Anybody who would like to contribute to research aimed at curing Sanfilippo syndrome can visit curesanfilippofoundation.org/ It was great to meet you, Connor!
What a beautiful family. His brother is so well educated and understanding, his maturity isn’t common in boys that young. You can tell his mother taught them both well. What a beautiful bond they have. I wish them all the best and for Connor to be as healthy as possible for as long as possible
@@chuckthebrindlepittie6820 He's clearly there & a big part of things, as he was the one who made the vacuum cleaner analogy. But as @sunnystormy4973 implied: Some don't like the limelight.
@@monicascott2354 I was thinking the same thing because Keenan reminds me SO much of my own father! (And not all boys grow up getting on with their fathers, but my Dad was Super-Dad!)
💔My niece, Julia, has type A. She was supposed to only live to 15. She just turned 27. She cannot speak at all, she cannot walk or feed herself. She needs constant care in every daily living activity. This is such a rare, heartbreaking thing to witness. Sending love to this family💙
Blessings to you and your family, and especially Julia.💜 It's encouraging that she's lived past the estimation of her life expectancy. Your family is strong, focussed, and loving. You work together really well for her well-being. Thank you for sharing about Julia!💜
I took care of a lady in her 40s with SS. Her mom wanted to out live her because she was afraid there wouldn’t have been someone to care for her. Which wasn’t the case. She did outlive her daughter by 2 yrs.
Hey Mom you taught them very well. Brother and brother relationship is awesome keep it going Mama. The brother texted his brother saying it would be a problem as if his friends laughed at him Golden@@puffaddiqt
Former special ed teacher here. Seeing a Mom who educated herself well, includes Connor in the conversations, taught his brother to have empathy and obviously loves both boys unconditionally. Sounds like Dad's the same. Wonderful parenting. Loving, humorous boys.
I know ur job as an interviewer is to just ask questions…. but I just wish you could let his brother know what an amazing job he’s doing…, because that affirmation means A lot…. Because he’s seriously is AMAZING with his brother.., SO understanding and gentle… omg… he’s gonna grow up to be such an incredible young man!🥺
I imagine that there is so much footage and conversations that we don't see and I'm sure Chris acknowledges the rest of the family and how supportive they are ❤❤❤
@@marisadichiacchio1839:: you have done a WONDERFUL job raising those young men!! From one mother to another, keep on keeping on and enjoying your beautiful life with them ❤ YOU ARE SEEN. Also, please tell Jason hi for us! 😂
@@marisadichiacchio1839@marisadichiacchio1839 I honestly couldn't imagine the difficulties you contend with on a regular basis. The understanding, patience and affection shown is unequivocally beautiful in every regard. While I of course still believe my own mum is the best in the world, you certainly get my vote for second. It's amazing people such as yourself and your family who restore my faith in humanity, thank you. ❤
Keenan is so mature and well spoken. I love how he doesn’t talk to him like a little kid. He takes him seriously and talks to him like another teenager, just normal. I loved how he describes including Conner and how if someone was rude to him there’d be a problem but he said it just like well that’s a fact. I can tell how much love and giggles there are between these two. How lucky are that kids friends to see so early a model of how to interact the right way with people with disabilities. Truly this whole family is beautiful. The mom is stunning in her love and inclusion of both boys. She has done a phenomenal job raising them and has such beautiful green eyes! What a beautiful family inside and out. Thank you for sharing your love with us, this truly made my day I was laughing and crying with you. Such grace and optimism in the face of something heart wrenching. They’re all so honest which I love. Hugs to you and especially to Conner since he is such a hugger!!!
Keenan is so mellow and sophisticated. Jason, Connor really lights up when he gets them going with that. Their chuckling together was contagious. What great brothers
I love that Connor and Keenan make each other better people. Keenan has a level of empathy that is beyond many kids his age. Their mother has done such an amazing job raising two wonderful kids.
i recently had to leave my job working with developmentally disabled adults (unfortunately a vastly underpaid field) and it was really really hard for me, so I'm so glad this channel exists. it means everything to me now
To the mom that raised these amazing boys , you have all my respect, the little brother is a real star , what patience and empathy he has for his older brother , it’s beautiful to watch
I pressed pause to go and get something and it paused right when Connor was talking about Jason and it made Kenan laugh. It was an amazing screenshot of the eye contact between the two boys and both of them laughing. I hope the mom noticed that moment and was able to pause and grab a screenshot. A beautiful moment.
Keenan has an innate maturity-beyond his years-and a patient gentle nature, from forbearing correction to being completely at ease, not only with Conner but also with himself… and wonderfully inclusive. A remarkably loving family! Blessed with Conner! (I daresay blessed with Keenan too!) You managed to capture Conner & his family's story in a unique way, both honest, and yet uplifting! (Left me smiling!)
Hi Connor! Man, you’re so lucky to have a brother like Keenan, and a mom who loves to play all sorts of fun games. I always wished I had a brother, I’m really jealous haha. I bet it’s a blast with everyone on game night!
The siblings of the children in these videos always exhibit such high levels of emotional intelligence and empathy. Its truly amazing to see, you can tell they are going to grow up into good people
This might be my favorite interview on this channel. I love the energy and banter between this family. They seem like pretty down-to-earth and fun people. Conner seems like a great person and i love how much he wants to give hugs.
This youtuber deserves an award and world recognition 4what he does -_these ppl r literally the most over looked and voiceless ppl on the planet -i am so touched by his work ;giving these ppl a voice and a chance 4 their stories&struggles 2 b heard and recognized--i cry each time i watch these videos -i am myself a childhood TBI survivor - 😢😢❤
Conner is a comedian😂. He seems to know exactly how to get people to laugh! God bless him and his amazingly strong family. Conner, say hi to Jason for me😉.
I learn so much on this channel - not just about disorders but on how the immediate family handles it. This family has been fantastic in all this. I can only wish them the best!
Keenan is a great kid...he's only 14 and already a man...I dare not to imagine the wonderful adult he will be. Definitely a beautiful family...the kind everyone should have. A big hug to Connor...
I have seen a few videos on this channel of San Filippo syndrome with other children and also seen it on other channels. I have never seen it with a person Connor's age, as all the other children were quite young. It is truly amazing to see how advanced he is, despite his disability and how hard he tries to communicate. He clearly understands most of what is being said and I credit his mother and brother for that. I love how Keenan is so aware of Connor's needs and how he can interpret what he's saying and is also very loving and inclusive, adapting his lifestyle to include Connor, even when he's hanging out with his own friends. Mom - you are doing an amazing job with these boys and I hope you realize that. They are both handsome and have such kind and caring hearts - that had to come by your example! I would LOVE to connect with Connor and Keenan's mom even just to chat and have some laughs. I am a "meme queen" on facebook, so I can definitely provide her with some giggles and girl talk! LMK if she's interested and we can make it happen! Keep reaching for the stars Connor, you're an amazing young man!
Omg I smiled through this interview. Conner has such a delightful personality and his little laugh. His diagnosis is so sad but I'm happy that Conner is living a happy life with a loving family.
It was so lovely to meet you Connor! Thank you for chatting and letting us into your world a bit! You are so loving to your mom and brother, I hope you have many more fun days at school and playing basketball with your brother
Aww, he's such a sweet young man. He loves his brother and Mom so much. You can just see it in his face. I really do wish the best for Connor and his family. Hi Connor 👋 🩷
I grew up with my childhood friends brother (they were all adopted) had sanfilippo (type A I think) his name is Alex, he was only expected to live to 13, I think he would be about 21 now and when I last heard he “drove” a car with the help of his dad on his 18th birthday. You are loved Alex!!
Wow!!! This is the love and support that amazing families like this give their kids. If your kid has a dream, no matter if they have a disability, push for it. Good on you Alex!!!
His way of talking sounds SO CUTE! I really mean that and I do take him seriously. It just sounds so cute- I had a big loving smile on my face for the whole time.
I love how he makes the connection between wings and flying and wonders how Santa’s reindeer can fly without wings. It’s a great question that shows how he’s processing things in his world.
The flashes of fun, humour and banter - especially with his lovely brother - are so cool, but bittersweet. How heartbreaking that this family doesn’t get to fully enjoy their big strong teenager being independent, making jokes, rebelling, doing daft things like most teenagers do because of this cruelTy of San Filippo Syndrone. He’s such a fun guy, and his brother is such a great young man. Their lovely mum should be so proud. Keenan’s friends sound so great too, he’s chosen good people to hang out with, teenagers making sure the kid with a degenerative syndrome that marks him as different from his peers is included is great, and an example to lots of adults.
Such a handsome kid!!! I absolutely ADORE his mom! His brother too🥰”Jason!” “ We don’t even know who Jason is, he just talks about him all the time, we have no idea who he is” 😂😂😂I legit broke out in tears 😂Keenans tone of voice and laugh when he talked got me😂
I don’t think that at all. I feel that while he loves his brother, Keenan is very overwhelmed! Yes they do have a good bond but yea I mainly saw a very overwhelmed boy!
@@Charlotte-wx4jzMaybe overwhelmed by having to focus on this interview with him but not so overwhelmed with his brother himself. Most of the time I think he kept reminding Connor that they needed to focus because otherwise Kenan would have cracked up laughing. You could definitely hear it in his voice. And as Kenan said, he goes on sleepovers with his friends and plays basketball with his friends. He seems to have a full social life outside of his immediate family, so it's probably not as overwhelming as it might seem in this interview- aside from a little phone call from Connor when he's out now and then.
@Charlotte-wx4jz i think he was just trying to stay on task and act professional for the camera. And he was doing his best to accommodate his brother while doing what he thought he should on camera. 😂 funny boys. They were cracking up together and i think Keenan probably felt embarrassed a bit because what teen boy WOULDNT be embarrassed showing themselves having cuddles on the internet haha. I think the interview just made him shy
Good parents will always fight for their kids not matter what. But parents of kids with special needs go above and beyond, they'll fight for them like they are fighting for their own lives. It amazes me every single time. Continued blessings and so much love for this family
What a beautiful family- this is one of the best videos I have seen on here. Connor made me smile throughout the whole video- what a lovely lad- and the love from his brother and mother radiated through the screen.
Another wonderful family brought to us by SBSK, thank you. We are all better off getting introduced to people like this and their stories. I am so impressed by them all. Conner is right, he is handsome and cool! And his mom and brother are wonderful. I love seeing children so well supported, loved, and respected by their families.
I'm very impressed with the mom's pragmatism as well as her levity and sense of humor . She hasn't let it embitter her and that is a Triumph . I hope that Connor continues to get the mental stimulation that he needs and wants after he is no longer a teenager.
LOL@17:18 "Conner, I have a question for you.." "FOR JASON?!😁" "Conner listen!" ...👀...😅 You silly boy! Don't worry, I laughed buddy! You are precious and so is your family! I miss my baby brother so much. He had autism and passed away a year ago tomorrow. I hope you and your brother will always have this beautiful bond and make the absolute most of the time that y'all have. I love this channel so much for giving a voice to all these beautiful people.
when she mentioned him saying he was different is so sad in a way... knowing that it's off but you don't know why, I wonder how he processes that such a sad illness, but I'm glad they're loved for the time they have
AMAZING MOM!!! connor is doing so great because his mom has high expectations for him and holds him to a high standards even if its just making sure he minds his manners. I love how she will repeat questions to him and force him to focus. Thats important. And i like how she tells Chris when to "ask again" its almost saying, "dont give up on him, he can do it"
Man, I only discovered this channel yesterday and it already made me tear up like 15 times. Chris, you are truly a gift for those without much of a voice! Spreading awareness is so important to make this world a more understanding place! Thank you for everything you do!
I knew about Connor' s story and the family's fight for a treatment. The brother was great with him. And his mom too. I am glad that Connor is a happy teen and loves school.
Keenan is a godsend to have as a brother. What a great, loving, caring, and strong young man he is! ❤ I hope he also receives the love and attention he deserves. You can absolutely tell that their parents are doing a great job raising these boys. What a strong and loving family. ❤
The hugs and bond these brothers share really is the most pure and beautiful thing... even the disorder cannot take this away. Bless them. Good job, parents, for your amazing upbringing. God bless ❤
Chris is always so sweet, respectful and patient with the kids and families he interview . He does such an amazing job sharing these diseases and what it means to live with an special condition
His brother is amazing ! Mature well spoken. Great family ! Strong and loving Connor is a terrific kid because of the love especially from his brother !! Prayers to all
This mother is a work of art. I hope she knows just how wonderful she is. I hope she looks at her boys and sees the work she put in And and take a sigh of relief and know she has added some wonderful children to this next generation.
What a great family. It must be so hard but they surround him with love and you can tell how important they are to him. He's so funny this interview made me smile so much.
This young man is amazing, and his family is just beautiful. Thank you for bringing this to light. Please, SBSK, keep up the good work. Giving this young man a high five over the Internet.
This family is amazing! So loving! Mom and Keenan are remarkable and Connor is so sweet! Wishing them so many happy years together! Thanks for introducing them to us, Chris!
Much love to him and his family. What a wonderful young man and his brother and Mom are just precious. Many blessings and much joy to him and his phenomenal family. ❤
There’s such a beautiful bond between siblings, and also such a deep understanding from mothers. ❤ Also, your interview skills are amazing. You ask great questions and then allow your guest to speak freely. I love watching your channel and learning about the spectrum that is our human race. So much for us to love about each other. 😊
Connor is an absolute treasure! I found him to be delightfully sweet and loving. I love how his brother interacts with him and isn't embarrassed or ashamed of the way he acts. I pray for a cure for this dreadful syndrome.
I have been following this channel for seven years. I am always encouraged by the stories I find here. In a world of anger, strife, one- upmanship, it warms my heart to see these real people, families, living their best life, no matter what. Let's just all be Friends! Connor, you rock! What a great Family!
![Noob To Max With DRAGON REWORK In Blox Fruits [FULL MOVIE]](http://i.ytimg.com/vi/LnBMOinoOvA/mqdefault.jpg)
Anybody who would like to contribute to research aimed at curing Sanfilippo syndrome can visit curesanfilippofoundation.org/ It was great to meet you, Connor!
What was the funny thing Connor`s mum wanted to tell you at 27:27?
😊
Conner is awesome love how he loves his family❤❤❤❤😊😊
To Mom
Just in case you ever see this, you are an amazing mom. It shows greatly through both of your boys!
God bless
I was going to say the same thing. She's an angel you can hear it in her words
Well Said!🥰✌️❤️
One Hundred Percent! Absolutely amazing Mam. ❤
Special kids have special families.
Thank you so much!!
What a beautiful family. His brother is so well educated and understanding, his maturity isn’t common in boys that young. You can tell his mother taught them both well. What a beautiful bond they have. I wish them all the best and for Connor to be as healthy as possible for as long as possible
Wonder where the father is?
@@chuckthebrindlepittie6820not your business and please respect family
some ppl dont like showing
themselves ... ?
@@chuckthebrindlepittie6820 He's clearly there & a big part of things, as he was the one who made the vacuum cleaner analogy. But as @sunnystormy4973 implied: Some don't like the limelight.
Thank you so much!!
I love how loving Keenan is to Connor. What a great sibling relationship ❤
He is gonna be a fantastic dad someday.
@@monicascott2354 I was thinking the same thing because Keenan reminds me SO much of my own father! (And not all boys grow up getting on with their fathers, but my Dad was Super-Dad!)
Amazing, lovely boys xx
Oh it's the most beautiful thing 😭😩😍 my heart just cannot take it!!!!!!!
Alzheimer's robs tremendously, but love endures, it cannot be stolen.
That's beautiful.❤
Beautifully said❤
Amen to that!
❤
Yes. My mother passed away with alzheimers and our roles were reversed. In the end, she called me momma.
💔My niece, Julia, has type A. She was supposed to only live to 15. She just turned 27. She cannot speak at all, she cannot walk or feed herself. She needs constant care in every daily living activity. This is such a rare, heartbreaking thing to witness. Sending love to this family💙
@@coco_b Sending love to you and your family, too. I can't even begin to imagine what you have gone through. Peace and love to you all.
Blessings to you and your family, and especially Julia.💜 It's encouraging that she's lived past the estimation of her life expectancy. Your family is strong, focussed, and loving. You work together really well for her well-being. Thank you for sharing about Julia!💜
Just she talk or do anything?
sending love to you and Julia❤❤ keeping you in my thoughts
I took care of a lady in her 40s with SS. Her mom wanted to out live her because she was afraid there wouldn’t have been someone to care for her. Which wasn’t the case. She did outlive her daughter by 2 yrs.
4:52 “If they did laugh, that’d be a problem.” That is an INCREDIBLE brother and human being right there.
that's a real brother, that's what it's about man
Hey Mom you taught them very well. Brother and brother relationship is awesome keep it going Mama. The brother texted his brother saying it would be a problem as if his friends laughed at him Golden@@puffaddiqt
Exactly this! His brother is super kind and cool to say that, very positive trait
I loved that too
Connor seems to have a great sense of humor. I love how he keeps mentioning Jason and then giggles about it. What a great kid and family.
Sure would be cool if the mystery of Jason could be solved.🔍😮
I know right. I wanna know who Jason is 😂
Maybe his guardian angel?….he has such a pure soul…..love his silliness.
@@Ya_boi_jasper😂😂😂😂
I was thinking the same thing. Great kids.
Connor telling his mom he wants to live with her forever is just... so touching
Leech
@@goddammitboi Leach?
@@citrusbutter7718 Leach is a verb, like it's leaching into the soil. Leech is the animal lmao
@@goddammitboi BE IT AS IT MAY, why leech? I mean yeah his comment is kind of corny but still 😂
@@goddammitboi You weren't huggeed as a child were you?
Former special ed teacher here. Seeing a Mom who educated herself well, includes Connor in the conversations, taught his brother to have empathy and obviously loves both boys unconditionally. Sounds like Dad's the same. Wonderful parenting. Loving, humorous boys.
As a 16 year old girl I love to see how supportive his brother is! We need more teenagers to support and be kind to people who may be different.
I love his brother he is very nice to him
Exactly I love it
@@babygalstar1992 I’m so sad 😭
I 100% agree, sounds like you are a good example of what that looks like to other teenagers.
@ I’m so sad 😭
I know ur job as an interviewer is to just ask questions…. but I just wish you could let his brother know what an amazing job he’s doing…, because that affirmation means A lot…. Because he’s seriously is AMAZING with his brother.., SO understanding and gentle… omg… he’s gonna grow up to be such an incredible young man!🥺
I imagine that there is so much footage and conversations that we don't see and I'm sure Chris acknowledges the rest of the family and how supportive they are ❤❤❤
Such an incredible job. Seriously beautiful to watch
I remind him that he's amazing every day :)
@@marisadichiacchio1839:: you have done a WONDERFUL job raising those young men!! From one mother to another, keep on keeping on and enjoying your beautiful life with them ❤ YOU ARE SEEN.
Also, please tell Jason hi for us! 😂
@@marisadichiacchio1839@marisadichiacchio1839 I honestly couldn't imagine the difficulties you contend with on a regular basis. The understanding, patience and affection shown is unequivocally beautiful in every regard. While I of course still believe my own mum is the best in the world, you certainly get my vote for second. It's amazing people such as yourself and your family who restore my faith in humanity, thank you. ❤
Keenan is so mature and well spoken. I love how he doesn’t talk to him like a little kid. He takes him seriously and talks to him like another teenager, just normal. I loved how he describes including Conner and how if someone was rude to him there’d be a problem but he said it just like well that’s a fact. I can tell how much love and giggles there are between these two. How lucky are that kids friends to see so early a model of how to interact the right way with people with disabilities. Truly this whole family is beautiful. The mom is stunning in her love and inclusion of both boys. She has done a phenomenal job raising them and has such beautiful green eyes! What a beautiful family inside and out. Thank you for sharing your love with us, this truly made my day I was laughing and crying with you. Such grace and optimism in the face of something heart wrenching. They’re all so honest which I love. Hugs to you and especially to Conner since he is such a hugger!!!
Beautifully written...🥰
I cried when the brother said it would be a problem if anyone was rude to Connor. Such a wholesome moment.
Thank you so much for your kind words!
The vacuum cleaner analogy really helps me to understand San Fillipo syndrome. Thank you.
He is so lucky to have such a wonderful mother. She is a hero. His brother is also such a good soul
Thank you so much!!
Keenan is so mellow and sophisticated. Jason, Connor really lights up when he gets them going with that. Their chuckling together was contagious. What great brothers
Totally agree! They are clearly best buddies and I love how well they communicate! ❤
I love that Connor and Keenan make each other better people. Keenan has a level of empathy that is beyond many kids his age. Their mother has done such an amazing job raising two wonderful kids.
Thank you so much!!
Seeing the brother love and acceptance his brother like that could make a grown man cry😢
i recently had to leave my job working with developmentally disabled adults (unfortunately a vastly underpaid field) and it was really really hard for me, so I'm so glad this channel exists. it means everything to me now
Sad its underpaid. Its a lot of work even if its amazing being able to work with many kids and learn about them. Sometimes it can be really hard
I love when the family members explain their love and affection for them
To the mom that raised these amazing boys , you have all my respect, the little brother is a real star , what patience and empathy he has for his older brother , it’s beautiful to watch
Thank you so much!!
I pressed pause to go and get something and it paused right when Connor was talking about Jason and it made Kenan laugh. It was an amazing screenshot of the eye contact between the two boys and both of them laughing. I hope the mom noticed that moment and was able to pause and grab a screenshot. A beautiful moment.
Keenan has an innate maturity-beyond his years-and a patient gentle nature, from forbearing correction to being completely at ease, not only with Conner but also with himself… and wonderfully inclusive.
A remarkably loving family! Blessed with Conner! (I daresay blessed with Keenan too!) You managed to capture Conner & his family's story in a unique way, both honest, and yet uplifting! (Left me smiling!)
Hi Connor! Man, you’re so lucky to have a brother like Keenan, and a mom who loves to play all sorts of fun games. I always wished I had a brother, I’m really jealous haha. I bet it’s a blast with everyone on game night!
The siblings of the children in these videos always exhibit such high levels of emotional intelligence and empathy. Its truly amazing to see, you can tell they are going to grow up into good people
Keenan is so mature. What a sweet little brother. You can just feel this family`s love for one another. You are all doing a wonderful job!
Honestly, I feel bad for Keenan. He was probably forced to grow up and mature faster than most kids.
@@a.j.marcantonio153 Trust me, Keenan is amazing and has a great life including great friends, sports, sleepovers, etc.
This might be my favorite interview on this channel. I love the energy and banter between this family. They seem like pretty down-to-earth and fun people. Conner seems like a great person and i love how much he wants to give hugs.
Such a sweet family. Mom is so strong and down to earth, brother is soo good with Connor.
Thank you so much!!
This youtuber deserves an award and world recognition 4what he does -_these ppl r literally the most over looked and voiceless ppl on the planet -i am so touched by his work ;giving these ppl a voice and a chance 4 their stories&struggles 2 b heard and recognized--i cry each time i watch these videos -i am myself a childhood TBI survivor - 😢😢❤
Omg Connor’s mom is amazing she’s so awesome!!!! I hope she reads all these amazing comments!!!🥰🥰🥰
Thank you so much!! I am reading all of them and they're making me smile!
Conner is a comedian😂. He seems to know exactly how to get people to laugh! God bless him and his amazingly strong family. Conner, say hi to Jason for me😉.
I know! His laughter is so infectious!!!
I know!! He got me to chuckle as well 😂
His mom and brother are so loving, patient, sweet and wonderful with Connor .
This video made me cry so many happy tears. Connor’s mother is an amazing woman. His brother has such a good soul. My tears are happy tears.
I learn so much on this channel - not just about disorders but on how the immediate family handles it.
This family has been fantastic in all this. I can only wish them the best!
Thank you so much!!
Keenan is such a good brother
Keenan is a great kid...he's only 14 and already a man...I dare not to imagine the wonderful adult he will be. Definitely a beautiful family...the kind everyone should have. A big hug to Connor...
Keenon she work with Chris in the SBSK field. He would be great with it.
Both brothers are very lovely
I have seen a few videos on this channel of San Filippo syndrome with other children and also seen it on other channels. I have never seen it with a person Connor's age, as all the other children were quite young. It is truly amazing to see how advanced he is, despite his disability and how hard he tries to communicate. He clearly understands most of what is being said and I credit his mother and brother for that. I love how Keenan is so aware of Connor's needs and how he can interpret what he's saying and is also very loving and inclusive, adapting his lifestyle to include Connor, even when he's hanging out with his own friends. Mom - you are doing an amazing job with these boys and I hope you realize that. They are both handsome and have such kind and caring hearts - that had to come by your example! I would LOVE to connect with Connor and Keenan's mom even just to chat and have some laughs. I am a "meme queen" on facebook, so I can definitely provide her with some giggles and girl talk! LMK if she's interested and we can make it happen! Keep reaching for the stars Connor, you're an amazing young man!
You wrote this so beautifully!💜
I hope somehow you can connect with their mom - to share memes and be in touch. She'd probably really appreciate it. 😊
Logan from LoveLogan07 is 17 and also had sanfillipo. But it’s not type c.
Thank you so much!!
@@grachisol8236 Yes - we're in touch with Logan's family and he's doing quite well too!
I watch them on Instagram.
Wow! Your family is amazing. I am especially impressed with Keenan and his kind sweet interactions with Connor ❤
OMFG🥺🥺🥺 the love between Connor and his Brother was the sweetest thing ever omg my heart🥺😭😭🥰🥰🥰
Are you being honest or you just wanna make us believe youre being honest?
Omg I smiled through this interview. Conner has such a delightful personality and his little laugh. His diagnosis is so sad but I'm happy that Conner is living a happy life with a loving family.
His laugh is so cuuuuuute!!!!!
It was so lovely to meet you Connor! Thank you for chatting and letting us into your world a bit! You are so loving to your mom and brother, I hope you have many more fun days at school and playing basketball with your brother
Aww, he's such a sweet young man. He loves his brother and Mom so much. You can just see it in his face. I really do wish the best for Connor and his family. Hi Connor 👋 🩷
I grew up with my childhood friends brother (they were all adopted) had sanfilippo (type A I think) his name is Alex, he was only expected to live to 13, I think he would be about 21 now and when I last heard he “drove” a car with the help of his dad on his 18th birthday. You are loved Alex!!
Wow!!! This is the love and support that amazing families like this give their kids. If your kid has a dream, no matter if they have a disability, push for it. Good on you Alex!!!
Mom must be so proud of both kids and his younger brother is the sweetest boy ever ! He's so loving and doesn't get mad at him
Connor is a very bright, beautiful and handsome boy. Just like his brother. Mom, you are amazing.
Thank you so much!!
His way of talking sounds SO CUTE! I really mean that and I do take him seriously. It just sounds so cute- I had a big loving smile on my face for the whole time.
So I'm not the only one who likes his voice!
I think it's particularly because he sounds so happy and cheerful with everything he says
@@bmcdermott I just like that he's able to be so happy despite all that he's going through.
No. It is pretty cute. I totally started understanding everything he was saying after while.
I love how he makes the connection between wings and flying and wonders how Santa’s reindeer can fly without wings. It’s a great question that shows how he’s processing things in his world.
The flashes of fun, humour and banter - especially with his lovely brother - are so cool, but bittersweet. How heartbreaking that this family doesn’t get to fully enjoy their big strong teenager being independent, making jokes, rebelling, doing daft things like most teenagers do because of this cruelTy of San Filippo Syndrone. He’s such a fun guy, and his brother is such a great young man. Their lovely mum should be so proud.
Keenan’s friends sound so great too, he’s chosen good people to hang out with, teenagers making sure the kid with a degenerative syndrome that marks him as different from his peers is included is great, and an example to lots of adults.
Thank you so much!!
This mom is amazing!! And so is his brother!!
Thank you so much!!
Such a handsome kid!!! I absolutely ADORE his mom! His brother too🥰”Jason!” “ We don’t even know who Jason is, he just talks about him all the time, we have no idea who he is” 😂😂😂I legit broke out in tears 😂Keenans tone of voice and laugh when he talked got me😂
Thank you so much!!
Yes that part had me dying laughing. I rewatched it so many times to hear Keenan say tht
His relationship with Keenan is so funny, I love their bond
I don’t think that at all. I feel that while he loves his brother, Keenan is very overwhelmed! Yes they do have a good bond but yea I mainly saw a very overwhelmed boy!
@@Charlotte-wx4jzMaybe overwhelmed by having to focus on this interview with him but not so overwhelmed with his brother himself. Most of the time I think he kept reminding Connor that they needed to focus because otherwise Kenan would have cracked up laughing. You could definitely hear it in his voice.
And as Kenan said, he goes on sleepovers with his friends and plays basketball with his friends. He seems to have a full social life outside of his immediate family, so it's probably not as overwhelming as it might seem in this interview- aside from a little phone call from Connor when he's out now and then.
@Charlotte-wx4jz i think he was just trying to stay on task and act professional for the camera. And he was doing his best to accommodate his brother while doing what he thought he should on camera. 😂 funny boys. They were cracking up together and i think Keenan probably felt embarrassed a bit because what teen boy WOULDNT be embarrassed showing themselves having cuddles on the internet haha. I think the interview just made him shy
He's adorable. He has so much to say, and is so sweet!
Connor is a sweet heart. Great family, too!
Good parents will always fight for their kids not matter what. But parents of kids with special needs go above and beyond, they'll fight for them like they are fighting for their own lives. It amazes me every single time. Continued blessings and so much love for this family
Connor's brother is such a lovely sibling... God bless you boy
Love your programs. You help bring disabilities to the front where people can begin to understand.
He’s a beautiful person.
What a beautiful family- this is one of the best videos I have seen on here. Connor made me smile throughout the whole video- what a lovely lad- and the love from his brother and mother radiated through the screen.
Keenan is so great with Connor, and is tickled by some of Connor’s antics. What a lovely family.
Seeing this family added so much joy to my day…I will carry it with me. What a beautiful family.
Another wonderful family brought to us by SBSK, thank you. We are all better off getting introduced to people like this and their stories. I am so impressed by them all. Conner is right, he is handsome and cool! And his mom and brother are wonderful. I love seeing children so well supported, loved, and respected by their families.
13:15 This made me laugh so hard😂 Connor is such a prankster!! “Jason’s school!” (“Who is Jason?😂😂😂)
22:53 🤣💙💙💙
I hope it's not Jason Vorhees. When his mother said that he was bald, I was worried.
@ Voorhees is my maiden name😂
connor makes me laugh SO HARD. he has great comedic timing, and the way he and his brother laugh together is so wonderful lol
"What are you most proud of Connor for?"
"Jason! 😁" ❤
I'm very impressed with the mom's pragmatism as well as her levity and sense of humor . She hasn't let it embitter her and that is a Triumph . I hope that Connor continues to get the mental stimulation that he needs and wants after he is no longer a teenager.
Thank you so much for your kind words!!
LOL@17:18 "Conner, I have a question for you.."
"FOR JASON?!😁"
"Conner listen!"
...👀...😅
You silly boy! Don't worry, I laughed buddy! You are precious and so is your family!
I miss my baby brother so much. He had autism and passed away a year ago tomorrow.
I hope you and your brother will always have this beautiful bond and make the absolute most of the time that y'all have.
I love this channel so much for giving a voice to all these beautiful people.
I know, the whole “Jason” thing cracked me up! 😂
I love Connor’s smile!!😊
@@1LovedbyHim
I Figured, Jason is an invented character he makes his family laugh. He wants to Do comedy 😂
I'm sorry for your loss. Stay strong mate.
@@IsabellaStanfield thank you so much for your kindness, I truly appreciate it. I will do my best. God bless you, friend.
Kennan, Connor, and mom - if only every family could have so much love. Beautiful, sweet family.
Was für eine wundervolle Familie und was für ein strahlender und glücklicher Junge mit einem goldenen Herzen aus Liebe
“If they did laugh, that would be a problem”
Damn Keenan is a badass. What a smart and cool kid.
What an ABSOLUTEY BEAUTIFUL family! Oh Mon your children shine the same light youve given them ❤
I love this whole family's sense of humor! "Jason" with the giggles haha these parents are raising such a great family ♥️
when she mentioned him saying he was different is so sad in a way... knowing that it's off but you don't know why, I wonder how he processes that
such a sad illness, but I'm glad they're loved for the time they have
AMAZING MOM!!! connor is doing so great because his mom has high expectations for him and holds him to a high standards even if its just making sure he minds his manners. I love how she will repeat questions to him and force him to focus. Thats important. And i like how she tells Chris when to "ask again" its almost saying, "dont give up on him, he can do it"
Such a gorgeous family! You can just feel the love♥ Good job Mom on raising these amazing, intelligent, and kind boys.
Thank you so much!!
Thank you Conner and family for sharing your journey with us! You guys are amazing!!🤩
Man, I only discovered this channel yesterday and it already made me tear up like 15 times. Chris, you are truly a gift for those without much of a voice! Spreading awareness is so important to make this world a more understanding place! Thank you for everything you do!
I knew about Connor' s story and the family's fight for a treatment. The brother was great with him. And his mom too. I am glad that Connor is a happy teen and loves school.
Phenomenal people. Mom, great job raising these two outstanding young men.
Thank you so much!!
What a beautiful boy! His brother is the greatest. Connor is lucky to have this brother. You all have done a great job with this loving boy.
Keenan is a godsend to have as a brother. What a great, loving, caring, and strong young man he is! ❤ I hope he also receives the love and attention he deserves. You can absolutely tell that their parents are doing a great job raising these boys. What a strong and loving family. ❤
❤ This is an amazing family.
Those three are the epitome of LOVE. 😇😇😇
The hugs and bond these brothers share really is the most pure and beautiful thing... even the disorder cannot take this away. Bless them. Good job, parents, for your amazing upbringing. God bless ❤
Chris is always so sweet, respectful and patient with the kids and families he interview . He does such an amazing job sharing these diseases and what it means to live with an special condition
I like this sweet family...and Jason.
Big hugs to Connor 🤗❤️
Yes! Whoever Jason is...😂
His brother is amazing ! Mature well spoken. Great family ! Strong and loving Connor is a terrific kid because of the love especially from his brother !! Prayers to all
This mother is a work of art. I hope she knows just how wonderful she is. I hope she looks at her boys and sees the work she put in And and take a sigh of relief and know she has added some wonderful children to this next generation.
What a great family. It must be so hard but they surround him with love and you can tell how important they are to him. He's so funny this interview made me smile so much.
What an amazing brother!!! Connor is a lucky boy to have such great family that loves him unconditionally.
This young man is amazing, and his family is just beautiful. Thank you for bringing this to light. Please, SBSK, keep up the good work. Giving this young man a high five over the Internet.
This family is amazing! So loving! Mom and Keenan are remarkable and Connor is so sweet! Wishing them so many happy years together! Thanks for introducing them to us, Chris!
Much love to him and his family. What a wonderful young man and his brother and Mom are just precious. Many blessings and much joy to him and his phenomenal family. ❤
Wonderful family.:^) His brother is amazing. Real credit to his mom.
What a sympathetic family, all the best for you guys. I truly hope that Connor will stay healthy as long as possible. God bless you
Thanks!
6000 DOLLARS!?
Is that $1 million? Sorry to ask
Woah!
@@qwertuiii 60 dollars
@@qwertuiiiits $60 lol
Such a loving family, it is such a great example of a patience, love, understanding and acceptance. Thank you for sharing ❤
There’s such a beautiful bond between siblings, and also such a deep understanding from mothers. ❤ Also, your interview skills are amazing. You ask great questions and then allow your guest to speak freely. I love watching your channel and learning about the spectrum that is our human race. So much for us to love about each other. 😊
I want a hug from Connor! He seems like the best
Same
Keenan Your such a great job as a big brother. Your so mature for your young age.
Connor is an absolute treasure! I found him to be delightfully sweet and loving. I love how his brother interacts with him and isn't embarrassed or ashamed of the way he acts. I pray for a cure for this dreadful syndrome.
I have been following this channel for seven years. I am always encouraged by the stories I find here. In a world of anger, strife, one- upmanship, it warms my heart to see these real people, families, living their best life, no matter what. Let's just all be Friends! Connor, you rock! What a great Family!
Beautiful family! Mom, you are such a blessing. High five to Jason....🙃
Thank you so much!!
@@marisadichiacchio1839 your kids are amazing, protective brother ❤ you are also an amazing mom 👏