I just want to thank you for posting the video of your grand mal seizure it has helped me understand just what it looks like and what kind of care should be given when someone is experiencing seizure so please thank your mom and brother as well. Thank you too for posting this follow up and explaining so articulately what it is going on in the video from your perspective. The information you've provided is gold. You see I have a friend who has an inoperable tumor and who has been having grand mal seizures because of it. I very much want to be there for him and help as best I can as he copes with his medical, physical, and emotional issues....and I want to be strong and prepared if/when he has a grand mal and I am present. Again thank you for your courage and thoughtfulness. I hope you can find a cure for your seizures soon and I wish you the best of luck with all your endeavors. Again thank you so much. :)
I was watching a related video in addition to your own. That guy couldn't get a job because of the stigma and eventually died because a pharmacy didn't give him medication he couldn't afford. I don't have epilepsy but I have other stigmatizing disabilities. I have people whose patience grows thin with my disabilities as well. I'm telling you this because sometimes it's a comfort to know you're not alone even if the other person who suffers isn't going through the same thing. I think the more people see things like your video, the more you can help them understand that their neighbors' "distressing disguise" doesn't need to frighten, and that they can reach out in compassion and try and help instead of recoiling and getting impatient. I'd like to do something like this for my disabilities and help people understand... If I can figure out how. I'm glad I don't have epilepsy because I'm alone, but isolation is no fun because of any disability.
Thank you for posting this. I was diagnosed with epilepsy about 3 years ago and so many people just don't understand epilepsy and why I don't go to the hospital every time I have one. Unlike in the video, I can't feel mine coming on.. I just come to and am told I had one. The first time I had one I was driving and knocked a telephone pole completely over and the doctors just assumed I fell asleep since I was on my way to an overnight shift. I didn't have another one for just under a year and after having 2 more and ekg I was diagnosed. I am so glad my family was and is still here for me just like yours are for you.
Thank you so much for sharing your videos, I really do know NOTHING about seizures.. Yes I can google it or whatsoever but through this way I learn about it "in real life". I am just curious about it 'cause it can happen to anybody even myself. I admire your courage, you're so strong and handling it all so well. Thank you again and I hope the seizures will disappear eventually xoxo
Hi, Paul! It's Becka again. Just wanted to know if your aura is like what I experience before I lose control. For me it starts with an extreme feeling of deja vu. So strong that often times my stomach will turn. Then sometimes I get a funny smell. Then I start going numb and tingly, starting in my face and finger tips. I feel it spread across my body, and that is the last thing I remember.
I just happened on your video after researching the effects of grand mal seizures.. on dogs. I work in the pet care industry and never personally witnessed one, but have had some pet owners tell me their dog is prone to them. In the videos it looked exhausting what they had gone through, and I wondered if there was any pain involved. Then I happened on a video of a guy who suddenly had a seizure while he was taping a totally unrelated video. Subtitles afterward in editing explained that while all this was going on, he felt like his muscles were being ripped apart from the inside out. That must have been excruciating. I wonder if that is how it presents in all or most cases, or was his an exception. Just asking to better understand the condition.
Hi Paul, Just wanted to know if you are doing any better? Hope you don't mind me asking but if you keep having the grand mal seizures in the longterm will lasting damage occur? I think you are incredible for posting all these videos.
First of all thank you for your comment and yes I am still having my seizures. I normally have them about once a month and I try to video tape them to show everyone what to do. I also try to add other videos in reference to other things that deals with epilepsy and seizures.
@@pmbronson awww bless you. Are you able to live a decent life outside of the epilepsy? I have friends with it...I myself don't have seizures but have bipolar so know how things can end up taking over your life.
Hi Paul i like your videos and want to say thank you for posting your videos. I had a grand mal seizure once and something happened a few times after that. My doctor says i dont have epilepsy. He never did explain why it happened. But i am interested to understand what happened to me. It was really rather scary at the time. So just wanted to say hi and cheers for posting.
Sorry if it's Been asked. Are you aware consciously when having a big seizure like this, or do you black out, or is your perception of reality altered in any way
@@pmbronson I had it on right side efected the left fine motor wish I felt like Ilook otherwise I have numbnesspn left handdo alsowith my compliment I get people don't understand bless you
I just want to thank you for posting the video of your grand mal seizure it has helped me understand just what it looks like and what kind of care should be given when someone is experiencing seizure so please thank your mom and brother as well. Thank you too for posting this follow up and explaining so articulately what it is going on in the video from your perspective. The information you've provided is gold. You see I have a friend who has an inoperable tumor and who has been having grand mal seizures because of it. I very much want to be there for him and help as best I can as he copes with his medical, physical, and emotional issues....and I want to be strong and prepared if/when he has a grand mal and I am present. Again thank you for your courage and thoughtfulness. I hope you can find a cure for your seizures soon and I wish you the best of luck with all your endeavors. Again thank you so much. :)
Thank you so much and please keep up with me:
ruclips.net/user/pmbronson
I will :)
I was watching a related video in addition to your own. That guy couldn't get a job because of the stigma and eventually died because a pharmacy didn't give him medication he couldn't afford. I don't have epilepsy but I have other stigmatizing disabilities. I have people whose patience grows thin with my disabilities as well. I'm telling you this because sometimes it's a comfort to know you're not alone even if the other person who suffers isn't going through the same thing. I think the more people see things like your video, the more you can help them understand that their neighbors' "distressing disguise" doesn't need to frighten, and that they can reach out in compassion and try and help instead of recoiling and getting impatient. I'd like to do something like this for my disabilities and help people understand... If I can figure out how. I'm glad I don't have epilepsy because I'm alone, but isolation is no fun because of any disability.
Sorry for what you have to go through buddy
Thank you for posting this. I was diagnosed with epilepsy about 3 years ago and so many people just don't understand epilepsy and why I don't go to the hospital every time I have one. Unlike in the video, I can't feel mine coming on.. I just come to and am told I had one. The first time I had one I was driving and knocked a telephone pole completely over and the doctors just assumed I fell asleep since I was on my way to an overnight shift. I didn't have another one for just under a year and after having 2 more and ekg I was diagnosed. I am so glad my family was and is still here for me just like yours are for you.
Greetings from Germany. And thank u so much.
Olivia Schwarzbach Thanks for watching my videos!!! And I am in Hamburg right now.
Thank you so much for sharing your videos, I really do know NOTHING about seizures.. Yes I can google it or whatsoever but through this way I learn about it "in real life". I am just curious about it 'cause it can happen to anybody even myself. I admire your courage, you're so strong and handling it all so well. Thank you again and I hope the seizures will disappear eventually xoxo
Hi, Paul! It's Becka again. Just wanted to know if your aura is like what I experience before I lose control. For me it starts with an extreme feeling of deja vu. So strong that often times my stomach will turn. Then sometimes I get a funny smell. Then I start going numb and tingly, starting in my face and finger tips. I feel it spread across my body, and that is the last thing I remember.
Yes....my auras are very similar to yours.
I just happened on your video after researching the effects of grand mal seizures.. on dogs. I work in the pet care industry and never personally witnessed one, but have had some pet owners tell me their dog is prone to them. In the videos it looked exhausting what they had gone through, and I wondered if there was any pain involved. Then I happened on a video of a guy who suddenly had a seizure while he was taping a totally unrelated video. Subtitles afterward in editing explained that while all this was going on, he felt like his muscles were being ripped apart from the inside out. That must have been excruciating. I wonder if that is how it presents in all or most cases, or was his an exception. Just asking to better understand the condition.
I have a question.. What are the most common symptoms before the seizure starts?
Man I feel so bad for you I wish you didn't have to go through that, that would suck. know I'm loyal to you
Hi Paul, Just wanted to know if you are doing any better? Hope you don't mind me asking but if you keep having the grand mal seizures in the longterm will lasting damage occur? I think you are incredible for posting all these videos.
First of all thank you for your comment and yes I am still having my seizures. I normally have them about once a month and I try to video tape them to show everyone what to do. I also try to add other videos in reference to other things that deals with epilepsy and seizures.
@@pmbronson awww bless you. Are you able to live a decent life outside of the epilepsy? I have friends with it...I myself don't have seizures but have bipolar so know how things can end up taking over your life.
I try to live a normal life but I know that I have seizures and I should always expect that.
Hi Paul i like your videos and want to say thank you for posting your videos. I had a grand mal seizure once and something happened a few times after that. My doctor says i dont have epilepsy. He never did explain why it happened. But i am interested to understand what happened to me. It was really rather scary at the time. So just wanted to say hi and cheers for posting.
Thanks!!! Please keep up with me on: ruclips.net/user/pmbronson
Sorry if it's Been asked. Are you aware consciously when having a big seizure like this, or do you black out, or is your perception of reality altered in any way
I am blacked out and then I come out of it when I make noises with my nose.
Any advice i had hemorrhage last year after my baby and i miss my personality now i don't have same drive any advice thank u for your post 💙
What part of the brain did you have your hemorrhage? I had mine on the left Temporal Lobe...also close to the speech part of the brain.
@@pmbronson I had it on right side efected the left fine motor wish I felt like Ilook otherwise I have numbnesspn left handdo alsowith my compliment I get people don't understand bless you
Do you have seizures??? I started getting them after I had my hemorrhage.
@@pmbronson no they cleared me
What happend that damaged your brain?
+GrayGray72 Gamez ...It is easier if you go to this video - ruclips.net/video/Aorr17mzbgc/видео.html
man this dude is so high here! benzo ftw!