I just admire your attitude towards all the medical issues. To see you bouncing back so quickly after a hard time inspires me so much. You have educated me that this is just reality with chronic diseases and we can get through it. I have been so sick and tired of being sick and having teachers criticizing me for missing out on school due to my chronic diseases and you just helps me loads, like helping me understand that I am not alone and encouraging me to continue with what I need to do for my health. These vlogs have helped me stay happy each day and I am so thankful to you for filming and editing. Thank you for these videos and I hope that your days get easier for you. You go girl!💁 Of course not to forget Judd and Harlow, you two make me laugh with what y'all do and say. -13 year old who is addicted to your videos 😊
You handle your health issues so well, and with so much grace, and with Judd..humor, which makes you both even more endearing. And, you do it all looking positively gorgeous!! P.S. headbands...you wear them well...xo
I started watching your videos because I was thinking about getting a service pup to help warn me of my seizures so I could have time to get into a safe area before they kick in. I haven't stopped watching you ever since. You're an inspiration, so thank you.
You seem so much less stressed now that you have your feeding tube. It's nice to see that even when you are having a less than ideal GI day you can still remain stress free since there is no more pressure for you to force feed yourself. I'm glad that the feeding tube has been successful for you!
I ran into this channel from someone saying you're faking, I watched different videos, and instantly fell in love with these!! I'm so sorry you have to suffer this but hey, you're teaching others a lesson and you're a role model to people like you! So thank you for being an inspiration 😀
As I lay here during the third week at the hospital with my 20 month old nephew, I still look forward to being able to watch your vlog as soon as he falls asleep and doesn't need to be cared for as closely. I have been following your journey since day 1 and I just love your little family so much. Thank you for letting us be a part of your life and for teaching us so much about chronic illness in the process. My nephew has an extremely rare genetic condition (200 known cases worldwide) along with several other complications, including GI. Although I, of course, wish you didn't have to have a feeding tube, I have really enjoyed your vlogs since then, because often times I can relate and I know exactly what you're talking about! 😊 Thank you for being what I look forward to each day, no matter how my day has been, I'm instantly in a better mood after watching the vlog of the day.
I love how you have such a positive attitude towards life, even though you're struggling with these chronic Illnesses. Thank you for lightening my day by uploading daily! Congrats on your marriage by the way!
Hello Jaquie, hi Judd. Just wanted to drop a line. You have a great laugh Jaquie, it brightens my day every time I hear it. I hear all the problems that you have and I think poor child but when I see you that thought leaves my mind. With all the inconveniences you experience you have such an upbeat take on life in general. You are a true inspiration to someone like me with only two issues. Even though I don't know you personally I am very proud of you. Your parents need acknowledgement as well for raising such an awesome young lady.
The outro had me laughing because it was exactly like how you ended yesterday's vlog: Judd shoving cake in his mouth :P Anyway, I love that you have been trying your best with eating food orally even if it does not turn out in the best way. You have truly become one of my favorite youtubers in the past couple of months that I have been watching your videos. Much love!
Awe thank you! I do try really hard to continue eating orally. Most people do not realize how much work it takes to eat when you have a condition like GP, so thank you for noticing!
honestly i found you through one of those long nights watching random stuff and i stumbled upon your Channel. I am so inspired by how you managed to put a smile on your face even though its rough and i love how you are so open with us. You are beautiful and i saw your wedding video and i wish you and your husband many many years to come!! and hope and pray you get better day by day ❤️
The ending of your video made me laugh! I'm Mexican and my mom has basically never cooked Mexican food my whole life. I do pretty often though! The easiest way to cook carnitas is to buy preseasoned pork butt from the Hispanic Market you guys go to. And you can put it in a crock pot with a little water, you can also add onion and garlic cloves. If Judd likes spice, you can add some chilies or whatever you prefer. The Crock-Pot might not make it as tender as the oven, so if you choose to use the oven!... use an oven safe dish deep enough for the meat and can hold about a cup of water. Do the same with the onion and garlic. put it in the oven for about 2-3 hours at 350 degrees, covered. And that's basically it! :)
hi jaquie, im a new subscriber. my husband and i are from alabama, we moved to washington for military stuff so we are a long way from home! Definitely miss publix, the deli and bakery were amazing! i really enjoy your channel, praying you have a better day today!
You are so amazing and I love all your videos. I just discovered you recently and I can't stop watching! You and Judd are so freaking cute, and Hippo is so adorable. Your strength to keep going with the videos even when you have hard days is awesome. Keep going! ❤️❤️❤️
My dear, how my heart breaks every time I see you in pain. I'm starting a similar "adventure " like yours . What can I say let's keep the best possible attitude towards our illnesses. I hate nausea by the way. Stay strong love♡
Just found your videos, and I'm so happy! I love how positive, informative, and fun you are when dealing with your chronic illness. Also, Harlow is adorable!!❤
she is an inspiration to me and my sis cause my elder sis has this same problem!!!! she always watch this vids of u being happy and gives support to her!!! thank u for being an inspiration!!!
I have gastroparesis and eosinophilic colitis, since I was 2 and I never gain weight, so I'm starting to think getting a J tube fitted will help me gain weight and be healthier in general, your videos really help me understand possible life with a feeding tube! I also have severe anxiety problems and have days where I can't eat at all, so I think it will really help. Thanks so much for posting these great vlogs! ✨✨
I just found you and I can't out into words just how amazing your videos are to see! I know you've had a hard time these past few days especially so I figured I would say it. I have EDS POTS Epilepsy Narcolepsy Chiari Anemia and the beginnings of gastroparesis and to see others with these things as well is so... amazing. The solidarity I feel from your channel just by you being is so strong I don't entirely know what to say. Thank you for being so amazing and pushing through your every day pain to vlog for the people of the internet like me! Love ya! And I hope you get some extra spoons this week! Also I'll look to see if you've made a video on Harlow but how did you make the decision to get a service dog and where did you get her from? Thanks for the video
It's great to see you doing so much better, sorry about the vomiting today :-(Question about Harlow & taking her to loud places. I know you use noise canceling headphones for yourself but do you use anything on her? Training my seven month old Golden now, July 4th will be her first large public outing & concerned about fireworks damaging her sensitive ears.Thanks, I love watching your daily vlogs. You're an inspiration to us all.
i recently found your channel and i absolutely adore it! i raise a seeing eye puppy and am training her to be a guide dog for the blind so i love seeing your videos about Harlow! your little family is adorable, best wishes to you all ❤️
I was recently diagnosed with gastroparesis a month ago. It explained my last 3 years of suffering and being called "crazy" for all my complaining (since they couldn't technically find anything wrong). I'd love to pick your brain about it. This is all so new to me and kind of scary.
I laughed so hard when Judd said "It's basically a fart button" when you were discussing the updated tube. So happy for the tools that are available to help!
I love you spirit about everything in spite of your illness and I'm so sorry you have to go threw this on a daily bases I hope they find something that will cure your illness so that you can full enjoy your life and your husband is so awesome I love the fact that he's there for you no matter what take care ☺
this might get gross but I feel the GI struggles! I have crohns disease and if my medication stops working I have an awful time keeping food down (also from coming out the other end yuck I know) but watching someone go through something that is probably a lot tougher with so much positivity is so inspiring! Keep up the amazing work and never let your spirits get down. Much love ♡
Omg the 100 was so good at the start and in the middle of the series it got so bad. But at the end of the final season it got way better! I cant wait for the next season
Yes to Publix food! I got a chicken tender sub the other day YUM! Ours used to have a really yummy Chinese food place in it, but it closed a few years back. I also really love the rotisserie chicken and flatbread pizzas!
Couldn't help but laugh when Jud flipped the caps of the Zofran! You have a wonderful husband. I also have gastropersis and funny enough when I am in bad flares and can't hold anything down I can usually keep pizza down. Just reminds me how everyone is so different with the disease! Also heating pads and bed buddy's are my life for gp pain! Sending lots of healing thoughts.
lol......now we have 2 things in common, FSU and Publix. My boyfriend was the Bakery manager at Publix. We moved from Ft. Myers Florida to NC to open up a new division up here. He was with them 27 years but no more. Publix is horrible up here I hate to say! Still love their chicken 😀 oh and cake! Congrats on getting married....You look like you feel so much better, so great to see!
You are absolutely amazing! Such an inspiration!! I love the whole family!! And Harlow is adorable! I hope you are able to to keep some food down in the future!
Taco/Santa Fe Soup is a perfect crockpot recipe. Add a can of kidney beans, a can of black beans, a can of corn, a large can of petite diced tomatoes, a can of cannellini beans, 1 packet of dry ranch dip mix, and 1 packet of taco seasoning. You can add it all to the crockpot and set it on low for 4 hours or so. The longer it cooks, the better it tastes. You can also add a pound of hamburger meat (cooked) or 2 chicken breasts that are roasted and shredded. You can even freeze the leftovers for another meal! We like to eat ours with corn chips, shredded cheese, sour cream, and a bit of avocado mixed in.
I pray for you and I am really sorry for everything you go thru every day but it is good that you have such a positive way of thinking and i love that that is why i think you handle everything so well and just know that you are in my heart
I miss publix so much. That was the worst thing about moving up to Maryland. I'm moving next month again and I'm really hoping I get to go back to Florida.
The easiest recipe I have found that is easy to make with my disability and easy to eat with my gastroparesis is called creamy chicken and rice. You take a pressure cooker or rice cooker and put four boneless, skinless chicken thighs in the bottom with no rack. Add 1 1/2 cups long grain rice and 2 1/2 cups of water. Put the lid on the pressure cooker and cook for 8 minutes. Let the pressure go away by itself don't release the valve. It usually takes about ten minutes for that to happen. When the pressure is gone remove the lid and stir to break up the chicken then add one small can of cream of chicken soup. I use campbells or publix brand. You can use cream of mushroom if you want. Then just mix that together and let it sit for five minutes until the heat from the food warms the soup that is mixed in. You don't need to add anything else except salt and pepper. I have found that white pepper makes it extra tasty. I hope this helps all y'all like me with stomach issues.
I have gastroparesis also and I wanted to share something that helps me! Please check with your doctor first as always! I take culturelle capsules and sprinkle it on my food before eating. One or two capsules a day. It has helped me so much. I also stay on a low fat diet. I hope you can try this! I've learned so much from watching your videos! Thank you so much for sharing your journey with us! I wish you and your family nothing but the best!
What about doing some crockpot meals? You could prep them like you do Harlow's meals and just pull it out of the freezer and dump in crockpot. Spend the money and buy the crockpot liner bags (by the oven bags/Ziploc at the store) for super easy clean up. One of my favorites is a beef roast, jar of sliced pepperoncinni with half the liquid, beef broth or water to cover, garlic, onions, salt and pepper. Serve on rolls with provolone cheese.
You haven't mentioned many of your allergic reaction "attacks" lately. I hope they have cleared up for the time being!!! You're so 💪🏻 strong! I wish I had your courage! 💙😇🙌🏻
Lau, it actually doesn't work that way. I wish, lol. I have had tons of things to distract me, yet the attacks persist. My doctor has a different theory.
I'm sorry you felt so bad yesterday. I really hope today is better for you. Did you know that those Vogmasks are great at filtering out allergens but aren't made to eliminate the risk of illness, disease or infection??
Orzzo is a pasta lol. I thought it was a rice at first too when I first started cooking. Your videos make me so happy and make me be my biggest advocate and try to get my illnesses properly diagnosed.
Hahaha Judd "it's basically a fart button" 😂😂 It's so amazing that you two keep each other laughing so often. They say laughter is the best medicine and it's definitely true❤
Here's a tacos de carnitas recipe! From cooking.nytimes.com/recipes/1012463-tacos-de-carnitas 3 pounds pork shoulder, either butt or picnic 7 strips orange zest 5 garlic cloves, minced 1 large onion, chopped, plus finely chopped onion for garnish 1 ¼ teaspoons crushed red pepper flakes 1 cinnamon stick, preferably Mexican canela 2 bay leaves 1 ½ teaspoons crushed dried oregano leaves, preferably Mexican 1 ½ teaspoons kosher salt, more to taste ¼ teaspoon ground cloves 24 small corn tortillas, warmed, for serving Chopped cilantro for garnish Salsa for garnish PREPARATION Trim any thick fat from surface of pork. Cut meat into 1-inch cubes, discarding any that are pure fat. Put pork in a large pot. Add enough water to cover by 2 inches, orange zest, garlic, chopped onion, red pepper flakes, cinnamon, bay leaves, oregano, 1 1/2 teaspoons salt and the cloves. Bring to a boil, then reduce to a simmer. Skim off any scum that forms on surface. Simmer uncovered for 1 1/2 hours, until pork is very soft; add water if necessary to keep meat submerged. Season with salt, then continue to cook until water has evaporated, about 30 minutes. Cook a little longer to fry meat slightly; cook even longer if you prefer crisper meat. Stir often and add a bit of water if meat sticks or seems about to burn. Remove bay leaves and cinnamon stick. Spoon a few tablespoons of carnitas onto each tortilla. Top each taco with cilantro, finely chopped onion and salsa. Serve.
:::drools::: Publix Fried Chicken. We saw Guardians of the Galaxy on Memorial Day, it was pretty good. Glad to hear you got a nice nap in, lol. Have a great day!!! 💜💜
I loved that movie to, the pirates of the Caribbean I have seen 2 I just found out that there was more, but it's so much to watch I am like you I talk and ask to many questions. I have to be in the mood for those types of movies with so many details.
Hi! I just recently found your channel and I'm in love. I was watching one of your videos and when you said you had POTS, I was kinda shocked. My mom, sister, brother and I (only 11) all have POTS (Postel orthostatic tachycardia syndrome). It's nice to know that I can watch someone as awesome as you to get more knowledge on the heart condition. I subscribed by the way! I love your personality and how you push through throughout the day! Much love
I have emetophobia (phobia of vomiting) and can't get over how amazingly you deal with vomiting in day to day life! You are so strong 💪 Really hope you're feeling better today x Also, odd question, but last time I was sick it caused me to faint. I'm dealing with dysautonmia symptoms (probably spelt that wrong) too. Was wondering whether you ever experience fainting with vomiting, if you don't mind saying?
When I do my Carnitas I use a deep pot (dutch oven if I'm up to moving it) and take about two pounds of pork shoulder/butt with nice marbling, cut it into manageable chunks (not bite sized, but fist sized at least), and then marinate it in a little salt and fresh lime juice for about an hour flipping on occasion so that all sides spend some time in the marinade. While that's happening, I warm up some lard (enough to cover your meat, and no water) in whatever pot I"m going to use. I don't go up to a certain temp, but you want a light simmer to the lard when you put in your pork (I think you can use a chopstick or wooden spoon and when it forms small bubbles on the the wood it's ready). Anyways, put it in the hot lard, turning/stirring a couple times so that it cooks evenly. Usually takes about an hour or two to cook this way. It'll get all nice and brown and it's ready when the meat has a little give to it and pulls apart pretty easy. I put it on a cutting board and either chop it up, or pull with a fork (or fingers if I have time to let it cool down). I think it's best after a day or so. When I reheat, I take whatever meat I want to serve, and reheat it in a pan with a little lard or oil and you get that hole-in-the-wall mexican taco joint crispy-bits stuff (my personal fave). I've heard of people doing it in a slow cooker, but I've never done it. I've used water, but found that it makes it really... chewy(?). A fair amount of work but soooooooo worth it. I only make it on days where I've got the energy (which isn't often... yay chronic illness! lol). I serve it with just cilantro (onion if you want) and homemade hot sauce in microwaved/steamed corn tortilla with a lime wedge on the side. Whatever method you do DO NOT GET LEAN PORK! You want loads, and loads of fat and marbling!
Orzo is actually pasta-a bit strange when it looks like oversized rice!!!-therefore it can really hard to find in the rice isle-so ur a star for finding it Judd!!!
Starting around December, I have had such a sudden loss of appetite and GI symptoms. I have the same symptoms you described here. (Pain, bloating, nausea, vomitting, etc.) how common is it to have POTS and Gastroparesis?
Actually, they seem to go together (although nothing has been proven). As you may know, POTS is a form of Dysautonomia. The Vagus nerve is the largest nerve in the ANS, and when the ANS does not work properly the Vagus nerve may also be dysfunctional. The Vagus nerve is responsible for stimulating digestion, and a faulty Vagus nerve can cause GP. I explain is more in my GP section of my Chronic Illness video. (:
Hey jaquie! I was just diagnosed with gastroparesis (I knew I had it & was doing the diet way before I actually got the diagnosis) and I have POTS and EDS. So I was wondering if you had any tips for me. I suffer with vomiting, nausea, bloating, etc... and am having lots of trouble with keeping fluids/food in. I also wanted to say I ADORE your videos. I look forward to watching them everyday! You're amazing. Thanks
I just found your page and I just wanted to say how awesome you n ur videos are and amazing how you have all your videos with table of contents and times ect very helpful! my hubby n I are both chronically ill(he has POTS too and ncs and other illnesses that goes with those) I have many incld stage 4 endometriosis,cfs,fibro,IBS-c,sbo, hyperthyroidism, n more. so I understand how it is having so many illnesses n I knw gi issues are the worst! :( I look forward to learning more and watching your vlogs and hope you have a good week, the best it can be! ❤💜
did you set up a RUclips live yesterday at 6:30? cuz that what it said. and people were missing you on there. is it really true that public's are expanding? cuz I don't see any in long island
We were going to have one, but it totally slipped our mind since I was not feeling well yesterday. So sorry! We will plan another one. I think Publix is expanding because I'm hearing of more people up North having access to them, but I do not know for sure. I think it would be great if they grew more!
Chronically Jaquie oh, I thought someone hacked on your account and set up a live session bc you didn't even mention that you were going to do live. hahaha. that fried chicken looks great. I hope publix comes to long island ASAP. and I want the mission BBQ to come here too. never tried mission.
I have MCAS, EDS, FIBRO and many other issues. I have noticed many of the people in the mcas community react to Gluten. I suffer from chronic migraines as well as anaphylaxis reactions and athma attacks and pain all over in my body with nausea and vomiting. Have you considered cutting out gluten to see how you feel? I stopped gluten for 2 weeks and then introduced it one day and reacted right away. Gluten was a huge trigger for me. And now I can eat things and not get so sick and also avoid most migraines. I have an mcas group and talk to a lot of people who mcas and they also state they are allergic to dyes in foods and on their body, preservatives, additives, corn, msg etc. So if you haven't tested those out on your body you might want to give it a whirl. Note: I didn't not test positive for an allergy to gluten. But with mcas you can have reactions to things that you don't test positive for. I am enjoying watching your vlogs. I feel validated knowing I am not the only one going through similar things. Hugs
I'm glad you put out such a positive, yet realistic point of view about chronic illnesses. such an inspiration!💖
Taylor, I really appreciate your comment. This is one of my biggest goals and why I share my story, thank you so much!
Truth!
I just admire your attitude towards all the medical issues. To see you bouncing back so quickly after a hard time inspires me so much. You have educated me that this is just reality with chronic diseases and we can get through it. I have been so sick and tired of being sick and having teachers criticizing me for missing out on school due to my chronic diseases and you just helps me loads, like helping me understand that I am not alone and encouraging me to continue with what I need to do for my health. These vlogs have helped me stay happy each day and I am so thankful to you for filming and editing. Thank you for these videos and I hope that your days get easier for you. You go girl!💁
Of course not to forget Judd and Harlow, you two make me laugh with what y'all do and say.
-13 year old who is addicted to your videos 😊
So happy to know my story helps you! It is terrible your teachers criticize you, that is not fair at all. You just keep doing the best you can do!
Chronically Jaquie I guess nothing's fair in this world :-( Thanks for the encouragement, I will definitely do my best in doing what I need to do.
You handle your health issues so well, and with so much grace, and with Judd..humor, which makes you both even more endearing. And, you do it all looking positively gorgeous!! P.S. headbands...you wear them well...xo
Thank you! I think Judd's humor is a great addition to our life as well :D
Jaquie, everybody loves you and supports you through these tough times and keep in mind that everybody wants to help you!!❤️🐶
"You can make anything exciting if you try!" love that attitude
Jud is just a sweetheart... He looked like a big kid when he ate cake xD
WickedLady87_dk totally! he's adorable. :) They're so cute together.
WickedLady87_dk Its Sad That She Passed Away
I started watching your videos because I was thinking about getting a service pup to help warn me of my seizures so I could have time to get into a safe area before they kick in. I haven't stopped watching you ever since. You're an inspiration, so thank you.
I'm so sorry... I hope today you are doing better! You don't deserve all these health problems!💙💙
You seem so much less stressed now that you have your feeding tube. It's nice to see that even when you are having a less than ideal GI day you can still remain stress free since there is no more pressure for you to force feed yourself. I'm glad that the feeding tube has been successful for you!
i saw a video on twitter of harlow and what she does for you! i got so excited to see the spread of awareness
Such a smart idea of putting your old mask in Harlow's pack.
I ran into this channel from someone saying you're faking, I watched different videos, and instantly fell in love with these!! I'm so sorry you have to suffer this but hey, you're teaching others a lesson and you're a role model to people like you! So thank you for being an inspiration 😀
As I lay here during the third week at the hospital with my 20 month old nephew, I still look forward to being able to watch your vlog as soon as he falls asleep and doesn't need to be cared for as closely. I have been following your journey since day 1 and I just love your little family so much. Thank you for letting us be a part of your life and for teaching us so much about chronic illness in the process. My nephew has an extremely rare genetic condition (200 known cases worldwide) along with several other complications, including GI. Although I, of course, wish you didn't have to have a feeding tube, I have really enjoyed your vlogs since then, because often times I can relate and I know exactly what you're talking about! 😊
Thank you for being what I look forward to each day, no matter how my day has been, I'm instantly in a better mood after watching the vlog of the day.
Maybe the extra vog mask could be stored in the car in case Harlow is staying home? :)
Either in the car or in her pack (:
I love how you have such a positive attitude towards life, even though you're struggling with these chronic Illnesses. Thank you for lightening my day by uploading daily! Congrats on your marriage by the way!
Hello Jaquie, hi Judd. Just wanted to drop a line. You have a great laugh Jaquie, it brightens my day every time I hear it. I hear all the problems that you have and I think poor child but when I see you that thought leaves my mind. With all the inconveniences you experience you have such an upbeat take on life in general. You are a true inspiration to someone like me with only two issues.
Even though I don't know you personally I am very proud of you. Your parents need acknowledgement as well for raising such an awesome young lady.
The outro had me laughing because it was exactly like how you ended yesterday's vlog: Judd shoving cake in his mouth :P
Anyway, I love that you have been trying your best with eating food orally even if it does not turn out in the best way. You have truly become one of my favorite youtubers in the past couple of months that I have been watching your videos. Much love!
Awe thank you! I do try really hard to continue eating orally. Most people do not realize how much work it takes to eat when you have a condition like GP, so thank you for noticing!
You are such an inspiration
Orzo is pasta. Maybe that's why you were having such a hard time finding it? It's in the pasta isle.
Melissa Murray the pasta and rice aisle are the same in my grocery store. :)
Melissa Murray Orzo is a cereal and they also make Orzo coffee
Julep Jules why is orzo so confusing?
honestly i found you through one of those long nights watching random stuff and i stumbled upon your Channel. I am so inspired by how you managed to put a smile on your face even though its rough and i love how you are so open with us. You are beautiful and i saw your wedding video and i wish you and your husband many many years to come!! and hope and pray you get better day by day ❤️
The ending of your video made me laugh! I'm Mexican and my mom has basically never cooked Mexican food my whole life. I do pretty often though! The easiest way to cook carnitas is to buy preseasoned pork butt from the Hispanic Market you guys go to. And you can put it in a crock pot with a little water, you can also add onion and garlic cloves. If Judd likes spice, you can add some chilies or whatever you prefer. The Crock-Pot might not make it as tender as the oven, so if you choose to use the oven!... use an oven safe dish deep enough for the meat and can hold about a cup of water. Do the same with the onion and garlic. put it in the oven for about 2-3 hours at 350 degrees, covered. And that's basically it! :)
also when you look for the meat, it might actually just say "carnitas" on the package, that's what it's like in my grocery store :)
I keep realizing I'm leaving out info!! The onion is for flavor so cut it up into quarters orrr using onion powder is totally cool too.
I was hoping I would be able to use the slow cooker! Thank you (:
FBIMOUS377 your making me think of trying, we always cook the same things and that sounds good.
Chronically Jaquie You're welcome! it also makes it easier if it's cut up before you put it in the slow cooker too :)
hi jaquie, im a new subscriber. my husband and i are from alabama, we moved to washington for military stuff so we are a long way from home! Definitely miss publix, the deli and bakery were amazing! i really enjoy your channel, praying you have a better day today!
So sorry for your uncooperative tummy. Keep up the positive attitude, you're amazing!
You are so amazing and I love all your videos. I just discovered you recently and I can't stop watching! You and Judd are so freaking cute, and Hippo is so adorable. Your strength to keep going with the videos even when you have hard days is awesome. Keep going! ❤️❤️❤️
Your smile and laugh in the intro makes me so happy!!!
You should have at least like 100k subs at this point I cant believe you only have 50k right now, you deserve many more.
My dear, how my heart breaks every time I see you in pain. I'm starting a similar "adventure " like yours . What can I say let's keep the best possible attitude towards our illnesses. I hate nausea by the way. Stay strong love♡
Just found your videos, and I'm so happy! I love how positive, informative, and fun you are when dealing with your chronic illness. Also, Harlow is adorable!!❤
she is an inspiration to me and my sis cause my elder sis has this same problem!!!! she always watch this vids of u being happy and gives support to her!!! thank u for being an inspiration!!!
Your dog is so sweet! I love your videos btw! Very inspiring to us all, and tells us that we are ok if we have an illness like yours!
Walmart on a Saturday is a bad idea for anyone haha. And that's coming from an associate.
Lol the advertisement for this was a kid dropping a toy in a toilet and a mom using Lysol to clean it after.
I have gastroparesis and eosinophilic colitis, since I was 2 and I never gain weight, so I'm starting to think getting a J tube fitted will help me gain weight and be healthier in general, your videos really help me understand possible life with a feeding tube! I also have severe anxiety problems and have days where I can't eat at all, so I think it will really help. Thanks so much for posting these great vlogs! ✨✨
I just found you and I can't out into words just how amazing your videos are to see! I know you've had a hard time these past few days especially so I figured I would say it. I have EDS POTS Epilepsy Narcolepsy Chiari Anemia and the beginnings of gastroparesis and to see others with these things as well is so... amazing. The solidarity I feel from your channel just by you being is so strong I don't entirely know what to say. Thank you for being so amazing and pushing through your every day pain to vlog for the people of the internet like me! Love ya! And I hope you get some extra spoons this week! Also I'll look to see if you've made a video on Harlow but how did you make the decision to get a service dog and where did you get her from? Thanks for the video
I am happy that everything is going will. God bless you . I am happy to see that the feed tube is doing good for you.
Hahaha I just LOVE the last few frames of the vlog with Judd shoveling a huge spoonful of cake in his mouth in the background :D
It's great to see you doing so much better, sorry about the vomiting today :-(Question about Harlow & taking her to loud places. I know you use noise canceling headphones for yourself but do you use anything on her? Training my seven month old Golden now, July 4th will be her first large public outing & concerned about fireworks damaging her sensitive ears.Thanks, I love watching your daily vlogs. You're an inspiration to us all.
i recently found your channel and i absolutely adore it! i raise a seeing eye puppy and am training her to be a guide dog for the blind so i love seeing your videos about Harlow! your little family is adorable, best wishes to you all ❤️
I was recently diagnosed with gastroparesis a month ago. It explained my last 3 years of suffering and being called "crazy" for all my complaining (since they couldn't technically find anything wrong). I'd love to pick your brain about it. This is all so new to me and kind of scary.
Even though today was a bit tougher you look so much healthier from the feeding tube
I laughed so hard when Judd said "It's basically a fart button" when you were discussing the updated tube. So happy for the tools that are available to help!
I love you spirit about everything in spite of your illness and I'm so sorry you have to go threw this on a daily bases I hope they find something that will cure your illness so that you can full enjoy your life and your husband is so awesome I love the fact that he's there for you no matter what take care ☺
this might get gross but I feel the GI struggles! I have crohns disease and if my medication stops working I have an awful time keeping food down (also from coming out the other end yuck I know) but watching someone go through something that is probably a lot tougher with so much positivity is so inspiring! Keep up the amazing work and never let your spirits get down.
Much love ♡
Omg the 100 was so good at the start and in the middle of the series it got so bad. But at the end of the final season it got way better! I cant wait for the next season
It is addicting to me! I just finished all the episodes on Netflix.
Chronically Jaquie who do you ship on the 100? Lol if you really want some entertainment watch the 100 crack on RUclips ... talk about addicting !!!
Yes to Publix food! I got a chicken tender sub the other day YUM! Ours used to have a really yummy Chinese food place in it, but it closed a few years back. I also really love the rotisserie chicken and flatbread pizzas!
Yes, the rotisserie chicken is amazing and SO easy on my stomach. Always a great go-to (:
Couldn't help but laugh when Jud flipped the caps of the Zofran! You have a wonderful husband. I also have gastropersis and funny enough when I am in bad flares and can't hold anything down I can usually keep pizza down. Just reminds me how everyone is so different with the disease! Also heating pads and bed buddy's are my life for gp pain! Sending lots of healing thoughts.
lol......now we have 2 things in common, FSU and Publix. My boyfriend was the Bakery manager at Publix. We moved from Ft. Myers Florida to NC to open up a new division up here. He was with them 27 years but no more. Publix is horrible up here I hate to say! Still love their chicken 😀 oh and cake! Congrats on getting married....You look like you feel so much better, so great to see!
You are absolutely amazing! Such an inspiration!! I love the whole family!! And Harlow is adorable! I hope you are able to to keep some food down in the future!
Taco/Santa Fe Soup is a perfect crockpot recipe. Add a can of kidney beans, a can of black beans, a can of corn, a large can of petite diced tomatoes, a can of cannellini beans, 1 packet of dry ranch dip mix, and 1 packet of taco seasoning. You can add it all to the crockpot and set it on low for 4 hours or so. The longer it cooks, the better it tastes. You can also add a pound of hamburger meat (cooked) or 2 chicken breasts that are roasted and shredded. You can even freeze the leftovers for another meal! We like to eat ours with corn chips, shredded cheese, sour cream, and a bit of avocado mixed in.
keep going Jaquie 😉
I pray for you and I am really sorry for everything you go thru every day but it is good that you have such a positive way of thinking and i love that that is why i think you handle everything so well and just know that you are in my heart
I miss publix so much. That was the worst thing about moving up to Maryland. I'm moving next month again and I'm really hoping I get to go back to Florida.
Love the vlog! You're so inspirational to people with chronic illnesses, Jaquie
The easiest recipe I have found that is easy to make with my disability and easy to eat with my gastroparesis is called creamy chicken and rice. You take a pressure cooker or rice cooker and put four boneless, skinless chicken thighs in the bottom with no rack. Add 1 1/2 cups long grain rice and 2 1/2 cups of water. Put the lid on the pressure cooker and cook for 8 minutes. Let the pressure go away by itself don't release the valve. It usually takes about ten minutes for that to happen. When the pressure is gone remove the lid and stir to break up the chicken then add one small can of cream of chicken soup. I use campbells or publix brand. You can use cream of mushroom if you want. Then just mix that together and let it sit for five minutes until the heat from the food warms the soup that is mixed in. You don't need to add anything else except salt and pepper. I have found that white pepper makes it extra tasty. I hope this helps all y'all like me with stomach issues.
Looks like you're doing a bit better with your feeding tube! How exciting! :)
I have gastroparesis also and I wanted to share something that helps me! Please check with your doctor first as always! I take culturelle capsules and sprinkle it on my food before eating. One or two capsules a day. It has helped me so much. I also stay on a low fat diet. I hope you can try this! I've learned so much from watching your videos! Thank you so much for sharing your journey with us! I wish you and your family nothing but the best!
I'm getting déjà vu with Judd and that cake!
What about doing some crockpot meals? You could prep them like you do Harlow's meals and just pull it out of the freezer and dump in crockpot. Spend the money and buy the crockpot liner bags (by the oven bags/Ziploc at the store) for super easy clean up.
One of my favorites is a beef roast, jar of sliced pepperoncinni with half the liquid, beef broth or water to cover, garlic, onions, salt and pepper. Serve on rolls with provolone cheese.
I really miss her 😭 I’m sorry she was a worrier May God give you comfort Judd
Rip love you jaquine
the end made me laugh the way Judd was looking at the cake was funny to me
Judd examining the cake to see what part to eat first XD
You haven't mentioned many of your allergic reaction "attacks" lately. I hope they have cleared up for the time being!!! You're so 💪🏻 strong! I wish I had your courage! 💙😇🙌🏻
They have not happened for a while! My doc has a few theories about why, but I am just pleased they are not happening for now.
Chronically Jaquie probably because you've been distracted with all the feeding tube issues. The mind is a funny thing 😃
Lau, it actually doesn't work that way. I wish, lol. I have had tons of things to distract me, yet the attacks persist. My doctor has a different theory.
Chronically Jaquie well main thing is they've stopped for now so that's good 😀
I'm sorry you felt so bad yesterday. I really hope today is better for you. Did you know that those Vogmasks are great at filtering out allergens but aren't made to eliminate the risk of illness, disease or infection??
Yes, but just because they are not made for that does not mean they do not help with that (:
I hope today was a better day for keeping food down! I'm also having a brief period of not eating that healthily 😅
i didn't know you watched the 100!! i love the 100. i'm on the season finale of season 2!!!
Any one else laugh when Judd stuck the spoon in his mouth at the end haha
Orzzo is a pasta lol. I thought it was a rice at first too when I first started cooking. Your videos make me so happy and make me be my biggest advocate and try to get my illnesses properly diagnosed.
Hahaha Judd "it's basically a fart button" 😂😂 It's so amazing that you two keep each other laughing so often. They say laughter is the best medicine and it's definitely true❤
Here's a tacos de carnitas recipe!
From cooking.nytimes.com/recipes/1012463-tacos-de-carnitas
3 pounds pork shoulder, either butt or picnic
7 strips orange zest
5 garlic cloves, minced
1 large onion, chopped, plus finely chopped onion for garnish
1 ¼ teaspoons crushed red pepper flakes
1 cinnamon stick, preferably Mexican canela
2 bay leaves
1 ½ teaspoons crushed dried oregano leaves, preferably Mexican
1 ½ teaspoons kosher salt, more to taste
¼ teaspoon ground cloves
24 small corn tortillas, warmed, for serving
Chopped cilantro for garnish
Salsa for garnish
PREPARATION
Trim any thick fat from surface of pork. Cut meat into 1-inch cubes, discarding any that are pure fat. Put pork in a large pot. Add enough water to cover by 2 inches, orange zest, garlic, chopped onion, red pepper flakes, cinnamon, bay leaves, oregano, 1 1/2 teaspoons salt and the cloves.
Bring to a boil, then reduce to a simmer. Skim off any scum that forms on surface. Simmer uncovered for 1 1/2 hours, until pork is very soft; add water if necessary to keep meat submerged. Season with salt, then continue to cook until water has evaporated, about 30 minutes. Cook a little longer to fry meat slightly; cook even longer if you prefer crisper meat. Stir often and add a bit of water if meat sticks or seems about to burn.
Remove bay leaves and cinnamon stick. Spoon a few tablespoons of carnitas onto each tortilla. Top each taco with cilantro, finely chopped onion and salsa. Serve.
Haha thank you!
:::drools::: Publix Fried Chicken. We saw Guardians of the Galaxy on Memorial Day, it was pretty good. Glad to hear you got a nice nap in, lol. Have a great day!!! 💜💜
Keep fighting xxx🌹❤️
I loved Judd's comment about the fart button!! I love watching your channel, it just shines with love ❤️
I loved that movie to, the pirates of the Caribbean I have seen 2 I just found out that there was more, but it's so much to watch I am like you I talk and ask to many questions. I have to be in the mood for those types of movies with so many details.
Hi! I just recently found your channel and I'm in love. I was watching one of your videos and when you said you had POTS, I was kinda shocked. My mom, sister, brother and I (only 11) all have POTS (Postel orthostatic tachycardia syndrome). It's nice to know that I can watch someone as awesome as you to get more knowledge on the heart condition. I subscribed by the way! I love your personality and how you push through throughout the day! Much love
I have emetophobia (phobia of vomiting) and can't get over how amazingly you deal with vomiting in day to day life! You are so strong 💪 Really hope you're feeling better today x Also, odd question, but last time I was sick it caused me to faint. I'm dealing with dysautonmia symptoms (probably spelt that wrong) too. Was wondering whether you ever experience fainting with vomiting, if you don't mind saying?
Sometimes, it just depends if it triggers my POTS badly enough. It has to be pretty severe though!
Yeah orzo is pasta
When I do my Carnitas I use a deep pot (dutch oven if I'm up to moving it) and take about two pounds of pork shoulder/butt with nice marbling, cut it into manageable chunks (not bite sized, but fist sized at least), and then marinate it in a little salt and fresh lime juice for about an hour flipping on occasion so that all sides spend some time in the marinade. While that's happening, I warm up some lard (enough to cover your meat, and no water) in whatever pot I"m going to use. I don't go up to a certain temp, but you want a light simmer to the lard when you put in your pork (I think you can use a chopstick or wooden spoon and when it forms small bubbles on the the wood it's ready). Anyways, put it in the hot lard, turning/stirring a couple times so that it cooks evenly. Usually takes about an hour or two to cook this way. It'll get all nice and brown and it's ready when the meat has a little give to it and pulls apart pretty easy. I put it on a cutting board and either chop it up, or pull with a fork (or fingers if I have time to let it cool down). I think it's best after a day or so. When I reheat, I take whatever meat I want to serve, and reheat it in a pan with a little lard or oil and you get that hole-in-the-wall mexican taco joint crispy-bits stuff (my personal fave). I've heard of people doing it in a slow cooker, but I've never done it. I've used water, but found that it makes it really... chewy(?). A fair amount of work but soooooooo worth it. I only make it on days where I've got the energy (which isn't often... yay chronic illness! lol). I serve it with just cilantro (onion if you want) and homemade hot sauce in microwaved/steamed corn tortilla with a lime wedge on the side. Whatever method you do DO NOT GET LEAN PORK! You want loads, and loads of fat and marbling!
you are such an inspiration thank you
You guys are such a nice couple. :)
Hang in there, sweetheart.
Your dog is cute. This was interesting to watch. I wish you all the best for the future :)
Quite good video, awesome!
Orzo is actually pasta-a bit strange when it looks like oversized rice!!!-therefore it can really hard to find in the rice isle-so ur a star for finding it Judd!!!
I just want to say I love your vlogs so much 😍
Starting around December, I have had such a sudden loss of appetite and GI symptoms. I have the same symptoms you described here. (Pain, bloating, nausea, vomitting, etc.) how common is it to have POTS and Gastroparesis?
Actually, they seem to go together (although nothing has been proven). As you may know, POTS is a form of Dysautonomia. The Vagus nerve is the largest nerve in the ANS, and when the ANS does not work properly the Vagus nerve may also be dysfunctional. The Vagus nerve is responsible for stimulating digestion, and a faulty Vagus nerve can cause GP. I explain is more in my GP section of my Chronic Illness video. (:
Okay. Thank you! I'll go check it out. If I have anymore questions, I'll ask.
Chronically Jaquie ....thank you for the explanation. I'm starting to have more digestive issues. I have EDS, POTS, and MCAD, so this is making sense.
As a Florida girl who moved to Hawaii, I can testify that there is no fried chicken like Publix fried chicken... Oh man how I miss Publix!
Judd is hilarious! I was thinking "fart button" right before he said it!
Judd was so happy to eat the cake lol
Hey jaquie! I was just diagnosed with gastroparesis (I knew I had it & was doing the diet way before I actually got the diagnosis) and I have POTS and EDS. So I was wondering if you had any tips for me. I suffer with vomiting, nausea, bloating, etc... and am having lots of trouble with keeping fluids/food in. I also wanted to say I ADORE your videos. I look forward to watching them everyday! You're amazing. Thanks
Movies are absolutely pointless for me with my narcolepsy. And now they have the new theaters with the recliners😂😂😂. no way😪😪😪.
I love those theatres! But totally get the struggle lol
I just found your page and I just wanted to say how awesome you n ur videos are and amazing how you have all your videos with table of contents and times ect very helpful! my hubby n I are both chronically ill(he has POTS too and ncs and other illnesses that goes with those) I have many incld stage 4 endometriosis,cfs,fibro,IBS-c,sbo, hyperthyroidism, n more. so I understand how it is having so many illnesses n I knw gi issues are the worst! :( I look forward to learning more and watching your vlogs and hope you have a good week, the best it can be! ❤💜
Yes the moment of silence for public fried chicken because I miss it. Jaq you look amazing.
I like! Keep it up!
Get well soon
did you set up a RUclips live yesterday at 6:30? cuz that what it said. and people were missing you on there.
is it really true that public's are expanding? cuz I don't see any in long island
We were going to have one, but it totally slipped our mind since I was not feeling well yesterday. So sorry! We will plan another one. I think Publix is expanding because I'm hearing of more people up North having access to them, but I do not know for sure. I think it would be great if they grew more!
Chronically Jaquie oh, I thought someone hacked on your account and set up a live session bc you didn't even mention that you were going to do live. hahaha.
that fried chicken looks great. I hope publix comes to long island ASAP. and I want the mission BBQ to come here too. never tried mission.
Have you guys talked about a gastric fundiplication?
No, we have not
Brittney K can I ask what that is?
I have MCAS, EDS, FIBRO and many other issues. I have noticed many of the people in the mcas community react to Gluten. I suffer from chronic migraines as well as anaphylaxis reactions and athma attacks and pain all over in my body with nausea and vomiting. Have you considered cutting out gluten to see how you feel? I stopped gluten for 2 weeks and then introduced it one day and reacted right away. Gluten was a huge trigger for me. And now I can eat things and not get so sick and also avoid most migraines. I have an mcas group and talk to a lot of people who mcas and they also state they are allergic to dyes in foods and on their body, preservatives, additives, corn, msg etc. So if you haven't tested those out on your body you might want to give it a whirl. Note: I didn't not test positive for an allergy to gluten. But with mcas you can have reactions to things that you don't test positive for. I am enjoying watching your vlogs. I feel validated knowing I am not the only one going through similar things. Hugs
Aw poor lady D: another bad thing I really hope you get better!
publix just bought out a bunch of food stores here in VA so we should be graced with the amazingness of Publix fried chicken soon haha :)