We travelled for 18-20 years with our two kids that has Larone Syndrome! Brayden, Brody & their parents are very special to us & we are thankful we can help & encourage them with this 20 years later. Brayden is growing well! We are thankful for research, doctors(Dr Louis Underwood, Dr Phillppe Backeljauw, Dr Ali Shua Calikoglu) & many special nurses & especially a very special pediatric endocrine coordinator (Vinnie G Duncan) that helped & encouraged us through it all!!!
Midgie Albury I am amazed and overwhelmed my son also named Brody has Laron syndrome and it's so rare we often feel very alone in our journey! We would love to find a way to talk with others effected by this!
We travelled for 18-20 years with our two kids that has Larone Syndrome! Brayden, Brody & their parents are very special to us & we are thankful we can help & encourage them with this 20 years later. Brayden is growing well! We are thankful for research, doctors(Dr Louis Underwood, Dr Phillppe Backeljauw, Dr Ali Shua Calikoglu) & many special nurses & especially a very special pediatric endocrine coordinator (Vinnie G Duncan) that helped & encouraged us through it all!!!
Midgie Albury I am amazed and overwhelmed my son also named Brody has Laron syndrome and it's so rare we often feel very alone in our journey! We would love to find a way to talk with others effected by this!