Common symptoms and presentations of Multiple Myeloma to primary care physicians
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- Опубликовано: 2 июн 2024
- Presented By:
Ola Landgren, M.D., Ph.D. - Professor of Medicine & Chief of Multiple Service at Memorial Sloan-Kettering in New York City
Speaker Biography:
Dr. Landgren is Professor of Medicine and Chief Attending Physician of the Myeloma Service at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York, NY. Dr. Landgren is one of the world leaders in the field of early treatment strategies and molecular- and cell-based monitoring of minimal residual disease (MRD) detection in multiple myeloma and its precursor states. He leads a translational research program at MSKCC designed to discover new treatment paradigms integrating modern therapy and novel MRD assays. Dr. Landgren has designed and led the definitive study showing that all multiple myeloma patients are preceded by a precursor stage. As part of his ongoing research program, he is studying molecular mechanisms underlying the trajectory from precursor to full-blown multiple myeloma with the goal to develop of treatment strategies aiming to delay, prevent, and ultimately define a cure for multiple myeloma.
Dr. Landgren has published over 250 peer-reviewed publications and he is a frequently invited speaker at national and international hematology conferences. He serves on several research committees and editorial boards for scientific journals.
Webinar:
Common symptoms and presentations of Multiple Myeloma to primary care physicians
Abstract:
Board-certified hematologist-oncologist Ola Landgren, MD, PhD, will review how vague symptoms (fatigue, bone pain, back pain) are linked to the possibility of underlying Multiple Myeloma and what guideline-recommended tests should be used for diagnosis. Primary care physicians see 50% of Myeloma patients with early symptoms, and early identification and diagnosis are key to starting earlier treatment for Multiple Myeloma patients and preventing secondary complications.
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My brother, age 72, hated to go to the doctor. His wife begged him to go to the doctor, as he had agonizing back pain. The doctor pulled blood and sent it to the lab. The doctor called my brother to come in ASAP. He gave my brother the results, and the doctor told him he was going straight to a cancer hospital. He was there 2 weeks when they confirmed the results: multiple myeloma. Please, family and general practice doctors, learn the early signs, so that patients can get early treatment. My brother now is getting a stem cell transplant. Please pray for him. His name is Jim.
I hope your brother is doing well.
Hi Monica how is your brother Jim tolerating the stem cell transplant? I am 75 and recently have MGUS with both neurological problems of my hands and feet and elevated BUN and Creatinine. No broken bones yet. More test to come in the current week. I was stationed at Camp Lejeune and intend to file suit against the Marine Corp for poisonings me there. Any chance your brother was a Marine or Navy Corpsman as well?
I am not certain I want to even accept treatment other then what I am doing for myself. Wish you well and your brother hope and recovery❤️🙏
Prayers for Family and Mr. Jim .
May Mr. Jim Receive his Blessing . Amen
@@Batman-tb6fq
Thank you.
@@thomasfraser9072
Thank you, Thomas. My brother was a chemistry professor. He was very hands-on with his students doing their labs. He's doing well since his stem cell transplant.
My Pcp was a young fresh woman. However don’t let she fool you! She saved my life by finding MM early! For years I can look back and see different issues I had and no one found it but she did! I went into her office complaining how my arse hurt. It was not going down my leg. Like a ball around my anus. Left side and it was painful between my lady parts and my left leg. The inner thigh like right where the panty line would be? Well she heard my complaints and said “ let’s see what am x ray would do.” She spotted it right away and sent me to MRI the NEXT DAY! ( thank u love her ♥️) she called my on Christmas Eve to confirm what she saw.
I am a white female, 48 years old. I am so grateful for her quick thinking and actually LISTENING to me when others did not. Xoxo 💋
Omg I've been having horrible symptoms and getting really sick. My latest is exactly what you described except its mostly numb on my inner thigh and the outside of my hip hurts. Literally yesterday I noticed a ball in the same spot as you. I can't get anyone to seriously. I don't know what's wrong with me. Im desperate and seriously feel like they are going to let me die.
I have those symptoms and so much more. Did you have pain sitting, I have for 3 years now.
My dad had Multiple Myeloma . He was a very stoic man ,never went to the doctor, until he went to the doctor for back pain. The doctor told him he was old and that it was to be expected at his age of 70. So he went home with no diagnosis. He went back a few months later complaining that the pain was getting worse, still the doctor sent him away. Finally ,his kidneys stopped working and he could no longer urinate so this time he bypassed his incompetent doctor and was taken straight to the ER . He was diagnosed with Multiple Myeloma and died 2 weeks later. I feel so awful that he had to endure all that pain for so long without getting any help. If the doctor would have just gotten some routine blood work it would have lead any competent doctor to be suspicious that there was something serious going on. He was a good man, a good father and grandfather.
1:25
Your experience is similar to mine. In my case, it was my mother. She complained of similar symptoms as your dad's but doctors kept saying it was old age. The true diagnosis came in 2021 but by that time, the multiple myeloma was at stage 3. My mum died a month ago. I feel betrayed by the health system.
my dad went into kidney failure and almost died before he was diagnosed. he was worth so much more than that. and we took him to mayo specialists and they missed it (before the kidneys failed) he was worth so much more than that.
Yes I agree. I'm finding it disgusting how many medical 'professionals' say it's not their area of expertise while at the same time saying 'it's probably nothing to be worried about' and then prescribing medications that can cause anemia and stress the kidneys. These people are WAY too casual about dismissing a life threatening disease.
@@audreystarr6166 You got better ? , please assure me about yourself ? 🙏
@@audreystarr6166q228288888q
fancy schmancy Mayo missed mine. so full of themselves. took 10 weeks to get appt, 10 weeks to get results. dr told me stress. nope! guess again
A cured patient is a lost customer. Big Pharma can't afford to cure people.
My father passed away in 2010 from this i came here to learn a little more about what he really went through.
Was he in the Marines?
My mum is 85 and was diagnosed with this a week ago. It is in her entire spine mainly at the base and into her kidneys, her kidneys are base line and her liver is slightly raised she now has a chest infection and an oral fungal infection sadly this is the side effects of the myeloma as the immune system is low due to the cancer cells overtaking the good cells and not enough anti bodies to fight it. We have, as a family decided not to do anything invasive due to her age and how frail she has become since she went into the hospital 3 weeks ago. Prior to going into hospital with back pain, mum was independent at home , mobile without any aids and we thought it was arthritic pain and she’d be home sharpish, now due to being in a hospital bed for so long and the pain in her spine and back she now bed care and we are waiting to see if we can get her into the hospice . We never saw this coming and we just want the right pain relief so she can be as comfortable as possible and have quality time with her family.
I know someone in their late 60s who has every symptom that you've mentioned your Mom has.
I’ve been on a downhill path with health issues since July 2022. What started as a roller coaster of feeling fine for a few weeks into a week of practically being crippled, it spiraled out of control in January 2023.
The whole body pain is unreal. Severe pain in my lower back, stabbing pain in my right kidney that spreads to the left. Chest pains. Shortness of breath. The fatigue and exhaustion is unlike anything I have been through.
I went to the hospital Feb 6 2023, and the shipped me out on discharge with “nothing wrong”. My concern grows stronger each passing day.
What I’ve got going on is not “nothing wrong”.
Get tested for myeloma stat
What did it turn out to be?
How I wish more physicians were as intelligent and experienced as Dr. Landgren. His talk was informative and should be required study for all medical students. Thank you Dr. Landgren!
Sone doctors are so dumb they make you even sicker.
I can see that there are too many hands in the pot sort of saying, there should be cancer centers with the appropriate, and I mean fully qualified staff that knows that lives depend on their knowledge and experience, My wife of over 50 years have had back pain and it moves around, We have been to many appointments, with primary doctor, ortho surgeon, oncologist, pain doctor, labs and more labs, it is my personal opinion based on what such great doctors such as Dr. Landgren and the likes that some patients don't loose their lives, their knowledge level should be mandatory before any doctor intent to diagnose or treat a cancer patient and should send that patient to the right doctors, and avoid wasting months and months with tests they don't fully understand. Some of these symptoms are pretty clear and require certain test(s) if the medical profession would follow certain mandatory standard(s) where everyone in the chain would understand what are the proper most accurate path for a cancer diagnosis, then I think more lives could be save and a lot of pain and suffering would be avoided, it should not take 6 months, it should not take one month, to determine what is going on. I know that we can't have the cake and eat it, I'm pretty sure, doctors like him are fewer, that knowledge demands compensation, but yeah most doctors are not qualified to deal with cancer patients yet, maybe one day they will get there. There is no clear path to take when cancer is suspected. I can tell that, and more just by watching videos on You tube! I'm no doctor, but I can see what is going on and I can understand, not to a cellular degree but I can understand the general idea and that is all I need. The system is failing a lot of people! Hopefully there will be changes and advances to get rid of cancer completely, in the near future. GOD BLESS ALL OF YOU! GOD BLESS THIS DOCTOR FOR SAVING LIVES! 👍👍👍
I watched this video some yrs ago to find out about the chemotherapy for multiple myeloma, I was diagnosed with stage 1 active multiple myeloma 2015, I decided to go natural and stayed all those years Drug free, Chemotherapy free, after more than 5 years, I still have the cancer in me, but i learned how to live a better life quality before I was diagnosed.
Pray you are healed
@@veronicachristopher-fellow5866 Thanks for your prayers, alive and kicking , no drugs, no Chemo, you can check my channel for more details.
@@MultipleMyelomaCancerDiet my sister has this I need her to hsve mircle as well
I hope you are fine, if you ever feel lonely do let me know, my dms are open for you twitter @Kusum_baheti4.
I know my father had it and he felt so lonely, if you ever wanna talk i am listening :)
@@MultipleMyelomaCancerDiet can I ask you a question regarding multiple myeloma ?
When he said that "some patients had symptoms 6 months before diagnosis and that's a long time", as for the last three years I've had bacterial pneumonia 4 times, all Pre-cursors to multiple myeloma. So six months is not very long...it was three years before I was diagnosed! Just me having the money every year that I went to my doctor and asked almost begged to get a blood test to see if there's a reason for why I keep having them. Someone should have been concerned! Five times in the hospital five days each, since 2019 and this is 2022. I'm glad I was in advocate, but I shouldn't have to have begged for treatment.
This was an excellent presentation! I have been very ill for 2 1/2 years now, with very weird symptoms. I just had an appointment today with a new neurologist (first time was last year, and they didn't diagnose me with anything). My symptoms began with numbness and tingling in my left foot, and have gradually gotten much worse to full-blown neuropathy and muscle weakness in both feet and legs, with muscle cramping. I also have extreme fatigue which is debilitating most days, and I also have weird pains in my back ribs that come and go. I feel like this neurologist is actually taking me seriously, and she has ordered the appropriate lab tests (protein in blood and urine).
I'm so tired of not feeling well, and feeling like no one cares to investigate and find out why! I just hope it's not too late, and that whatever I have hasn't gone too far to be treated. I don't want it to be myeloma, but there's definitely something terribly wrong!
I've been diagnosed with MGUS which can be a precursor for MM. Unfortunately, they say that MGUS is basically symptomless so I'm not sure why I am experiencing so much fatigue, pain and poor kidney function. I too feel like they are not taking me seriously. I eat well, stay active, manage my weight and work out regularly, but feel like an elderly man despite me being 50. Not sure how much longer I'll be able to work and without a diagnosed condition I can't qualify for disability . It is very frustrating and anxiety inducing.
i had weird symptoms with the hydrocephalus that returned after nearly 30 years. i fell down, which was a symptom but i also could not keep food down, which is not and i was always clear headed , even when i was at my sickest. i went to the er with VIOLENT dizzy spells, like nothing i have ever had and they kept saying it was anxiety. well, brain surgery sure cured my anxiety fast.
@@conservativeteacher1987I'm so sorry to hear that you're feeling so unwell! I can empathize with the horrible fatigue and pain, and it really does induce anxiety when you don't feel like anyone takes your symptoms seriously. Every appointment or lab test I have is spaced months apart, and I've been feeling sick almost 3 years now, with no answers. I also feel extremely old now, when before I was perfectly healthy and fit!
I'm going to have to go back to work again soon, and I honestly don't know how I'm going to do it. I'm barely functioning as it is! And you're right, without a diagnosed condition, we can't qualify for disability.
I will keep you in my prayers!
@@christinelamb1167 Thank you for the prayers they are much appreciated and I pray you find some answers and comfort soon as well.
Is it from covid jab?
my mil has been diagnosed with this. she is 78 yrs old and has no symptoms other than broke her wrist. she is contemplating treatment because of her age and treatment is a lot on her. kidneys and blood count are still good. any feed back is greatly appreciated
I just found out a Friend from High school passed away he lived 2 years with myeloma he died at age of 48..Rip Jon
Well damn...thanks
I’m so sorry to hear that. 2 years is really not long. What went wrong? Why did he only survive for 2 years? I hope you and his family are as well as possible 🙏🏻
I was seeing an orthopedist for my post-polio sequeli. He immediately diagnosed me from observing me in the hallway. I was experiencing some dysphoria at the time.
Thank you
I believe that they are symptomatic for many years before official diagnosis is made.
I was having symptoms for over a decade constantly misdiagnosed before ending up in hospital with life threatening Sepsis....where it was officially diagnosed.
i lost my dad to m.m. in 2008. he had symptoms for years so many docs MISSED!! docs are asking LESS and LESS questions all the time. just because its rare , does not mean you won't see it. i had a rare syndrome and the pediatrician i had never found it and i pay the price every day.
my dad lived 10 months and one week after diagnosis.
I'm sorry to hear about your dad. How old was he?
@@steven19767 he was 73
I can't get a doc to actually lay hands on me and do an exam. Idk what I have but im getting very sick and wasting away right in front of them. All I seem to get are shrugs or they think I'm crazy.
Sending condolences and pray you find peace and healing for losing your dad and at least continuing to get help from your physician needed to help you with it all too. The cancer you father had may have at that point hard to diagnose?
They seem to sometimes have problems diagnosing properly at first and partly this certainly becomes much easier with time. Very soon really!
Good question!
Took my only brother/sibling (56), 4.5 months after diagnosis, at MDA in AZ
My mother might have this. I hope that the test results comes back negative 🙏🏾❤
Yes I hope so as well. Blessings to your family
Thank you.
you won't find anything as long as you label symptoms as vague!
I hope to get credits to becoming a doctor
I have terrible back pain bone pain and recently told I have anemia I’ve been put on iron supplements and if I miss a day I can barely walk! should I worry?
My husband died , aged 34 after having had treatment for multiple myeloma. They said it was normally only found in an older person. It was dormant until they started treatment.
Sorry to hear this. Prayers for your healing.
If a GP doesn’t know….why the hell are they not referring them to a neurologist, sooner than later!
Refer to a hemotalogist
many FCP should watch this I wis mine would've..
i am diagnosed a multiple myeloma 6 months ago , i wonder how can i survived into this im only 23
Hello. I am sorry you have to go thru this I myself recently have been diagnosed with mgus but my symptoms have worsened. It's alot to deal with. How are you doing?
hey may i know how you realise you’ve got this condition??
what is your symptoms.i think i also have this😑
@@_D_E_V_ How are you doing? What kind of symptoms did you have? Is it confirmed to be MM?
@@joannaspieszna6863 i have painful lumps in hands.and the lumps are angiolipoma not myeloma.
I am 39 and think I have this. I have seen just about every specialist because my systems are so diverse. Neck pain, severe lower back/SI pain, upper thighs ache and hurt, left leg hurts entirely and stays in a deep cramp feeling, persistent of unknown origin, high creatinine, high BUN, low RBC, nausea, no appetite, weight loss, constipation, I get sick with something every 2 weeks, etc. Drs keep telling me its stress and dehydration.....
Almost exactly explains my symtoms but fatigue and neurology symptoms currently scaring me know.
Prayers 🙏🏾
@Kelly McCulley You're okay ?, your symptoms got better ?
Ask for doctor to check for positive M protein in both your blood and urine called MGUS test this will tell you if you possibly have MM and if so a bone marrow biopsy will tell the rest. Best of luck!
@@juadwhite1391 My problem wasnt MM. We dont know what is wrong. :(
I found it very sad that there are delays and diagnosing all kinds of cancers. With technology and education at hand, and the many instances insurance companies that will pay for these tests, doctors still fail to test for cancers. I right now have a sister who has fought for one year to have diagnosis of cancer everyone is ignored her, she is had colonoscopies blood work and everything run. If symptoms of sore throat sinus issues neck pain, no doctor diagnosed her squamous cell Baseline tongue cancer. I find that unbelievable! She had good insurance and everyone ignored her! She is now a stage four and we are all wondering what happened for the last year.
A dentist would have found it.
They are more afraid of causing panic than that someone may have cancer.
I'm only 40 years old, single mom. I've tested with M protein spike and am being referred to hematologist now. I'm researching what this test result could mean and I'm wondering if there could be ANY less serious cause of having high M protein in blood?
You could try research monoclonal gammopathy of undetermined significance
@@jonathan1976xxx MGUS? yes I've researched that. It's what I've got my fingers crossed that this could be. I was hoping for ANYTHING less serious than cancer.
@@audreystarr6166 i also have MGUS , discovered about 2 years ago. You can stay in this stage for decades and even die of old age without ever developing full blown myeloma. Just get checked now and then follow up on a schedule, your doctor will give you to catch the right point where treatment becomes necessary. God bless
When I think of Denver I think of Arvada Westminster Water World and Summer of camping shopping and a nice house
Deactivating is the best way you don’t need a therapist to talk you out of being stand off is or rejecting a relationship
What can you do if patients with most multiple myeloma symptoms have Lyme and can't have cortisone? Is there any other substitute?
Can lyme disease cause bone pain? Not only in joints,but bones?
Ùò
8llpplopp.
God bless the suffering
Thank you for this my wife Michelle suffers daily In pain has lumps but doctors act like they can't find a thing she truly needs prayers lots weight loss bone back belly hip groin leg pain hurts under her breast swelled under there to cam feel lumps there also her groin lymhnodes has been swelled for over a year
I know it's because we don't have good insurance no one will tell me different I see her struggle in pain daily and how she's going down
Denver is about people from smaller towns from Colorado
My ratio of kappa to lambda light chains is abnormal,but my cancer doctor said I don't have cancer cause I don't have an m spike. Do I need a second opinion
Yes definitely
Yes. It is the beginning. Make appoinment with hematologist. Must
I’ve had terrible back pain for over a year
It has actually got better as before it’s was so severe. It is at night I know that’s a red flag & it does wake me up but before it was worse so surly it’s not this right ?
I was diagnosed 5 years ago with pre myeloma i have been having a lot of bone pain lately in lower legs and a sore back should i be worried
Yes go have it checked
@@bonnierobinson8684 are you a doctor ma'am?
How are you doing now
Having more tests done thank u for asking
@@debraodonnell4253 did you get your test results?
Does anyone have any info on how cannabis affects MM?
It helps me a lot. I mostly use low dose delta 8 blended with high dose of CBC CBG and CBN and it's helped me the most for pain and mobility.
Helps with pain but doesn’t stop the cancer
@@CoDeMiTri thanks at 75 I am currently waiting for my Multiple Myeloma diagnoses if I have it I may give it a try. I think I may decide to decline treatment. I know MM is terminal; but at least I hope to go in peace and at home.
Those xrays look horrifying how sad for that person I cant imagine the pain.
Yes, it looks really bad. My Mom had it too 😢
TREATMENT: CHEMOTHERAPY AND PALLIATIVE RADIATION SURGERY.
would it help to do bone scans before age 55???
Probably.
I am praying for a mircle healing
I will agree with you in prayer.
A joyful heart is good medicine🙏
@@barbaraletterly4884 you are a patient of myeloma?? Thks
All of us are praying for such miracles
Mix Tumeric with olive oil and black pepper If you don't like the taste a oraganol salt all cure cancer you can use it on salad if they would turn your taste buds salad will work.
Is coughing out blood a possible cause please i need to know
It could also mean lung cancer. Call your doctor asap, explain your symptoms and hopefully they’ll request a CT scan.
@@catblue7065 sorry for replying so late but it was for my friend who claimed to have blood cancer and he told one of the symptoms was coughing blood
I was told i had sciatica but I actually had cutaneous multiple myeloma
Ii have mutiply myeloma. Was diagnosed 2019 .i had chemo ect an stem cell transplant that year. I pray every day to the almighty got to keep me well as be i am an please help those wth this cancer also. I have pains in driffrent parts of body but i keep moveing about doing odd jobs an drink water exercise. Im still well an happy. Positive attiide. God bless us all an thank you all health care workers
Hi
My dad is 78 years old and he’s been going through chemotherapy for about two years and his doctor says my dad must do chemotherapy for the rest of his life but the statement doesn’t make sense to me. any light on this please?
Hi. I’m sure it will be ok, my brother who is only 54 has just been diagnosed, and chemo does actually help,!
Thanks Elizabeth
Pray for heal pray my sister has this prsy
I hate to ask: but how is your father doing today? Did he pass away? I am 75 with a positive MGUS currently with neurological and kidney disease. I will be having my bone marrow biopsy soon.
Not sure what to do. Did the pain and suffering of treatment actually help your Dad?I am a realist and need to know now what to do and what my near future is. God bless.
@@thomasfraser9072 unfortunately my dad passed away about a year after I posted this here. March 13, 2022 made it a year already since he is gone. I pray that God the Lord of healings will touch you. Remember! He has plan for everyone.
Bend you over doc. Open up that balloon knot. Both thumbs in.
Terrible presentation, so impersonal, he should be SHOWN talking!!!