LIVING WITH LEWY BODY DEMENTIA Ep. 4 | Pet Scan and Swallow Study
HTML-код
- Опубликовано: 4 июн 2020
- A quick update on our Lewy Body Dementia journey. We recently had an appointment with our neurologist and we have some upcoming test we wanted to share about. Thank you for following along! Want to help us continue to make videos? Donate on Paypal: www.paypal.com/donate/?hosted...
Follow me on Social Media:
/ acharmingabode
/ acharmingabode
/ 1xlo7ww7y0l0gea8hebnvt...
We love to hear from you all!!! Thanks so much for all your support!
Would you please ask Jason if he has experienced a sudden rush of emotions to the point that a song or a movie can cause him to burst out crying? Or if he has a hard time concentrating while driving. I also wanted to thank you for sharing your story it has opened my eyes and has helped me realize that my Ex- husbands behavior isn't just because of his Alcoholism , but I now see him exhibiting every one of the symptoms that Jason has experienced and quite few more that terrify me putting himself as well as others in danger. And I don't know how to get him help. We were married 26 yrs and have been divorced for almost 15 yrs and have managed to remain friends for over 61 years but because I am no longer married to him his Doctors at the VA can't even speak to me about him or advise me as to how to get him the professional help that he needs. I've tried and the kids have tried to talk to him and to help him but nothing seems to help he promises to talk to his Doctor but then doesn't the last time we spoke he went off yelling telling everyone to leave him the hell alone as he stands naked wearing only his white tube socks and black Croc's at my front door. Breaks my heart.
You guys are so cute together!! Love it keep the vids coming..
He has a great sense of humour 😂 you two are too cute together 🥰💕🇬🇧
I've worked with patients with different types of dementia and Alzheimer's for almost 20 years. It's good to see Jason still has his sense of humor.
He is funny and good looking. I love his energy too. What a good guy.
You two have the best attitude while dealing with dementia. I think this important. Live everyday to the fullest. I know this is hard at times but you make a great team. Prayers to both of you .
Jason is a Rock Star. He has a wonderful sense of humor.
While this is so incredibly sad (my dad is currently in memory care with dementia at age 70, started showing signs in his mid 60's), you two are absolutely adorable, managing things with such positivity and honestly, if you hadn't told us, I would not know that Jason is sick. Stay positive. :) Thanks for sharing your journey. I'm certain it's helping others that need it.
You guys are pretty charming. My brother is beginning to have some symptoms, and it's good to see folks dealing with dementia and still laughing. Thank you.
This must be hard,..being a mom, wife, working holding all together,...you are amazing omg so amazing.
Jason, you're too good of a person for this to happen to you. You're impressive and stoic too.
I totally agree with you.
Jason is so funny, it’s cool how you two bounce off each other.
Praying for both of you. May God lay his healing hand on you. I’m so glad you have your precious wife. I love that y’all are willing to share your journey. Be well 🥰
Jason you have such a good sense of humour and hope you both enjoyed your grandson's birthday
Thank you for helping us to learn more Jason you're the only one who really knows what you're experiencing
I so love Jason’s sparkly funny personality and your upbeat laughing attitude. Who could have thought a dementia video could be so upbeat.?💕
I too was choking and gagging to the point of vomiting. I had all kinds of swallow tests, etc. All were normal. Finally saw a renowned ENT who diagnosed me with Silent Reflux.
I can see why you fell in love with your husband...handsome, smart and a great sense of humor too! I also wanted to share some info with you. I have arachnoiditis due to spinal surgeries and countless spinal taps. The pain from mid-lower leg down to the feet feels like thousands of red ants biting all at once. And often my muscles in my ankles and feet/toes would cramp into horrible painful knots, to the point that i couldn't walk. The neurologist prescribed Gabapentin which lowered my pain level to a low scream. We tried several things and finally came to the combo of Gabapentin and Tramadol. For me, it works very well. Maybe this info might help you. Good luck at the Neurologist. Love your channel and watching the two of you together.
Jason makes me smile and laugh! That smile gets me every time❤❤❤
Hi I'm new here can you explain what actually happened to make Jason go to the doctor in the first place..... Was it a symptom.
I just came across you guys this morning! I love the energy you have. You are an adorable couple. Be well don’t give up🙏 I have MS DX at 39 in 2011 whole life changer with a chronic illness with no cure. I don’t let it get me down and I try everyday to stay positive.
You two are too cute and such an inspiration for anyone going through a health issue. I can just see the love between the two of you. Praying for good news from your neurologist!
You guys are wonderful. My 83 year old husband has dementia but they haven’t given it a name. Your video,s have helped me so much.. I am a nurse also and find myself doing exactly what I was trained not to do. Thank you both.
Happy Veteran's Day Jason! Thanks for your service!!
Love you two! Thanks for sharing.
Thanks so much 😊💜
You two are adorable! I love seeing you interact and have fun together!
You two are awesome, and you seem to be happy, Jason has such a great attitude and he's funny and I'm still praying for you both.
I'm a Carer for the elderly, in London, in the dementia ward. I think you're both inspirational and I really enjoyed watching this x
How is it ??? This is so interesting to me ... is it just dreadful ? Or do they sometimes seem blissfully ignorant ?
New subbi... my sweet dad lost his battle with Lewy body 2 years ago. He lived with his dignous for over 5 years. He was 89.
Preying for your family. I look forward to watching your journy.
Love the updates - you guys are the best!
Love you guys! We are always here for you!
Love your videos! Keep them coming!
Positive attitude and dealing with reality in a fashionable matter..I'm a care giver over 20 year...I'm proud of both of you...God first ...and all will be changed!
You two are amazing!
Y'all are too cute and make me smile, Thank You for your service
Jason, you are amazing...God bless you.
I am so praying for you both! Healing!
Thank you for sharing your life. God bless you both.
I understand what you are going through. My parents both have dementia, my dad wasn’t able to be formally diagnosed at the point we are at but they assume LBD. My mom has Alzheimer’s. I think the only advice I could give you is to continue to stay ahead by constantly educating yourself to what is coming. The laughter gets harder and harder to find. One of the books that has helped me the most is called Smiling Through Your Tears: Anticipating Grief. I don’t want to come across as an “expert” but please be careful with your travels, change can cause rapid progression with any dementia. Thank you so much for sharing your story. ♥️
He's great! Love his sense of humor.
You two are lovely. My heart is with you both. Thank you for the update.
Hoping all the best for you guys!
Thank you for sharing your story, you are in our prayers and God Bless❤
Prayers are with you, wish you the best. Keep that positive energy. 🙏💖
Jason, you are delightful! My prayers are with you.
So glad you have humor to help you through this! Enjoy yourselves.
You both are amazing, beautiful souls. Thank you so much for sharing.
Jason you are awesome! I love your positive attitude and humor!
You two are too cute!! God bless both of you for sharing!!
I appreciate you both so much for sharing your story. I just found the first video and had to write you. I have been caring for my mother for a few years now. It is a different situation but kind of the same. She was very ill for three years and she lost her memory and didn't recognize me because (I think) she doesn't remember me at 60 years old. She kept asking where her daughter was. I understand how hard it is to remember and catch ourselves in trying to talk to them like we always have. And like you said we can't do that when they are not themselves. I am fortunate that her memory has returned but her health has declined because of all the UTI's she had that caused the memory problems. I am not a nurse but I sure learned a lot and was able to handle more than I thought I ever could. I also learned more patience than I ever thought possible.
I wish you well and I am glad you have family you can talk to about this. I don't and I know how hard it can be. I pray for you both and wish you well. Again thank you for your story. I believe there are a lot of people that are in the same spot and know what you are going thru. When it gets hard try to remember we are behind you.
Hi Leslie and Jason! Thank you so much for sharing updates. You both are in my prayers. I love all your videos. 💕
You are both so amazing and the love you have for each other shines through. Bless you both, love from Scotland xx
Thank you for educating us on such a difficult subject. You are doing it well!
You both are adorable. I’m wishing you both the best on this journey. Prayers !
Thank you so much for the updates!! You are both amazing!!! Please keep them coming. You are helping me and thousands of others more than you know!!! Love you both!!❤️❤️
It’s always good to hear how y’all are doing. It’s great to see you both in high spirits. Love and prayers😊❤️😊
You guys are wonderful ❤️ I love you two! Keep up the good work👍🏻 and much thanks to you both for this documentary
Love your videos and pray for the best. Keep the videos comes. Hugs
I admire y’all’s positive attitude, and the love u have for each other. God Bless You and Happy Thanksgiving
I miss you guys. Praying for you every day.
Love you guys thank you for showing us a little of your lives!
Love how you love each other!
God be with you both and your children.
Love your videos!
Love ❤️🙏 you two. Am honored to hear your story 🙂.
May God bless
Both of you as you work with all the changes in your life. Love you two. Sending hugs and prayers
Just found your inspirational story. Blessings to you both! You have beautiful hearts and obviously love each other very much!
I’m needing a candle from your charming abode to mine! Jason’s the best salesman!
You two are too funny. Take care and stay safe and healthy.
I'm just finding this channel. You're both amazing. This takes a lot of courage to allow many people into your lives like this. My continued prayers for strength, comfort and wisdom.
Love you guys. And for some reason you make me happy just watching a video because you are happy in spite of everything we still have a lot of love for each other. What a blessing
Love all of your updates and learning what’s ahead for treatment and fun! You two are amazing and deserve the best ! 🤗
You are so sweet 🥰 thank you! ❤️❤️
Buddy,
You make a bracelet and I'll buy several.
What a great idea of how we can help.
Please let us know how we can help.
Me too! I want a bracelet.
You guys are the cutest couple!! Have fun at the birthday party!! 🥰🥰
You might want to contact Baylor College of Medicine in Houston,Texas. I go for a movement disorder in my muscles. It is a great place with dedicated doctors.The building is on Cambridge St. God bless.
You guys are so level headed and your commitment to each other, to enrich yor community and to enjoy life with dementia is awesome and inspiring.
Y’all are the cutest! ❤️
Oh my gosh I love you both 🤟
Jason has a great personality, as do you! When you laugh at his jokes, it makes me get goosebumps. It seems like such a natural duo, there is something there I just don’t see with other couples. Something wonderful and unmatched. As these videos progress, Leslie you seem more relaxed and confident, for whatever reason. I hope you both are having a blessed day today while I keep working thru your videos 🤗
Thank you for sharing. So much to be learned from others who face the challenges of dementia. I love the idea of having a code word to alert him that he needs to let you help him refocus. Of course one of the big challenges is adjusting to frequent changes. You two are great!
Thank you for sharing your life with us... we are all going through some type of struggle and to know that brings comfort to those of us who are feeling overwhelmed or alone to keep laughing.
Catching up on these videos. Your relationship is precious, thank you for sharing and teaching us 💕
You are so welcome 😊
You guys make me smile!!
😊
You are such a cute couple! I found you randomly on you tube. Sending you prayers and love and healing!
Jason is hysterical. Glad you have some appointments coming up that will hopefully help x
His sense of humor kills me!!! 😂
Thanks a million for sharing your life with LBD. Stumbled on your posts and will be thankful for ever.
Thank you so much for watching! We appreciate your support! 😊
I watched your post and my heart is so touched! I believe in prayer and I believe in miracles! I will be praying for both of you as you journey through this season in your lives! I pray Gods blessing and healing touch on both of your lives!
I love watching your channel, especially after learning this is what Robin Williams actually had. your upbeat attitude and your ability to continue to care for and love Jason
Caught up on all your 4 videos... Simply love watching you two!! You both are a great team and just continue the same! Best wishes and love!❤❤
Thanks so much!! 😊💜
Thanks for allowing us to watch your life's unfolding curve ball. I know we get to see the awesomeness of both of your smiles and sense of humor, and not the not so pretty side with the puking and choking side. My prayers go out to you both. Thank God you have each other. A lot of spouse's would have bailed. I believe God sees the big picture from beginning to end. And he added Jason's great sense of humor to make it easier to navigate the journey. And I hope you guys had a great trip to Florida to celebrate the grandson's birthday. I look forward to the next video. God bless you.
I Love you 💕 guys so much. You bring so much joy to an old lady 👵. You have so much optimism, God Bless you sweethearts. You two are such a Blessing. 🥰
Your husband is so awesome, and it's awesome he's able to make you laugh! Be blessed 🤗❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Such interesting hobbies, Jason.
Hi, Jason and Leslie, I know that this life challenge must be daunting at times and I see that your positive attitudes will help to illuminate your path. You are a wonderful couple and your love for each other is so apparent. Jason, thank you for serving our country and you are a very brave man. I respect you and think of your courage every day. Deirdre
Hopefully u guys get a good weather when u come down to fl ! It's been horrible and usually summer's are very wet unfortunately, your husband looks great! I'm glad u guys are so upbeat and have found a happy way to see this thru, Blessings to both!
I really appreciate your sharing this with us. You are a beautiful and exemplary couple. I will keep you guys in my prayers
Thank you so much! We appreciate it ❤️
Hi Leslie, you and Jason are simply adorable and I enjoy your video's very much. I know it can be difficult when a spouse has medical issues because I have been dealing with my husband's medical issues and it becomes exhausting. He was just diagnosed with a rare cancer in the ribs and I have been doing so much research and looking for the best doctor for him because we have not gotten definitive answers from the doctor that was treating him. Keeping you all in my thoughts and prayers. So happy that you are both going to your grandson's 1st birthday, it will be nice to get away. Take care! xo
I commend you both for your positivity and courage in facing this health challenge. Thank you for sharing your story so the rest of us can learn about Lewy Body Dementia. 💗
Love ❤️ you both, keep on Keeping on. ♥️
Thank you for sharing your life with us your a lovely couple life’s a bitch sometimes and it’s great to see you both being positive thinkers live life to the fullest guys. Love your sense of humour and your love just shines through the videos. We lost our son at age 33 10 years ago to an aneurysm so I know life is short. Sending cuddles hugs and prayers to you both all the way from Melbourne Australia
He is so blessed to have you and your upbeat, happy , SAFE personality ... I would be so terrified and alone ... you will change this disease around for him ❤️
Thank you for your kind words ☺️
You two are adorable together and so in love, that’s apparent 🥰
He is so cute and funny! What a great attitude! Have fun with you grandchild.
Hi I'm a new sub do they have another child besides their daughter... I didn't know their daughter had a baby.
Love you guys!
Jason you are so funny &. Love your wife. Please don't stop sharing this info.
Hi there you two Great People. My heart is with you on this journey. Please do test for Parkinsons and Vertigo. It usually goes hand in hand with Dementia. Strongs and I will pray for all of you. xxx
You both make me so happy, I hope my fiancé & I end up in this type of relationship 🥰🥰