It's honestly something I struggle with constantly. I'm a cancer survivor who's still in undergrad at 27 and it's tough to move on knowing how short life could be for me. These people are just massive inspirations. I need to watch that new Sebastian Stan movie A Different Man. I feel like I'd probably cry so much.
فَليسقُط دونالد ترامب (Donald Trump) أشَرُّ الدَّواب بإذن اللهِ العَزيزِ الوَهَّاب؛ إنّ الله غالِبٌ على أمرِه ولَكِنَّ أكثَر النَّاس لا يَعلَمون .. اقتباس: "ونعلم أنك عَدوٌّ مُبينٌ لكافَّة المُستَنكِرين جرائم حَرْب قَتْل الأطفال والنِّساء والمُستَضعَفين في غزَّة المُكرمة مِن أصحاب الضَّمير والرَّحمة الإنسانيَّة في العالَمين؛ كونك زعيم النِّمس الشِّرير (بن غفير) مُدلَّل المُجرِم (بنيامين نتن ياهو)، ولكن بن غفير هو رأس الفِتنة المُعتَدي على مُقَدَّسات المُسلِمين، ونعلم أنَّك زعيم شياطين البشر من الذين ينهون عن المَعروف ويأمرون بالمُنكَر، ونعلم أنك عَدوٌّ مُبينٌ لكافَّة المُسالِمين مع المُسلِمين من النَّصارى واليهود وعَدوٌ للمُسالِمين مع المُسلمين في الشَّعْب الأمريكيّ، ونعلَم أنَّك عَدوٌّ لَدودٌ لكافَّة الشعوب العربيَّة والإسلاميَّة أجمَعين. ونعلَم أنَّك عَدوٌّ لَدودٌ حَقودٌ على الشَّعْب اليَمانيّ الأبيّ العَرَبيّ، ولكنّي خَليفة الله على العالَم بأسرِه أُعلِنُ مِن وَسط عاصمة الخلافة الإسلامية العالميَّة (صنعاء) عن اقتراب نهاية ترامب (Trump) بأمرٍ من عند الله بِغض النَّظر عن ما سوف يُهلِكُكَ الله به؛ إنَّ الله على كُلِّ شَيءٍ قَديرٍ، مهما حرصت على أمْن نفسك فسوف تعلمُ ويعلَمُ العالَمُ بأسرِه أنّ الله بالغُ أمرهِ وأنَّ عَدوّ الله دونالد ترامب (Donald Trump) لن يُعجِز الله في الأرض ولَن يُعجزه هَرَبًا، ولسوف يعلَمُ العالمُ بأسرِه حقيقةَ قول الله تعالى: {قُلِ ٱللَّهُمَّ مَٰلِكَ ٱلْمُلْكِ تُؤْتِى ٱلْمُلْكَ مَن تَشَآءُ وَتَنزِعُ ٱلْمُلْكَ مِمَّن تَشَآءُ وَتُعِزُّ مَن تَشَآءُ وَتُذِلُّ مَن تَشَآءُ بِيَدِكَ ٱلْخَيْرُ إِنَّكَ عَلَىٰ كُلِّ شَىْءٍ قَدِيرٌ ﴿٢٦﴾} صدق الله العظيم [سورة آل عمران]. وسلامٌ على المُرسَلين والحَمدُ لله رَبِّ العالَمين.. خليفةُ الله على العَالَمين الإمام المهديّ؛ ناصِر مُحَمَّد اليَمانيّ." 03 - رجب - 1446 هـ | 03 - 01 - 2025 مـ الموقع: البشرى الإسلامية والنبأ العظيم
Doctor Mike, I live in Argentina. And I live here because my son was diagnosed with cerebral palsy and we could not get, nor afford, quality healthcare and therapy in the US. People in this country are very, very accepting of those with a disability and will happily pull you in (even force you in) to their friendship circles and community. My sons' friends don't care he's in a wheelchair; they take him everywhere with them, from picnics in the parks to nightclubs and everything in between. If you have any condition or disability, this is the country where you want to be.
So true. The west as glamorous as it may appear is not a place for disabled people. They get treated like circus acts, get screwed around by hospitals and insurers and the population will openly mock you or try to make your life harder.
@@mariasol1545 oh yea Argentina is great if you don't count government corruption, robberies, theft, domestic violence, and more. When a country has crime stats that are higher than the US but such a small country in comparison I wouldn't go there.
I showed my doctor a spot on my shoulder that would not heal (I was trying to burn it off myself) and she immediately said it was cancer and removed it. That poor women whose Dr. Said to just clean the whole in her face is nuts!
This reminds you of how complex the human (and really all life) is, and how crazy it is how often it all comes together correctly considering how many things can go wrong.
Thank you for bringing attention to Harlequin Icthyosis! I work in a Pediatric Ear Nose and Throat clinic, and we have three kiddos who we see regularly for HI (patients with this condition often need regular ear cleaning bc it affects the skin of the ear canal as well) Happy to report they are all thriving, awesome kiddos living their best lives! 💚💚
I've heard of some people with HI using those little fish that eat dead skin as part of their treatment. Have your patients (or anyone else that you know of) ever tried that and if so, does it help them?
@@jokercardzzthose fish can actually be dangerous! They can carry harmful bacteria. Also, if you have any cuts or sores on your feet (even tiny ones you’re not aware of) they can become infected due to the fish water. It’s not always safe! And the fish you’re referring to is very commonly mistaken as a very very similar fish that has teeth and bites. So this isn’t always a good option.
Hey, Proteus Syndrome! I was a part of the research done at the NIH, and I was actually the one to help identify which part of the DNA is responsible for Proteus! Because I have such a light case, the doctors were able to extract unaffected DNA from the other side of my body and compare it to the affected side, and that's how they discovered the mutation in 2011! There's already research going on to help treat Proteus in infants and young children thanks to this discovery 🎉
@kitty79er It's not rude at all! Because I have such a light case (only the right foot is deformed and the right leg was slightly longer than the left) it wasn't very complicated, and I was pretty young (almost 12) so I had a wonderfully dedicated staff of doctors and nurses who made the process less scary.
My aunt had Netherton syndrome (a rare genetic ichthyosis) and she was the most positive, grateful and determined person I've ever known. She was so kind and funny and had an amazing enthusiasm for life. I'm lucky to have known her. RIP Aunty Margie
I suffer from pretty severe and extensive small fiber neuropathy, and seeing these cases puts a smile on my face. "You only have one life and its too short to waste it by feeling bad" is exactly how I feel, and yes I know the people featured experience their own unique forms of suffering, but pushing past it to find happiness is the best we can do!
That face cancer is no joke. I had a patient who literally lost one whole side of her face to it. Deep into the eye socket. It was both freaky and fascinating.
The 2nd story, the woman with the skin cancer, the way her husband smiled at her when she looked at him... it was like his whole world lit up the second she looked at him.
Hey, Mike! I'm a teacher who just took a course to get CPR and first aid certified and I was the star student answering (almost) every question right because of your videos! Thanks for the study guide 😉
You should talk to John Green about Tuberculosis, its neat and he's got a book coming out about it. Him and his fans even pressured the company Danaher to commit to not making profit off it's tuberculosis testing technology.
Psoriasis is horrible. I get it on the inside of my legs every now and again. Most of the time there's no problem, but then it just randomly flares up. It can make wearing trousers painful. If it happens in the summer, then I can just wear a skirt, but if it's in the winter then sometimes I just have to stay home for weeks at a time.
Same boat mate, I've got very severe eczema all over my body and it sucked for a long time (bullied in school, limits on the activities I can do and clothing I can wear, needing to spend time applying creams every day, etc etc), but seeing people with these severe conditions push through and still do something with there lives gives me a lot of motivation to do the same!
As a person with chronic DVT, degenerative spinal issues and anti phospholipid syndrome as a cherry on top of my health woes it takes a bit to pop me out of my own daily struggles but these videos always put things in a new perspective. ✌️
The more I learn about people living with such unique conditions, I feel inspired by their sense of not allowing their condition to affect their perspective and quality of life. The human body is incredible in adapting to many conditions!
There was a family in the UK who has two children with harlequin and they were warned about having more children due to the high chance that the baby would inherit the disease, but they went ahead and had another one anyway and low and behold the baby has the disease.
I just stumbled in your page this year and love your videos! I was diagnosed with SLE after 7 years of going in and out of doctor's offices and just being given multivitamins so it's great to see a doctor like you who takes patient's symptoms seriously when the cause is not as quickly diagnosable as conditions like the ones in this video. Are the younger generation if doctors getting more information and correlating training/education on autoimmune conditions to better diagnose it?
Please do a video on Inflammatory Bowel Disease!! I just got diagnosed with UC. I am a big fan of yours, I even went to your live show back in November 2023
You should check out Hank Green of vlogbrothers. He also has UC and talks about it and how it affects his life (he also had non-Hodgkins Lymphnoma so you will se his appearance change in his videos).
I thank you for your compassionate heart as you continue to educate your followers. I have often shared your videos (as well as a couple of your Check-up video)s to loved ones when I feel that what your teaching is of importance to them. I appreciate the time and energy you put in to these videos. Thank you!
I love the softer depictions of human condition abnormalities like this. So often we see people like this in real life and we cringe. We look away. We deny their humanity in the same way we deny the homeless. (Many homeless suffering from conditions like those shown here, though less extreme). The last story of the woman who is now the oldest female with ichthyosis and first woman to give birth with the condition is deeply moving. Great video, Dr. Mike.
As someone with sensory and auditory processing disorders who is highly sensitive to certain chemicals and the sun as a result of my body overreacting to them I’m always amazed at the amount of ways that the body can overreact to certain things or overproduce things like shown in this video and feel for the people who have those conditions because as annoying as mine can be they’re nothing in comparison.
I have a rare genetics disease called MCADD (medium chain acyl CoA dehydrogenase deficiency). Most kids died as infants with it before it was screened for at birth. I was in 2 hypoglycemic comas as a baby before I was diagnosed. My glucose levels were down to a 6. If my grandma hadn’t called my mom and asked her to check on me because she thought it was weird I was sleeping late, my levels would have gotten to zero and I would have died. Now it’s more diagnosed because every newborn is screened for it at birth. Now that I have two babies myself, I can’t imagine my mom having to handle finding me in a coma at a few months old. Genetic conditions are wild.
it is amazing how you teach us that no one is disabled or different and rather they are unique and special respect Dr. you always make such amazing videos. I am not even a medical student but I study biology, as you made me curious as hell love love
Thank you Dr. Mike! Thank you for using your expertise and extensive knowledge in a compassionate way to educate instead of using cases like these for a simple shock video. ❤
My nana had skin cancer in the late 60’s and it was treated and was gone. She then had a cataract removed and the cancer came back in the early to mid 70’s at the corner of her eye and ate her eyelid and back into her head to the point you could see into her head. Nana ended up on a pain medication called Brompton’s cocktail towards the end of her life. Nana died in 1978 and I wish the treatments had been available then that are now. I don’t have any memories of her without cancer.
I had a mos procedure for basal cell. It was right underneath where my glasses sit on my nose. It was a large incision, compared to the tiny tumor, but the scar is totally not noticeable at all. It runs from the bottom of the nostril, to the corner of my eye.
Dr. Mike, thank you for always pointing out how disabilities are exactly that-disabling. Disabled people have limitations that we have to respect and work around. Quality of life IS impacted; we aren't always to do everything abled people can. And we shouldnt have to. Thank you always for your compassion and understanding.
This channel is truly inspiring, not just because of the medical information we learn but some of the hardships that other people have and what their daily life is like. Truly heartbreaking that a lot of us, including me, forget to appreciate the littlest things we have.
I grew up with a friend who had some disorder where her skin had no moisture-it looked like thick dry sand with fissures. The slightest touch it would fall off. She had to have oils and moisturizers applied then be wrapped in bandages. It was from head to toe. I have never been able to remember what it was called.
I had a sore on my back that wouldn't heal. It would itch and bleed. It was small (about the size of a pencil eraser) and tan, so I didn’t think much of it. However, I started to worry because the sore just never healed, so I went to my primary care doctor. I left with five stitches in my back, as the sore was possibly a melanoma. The pathology results came back favorable for me. The mole had visual characteristics of a superficial melanoma, but it wasn't dangerous. It wasn't even black, but rather a mix of brown and tan. Once I understood the ABCDE rule, I realized why my primary care doctor was concerned. By the way, she was upset with me when I tore my stitches after running 10 km and indoor rock climbing with stitches in my back. It was located on my shoulder blade. It all healed now but the scar still itches.
I had a unusual form of perthes when i was young at 3 had servre pain and my inflammatory markers were very high think it was around 60. they sent me to a specialist where they did a lot of scans on me and eventually did a full body scan as they were at the point they thought i had cancer with my markers. they found i had perthes through the scans along with a syrinx in my spine,which caused concern but nothing became of it,with my even perthes more confusing for them i had high hip movement but that was due to my hyper mobility, i was such very unusual case that they even shown me off with some medical students none knew until one decided to look at my chart. Now 22 i was in a wheelchair till 8 and my hip damage is a 1/3 of its size it should be my syrinx never got removed in the end
@02:25. Blood banker here. The way the narrator describes it, it sounds more like a TACO(Transfusion Associated Circulatory Overload) to me. TACO usually presents with lung involvement, but it's possible that the heart might be involved due to structural abnormalities.
I am friends with a girl in Hong Kong who has Harlequin Ichtyosis and she’s pretty much a celebrity here. I bet she knows Stephanie as she connects with others who also have her condition. Thank you for these videos and making people aware of these conditions.
There were some ppl from my maternal grandfather's side that were blue. The Blue Fugates of Kentucky. Had a rare condition called methemoglobinemia. Still the wildest shyt I've ever seen 😂
As someone with neurofibromatosis(abbreviated as NF), seeing some of these conditions and your explanation of them helps give contrast to how much worse I could have it. NF is typically easily managed, however it being a chronic tumor forming condition can make it problematic and does require specialists that can take long periods of time to get appointments with. In fact, Doctor Mike, you've inspired me to put more effort into caring for this genetic condition so it doesn't become an issue like some of these.
I was just watching like 4 of your videos and then I look at my notifications and I got notified that you posed! I love what you do please keep doing it!! 💜
It's impressive how many people in the world are dealing with so many limitations but they're still fighting Honestly one of the few things that gives me hope for humanity
i think i want to be a doctor! Ever since I watched your videos I thought it would be really really fun to be a doctor! I love to help people and I think all this medical stuff I learn from your channel is really cool!!! I still have a lot of time to decide what I want to be, but it would be a really fun job for me!!!
5:30 all socialized healthcare is subpar. like yeah life saving care may be free in canada but you will NOT receive optimal care unless you are paying out of pocket the same way we do in USA. they will do what is necessary to save your life and then tell you to suck it up and live with whatever disability or deformity.
This is not to sound rude, but Ida's facial prosthetic reminds me of early prosthetics that were made for WW1 veterans with horrible facial injuries sustained during combat. Prosthetics like that were in it's infancy. It's sad to say this but unfortunately War advances medical science much quicker that we'd expect.
Happy birthday dr. Mike!, I just wanted to say i learned a lot from this channel and that changed my perspective of the human body and medical reasons. 😊
I think Christian's transfusion reaction was due to TACO (transfusion associated circulatory overload). Since his heart is under stress already, the additional blood volume would make it worse
0:38 Ectoderm also provides skin! in fact its name means "outer skin". The central nervous system (brain and spine) form when that ectoderm folds inwards to become a hollow tube! 12:45 That gives me an idea, it would be great to use stem cells to outright grow parts, using a small sample of cells in some nutritive medium within a mould.
Re: Harlequin Ichthyosis. Yes, both parents would need to carry the recessive gene for the disorder. Both of her children are automatically carriers and hopefully, if they decide to have children of their own in the future, will take advantage of genetic counseling to test their future partners for their carrier status. Her grand children will statistically have a 50% chance of being carriers themselves.
I had a friend who made it past the timer that doctors gave him as a boy with muscular dystrophy, he made it to 16 when his upper limit was 12. I hope we can someday use technology like CRISPR to irradicate diseases like that. I was only 12 when he died, but it was a pretty hard introduction to the health and disease sector.
I saw a documentary about "tree man disease" years ago where they tried to surgically remove the wart material, but the warts came back. I don't think the warts came back worse, and the patient had some amount of time to be "normal" but it didn't last long.
My dog died from DIC. She developed it after bladder surgery and passed away a few days after surgery from a likely blood clot. They only realized what she had after she died and the vet said that even if they knew she had DIC they had never been able to save an animal with it because of the high level of treatment they need to get better. I miss my girl so much, she had only just turned 8 when it happened.
And what was with the woman who commented that abhorent thing to her? how shameful and despicable, I hope whoever said that knows that they are a horrible, pathetic person, and that there is something deeply deeply wrong with them to have the gall to say that to another living human. That lady seemed really wonderful, and she never deserved to feel like she had to hide her face. Shame to that stranger who said that, their own attitude is the real thing that shouldn't be shown out in public.
No. It doesn't. Because the vomit isn't acid totally. It contains acid but also has food and water so the acid is very diluted hence oesophagus doesn't get damaged during vomiting.
It actually does!, I remember one day I was drinking on an empty stomach and the next day Hangover so I was vomiting as my body was trying to get rid of the alcohol I ingested, since I hadn't eaten the day before I was throwing up nothing just water. after 3 times vomiting the 4th time I was vomiting stomach acid and it immediately burned my esophagus and my mouth, after vomiting I drank some water to clean the pathway but it was too late the damage was already done, 5 days with a sore mouth and throat was the consequence of my fun night
not only your esophagus, but your mouth and especially teeth. Tooth decay is exacerbated by chronic vomiting. On the part of the esophagus, it leads to reflux desease, where a buildup of scar tissue hinders the regular function of the esophagus and can grow cancerous.
Hey. I think my cousin has proteus syndrome(unsure of the English name of the condition). About 20 years ago, he was one of nine people in the world that had been diagnosed with it, and he had themost severe case of them. He had to have countless surgeries in order for the 'tumors' to not suffocate him because they were pressing on his esophagus and lungs. They covered about half his body mass. He also had to have harrington rods because his hand got so heavy that it gave him scoliosis. Then he had to have them replaced because his hand literally broke the rods from the pressure his hand put on them. He's still got a lot of health issues, but I think they've mostly stopped growing.
I'm currently recovering from Mohs procedure on my left temple for squamous cell carcinoma. I am in my 60s in the past I have had 4 basal cell carcinoma removed. I have been wearing hats and using sunscreen for decades but my 4 summers of landscaping with no hat/sunscreen in my teens has caught up with me. Thank you for your videos and yes, get any changes in your skin, aka easily bleeds, feels prickly, color changes, freckle/moles growing checked out.
Dr Mike. My mom and dad always tell me that I’m a failure because I don’t wanna be a doctor and I wanna play basketball but once I started watching you’re videos you changed my mind and now I wanna be a doctor thank dr Mike.🙏
Thank you for sharing such informative videos, through your videos I connect to you thanks to this technology/ RUclips❤❤❤❤ One more thing you are such a charming man , that I can hear you all day, your expressions are just lit 😊 Lots of love from India ❤
Regarding the gentleman with the widespread HPV- would interferon be considered an immunotherapy? Perhaps that’s what he’s receiving. At least they’re saying it’s helping him!
There's couples trashing relationships and their partners over the most asinine things (like mustard, if y'know y'know) while there's also couples staying together through such intense struggles (like the couple in the second story). Relationship goals.
absolutely. in the photo were she was depressed with how her faced looked, you could see her husband proudly standing next to her. those two have an S-tier relationship
Re: Harlequin Ichthyosis. Yes, both parents would have to carry the recessive gene for the condition. Both of her children are inherently carriers, and hopefully, if they desire to have children of their own in the future, they will seek genetic counseling to determine their potential partners' carrier status. Her grandchildren will have a 50% probability of becoming carriers themselves.
"You only have one life and its too short to waste it by feeling bad" was inspiring icl
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Part of me felt like I subconsciously leaned on this after I hit my mid-20s. Honestly unsure how, but it was honestly nice
lol
It's honestly something I struggle with constantly. I'm a cancer survivor who's still in undergrad at 27 and it's tough to move on knowing how short life could be for me. These people are just massive inspirations.
I need to watch that new Sebastian Stan movie A Different Man. I feel like I'd probably cry so much.
videos like this always humble me and make me take a step back and realize the little things i take for granted
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فَليسقُط دونالد ترامب (Donald Trump) أشَرُّ الدَّواب بإذن اللهِ العَزيزِ الوَهَّاب؛ إنّ الله غالِبٌ على أمرِه ولَكِنَّ أكثَر النَّاس لا يَعلَمون ..
اقتباس: "ونعلم أنك عَدوٌّ مُبينٌ لكافَّة المُستَنكِرين جرائم حَرْب قَتْل الأطفال والنِّساء والمُستَضعَفين في غزَّة المُكرمة مِن أصحاب الضَّمير والرَّحمة الإنسانيَّة في العالَمين؛ كونك زعيم النِّمس الشِّرير (بن غفير) مُدلَّل المُجرِم (بنيامين نتن ياهو)، ولكن بن غفير هو رأس الفِتنة المُعتَدي على مُقَدَّسات المُسلِمين، ونعلم أنَّك زعيم شياطين البشر من الذين ينهون عن المَعروف ويأمرون بالمُنكَر، ونعلم أنك عَدوٌّ مُبينٌ لكافَّة المُسالِمين مع المُسلِمين من النَّصارى واليهود وعَدوٌ للمُسالِمين مع المُسلمين في الشَّعْب الأمريكيّ، ونعلَم أنَّك عَدوٌّ لَدودٌ لكافَّة الشعوب العربيَّة والإسلاميَّة أجمَعين.
ونعلَم أنَّك عَدوٌّ لَدودٌ حَقودٌ على الشَّعْب اليَمانيّ الأبيّ العَرَبيّ، ولكنّي خَليفة الله على العالَم بأسرِه أُعلِنُ مِن وَسط عاصمة الخلافة الإسلامية العالميَّة (صنعاء) عن اقتراب نهاية ترامب (Trump) بأمرٍ من عند الله بِغض النَّظر عن ما سوف يُهلِكُكَ الله به؛ إنَّ الله على كُلِّ شَيءٍ قَديرٍ، مهما حرصت على أمْن نفسك فسوف تعلمُ ويعلَمُ العالَمُ بأسرِه أنّ الله بالغُ أمرهِ وأنَّ عَدوّ الله دونالد ترامب (Donald Trump) لن يُعجِز الله في الأرض ولَن يُعجزه هَرَبًا، ولسوف يعلَمُ العالمُ بأسرِه حقيقةَ قول الله تعالى: {قُلِ ٱللَّهُمَّ مَٰلِكَ ٱلْمُلْكِ تُؤْتِى ٱلْمُلْكَ مَن تَشَآءُ وَتَنزِعُ ٱلْمُلْكَ مِمَّن تَشَآءُ وَتُعِزُّ مَن تَشَآءُ وَتُذِلُّ مَن تَشَآءُ بِيَدِكَ ٱلْخَيْرُ إِنَّكَ عَلَىٰ كُلِّ شَىْءٍ قَدِيرٌ ﴿٢٦﴾} صدق الله العظيم [سورة آل عمران].
وسلامٌ على المُرسَلين والحَمدُ لله رَبِّ العالَمين..
خليفةُ الله على العَالَمين الإمام المهديّ؛ ناصِر مُحَمَّد اليَمانيّ."
03 - رجب - 1446 هـ | 03 - 01 - 2025 مـ
الموقع: البشرى الإسلامية والنبأ العظيم
aint that the truth. even if it is at subconcious level, it's the same here.
Poor Ida. Horrible doctor made it worse by not referring her to a dermatologist.
Doctor Mike, I live in Argentina. And I live here because my son was diagnosed with cerebral palsy and we could not get, nor afford, quality healthcare and therapy in the US. People in this country are very, very accepting of those with a disability and will happily pull you in (even force you in) to their friendship circles and community. My sons' friends don't care he's in a wheelchair; they take him everywhere with them, from picnics in the parks to nightclubs and everything in between. If you have any condition or disability, this is the country where you want to be.
That's both awesome and sad you couldn't find that community back at home
People who struggle or have struggled tend to be warm and kind towards others, I know from experience that those who have little often give a lot (:
people in argentina are some of the kindest in the world, so many Americans that come never leave
So true. The west as glamorous as it may appear is not a place for disabled people. They get treated like circus acts, get screwed around by hospitals and insurers and the population will openly mock you or try to make your life harder.
@@mariasol1545 oh yea Argentina is great if you don't count government corruption, robberies, theft, domestic violence, and more. When a country has crime stats that are higher than the US but such a small country in comparison I wouldn't go there.
This man is literally 75% of my medical knowledge.
Ur a doctor
Dr sexo
@ Nah i just watch him for fun 💀
@@Randomshortso lol same
Is Dr. House the other 25%, like me?
How that little piece of plastic made such a difference to her but it didn't make any difference to her husband. He still loved her either way.
I showed my doctor a spot on my shoulder that would not heal (I was trying to burn it off myself) and she immediately said it was cancer and removed it. That poor women whose Dr. Said to just clean the whole in her face is nuts!
Did that spot scab over at all?
This reminds you of how complex the human (and really all life) is, and how crazy it is how often it all comes together correctly considering how many things can go wrong.
yup
Which also makes it more fucked up when you remember that people in this world are mistreated and killed for being born gay!
Thank you for bringing attention to Harlequin Icthyosis! I work in a Pediatric Ear Nose and Throat clinic, and we have three kiddos who we see regularly for HI (patients with this condition often need regular ear cleaning bc it affects the skin of the ear canal as well) Happy to report they are all thriving, awesome kiddos living their best lives! 💚💚
I've heard of some people with HI using those little fish that eat dead skin as part of their treatment. Have your patients (or anyone else that you know of) ever tried that and if so, does it help them?
@@jokercardzzthose fish can actually be dangerous! They can carry harmful bacteria. Also, if you have any cuts or sores on your feet (even tiny ones you’re not aware of) they can become infected due to the fish water. It’s not always safe! And the fish you’re referring to is very commonly mistaken as a very very similar fish that has teeth and bites. So this isn’t always a good option.
I think it’s very amazing how the first man is very confident in himself and I think it is very amazing he found a community.
Hey, Proteus Syndrome! I was a part of the research done at the NIH, and I was actually the one to help identify which part of the DNA is responsible for Proteus! Because I have such a light case, the doctors were able to extract unaffected DNA from the other side of my body and compare it to the affected side, and that's how they discovered the mutation in 2011! There's already research going on to help treat Proteus in infants and young children thanks to this discovery 🎉
bravo. also was the process scary in any way?
(sorry if this is rude or crossing a boundary)
@kitty79er It's not rude at all! Because I have such a light case (only the right foot is deformed and the right leg was slightly longer than the left) it wasn't very complicated, and I was pretty young (almost 12) so I had a wonderfully dedicated staff of doctors and nurses who made the process less scary.
@ that's was an awesome team then
woahh!!
I should make a video on this!
My aunt had Netherton syndrome (a rare genetic ichthyosis) and she was the most positive, grateful and determined person I've ever known. She was so kind and funny and had an amazing enthusiasm for life. I'm lucky to have known her. RIP Aunty Margie
I suffer from pretty severe and extensive small fiber neuropathy, and seeing these cases puts a smile on my face. "You only have one life and its too short to waste it by feeling bad" is exactly how I feel, and yes I know the people featured experience their own unique forms of suffering, but pushing past it to find happiness is the best we can do!
That face cancer is no joke. I had a patient who literally lost one whole side of her face to it. Deep into the eye socket. It was both freaky and fascinating.
The 2nd story, the woman with the skin cancer, the way her husband smiled at her when she looked at him... it was like his whole world lit up the second she looked at him.
5:44, you see his lips puckering up constantly as shes talking, he wants to give her a peck so bad. so cute.
Hey, Mike!
I'm a teacher who just took a course to get CPR and first aid certified and I was the star student answering (almost) every question right because of your videos! Thanks for the study guide 😉
You should talk to John Green about Tuberculosis, its neat and he's got a book coming out about it. Him and his fans even pressured the company Danaher to commit to not making profit off it's tuberculosis testing technology.
Yes! Please! That would be an amazing collab.
+
As someone that suffers from psoriasis and the negative comments I get because of it, these people's stories inspire me.
Psoriasis is horrible. I get it on the inside of my legs every now and again. Most of the time there's no problem, but then it just randomly flares up. It can make wearing trousers painful. If it happens in the summer, then I can just wear a skirt, but if it's in the winter then sometimes I just have to stay home for weeks at a time.
@CiaraNíShúilleabháin1990 Mine is all over my arms, legs and face. I wear long sleeves and pants all year around, even during the summer time.
Same boat mate, I've got very severe eczema all over my body and it sucked for a long time (bullied in school, limits on the activities I can do and clothing I can wear, needing to spend time applying creams every day, etc etc), but seeing people with these severe conditions push through and still do something with there lives gives me a lot of motivation to do the same!
All the people who jeered at Ida and said she shouldn't walk out in public should have collectively paid for her surgery.
I just love how kind and compassionate Mike’s reactions are to people’s struggles ❤️
I love it too. As someone who has had bad experiences with doctors, it's refreshing.
As a person with chronic DVT, degenerative spinal issues and anti phospholipid syndrome as a cherry on top of my health woes it takes a bit to pop me out of my own daily struggles but these videos always put things in a new perspective. ✌️
The more I learn about people living with such unique conditions, I feel inspired by their sense of not allowing their condition to affect their perspective and quality of life. The human body is incredible in adapting to many conditions!
There was a family in the UK who has two children with harlequin and they were warned about having more children due to the high chance that the baby would inherit the disease, but they went ahead and had another one anyway and low and behold the baby has the disease.
I just stumbled in your page this year and love your videos!
I was diagnosed with SLE after 7 years of going in and out of doctor's offices and just being given multivitamins so it's great to see a doctor like you who takes patient's symptoms seriously when the cause is not as quickly diagnosable as conditions like the ones in this video. Are the younger generation if doctors getting more information and correlating training/education on autoimmune conditions to better diagnose it?
Dude these diseases make me be grateful for the life I have wow
They make me want to get all my moles checked immediately
Please do a video on Inflammatory Bowel Disease!! I just got diagnosed with UC. I am a big fan of yours, I even went to your live show back in November 2023
I'd like to see an IBS video too!
You should check out Hank Green of vlogbrothers. He also has UC and talks about it and how it affects his life (he also had non-Hodgkins Lymphnoma so you will se his appearance change in his videos).
Had IBD for a long time, glad you finally care once you're affected!
@@flyingwambulance I’m sorry, I honestly didn’t even know what it was before I got diagnosed.
I’d love to see this too! Maybe I should make one too!
Interferon therapy is probably what they refer to as "Immune boost", because interferons do stimmulate certain immune cells.
I thank you for your compassionate heart as you continue to educate your followers. I have often shared your videos (as well as a couple of your Check-up video)s to loved ones when I feel that what your teaching is of importance to them. I appreciate the time and energy you put in to these videos. Thank you!
I love the softer depictions of human condition abnormalities like this. So often we see people like this in real life and we cringe. We look away. We deny their humanity in the same way we deny the homeless. (Many homeless suffering from conditions like those shown here, though less extreme). The last story of the woman who is now the oldest female with ichthyosis and first woman to give birth with the condition is deeply moving. Great video, Dr. Mike.
I gasped out loud when I saw the warts guy... That must feel awful, and just seeing those layers made me nauseous. I feel so bad for him.
Love how he reacts and explains at the same time ✨.. huge fan♥️
As someone with sensory and auditory processing disorders who is highly sensitive to certain chemicals and the sun as a result of my body overreacting to them I’m always amazed at the amount of ways that the body can overreact to certain things or overproduce things like shown in this video and feel for the people who have those conditions because as annoying as mine can be they’re nothing in comparison.
I have a rare genetics disease called MCADD (medium chain acyl CoA dehydrogenase deficiency). Most kids died as infants with it before it was screened for at birth. I was in 2 hypoglycemic comas as a baby before I was diagnosed. My glucose levels were down to a 6. If my grandma hadn’t called my mom and asked her to check on me because she thought it was weird I was sleeping late, my levels would have gotten to zero and I would have died. Now it’s more diagnosed because every newborn is screened for it at birth. Now that I have two babies myself, I can’t imagine my mom having to handle finding me in a coma at a few months old. Genetic conditions are wild.
it is amazing how you teach us that no one is disabled or different and rather they are unique and special
respect Dr.
you always make such amazing videos.
I am not even a medical student but I study biology, as you made me curious as hell
love love
Thank you Dr. Mike! Thank you for using your expertise and extensive knowledge in a compassionate way to educate instead of using cases like these for a simple shock video. ❤
My nana had skin cancer in the late 60’s and it was treated and was gone. She then had a cataract removed and the cancer came back in the early to mid 70’s at the corner of her eye and ate her eyelid and back into her head to the point you could see into her head. Nana ended up on a pain medication called Brompton’s cocktail towards the end of her life. Nana died in 1978 and I wish the treatments had been available then that are now. I don’t have any memories of her without cancer.
9:09 please don't use ai summaries lmao
Yeah I wouldn't trust that for medical advice either
I had a mos procedure for basal cell. It was right underneath where my glasses sit on my nose. It was a large incision, compared to the tiny tumor, but the scar is totally not noticeable at all. It runs from the bottom of the nostril, to the corner of my eye.
Dr. Mike, thank you for always pointing out how disabilities are exactly that-disabling. Disabled people have limitations that we have to respect and work around. Quality of life IS impacted; we aren't always to do everything abled people can. And we shouldnt have to. Thank you always for your compassion and understanding.
This channel is truly inspiring, not just because of the medical information we learn but some of the hardships that other people have and what their daily life is like. Truly heartbreaking that a lot of us, including me, forget to appreciate the littlest things we have.
I grew up with a friend who had some disorder where her skin had no moisture-it looked like thick dry sand with fissures. The slightest touch it would fall off. She had to have oils and moisturizers applied then be wrapped in bandages. It was from head to toe. I have never been able to remember what it was called.
9:15 did you use the Google AI summary? This is notoriously inaccurate and I'm suprised you used this as a source
Yeah, I hope that was just the editor...
I had a sore on my back that wouldn't heal. It would itch and bleed. It was small (about the size of a pencil eraser) and tan, so I didn’t think much of it. However, I started to worry because the sore just never healed, so I went to my primary care doctor. I left with five stitches in my back, as the sore was possibly a melanoma. The pathology results came back favorable for me. The mole had visual characteristics of a superficial melanoma, but it wasn't dangerous. It wasn't even black, but rather a mix of brown and tan. Once I understood the ABCDE rule, I realized why my primary care doctor was concerned. By the way, she was upset with me when I tore my stitches after running 10 km and indoor rock climbing with stitches in my back. It was located on my shoulder blade. It all healed now but the scar still itches.
0:10 - Proteus syndrome
3:25 - Basal cell carcinoma
6:00 - Mid roll ads
6:55 - Epidermodysplasia verruciformis
9:50 - Fibrous dysplasia
13:05 - Harlequin ichtyosis
15:35 - Conclusion
No one is better than doctor mike.
As a rare disease girlie, i feel for them too😢
How dare RUclips hide this from me for 4 minutes
Yes
RUclips can be mean sometimes 😢
😂
🤣🤣😂facts!
I had a unusual form of perthes when i was young at 3 had servre pain and my inflammatory markers were very high think it was around 60. they sent me to a specialist where they did a lot of scans on me and eventually did a full body scan as they were at the point they thought i had cancer with my markers. they found i had perthes through the scans along with a syrinx in my spine,which caused concern but nothing became of it,with my even perthes more confusing for them i had high hip movement but that was due to my hyper mobility, i was such very unusual case that they even shown me off with some medical students none knew until one decided to look at my chart. Now 22 i was in a wheelchair till 8 and my hip damage is a 1/3 of its size it should be my syrinx never got removed in the end
Trinny wanting to a doctor is so wholesome ❤ I hope she does!
@02:25. Blood banker here. The way the narrator describes it, it sounds more like a TACO(Transfusion Associated Circulatory Overload) to me. TACO usually presents with lung involvement, but it's possible that the heart might be involved due to structural abnormalities.
I am friends with a girl in Hong Kong who has Harlequin Ichtyosis and she’s pretty much a celebrity here. I bet she knows Stephanie as she connects with others who also have her condition. Thank you for these videos and making people aware of these conditions.
i wanna be as smart as this doctor. i love him and his content .
There were some ppl from my maternal grandfather's side that were blue. The Blue Fugates of Kentucky. Had a rare condition called methemoglobinemia. Still the wildest shyt I've ever seen 😂
As someone with neurofibromatosis(abbreviated as NF), seeing some of these conditions and your explanation of them helps give contrast to how much worse I could have it. NF is typically easily managed, however it being a chronic tumor forming condition can make it problematic and does require specialists that can take long periods of time to get appointments with. In fact, Doctor Mike, you've inspired me to put more effort into caring for this genetic condition so it doesn't become an issue like some of these.
I also have nf
Someone in a hospital is praying to be like you be grateful for what you have
I was just watching like 4 of your videos and then I look at my notifications and I got notified that you posed! I love what you do please keep doing it!! 💜
It's impressive how many people in the world are dealing with so many limitations but they're still fighting
Honestly one of the few things that gives me hope for humanity
need more doctors like you non judgemental and understanding of everything
I have learned so much from this guy. Thank you doctor mike for teaching us while still being humorous and interesting❤😊
You made me want to become a family medicine doctor!! I love your videos!
I love watching doctor mike because i can drop random medical facts and everyone questions where i learnt these things
i think i want to be a doctor! Ever since I watched your videos I thought it would be really really fun to be a doctor! I love to help people and I think all this medical stuff I learn from your channel is really cool!!! I still have a lot of time to decide what I want to be, but it would be a really fun job for me!!!
I love when Dr. Mike does these videos
5:30 all socialized healthcare is subpar. like yeah life saving care may be free in canada but you will NOT receive optimal care unless you are paying out of pocket the same way we do in USA. they will do what is necessary to save your life and then tell you to suck it up and live with whatever disability or deformity.
6:38 doc, are those highlights or grays? 🧐😍
HOW DARE YT HIDE THIS FROM ME IN 5 MINS
I'm 62 years old I have neurofibromatosis when I was a baby the doctors told my mom and dad that I had elephant man's disease.
This is not to sound rude, but Ida's facial prosthetic reminds me of early prosthetics that were made for WW1 veterans with horrible facial injuries sustained during combat. Prosthetics like that were in it's infancy. It's sad to say this but unfortunately War advances medical science much quicker that we'd expect.
I wish those people the very best and I am glad of people are accepting them in their Community ❤❤❤
You should also add doctor mike for not aging for 8 years
Thanks for all you do Doctor Mike!
❤❤❤❤❤
Happy birthday dr. Mike!, I just wanted to say i learned a lot from this channel and that changed my perspective of the human body and medical reasons. 😊
Thank you Dr. Mike I learn so much from you
I think Christian's transfusion reaction was due to TACO (transfusion associated circulatory overload). Since his heart is under stress already, the additional blood volume would make it worse
Ida, you beautiful soul...i hope you'll sue that horrendous doctor
0:38 Ectoderm also provides skin! in fact its name means "outer skin". The central nervous system (brain and spine) form when that ectoderm folds inwards to become a hollow tube!
12:45 That gives me an idea, it would be great to use stem cells to outright grow parts, using a small sample of cells in some nutritive medium within a mould.
Thank you Dr Mike to talk about those topic.😊
Re: Harlequin Ichthyosis. Yes, both parents would need to carry the recessive gene for the disorder. Both of her children are automatically carriers and hopefully, if they decide to have children of their own in the future, will take advantage of genetic counseling to test their future partners for their carrier status. Her grand children will statistically have a 50% chance of being carriers themselves.
7:32 Who taught this person to put a needle into a vial?!?!?!?! Good lordy, that made my whole body hurt!!!!!!!
Seeing as it's stock footage shot with actors, probably no one.
Your an inspiration ❤
I had a friend who made it past the timer that doctors gave him as a boy with muscular dystrophy, he made it to 16 when his upper limit was 12.
I hope we can someday use technology like CRISPR to irradicate diseases like that. I was only 12 when he died, but it was a pretty hard introduction to the health and disease sector.
Seeing these people reminds me I should really appreciate that I was born healthy.
I saw a documentary about "tree man disease" years ago where they tried to surgically remove the wart material, but the warts came back. I don't think the warts came back worse, and the patient had some amount of time to be "normal" but it didn't last long.
My dog died from DIC. She developed it after bladder surgery and passed away a few days after surgery from a likely blood clot. They only realized what she had after she died and the vet said that even if they knew she had DIC they had never been able to save an animal with it because of the high level of treatment they need to get better. I miss my girl so much, she had only just turned 8 when it happened.
The woman with basal cell on her face was Canadian- welcome to Canadian health care.
And what was with the woman who commented that abhorent thing to her? how shameful and despicable, I hope whoever said that knows that they are a horrible, pathetic person, and that there is something deeply deeply wrong with them to have the gall to say that to another living human.
That lady seemed really wonderful, and she never deserved to feel like she had to hide her face. Shame to that stranger who said that, their own attitude is the real thing that shouldn't be shown out in public.
I can't how brave these people are 😮 And here I'm with my silly little problems which means world to me, huh!
13:05 _"Link in the description"_
I couldn't find it.
I have a question. I know stomach acid doesn't damage its walls because of mucous membrane. But shouldn't it damage the oesophagus if a person vomits?
i’m pretty sure it does. I mean do you never feel the burning in your throat after vomiting?
It does and reflux over time becomes worse because it burns it more and more
No. It doesn't. Because the vomit isn't acid totally. It contains acid but also has food and water so the acid is very diluted hence oesophagus doesn't get damaged during vomiting.
It actually does!, I remember one day I was drinking on an empty stomach and the next day Hangover so I was vomiting as my body was trying to get rid of the alcohol I ingested, since I hadn't eaten the day before I was throwing up nothing just water. after 3 times vomiting the 4th time I was vomiting stomach acid and it immediately burned my esophagus and my mouth, after vomiting I drank some water to clean the pathway but it was too late the damage was already done, 5 days with a sore mouth and throat was the consequence of my fun night
not only your esophagus, but your mouth and especially teeth. Tooth decay is exacerbated by chronic vomiting. On the part of the esophagus, it leads to reflux desease, where a buildup of scar tissue hinders the regular function of the esophagus and can grow cancerous.
Your videos teach so much! 👍🏻
I got a question right on a quiz show thanks to Dr Mike!! Peewoop!! ❤
i no joke have remembered more information from this man than any of my classes
Hey. I think my cousin has proteus syndrome(unsure of the English name of the condition). About 20 years ago, he was one of nine people in the world that had been diagnosed with it, and he had themost severe case of them. He had to have countless surgeries in order for the 'tumors' to not suffocate him because they were pressing on his esophagus and lungs. They covered about half his body mass. He also had to have harrington rods because his hand got so heavy that it gave him scoliosis. Then he had to have them replaced because his hand literally broke the rods from the pressure his hand put on them. He's still got a lot of health issues, but I think they've mostly stopped growing.
I'm currently recovering from Mohs procedure on my left temple for squamous cell carcinoma. I am in my 60s in the past I have had 4 basal cell carcinoma removed. I have been wearing hats and using sunscreen for decades but my 4 summers of landscaping with no hat/sunscreen in my teens has caught up with me. Thank you for your videos and yes, get any changes in your skin, aka easily bleeds, feels prickly, color changes, freckle/moles growing checked out.
Dr Mike. My mom and dad always tell me that I’m a failure because I don’t wanna be a doctor and I wanna play basketball but once I started watching you’re videos you changed my mind and now I wanna be a doctor thank dr Mike.🙏
you're awesome Dr. Mike
I hope Ida never forgets that she's beautiful, with or without her prosthesis
Thank you for sharing such informative videos, through your videos I connect to you thanks to this technology/ RUclips❤❤❤❤
One more thing you are such a charming man , that I can hear you all day, your expressions are just lit 😊
Lots of love from India ❤
Regarding the gentleman with the widespread HPV- would interferon be considered an immunotherapy? Perhaps that’s what he’s receiving. At least they’re saying it’s helping him!
There's couples trashing relationships and their partners over the most asinine things (like mustard, if y'know y'know) while there's also couples staying together through such intense struggles (like the couple in the second story). Relationship goals.
absolutely. in the photo were she was depressed with how her faced looked, you could see her husband proudly standing next to her. those two have an S-tier relationship
Re: Harlequin Ichthyosis. Yes, both parents would have to carry the recessive gene for the condition. Both of her children are inherently carriers, and hopefully, if they desire to have children of their own in the future, they will seek genetic counseling to determine their potential partners' carrier status. Her grandchildren will have a 50% probability of becoming carriers themselves.