How epilepsy can change your life

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  • Опубликовано: 28 окт 2024
  • Epilepsy can take away so many parts of life that we take for granted.
    For the 87 people diagnosed with epilepsy in the UK every day, it can leave them feeling alone and completely in the dark.
    But together, we can help them feel safer and understand what’s happening to them.
    Your donation can help them find friendship and understanding, so they know they’re not alone.
    You will be helping more people to get the treatment they need.
    Ultimately, you’ll be giving more people a chance of a life free from seizures.
    Donate now 👉 www.epilepsy.o...

Комментарии • 41

  • @psychoxddddddd3530
    @psychoxddddddd3530 Год назад +9

    Couldnt explain it any better you guys are the first people that made me feel like someone understood me for once, my entire life i was searching for this type of a community thank you so much.

  • @lennoxre-oma5310
    @lennoxre-oma5310 Год назад +10

    Relate here😢 I'm epileptic person, when my seizure attacks me I fight back so that I wouldn't be blank out or stare into space, the other people had epilepsy/seizure stay positive move forward and fight back 😊 be strong person God is always by your side

  • @allliver123
    @allliver123 10 месяцев назад +2

    i was diagnosed with epilepsy a few years ago, and i am grateful every day i wasnt impacted as much as others. meds for me worked first try and ive been off them for a while now. if you are reading this and you are struggling with epilepsy i wish you the best, seizures suck.

  • @julis9359
    @julis9359 2 года назад +32

    love the video... however, that the sound at the beginning is triggering enough... please put a trigger warning at the start of the video please... as an epileptic person i must say it did hurt a bit.. but still, keep up the work :)

    • @real-mars-art
      @real-mars-art 2 года назад +1

      Agreed😢

    • @seductiivechula4787
      @seductiivechula4787 2 года назад +1

      Agree, the trigger warning should be in the tittle. I have epilepsy videos that have triggers. Like we already suffer enough.

  • @djemn18
    @djemn18 Год назад +6

    Very accurate. I was diagnosed with tonic-clonic epilepsy when I was 16 and had seizures every 3-6 months. I couldn't attend drivers ed, be alone, or work in the airline business (my dream job). For a year I had to carry this huge tranq syringe with me everywhere I went. I knew others had it worse than me but it was pretty disheartening to know that I would potentially have something wrong with me for the rest of my life. When I was 17, my neurologist put me on Lamictal and I've managed to get my life back for the most part since then. I attended college, got a job, and traveled abroad a few times. I got my drivers license at 27, which is a milestone and an accomplishment for many people with epilepsy. Life still has its challenges and limits, and at times I wish I could live like many people, without relying on medication or avoiding anything that triggers a seizure.

  • @David-wu9wg
    @David-wu9wg 6 месяцев назад +2

    This is exactly how it feels

  • @JohnnyCove84
    @JohnnyCove84 2 года назад +20

    sorry about the job that one hit hard I've learned to never tell a boss you have epilepsy

    • @AvrilCoelho
      @AvrilCoelho 2 года назад +2

      Sorry to hear this. I've been there when the DDA95 first came out and had a part time job at university. I was advised to be upfront about having epilepsy on my application. It made challenging disability discrimination straightforward as they couldn't deny knowing about it.

    • @danielledewitt1
      @danielledewitt1 2 года назад

      Me too. I had a voluntary job I loved, told the boss I have epilepsy well I was happy there for a number of years then my neurologist at the time decided taking me off my epilepsy was a good idea, I kept the boss informed then after about 18 months bang I had a seizure at home, my social care worker at the time went blabbing to the boss and next thing he phones me and says basically well you’ve had a seizure don’t bother coming to volunteer.

    • @AvrilCoelho
      @AvrilCoelho 2 года назад

      @@danielledewitt1 so sorry to hear this. Onwards and upwards.

    • @danielledewitt1
      @danielledewitt1 2 года назад

      @@AvrilCoelho That was a good number of years back.

    • @danielledewitt1
      @danielledewitt1 2 года назад

      @Dac Charles It’s not my fault at all. I told him I have epilepsy, it was the first thing I told him.

  • @Amber-vb9he
    @Amber-vb9he Год назад +5

    Watching this video made me cry. I can relate to this because I have epilepsy. What hurts the most is when a family member told me "Oh she's just faking her seizures to get attention." 😢😢😢😢😢😢😢 I can't control my seizures they can happen at any time. Epilepsy is not a disease, it's not contagious. It's a neurological disorder. Anyone can get epilepsy at any age. I've had it since age 2. I was finally diagnosed with Epilepsy at 37 in 2021. My journey hasn't been easy but I will never stop fighting until I am seizure free. For anyone who sees this, you're strong, amazing, you matter, never give up, you're loved. 🫂🫂🫂🫂🫂🫂🫂💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜

  • @kushking420
    @kushking420 3 месяца назад

    Mood swings are something no one at home or work can understand, as I go from quiet to going full rage. I've broken many thing and have had broken bones from it

  • @jessieeexo5574
    @jessieeexo5574 Год назад +2

    So relatable💔

  • @MrSpennyboy100
    @MrSpennyboy100 2 года назад +4

    Totally relate to this

  • @djpasstheaux7857
    @djpasstheaux7857 2 года назад +10

    Triggering like hell but a damn good video

  • @lancejoseph9367
    @lancejoseph9367 9 месяцев назад +1

    Powerful ❤❤

  • @alisharose2712
    @alisharose2712 2 года назад +2

    I’ve never related to anything so much.

  • @robynbirdsell2881
    @robynbirdsell2881 Год назад

    Same here I have juvenile absence seizure. I have tonic clonic seizures and absences

  • @ericirwin413
    @ericirwin413 5 месяцев назад

    It is a f%#@%^@ living hell and I can barely take it!!

    • @epilepsyaction
      @epilepsyaction  5 месяцев назад +1

      Sorry to hear that you are struggling with your epilepsy, Eric.
      If you would like to get advice and support relating to your epilepsy, please contact our helpline on 0808 800 5050.
      Also, If you are struggling with your mental health and need to talk to someone, please contact the Samaritans on 116 123.

  • @ameerjan8889
    @ameerjan8889 Год назад

    My greetings to all my friends, friends few days ago I accidentally ate some rotten or bad walnuts, about three hours after eating I fainted, I fainted in about forty to fifty minutes, my mouth kept foaming and my tongue was also injured. hai when i regained consciousness a bit i will start vomiting violently is it due to bad walnuts or is it a symptom of epilepsy waiting for an answer

    • @epilepsyaction
      @epilepsyaction  Год назад +1

      Hi Ameer
      I’m sorry to hear you went through this. It sounds like a horrible experience. We aren’t able to suggest if this experience was due to an epileptic seizure or something else. It would be a good idea to ask a medical professional for support and advice

      Kind Regards
      Rosie
      Helpline Team

  • @reachnandini
    @reachnandini 6 месяцев назад

    😭😭😭

  • @MadiRides
    @MadiRides Год назад +1

    I can’t drive now :/ I hate it it’s stupid and why if everyone me lol.

  • @stevenpoole7970
    @stevenpoole7970 2 года назад

    I got epilepsy

  • @corneliusmoss6106
    @corneliusmoss6106 2 года назад

    Prⓞм𝕠𝕤𝐌 💯