Would you please ask Jason if he has experienced a sudden rush of emotions to the point that a song or a movie can cause him to burst out crying? Or if he has a hard time concentrating while driving. I also wanted to thank you for sharing your story it has opened my eyes and has helped me realize that my Ex- husbands behavior isn't just because of his Alcoholism , but I now see him exhibiting every one of the symptoms that Jason has experienced and quite few more that terrify me putting himself as well as others in danger. And I don't know how to get him help. We were married 26 yrs and have been divorced for almost 15 yrs and have managed to remain friends for over 61 years but because I am no longer married to him his Doctors at the VA can't even speak to me about him or advise me as to how to get him the professional help that he needs. I've tried and the kids have tried to talk to him and to help him but nothing seems to help he promises to talk to his Doctor but then doesn't the last time we spoke he went off yelling telling everyone to leave him the hell alone as he stands naked wearing only his white tube socks and black Croc's at my front door. Breaks my heart.
You two have the best attitude while dealing with dementia. I think this important. Live everyday to the fullest. I know this is hard at times but you make a great team. Prayers to both of you .
While this is so incredibly sad (my dad is currently in memory care with dementia at age 70, started showing signs in his mid 60's), you two are absolutely adorable, managing things with such positivity and honestly, if you hadn't told us, I would not know that Jason is sick. Stay positive. :) Thanks for sharing your journey. I'm certain it's helping others that need it.
You guys are pretty charming. My brother is beginning to have some symptoms, and it's good to see folks dealing with dementia and still laughing. Thank you.
I appreciate you both so much for sharing your story. I just found the first video and had to write you. I have been caring for my mother for a few years now. It is a different situation but kind of the same. She was very ill for three years and she lost her memory and didn't recognize me because (I think) she doesn't remember me at 60 years old. She kept asking where her daughter was. I understand how hard it is to remember and catch ourselves in trying to talk to them like we always have. And like you said we can't do that when they are not themselves. I am fortunate that her memory has returned but her health has declined because of all the UTI's she had that caused the memory problems. I am not a nurse but I sure learned a lot and was able to handle more than I thought I ever could. I also learned more patience than I ever thought possible. I wish you well and I am glad you have family you can talk to about this. I don't and I know how hard it can be. I pray for you both and wish you well. Again thank you for your story. I believe there are a lot of people that are in the same spot and know what you are going thru. When it gets hard try to remember we are behind you.
I can see why you fell in love with your husband...handsome, smart and a great sense of humor too! I also wanted to share some info with you. I have arachnoiditis due to spinal surgeries and countless spinal taps. The pain from mid-lower leg down to the feet feels like thousands of red ants biting all at once. And often my muscles in my ankles and feet/toes would cramp into horrible painful knots, to the point that i couldn't walk. The neurologist prescribed Gabapentin which lowered my pain level to a low scream. We tried several things and finally came to the combo of Gabapentin and Tramadol. For me, it works very well. Maybe this info might help you. Good luck at the Neurologist. Love your channel and watching the two of you together.
I too was choking and gagging to the point of vomiting. I had all kinds of swallow tests, etc. All were normal. Finally saw a renowned ENT who diagnosed me with Silent Reflux.
I just came across you guys this morning! I love the energy you have. You are an adorable couple. Be well don’t give up🙏 I have MS DX at 39 in 2011 whole life changer with a chronic illness with no cure. I don’t let it get me down and I try everyday to stay positive.
You guys are wonderful. My 83 year old husband has dementia but they haven’t given it a name. Your video,s have helped me so much.. I am a nurse also and find myself doing exactly what I was trained not to do. Thank you both.
Praying for both of you. May God lay his healing hand on you. I’m so glad you have your precious wife. I love that y’all are willing to share your journey. Be well 🥰
You two are too cute and such an inspiration for anyone going through a health issue. I can just see the love between the two of you. Praying for good news from your neurologist!
New subbi... my sweet dad lost his battle with Lewy body 2 years ago. He lived with his dignous for over 5 years. He was 89. Preying for your family. I look forward to watching your journy.
Positive attitude and dealing with reality in a fashionable matter..I'm a care giver over 20 year...I'm proud of both of you...God first ...and all will be changed!
I understand what you are going through. My parents both have dementia, my dad wasn’t able to be formally diagnosed at the point we are at but they assume LBD. My mom has Alzheimer’s. I think the only advice I could give you is to continue to stay ahead by constantly educating yourself to what is coming. The laughter gets harder and harder to find. One of the books that has helped me the most is called Smiling Through Your Tears: Anticipating Grief. I don’t want to come across as an “expert” but please be careful with your travels, change can cause rapid progression with any dementia. Thank you so much for sharing your story. ♥️
Oh my gosh I love you both 🤟 Jason has a great personality, as do you! When you laugh at his jokes, it makes me get goosebumps. It seems like such a natural duo, there is something there I just don’t see with other couples. Something wonderful and unmatched. As these videos progress, Leslie you seem more relaxed and confident, for whatever reason. I hope you both are having a blessed day today while I keep working thru your videos 🤗
Thank you for sharing. So much to be learned from others who face the challenges of dementia. I love the idea of having a code word to alert him that he needs to let you help him refocus. Of course one of the big challenges is adjusting to frequent changes. You two are great!
Thank you for sharing your life with us your a lovely couple life’s a bitch sometimes and it’s great to see you both being positive thinkers live life to the fullest guys. Love your sense of humour and your love just shines through the videos. We lost our son at age 33 10 years ago to an aneurysm so I know life is short. Sending cuddles hugs and prayers to you both all the way from Melbourne Australia
Thanks for allowing us to watch your life's unfolding curve ball. I know we get to see the awesomeness of both of your smiles and sense of humor, and not the not so pretty side with the puking and choking side. My prayers go out to you both. Thank God you have each other. A lot of spouse's would have bailed. I believe God sees the big picture from beginning to end. And he added Jason's great sense of humor to make it easier to navigate the journey. And I hope you guys had a great trip to Florida to celebrate the grandson's birthday. I look forward to the next video. God bless you.
Thank you for sharing your life with us... we are all going through some type of struggle and to know that brings comfort to those of us who are feeling overwhelmed or alone to keep laughing.
Love you guys. And for some reason you make me happy just watching a video because you are happy in spite of everything we still have a lot of love for each other. What a blessing
Hi to you two! Jason i love your sense of humor! Keep it up! And it sounds like you are a very active guy! Keep it up! Keep stimulating your brain, keep it active. Also the choking, and I guess you can say the feeling of asperating is one of the symptoms. My step dad has had problems swallowing and coughs alot. He says he feels like somethings in his throat, but there's nothing there. It may be some spastic movement of the muscles in the throat. Im not sure, but I just wanted to share my stepdad has had that also. And he has been diagnosed with Lewys also. Leslie you are so sweet and strong sweetie! Im so glad you both are making plans to go places and to keep enjoying life no matter what! God is there for you, he is your strength and hope! Happy you get to be with your grandson! ♥️♥️♥️ big hugs to you both!
Hi, Jason and Leslie, I know that this life challenge must be daunting at times and I see that your positive attitudes will help to illuminate your path. You are a wonderful couple and your love for each other is so apparent. Jason, thank you for serving our country and you are a very brave man. I respect you and think of your courage every day. Deirdre
Hi Leslie, you and Jason are simply adorable and I enjoy your video's very much. I know it can be difficult when a spouse has medical issues because I have been dealing with my husband's medical issues and it becomes exhausting. He was just diagnosed with a rare cancer in the ribs and I have been doing so much research and looking for the best doctor for him because we have not gotten definitive answers from the doctor that was treating him. Keeping you all in my thoughts and prayers. So happy that you are both going to your grandson's 1st birthday, it will be nice to get away. Take care! xo
He is so blessed to have you and your upbeat, happy , SAFE personality ... I would be so terrified and alone ... you will change this disease around for him ❤️
I love watching your channel, especially after learning this is what Robin Williams actually had. your upbeat attitude and your ability to continue to care for and love Jason
Hi there you two Great People. My heart is with you on this journey. Please do test for Parkinsons and Vertigo. It usually goes hand in hand with Dementia. Strongs and I will pray for all of you. xxx
I watched your post and my heart is so touched! I believe in prayer and I believe in miracles! I will be praying for both of you as you journey through this season in your lives! I pray Gods blessing and healing touch on both of your lives!
I'm just finding this channel. You're both amazing. This takes a lot of courage to allow many people into your lives like this. My continued prayers for strength, comfort and wisdom.
I just happened on your videos and find them to be both cute and informative. I can see why you fell in love with Jason - he is cute, handsome, intelligent, has a great personality and fun to be with. You are an amazing caregiver. It is one of the most difficult jobs in the world and you appear to be handling it beautifully. My Mom developed late onset MS when she was in her 50s. She had problems with her legs as well - they referred to it as restless leg syndrome. Her legs didn't shake as Jason's are doing, but she would get this overwhelming need/urge to move her legs around. Plus, because of the MS, she had to get up during the night and go to the bathroom, disturbing my Dad's sleep . Their solution was to get twin beds, put them side by side and basically make a king sized bed. They had a king sized headboard and king size bedspread, but the linens were separate twin size for each bed. That way her movements on her "side" of the bed didn't affect my Dad's side. So, I thought I'd pass that idea on in case it might be something that would help. Prayers for continued strength and patience as y'all travel this path to the future. God bless you both.
Thank you so much for the updates!! You are both amazing!!! Please keep them coming. You are helping me and thousands of others more than you know!!! Love you both!!❤️❤️
You might want to contact Baylor College of Medicine in Houston,Texas. I go for a movement disorder in my muscles. It is a great place with dedicated doctors.The building is on Cambridge St. God bless.
I am so sorry for what you all are dealing with. I will keep you in my prayers. One day at a time is what each of us have. We don’t know what tomorrow brings.
I Love you 💕 guys so much. You bring so much joy to an old lady 👵. You have so much optimism, God Bless you sweethearts. You two are such a Blessing. 🥰
So I know it’s different but I’ve been a care giver of multiple neuro diverse people for years. My grandmother had Alzheimer’s and I took care of her for two years, my aunt with severe CP and profound intellectual disabilities I took care of her for 10years, our daughter switch profound (non verbal, non mobile, etc.) is now 8 and was adopted after Meeting her at 3weeks old. I’m no stranger to many of these symptoms albeit in different situations. I’ve been to more swallow studies than I can count with our daughter who eve naturally had to go from gtube and tastes by mouth to gj tube and nothing by mouth. My son has Aspergers and has many executive functioning challenges. I have just started learning about your journey and praying for your family. We may not be walking through the same things but the brain is so complex and I’ve seen/ been through many similar things as the care giver. It’s hard- no joke but I’ve been so blessed to walk through these things with several loved ones. My grandmother and aunt have now passed (2019 nov and dec), but I remember all too well the challenging and changing aspects of living and caring for those with neurological damage and disease.
Hopefully u guys get a good weather when u come down to fl ! It's been horrible and usually summer's are very wet unfortunately, your husband looks great! I'm glad u guys are so upbeat and have found a happy way to see this thru, Blessings to both!
I commend you both for your positivity and courage in facing this health challenge. Thank you for sharing your story so the rest of us can learn about Lewy Body Dementia. 💗
I found this channel by accident and I find it very interesting and informative because I had four major strokes and my last one was a bunch of mini strokes and I spoke to my neurologist, and he thinks I'm a prime candidate dementia. I was visibly upset, probably off and on for a week but just thinking about it and telling my family. I see some of the symptoms. I don't know if it's me or am I actually showing the dementia. At this point I don't want to tell anybody.
T. Tjietens.. For sure tell your family. Be accepting of it and they will be as well. Educate your loved ones and ask them all to be on your team! That way you can unselfconsciously enjoy yourself around them and not be isolated. People often avoid or feel awkward because they do not want to do or say the wrong things. Let them know exactly what you need from them and you will be amazed at the support. They will be grateful as well. Love and Luck to you!
Thanks so much, this helps me a lot understand My lewy body dementia you two are both amazing thank you so much I'm running a lot as I watch the videos understanding things I too have that problem with my hand and arm but the pain in the stiffness along with now I know my restless leg when I'm half awake and that also is caused by that I also have enemies awesome if you could share more about that one of the things that I have happening with me is I have hallucinations where my eyes will kind of turn white I'm in a trance and when I come out of it I hallucinate all kinds of weird things it's like this really happening so thanks again for sharing your stuff and helping me understand more Russ
Where my post said I also have enemies, I did not say when I spoke into my phone , it misunderstood me. Thanks for all your help and Good insight . I look forward to hearing more ,. Russ
We love to hear from you all!!! Thanks so much for all your support!
Would you please ask Jason if he has experienced a sudden rush of emotions to the point that a song or a movie can cause him to burst out crying? Or if he has a hard time concentrating while driving. I also wanted to thank you for sharing your story it has opened my eyes and has helped me realize that my Ex- husbands behavior isn't just because of his Alcoholism , but I now see him exhibiting every one of the symptoms that Jason has experienced and quite few more that terrify me putting himself as well as others in danger. And I don't know how to get him help. We were married 26 yrs and have been divorced for almost 15 yrs and have managed to remain friends for over 61 years but because I am no longer married to him his Doctors at the VA can't even speak to me about him or advise me as to how to get him the professional help that he needs. I've tried and the kids have tried to talk to him and to help him but nothing seems to help he promises to talk to his Doctor but then doesn't the last time we spoke he went off yelling telling everyone to leave him the hell alone as he stands naked wearing only his white tube socks and black Croc's at my front door. Breaks my heart.
You guys are so cute together!! Love it keep the vids coming..
He has a great sense of humour 😂 you two are too cute together 🥰💕🇬🇧
He is funny and good looking. I love his energy too. What a good guy.
Jason is a Rock Star. He has a wonderful sense of humor.
You two have the best attitude while dealing with dementia. I think this important. Live everyday to the fullest. I know this is hard at times but you make a great team. Prayers to both of you .
I've worked with patients with different types of dementia and Alzheimer's for almost 20 years. It's good to see Jason still has his sense of humor.
I so love Jason’s sparkly funny personality and your upbeat laughing attitude. Who could have thought a dementia video could be so upbeat.?💕
While this is so incredibly sad (my dad is currently in memory care with dementia at age 70, started showing signs in his mid 60's), you two are absolutely adorable, managing things with such positivity and honestly, if you hadn't told us, I would not know that Jason is sick. Stay positive. :) Thanks for sharing your journey. I'm certain it's helping others that need it.
You guys are pretty charming. My brother is beginning to have some symptoms, and it's good to see folks dealing with dementia and still laughing. Thank you.
Jason, you're too good of a person for this to happen to you. You're impressive and stoic too.
I totally agree with you.
I appreciate you both so much for sharing your story. I just found the first video and had to write you. I have been caring for my mother for a few years now. It is a different situation but kind of the same. She was very ill for three years and she lost her memory and didn't recognize me because (I think) she doesn't remember me at 60 years old. She kept asking where her daughter was. I understand how hard it is to remember and catch ourselves in trying to talk to them like we always have. And like you said we can't do that when they are not themselves. I am fortunate that her memory has returned but her health has declined because of all the UTI's she had that caused the memory problems. I am not a nurse but I sure learned a lot and was able to handle more than I thought I ever could. I also learned more patience than I ever thought possible.
I wish you well and I am glad you have family you can talk to about this. I don't and I know how hard it can be. I pray for you both and wish you well. Again thank you for your story. I believe there are a lot of people that are in the same spot and know what you are going thru. When it gets hard try to remember we are behind you.
I can see why you fell in love with your husband...handsome, smart and a great sense of humor too! I also wanted to share some info with you. I have arachnoiditis due to spinal surgeries and countless spinal taps. The pain from mid-lower leg down to the feet feels like thousands of red ants biting all at once. And often my muscles in my ankles and feet/toes would cramp into horrible painful knots, to the point that i couldn't walk. The neurologist prescribed Gabapentin which lowered my pain level to a low scream. We tried several things and finally came to the combo of Gabapentin and Tramadol. For me, it works very well. Maybe this info might help you. Good luck at the Neurologist. Love your channel and watching the two of you together.
I too was choking and gagging to the point of vomiting. I had all kinds of swallow tests, etc. All were normal. Finally saw a renowned ENT who diagnosed me with Silent Reflux.
This must be hard,..being a mom, wife, working holding all together,...you are amazing omg so amazing.
Thank you for helping us to learn more Jason you're the only one who really knows what you're experiencing
Jason you have such a good sense of humour and hope you both enjoyed your grandson's birthday
Jason is so funny, it’s cool how you two bounce off each other.
I just came across you guys this morning! I love the energy you have. You are an adorable couple. Be well don’t give up🙏 I have MS DX at 39 in 2011 whole life changer with a chronic illness with no cure. I don’t let it get me down and I try everyday to stay positive.
You guys are wonderful. My 83 year old husband has dementia but they haven’t given it a name. Your video,s have helped me so much.. I am a nurse also and find myself doing exactly what I was trained not to do. Thank you both.
You two are adorable! I love seeing you interact and have fun together!
Praying for both of you. May God lay his healing hand on you. I’m so glad you have your precious wife. I love that y’all are willing to share your journey. Be well 🥰
Happy Veteran's Day Jason! Thanks for your service!!
Love you two! Thanks for sharing.
Thanks so much 😊💜
Y'all are too cute and make me smile, Thank You for your service
Jason makes me smile and laugh! That smile gets me every time❤❤❤
Hi I'm new here can you explain what actually happened to make Jason go to the doctor in the first place..... Was it a symptom.
You two are too cute and such an inspiration for anyone going through a health issue. I can just see the love between the two of you. Praying for good news from your neurologist!
You two are awesome, and you seem to be happy, Jason has such a great attitude and he's funny and I'm still praying for you both.
Thank you for educating us on such a difficult subject. You are doing it well!
So glad you have humor to help you through this! Enjoy yourselves.
I'm a Carer for the elderly, in London, in the dementia ward. I think you're both inspirational and I really enjoyed watching this x
How is it ??? This is so interesting to me ... is it just dreadful ? Or do they sometimes seem blissfully ignorant ?
New subbi... my sweet dad lost his battle with Lewy body 2 years ago. He lived with his dignous for over 5 years. He was 89.
Preying for your family. I look forward to watching your journy.
Positive attitude and dealing with reality in a fashionable matter..I'm a care giver over 20 year...I'm proud of both of you...God first ...and all will be changed!
I understand what you are going through. My parents both have dementia, my dad wasn’t able to be formally diagnosed at the point we are at but they assume LBD. My mom has Alzheimer’s. I think the only advice I could give you is to continue to stay ahead by constantly educating yourself to what is coming. The laughter gets harder and harder to find. One of the books that has helped me the most is called Smiling Through Your Tears: Anticipating Grief. I don’t want to come across as an “expert” but please be careful with your travels, change can cause rapid progression with any dementia. Thank you so much for sharing your story. ♥️
Oh my gosh I love you both 🤟
Jason has a great personality, as do you! When you laugh at his jokes, it makes me get goosebumps. It seems like such a natural duo, there is something there I just don’t see with other couples. Something wonderful and unmatched. As these videos progress, Leslie you seem more relaxed and confident, for whatever reason. I hope you both are having a blessed day today while I keep working thru your videos 🤗
Thank you for sharing. So much to be learned from others who face the challenges of dementia. I love the idea of having a code word to alert him that he needs to let you help him refocus. Of course one of the big challenges is adjusting to frequent changes. You two are great!
Thank you for sharing your life with us your a lovely couple life’s a bitch sometimes and it’s great to see you both being positive thinkers live life to the fullest guys. Love your sense of humour and your love just shines through the videos. We lost our son at age 33 10 years ago to an aneurysm so I know life is short. Sending cuddles hugs and prayers to you both all the way from Melbourne Australia
Thanks for allowing us to watch your life's unfolding curve ball. I know we get to see the awesomeness of both of your smiles and sense of humor, and not the not so pretty side with the puking and choking side. My prayers go out to you both. Thank God you have each other. A lot of spouse's would have bailed. I believe God sees the big picture from beginning to end. And he added Jason's great sense of humor to make it easier to navigate the journey. And I hope you guys had a great trip to Florida to celebrate the grandson's birthday. I look forward to the next video. God bless you.
Thank you for sharing your life with us... we are all going through some type of struggle and to know that brings comfort to those of us who are feeling overwhelmed or alone to keep laughing.
Love you guys. And for some reason you make me happy just watching a video because you are happy in spite of everything we still have a lot of love for each other. What a blessing
Hi to you two! Jason i love your sense of humor! Keep it up! And it sounds like you are a very active guy! Keep it up! Keep stimulating your brain, keep it active. Also the choking, and I guess you can say the feeling of asperating is one of the symptoms. My step dad has had problems swallowing and coughs alot. He says he feels like somethings in his throat, but there's nothing there. It may be some spastic movement of the muscles in the throat. Im not sure, but I just wanted to share my stepdad has had that also. And he has been diagnosed with Lewys also.
Leslie you are so sweet and strong sweetie! Im so glad you both are making plans to go places and to keep enjoying life no matter what! God is there for you, he is your strength and hope! Happy you get to be with your grandson! ♥️♥️♥️ big hugs to you both!
What a great sense of humour. Much love from Australia 🥰
Hello Australia! Thank you so much! 😊
@@ACharmingAbode how are things going? Your in my thoughts so much. I wish you much love and light. 🥰
You guys are so level headed and your commitment to each other, to enrich yor community and to enjoy life with dementia is awesome and inspiring.
Hi, Jason and Leslie, I know that this life challenge must be daunting at times and I see that your positive attitudes will help to illuminate your path. You are a wonderful couple and your love for each other is so apparent. Jason, thank you for serving our country and you are a very brave man. I respect you and think of your courage every day. Deirdre
He's great! Love his sense of humor.
Jason, you are delightful! My prayers are with you.
Hi Leslie, you and Jason are simply adorable and I enjoy your video's very much. I know it can be difficult when a spouse has medical issues because I have been dealing with my husband's medical issues and it becomes exhausting. He was just diagnosed with a rare cancer in the ribs and I have been doing so much research and looking for the best doctor for him because we have not gotten definitive answers from the doctor that was treating him. Keeping you all in my thoughts and prayers. So happy that you are both going to your grandson's 1st birthday, it will be nice to get away. Take care! xo
He is so blessed to have you and your upbeat, happy , SAFE personality ... I would be so terrified and alone ... you will change this disease around for him ❤️
Thank you for your kind words ☺️
I admire y’all’s positive attitude, and the love u have for each other. God Bless You and Happy Thanksgiving
I love watching your channel, especially after learning this is what Robin Williams actually had. your upbeat attitude and your ability to continue to care for and love Jason
Jason you are so funny &. Love your wife. Please don't stop sharing this info.
Hi there you two Great People. My heart is with you on this journey. Please do test for Parkinsons and Vertigo. It usually goes hand in hand with Dementia. Strongs and I will pray for all of you. xxx
I watched your post and my heart is so touched! I believe in prayer and I believe in miracles! I will be praying for both of you as you journey through this season in your lives! I pray Gods blessing and healing touch on both of your lives!
I'm just finding this channel. You're both amazing. This takes a lot of courage to allow many people into your lives like this. My continued prayers for strength, comfort and wisdom.
I just happened on your videos and find them to be both cute and informative. I can see why you fell in love with Jason - he is cute, handsome, intelligent, has a great personality and fun to be with. You are an amazing caregiver. It is one of the most difficult jobs in the world and you appear to be handling it beautifully.
My Mom developed late onset MS when she was in her 50s. She had problems with her legs as well - they referred to it as restless leg syndrome. Her legs didn't shake as Jason's are doing, but she would get this overwhelming need/urge to move her legs around. Plus, because of the MS, she had to get up during the night and go to the bathroom, disturbing my Dad's sleep . Their solution was to get twin beds, put them side by side and basically make a king sized bed. They had a king sized headboard and king size bedspread, but the linens were separate twin size for each bed. That way her movements on her "side" of the bed didn't affect my Dad's side. So, I thought I'd pass that idea on in case it might be something that would help. Prayers for continued strength and patience as y'all travel this path to the future. God bless you both.
Jason is hysterical. Glad you have some appointments coming up that will hopefully help x
His sense of humor kills me!!! 😂
I’m needing a candle from your charming abode to mine! Jason’s the best salesman!
He is so cute and funny! What a great attitude! Have fun with you grandchild.
Hi I'm a new sub do they have another child besides their daughter... I didn't know their daughter had a baby.
You both are adorable. I’m wishing you both the best on this journey. Prayers !
You both are amazing, beautiful souls. Thank you so much for sharing.
Hi Leslie and Jason! Thank you so much for sharing updates. You both are in my prayers. I love all your videos. 💕
It’s always good to hear how y’all are doing. It’s great to see you both in high spirits. Love and prayers😊❤️😊
Thank you so much for the updates!! You are both amazing!!! Please keep them coming. You are helping me and thousands of others more than you know!!! Love you both!!❤️❤️
Catching up on these videos. Your relationship is precious, thank you for sharing and teaching us 💕
You are so welcome 😊
Love you guys thank you for showing us a little of your lives!
Love how you love each other!
God be with you both and your children.
Jason you are awesome! I love your positive attitude and humor!
You might want to contact Baylor College of Medicine in Houston,Texas. I go for a movement disorder in my muscles. It is a great place with dedicated doctors.The building is on Cambridge St. God bless.
You are such a cute couple! I found you randomly on you tube. Sending you prayers and love and healing!
I am so sorry for what you all are dealing with. I will keep you in my prayers. One day at a time is what each of us have. We don’t know what tomorrow brings.
I Love you 💕 guys so much. You bring so much joy to an old lady 👵. You have so much optimism, God Bless you sweethearts. You two are such a Blessing. 🥰
May God bless
Both of you as you work with all the changes in your life. Love you two. Sending hugs and prayers
And the best team is... "A charming abode" 🤗 I support you with all my friendship from France. 💛🧡👍🏻🍀
LOVE your friendship and support from France! 💜😊
@@ACharmingAbode Oh, thank you so much. It's a pleasure for me 🙏💛
Thanks a million for sharing your life with LBD. Stumbled on your posts and will be thankful for ever.
Thank you so much for watching! We appreciate your support! 😊
I am so praying for you both! Healing!
You two are lovely. My heart is with you both. Thank you for the update.
Your husband is hilarious and you both look so young. Keep on enjoying your lives, It’s hard in these covid times for all! Merry Christmas
I love your sharing ... Ya’ll two are a blessing .. I’m worried for my father at 91 he is losing short term memory rapidly..
You guys are the cutest couple!! Have fun at the birthday party!! 🥰🥰
You are both so amazing and the love you have for each other shines through. Bless you both, love from Scotland xx
So I know it’s different but I’ve been a care giver of multiple neuro diverse people for years. My grandmother had Alzheimer’s and I took care of her for two years, my aunt with severe CP and profound intellectual disabilities I took care of her for 10years, our daughter switch profound (non verbal, non mobile, etc.) is now 8 and was adopted after Meeting her at 3weeks old. I’m no stranger to many of these symptoms albeit in different situations. I’ve been to more swallow studies than I can count with our daughter who eve naturally had to go from gtube and tastes by mouth to gj tube and nothing by mouth. My son has Aspergers and has many executive functioning challenges. I have just started learning about your journey and praying for your family. We may not be walking through the same things but the brain is so complex and I’ve seen/ been through many similar things as the care giver. It’s hard- no joke but I’ve been so blessed to walk through these things with several loved ones. My grandmother and aunt have now passed (2019 nov and dec), but I remember all too well the challenging and changing aspects of living and caring for those with neurological damage and disease.
Hopefully u guys get a good weather when u come down to fl ! It's been horrible and usually summer's are very wet unfortunately, your husband looks great! I'm glad u guys are so upbeat and have found a happy way to see this thru, Blessings to both!
Love ❤️🙏 you two. Am honored to hear your story 🙂.
You guys are wonderful ❤️ I love you two! Keep up the good work👍🏻 and much thanks to you both for this documentary
Just found your inspirational story. Blessings to you both! You have beautiful hearts and obviously love each other very much!
Jason, you are amazing...God bless you.
You two are amazing!
I commend you both for your positivity and courage in facing this health challenge. Thank you for sharing your story so the rest of us can learn about Lewy Body Dementia. 💗
Prayers,the new test will help find some help
You two are adorable together and so in love, that’s apparent 🥰
You two are too cute!! God bless both of you for sharing!!
Prayers are with you, wish you the best. Keep that positive energy. 🙏💖
You two are too funny. Take care and stay safe and healthy.
Hoping all the best for you guys!
I miss you guys. Praying for you every day.
Buddy,
You make a bracelet and I'll buy several.
What a great idea of how we can help.
Please let us know how we can help.
Me too! I want a bracelet.
You 2 are such so cute together.
Love all of your updates and learning what’s ahead for treatment and fun! You two are amazing and deserve the best ! 🤗
You are so sweet 🥰 thank you! ❤️❤️
I found this channel by accident and I find it very interesting and informative because I had four major strokes and my last one was a bunch of mini strokes and I spoke to my neurologist, and he thinks I'm a prime candidate dementia. I was visibly upset, probably off and on for a week but just thinking about it and telling my family. I see some of the symptoms. I don't know if it's me or am I actually showing the dementia. At this point I don't want to tell anybody.
T. Tjietens.. For sure tell your family. Be accepting of it and they will be as well. Educate your loved ones and ask them all to be on your team! That way you can unselfconsciously enjoy yourself around them and not be isolated. People often avoid or feel awkward because they do not want to do or say the wrong things. Let them know exactly what you need from them and you will be amazed at the support. They will be grateful as well. Love and Luck to you!
Your husband is so awesome, and it's awesome he's able to make you laugh! Be blessed 🤗❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
You both make me so happy, I hope my fiancé & I end up in this type of relationship 🥰🥰
Thanks so much, this helps me a lot understand My lewy body dementia you two are both amazing thank you so much I'm running a lot as I watch the videos understanding things I too have that problem with my hand and arm but the pain in the stiffness along with now I know my restless leg when I'm half awake and that also is caused by that I also have enemies awesome if you could share more about that one of the things that I have happening with me is I have hallucinations where my eyes will kind of turn white I'm in a trance and when I come out of it I hallucinate all kinds of weird things it's like this really happening so thanks again for sharing your stuff and helping me understand more
Russ
Where my post said I also have enemies, I did not say when I spoke into my phone , it misunderstood me. Thanks for all your help and Good insight . I look forward to hearing more ,. Russ
I hope you had a great time visiting your grandson!! They are the best!!
The best!💜😊
Thank you for sharing your story, you are in our prayers and God Bless❤