affect what's left of your colon, or your small intestines too? I am glad you'll be making more videos, even if the reason is not so fun. It's hard to find colostomates online, you're one of the few!
Hi. My Crohn's has been remission for a longtime and there are no signs of active Crohn's. My medical team are surprised I have slow Transit Constipation considering I have a colostomy. So no it has nothing to do with the Crohn's. It's all very odd. I enjoy making content and if my problems provide help for others then that's a positive. 😃. Thank you for watching and enjoying what I do.
You commented that you took a medication that caused you to virtually flood your stoma bag, could you tell me what that medications name was. I'm heading in a direction of having my colon removed and I'm using multiple enemas to try to empty material out of my colon, but they haven't given me any medication that would promote peristalsis. I would like to have this medication in my medical arsenal if you know what I mean. Thank you for this video, I've subscribed, and will be going through your other videos to get your experiences and wisdom.
I have slow transit constipation.. I had a bowel perforating and I nearly died.. I never new constipation could kill you.. I ended up with a colostomy.. i reversed that to an iliostomy and now it's been reversed.. my conditions is so bad. i have so much pain, nausea, bladder pain.. i also have gastropareses.. there seems to be so few medications for this in UK
I know how you feel. I had the exact same test with the marker tablets and it turned out i had slow motility aswell, so sometimes i have to take bisacodyl tablets and movicol because i have severe chronic constipation (which I've probably had for over a decade). But recently the tablets are having less of an affect and I'm wondering if you know of any other stronger laxative medication that could help?
Prucalopride was prescribed by gastroenterologist who assessed my markers of which I had retained 56 out of 60. After trying every remedy under the sun over many years, this is the only effective one Ive had without harsh side-effects. Keep nagging them until they sort it out for you. It s quite an expensive drug at around a pound a tablet (1 tablet per day is usual dose) so maybe they are reluctant to prescribe it longterm.
Just wondering from colonic transit study, does yr dr think if the colostomy revise at tranverse colon instead of at sigmoid, would it help with constipation? I had ileostomy and its not fun when u dealing with dehydration, less food choices( fruits, veg ) because they cause higher watery output.
Hi, no I eat really slowly as I also have problems with my oesophagus, food will get wedged in it if I eat quickly, so I have to eat small bits slowly.
I’ve had it since birth, I was born this way, but back then there was no official diagnosis for it, and it wasn’t until I ended up at the doctor’s for the extreme pain of it in 2010 that when tested I was told I had extremely slowed intestinal movement. I was told my intestines barely moved, causing repetitive constipation issues. It isn’t stress, although stress can make any medical issue worse, or more unbearable. I had to completely change my food choices, by simply introducing far more leafy greens into my diet (juicing made this easier)and remove as much processed sugars as possible. Which is still very hard because I love cakes and desserts. So it’s a daily effort that I struggle with, but I had to learn to just roll with it, and learn to recognize when I’ve too much of the wrong things and adjust.
I have a mild case of this, i have to physically remove the poo nothing moves it past the anus, also the bladder, will not empty. Fully or doesnt atall. I dont know what is causing it.
I have a ileostomy for profound slow transit and it has changed my life ❤. I was on all the medication going from my Consultant and daily irrigation. I put up with it for 10 years and now I’m living. Good luck 🤞
Thanks for sharing!! And thanks for watching
Can i ask why you stopped irrigating thinking about stopping it myself because my body cannot take it well so im also thinking about a stoma
Thank you for making these videos, problems like these aren’t easily discussed and as much as I wouldn’t want another to go through it, it’s a comfort to listen to someone who would understand. I’ve had slow transit constipation for 14 years after a traumatic birth and it’s horrible. I used to irrigate till additional surgery to fuse my pelvis prevented me from doing so. Unfortunately no laxatives work and I can go 5-6 weeks without a peep. I have a lovely new consultant who is genuinely the kindest doctor I’ve met who is considering an ileostomy which I’d snap their hand off for. I know that probably sounds crazy but I’m so fed up. Your videos have made me feel like I’m mentally prepared, as much as you can be, should the surgery go ahead.
I can completely understand why you would be considering ileostomy surgery. It was my decision to have a colostomy as I couldn't go through the suffering I was going through with my Crohn's.
To not go for 5 to 6 weeks must be awful. That must cause incredible pain and is very dangerous.
If I was in your shoes I would seriously be contemplating ileostomy surgery.
Hello. I’m sorry you are having such a hard time with slow transit. I’ve had it for years. Sometimes there is no peristalsis for weeks on end. What I wanted to say was that about two years ago I was worried enough to try exercises. We had a big staircase at the front of the house and I started walking up the steps slowly one at a time. I would pull in my lower abdomen as much as I could then push off as I stepped to the next step holding the muscles in as much as possible. I would stop on each step and repeat until I reached the top. I kept doing it over the following days and the perstalsis started. Unfortunately we left there to a
house on flat land in the
country. I also have chronic fatigue syndrome and
find it hard to go to somewhere where I can start doing the exercise again. Sorry, this is a long description but I wanted to share that technique with you and it reminds me to make more effort to get out❤️🙏😊
Hi. Sorry for the long delay in replying. Exercise is good advice and works for a lot of people. Running or walking up and down stairs is a really good way to try and get things moving as you say.
I am now doing stoma irrigation and that has been great so far, and I have felt my energy increase.
I will do a video about stoma irrigation soon.
Thanks for sharing. Hope you are finding relief. Also recovering through CFS and think maybe lack of exercise has contributed to transit and elimination issues. Exercising is improving/ becoming more tangible (walking and physical therapy) so hopefully digestive improvements are soon to follow! Well wishes.
Bp, good tip thanks. What about sit ups and breathing as you've explained? Or rather sit on the edge of a chair and lift your legs up high and down again, then breathing as you've explained ? Same thing more or less?
Hi Sydney! I am about to have a colostomy. I have watched your videos for some time. I had anal cancer 17 yrs ago. Have gone back and forth with whether to do this. I have never felt comfortable going anywhere. It’s time! Bless you and others for sharing! It’s good to feel you’re not alone and know others understand what you go through.
It certainly helps listening and talking to people that understand. I wish you the best with the colostomy surgery.
@@sydneystoma385 thank you so much!
Thank you for this video. This is what I think I have . I get to a point the the poop is so large around I have to manually remove it myself. Then slowly I will go . In that time I'm bloated ,nausea, can't eat , the sweat drips off me and then im freezing I drink bottles and bottles of water even electrolytes, I get pain not only in my tummy but all over my body ,headaches , indigestion, I wee all the time , I'm weak and sleep the days around . I have no life . My Dr put it down to ibs c but I just don't think that's what it is. My mental health is horrendous when my gut is bad . Can't go on like this and I'm also menopausal. 😢
Sorry to hear you are suffering so much, i can relate to all those symptoms. Please please go back to your Dr and ask them to explore Slow Transit.
I don't know other people's circumstances but digestive enzyme supplements, magnesium and vitamin b1 and b6 in foods certainly helped me speed up motility. Also it may be a good idea to make sure you have enough stomach acid. For this vitamin C, diluted apple cider vinegar before meals and possibly a betaine hydrochloric acid tablet during meals may help. Hope this is of benefit to some .
Thank you
Dennis, helpful, thanks. 6 months later now, this still works for you?
@@contrarian717 Yes most of my digestive problems are a thing of the past for now. I since cut out all highly processed foods, including vegetable oils. I also reduced sugars as much as possible. Now my anxiety levels and inflammation have reduced significantly as well. I feel much better over all.
So far the only thing that worked for me is an all meat diet. Very difficult to stick to but i felt like a new person. I am still searching for other solutions because I just can’t eat ONLY meat. But i do eat a lot of meat now where as before i barely ever ate meat.
Thank you for sharing.
I just came across this channel and found it to be very helpful. I have been suffering with what seems to be this problem for some years on and off but now seems to be all the time. I have just started seeing the doc about this problem but as yet she has not mentioned anything like this. She has done some bloods and stool sample and also requested a ct scan, this is something I could talk to her about as it sounds so much like whats happening. Thank you so much. Good luck in the future and God Bless.
Hi, thank you for watching and i am glad the video may have helped, i wish you all the best in finding some relief from the symptoms
Nice to see you again...was wondering where you were.
Hope it all goes okay with you, though you didn't have slow output at first if I remember correctly.
You're looking well anyway.. nice man, was happy to see you when I came out of hospital originally 😊
Thanks Andrew. Hope you are doing well. It's been in the last year or two that slow Transit Constipation has started being an issue for me.
I believe I have this and every 1 to 2 months I have extremely bad pain but the hospital who told me I got slow transition sent to another one and they’ve said I’ve just got a bad tummy and guess this is what I have for the rest of my life
Hello my first time on. I had and end colostomy 1 month ago. I have had colonic inertia perhaps my entire life having a BM every 5-7 days never bloated no issues. Normal for me. I am a nurse and had 3 back surgeries affected Lumbar4-5 and Sacral 6:54 S1. From 1983-1990. In the late 1997 I started having difficulty defecating. Many years, many GI visits, behavior modification, anal mammography. I always flunked tests. My last Sitz marker test 30 markers ingested and 5 days later all 30 had finally made in to the top of my ascending colon. The only way I could have a BM was to manually remove it. I hid this habit from 6:54 everyone except my Dr. Treatments always consisted of fiber and trying every new laxative on the market. Laxatives and diet gave me terrible cramps and pain. But unless I uncorked the bottle nothing would flow. So I decided I wanted a colostomy for my 80 th birthday. I had many sleepless nights worried about who would care for this problem if and when I could not! So I have my colostomy but still have colonic inertia.
My biggest problem is I have a significant stoma divot necessitating using a convex system. I tried several but am now using Coloplast. I cannot seem to get poop to enter the bag often resulting in pancaking. Even if I have a normal stool, the matter rests in the convex portion. I drink and eat right. Any suggestions?
Hi so sorry for the long delay in replying! I hope you are ok. What type of convex bag are you using? I use convex bags because I suffered with pancaking, I rarely have a problem with pancaking now. Have you discussed with your stoma team about a firmer convex?
I understand about trying all the different laxatives!!
@@sydneystoma385 hi! I am doing good it’s been 8 weeks since surgery. Spoke with my Colopast team and they recommended I try a deep convex. Using that with the mio click . Since I only have BM mmatter every few days it’s easy to manage. I still have to deal with some pancaking because stool is normally formed. Using the disposable bag helps. My system appears to be returning to its normal state.
How are you?
You can try putting baby oil inside bag, especially where the output come out. For stool consistency, need it be soft to reduce pancaking, perhaps you can play around small dose movical/miralax mix with psyllium husk to keep it soft, and drink lots of water too.
I'm a carer for my friend. I find what causes his is medication like omeprazole etc as it's a gut tablet. Also lactulose is worth taking as it lubricates the intestine and isn't to harsh. What is harsh is fibre gel.
Hi. Thanks for watching and leaving a comment.
I had to have a ileostomy because of slow transit.. I was having an ostomy bag anyway due to a prolapse bowel.. but because I had a slow tansit it was an ileostomy.. I'm very suprised you haven't had the iliostomy.. stool comes out of small intestine instead of colon.. you need one x
Hi. I have considered asking for an ileostomy, but before I make that decision I will try home irrigation of my colostomy. I am certainly not adverse to the idea of an ileostomy. Thanks for watching.
@@sydneystoma385 you would be so much better off.. I promise.. hope things help you.. takecare x
Hi Chris, would you please be open to talk about your diet what you eat? Your videos are very helpful and that would enhance them if you would be open to that. Thank you.
Hi. Yes of course I can do that. I have some other content that I will be filming first, but I will get round to it. Thanks for watching.
Sydney, thank you so much for the reply
Constipation really sucks!! I am sorry you have to deal with this! Is this connected to the Crohn's diseease, or is this something entirely separate? Does it only affect what's left of your colon, or your small intestines too?
I am glad you'll be making more videos, even if the reason is not so fun. It's hard to find colostomates online, you're one of the few!
Hi. My Crohn's has been remission for a longtime and there are no signs of active Crohn's. My medical team are surprised I have slow Transit Constipation considering I have a colostomy. So no it has nothing to do with the Crohn's. It's all very odd. I enjoy making content and if my problems provide help for others then that's a positive. 😃. Thank you for watching and enjoying what I do.
You commented that you took a medication that caused you to virtually flood your stoma bag, could you tell me what that medications name was. I'm heading in a direction of having my colon removed and I'm using multiple enemas to try to empty material out of my colon, but they haven't given me any medication that would promote peristalsis. I would like to have this medication in my medical arsenal if you know what I mean. Thank you for this video, I've subscribed, and will be going through your other videos to get your experiences and wisdom.
Can you please mention that laxative name im suffering the same as you
I have slow transit constipation.. I had a bowel perforating and I nearly died.. I never new constipation could kill you.. I ended up with a colostomy.. i reversed that to an iliostomy and now it's been reversed.. my conditions is so bad. i have so much pain, nausea, bladder pain.. i also have gastropareses.. there seems to be so few medications for this in UK
I agree there are few medicines for this, I do not think the medical world fully understand it
Thank you ⭐️⭐️⭐️⭐️⭐️
You are so welcome
I know how you feel. I had the exact same test with the marker tablets and it turned out i had slow motility aswell, so sometimes i have to take bisacodyl tablets and movicol because i have severe chronic constipation (which I've probably had for over a decade). But recently the tablets are having less of an affect and I'm wondering if you know of any other stronger laxative medication that could help?
Hi, unfortunately i did i have a stronger one but i cannot for the life of me remember what it was called. If i find it i will let you know
Prucalopride was prescribed by gastroenterologist who assessed my markers of which I had retained 56 out of 60. After trying every remedy under the sun over many years, this is the only effective one Ive had without harsh side-effects. Keep nagging them until they sort it out for you. It s quite an expensive drug at around a pound a tablet (1 tablet per day is usual dose) so maybe they are reluctant to prescribe it longterm.
Are there any more follow up video's of these please .
I can do, leave it with me.
Just wondering from colonic transit study, does yr dr think if the colostomy revise at tranverse colon instead of at sigmoid, would it help with constipation? I had ileostomy and its not fun when u dealing with dehydration, less food choices( fruits, veg ) because they cause higher watery output.
I am now doing stoma irrigation which has solved the problem for me.
Hi, I am suffering from same disease, I want to know one thing do you have the habit of eating food rapidly just curious to know.
Hi, no I eat really slowly as I also have problems with my oesophagus, food will get wedged in it if I eat quickly, so I have to eat small bits slowly.
It is caused by high stress
I don't believe so. Nobody has really provided an answer as to why.
I’ve had it since birth, I was born this way, but back then there was no official diagnosis for it, and it wasn’t until I ended up at the doctor’s for the extreme pain of it in 2010 that when tested I was told I had extremely slowed intestinal movement. I was told my intestines barely moved, causing repetitive constipation issues. It isn’t stress, although stress can make any medical issue worse, or more unbearable. I had to completely change my food choices, by simply introducing far more leafy greens into my diet (juicing made this easier)and remove as much processed sugars as possible. Which is still very hard because I love cakes and desserts. So it’s a daily effort that I struggle with, but I had to learn to just roll with it, and learn to recognize when I’ve too much of the wrong things and adjust.
Why did you need a stoma if you could just use the laxatives
My stoma was long before my slow bowel issues. I had my stoma because of Crohns disease.
i aym having a similar problem
Hi. Thanks for watching. I have a video uploading as we speak that will help people with slow transit if they have a colostomy
I have a mild case of this, i have to physically remove the poo nothing moves it past the anus, also the bladder, will not empty. Fully or doesnt atall. I dont know what is causing it.
I dont think the medical world fully understand what causes it either!
@gill do you have a sedentary lifestyle? Do you do fitness and how often?
Slow tranist constipation is curable or not curable pl suggest me
I dont know if it is or isn’t curable.
NOT peristalis but peristaLSis
Thank you
Prune juice on empty stomach
Cheers. Doesnt work for me. Thankfully now I do stoma irrigation it solves the problem.