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Diagnosed with Dementia: Ideas on what to do first
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- Опубликовано: 9 июн 2021
- When you hear the words, “a person with dementia,” what do you picture? Someone in later years (80 or 90) or something else? Is that always the case? The PAC Team discusses some of the steps to consider after a person has been diagnosed.
There is no one right answer for everyone, but at PAC we encourage trying to find your strengths and what is going well, rather than focusing on what is lost. Instead of thinking that life is over, think about what is working and how you want to live out the rest of your life.
Many of the PAC Core Team (people living with dementia) have decided to live well. Check out what some of them are doing by visiting teepasnow.com/...
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I was diagnosed with vascular dementia after a year of seeing a neurologist. MRI, CT SCANS Testing,silly clock drawing,questions about how many tables are in the room, name five words so on and so on. I knew something was wrong a year before I saw the neurologist and had talk with my GP. So that means my diagnosis was at least two years in the making.
Once I got the diagnosis I was told by the neurologist that I didn’t need her anymore and to follow up with GP. I was told nothing about vascular dementia or what to expect except that THINGS would get worse. I so feel that I am in the dark here. Anything I know is from watching RUclips and most of that is from a caregivers point of view. Just saying that we need help with this. It is scary enough just knowing there is a time limit and I’m running out of time. Thank you for letting me give my in the dark experience.
Hi, @pattismith2808, I'm sorry that you have not been getting the help you need. Please know that we are here to help support you. Please connect with our team (info@teepasnow.com) so that we can connect you with others living with dementia as well as our consultants who will provide some resources and ideas. You may also want to check out this section of our site, devoted to people living with dementia (teepasnow.com/resources/for-people-living-with-dementia/).
Great job PAC Team, as usual! There can be good quality life after diagnosis. Thanks ya'll
Thanks @Karen Creekmore! Hi Creeky, the PAC team thanks you for recognizing what needs to change, that is our goal too!! Here is Teepa's mission: teepasnow.com/about/pac-mission-and-values/
Teepa believes that when people know better, they will do better! Help us bring awareness and knowledge to everyone by sharing and subscribing!! You may also be interested in checking out sharing some resources for folks living with dementia that can be found here on our website: teepasnow.com/resources/tools-for-people-living-with-dementia/
Building a support team for care partners and the person diagnosed.
Victoria thank you for contacting PAC. My name is Paula and I work for Teepa. Building a support team is important here are a few videos that I have found of Teepa's that may be able to help you. Teepa can be found on Facebook as well as RUclips and tiktok
ruclips.net/video/r-b6nekezSY/видео.html
ruclips.net/video/nnBMjtmV-dM/видео.html
ruclips.net/video/KKejCymVS2Q/видео.html
I hope these help. You can always type in teepa snow caregiving and a lot comes up. Please feel free to reach out if you need additional help
Pac team has been the only light!
I’m so scared and troubled for my mom. She’s 94. She had a stroke in 2017. I think it caused vascular dementia. We’re trying to get her in a better situation cause we’re disgusted with the lack of effort in caring for her where she is.
@KarlalvsMissy, this is Shelly, one of Teepa's team. I'm sorry that you are feeling scared and troubled. Caring about a loved one can bring on a lot of those feelings. Thanks for being there for your mom. If you would like to talk through these feelings, please email us at consult@teepasnow.com or call 1-877-877-1671.
Is there different types of testing for different types of dementia? In my local area they only test for Alzheimer's.
@Winjulanntaf, great question. We would love to talk this through, you bring up a great concern and something we do want to talk about in a more supportive way. Please email us at info@teepasnow.com or
call 1-877-877-1671
Very informative video for the person diagnosed but question how does the potential caregiver start to cope or change behaviour to love one
@barbara wellington, thank you for contacting PAC. My name is Paula and I work for Teepa. I am going to suggest a few videos that may help answer your question. If not please feel free to check out our website teepasnow.com
ruclips.net/video/6AWoxhfvQkA/видео.html
ruclips.net/video/KKejCymVS2Q/видео.html
ruclips.net/video/nnBMjtmV-dM/видео.html
these are all free videos on youtube. Teepa shares a lot of information. I hope some of this helps.
I can now see the precursors in our family with vascular dementia starting at puberty. Insulin resistance. Sleep apneas. Etc
Now i just have to find a way to get the 20 somethings to pay attention and make changes early.
Hello again @Victoria Johnson! Shelly from PAC responding. I'm wondering if you might be interested in learning a bit more about vascular dementia or other dementias? You might want to check out a webinar series we did teepasnow.com/product/getting-connected-understanding-different-dementias-12-part-series-recorded-webinar/ or if you don't want the entire series, you can select the ones you want to watch. A final option is if you would like to talk about your concerns, consider reaching out our consulting team for a free 30 minute consult (consult@teepasnow.com)
A diagnosis doesn't mean you need to loose all independence and self sufficiency. There is still much you can still do and be. Is just a little different now.
Thanks @Victoria Johnson! Shelly from Teepa's team here, thanks for recognizing the idea of a new normal and what needs to change, that is our goal too!!
Here is Teepa's mission: teepasnow.com/about/pac-mission-and-values/
Teepa believes that when people know better, they will do better!
Help us bring awareness and knowledge to everyone by sharing and subscribing!!
Here is another free resource you may like: (teepasnow.com/online-dementia-journal/)