How often should individuals diagnosed with MGUS have their myeloma markers retested?
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- Опубликовано: 7 сен 2024
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Very helpful. I've been trying to get tested once a year, but the Hematologist keeps saying it must be at least every six months. Yep, I'm an IgA lambda beta 2. I keep saying I how great I feel and the Hematologist keeps saying that's how most IgA's feel anyway until they are actually developing myeloma symptoms. You provided great information because now I'll just continue doing what that Hematologist says despite the anxiety factor of one day getting bad results. The way I figure it is it's better to know sooner than later.😀
Thank you for your kind words and for sharing your experience with us! It's great to hear that our information has been helpful to you.
I was diagnosed with MGUS 5 years ago, I have IGG Kappa there was no mention of doing a bone marrow biopsy.
Extremely helpful advice thank-you
Glad it was helpful!
I'm IgG Kappa w/minimal M protein (found on mass spec only), but have high FLC kappa & ratio. I get labs every 6 months, but I'm wondering if I should've gotten a baseline bone marrow biopsy as well? It was never mentioned by my PCP or hematologist/oncologist.
By the way, my oldest brother had MM, and a sister had biphenotypic ALL/AML. My Dad had colon cancer, and another sister had uterine cancer.
thank you a lot for this information. I have a concern, I have read that MM comes generally from MGUS IGG (60%) and she said that the lower risk for MM is MGUS IGG Kappa. how can it be ?
I’ve read tons of literature on mm progression and they all say IGG is lower risk than IGa, and IGm.