Girl with Real Tourettes Reacts to Tiktokers Faking Tourettes

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  • Опубликовано: 13 мар 2022
  • In today's video I address more about how to tell if someone is faking tourettes, and how harmful it is to fakeclaim people. A lot of people on TikTok have faked tourettes and it's been really harmful to the community, so I address people like ticsandroses and let viewers know some key signs in how to tell if someone is faking.
    As a girl with Tourette's, I would love to spread awareness and education about my disorder, as I feel it is quite misunderstood in today's society. The media has made it out to be a swearing disorder only, which is far from true. I hope this video will educate you on Tourette Syndrome and tic disorders! Life with Tourettes can be difficult, but just know that we're the same as everyone else...except for the fact we tic like clocks! (:
    Thanks for watching!
    Follow me on Instagram! @ticcingclock
    TikTok: @ticcingtogether
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Комментарии • 437

  • @Eileeleedon
    @Eileeleedon 2 года назад +411

    Because I was a theater kid (I know, tragic 😔) I got REALLY good at suppressing my tics. But the minute I was backstage or the show was over, I HAD to let them out, which caused me to be very ostracized by my cast mates. Which is honestly why I ended up stop doing theatre. I’d love to get back into it again, though.

    • @saramessore9197
      @saramessore9197 2 года назад +20

      Oh I feel you there! Especially with COVID, I was home a lot not doing theatre, so I started learning to not suppress and now it’s so hard to get back into theater, and feel comfortable. I hope you can still enjoy theatre in ways that feel comfortable for you though!

    • @PatienceMarie88
      @PatienceMarie88 2 года назад +27

      Please get back into it. Don't let them ruin your passion 😢. I can't fathom ostracizing someone because they have uncontrollable tics. They sound like some very stuck up ignorant people. I personally would just try to ignore them, and instead, out perform them and get every big part 😎.

    • @emersonmurray9796
      @emersonmurray9796 2 года назад +4

      me and you both. i love theatre so much but it hurts to suppress my tics so much

    • @Dayzee1081
      @Dayzee1081 2 года назад +3

      I'm so sorry they reacted badly! Ignorance is NOT bliss for the target!

    • @avaanderson3449
      @avaanderson3449 2 года назад +2

      I’m a fellow theatre kid, and Ive been finding myself in the same situation as you. I can also suppress VERY well and I don’t think I’m ever going to stop theatre even though it can hurt, probably not the best for me but I’m not giving up :)

  • @kolpants
    @kolpants 2 года назад +610

    There will always be fakers fishing for validation while playing the victim. I respect your empathy towards them, your genuine personality will take you far. keep on keeping on and stay true to yourself.

    • @lilylegacy-zierer7397
      @lilylegacy-zierer7397 2 года назад +7

      Well worded! Excellent encouragement for a brave and compassionate soul.

    • @gizmothebeardeddragon9712
      @gizmothebeardeddragon9712 2 года назад +4

      I hate victim players on so many levels.

    • @jay-yu9pd
      @jay-yu9pd Год назад

      It absolutely terrifies us to be ourself anymore because of people doing things like this. It actually does bc negativity can send us off the deep end. I won’t say exactly what it is I’m dealing with but it’s extremely brutal and people ridicule anyone whose like this. I just always feel so stuck in disillusionment now bc of all the horrible things going on in the US regarding trans ppl in the south.
      It’s so hard being neurodivergent at all now bc of people like this regardless of whatever neurodivergent disorder it is. There are so many disgusting human beings now and they will tear people down and watch them literally suffer with real disorders and as they tell them they are faking it all. They watch those people slowly never post ever again. It’s different when you KNOW someone’s faking.. but I’ve seen people, REAL disordered people this happens to.. and then I never see them or hear from them. Ever. Again. That’s worrying to me honestly. It really is.

    • @jay-yu9pd
      @jay-yu9pd Год назад

      I don’t think people realize how fakeclaiming can genuinely do bad things to you. Neurological/mental disorders can EASILY be triggered by negativity and fakeclaiming someone is definitely a triggering thing for someone. You can instantly tell when people are faking the things we deal w as “neurodivergent” people, there’s a very big difference between educating people abt what ur dealing with and then making a “funny, quirky post showing their other personalities” or things like “showing quirky tics” to fish for likes and I don’t understand why others just can’t EVER tell the difference between the two. It’s disgusting and it’s sad because there’s A LOT of disordered people in the world now so now we all get thrown under the bus bc of a few awful people?

    • @jay-yu9pd
      @jay-yu9pd Год назад

      It just is not right. It’s not okay. I don’t understand why we all deserve to deal with the blow of that stuff just for suffering w something.

  • @1luckyccmom
    @1luckyccmom 2 года назад +576

    I have a son with Tourette syndrome. Thanks for speaking out and helping people understand this disorder.

    • @shannagaybryan7248
      @shannagaybryan7248 2 года назад +1

      m͓̽y͓̽ s͓̽o͓̽n͓̽ s͓̽o͓̽m͓̽e͓̽t͓̽i͓̽m͓̽e͓̽s͓̽ m͓̽a͓̽k͓̽e͓̽ t͓̽h͓̽e͓̽s͓̽e͓̽ w͓̽e͓̽r͓̽i͓̽d͓̽ s͓̽o͓̽u͓̽n͓̽d͓̽ o͓̽u͓̽t͓̽ o͓̽f͓̽ t͓̽h͓̽e͓̽ b͓̽l͓̽u͓̽e͓̽ a͓̽n͓̽d͓̽ i͓̽t͓̽ g͓̽e͓̽t͓̽ a͓̽n͓̽n͓̽o͓̽y͓̽i͓̽n͓̽g͓̽ s͓̽o͓̽m͓̽e͓̽t͓̽i͓̽m͓̽e͓̽s͓̽ b͓̽u͓̽t͓̽ s͓̽i͓̽n͓̽c͓̽e͓̽ i͓̽ a͓̽m͓̽ a͓̽w͓̽a͓̽r͓̽e͓̽ o͓̽f͓̽ t͓̽h͓̽i͓̽s͓̽ i͓̽ a͓̽m͓̽ w͓̽o͓̽n͓̽d͓̽e͓̽r͓̽i͓̽n͓̽g͓̽ i͓̽f͓̽ t͓̽h͓̽a͓̽t͓̽s͓̽ w͓̽h͓̽a͓̽t͓̽ h͓̽e͓̽ h͓̽a͓̽s͓̽ , i͓̽t͓̽s͓̽ l͓̽i͓̽j͓k͓̽e͓̽ h͓̽e͓̽ c͓̽a͓̽n͓̽n͓̽o͓̽t͓̽ c͓̽o͓̽n͓̽t͓̽r͓̽o͓̽l͓̽ i͓̽t͓̽

    • @ApatheticallyPleasing
      @ApatheticallyPleasing 2 года назад +3

      @@shannagaybryan7248 why the weird font lol

    • @shannagaybryan7248
      @shannagaybryan7248 2 года назад +1

      @@ApatheticallyPleasing my son was obsessed with it🙂

    • @alexandra3701
      @alexandra3701 2 года назад

      @@shannagaybryan7248 no yt

    • @erictorres112
      @erictorres112 2 года назад

      I think that might be down syndrome

  • @StinaX732
    @StinaX732 2 года назад +184

    My 12 year old son doesn’t have Tourette’s but he has severe tics.
    It makes me sick to my stomach that people fake this. He does not laugh or have fun with his tics.
    It humiliates him and breaks my heart especially when he’s triggered and it gets worse.
    Thank you for your video!

    • @octogonSmuggler
      @octogonSmuggler 2 года назад +5

      I've heard of people taking meds as kids that give them tics. Like ADHD meds, for example. So, if he took any meds as a little kid for anything I'd look into that to see if it could be caused be a certain medication.

    • @MartianMeli
      @MartianMeli 2 года назад +6

      @@octogonSmuggler that is true, but really only applies to antipsychotics, not common ADHD meds.

    • @FaerieLoki
      @FaerieLoki 2 года назад +5

      Anxiety can also cause "tics"

    • @gelarehmohebbi
      @gelarehmohebbi 2 года назад

      It really is disgusting seeing TikTokers like ticsandroses laugh and chuckle after faking a tic... It's extremely evident to me that they are laughing because they know what they are doing is absolutely ridiculous. Breaks my heart for people who actually suffer from this painful syndrome. What these TikTokers are doing is just abhorrent. It was nice to see ticsandroses had their account taken down and I hope anyone else who chose or chooses to do something as vile as faking an ailment will get banned as well. Preventing the spreading of misinformation and mockery of people who genuinely suffer (with whatever it may be) is the only thing that will save our society from having to hurt as a result of the deplorable acts that those who feign these disorders/illnesses will inevitably inflict upon social media users/society as well.

  • @spookygremlins
    @spookygremlins 2 года назад +316

    my family doesn’t believe in “mental illness” (they’re quite uneducated to be crude lol about the topic) and did not like to talk about things like this, but I’m pretty sure my grandma had Tourette and passed it to me and my sister. I remember growing up wanting approval and suppressing my tics around my parents since they don’t like it. It’s definitely uncomfortable. Though I have a mild case, just some muscle jerking and throat noises. Didn’t really give it much thought because I didn’t know this was an actual disorder. My sister pointed this out to me later on and I didn’t believe her because seeing tiktok creator ticking so crazily, I was like there’s no way I have Tourette lol But thanks to you, I think I may have it and will do more research on this.
    Edit: I know tourette is not a mental illness

    • @TheKatarinaGiselle
      @TheKatarinaGiselle 2 года назад +25

      Does your family also not believe in neurological disorders? Thanks for clarifying that you know tourrettes isn’t a mental illness, but I was really curious if your family was also ignorant to things caused by the brain that people have zero control over. Technically, both mental illness and neurological disorders start in the brain, itKs just one starts because of a physical action in the brain and the other is more of a reaction in either the brain or body (or both) to life, hardships, and outside factors..although at times mental illnesses can also be a reaction to more physical things, such as hormonal imbalances or other things within the body. As awful as both of these things can be, they are fascinating truths! I’m sorry your family is ignorant to these already proven things within the human body and brain, but it hasn’t stopped you from seeking answers which is wonderful, and hopefully with the help of doctors, you will be able to find the answers and truth awaiting inside you and in that time you can educate your family. Stay positive! You aren’t alone 💓

    • @wilby9292
      @wilby9292 2 года назад

      My parents didn’t believe I have ADHD (I might get tested soon) they now are considering it as my doctor phrased it like “ she’s doing good in school now but she might not later and just because she’s doing good in school doesn’t mean she couldn’t do better if she has ADHD” so my mom is sending forms for a few of my old teachers and any new ones that think I can’t pay attention so if 2+ fill it out I’ll get tested

    • @sleepygrle6738
      @sleepygrle6738 2 года назад +2

      I come from a family who doesn’t believe mental illness is real, they don’t even believe asthma is real. It’s a trip lol

    • @NathanHedglin
      @NathanHedglin Год назад

      Tourette's is highly inheritable. Especially for males.

  • @KaiahAurora
    @KaiahAurora 2 года назад +54

    I have no personal experience with Tourette's, but as someone who's disabled and chronically ill, being accused of faking is the most frustrating thing, especially since the imposter syndrome is so persistent. Then again, I've definitely seen people that I think are faking, and it's such a tough topic to navigate. I always want to believe someone, but also they can be pushing harmful stereotypes, and bleh

    • @farawayxgalaxy
      @farawayxgalaxy 27 дней назад

      Yes!! Impostor Syndrome is so awful to deal with! We have OSDD, And because we see people getting fake-claimed so much as well it feds into our worry “what if I’m faking???” And when someone says “people who are faking know they’re faking” our response is literally “but what if I’m faking subconsciously”
      It’s awful. That’s why in the comment I just left I said fake-claiming harms those who DO have whatever disorder you’re fake-claiming more than the person you’re saying it to that may or may not be faking because you’ll never know

  • @vaughnhaney7020
    @vaughnhaney7020 2 года назад +32

    As someone with autism, I really resonated with the part about public misinformation. Everyone seems to either think autism is extremely obvious and utterly disabling (which, it CAN be, but that's not even super common), or that it's nothing more than a bit of social awkwardness plus some sort of superpower (ugh...). Both of these people dismiss me- either because I don't "look autistic" or because they don't believe my more severe symptoms.
    Note I am considered to be a mild case, or level one, or high functioning, whatever you wanna call it.
    I am barred from most social activities because of my sensory processing issues. Can't go to movies- too loud. Can't go anywhere crowded- need my personal space. Can't stay outside for long- too bright (even though my glasses change to sunglasses when exposed to sunlight).
    I can't even feel proper human connection because I can't handle physical contact with anyone except my best friend, who lives across the country. She gives me lots of cuddles when I see her, but that's usually less than once a year. For the rest of the time since I was a child, I'm so horribly touch starved there's a chance it's partially or even fully responsible for my physically debilitating chronic illness. I can't take medicine because trying to swallow without chewing 100% just makes me gag, so no pills (I even choke on normal food), and the "perfectly fine, maybe mildly unpleasant" taste of liquid meds feels like trying to drink molten lava.
    And my need to stim... Oh boy. I can't function without wearing earbuds playing audio at all times except the shower and asleep, which causes social difficulties as well as earwax impactions on a regular basis. When I was younger I tore out all my eyelashes. Nowadays, I still scratch my skin until it bleeds. I pace around the house until my legs are in agony and ready to give out and the bottoms of my feet are raw. I used to destroy basically everything by chewing on it. I still bite my nails until both my fingers and my mouth hurt.
    But I also sometimes don't realize I'm genuinely wounded because SOME sensations, particularly the sensation of actual temperature burning, are dulled. I don't flinch away from overheated surfaces like normal- it takes a few seconds of literally burning my skin to realize I'm in pain. When I was a kid and a lot dumber I used to go out in the snow wearing very little clothing, if it weren't for my parents catching me I would've gotten severe hypothermia.
    My communication issues aren't just "a little social awkwardness". I've literally traumatized people because I couldn't read they were upset or uncomfortable. I've lost people I loved with all my heart because I couldn't "read the room" and said something horrible. I've worked actively every day since I was a child to learn to communicate, and I STILL can't read social cues and emotional expression. I've basically just gotten better at talking my way around it.
    Oh, and when I get VERY stressed? Yeah, that almost got my best friend killed once. She was choking, I didn't know the Heimlich.... And I LOST THE ABILITY TO SPEAK. I couldn't tell anyone what was going on! I tried, I went to another friend and poked them and tried to sort of tug them to where the person I love most in this world was unconscious from suffocation, but I couldn't make a sound. It was such odd behaviour from me that they were just confused and didn't figure it out. By some miracle my friend's airway cleared itself and she was okay, but my autism could've KILLED HER!
    Similar stuff has happened with other people too, but that stands out because it truly was down to me. Other cases usually has someone else notice.
    And when someone else isn't in life threatening peril, severe stress can make me hurt myself. My dad once had to physically restrain me because I kept hitting my face and i would've broken my own nose if he didn't. Other times my hips and thighs have ended up bruised from punching myself. I genuinely can't help it. I don't even think it's like a tic because I don't know it's coming and have absolutely 0 control, it's like someone else is doing it.
    Though, that may be because another symptom is my inability to process my own thoughts and emotions. One day I might have a meltdown over something completely stupid, another day I'll be completely apathetic to being sexually abused (true story...).
    My fixations used to get so bad I'd almost kill myself via neglect. I wouldn't leave what I was doing for up to two days, not even to drink some water. I only got better with that after one time I stood up and immediately passed out... But the fixations are still really hard to control. I can't stop talking about them, I choose them over my responsibilities, and nothing that doesn't involve them in some way can make me happy. I do enjoy them but they're literally ALL I have because my brain decides nothing else is worth anything.
    And I don't have any damn superpowers. I'm, like, a little bit smart. But nothing not considered normal. And I'm a good artist, but I have a non autistic friend who's younger than me, started later than I did, and is much better. So... Yeah, not a superpower, just a passion.
    Remember I have a MILD case... This is why I get pissed off when people say it's wrong to want to treat autism. I'd do almost anything for a medication that could help. And I definitely get mad when people tell me it's not a disorder. It literally makes life so painful for me. And yet because it's "just some social awkwardness" at my level, I don't get disability benefits, and no one thought my 504 plan was important in school (which ruined my grades even though I tried so hard the stress almost killed me half a dozen times). I'm starting to think I'll NEVER be able to take care of myself and it's just so hopeless because no one believes me, since I act "normal" most of the time due to spending my entire life actively building my mask...

    • @MsCellaneous
      @MsCellaneous Год назад +5

      I have a mild form of autism too. I do not have “superpowers” either. I struggle with tangents, slowed reaction times, and when it comes to social skills, I cannot read faces, I rely entirely on tone. I cannot go to concerts, they’re too loud. I am lucky. I was diagnosed at a young age because my parents are in the medical field. My mom fought for me to be in regular classes, and she fought the teachers that did not respect my IEP. I have the tendency to forget to eat or drink for long periods of time. I have texture sensitivity. I probably need occupational therapy as an adult because the doctor did not recommend I went as a child when my mom asked if I needed it. I’m getting better, though. When I realized that “asperger’s syndrome” was just autism dressed up with a bowtie, I started to look into it. It’s silly, but I never equated it. I never noticed the difference, and now that I’ve researched it, I can’t help but notice. I feel resentful that I was dealt this hand. I have a mild case. Autism is a part of me, and it makes me who I am, but I also wish I did not have it.

    • @sillyface6950
      @sillyface6950 Год назад

      I can't believe all of that is considered "mild".
      Also I'm sorry you felt so bad about not being able to help your friend in need and I hope you have prepared yourself for all kinds of emergency situations since then so that you will have confidence in yourself to be the one able to take action if something goes wrong in the future.
      I suggest this to all sorts of people for all sorts of reasons, usually when people are ill amd aren't up to eating things, but you should look into breakfast drinks or other beverages that are considered meals for days when you don't feel like consuming things. Because then (even if you only manage a little) it will not only hydrate you like a liquid would but will also provide you a good mix of nutrition too.

  • @sofaifish2528
    @sofaifish2528 2 года назад +43

    Hi! I think that social media represents tourettes, mental illness etc really poorly, because I've been accused of "faking my anxiety" , "faking my panic attack" in my classroom because people think that I'm either, one, faking it or they say "That's not how anxiety is supposed to be." just because of social media. thanks for this video :]

  • @betterwiththeirish
    @betterwiththeirish 2 года назад +64

    My son has Tourette’s and it’s pretty mild. His tics are often things every one normally does. He sniffs and coughs for instance.
    When he was younger he grew his hair out so that when he twitched his neck it looked like he was getting his bangs out of his eyes.
    My nephew has it as well. He was able to replace a tic with laughing. When he really needed to do the tic, if someone hadn’t made a joke he would so he could laugh.

  • @boggysaurus
    @boggysaurus Год назад +5

    My uncle has tourettes and was often bullied for it. He makes head jerks and grunting noises, it mostly happens while he talks, and I appreciate the awareness of this disorder! I've shown him some of your videos, and he feels a lot better abt his disorder. You're awesome!

  • @voin3186
    @voin3186 2 года назад +261

    As for Tic and Roses. I was married to the host Emerald. Now I'm totally against death threats or death wishes...etc. I do think that is wrong that Emerald decided to use people's empathy for money. She should be exposed, and as her family members will all tell you. She doesn't have tic. Huntington's yes, she can have that, tourettes, she didn't never had it the 7 years we were together. She did have from mental illness after mental illness, the list goes on from my experience with her.
    I do appreciate the information you share on the disorder.

    • @shaftyy5822
      @shaftyy5822 2 года назад +8

      she already has been exposed - ruclips.net/video/r4KtPb90ELQ/видео.html

    • @voin3186
      @voin3186 2 года назад +22

      @@shaftyy5822 I'm aware.

    • @Cantbeerased7893
      @Cantbeerased7893 2 года назад +7

      I mean like don't send her death threats but likeing her for that is wrong

    • @alexiscorrente6808
      @alexiscorrente6808 2 года назад +8

      …the host?

    • @sharkgirl3609
      @sharkgirl3609 2 года назад +1

      @@voin3186 are we gonna get a Wednesday Workout tho?

  • @StinkyEm07
    @StinkyEm07 2 года назад +14

    Ticcing Together: People have called me a fraud, that I'm fake...
    Dog: *In Growling* They said wot?

  • @aeroumasmith
    @aeroumasmith 2 года назад +37

    I really just loathe people faking mental illnesses. The one that pisses me off the most is DID.
    These kids did not get abused to such an extreme to develop that disorder, but they act like they did. It's tone deaf and insensitive.

    • @galatea742
      @galatea742 2 года назад

      Yes, underneath faking ‘quirky’ DID is faking extreme, severe and horrendous childhood trauma, usually abuse. That seems to be forgotten, these people are often making false claims of severe crime, it’s not just the surface level disorder symptoms.

    • @thetea4093
      @thetea4093 2 года назад +2

      I mean same but Tourettes is not a mental illness, it’s a neurological disorder

  • @kamilee4123
    @kamilee4123 2 года назад +6

    Tic suppression is honestly a really fascinating thing to watch. One of my best friends has Tourette’s and she tends to suppress tics when she’s around people she doesn’t know that well or in a more “professional” setting. But she tends to tic around our friend group more because she’s very comfortable around us. The fact that she does around us makes me feel happy that she trusts us like that, but it is interesting to notice her tics seemingly disappear or become far more subtle around others. And I’d guess that a decent amount of people in her life who don’t know her too well would probably not guess that she has Tourette’s.

    • @dream_walker9726
      @dream_walker9726 2 месяца назад

      my friend says this because I suppress at home but not at school so they say it’s so weird to see me not ticcing at home 😭

  • @lunar8712
    @lunar8712 2 года назад +93

    So um
    I wanna just poin out few things about having tics
    I am not diagnosed with that disorder but I do have tics
    So some things I wanna point out are that first:
    Tics also tend to happen mostly (at least in my case) when you're stressed, overwhelmed or emotionally unstable
    It's important to keep your life and day as calm as you could
    Dramas are no fun, but with tics they can make your day nightmare
    Second
    There's many triggers to tics, but not any trigger works for anybody
    You can get triggered by a certain sentence, yes
    You can get triggered by thinking or talking about the tic, yes
    You can get triggered by seeing someone else having a tic
    But you also can get triggered by your own tics
    What do I mean?
    Well
    I do have hands, feet and face tics
    My feet tics tho, happen mostly along with my hand tics because when my hands get a tic for some reason my feet too would get a tic
    That's another trigger to it..
    Also third thing I wanna mention is that (at least for me) tics know when they should not happen
    What do I mean?
    Well
    Example
    Tics can happen in public, but (for me) they happen mostly when you're alone or feel safe to have them
    Tics aren't mental disorder, your brain is aware when you should or should not do something
    And that's why tics can be less likely to happen if you're in public or around someone you for example don't wanna see them
    But it's more important if you're in good emotional state, if you're emotionally unstable they would just happen no matter the situation
    That's why the best ways of keeping good daily life with having tics is to:
    Keep yourself calm, DON'T involve yourself into unwanted and unnecessary dramas
    To have a good and fun hobby, it is helpful to keep yourself busy because your brain would focus on that thing and will be less likely for a tic to happen
    And ofc most importantly:
    Visit a specialist to get diagnosed and maybe if needed get medicine to control your daily life
    Thank you for reading, hoping what I said was helpful
    Have a nice day
    Ps:
    I'm not English Speaker from birth, I'm bulgarian so don't mind if my English is not grammatically proper or if I misused a word or something like that

    • @ashleypetrini4627
      @ashleypetrini4627 2 года назад +4

      As a native English speaker I have to say you did a great job!

    • @pugkinspice5269
      @pugkinspice5269 2 года назад +3

      I'm so happy I came across this comment, I'm also not diagnosed but do have tics, mostly to do with my vocal chords, for instance I click the back of my throat, make squeaking noises, or blowing air to make a sound like little kids do to imitate a horse, I also have motor tics such as a shiver down my neck and snapping my fingers... it's all developed very recently within the last year and it's been very confusing, my therapist believes it has been a stress response, but its kind of comforting to see someone else with a situation similar to my own, so thank you for posting this comment😊

    • @PatienceMarie88
      @PatienceMarie88 2 года назад +3

      I hope you don't mind me asking, but when you have a tic does it just happen without any conscious thought or do you feel them coming and you just can't suppress the urge of the tic?
      I don't know if that makes sense or not. If you don't understand what I'm asking, I'll try and rephrase the question 😊.

    • @pugkinspice5269
      @pugkinspice5269 2 года назад +3

      @@PatienceMarie88 I don't mind at all! It's a little bit of both I guess? Sometimes it just happens and I have no warning, other times the best way I've found to explain it is its like when you shake a soda bottle and it pressurizes and you have to turn the cap just a little to release the pressure... I'll get triggered by a noise like shoes squeaking on a clean floor and I feel the "pressure" and have to "turn the cap"
      I hope this makes sense???

    • @PatienceMarie88
      @PatienceMarie88 2 года назад +3

      @@pugkinspice5269 Makes total sense! Thanks for educating me 😊.

  • @rjjeffreys
    @rjjeffreys 2 года назад +49

    Thank you for sharing your own daily challenges with TS with such clarity and courage. As someone with a life-long history with OCD, and its relentless need for compulsive behaviors, I am sending you my sincerest wishes for relief from your TS.

  • @Abicatxoxo
    @Abicatxoxo 2 года назад +12

    You explain your syndrome very well and accurately. I’m a senior psychology student specializing in clinical counseling, your descriptions are spot on and super easy to comprehend. You should be a profesor or public speaker 😊

  • @Xirdnehynnej
    @Xirdnehynnej 2 года назад +16

    Thank you for sharing this video and your experience! My daughter was diagnosed with Tourette’s about 4 years ago. She mostly has facial and body spasms if I can explain it that way. She had massive swelling in her brain 5 years ago and about a year later complained about a “bubble” in her nose. I thought it was interesting you said that about your throat. We didn’t find a physical bubble in her nose but her neurologist did recognize her involuntary facial scrunches. And she’s developed more in recent years. It’s so frustrating when people are so judgmental. My daughter is 17 now and it’s been a rough road for her not just for Tourette’s but also for her T1 diabetes. She’s a warrior like you! Thank you for speaking out so bravely ❤️❤️❤️ new sub! 👏🏻

  • @myshoesareuntied3525
    @myshoesareuntied3525 2 года назад +237

    might as well call it "tic-tok" at this point, it's getting ridiculous

    • @ashleyd6338
      @ashleyd6338 2 года назад +10

      great name, and i agree
      we got crystal tok
      dance tok
      TIC TOK HAHHAHAHAHAH
      pls stop if you fake tics

    • @robertdimarzio4490
      @robertdimarzio4490 2 года назад

      If you use TikTok as a litmus test, nearly 100% under 30 years old has Tourette’s syndrome, DID, and is transgender or at the very least, nonbinary.
      And I’m sure none of them are faking. 🙄

    • @WiseSageBum
      @WiseSageBum 2 года назад +8

      Ri-tic-ulous

    • @kdattm1117
      @kdattm1117 8 месяцев назад +1

      @@WiseSageBum wow.

  • @lailabintyahyaa6217
    @lailabintyahyaa6217 2 года назад +23

    OMG, finally someone with my thoughts!!! I have Tourrette's, as well... I was born with it, and people always take me for a freak... THX so much for speaking up!! Appreciate it!

  • @zombiegirl9298
    @zombiegirl9298 2 года назад +14

    When we were younger, my brother was on a medicine for his ADHD that induced tics. He had two tics, one where he clicked his throat (I can't explain it too well, but his tongue would hit the top of his mouth) he also had one where he jerked his head to the right. I was around 9 years old, and me being a little shit, I didn't know that it wasn't something that could be controlled, so I got annoyed with him and we often fought. Now that we are older, and he is off that medicine and doesn't have tics anymore, I feel like I could have been better, but this was almost nine years ago, and I can't go back. I'm glad I've grown from that person.

    • @AliceElricSama
      @AliceElricSama 2 года назад

      I have ADHD and when I was 10 and 11 clicking my tongue was a constant tic for me as well. I didn't notice, but my grandmother hated it

  • @m.ccheddarbox874
    @m.ccheddarbox874 2 года назад +13

    I admire your strength and your kindness. I'm not sure if I could be nice about all of this. It's falls into the same category as someone faking cancer or being pregnant. Some people's tics look soooo painful.. and what these people are doing is a slap in the face.

  • @falakrafi
    @falakrafi 2 года назад +4

    Not only do I love the candid perspective of the good and the not so good, I think the solid advice to take is definitely maintaining an open mind while also reserving the right to be wary of people who only want to focus on the "fun" and "silly" aspect of it. Chronic illnesses are just that: chronic. Relentlessly being out of homeostasis is draining, it's taxing and on so many levels; mentally, emotionally, physically. You can't go wrong with being warm and loving towards everyone though, not even for "fakers" but for those who have to deal with the setbacks that such people cause. Sending you all, all my love, well wishes, and healing 💙💙💙

  • @kellymckenzie5686
    @kellymckenzie5686 2 года назад +6

    I like that you brought up how heavy the meds are that you take I don’t think most realize that, they think of it like taking an antidepressant when actually the meds you take would knock a healthy person on their ass.

  • @Chicagocanine
    @Chicagocanine 2 года назад +3

    Thank you for explaining that it’s not a mental disorder. I keep seeing people talking about people faking mental illnesses on TikTok and then using Tourette’s, ADHD, and autism as examples when none of those are mental illnesses.

  • @SoManyRandomRamblings
    @SoManyRandomRamblings 2 года назад +5

    My brother has a tic, and hates it, not just cuz his own wife makes fun of him, but it has caused him to spill hot coffee on himself and even once stabbed himself.

  • @priyanshupokhriyal1677
    @priyanshupokhriyal1677 2 года назад +8

    Thanks for educating people about tourettes and exposing these scumbags!

  • @CS-jr7sy
    @CS-jr7sy 2 года назад +37

    So many good points in this video. I wish I could like it more than once! And your dog is adorable.

  • @Dizzybee123
    @Dizzybee123 2 года назад +15

    I watched three videos on this topic and yours was the most informational and straightforawrd. Thanks so much for uploading this, it really helped me as someone who wants to be an Ally. Thank you for being brave enough to upload and talk about this, fight stigma and understanding that it is hard to go through, you did a fantastic and honest job. Great video.

  • @urltima
    @urltima 2 года назад +7

    There was a time for me in like, literally 2011, something from a LONG time ago, I was obsessed with watching videos about people with tourrettes because I was so utterly intrigued. I remember thinking "okay but why are the only people with tourettes in the UK?" LOL, I couldn't find ANY Americans talking about their experience with tourettes, it wasn't until I started seeing it on tik tok that all of a sudden millions of Americans have either been suppressing their tics this whole time, or they somehow acquired tics.
    Same thing with borderline personality disorder, I literally watched a documentary from the 90s about BPD when I was 17 (im 26 now) and resonated with it SO much. NOW, on tik tok, BPD can be very different. It feels like EVEN THOSE WHO HAVE IT, are trying to put a "flare" on it or make it quirky. If we just viewed these things as parts of our chemistry, brain, and body and less about WHO we are, what our personality is - we would all be better off. You aren't Theresa with BPD, you're Theresa who happens to have BPD, Theresa still exists outside of BPD, always has been always will, but we are sinking so far into our diagnoses and self diagnoses in search of answers, we are losing our personalities and souls. You can seek out answers for your mental challenges, neurological or psychological, but we are using those solutions on our PERSONALITIES.
    Draw the line between YOU and your diagnoses, and address each. Because I actually have great empathy and great compassion for others, thats who I am. My BPD is what leads me to protect myself in angry or violent ways, but that IS not me.
    We exist outside of every single physical ailment or disorder, anything. We exist separately and strongly outside of our physical body.

  • @nestorisaacestoque5989
    @nestorisaacestoque5989 2 года назад +8

    This is why I never indulge myself on tic-related and TS-related content on Tiktok as a person with Tourettes. I looked once, I just went "nope".

  • @itz_miyuki2340
    @itz_miyuki2340 2 года назад +9

    Thank you for explain this, The tiktokers are very cruel, tics are really annoying (I do not have tourettes but I know they are very annoying) I know it is hard seeing others faking while you are having a hard time with tics while others are faking tics for money and views It is really annoying also, your dog is very cute!

  • @LegalVampire
    @LegalVampire 2 года назад +3

    Thank you for speaking on this - it makes me mad when people who don't even have tourette syndrome think they can tell if someone's faking or not and think they're an expert on the subject after watching a single video 🙄

  • @liamdacre1818
    @liamdacre1818 Год назад +1

    I have vocal and motor tics but I haven’t been diagnosed with Tourettes. Thanks so much for speaking the truth and raising awareness about the condition. Fakers really make my blood boil because they misrepresent people with the actual condition and can lead to discrimination

  • @saggysackofpotatoes1351
    @saggysackofpotatoes1351 2 года назад +3

    i have tourette's syndrome, and i'm super glad i found this fuckin channel!!?!? there's a lot that i didn't know about tourettes and so much and honestly in a weird way, seeing you tic without making a thing of it and just continuing on makes me feel a lot more validated in mine. this video explained a lot of my tics ahhh thank you for educating :>

  • @pixifairy67
    @pixifairy67 2 года назад +2

    Many of those tics are painful and if you were faking, you would be causing yourself quite a bit of unnecessary pain! I have mild ts, but nothing to the degree that you do. Thank you being out there and honest and setting the record straight. You are appreciated.

  • @lindsaycameron1789
    @lindsaycameron1789 2 года назад +16

    I honestly don't even feel like I can spread awareness for TS because my tics are not disabling. Mine are very mild. It is hard when most of the influencers with TS have it super bad. I love your content so much because it feels a lot more like my experience. I dont know if you have seen a girl named Braylen on tiktok and Dr. Phil who has tourettes is now being attacked and being told that she is faking. I was watching a video about how she was faking (which if we are being realistic she 100% could be faking) but all of the reasons for her faking were not even educated accusations. They obviously dont know anything about TS. Also I would love if you made another video with your cousin! She was so sweet and fun to watch!

    • @solarsatori
      @solarsatori 2 года назад +3

      I get what you mean and I used to feel the same way but now I think that it's actually the reason why we should talk about it as people with more subtle cases. Most non-TSers assume all cases are extreme and disabling because that's what they've seen. Even as someone with mild-moderate tics (I go though phases) it effects every aspect of my life. As a society we are becoming more aware of Autism as a spectrum and I feel like TS is similar. We all have different experiences and some of us require more accommodations but we are all valid. That said it's not each of our responsibility to educate everyone and put ourselves at risk of being bullied for fake claimed so we shouldn't feel pressured if we aren't comfortable.

    • @animestarz1768
      @animestarz1768 2 года назад +2

      as someone on the moderate/severe side, but has incredibly mild coprolalia, and a lot of my tics aren't super noticeable to the naked eye, I want more representation for TS. I want different types of representation. I wish there was a TS influencer that I could actually relate to.

    • @TiccingTogether
      @TiccingTogether  2 года назад +2

      I just uploaded two new videos with my cousin!! 💕

  • @oliviapenelopehope4497
    @oliviapenelopehope4497 2 года назад +1

    I used to think I had tics, but it was simply me copying people who actually had Tourettes. I used to watch a lot of content by those with Tourettes, so it made sense that I thought I had it. The more I’d watch that kind of content, the more I’d tic, creating a situation where I thought it had to be real because it was happening so much. I haven’t recently seen much Tourettes content, and my tics magically disappeared.
    Of course, I do have weird motions that I do from time to time, but that’s probably completely unrelated. I don’t get this burning feeling that several people describe about their tics.
    People tend to copy those they see a lot. We start acting like those we hang out with. We become those we admire or spend the most time with. That’s why you should surround yourself with people you want to be.
    Thank you for the very informative video! I’ll watch your content in moderation to avoid mimicking too much.

  • @jennifercload9390
    @jennifercload9390 2 года назад +1

    I literally just found your channel. I appreciate you bringing light to this debilitating illness. I do not suffer from it nor do I know anyone who does. But watching your videos has been very educational so I know, should I ever meet someone with Tourette’s. Thank you for these videos

  • @agross30
    @agross30 2 года назад +7

    Thank you for sharing. I have Tourettes, and had a former MIL would think that I was faking. They started as vocal tics, then eventually a motor tics (now many motor, facial and vocal that have spanned over 20 years). Even with seeing a Neurologist, and getting the official diagnosis, the MIL just did not believe me. Now a days, I don't encounter that. Though I can go days without ticing, to having days and days where they are very frequent. There really isn't any set pattern, if I start to think about them and worry about having them, they are more likely to occur. Once they start, they can take awhile to settle.

    • @Dutch3DMaster
      @Dutch3DMaster 2 года назад +1

      When I was younger I noticed they increased in frequency when I was stressed. Like when I had my finals in high school, even though I felt reasonably relaxed about getting through them my tics were pretty severe.
      The most annoying thing for me was the situation in which I supressed them as best as I possibly could and having my body afterwards basically going like "You spent a certain amount of time "without" tics, so let's get even on that" and I'd have like a train of tics...up to the point it was suuuuperpainful.
      I only had tics and no Tourettes, but ugh...

  • @Hezerise
    @Hezerise 2 года назад +4

    Thank you for raising awareness!
    I would like to clarify something about mental illness. You said that Tourette's is not a mental disorder, but a neurological one, because it actually affects the neurons in the brain. Most of the mental disorders are neuropsychiatric, so there are a lot of psycho-neurological centers that deal with both neurological and neuropsychiatric disorders, and instead of a psychiatrist, sometimes a neurologist can treat mental diseases. The cause, for example, of depression is inherited biochemical defection at the level of the central nervous system. For this reason, people with schizophrenia, Tourette syndrome, and depression can take the same drugs, the same antipsychotics

  • @izznt
    @izznt 2 года назад +1

    I have fibromyalgia and fnd and it's so hard to feel good during a low pain or good day and feeling guilty and paranoid that I'm invalidating myself to people that I (have learned to not) hope for empathy from. Thank you so much for doing such incredible work to educate in loving ways.

  • @breezeh1127
    @breezeh1127 2 года назад +37

    When you hold in your tics do you end up having tic attacks? My daughter does. It's terrible. Your video is one of the most "normal" tourettes videos and I respect you for it. Even those claiming to inform put on dog and pony shows to get clicks and likes and it offends me. Also, you named your meds, but have you changed your diet at all to help? We changed our dangers diet and it literally helped her tics by 80 percent. She could barely function before.

  • @octogonSmuggler
    @octogonSmuggler 2 года назад

    Your makeup is *ALWAYS* on point!

  • @auriauri1722
    @auriauri1722 2 года назад

    I’m new here this popped up on my feed I was watching the tik tok of the lady faking ! Thank you for this video I love learning more & supporting ❤️

  • @FrancisFabricates
    @FrancisFabricates 2 года назад

    Well said. It’s super unfortunate how bad it’s gotten. As someone with autism and a dissociative disorder I don’t go near TikTok in general because of how fetishised all of this has become. But also because like you explained it can be super triggering. I work hard to try to have as ‘normal’ a life as my multitude of mental and physical disabilities allow, so it makes me tired when people are out here claiming to be a thing without knowing about it and making the work we do to spread awareness even harder. Thank you for adding to the conversation with positivity. I do understand why people call out people who are harmful in the community (a lot of DID people have been shown to be predators) but I do agree people could be a hell of a lot kinder to one another. I think at the end of the day people need to stop fetishising and hero worshiping a select few with any mental or physical illness/disability and spread the love out in a wider net so if anyone ends up as a faker they aren’t the one giving out the most information.

  • @constantchaosproductions
    @constantchaosproductions 2 года назад

    i don’t have tourette’s, but i have tics related to my sensory issues and other mental disorders such as my adhd. i also experience echolalia and it’s been confused for tourette’s in the past. intense stimulus makes me tic, but never anything too extreme. these tik toks are so upsetting because they are taking away from the education and ability to spread genuine community and support to people who actually have tourette’s or other tic disorders. i’m glad to see that there are people who have these disorders talking about it. thank you

  • @go-go3319
    @go-go3319 2 года назад

    I love you and your tics. The looking up one and ugh is my favorite. You're awesome

  • @cijmo
    @cijmo 2 года назад

    Thank you for helping us understand everything. I don't know anyone with Tourette's personally, one of our regular shoppers mimics people...which is hard for him because of course there are other shoppers. He also barks so if they're paired together, people will realise that he wasn't being mean. The most alarming is if there is a child crying - he mimics it perfectly. I keep looking for lost kids then it's like "Oh (name), you fooled me again!" he's a lovely guy, has been shopping in our store since he was about 11 and says he likes our store because he feels comfortable.

  • @Tabth3778
    @Tabth3778 2 года назад +1

    I'm sorry you guys have to deal with this, it's disgusting faking disorders for clout, and extremely disrespectful to people who actually have the disorders. Lots of love

  • @Newbzor
    @Newbzor 2 года назад +1

    Great video! I have had subtle tics since I was about 9-10... The first ever was having to look as far upwards as my eyes can go! I remember my mum noticed and at one point told me I shouldn't do that cause people at school will make fun of me! I don't think anyone at school ever realized though. So too true that a lot of people won't even notice some subtle tics that people do.
    I have accumulated more as the years go by but they are all pretty subtle, so I do not know if I have Tourette's or just some other tic-causing disorder, but they luckily haven't impacted my life enough for me to seek a diagnosis for a cause.
    This absolutely re-activated my eyeball tic though as it tends to come and go, haha. Now I may have a hard time falling asleep, but still well worth the watch!

  • @aquabluerose7734
    @aquabluerose7734 2 года назад

    I find it weird that people think it's funny or want to fake it, or go wild accusing people of faking, these people need to get a life and do something else if they want clout. Loved the vid!

  • @slytherin_shadow6940
    @slytherin_shadow6940 2 года назад +3

    I don't have Tourette Syndrome but a couple of my cousins do. I do have anxiety tics that cause me to randomly jerk my legs, shiver, repetitively push up my glasses and do this weird dance like thing with my hands. I have been asked multiple times if I have Tourettes and when I explain that I don't I get told I'm doing it for attention. I may not have tourettes but I'm really happy you're spreading awareness about it.

    • @finsterbaby1996
      @finsterbaby1996 2 года назад

      @Slytherin_Shadow Have you gotten medical confirmation that you don't have Tourette Syndrome? If so, did you get any kind of proper diagnosis? Sounds like more than anxiety tics to me. Don't know what it could be, but I don't think it's merely a reaction to anxiety.

    • @slytherin_shadow6940
      @slytherin_shadow6940 2 года назад

      @@finsterbaby1996 I haven't gotten medical confirmation but they usually only happen when I'm nervous. I will look into getting tested though.☺

  • @mirkalaine1231
    @mirkalaine1231 Год назад

    i want to thank you for these videos. I'm an adult, but within a year I've had severe tic symptoms. as a child I had compulsive movements in my arms and legs, but it was thought that they were related to epilepsy. now I'm living a really stressful phase of my life and I started to suffer from tic symptoms. I get triggered by other people's tics really badly and that's why I've blamed myself a lot. it took a long time before I had the courage to talk to my parents about my symptoms. I thought I was faking it and I was really angry with myself because tics broke out every time I talked about them or when I saw tic symptoms in someone else. I didn't believe myself even though the tic symptoms came even when I was alone at home. when I started suffering from vocal tics I couldn't hide with them anymore. your videos have helped me understand that it is normal to feel pressure or the need to tic. thank you very much. I am currently undergoing tests and now I know that my symptoms are real and my family supports me.

    • @TiccingTogether
      @TiccingTogether  Год назад +1

      I’m so glad my videos can offer you some help!! I hope you get all the answers you’re looking for ❤️ Sending you love & good vibes

  • @livlovesrobloxtoomuch
    @livlovesrobloxtoomuch 2 года назад

    Your hair is so PRETTYYY!!!

  • @Emily.d.v.
    @Emily.d.v. 2 года назад

    You expressed it so well ♡ thanks for shearing

  • @C-SD
    @C-SD 2 года назад +2

    I'm glad you mentioned difficult to see tics. Blinking and toe scrunching in particular. We wear shoes all the time, how do you know what people's feet are doing?

  • @rune_rosen
    @rune_rosen 10 месяцев назад +2

    Holy crap. When I went to a psychologist for a screening for autism, she told me that I made up my symptoms upon mentioning them (I forced myself to keep eye contact, but when I told her I have an issue keeping eye contact, I finally felt like I couldn’t keep staring at her). This was the same for my stutter issue.

  • @roisinmarie9368
    @roisinmarie9368 2 года назад

    Just subbed today after your ticsnroses video and now I'm hooked. You're amazing 👏 💖

  • @letsss.trip03
    @letsss.trip03 Год назад +3

    bro can we talk about how FREAKIN BEAUTIFUL SHE IS?!
    like....
    she's a goddess

  • @AsterInDis
    @AsterInDis 2 года назад

    I have functional neurological disorder and mentioning it is definitely a trigger for my movements. Kinda sucks tbh.
    Also. Your makeup looks really nice!

  • @Dill_pickle707
    @Dill_pickle707 2 года назад +11

    I'm scared to tell people I have tics. I started ticing around the time were theres a lot of fakers. I've told myself I'm faking and I'm scared I am because my experience with tics is different then some other people.

    • @lunar8712
      @lunar8712 2 года назад +1

      This that it happened when these people started making videos about it doesn't mean you're faking it
      Idk what yours are, my are only hand, feet and sometimes face ones
      But in any case, I recommend not stressing yourself and start a hobby, it helped me a lot

    • @Dutch3DMaster
      @Dutch3DMaster 2 года назад +1

      When it was noticed in me video's were not around, my mom noticed it because she was sitting behind me and suddenly blurted out "to stop moving those muscles in your neck!" and I was like "What muscles am I moving then?"
      I was 10 or 11 at the time, I can't imagine how it might have felt to know people are faking it...
      What Lunar Bon Bun BG says about hobbies is indeed true.

    • @Dill_pickle707
      @Dill_pickle707 2 года назад

      @@lunar8712 thank you :)

    • @C-SD
      @C-SD 2 года назад +1

      A random thought. Sometimes its something called frequency illusion ("It occurs when something you've just noticed, like a new car, suddenly crops up everywhere. You really are seeing more blue cars, but not because there are more blue cars, but because you are now noticing them more"). Meaning you may have always had the tics, but until you saw awareness videos may not have recognized them for what they were or realized how often you had them. Idk if I'm making sense, but realizing something that's always been in existence and making it up are 2 different things. From the outside it does often look the same.
      I am not trying to say that's what's happening for you, but wanted to throw it out there in case it could be helpful. ❤

  • @Tinkerbelle26
    @Tinkerbelle26 2 года назад +1

    I have watched a couple of your videos and feel for you! I was born with a mild case of Cerebral Palsy, but at the age of 11, got a condition called Guillain Barre Syndrome that affects my muscular and Skeletal systems. I am 44 years old and have been walking with some kind of aid for 33 years, but use a wheelchair for long distances. I wonder the same thing. Why would someone want to fake an illness? It is not great. It’s hard living with an illness. To look at me and my husband (who also has Cerebral Palsy), we look like any other person. We get death stares in the parking lots of businesses when we park in handicapped packing because we are assumed to be to young to have to park there. People are cruel and I admire you for telling your story.

  • @averyfarthing4968
    @averyfarthing4968 2 года назад

    I don't have Tourette's but I have developed motor tics in the past 2 years. They started whenever I was cold, but now they happen whenever. I don't have a tingling feeling on the back of my neck that signals a tic. I have a feeling that is harder to describe that is at my upper back and lower back of my neck. The neurologist I go to says they're part voluntary, and it all made sense when you talked about how you get the tingling feeling. Thank you so much for the information!

  • @dallasmobley9359
    @dallasmobley9359 2 года назад

    I have to imagine it's frustrating to you when people fake it or accuse you of faking. But you cannot let people online negativity get to you. People will always be this way. You'll never please everyone. Your an intelligent, beautiful person so use that and try not to let sh** people affect you although I know it's hard and it's very personal to you. No need to be so serious about people that don't deserve your energy. 🙂I know of several RUclipsrs with tourettes that make the best of it and laugh about it all the time despite what ppl think. Your super cute and your doing great so keep it up ok?? 🙂❤❤❤

  • @serendipitylove3930
    @serendipitylove3930 2 года назад

    You are really a nice person, i hate that people judge you

  • @sionandjess
    @sionandjess 2 года назад

    Extremely interesting video thank you so much for sharing. Also your eye makeup is lovely xx

  • @Whywasthisadded
    @Whywasthisadded 2 года назад +2

    idk if you make this type of content but i would love a makeup tutorial, your makeup looks so nice

  • @Valosia
    @Valosia 2 года назад +5

    I was going to watch this but I decided against it because I can't watch others ticcing or it reactivates my tics and I usually have it under control. I have to avoid people and any triggers, I have a nephew who has an eye tic that I can not even look at, can't make eye contact at all because he has an eye tic and noticed two others over the years that also reminds me of when I was younger.. but, I 99% of the time avoid all people except for my daughter. I have some quite complex tics that litterally makes me not want to live when they are triggered. When I was a child, my parents took me to a huge gathering of people with TS, I hated it and didn't want to be there because it made my tics so much worse. They were talking about going back the following year and I refused. I didn't know it was for people with TS when we drove all the way to Tennessee and got there. I had no idea why we were there in the first place. My parents, I guess thought it was a good idea for me to be around people with TS, hardly anyone knew about it back then. I was bullied and made fun of and even tortued by not just children but adults because of my tics. This place I went too was pure torture and I shouldn't have even been there my Mama said. I really hate that I can not watch videos of others without it causing myself problems. I should just listen without looking at my phone but talking about tics also causes my tics to be worse too. And certain sounds also makes my tics worse too, I hate it! I want to watch and support others who have TS.
    I do know I met through my Ex, one guy who was a teen at the time.. one person who had TS. He made realistic bird noises. It was interesting, my Ex was talking to him on the phone and he thought he had a bird and foundout he had TS and my ex told him a out me.
    Other than him and the people I met that one time when I was young at the TS Siminar? Camp? I think it was a camp, I think. Mama passed bug Dad might remember.. anyways, I remember wheb I was in like 5th grage, I met in the town over at a church my parents used to go to they had a Christian Singer (Lisa Ann Hammond), she only quits ticing when she is singing and she has a pretty voice), but in this small town a different church my parents used to go too---my mom asked me if a lady could borrow my Signed, Co-set-tape.. because her son had TS too. I said "Yeah..."(granted, I never got it back.. ;.; my Mama wanted it as well as my sister). I only wanted it because she too had TS and she was very inspiring.. gave me hope.)
    But, I am grateful, very grateful when my tics are undercontrol and I can live more normally. It is when they start acting up and I can't control them I get a sense of dread and don't want to live. My tics was the main reason, I didn't originally want kids. I was afraid of passing it on to my kids. I know how hard, stressful and debilitating Tourettes can be and I can not deal with it at all. I just want to let you know that I am sorry if I am unable to watch the videos. I just know that I started to and felt my tics triggering and I already have whiplash it looks like so I do not need my tics acting up right now at all. I can do well as long as I avoid the whole TS subject and all my triggers (the ones that I know). I am again, truly sorry if I am unable to watch your videos. I wanted too because I have TS and love to do research on anything and everything but I litterally can not do it when it comes to TS and it makes me feel like a bad person. I love to learn a d learning about what others are going through and having a sense of community is something I want but I just can't. It makes me feel horrible and like a bad person but I need to protect myself and live life the best of my ability and anytime they are acting up I am useless to my daughter and being a single parent I need to be there for my child but I hare myself for not being able to be apart of the TS community.. which I so want too but I just feel psychically unable too. Which, saddens me deeply.
    I wish you all the best.
    I wish you Good Luck with all your Current and future endeavors..
    And, I wish you and yours Good Health!
    I hate that I can't be apart of the TS community, though I am in spirit. 😀
    -Valosia

  • @unqueso6652
    @unqueso6652 2 года назад

    your makeup is gorgeous!!!

  • @dorothyofDA
    @dorothyofDA 2 года назад +2

    With my husband having Tourette’s and my father being epileptic, this sort of thing makes me extremely angry, that neurological issues are something people think they can just play at and cause issues for people actually with them. All this gatekeeping of what these conditions actually look like may come back on everyone, but it effects people actually with them more than the people who don’t have to go through the doctors visits, the medication, the muscle tenseness, hell, my husband can’t even sleep without medical assistance, he was up for I believe 3 days when his Tourette’s suddenly doubled down after a prolonged anxiety attack. None of the fakers that open people up to ridicule and quizzing have to actually deal with all of it behind the scenes. It’s just… it’s so horribly unfair.

  • @MsRadred6116
    @MsRadred6116 10 месяцев назад +2

    Right, okay then… As someone who works in Neurosurgery with a background in Psychology, I would like to say: thank you. Thank you for calling out this ridiculous behavior. Choosing your tics, or what they will entail subject wise, is like saying that someone who is suffering from a stroke can choose which side of their body is affected. It does NOT happen. There is a major difference between a neurological or physiological condition of the brain, and pretending to have such a debilitating condition simply for attention and or money. To try and profit from any type of debilitating condition that one does NOT HAVE, should actually be an imprisonable offense. It is fraud, period. 😳

  • @s.k.silvestri1415
    @s.k.silvestri1415 2 года назад +1

    Hi! I totally relate! Thank you for this video :)

  • @Castkett4ever
    @Castkett4ever 2 года назад +7

    Prefacing: I do NOT know "tics and roses". I am just reporting what I saw in videos and/or posts:
    I totally agree with you for the short videos; masking is a possibility. The only thing that bothers me is that there is a 60-minute-long video of them and there are no tics; or none that they show in their tiktok videos, at least. The video is not 10 years old so I think it's unlikely that all their tics would have developed in the mean time. AGAIN, I'm not saying that it's the proof they are faking, just that it's something that cannot be pushed aside and ignored.
    On another topic, I've really enjoyed how educational and accessible your videos are, as well as their quality!

    • @skrittle555
      @skrittle555 2 года назад

      they were exposed for faking ages ago. and not to be "that guy," but it was very obvious that they were lying. they had what they call "duping delight." always a smile in their voice as they were pretending to tic. it can be more subtle if you're a better manipulator, but it's always there, at least to those of us who know it (sadly from personal experience usually)

    • @Castkett4ever
      @Castkett4ever 2 года назад

      @@skrittle555 Thanks for confirming they were exposed. I personally believed they were faking, because their "tics" were nothing like what I've seen from people who actually have tics. I was trying not to be a butthole and affirm they didn't have Tourette’s, because despite knowing some people who genuinely have tics, I do not have them; therefore I would have found it very rich of me, someone with not tics, to say they were definitely faking. The smile while ticking was weird to me because I've never heard someone who has Tourette's say that tics are fun and not painful/annoying.
      Knowing from personal experience is reliable but it's never pleasant. I'd say feel free to be "that guy" because you know what you're talking about, whether it's as obvious as "ticsandroses" or the person is a much better manipulator. If you have the knowledge and are not being an awful person while saying something, be "that guy" nothing wrong with giving an opinion and informing people :)

  • @chimmu.
    @chimmu. 2 года назад +1

    I had no idea about the smaller, less noticeable tics! Media has definitely latched onto a specific 'look' for Tourette syndrome... Tics sound a bit similar to stimming. Is the main difference whether it's voluntary or not? Also, your dog is so cute!!!

  • @kyxnmaa1205
    @kyxnmaa1205 2 года назад +1

    Totally true because I feel like an itchy,tingly,hurting (like someone’s lightly stabbing me) kinda sensation most the time (mainly in my legs) before I tic

  • @Rabidpenguinn
    @Rabidpenguinn 2 года назад

    When you were saying about repressing your tics I found that very interesting.
    Myself I don’t suffer from torretts but find this fascinating, myself I suffer from mild epilepsy and I do find that although I am medicated I can to a degree suppress a seizure.

  • @Popstardiva527
    @Popstardiva527 2 года назад

    Hi. Clinical Psychology student here. Just want to whole-heartedly agree with you that it's so hard to diagnose specific mental illness or neurological disorders even as a professional. Most diagnoses will require a clinical round table of different types of professionals over a standard period of 6 months. I wouldn't dare, as even a student in the field, fake claim someone. Diagnosis is so much more complicated than people realize. You're a very brave woman and I'm so sorry you've had to deal with people calling you a liar.

  • @pixel1577
    @pixel1577 2 года назад

    I have only gasps and growls but physical tics I suppress them all the time. I notice when I do it seems a bit worse when it does come out freely. Everything you’ve been saying in this vid hits home. I went a whole year without a tic but boom it came back when I got pregnant:(

  • @niky9579
    @niky9579 2 года назад

    This video is soo great! I tic since i was 13 (i'm 17 now) but my parents dont believe me so i had never been to doctor with this.. And because of that i often feel like i'm not valid cuz i don't have a diagnose. And its often stressfull too because when i tic around my friends im afraid that they will think that im „faking it“ or „doing for attentation“

  • @kayleeredman7530
    @kayleeredman7530 2 года назад +1

    I have anxiety tics and I always feel like I need to supress them in school because the one I do most is a head jerk backward/wink and I feel like people will think I'm weird. Its very difficult to suppress for me and it's very very annoying to live with more so cause I have anger issues and get irritated easily. I hope people fix the way they see tics and Tourettes and aren't as judgmental in the future.

  • @Auburn_The_Gaymer
    @Auburn_The_Gaymer 2 года назад

    Hey. Came across your video today. Thank you for the knowledge and sharing your story. I don't know if you did a Q & A yet, but I am wondering how do you sleep at night? Do you surpress your ticc's even further or do you have a sort of routine to fall asleep? I'm sorry your going through that (I am not neurotypical either I have a learning disability where it takes me a lot longer to learn things). Humanity can sometimes suck, but it's nice to know there's genuine people out there that are willing to share there stories.

  • @Tkizuka
    @Tkizuka 2 года назад +2

    Ever since I heard about Billie Eilish I have wanted to educate myself more about Tourettes. Thank you so much for all your insight.

  • @lonesparrow
    @lonesparrow 2 года назад

    I had no idea Tourettes causes other ND issues like texture issues, so that was new for me. I don't know anyone personally who has it but I have friends with ADHD who struggle with clothing, even getting dressed in the morning when stuff they've had for years suddenly feels 'bad.' I'm also loving this eye look you've got going on. What about a morning routine or get ready with me video?

  • @matthewgoetzka8855
    @matthewgoetzka8855 2 года назад

    Subscribing because I like learning from your content, and I appreciate your message of spreading more kindness in this world ☮️

  • @stefanhoimes
    @stefanhoimes 2 года назад

    I've never been diagnosed with Tourette's, but I've started having shoulder pain from a repetitive motion I've had since probably my early teens (I'm in my mid-30s). Same with a motion I do with my fingers. I have a few others that I remember having since childhood (like shaking my head and inappropriate throat-clearing), but none of those are causing me physical harm yet.
    Every time I've ever tried to suppress the motions like when it starts to hurt, my anxiety goes haywire until I engage and I mentally beat myself up over not being able to control it.. It turns into one of my OCD counting rituals most of the time, and I don't have "relief" until I engage in the hurtful behavior and that sense of relief is truly minimal most days. I'm sick AF with Covid right now and everything feels magnified, including my uncomfortable urges for these motions.
    I see a neurologist for a head injury... Maybe I should tell her about my shoulder and finger motions and the other uncomfortable repetitive motions. My behaviors sound exactly like the motor tics you're describing, especially when it comes to the suppression part. This is the first time I've ever mentioned this anywhere and it feels uncomfortable.. but I'm kinda glad that there's potentially an underlying cause to my experience the past 20-something years.

  • @155chipmunkz
    @155chipmunkz Год назад

    I have a similar problem. I am diagnosed with an autism spectrum disorder but most strangers can’t tell I have it even though I have a medical bracelet, so sometimes when I explain to people that I am autistic, they’ll assume I’m faking or that I just want attention. It really sucks when people are rude about things we can’t control.

  • @nathanielanderson4218
    @nathanielanderson4218 2 года назад

    I don't have tourette's but my sister does and your doing lots of good stuff here thank you we love you

  • @alysemarie8313
    @alysemarie8313 Год назад

    I’m gonna comment on what stands out as fake to me before watching the video because I might be wrong and if I am, I think many may have the same idea. Whenever someone laughs at or reacts to their tics I start wondering if they’re faking. These TikTok’s keep coming across my feed and it’s SCREAMING “not like the other girls” “pick me” all over!! So I googled fake TikTok Tourette’s and found your video.
    Very curious to hear your thoughts. I had a friend in HS with Tourette’s and most of the time he didn’t know he had a tic. I’d say bless you and he’d say “what” … learned later sneezing was one of his tics.

  • @guaage
    @guaage 2 года назад +1

    I’ve been considering that I may have tourettes? i definitely do experience tics and almost every single thing she described i’ve experienced. but the thing is, im 17 and only started having tics about 2 years ago now. everything ive looked up about tourettes and tics says that it starts in kids, but mine started when i was 15ish. and it would be cool to have an actual diagnosis of whats going on, but then again like part of me even doubts if i have tics??
    some stuff that ive noticed is certain flavours and textures make me tic, when i think about my tics they happen more and if i think of specific tics those tend to happen, i picked up a whistle tic from some streamer with tourettes and ive had her tic for more than a year now, i feel like a little tingly sensation sometimes before i tic, sometimes its like a weird little urge and if its not satisfied the tic will just keep repeating. i have big arm movement tics, neck jerking, many subtle facial tics and a couple vocal tics. (whistling, mouth popping, just going AH, saying OO like im excited, and a weird little hum as if im disagreeing about something)
    anyways, everyone in my life is so sweet and they completely ignore them now. it really doesn’t bother me too much anymore, but i just wanna know if what im describing could be tourettes? if anyone has any advice or insight i’d love to hear it!!

  • @darriabentil3590
    @darriabentil3590 Год назад

    One of my best friends in elementary/high school has Tourette’s . I can confidently say he was one of the funniest, kindest and smartest people I know. It was really sad seeing how people would treat him because they thought he was weird. He didn’t even bother telling them that he had no control over what he was saying and doing because they’re ticks because they just thought that he was even weirded when he did. He was a very positive and lighthearted person and was able to make me laugh on some of my darkest days. I respect him and anyone else with Tourette’s so much because of him. ❤️

  • @hayleymorris5181
    @hayleymorris5181 2 года назад +2

    My son has very subtle ticks where he force blinks and is usually worse when he’s nervous or stressed. He also gets the tingling in his neck too. His doctors have put this down as a co occurrence tick disorder related to his ADHD.

  • @obscureinternet7506
    @obscureinternet7506 2 года назад

    Thank you for the awareness

  • @salmonstone2358
    @salmonstone2358 7 месяцев назад

    Thank you for this video, it was very educational for me coz I dont know much about this disorder.

  • @lilylegacy-zierer7397
    @lilylegacy-zierer7397 2 года назад

    Educate you brave and beautiful lady. You are a warrior for dispelling ignorance. Don’t let the ignorant comments from uneducated people get you down. 💎💕💎💕💎

  • @xjustapersonX
    @xjustapersonX 2 года назад

    Omg people do this?! Like it isn’t enough we’re getting looks from strangers like we’re insane, people are faking it so we’re not taking seriously anymore.

  • @tsunaida
    @tsunaida 2 года назад

    I don’t have Tourette’s (as far as I’m aware), but I have that blinking tick you mentioned where I blink hard and rapidly every now and then. Sometimes there’s a slight delay in one of the eyes compared to another-like they’re a little out of sync. When people point it out to me, it lasts even longer or gets more obvious. I’m not sure if it’s a different, less severe tick disorder compared to Tourette’s...

  • @evelynrozeofficial
    @evelynrozeofficial Год назад

    so sick of people faking…. & using medical terms in the wrong way. then those same people accuse people who actually have those issues of faking.

  • @CaptainDatsun
    @CaptainDatsun 2 года назад

    Growing up I always heard that "people with tourettes just swear a lot" and I accepted that, because if the adults were saying it then it had to be true, right? Plus I had never heard of or met anybody with tourettes so I didn't have any real world examples. Tik Tok actually taught me a lot about tourettes and made me aware of what it is, what tics are, and I'm really glad to know more. It's upsetting that a lot of people on Tik Tok are also claiming disabilities to be 'trendy' or 'quirky' or whatever. It can really do damage and hurt those who do have said disorders. But really the most important thing is to give everyone the benefit of the doubt.
    For instance, I'm disabled, but unless I have my cane with me, it's not visible. I use a handicapped placard for parking. So I know that if I see someone with a placard at a handicapped space, odds are that they need that space, even if they don't have any visible struggle. There will be people who will fake it, or borrow someone's placard so they can have good parking, but it does a lot more good to believe everyone rather than accuse everyone at first impressions.
    It's kinda the same with tourettes I imagine. Accusing everyone of faking only hurts the people who -aren't- faking, and probably won't have any consequence for the actual fakers. But if you treat everyone with respect off the bat and give them the benefit of the doubt, then you're going to give support to the people that really appreciate the support.
    Basically, be nice, don't assume things about people you don't know, and treat others with respect. I don't know, I'm not good with expressing my thoughts into words haha, I hope this made sense.
    Thank you for your videos! I've only seen a couple of them so far, but I really do enjoy learning about tourettes so I can be more educated about the subject and respectful to the community.

  • @Tkokat
    @Tkokat Год назад

    I find it mind blowing that someone could call you fake, even with plenty of practice you cannot imitate those ticks. I can tell that those are genuine and that you ain't having a good time. I am no expert but you can tell the difference. I hope things are getting better.