Ep. 31 - Ali

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
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Today we chatted with Ali (insta: ⁠alison.rheaume⁠) who shares her story with Concussion, Hypoglycemia, EDS, Dysautonomia, Narcolepsy, Endometriosis, Auditory Processing Disorder, Asthma, Allergies/MCAS... and living life with all of them!
Notes:
- Ali's Medical Journey and Conditions - Discussion of Ali's medical conditions including concussion, dysautonomia, endometriosis, and advocacy work.
- Daily Life with Chronic Illnesses - Discussion of Ali's daily routine, challenges, and coping strategies for managing multiple chronic conditions.
- General Information: Ali outlines a typical day including morning and evening routines and alternating cognitive and physical tasks with restorative breaks.
- Diagnosis Journey and Advocacy Work - Discussion of Ali's difficult diagnosis process and decision to advocate for the chronic illness community.
- Tips and Advice - Ali shares tips for a natural approach, support groups, and words of encouragement.
- Mindset and self-care - Discussions around embracing growth mindset, private productivity, and not needing validation from others.
- You are loved for who you are and do not need to prove yourself to others. Introduces the concept of 'private productivity' - productive tasks done daily that no one sees but benefits well-being.
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