Lesley, you are breaking my heart. The caregiver suffers a different kind of pain than the one who is sick. A change in behavior is so difficult to deal with. Suddenly you have become the enemy. Wrapping my arms around both of you and recognizing the good people that you are for sharing your struggles. God bless you both! ♥️🌸💐😘
You two are so sweet. I am sorry that this has happened to your family. You are giving the world a real gift by sharing your experiences. So many people think dementia is simply memory loss, or that it happens only to older folks. It is so much more complicated than that.
Thanks for sharing your experience! My 57 yr old husband (had his birthday yesterday) was diagnosed with Parkinson’s 9 yrs ago and LBD 6 yrs ago. His condition has progressed to the point that he requires 24/7 care, is unable to do anything for himself, and now spends 85% of the time in a vegetative state with very little response to stimuli. Yesterday at the birthday our 3 yrs old grandson summed it up best … Grandpa is like he is sleeping with his eyes open. 😢 I have learned a lot over the past 9 years, Leslie. I have learned that everyone’s journey through this disease is different … sometimes vastly so. Be kind to yourself … try to ignore the hurtful trolls who always seem to think it appropriate to share their opinions … I found those days and time period when my husband was at the place Jason is in this video to be very, very difficult. I was and will forever be grateful for a supportive network of friends, healthcare providers and awesome family members. I have had to learn to make the conscious effort to find joy in the smallest of things. My thoughts and prayers are with you both! ❤
I am watching this in June 2023. Six months later from Nov. Jason was articulate, humorous even though the situations are getting more trying. Leslie, you are so sweet with him even though you must be stressed and exhausted. I am so glad you have a support group to vent with.
My heart breaks for you both. Having been a caregiver of Alzheimer & cancer & being a cancer patient myself....I truly believe it's harder on the caregiver. Only seeing the happy go lucky snippets I know when the camera isn't running, it's hell much of the time. God bless you both💕🙏💕
I hope clinicians watch this journey. Health professionals do an incredible job but the consultation-setting has some limitations. We can all quietly learn from this couple sharing the shifting landscape of their everyday lives.
My life with my husband who is in stage four Alzheimer’s dementia is doing all the crazy things your husband is doing. We are married 56 years this June and he is not recognizable anymore he is angry when I ask him the simplest question he treats me like I am the enemy instead of his wife/caretaker. Life is getting harder to take care of him.
You are helping normalize the conversation about something that will strike most people in some way. What you're doing is very important and will help us all learn how to better deal with this. God bless you both.❣You are both so lovely.
Jason:" I blame the microwave for that one, not my fault". Haha😂 Now I ustand how funny this man used to be. I think many with dementia and their familie can relate and be encouraged by you being willing to share your misfortunes. Your brave with all the trolls. But as we say here in Norway where trolls are usual. They are big and scare but stupid and when hit by sunlight turn to rocks. In the ages to come we will meet again a place where no sickness no pain exists. Thank you. God Bless
My dad is in the latest stages of Lewy Body Dementia. We've managed to keep him home so far. We're hoping to continue that but it's very difficult. My heart goes out to you both. ❤
I have no idea how you two do this! Yet In Christ Jesus God thru The Holy Spirit helps us to do what He needs us to do. I am sure 1,000’s and 1,000s x 100,000’s now and thru the ages will benefit from your labor to Share this time together. 🙏💞💙💝🙏
Is Sundowners Syndrome a part of Lewy Body Dementia? My Mother experienced that. What my Dad and I did to help her get through that was to take car rides starting about 3:30 each day. Mother was a pilot all her life, so a “we need to go to the airport” declaration would help get her in the car. Another wonderful thing Mother enjoyed was having me or our helper call out “N” numbers of airplanes. She would write those numbers down for hours because in her business she always had a lot of paperwork to do, so it was like she was enjoying work! She also would listen to Daddy recall a lot airplane stories from the past. Both were pilots! A faux cockpit would have been a real dream to have! Her 99’s group (women pilot’s organization) would visit and they honored her and also came to a special birthday party. Her last public appearance was at the groundbreaking ceremony of the Lone Star Flight Museum at Ellington Field in Houston where she has a spot. I was a serious wreck that day, hoping she could make it through the speeches, visiting with old friends etc. It was fine. She even held the shovels along with the dignitaries and scooped some dirt for the picture taking. Though I was not at all sure how things might go, both my parents were troopers that day. I wish you both many good days!!❤ Btw, if caregivers do not get good sleep, it is bad. Call for help and go sleep somewhere before you get too far behind!
Lesley, my heart goes out to you. I see my aunt in you. My uncle didn’t have dementia, but he had a stroke. He lived for 8 years afterwards, and my aunt was his caregiver. Prior to the stroke, he was the sweetest, kindest man you could imagine. After the stroke, for whatever reason, he became verbally abusive and mean at times, but only to my aunt. We knew, and she knew, that he couldn’t help it and didn’t mean it. She was so strong, and so are you! This is hard on you and Jason both, and I’m so sorry that things are difficult right now!
My husband had a stroke five years ago. He turned into meanest person. He even threatened to shoot me. He calls me filthy names. We have finally found out he has bleeding on the brain. He told his Aunt he doesn't like the sound of my voice. I have kept our primary care doctor informed but he wants me to record him. I'm 72 and I find this difficult to do. I will be going with him to his doctor appointment to hear the findings of his MRI
My heart aches for you. My husband has traumatic brain injury from a motorcycle accident almost 9 years ago. The frontal lobe damage completely screws with the emotions. I have cried several times in conversation with my therapist that I don't like my husband at certain times. I still love him but he makes it very difficult to like him. I completely understand the situation you find yourself in Lesley. You don't like the treatment, you don't like nor deserve the outbursts and then you beat yourself up for feeling anger toward Jason. My thoughts and prayers are for you.
Watching your videos and your shared journey has been extremely helpful to me. My husband has been gone for five years, I took care of him for ten. He was a Viet Nam vet who suffered from the effects of Agent Orange exposure. At the time I didn’t fully understand that many of the personality changes he exhibited were a normal part of the disease process. Especially towards the end when he was both verbally and physically abusive. It was hurtful. Only now, looking back, and also by hearing your perspective about care giving do I fully comprehend the situation. Thank you so much for having the courage and compassion to open up your lives.
My husband has dementia and first time in 56 years he is yelling at me and half to say I’m a mess , I’m 75 and was abused as kid and was lots yelling ... thanks for sharing
My husband is currently in the same stage as your husband. With listening to this clip I feel like you are describing my husband. Thank you for sharing your story.
God Bless you both. I went through this with my husband. It was hard for me and for him. I was his caregiver till the end. Hospice came in at the end to make him pain free and comfortable. Kids, enjoy what time you have now. Even when it's hard. I pray God gives you both lots of love and strength to go through this together. I will be praying 🙏 🤲
Way to tell the trolls off, Jason!! You are doing amazing, Leslie. Thank you for being willing to share your lives so others can understand this journey you are on.
I feel so sad about Jason’s decline/mistakes because it’s not in his control. He realizes and accepts responsibility for his actions even though it’s never intentional. Why do bad things happen to good people? Ultimately it’s in God’s hands and I pray that you both continue to be strong while on this terrible journey. Love you both ❤❤❤🙏🙏🙏
You guys are so amazing, my husband has Lewy bodies dementia. You give me so much strength to deal with the symptoms he is developing and also finding some comfort from my experiences being similar to Jason’s. You are appreciated xx
Lesley I got teary with you. It must be so hard to live with on a daily basis and try not to get hurt by it. However Jason got it so right when he said about the 10% . You are a strong couple and you will get through it together.x
My heart breaks for you both. The “out of left field” meanness hurts worse than a slap. My husband had frontal temporal dementia and I felt just the same as you mentioned, Leslie - I became afraid to say anything because anything could trigger an explosion. Please know that I will keep you both in my prayers. Leslie, when you say things are not going well, honey, I believe you 100%.
You are such a wonderful wife Leslie the care you are giving Jason is outstanding. You must be emotionally wiped out tired and exhausted trying to keep Jason and yourself safe. I send you both the lovely couple you are love and prayers. Xx❤️❤️🙏🏻🙏🏻🙏🏻🙏🏻
My husband and I seem to be going through these similar challenges, being married 40 years and only in our 60s. Thoughts and prayers! Happy Thanks giving. Florida
I just finished watching all 9 ep. and it seems the last update was last Thanksgiving? Or earlier? That worries me. Is he ok? You said he was getting worse and in a lot of pain. So, that worries me. I'm praying for you both. Leslie, you are an angel and a great wife and caregiver. Most women today are all about them and just aren't as giving to anyone else but themselves. My husband died 22 yr. ago at the young age of 57 so I will never know what you are going through cuz my husband died rather quickly. Merciful if you ask me. Hun, I wish I could do something to ease both of your pain and stress. Prayer is the best thing for that and I'm going to the throne to do that. I love you guys.
I don’t usually comment on videos..my mom is in late stages of Lewy Body Dementia and she can no longer talk, feed herself or walk..this is a devastating disease..cherish every moment together..God Bless you both.
I'm a long time sub here.I have been watching things progress through the years.This was such a special video because my brother in law is going through the same things. Stay strong, wishing you blessings.
Of course it is hard on you as a caregiver. So many folks don’t even realize what caregivers go thru. Glad you can do these videos and hope they help you as well. Health issues sure effect husband and wife. My husband and I were a lot like you all but health issues really take a toll on things.
Leslie, Please do what is best for you. never feel guilty for changes you may have to make. There will be a point when life changes will have to be made. You are wonderful.
MY HEART GOES OUT TO YOU I KNOW THIS MUST BE VERY DIFFICULT TO SEE THE PERSON YOU LOVE GO THRU THIS DECLINE AND KNOW THAT AS HE DECLINES IT WILL BE MORE DIFFICULT
You are so courageous and brave. You can laugh even though you're crying inside. I admire you both for what you're going through but still caring about the audience to get the word out about this awful disease. Thank you. Love and prayers to you and your family ❤️❤️❤️🙏 🙏🙏.
Your husband admits it, that’s rare. I walk into the livingroom the other day and my husband was angry at the site of me he wouldn’t talk to me. He is Jekyll and Mr. Hyde too due to his not fully diagnosed Dementia/Bipolar from his three TIAs to his frontal lobe. I went back into the bedroom where I pretty much live. He’s on the computer games from the time he gets up until he goes to bed. I can get him out to hike at times he’s pretty much willing to do that still. So anyway he comes in to use the restroom and he’s all happy and silly with me, totally a different person.
This goes on at my home….my husband becomes insulting and hurtful. He has had strokes and has vascular dementia. He knows he is saying hurtful things, but says them any way. I know they are frustrated, and I would not want to trade places, but this only adds to the awfulness of dementia. Why doesn’t their sweet side dominate feelings instead of this mean side? So hard to continue being with them and caring for them with nothing but bad attitudes around. I end up not being too much fun to be around, either. We are both damaging who we were….
I just don’t know what to say…Your just the cutest couple….How hard to watch your loved one go through all this…The saddest is that he doesn’t want to do the things this disease makes him do…it has to be the hardest thing to watch…Thank you so much for sharing this, I’m sure it’s a big help to other people. Prayers for your whole family 🙏🏻❤️🙏🏻❤️🙏🏻❤️🙏🏻
Wow. Without your selfless sharing I would never know. From a distance no one would ever realize the tiny things that can go so wrong. Bless you both. Prayers.
I think I’ve only commented once on here before, but my mom has dementia and lives with my sister. My sister is always texting me ( I’m in another state) about how my mom is constantly constantly constantly hurting her feelings and is mean everyday. I try to remind her that it’s the disease and not our mom, so these updates help! I will try to refer her to your videos so she won’t feel alone in this. Thank you!
My sister would come from out if state every year to spend a week with Mom. I caught up on sleep and pampered myself, went on 3 day vacation with hubby. What everyone needs is respite, Medicare can help.
My husband has swallowing issues off and on. He also gets very tired when we go anywhere especially with conversations going on a lot like to the doctor, etc. He will fall asleep in the car coming home. This is known as flooding. The damaged brain cannot handle much and gets overloaded. He doesn’t really enjoy going to social things any longer due to the overwhelming exhaustion that occurs. I just want Jason to know he isn’t alone.
Hello lesley and Jason, greetings from australia, I never miss your videos I love them, I admire you both, I just don’t understand the nasty comments, please keep healthy
You guys are SO brave! Thank you for your honesty. It means so much to others who in the same situation letting them know they are not alone. God bless you both!
I totally understand all that you both are going through. I relate to the hurt feelings because I feel that daily. Just have to remember it’s the disease, but it is still very hard. Thank you both for doing this. Makes me realize I am not alone. Sending love and hugs, and prayers. ❤️❤️🙏🙏
I know exactly what you mean about sudden outbursts especially about food and eating. I feel guilt because RIchard is so thin, I cook or buy something that I think he likes and he won’t eat it. It’s frustrating.
I believe you. Seen it with my late friend and my husband with Dementia. If a person has never been around it Or take care of someone with it they have no clue.
So many friends and people we know tell my husband he is doing great with his Alzheimer’s Dementia I try to explain my husband is show timing and he is trying to cover up his disease. They look at me like what am I talking about my husband is fine. if they would only live with my husband for one day, 24 hours, they would see the real disease take over.
My husband is excellent at his show timing. He can only pull it off for a certain amount of time and then he does the disappearing act. Our friends and family are aware that if we leave a gathering without saying goodbye, that he needed to go. I will continue praying for you and for Jason and the other people going through similar things.
Im so sorry.. you have to have thick skin to be a caregiver... i went through this with my mom.... I love her and miss her so much..RIP..momma.. but im not going to paint a pretty picture for you.. it only gets worse..i feel for both of you..its scary for them..and heart wrenching for us..caregivers.. but take each day with love and patience and just know please dont take anything personal...its just the horrific disease...i wish i could give you both a big hug.. 😊❤ i also have worked in nursing homes a couple of years..so i got educated fast there too...i wish i could take this disease away from everyone it touches...let me know if you need to talk ..ill be here withknowledge....kind regards....❤❤❤
My husband has Alzheimer's dementia & he does the 2 different people plus some weird things that make no sense. I hate the raging times & feel like screaming plus sometimes it makes me feel that I just don't like him. Does that feeling hit you too?
![I.N "HALLUCINATION" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/n5B5q1Hwt_U/mqdefault.jpg)
I love that you stood up for Leslie! Rude comments are not necessary! Love to see your smiles and hear your giggles!
Lesley, you are breaking my heart. The caregiver suffers a different kind of pain than the one who is sick. A change in behavior is so difficult to deal with. Suddenly you have become the enemy. Wrapping my arms around both of you and recognizing the good people that you are for sharing your struggles. God bless you both! ♥️🌸💐😘
Thanks for giving voice to the reality of living with dementia. Love & prayers❤️
You two are so sweet. I am sorry that this has happened to your family. You are giving the world a real gift by sharing your experiences. So many people think dementia is simply memory loss, or that it happens only to older folks. It is so much more complicated than that.
Thanks for sharing your experience! My 57 yr old husband (had his birthday yesterday) was diagnosed with Parkinson’s 9 yrs ago and LBD 6 yrs ago. His condition has progressed to the point that he requires 24/7 care, is unable to do anything for himself, and now spends 85% of the time in a vegetative state with very little response to stimuli. Yesterday at the birthday our 3 yrs old grandson summed it up best … Grandpa is like he is sleeping with his eyes open. 😢
I have learned a lot over the past 9 years, Leslie. I have learned that everyone’s journey through this disease is different … sometimes vastly so. Be kind to yourself … try to ignore the hurtful trolls who always seem to think it appropriate to share their opinions … I found those days and time period when my husband was at the place Jason is in this video to be very, very difficult. I was and will forever be grateful for a supportive network of friends, healthcare providers and awesome family members. I have had to learn to make the conscious effort to find joy in the smallest of things. My thoughts and prayers are with you both! ❤
This is extremely hard to deal with daily basis. The fact that your loved one is getting worse is heartbreaking. I'm sorry this is happening to you.
I am watching this in June 2023. Six months later from Nov. Jason was articulate, humorous even though the situations are getting more trying. Leslie, you are so sweet with him even though you must be stressed and exhausted. I am so glad you have a support group to vent with.
My heart breaks for you both. Having been a caregiver of Alzheimer & cancer & being a cancer patient myself....I truly believe it's harder on the caregiver.
Only seeing the happy go lucky snippets I know when the camera isn't running, it's hell much of the time. God bless you both💕🙏💕
I hope clinicians watch this journey. Health professionals do an incredible job but the consultation-setting has some limitations. We can all quietly learn from this couple sharing the shifting landscape of their everyday lives.
I love love love Jason’s sense of humor. I married my husband 41 years ago because of his wonderful sense of humor.
Dementia will cause you do silly jokes too. Usually see it in men. My late friend and my husband.
My life with my husband who is in stage four Alzheimer’s dementia is doing all the crazy things your husband is doing. We are married 56 years this June and he is not recognizable anymore he is angry when I ask him the simplest question he treats me like I am the enemy instead of his wife/caretaker. Life is getting harder to take care of him.
Yes! Absolutely.. My heart goes out to you! ❤️🙏❤️🙏❤️
That's so hard...sorry you are going thru this😢❤
I think this is so brave of you both. I'm so sorry and can only hope research will figure this out one day.
You are helping normalize the conversation about something that will strike most people in some way. What you're doing is very important and will help us all learn how to better deal with this. God bless you both.❣You are both so lovely.
Jason:" I blame the microwave for that one, not my fault". Haha😂 Now I ustand how funny this man used to be. I think many with dementia and their familie can relate and be encouraged by you being willing to share your misfortunes. Your brave with all the trolls. But as we say here in Norway where trolls are usual. They are big and scare but stupid and when hit by sunlight turn to rocks. In the ages to come we will meet again a place where no sickness no pain exists. Thank you. God Bless
My dad is in the latest stages of Lewy Body Dementia. We've managed to keep him home so far. We're hoping to continue that but it's very difficult. My heart goes out to you both. ❤
My heart goes out to you both.
I have no idea how you two do this! Yet In Christ Jesus God thru The Holy Spirit helps us to do what He needs us to do.
I am sure 1,000’s and 1,000s x 100,000’s now and thru the ages will benefit from your labor to Share this time together. 🙏💞💙💝🙏
I was a caregiver for my husband for 8 years. He had cancer and then developed dementia! God bless you both❤️❤️🥰🥰
Hugs, Leslie. My thoughts and prayers are with you.
Lesley, I so admire you. I watched my mom go through this with my father. Thank you for opening up with your emotions. Much love to you both.
Praying for you both. My husband had Alzheimer’s and I can certainly understand some of what you are going through. Hang in there!
You guys are very sweet and full of love even when talking about really difficult stuff. One day at a time.
I am a retired surgical scrub. I worked for a GI practice and we used Jason's joke so many times😂😂😂 hilarious!
I noticed this is a older video, I pray things are as well as they can be. It’s hard and it doesn’t get easier. Hugs. Your videos help us all.
Is Sundowners Syndrome a part of Lewy Body Dementia? My Mother experienced that. What my Dad and I did to help her get through that was to take car rides starting about 3:30 each day. Mother was a pilot all her life, so a “we need to go to the airport” declaration would help get her in the car. Another wonderful thing Mother enjoyed was having me or our helper call out “N” numbers of airplanes. She would write those numbers down for hours because in her business she always had a lot of paperwork to do, so it was like she was enjoying work!
She also would listen to Daddy recall a lot airplane stories from the past. Both were pilots! A faux cockpit would have been a real dream to have!
Her 99’s group (women pilot’s organization) would visit and they honored her and also came to a special birthday party.
Her last public appearance was at the groundbreaking ceremony of the Lone Star Flight Museum at Ellington Field in Houston where she has a spot.
I was a serious wreck that day, hoping she could make it through the speeches, visiting with old friends etc. It was fine. She even held the shovels along with the dignitaries and scooped some dirt for the picture taking.
Though I was not at all sure how things might go, both my parents were troopers that day.
I wish you both many good days!!❤
Btw, if caregivers do not get good sleep, it is bad. Call for help and go sleep somewhere before you get too far behind!
I could see that you both have a lively energetic relationship, and Jason has quite the big personality.
Lesley, my heart goes out to you. I see my aunt in you. My uncle didn’t have dementia, but he had a stroke. He lived for 8 years afterwards, and my aunt was his caregiver. Prior to the stroke, he was the sweetest, kindest man you could imagine. After the stroke, for whatever reason, he became verbally abusive and mean at times, but only to my aunt. We knew, and she knew, that he couldn’t help it and didn’t mean it. She was so strong, and so are you! This is hard on you and Jason both, and I’m so sorry that things are difficult right now!
My husband had a stroke five years ago. He turned into meanest person. He even threatened to shoot me. He calls me filthy names. We have finally found out he has bleeding on the brain. He told his Aunt he doesn't like the sound of my voice. I have kept our primary care doctor informed but he wants me to record him. I'm 72 and I find this difficult to do. I will be going with him to his doctor appointment to hear the findings of his MRI
I’m so sorry you’re having to deal with the verbal and emotional abuse. I hope the Dr. will prescribe something that might help.
My heart aches for you. My husband has traumatic brain injury from a motorcycle accident almost 9 years ago. The frontal lobe damage completely screws with the emotions. I have cried several times in conversation with my therapist that I don't like my husband at certain times. I still love him but he makes it very difficult to like him. I completely understand the situation you find yourself in Lesley. You don't like the treatment, you don't like nor deserve the outbursts and then you beat yourself up for feeling anger toward Jason.
My thoughts and prayers are for you.
Leslie I feel your pain of losing someone you love and having to care for them when they don’t want the help. God bless you both ❤️
Jason, very well said!! So sweet. Leslie needs that validation. Your talk today RESONATES!!!!
My husband does that on occasion. I so feel your pain, hang in there. Your not a lone 😊
Watching your videos and your shared journey has been extremely helpful to me. My husband has been gone for five years, I took care of him for ten. He was a Viet Nam vet who suffered from the effects of Agent Orange exposure. At the time I didn’t fully understand that many of the personality changes he exhibited were a normal part of the disease process. Especially towards the end when he was both verbally and physically abusive. It was hurtful. Only now, looking back, and also by hearing your perspective about care giving do I fully comprehend the situation. Thank you so much for having the courage and compassion to open up your lives.
Praying for you both.
My husband has dementia and first time in 56 years he is yelling at me and half to say I’m a mess , I’m 75 and was abused as kid and was lots yelling ... thanks for sharing
This is so tragic for you to be going through after a wonderfully happy & long marriage.
My husband is currently in the same stage as your husband. With listening to this clip I feel like you are describing my husband. Thank you for sharing your story.
God Bless you both.
I went through this with my husband. It was hard for me and for him.
I was his caregiver till the end. Hospice came in at the end to make him pain free and comfortable.
Kids, enjoy what time you
have now. Even when it's hard. I pray God gives you both lots of love and strength to go through this together. I will be praying 🙏 🤲
Way to tell the trolls off, Jason!! You are doing amazing, Leslie. Thank you for being willing to share your lives so others can understand this journey you are on.
I feel so sad about Jason’s decline/mistakes because it’s not in his control. He realizes and accepts responsibility for his actions even though it’s never intentional. Why do bad things happen to good people? Ultimately it’s in God’s hands and I pray that you both continue to be strong while on this terrible journey. Love you both ❤❤❤🙏🙏🙏
Looking forward to your next update. Prayers for you guys.
You guys are so amazing, my husband has Lewy bodies dementia. You give me so much strength to deal with the symptoms he is developing and also finding some comfort from my experiences being similar to Jason’s. You are appreciated xx
Lesley I got teary with you. It must be so hard to live with on a daily basis and try not to get hurt by it. However Jason got it so right when he said about the 10% . You are a strong couple and you will get through it together.x
My heart breaks for you both. The “out of left field” meanness hurts worse than a slap. My husband had frontal temporal dementia and I felt just the same as you mentioned, Leslie - I became afraid to say anything because anything could trigger an explosion. Please know that I will keep you both in my prayers. Leslie, when you say things are not going well, honey, I believe you 100%.
You two are very brave and wonderful for sharing this.
You are such a wonderful wife Leslie the care you are giving Jason is outstanding. You must be emotionally wiped out tired and exhausted trying to keep Jason and yourself safe. I send you both the lovely couple you are love and prayers. Xx❤️❤️🙏🏻🙏🏻🙏🏻🙏🏻
So sorry you guys are going through this. The cruelest of all diseases. My Thoughts and prayers are with you 💕
I believe people making negative comments don’t understand this condition. Stay well!
My husband and I seem to be going through these similar challenges, being married 40 years and only in our 60s. Thoughts and prayers! Happy Thanks giving. Florida
I just finished watching all 9 ep. and it seems the last update was last Thanksgiving? Or earlier? That worries me. Is he ok? You said he was getting worse and in a lot of pain. So, that worries me. I'm praying for you both. Leslie, you are an angel and a great wife and caregiver. Most women today are all about them and just aren't as giving to anyone else but themselves. My husband died 22 yr. ago at the young age of 57 so I will never know what you are going through cuz my husband died rather quickly. Merciful if you ask me. Hun, I wish I could do something to ease both of your pain and stress. Prayer is the best thing for that and I'm going to the throne to do that. I love you guys.
I don’t usually comment on videos..my mom is in late stages of Lewy Body Dementia and she can no longer talk, feed herself or walk..this is a devastating disease..cherish every moment together..God Bless you both.
I'm a long time sub here.I have been watching things progress through the years.This was such a special video because my brother in law is going through the same things. Stay strong, wishing you blessings.
Of course it is hard on you as a caregiver. So many folks don’t even realize what caregivers go thru. Glad you can do these videos and hope they help you as well. Health issues sure effect husband and wife. My husband and I were a lot like you all but health issues really take a toll on things.
Leslie, Please do what is best for you. never feel guilty for changes you may have to make. There will be a point when life changes will have to be made. You are wonderful.
Thank you so much for sharing REAL LIFE with us!
Please be kind made me cry! This disease is heart wrenching!
My heart goes out to both of you so much. My dad had dementia and it was awful to watch him decline. So thankful you have Jesus to lean on!!
MY HEART GOES OUT TO YOU I KNOW THIS MUST BE VERY DIFFICULT TO SEE THE PERSON YOU LOVE GO THRU THIS DECLINE AND KNOW THAT AS HE DECLINES IT WILL BE MORE DIFFICULT
You are so courageous and brave. You can laugh even though you're crying inside. I admire you both for what you're going through but still caring about the audience to get the word out about this awful disease. Thank you. Love and prayers to you and your family ❤️❤️❤️🙏 🙏🙏.
Your husband admits it, that’s rare.
I walk into the livingroom the other day and my husband was angry at the site of me he wouldn’t talk to me. He is Jekyll and Mr. Hyde too due to his not fully diagnosed Dementia/Bipolar from his three TIAs to his frontal lobe. I went back into the bedroom where I pretty much live. He’s on the computer games from the time he gets up until he goes to bed. I can get him out to hike at times he’s pretty much willing to do that still. So anyway he comes in to use the restroom and he’s all happy and silly with me, totally a different person.
Please take care of yourself, too. Sending a prayer❤
@@meryldykstra2538 Thank you honey prayers for you all.
Even though I am not going through this. I have seen it more and more in the hospital 🥺. Thank you for the information and you are in my thoughts ❤
Leslie, thank you for sharing your journey. I'm so sorry to you and Jason for what you are going through.
You two are the greatest I can't believe how good you look fabulous you have a great sense of humor both of you go by that sailboat
My prayers are with you. I appreciate your willingness to share such a personal journey.
I needed to hear this. Thank you
You need a big, warm hug and to be treated special for a day with nobody to worry about but yourself......just a day of rest and pampering
My husband is the same way. Just roll with it and carry on. You’re doing just fine. Hang in there.
This goes on at my home….my husband becomes insulting and hurtful. He has had strokes and has vascular dementia. He knows he is saying hurtful things, but says them any way. I know they are frustrated, and I would not want to trade places, but this only adds to the awfulness of dementia. Why doesn’t their sweet side dominate feelings instead of this mean side? So hard to continue being with them and caring for them with nothing but bad attitudes around. I end up not being too much fun to be around, either. We are both damaging who we were….
You are both strong and devoted to each other thank you for sharing I hope it helps you as much as it helps others
As someone who has been there for both my dieing parents, Life gets messy..:( Please enjoy each day.. Sunshine to you both..
I pray for both of u. What a horrible disease to a lovely couple. I see some of these signs in my husband who has PTSD.
I just don’t know what to say…Your just the cutest couple….How hard to watch your loved one go through all this…The saddest is that he doesn’t want to do the things this disease makes him do…it has to be the hardest thing to watch…Thank you so much for sharing this, I’m sure it’s a big help to other people. Prayers for your whole family 🙏🏻❤️🙏🏻❤️🙏🏻❤️🙏🏻
Wow. Without your selfless sharing I would never know. From a distance no one would ever realize the tiny things that can go so wrong. Bless you both. Prayers.
Oh sweet people … sending love and prayers.
You’re both incredibly precious!!! And I am just so sorry for this very difficult experience and ongoing trial.
Praying for both of you.❤
Thinking of you both. Hang in there.
Prayers for you both🙏🏻
I think I’ve only commented once on here before, but my mom has dementia and lives with my sister. My sister is always texting me ( I’m in another state) about how my mom is constantly constantly constantly hurting her feelings and is mean everyday. I try to remind her that it’s the disease and not our mom, so these updates help! I will try to refer her to your videos so she won’t feel alone in this. Thank you!
My sister would come from out if state every year to spend a week with Mom. I caught up on sleep and pampered myself, went on 3 day vacation with hubby. What everyone needs is respite, Medicare can help.
❤ thank you for sharing and posting an update. ❤
Life can be so unfair!! You 2 are both strong & dealing with things as they come. That is the best you can do & keep your sense of humor!!!
My husband has swallowing issues off and on. He also gets very tired when we go anywhere especially with conversations going on a lot like to the doctor, etc. He will fall asleep in the car coming home. This is known as flooding. The damaged brain cannot handle much and gets overloaded. He doesn’t really enjoy going to social things any longer due to the overwhelming exhaustion that occurs. I just want Jason to know he isn’t alone.
Hello lesley and Jason, greetings from australia, I never miss your videos I love them, I admire you both, I just don’t understand the nasty comments, please keep healthy
U two r such a loving couple ❤I’m so sorry this is happening so sad u two deserve the best
You guys are SO brave! Thank you for your honesty. It means so much to others who in the same situation letting them know they are not alone. God bless you both!
I totally understand all that you both are going through. I relate to the hurt feelings because I feel that daily. Just have to remember it’s the disease, but it is still very hard. Thank you both for doing this. Makes me realize I am not alone. Sending love and hugs, and prayers. ❤️❤️🙏🙏
My heart goes out to you both, thanks for sharing 😢
I know exactly what you mean about sudden outbursts especially about food and eating. I feel guilt because RIchard is so thin, I cook or buy something that I think he likes and he won’t eat it. It’s frustrating.
Sending love and prayers. ❤🙏🏼.
Thank you for sharing your hearts ❤️ ❤
Prayers for all of you ❤
I just love the two of you
Praying for you both. Bless you
My husband has Dementia and nobody believes me when I say he's showtiming.
I believe you. Seen it with my late friend and my husband with Dementia. If a person has never been around it Or take care of someone with it they have no clue.
So many friends and people we know tell my husband he is doing great with his Alzheimer’s Dementia I try to explain my husband is show timing and he is trying to cover up his disease. They look at me like what am I talking about my husband is fine. if they would only live with my husband for one day, 24 hours, they would see the real disease take over.
My husband is excellent at his show timing. He can only pull it off for a certain amount of time and then he does the disappearing act. Our friends and family are aware that if we leave a gathering without saying goodbye, that he needed to go. I will continue praying for you and for Jason and the other people going through similar things.
Praying for all
God Bless you both!
Gosh, I find this heartbreaking.
God bless you both. This is clearly very difficult for you, especially because you clearly love one another.
Im so sorry.. you have to have thick skin to be a caregiver... i went through this with my mom.... I love her and miss her so much..RIP..momma.. but im not going to paint a pretty picture for you.. it only gets worse..i feel for both of you..its scary for them..and heart wrenching for us..caregivers.. but take each day with love and patience and just know please dont take anything personal...its just the horrific disease...i wish i could give you both a big hug.. 😊❤ i also have worked in nursing homes a couple of years..so i got educated fast there too...i wish i could take this disease away from everyone it touches...let me know if you need to talk ..ill be here withknowledge....kind regards....❤❤❤
My husband has Alzheimer's dementia & he does the 2 different people plus some weird things that make no sense. I hate the raging times & feel like screaming plus sometimes it makes me feel that I just don't like him. Does that feeling hit you too?
So sorry you are dealing with that. So hard🙏🙏😢😢
I can see a change in Jason for sure
OMGosh you guys..this is so scary. God bless you both! 😇
Jason - what a great way to stick up for Leslie! And you get to work out some of your aggression too? Bonus!
Love to both of you!
My heart breaks for you guys. God bless you both