How To Get A Dementia Diagnosis: 4 things
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- Опубликовано: 20 авг 2022
- Hey there Careblazer! Welcome back to Careblazers TV, the place where we talk about everything dementia. If you are caring for a loved one with any type of dementia, such as Alzheimer’s disease, Lewy Body Dementia, or vascular dementia, then this is the place for you! I post a video every Sunday on the topic of dementia caregiving.
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. In my job, I help people with dementia, and their caregivers, by visiting them in their own homes and helping them cope through the many struggles of caring for someone with dementia. I have always wanted to help more people than is possible for me in a work day. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I do this in my spare time. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacaregiver
This is such valuable information. I learned a lot and think more videos like this would be so helpful. My dad had issues with all six cognitive domains long before his diagnosis at age 86. We had no idea he had dementia. We just thought the problems were due to aging, his "normal quirks" and some medications he was taking. My dad passed away in June, almost 6 years after his diagnosis, but I still follow your channel and watch your videos because I have made it my mission to try to help others, because we had no help at all when it came to his dementia. I found your channel in my desperate search for information and guidance and it was such a huge help, and a comfort to not feel quite so alone in the journey.
I've recently been diagnosed with dementia and going thru the process of trying to figure out which one, but due to hallucinations think it's lewy body.....sigh. Your videos are very helpful, I've watched several but really liked this one where you break down the different areas and how each one affects a person's behavior differently.
My father and I have ADHD (me, diagnosed; him, undiagnosed but textbook/definitely has it). We tick so many boxes for dementia through ADHD symptoms. In fact my father had a reaction to his Covid shot, affecting his mental health due to severe insomnia. I had to take him to a psychologist to help him work on anxiety and sleep hygiene/help him understand what was going on as he was freaking out. Everyone kept saying "ooh, sounds like dementia"... and i had ro point out, those symptoms were his baseline/totally normal (his whole life... including stories as far back from when he was a toddler), just exaggerated with the lack of sleep that started after his Covid shots. I now wonder if dementia is really hard to pick up in people with ADHD?? Our executive functioning is terrible, we lose things all of the time, we get lost/completely forget were we parked the car if in acrush, use "thingo" and "what's its name" all of the time, blurt out really inappropriate stuff if we're stressed or multi tasking etc.... im covered in bruises that i have no idea where i got them (constantly running into table corners and doors etc)... my Dad knocked off two car doors in two days when he was rushing to prepare for a long outback trip (reversed out of the garage with door open... yes, twice!).... we both drive off with stuff on the roof of the car etc. I was working from home to meet a deadline/really busy and stressed + couldnt find my document hole punch anywhere (absolutely needed as was doing hardcopy records for the Accountants)... i found it about a month late in my fridge 😂. How on earth with either of us ever get picked up early for dementia (touch wood we dont get!)/early intervention?? Or is there a chance we'd get misdiagnosed with dementia (when it's regular ADHD with natural cognitive decline of aging)? Are people with ADHD more prone to dementia? This is a topic that might be helpful to discuss further? Thanks!
My husband is ADHD for sure, but dementia on both sides of his family - so for me it's going to be harder. But I do see it.
He is firstly brilliant, so for him to use a word as similar in structure to the word he wants to use but completely unrelated is one, two is picking up an object that is simple and not recognizing it (a detangler comb), or hearing a word in conversation and saying I don't know what that is (mascara).
So it is a bit harder to discern.
He can't have any, and I mean ANY distractions now when doing bills, thank God he was/is a geek and it's in spreadsheets. Though the future on this is going to be a shitty battle I fear.
I have inattentive ADD, but there is no dementia in my family other than normal aging forgetfulness.
@@marywiggins7411 oh, ok. That sounds tough but very obvious signs then. That's very helpful to identify quickly and seek medical support. My friend's father got diagnosed very late - purely because he refused to go to the Dr/was in denial (and quite scared, which is understandable). Since going on medication he's improved immensely, but still very tough. It's a shame he didn't get help earlier. Thank you for the examples with your husband. Hope you're all doing ok. Glad to hear you dont have dementia in your side of the family x
Answer father and son with ADHD: My daughter and I have ADHD. You both should try medication and se if get better. Take med 4-6 weeks and evaluate. It’s not sure it does. You could probably evaluate your father also. 🌹
It’s very important you sleep well and regular. Also plan your activities and try stay focused
@@martinasikk6162 not everyone wants to go on meds, so perhaps lay off on the ‘should’? My offspring and I all have ADHD, both inattentive and hyperactive, and NONE of us have any desire to go on medication because the long term side effects can be horrendous. We’re also Autistic and have a bunch of other diagnoses and guess what? We still aren’t interested in medications. Not everyone who is neurodiverse wants to live like a neurotypical, with all the toxicity that NT culture creates.
This was the best description of diagnosis criteria I have heard. I have struggled with getting the right and accurate information regarding my wife for so long. This video helped me retract a lot of things in the years past and pug issues in. For a long time I felt there were problems but could not get her to pursue getting help and have never had any help so time and life progressed and about one and a half years ago overnight she exhibited such things that it was evident. Although it doesn’t change her condition it helps me to be able to connect the dots. I’m like that, I’m a HVAC technician so I always want to fix things. It’s killing me that I can’t fix her. Thanks for your passion and knowledge.
Thankyou glad it helped! 💖 💖 💖
That's what it is...I can't help n it's frustrating. Ty for giving me words to understand myself.
I realize this is outside the topic, What about those texting inappropriate things to your SO and you’re so livid you can’t be civil.😅 Tell me that’s not mind numbing.😂 Should I tell her to go label herself?
Wow! The timing of this particular video is UNREAL!! My husband has his brainscan tomorrow and I was asking myself what criteria would they be basing their diagnosis on. I know the technician/doctor won't see on the brainscan what you just cited but, at least I know now what to look for. Thanks be to God for your great, informative videos!! They have enabled me to learn and prepare for what is ahead. The Lord Bless you!!
The scan will be a nice addition, but it's not the only thing 💖
Great information. I would be interested in more videos like this . Thank you . You have been so helpful understanding my husband's Alzheimer's struggle .
Glad it helped!
This video is very informative. I have a relative with early dementia and I want to understand as much as I can.
Thank you for appreciated!
This is very helpful, thank you. Please share more, especially about specific types of dementia.
Will work on putting that together.
Yes, my 68 yr old brother in law has good memory for the most part, and passed the memory test quite well. (the clock test was very bad). But most others were "OK" The real problem is, he will refuse pills, can't help make a bed, stares into space, doesn't understand he needs to drink/eat what is healthy. Has no interests, just TV. A bit of wandering in the night. No changing clothes or showering unless told too. We have to do his talking for him with doctors, cannot make simple food, just get a yogurt, a simple thing. Will wander off to bed early without telling us.... Knows his 3 wives names, his kids, his jobs, us, can even at times appear almost "normal" but anyone talking to him talks like he is 6 years old, it's just what people do....like I say, that memory test, he passed, knowing the date, month, mostly remembering words, math I'd have trouble with under stress....those tests seem all wrong for his type of dementia...he did not know his town, as he lives with us on an island, but did not know to say the name of it.... The clock test kinda was the only thing that proved dementia.
Yes. Also know I had to go through 4 hours of all kinds of tests! My memory was the least of my problems.
Yes, more please! I found this to be very helpful in understanding my mom's vascular dementia. And most likely this has been going on for some time, but my dad and I didn't recognize what was going on as a part of dementia. Thank you!
You're welcome, it's normal not to recognize sometimes, especially in early symptoms.
after my mom goes into a delirium state for 24 to 48 hours she crashes real hard as if she has run a marathon.....these delirium episodes seems like they were triggered a year and a half ago after each dental visit......but now the delirium is popping up without the dental visits....is there a medicine she can take to stop this from happening?@@DementiaCareblazers
You are amazing with your illustrations. I am learning so much about dementia and am able to understand my husband so that both of us are able to interact with each other.
This is very helpful! My husband had a boating accident early Aug. followed by a broken tibia, surgery, plates pins and so much confusion. Fast forward 3 months and he is diagnosed with Cerebral Amyloid Antipathy CAA. His symptoms emulate Dementia with memory, complex tasks, talking about things that have not happened. He is only in his 60s💔 I’m learning a lot from your channel and am taking it a day at a time. Thank you!
Yes, I would like more info like this
Will work on putting together more like this.
Looking forward to it
Really great information. Although I am a retired OR RN Clinician with some 5 years of psych thrown in, much of this is new to me. My younger sister has dementia and early onset Alzheimer's. I've recommended your page to her son as well as my brother. We're all learning...
Thank you so much 💖 I hope your sister is okay.
Oh this is so very helpful! Thankyou, looking forward to more of this!,
Incredibly helpful. Your video's are helping me navigate what is going to be a very difficult conversation that needs to be held. Both my parents live with me and I am terribly worried about both of them. Thank you!
This is very helpful. It has helped me understand what is happening on so many different levels beyond memory issues.
Amazing - clear - excellent video for the layperson to best understand this vital information. THANK YOU
Thanks so much for having Careblazers! It is so supportive and helpful!
Our pleasure!
Of all the videos I have found about this issue this one is absolutely the best.
My husband diagnosed with mild dementia 85 years I’m his main support although I have poor mobility but a bright mind I feel a sad and guilty I’m fairly good with memory but I have never been good with names and numbers I have to write names down in my own hand writing because I have a photographic memory but if I had a test for dementia thought this would not be understood you have given me the information I needed because you say that is part of who i am kept a good job all my working life so I would not be in that category of dementia this is so interesting to me
Yes I want to learn everything you have to teach. My husband is having issues and I'm trying to get a handle on it. You are a God send.
You always explain dementia related things where I can actually understand. Yes I would be interested in more topics on this. I do not know (Dr never has said) what type of dementia Mom has. I am a CAREBLAZER member and working through the course.
Probably the most well explained video on this subject I have watched. I was guilty of thinking memory was the first to go, so it was nice to have you clarify that.
Great information in this video
Glad you think so!
I understood everything you said in video! When it was over , I couldn't recall anything you said !
Great video. I’m so glad I found your channel. Can you do a video on the differences between dementia and Alzheimer’s?
Good info. Thank you. Seeing this in other people-friends, distant relatives, etc is one thing…seeing this in a person you’ve been married to for nearly 50 years is a WHOLE OTHER THING -VERY difficult to deal w/. Thank you for your videos-they’re helping me a lot to deal w/ my loved one.
This is awesome! Thank you for this video! Very technical and we need more!
Will work on putting more videos like this together.
This is a short and clear explanation of dementia diagnosis.
Thank you very much. The most informative on the breakdown diagnosis that I've been looking for.
Glad you appreciate!
Thank you for all your help in explaining dementia for us. My husband has Posterior Cortical Atrophy, and i have a hard time finding information on it. He seems so different than the typical Alzheimer patients I've seen.
This is a wonderful learning too. Thank you so much and I’m very interested in more education. You and Teepa have really helped me survive this last few years. So grateful.
I'm so glad!
Good information! Thank you for sharing
Absolutely great presentation.
👏Thank you, I learned from this! More videos like these would be very helpful in my journey💪❤️
Alright, thanks for letting me know.
Great insight! This video has helped me understand that dementia is more than just memory loss. My great-grandma has shown impairment in other areas, so a lot of the information you provided is relatable. I'm so glad I watched this video!
Glad it helped! 💖
I'm grateful for your channel, thank you for this great info.
You are so welcome
Yes, more info waned! I’m subscribing!
Yes please more
Awesome and Thank you. Please do more presentations that are educational.
Love the use of the board in the background felt like I was in school again😍
Thank you! Will do!
Love this! More please!!
So informative! Thank you. Please do more videos tike this one?
Thanks for the clear explanation. More videos like this would be great!
Yes I would like more like this
Will do!
Thanks , very informative in a clear, concise style !
Glad you enjoyed it!
I would love more of this type of information! thank you
More to come!
Hindsight is 20/20 and this explains so much about my mom’s early symptoms. Wish I’d known more then but live and learn! And this is so helpful going forward. PS Mom is scheduled to have a geropsychiatric evaluation on August 30.
I hope the eval goes well and she is able to go through with the evaluation. 🤞
This was so helpful thank you ❤
Very informative! Yes, I’d love to see more videos explaining the diagnosis. Thank you!
You're welcome I'll appreciated!
Awesome. I'm 76 and have had a lot of questions on this topic
This was a very informative video. I can now see how my wife's behaviors relate to her dementia. It has been way more difficult to distract her lately and carry on a conversation. She will drift off into a completely different subject mid-sentence. Yesterday I showed her a cute video of a friend's new dog. She said, "he's cute, that's why I need more blue pens". She can't hold a subject for more than a few seconds it seems.
Glad it helped!
Somewhat like Joe Biden does during his speeches? How he just changes his topic that he was talking about? If this is similar, that's what someone i know does. Please Help. thank you.
This was very good- thank you. And yes a few more videos on the different types as well as how this is all different from Alzheimer’s would be great!
Fantastic video! I have a family member who has definitely increased their language impairment and IADLs. Good information to know
Thank you, very informative. I just found this channel a week ago, since I suspect my husband showing symptom. I want to know n learn about dementia . I learn from the basic info. Great
So helpful. Thank you!
02:23 neuro psychological tests=gold standard
Ty for details. Need to learn to help aunt n cousins. Get a diagnosis. This is good to know👍🏾
So helpful....More information on this topic would be very beneficial to helping me and I'm sure thousand of others who are Careblazers for the LOWD....Thank you
Thank-you for this video :)
Thank you. This was very informative. I would definitely like to hear more occasionally.
Thanks, Susan.
Love the video would love to see more about how dementia is diagnosed and how each type of dimensions diagnosed. Learn so much from your videos any topic is great keep them coming
HI Susie, This is Trisha. Dr. Natali's social media manager. I'm sorry to hear about your situation;. Here is a RUclips video she made that I hope can help you with your situation. 💖 ruclips.net/video/lZgmH5kuvdE/видео.html
Love your videos. My mother in law was diagnosed with vascular dementia. I would like more information on how to navigate her general care. I have learned a lot from you .thank you
watched again, took notes, learned more
Great video ! Thanks
Very informative...learned a lot!! Thank you again.
You're welcome!
Thank you for sorting out the many ways to observe and define the differences in dementias. My MIL received a vascular dementia diagnosis about three years ago after we observed behaviors that were extremely concerning and impacting her ability to safely live independently. She was a very heavy smoker most of her life and there is no family history of dementia. As in most cases, there were clues we did not pick up on until well along the progression. My husband seems to be exhibiting some of the earlier symptoms we noticed in my MIL and has an appt with a neurologist in January to discuss incidental findings on a recent MRI. I am trying to remain calm and optimistic. Are some dementias more likely to be inherited vs caused by lifestyle or head injury/stroke?
Since we are currently seeking a diagnosis, this was extremely helpful. Thank you. Yes, more like this would be great. Keep up the great work! I just told my doctor about you; his father has dementia, and his sister is really struggling.
Glad it helped!
I'm sorry to hear about your diagnosis. I hope you are surrounded with love and support.
Yes. More info like this would be appreciated. Thanks.
Glad you liked it!
Yes, more information is of interest to me, thanks for this enlightening video. 👍💕🙂
Ofcourse!
Thank you, great explanation of how a dementia diagnoses works. My husband just got diagnosed a few weeks ago and I was always wondering how the diagnoses actually was made. He was diagnosed with BvFTD.
This was very helpful. I would love for you to further break down the different types of impairment.
Glad it helped!
That doggy gets another belly rub. Thanks for the easy to understand information!!
Thank for information very important and helpful, this complex
Illness is very hard to understand, my husband is struggling
With dementia, and I am learning a lot that is very helpful.
Thank you. Olivette
Glad that my videos is helpful, I hope he's okay. 💖💖
It seems possible that my 52 year old husband has some of this. He struggles with trying to remember words, and with learning new things. He was previously very sharp with his cognitive skills. He was unable to take on a different job than what he already does because he was unable to learn the technology required for it.
My husband's dad died of Alzheimer's disease two years ago.
This is a wonderful "nutshell" video Dr. Natalie! 👍
Thank you kindly!
Great video, thank you. More information in these areas would be most interesting. Thanks. 😊
Glad you enjoyed it!
Yes. I learned much. Thank you so much for your videos. I've been researching how to get my husband help. He has deficits in every cognitive domain but his doctors are ignoring my concerns. They say his mini cogs are ok although neuro doc gave him a dx of MCI 2 years ago.
I've been seeing changes in my husband for the past 8 years so it started in his 60s. He's now 72. Just can't get anyone to listen and take my concerns seriously. They don't see what I've been seeing for years. It's getting worst quickly, this past year especially.
And it doesn't help that my husband truly believes there are no real issues since he doesn't 'see' what the problem is.
I understand your frustration. Going through the same thing. Drs. don’t want to call it anything yet. My husband thinks I am imagining it to be a problem. I have to keep looking to the Lord. Hugs.
Very clear, thank you.
Glad it was helpful!
This was great! I would like to learn more about this.
I don't think you need me to say yes please. But you are helping me so much in u.k we don't get all this information
Thank you so.much
Yes, please make more videos like this. I’m also interested in memory loss as a side effect of long-term saturated oxygen deprivation (while sleeping). The visual aid was truly helpful. I would appreciate it if you could talk more slowly. Thank you for all you do!
If you're watching her videos on your computer, you are able to slow down the speed of the video. While watching the video, on the bottom right-hand side you will see an icon that looks like a wheel. That's the settings. Click on that wheel and then select PLAYBACK SPEED. You'll see options to slow down the video or speed it up.
On your phone, tap the video one time and you'll see the same wheel on the top right-hand side of your screen. Click on that wheel and then select PLAYBACK SPEED. You'll see options to slow down the video or speed it up.
It's easier for us to slow down the video than it is for someone to speak slower than their normal speed.
Great suggestion!
Thank you. I’d like more information.
Love your hair in this video and thank you for the info 🥰
Thank you Nikki 💖
thank you, so informative!!
So glad!
Yes , please , very interested
Very informative! Thankyou!
You're welcome, glad you like it!
This was informative
Great job Dr Natali, as always, but I don't need a test to tell me what I know. All the above and more,
with mum. All I need, is to do what l need to do, and the strength to get it done! God bless you and all the carers out their!
Wonderful!
Yes I'm learning every day how to deal with my wife. It's a whole new world for me
Sending you love.
Very interesred in more on this topic.
Yes, please give mire info. Thank you
Yes more videos please
Ofcourse! 💖
Thanks...your videos help me deal with my wife
I probably could not pass a cognitive test. I have a good memory, I can learn new things and I remember important stuff like schedules and numbers, but I can't learn verses and often the need to recall is impaired, but later I remember. This has been a life-time issue. (age-68)
Definitely want more.
Ofcourse.
Very helpful!!
Very helpful indeed 👌
Glad it was helpful!
Thanks Natali, I would very much welcome more of these educational videos as it helps understanding of our loved one's condition.
My husband e.g. still has a high cognitive reserve, is well orientated in time and space. Is not a wanderer, knows everyone.
But, needs much assistance now with hygiene, continence plus his memory is badly declined.
He needs me to write out his daily activities each day; refers to it continuously and is unable to manage with the unexpected.
To me, he has become very autistic.
Thank you for educating me about the different phases of dementia. Yes I would love more videos on those phases. My mom's doctor gives almost no feedback.
Glad it helped!
Yes more please
Ofcourse!